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"While Everyone Else was Doing Sports, I Used to Sit on the Sidelines." How Do Adolescents Manage Their Asthma?: A Qualitative Study. "当别人都在运动时,我却常常坐在场边"。青少年如何管理自己的哮喘?定性研究。
Pub Date : 2024-12-01 Epub Date: 2024-11-05 DOI: 10.1080/24694193.2024.2422816
Emine Güneş Şan, Naime Altay

Effective asthma management is a necessity for the control and optimal outcomes of the condition. A number of factors may either facilitate or act as barriers to the management of asthma in adolescents. The objective of this study was to assess the feelings, thoughts, and behaviors of adolescents diagnosed with asthma regarding the management of their condition. This exploratory qualitative study was conducted using semi-structured, in-depth interviews with 12 adolescents aged 12-18 years who were followed up with a diagnosis of asthma at a university hospital pediatric allergy clinic between October 15 October 2023, and December 15 December 2023. The study was written using the COREQ checklist. Three main themes were identified in this study: (1) facilitators, (2) barriers, and (3) information. Adolescents reported that they needed more information about medication use and asthma disease to manage asthma. Asthma control ability, positive beliefs, and supportive relationships were facilitators of asthma management. However, poor asthma control, negative beliefs, lack of support, poor communication, and asthma-related stigma were identified as barriers to asthma self-management. Adolescents had information needs in asthma management. This study highlights that barriers to asthma self-management in adolescents are much greater than the facilitators. For adolescents to manage their asthma well, their information needs must be met. Therefore, pediatric nurses should prepare individualized training to meet the specific needs of adolescents.

有效的哮喘管理是控制病情并取得最佳疗效的必要条件。在青少年哮喘的管理过程中,有许多因素可能会起到促进或阻碍作用。本研究旨在评估被诊断患有哮喘的青少年在病情管理方面的感受、想法和行为。这项探索性定性研究采用半结构化深入访谈的方式,对 2023 年 10 月 15 日至 2023 年 12 月 15 日期间在大学医院儿科过敏门诊诊断出哮喘并接受随访的 12 名 12-18 岁青少年进行了访谈。本研究采用 COREQ 检查表撰写。本研究确定了三大主题:(1)促进因素;(2)障碍;(3)信息。青少年表示,他们需要更多关于药物使用和哮喘疾病的信息来控制哮喘。哮喘控制能力、积极的信念和支持性的人际关系是哮喘管理的促进因素。然而,哮喘控制能力差、消极信念、缺乏支持、沟通不畅以及与哮喘有关的耻辱感被认为是哮喘自我管理的障碍。青少年在哮喘管理方面有信息需求。这项研究强调,青少年自我管理哮喘的障碍远远大于促进因素。要想让青少年很好地管理哮喘,就必须满足他们对信息的需求。因此,儿科护士应准备个性化培训,以满足青少年的特殊需求。
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引用次数: 0
Exploring the Development and Introduction of FamilyCentered Care in Children's Hospital Wards. 探索以家庭为中心的护理在儿童病房的发展与引进。
Pub Date : 2024-12-01 Epub Date: 2024-12-03 DOI: 10.1080/24694193.2024.2398349
Edward Alan Glasper
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引用次数: 0
Fathers' Experiences Six Months After their Preterm Infant's Discharge from the NICU. 早产儿从新生儿重症监护室出院六个月后父亲的经历。
Pub Date : 2024-12-01 Epub Date: 2024-09-25 DOI: 10.1080/24694193.2024.2406209
Ellen Eriksson, Pia Lundqvist, Lisbeth Jönsson

Although fathers experience emotional stress both during the care period and after discharge, there is limited research focusing exclusively on fathers' experiences after their time in a neonatal intensive care unit. Their experiences are important for tailoring support to fathers based on their individual needs. This paper is part of a longitudinal study in which parents were followed by means of questionnaires and individual interviews during a two-year period after discharge from hospital-based neonatal home care. A qualitative content analysis with an inductive approach was used to elucidate the experiences of fathers six months after their preterm infant's discharge. Twelve fathers participated in the study. The following categories emerged and constituted the result: "Vivid memories from the NICU," "Struggling with new challenges in life" and "Transition to home still in their thoughts." The approach and attitude of health-care professionals may contribute to fathers' involvement during the care period, as fathers tend to set their own feelings aside.

