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What factors are associated with informal carers' psychological morbidity during end-of-life home care? A systematic review and thematic synthesis of observational quantitative studies. 在临终家庭护理期间,哪些因素与非正式护理员的心理疾病有关?对观察性定量研究的系统回顾和专题综合。
Pub Date : 2023-11-15 DOI: 10.3310/HTJY8442
Tracey Shield, Kerin Bayliss, Alexander Hodkinson, Maria Panagioti, Alison Wearden, Jackie Flynn, Christine Rowland, Penny Bee, Morag Farquhar, Danielle Harris, Gunn Grande

Background: Family carers are central in supporting patients nearing end of life. As a consequence, they often suffer detrimental impacts on their own mental health. Understanding what factors may affect carers' mental health is important in developing strategies to maintain their psychological well-being during caregiving.

Aim: To conduct a systematic review and thematic evidence synthesis of factors related to carers' mental health during end-of-life caregiving.

Method: Searches of MEDLINE, CINAHL, PsychINFO, Social Sciences Citation Index, EMBASE, Cochrane Central Register of Controlled Trials and Database of Abstracts of Reviews of Effects 1 January 2009-24 November 2019. We included observational quantitative studies focusing on adult informal/family carers for adult patients at end of life cared for at home considering any factor related to carer mental health (anxiety, depression, distress and quality of life) pre-bereavement. Newcastle-Ottawa Quality Assessment Scale was used. Thematic analysis with box score presentation, and meta-analysis were done where data permitted.

Results: Findings from 63 included studies underpinned seven emergent themes. Patient condition (31 studies): worse patient psychological symptoms and quality of life were generally associated with worse carer mental health. Patient depression was associated with higher depression in carers (standardised mean difference = 0.59, 95% confidence interval 0.32 to 0.87, I2 = 77%). Patients' other symptoms and functional impairment may relate to carer mental health, but findings were unclear. Impact of caring responsibilities (14 studies): impact on carers' lives, task difficulty and general burden had clear associations with worse carer mental health. Relationships (8 studies): family dynamics and the quality of the carer-patient relationship may be important for carer mental health and are worthy of further investigation. Finance (6 studies): insufficient resources may relate to carers' mental health and warrant further study. Carers' psychological processes (13 studies): self-efficacy and preparedness were related to better mental health. However, findings regarding coping strategies were mixed. Support (18 studies): informal support given by family and friends may relate to better carer mental health, but evidence on formal support is limited. Having unmet needs was related to worse mental health, while satisfaction with care was related to better mental health. Contextual factors (16 studies): older age was generally associated with better carer mental health and being female was associated with worse mental health.

Limitations: Studies were mainly cross-sectional (56) rather than longitudinal (7) which raises questions about the likely causal direction of relationships. One-third of studies had