虽然父亲在护理期间和出院后都会经历情绪压力,但专门针对父亲在新生儿重症监护室的经历的研究却很有限。他们的经历对于根据父亲的个人需求为其提供量身定制的支持非常重要。本文是一项纵向研究的一部分,在新生儿家庭护理出院后的两年时间里,通过问卷调查和个别访谈对父母进行了跟踪调查。研究采用归纳法对内容进行定性分析,以阐明父亲在早产儿出院六个月后的经历。12 位父亲参与了研究。研究结果分为以下几个类别:"来自新生儿重症监护室的生动记忆"、"在新的生活挑战中挣扎 "和 "对回家的过渡仍念念不忘"。医护人员的方法和态度可能会影响父亲在护理期间的参与,因为父亲往往会将自己的感受放在一边。
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引用次数: 0
Crafting a "TransitionOmeter": A Proposed Framework for Developing and Honing Capabilities of Young People Transitioning to Adult Healthcare Services. 打造 "过渡度量器":为过渡到成人医疗保健服务的年轻人开发和完善能力的拟议框架。
Pub Date : 2024-10-21 DOI: 10.1080/24694193.2024.2411984
Sari Luthfiyah, Triwiyanto Triwiyanto, Bedjo Utomo
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引用次数: 0
"It Shook My Whole Parenting Plan": Parents' Experiences of Being at Home with Their Newborn Baby During the COVID-19 Pandemic. "它动摇了我的整个育儿计划":在 COVID-19 大流行期间,父母在家陪伴新生儿的经历。
Pub Date : 2024-08-16 DOI: 10.1080/24694193.2024.2389415
Kerry L Gaskin, Lucy Hope, Alison Lewis

A cross-sectional online survey was undertaken (July-August 2020) to ascertain parents' experiences during the COVID-19 pandemic of being at home with their newborn baby in the first 6 weeks. Participants (n = 371) were mostly biological mothers (n = 369, 99.4%), white British (n = 351, 94,5%), first baby (n = 186, 50%). A statistically significant positive correlation was found between maternal confidence and number of children (rho (369) = 0.295, p < .001) and baby's age at time of participation (rho (369) = 0.139, p = .009). Participants without higher educational qualifications (median = 62, SIQR = 3.5) had statistically significant higher confidence (U = 11831.500, p < .001) than participants with higher educational qualifications (median = 58, SIQR = 2). Parents of babies without health issues at birth (median, 61, SIQR = 3.5) had statistically significant higher confidence (U = 13213.500, p < .001) than parents of babies with health issues at birth (median = 58, SIQR = 5). Three qualitative themes have emerged: the impact of "no partner" restrictions; mixed emotions and lack of information and support. In conclusion, parenting during a pandemic created anxiety and fear, affected by "no partner" restrictions, not being allowed to appointments, scans, and during labor. Some parents were more confident and indicated benefits including heightening bonding with baby and partner during social distancing.