背景:家庭照顾者在支持接近生命末期的病人方面起着核心作用。因此,他们往往对自己的心理健康造成不利影响。了解哪些因素可能影响照顾者的心理健康,对于制定策略以在照顾期间维持照顾者的心理健康非常重要。目的:对临终照护过程中影响照护者心理健康的相关因素进行系统回顾和专题证据综合。方法:检索MEDLINE、CINAHL、PsychINFO、社会科学引文索引、EMBASE、Cochrane中央对照试验注册库和2009年1月1日- 2019年11月24日综述摘要数据库。我们纳入了观察性定量研究,重点关注在家照顾的成年临终患者的成人非正式/家庭照顾者,并考虑了丧亲前与照顾者心理健康(焦虑、抑郁、痛苦和生活质量)相关的任何因素。采用纽卡斯尔-渥太华质量评估量表。在数据允许的情况下,采用盒子分数表示的主题分析和元分析。结果:包括63项研究的结果支持了七个新兴主题。患者状况(31项研究):患者心理症状和生活质量较差通常与护理人员心理健康状况较差相关。患者抑郁与护理人员抑郁程度较高相关(标准化平均差= 0.59,95%可信区间0.32 ~ 0.87,I2 = 77%)。患者的其他症状和功能障碍可能与护理人员的心理健康有关,但研究结果尚不清楚。照顾责任的影响(14项研究):对照顾者生活、任务困难和一般负担的影响与照顾者心理健康状况的恶化有明显的关联。关系(8项研究):家庭动态和护患关系的质量可能对护理者心理健康很重要,值得进一步调查。财务(6项研究):资源不足可能与照顾者的心理健康有关,值得进一步研究。照顾者的心理过程(13项研究):自我效能感和心理准备与较好的心理健康有关。然而,关于应对策略的调查结果却喜忧参半。支持(18项研究):家庭和朋友提供的非正式支持可能与更好的护理者心理健康有关,但关于正式支持的证据有限。未满足的需求与较差的心理健康有关,而对护理的满意度与较好的心理健康有关。背景因素(16项研究):年龄较大通常与较好的照顾者心理健康有关,而女性与较差的心理健康有关。局限性:研究主要是横断面的(56)而不是纵向的(7),这提出了关于可能的因果关系方向的问题。结论和未来的工作:未来的工作必须采取全面的方法来改善照顾者的心理健康,因为与照顾者心理健康有关的因素涉及范围很广。关于这一主题的文献是多种多样的,难以总结,该领域将受益于解释模型指导下的更清晰的调查方向。未来的研究应该(1)进一步研究人际关系质量与财务状况;(2)更好地界定调查因素;(3)通过定量因果分析,确立与心理健康相关的因素;(4)更多地利用纵向设计来帮助理解关联的可能因果方向。研究注册:本研究注册为PROSPERO注册2019 CRD42019130279,网址为https://www.crd.york.ac.uk/prospero/.Funding:。该奖项由国家卫生与保健研究所(NIHR)卫生与社会保健提供研究计划HSDR 18/01/01资助,全文发表在《卫生与社会保健提供研究》上。有关进一步的奖励信息,请参阅美国国立卫生研究院资助和奖励网站。
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引用次数: 1
Eye donation from palliative and hospice care contexts: the EDiPPPP mixed-methods study. 姑息治疗和临终关怀环境下的眼部捐赠:EDiPPPP混合方法研究。
Pub Date : 2023-11-01 DOI: 10.3310/KJWA6741
Tracy Long-Sutehall, Mike Bracher, Sarah Mollart, Jane Wale

Background: Over 2 million people in the United Kingdom are living with sight loss with costs to the United Kingdom economy reported as £4.34 billion annually. Conditions that lead to sight loss and impaired vision can be treated if eye tissue is available for corneal transplantation, reconstructive surgery and research into eye diseases. Supply of eye tissue (only available via eye donation) is currently insufficient to meet demand; therefore, new routes are needed. Hospice and hospital-based Palliative Care Services have been reported as potential donation sources of this tissue.

Objectives: To: (1) scope the size and clinical characteristics of the potential eye donation population from research sites; (2) map the donation climate of each research site; (3) identify factors that enable or challenge service providers to consider the option of eye donation from a local and national perspective; (4) identify service users' views regarding the option of eye donation and the propriety of discussing eye donation; and (5) develop and pilot an empirically based intervention designed to change behaviours in relation to eye donation.

Design: A 36-month mixed-methods, multicentre study undertaking three work packages.

Settings: Three hospice care and three hospital-based palliative care services situated in the North, Midlands and the South of England (one service of each type per region).

Participants: Work package 1 - 105 service providers. Work package 2 - 62 service users, and 156 service providers in the national survey. Work package 3 - 21 expert consultees (patient and public involvement, cross discipline).

Data sources: Scoping review, retrospective note review, qualitative interviews/focus groups, participant observation, secondary analysis of primary data, national survey, transparent expert consultation.