我们开展了一项横断面在线调查(2020 年 7 月至 8 月),以了解在 COVID-19 大流行期间,父母在家陪伴新生儿头 6 周的经历。参与者(n = 371)大多为亲生母亲(n = 369,99.4%)、英国白人(n = 351,94.5%)、第一胎(n = 186,50%)。从统计学角度看,母亲的自信心与子女数量之间存在明显的正相关(rho (369) = 0.295,p p = .009)。据统计,学历不高的参与者(中位数 = 62,SIQR = 3.5)的自信心明显较高(U = 11831.500,p p = 0.009)。
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引用次数: 0
The Celtic Curse: Screening Children for Genetic Haemochromatosis. 凯尔特人的诅咒筛查儿童遗传性血色病。
Pub Date : 2024-07-29 DOI: 10.1080/24694193.2024.2375170
Julie Brown
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引用次数: 0
Dating Violence Victimization, Perpetration and Suicidality Among Adolescents. 青少年中的约会暴力受害者、施暴者和自杀倾向。
Pub Date : 2024-07-25 DOI: 10.1080/24694193.2024.2377205
Nancy Perrin, Dominique Guillaume, Tina Bloom, Kamila Alexander, Wuraola Olawole, Amber Clough, Rachael Turner, Nancy Glass
<p><p>Few studies have focused on evaluating the relationship between dating violence (DV) and suicide during the critical period of adolescence, particularly for transgender and gender-diverse (TGD) youth. The study examined the relationship between experiencing DV victimization and perpetration in the past 6 months and suicidality (ideation and attempts) among male, female, and TGD adolescents. This study used data from a longitudinal randomized trial examining the effectiveness of myPlan, a healthy relationship and safety planning app intervention for adolescents, to a control website. Data for this study was collected virtually, in which participants completed surveys through online platforms. A convenience sample was recruited through youth organizations and posting on online platforms including social media. <i>N</i> = 610 adolescents age 15-17 years, who resided in the U.S. experienced DV in the past 6 months, had access to a safe device, and were able to access online surveys were included in this study. The majority were female (63.8%) with (19.5%) TGD and 16.7% male. Nearly 22% of the sample identified as Hispanic/Latino and 61.0% as white. Participants completed an online survey consisting of measures of socio demographics, DV victimization and perpetration via the Conflict of Adolescent Dating Relationships Inventory (CADRI), and suicidality. The primary outcome was the association between DV victimization and perpetration on suicidality. Different forms of DV were accounted for including emotional/relational, physical, and sexual DV. Logistic regressions determined differences in the rate of DV victimization and perpetration on suicidality between gender groups (cisgender female, cisgender male, and TGD). A stratified analysis was conducted to test if the relationship between DV and suicidality differed across gender identity. Approximately one-third (32.2%) of adolescents reported suicidality in the past 6 months. TGD adolescents were more likely to report suicidality compared to males (20.6%, <i>p</i> < .05) and females (32.7%, <i>p</i> > .05). The overall odds of suicidality increased as frequency of emotional/relational DV victimization (OR = 1.37, <i>p</i> < .001), physical DV victimization (OR = 1.59, <i>p</i> < .001) and sexual DV victimization (OR = 1.42, <i>p</i> < .001) increased. These relationships were not significant for DV perpetration. When stratifying findings by gender groups, all forms of DV victimization significantly increased the odds of suicidality for females as well as female perpetration of physical violence. For males, all forms of DV victimization and perpetration were associated with increased odds of suicidality, although not significant due to the smaller sample size. While DV victimization is associated with increased odds of suicidality for TGD, perpetration of DV is associated with decreased odds of suicidality, although not significant due to small sample size. The findings from this study provide f
很少有研究重点评估青春期关键时期约会暴力(DV)与自杀之间的关系,尤其是变性和性别多元化(TGD)青少年。本研究探讨了过去 6 个月中约会暴力受害和施暴与男性、女性和变性青少年自杀(意念自杀和自杀未遂)之间的关系。本研究使用了一项纵向随机试验的数据,该试验检验了 "我的计划"(一种针对青少年的健康关系和安全规划应用程序干预措施)与对照网站的有效性。本研究通过虚拟方式收集数据,参与者通过在线平台完成调查。研究人员通过青少年组织和在社交媒体等网络平台上发布信息的方式招募方便样本。本研究共纳入了 610 名 15-17 岁的青少年,他们居住在美国,在过去 6 个月中经历过家庭暴力,能够使用安全设备,并能够访问在线调查。大多数样本为女性(63.8%),其中有 19.5%为女性同性恋者,16.7%为男性。近 22% 的样本自认为是西班牙/拉丁美洲人,61.0% 的样本自认为是白人。参与者完成了一项在线调查,调查内容包括社会人口统计学、青少年约会关系冲突量表(CADRI)中的家庭暴力受害和施暴情况以及自杀倾向。主要结果是家庭暴力受害和施暴与自杀之间的关系。研究考虑了不同形式的家庭暴力,包括情感/关系、身体和性方面的家庭暴力。逻辑回归确定了不同性别群体(顺性别女性、顺性别男性和 TGD)之间家庭暴力受害率和实施率与自杀率之间的差异。我们还进行了分层分析,以检验不同性别身份之间家庭暴力与自杀率之间的关系是否存在差异。约有三分之一(32.2%)的青少年表示在过去 6 个月中有过自杀倾向。与男性(20.6%,P P > .05)相比,TGD 青少年更有可能报告有自杀倾向。自杀的总体几率随着情感/关系方面的家庭暴力受害频率的增加而增加(OR = 1.37,p p p)。
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引用次数: 0
An Exploration of the Day to Day Professional Experiences of School Nurses Globally: A Narrative Review. 探索全球校医的日常职业经历:叙事回顾。
Pub Date : 2024-07-23 DOI: 10.1080/24694193.2024.2377202
Majid Alhammadi, Kevin Brazil, Breidge Boyle