Results: Potential: The retrospective notes review demonstrated that of 1199 deceased patients' notes, 553 (46%) patients met the criteria for eye donation (56%, n = 337 in hospice care service settings and 36%, n = 216 in hospital palliative care service). Practice: Less than 4% of all cases agreed as eligible for donation had been approached or referred for eye donation. Eye donation is not currently an embedded practice at local and national levels. Perceptions: Service providers were motivated to discuss eye donation but lacked opportunity and capability. Service users were willing and able to hold conversations about eye donation but were not aware of the option and had not had the option discussed with them. Preferences: Service users wanted to be offered the option of eye donation, and service providers wanted bespoke education and training related to eye donation. Evaluation of the developed intervention STEP

背景:英国有200多万人患有失明,据报道,英国每年的经济损失为43.4亿英镑。如果眼睛组织可用于角膜移植、重建手术和眼病研究,那么导致视力下降和视力受损的情况可以得到治疗。眼部组织的供应(只能通过眼部捐赠获得)目前不足以满足需求;因此,需要新的路线。据报道,临终关怀和基于医院的姑息治疗服务是这种组织的潜在捐赠来源。目的:(1)确定研究地点潜在供眼人群的规模和临床特征;(2) 绘制每个研究地点的捐赠气候图;(3) 确定使服务提供商能够或挑战服务提供商从地方和国家角度考虑眼睛捐赠选项的因素;(4) 识别服务用户对眼睛捐赠的选择和讨论眼睛捐赠的适当性的看法;以及(5)开发和试行一种基于经验的干预措施,旨在改变与眼睛捐赠有关的行为。设计:一项为期36个月的混合方法、多中心研究,包含三个工作包。设置:位于英格兰北部、中部和南部的三个临终关怀和三个基于医院的姑息治疗服务(每个地区每种类型一项服务)。参与者:工作包1-105服务提供商。工作包2-在全国调查中有62个服务用户和156个服务提供商。工作包3-21名专家咨询对象(患者和公众参与,跨学科)。数据来源:范围界定审查、回顾性说明审查、定性访谈/焦点小组、参与者观察、主要数据的二次分析、全国调查、透明的专家咨询。结果:潜力:回顾性笔记审查表明,在1199名已故患者的笔记中,553名(46%)患者符合眼部捐献标准(56%,n=337在临终关怀服务机构,36%,n=216在医院姑息治疗服务机构)。实践:在所有同意符合捐赠条件的病例中,只有不到4%的病例被要求或转介进行眼部捐赠。目前,眼科捐赠并不是地方和国家层面的一种根深蒂固的做法。看法:服务提供者有动机讨论眼睛捐赠,但缺乏机会和能力。服务用户愿意并能够就眼睛捐赠进行对话,但他们不知道这个选项,也没有与他们讨论过这个选项。偏好:服务用户希望获得眼睛捐赠的选择,服务提供商希望获得与眼睛捐赠相关的定制教育和培训。在全面干预实施后(预计将于2022年10月开始),将对开发的干预措施STEPS-姑息治疗环境中眼睛捐赠支持工具包进行评估。限制:由于新冠肺炎大流行对临床场所、合作组织和国家服务提供商的重大影响,所开发的干预措施中只有两个要素经过了概念验证的试点测试,对全国调查的响应率较低(8%);然而,需要个人和组织行为以及基于信息系统的变革来最大限度地发挥这种潜力。未来的工作:评估STEPS——姑息治疗环境中眼睛捐赠的支持工具包;研究探索更广泛的公众知识和对眼睛捐赠的看法;探索国家卫生服务局血液和移植组织及眼科服务部门在面向公众的信息图、沟通和宣传活动中使用语言的研究(特别是眼睛捐赠一词的使用)。试验注册:该试验注册为ISRCTN14243635:姑息治疗和临终关怀机构的眼睛捐赠。资金细节:该项目由国家卫生与护理研究所(NIHR)卫生与社会护理提供研究计划资助(17/49/42),并将在《卫生与社会保健提供研究》上全文发表;第11卷第20期。有关更多项目信息,请访问NIHR期刊图书馆网站。
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引用次数: 0
The effectiveness of sexual assault referral centres with regard to mental health and substance use: a national mixed-methods study - the MiMoS Study. 性侵犯转诊中心在精神健康和药物使用方面的有效性:一项国家混合方法研究——MiMoS研究。
Pub Date : 2023-11-01 DOI: 10.3310/YTRW7448
Elizabeth Hughes, Jill Domoney, Nicky Knights, Holly Price, Sibongile Rutsito, Theodora Stefanidou, Rabiya Majeed-Ariss, Alexandra Papamichail, Steven Ariss, Gail Gilchrist, Rachael Hunter, Sarah Kendal, Brynmor Lloyd-Evans, Mike Lucock, Fay Maxted, Rebekah Shallcross, Karen Tocque, Kylee Trevillion

Background: Sexual assault referral centres have been established to provide an integrated service that includes forensic examination, health interventions and emotional support. However, it is unclear how the mental health and substance use needs are being addressed.

Aim: To identify what works for whom under what circumstances for people with mental health or substance use issues who attend sexual assault referral centres.

Setting and sample: Staff and adult survivors in English sexual assault referral centres and partner agency staff.

Design: A mixed-method multistage study using realist methodology comprising five work packages. This consisted of a systematic review and realist synthesis (work package 1); a national audit of sexual assault referral centres (work package 2); a cross-sectional prevalence study of mental health and drug and alcohol needs (work package 3); case studies in six sexual assault referral centre settings (work package 4), partner agencies and survivors; and secondary data analysis of outcomes of therapy for sexual assault survivors (work package 5).

Findings: There is a paucity of evidence identified in the review to support specific ways of addressing mental health and substance use. There is limited mental health expertise in sexual assault referral centres and limited use of screening tools based on the audit. In the prevalence study, participants (n = 78) reported high levels of psychological distress one to six weeks after sexual assault referral centre attendance (94% of people had symptoms of post-traumatic stress disorder). From work package 4 qualitative analysis, survivors identified how trauma-informed care potentially reduced risk of re-traumatisation. Sexual assault referral centre staff found having someone with mental health expertise in the team helpful not only in helping plan onward referrals but also in supporting staff. Both sexual assault referral centre staff and survivors highlighted challenges in onward referral, particularly to NHS mental health care, including gaps in provision and long waiting times. Work package 5 analysis demonstrated that people with recorded sexual assault had higher levels of baseline psychological distress and received more therapy but their average change scores at end point were similar to those without sexual trauma.

Limitations: The study was adversely affected by the pandemic. The data were collected during successive lockdowns when services were not operating as usual, as well as the overlay of anxiety and isolation due to the pandemic.

Conclusions: People who attend sexual assault centres have significant mental health and substance use needs. However, sexual assault referral centres vary in how they address these issues. Access to follow-up support from mental health services needs to be improved (es