To explore school nurses' roles globally through their own perceptions of what they do and how they do it and to compare the realities for the role its representation in professional literature. A comprehensive narrative literature review, using ENTREQ guidelines, with "qualitizing" of the quantitative literature, and athematic analysis was carried out. Findings were reviewed in relation toestablished theory. CINAHL, Medline, Cochrane Library, and Embase were systematically searched from 2000-2021. Included studies focused on school nurses'perceptions of their own practice. Five themes: direct care, health promotion, collaboration,support from school and health authorities and promoting the school nurses'role were found. These themes were closely aligned to the National Associationfor School Nurses' framework for 21st century practice. However, the schoolnurses signposted areas where they need support in carrying out their job tothe highest standard. School nurses are important to support thehealth needs of students while at school. They also, particularly in areas likethe United Arab Emirates where resources are being invested in the role, have a unique role to play in health promotion, leading to improved health literacy,as positive health behaviors tend to be learned young. However, worldwide, thepotential for the school nursing role needs to be recognized and supported by healthand education providers, by families and within the schools for its fullpotential to be achieved.

通过学校护士自己对其工作内容和工作方式的认识,在全球范围内探索学校护士的角色,并比较专业文献中对其角色的现实表述。采用 ENTREQ 准则进行了全面的叙事性文献综述,并对定量文献进行了 "定性 "和数学分析。根据已确立的理论对研究结果进行了审查。系统检索了 2000-2021 年间的 CINAHL、Medline、Cochrane Library 和 Embase。所纳入的研究侧重于学校护士对自身实践的看法。研究发现了五个主题:直接护理、健康促进、合作、学校和卫生当局的支持以及促进校医的角色。这些主题与全国学校护士协会的 21 世纪实践框架密切相关。然而,校医们也指出了他们在以最高标准开展工作时需要支持的领域。校医对于满足学生在校期间的健康需求非常重要。特别是在像阿拉伯联合酋长国这样对校医这一角色投入资源的地区,校医在促进健康、提高健康素养方面可以发挥独特的作用,因为积极的健康行为往往是从小养成的。然而,在世界范围内,学校护理角色的潜力需要得到健康和教育提供者、家庭和学校的认可和支持,才能充分发挥其潜力。
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引用次数: 0
Places of Farewell: A Scoping Review Exploring Factors Influencing the Choice of Place of Death for Children when Death is Expected. 告别之地:探索影响儿童在预知死亡的情况下选择死亡地点的因素的范围研究。
Pub Date : 2024-07-12 DOI: 10.1080/24694193.2024.2374239
Gilda Davis, Kerry Gaskin, Gyozo Molnár, Jackie Bentley

Progression of ill health and death trajectories is different for children with a non-oncology diagnosis. As previous research has focused primarily on children with cancer diagnoses, this scoping review explored what factors influence the parent and/or child's choice of place of death for a child with a non-oncological complex care condition, when death is expected. Eighteen papers were identified considering the preferred place of death. The findings were themed into 1. Diagnostic Factors; 2. Home Factors; 3. Socio-economic Factors; 4. Parent Factors. In conclusion, informed discussions with families that recognize the reason for, and the impact of their choices, are necessary not only for the preferred place of death but also end of life care.