背景:设立了性侵犯转诊中心,提供综合服务,包括法医检查、健康干预和情感支持。然而,目前尚不清楚心理健康和药物使用需求是如何得到解决的。目的:确定在什么情况下,对到性侵犯转诊中心就诊的有精神健康或物质使用问题的人有效的方法。背景和样本:英国性侵犯转诊中心的工作人员和成年幸存者以及合作机构的工作人员。设计:采用现实主义方法论的混合方法多阶段研究,包括五个工作包。这包括系统审查和现实主义综合(工作包1);对性侵犯转诊中心进行国家审计(工作包2);关于心理健康以及药物和酒精需求的横断面流行情况研究(工作包3);六个性侵犯转介中心(工作包四)、伙伴机构和幸存者的个案研究;以及对性侵犯幸存者治疗结果的二级数据分析(工作包5)。研究发现:在审查中发现的证据不足,无法支持解决精神健康和药物使用问题的具体方法。性侵犯转诊中心的心理健康专业知识有限,基于审计的筛选工具的使用也有限。在流行病学研究中,参与者(n = 78)在性侵犯转诊中心就诊一到六周后报告了高度的心理困扰(94%的人有创伤后应激障碍的症状)。从工作包4的定性分析中,幸存者确定了创伤知情护理如何潜在地降低了再次创伤的风险。性侵犯转介中心的工作人员发现,团队中有心理健康专业知识的人不仅有助于计划后续转介,而且有助于支持工作人员。性侵犯转诊中心的工作人员和幸存者都强调了转诊方面的挑战,特别是转诊到国民保健制度精神保健方面的挑战,包括提供方面的差距和漫长的等待时间。工作包5分析表明,有性侵犯记录的人有更高水平的基线心理困扰,接受了更多的治疗,但他们在终点的平均改变分数与没有性创伤的人相似。局限性:该研究受到大流行的不利影响。这些数据是在连续封锁期间收集的,当时服务不能正常运行,以及由于大流行而导致的焦虑和隔离。结论:参加性侵犯中心的人有明显的心理健康和药物使用需求。然而,性侵犯转诊中心处理这些问题的方式各不相同。需要改善获得精神卫生服务的后续支持的机会(特别是对那些被认为有“复杂”需求的人),并且有一些迹象表明,同时提供心理治疗可以改善幸存者的经历。常规数据分析表明,性侵犯者可以从治疗中受益,但比没有性侵犯的人需要更多的强度。未来的工作:需要进一步的研究来评估在性侵犯转诊中心提供同地心理治疗的有效性和成本效益,以及评估来这些中心的人的长期需求和结果。资助:该项目由国家卫生和保健研究所(NIHR)卫生和社会保健提供研究方案(16/117/03)资助,全文发表在《卫生和社会保健提供研究》上;第11卷,第21号试验注册:该试验注册号为PROSPERO 2018 CRD42018119706和ISRCTN 18208347。
{"title":"The effectiveness of sexual assault referral centres with regard to mental health and substance use: a national mixed-methods study - the MiMoS Study.","authors":"Elizabeth Hughes, Jill Domoney, Nicky Knights, Holly Price, Sibongile Rutsito, Theodora Stefanidou, Rabiya Majeed-Ariss, Alexandra Papamichail, Steven Ariss, Gail Gilchrist, Rachael Hunter, Sarah Kendal, Brynmor Lloyd-Evans, Mike Lucock, Fay Maxted, Rebekah Shallcross, Karen Tocque, Kylee Trevillion","doi":"10.3310/YTRW7448","DOIUrl":"10.3310/YTRW7448","url":null,"abstract":"<p><strong>Background: </strong>Sexual assault referral centres have been established to provide an integrated service that includes forensic examination, health interventions and emotional support. However, it is unclear how the mental health and substance use needs are being addressed.</p><p><strong>Aim: </strong>To identify what works for whom under what circumstances for people with mental health or substance use issues who attend sexual assault referral centres.</p><p><strong>Setting and sample: </strong>Staff and adult survivors in English sexual assault referral centres and partner agency staff.</p><p><strong>Design: </strong>A mixed-method multistage study using realist methodology comprising five work packages. This consisted of a systematic review and realist synthesis (work package 1); a national audit of sexual assault referral centres (work package 2); a cross-sectional prevalence study of mental health and drug and alcohol needs (work package 3); case studies in six sexual assault referral centre settings (work package 4), partner agencies and survivors; and secondary data analysis of outcomes of therapy for sexual assault survivors (work package 5).</p><p><strong>Findings: </strong>There is a paucity of evidence identified in the review to support specific ways of addressing mental health and substance use. There is limited mental health expertise in sexual assault referral centres and limited use of screening tools based on the audit. In the prevalence study, participants (<i>n</i> = 78) reported high levels of psychological distress one to six weeks after sexual assault referral centre attendance (94% of people had symptoms of post-traumatic stress disorder). From work package 4 qualitative analysis, survivors identified how trauma-informed care potentially reduced risk of re-traumatisation. Sexual assault referral centre staff found having someone with mental health expertise in the team helpful not only in helping plan onward referrals but also in supporting staff. Both sexual assault referral centre staff and survivors highlighted challenges in onward referral, particularly to NHS mental health care, including gaps in provision and long waiting times. Work package 5 analysis demonstrated that people with recorded sexual assault had higher levels of baseline psychological distress and received more therapy but their average change scores at end point were similar to those without sexual trauma.</p><p><strong>Limitations: </strong>The study was adversely affected by the pandemic. The data were collected during successive lockdowns when services were not operating as usual, as well as the overlay of anxiety and isolation due to the pandemic.</p><p><strong>Conclusions: </strong>People who attend sexual assault centres have significant mental health and substance use needs. However, sexual assault referral centres vary in how they address these issues. Access to follow-up support from mental health services needs to be improved (es","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":"11 21","pages":"1-117"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89720953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Remote monitoring for long-term physical health conditions: an evidence and gap map. 长期身体健康状况的远程监测:证据和差距图。
Pub Date : 2023-11-01 DOI: 10.3310/BVCF6192
Siân de Bell, Zhivko Zhelev, Naomi Shaw, Alison Bethel, Rob Anderson, Jo Thompson Coon