非肿瘤诊断儿童的健康状况和死亡轨迹有所不同。由于之前的研究主要集中在确诊为癌症的儿童身上,因此本范围界定综述探讨了对于患有非肿瘤性复杂护理病症的儿童,在预期死亡的情况下,哪些因素会影响父母和/或儿童对死亡地点的选择。共发现了 18 篇考虑首选死亡地点的论文。研究结果分为 1.诊断因素;2.家庭因素;3.社会经济因素;4.父母因素。总之,与家属进行知情讨论,了解其选择的原因和影响,不仅对首选死亡地点很有必要,而且对生命末期护理也很有必要。
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引用次数: 0
The Impact of COVID-19 on Children, Young People, and Families in Sihanoukville, Cambodia: The Mitigating Work of M'Lop Tapang. COVID-19 对柬埔寨西哈努克市儿童、青少年和家庭的影响:M'Lop Tapang 的缓解工作。
Pub Date : 2024-06-01 Epub Date: 2024-06-26 DOI: 10.1080/24694193.2024.2354329
Amanda Kelly, Keeley Guest, Um Chamroeun, Dom Sinat, You Saroeun, Andrew Graeme Rowland

Globally, children have been adversely affected by the wide variety of impacts of SARS-CoV-2 (Coronavirus | COVID-19). Vulnerable children who depend on the support of education and health and social care systems were left unprotected as these systems were weakened by the pandemic. COVID-19 has exposed the already fragile situations in which many children and young people live and that thousands of children and young people would need ongoing support but remained invisible to statutory authorities. COVID-19 has also been a stark reminder of the vulnerability of individuals and societies and it has exposed deep divisions, inequalities, and injustices between different countries and groups of people. M'Lop Tapang is a local nonprofit organization registered with the Royal Government of Cambodia. This report discusses the efforts of M'Lop Tapang following the declaration of the COVID-19 global pandemic in early 2020, to address the local community needs; to ensure the voices of children remained heard; and to promote children's rights remaining a priority throughout the remainder of the pandemic.What is already known on this topicVulnerable children are dependent on remaining visible to education and health and social care systems to ensure they are safeguarded and protected.Poor safety, financial instability, unemployment, challenges to children's rights and displacement all have the potential to increase vulnerabilities and intensify inequalities.The COVID-19 global pandemic has widened the global lens for the nursing profession and to effect change, children's nurses need to think globally and act locally.What this study addsThis study provides insights into the challenges faced by children and families in Sihanoukville, Cambodia, during the early part of the SARS-CoV-2 (COVID19) pandemic in 2020-2021.The economic impact of COVID-19 on children and families living in Sihanoukville, Cambodia, between 2020 and 2021 is reviewed.The learning from the pragmatic and rapid interventions of M'Lop Tapang, Sihanoukville during the early phase of the SARS-CoV-2 (COVID-19) pandemic, are of use in other countries around the world in future epidemic or pandemic situations.

在全球范围内,儿童受到了 SARS-CoV-2(冠状病毒 | COVID-19)带来的各种不利影响。依赖教育、卫生和社会保健系统支持的弱势儿童得不到保护,因为这些系统被这一流行病削弱了。COVID-19 暴露了许多儿童和青少年本已脆弱的生活状况,成千上万的儿童和青少年需要持续的支持,但法定机构却视而不见。COVID-19 还严峻地提醒我们个人和社会的脆弱性,它暴露了不同国家和人群之间的深刻分歧、不平等和不公正。M'Lop Tapang 是一家在柬埔寨王国政府注册的当地非营利组织。本报告讨论了 M'Lop Tapang 在 2020 年初宣布 COVID-19 全球大流行后所做的努力,以满足当地社区的需求;确保儿童的声音仍能被听到;并在大流行的剩余时间内继续优先促进儿童权利。安全状况不佳、经济不稳定、失业、儿童权利受到挑战以及流离失所都有可能增加儿童的脆弱性并加剧不平等。COVID-19 全球大流行拓宽了护理行业的全球视野,为了实现变革,儿童护士需要放眼全球,立足当地。本研究的补充内容本研究深入探讨了柬埔寨西哈努克市的儿童和家庭在 2020-2021 年 SARS-CoV-2 (COVID19) 大流行初期面临的挑战。从西哈努克市 M'Lop Tapang 在 SARS-CoV-2 (COVID-19) 大流行初期采取的务实和快速干预措施中汲取的经验对世界其他国家在未来流行病或大流行情况下也有借鉴意义。
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引用次数: 0
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Comprehensive child and adolescent nursing
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