Background: Remote monitoring involves the measurement of an aspect of a patient's health without that person being seen face to face. It could benefit the individual and aid the efficient provision of health services. However, remote monitoring can be used to monitor different aspects of health in different ways. This evidence map allows users to find evidence on different forms of remote monitoring for different conditions easily to support the commissioning and implementation of interventions.

Objectives: The aim of this map was to provide an overview of the volume, diversity and nature of recent systematic reviews on the effectiveness, acceptability and implementation of remote monitoring for adults with long-term physical health conditions.

Data sources: We searched MEDLINE, nine further databases and Epistemonikos for systematic reviews published between 2018 and March 2022, PROSPERO for continuing reviews, and completed citation chasing on included studies.

Review methods: (Study selection and Study appraisal): Included systematic reviews focused on adult populations with a long-term physical health condition and reported on the effectiveness, acceptability or implementation of remote monitoring. All forms of remote monitoring where data were passed to a healthcare professional as part of the intervention were included. Data were extracted on the characteristics of the remote monitoring intervention and outcomes assessed in the review. AMSTAR 2 was used to assess quality. Results were presented in an interactive evidence and gap map and summarised narratively. Stakeholder and public and patient involvement groups provided feedback throughout the project.

Results: We included 72 systematic reviews. Of these, 61 focus on the effectiveness of remote monitoring and 24 on its acceptability and/or implementation, with some reviews reporting on both. The majority contained studies from North America and Europe (38 included studies from the United Kingdom). Patients with cardiovascular disease, diabetes and respiratory conditions were the most studied populations. Data were collected predominantly using common devices such as blood pressure monitors and transmitted via applications, websites, e-mail or patient portals, feedback provided via telephone call and by nurses. In terms of outcomes, most reviews focused on physical health, mental health and well-being, health service use, acceptability or implementation. Few reviews reported on less common conditions or on the views of carers or healthcare professionals. Most reviews were of low or critically low quality.

Limitations: Many terms are used to describe remote monitoring; we searched as widely as possible but may have missed some relevant reviews. Poor reporting of remote monitoring interventions may mean some included reviews contain interventions that do not

背景:远程监测涉及对患者健康的一个方面进行测量,而不需要面对面地看到患者。它可以使个人受益,并有助于有效地提供保健服务。然而,远程监测可用于以不同方式监测健康的不同方面。该证据图使用户可以轻松地找到不同条件下不同形式的远程监测证据,以支持干预措施的调试和实施。目的:这张地图的目的是概述最近关于对长期身体健康状况的成年人进行远程监测的有效性、可接受性和实施的系统审查的数量、多样性和性质。数据来源:我们检索了MEDLINE、另外9个数据库和Epistemonikos,检索了2018年至2022年3月间发表的系统综述,检索了PROSPERO,检索了持续的综述,并完成了对纳入研究的引文追踪。综述方法:(研究选择和研究评价):纳入以长期身体健康状况的成年人群为重点的系统综述,并报告远程监测的有效性、可接受性或实施情况。包括将数据传递给医疗保健专业人员作为干预措施一部分的所有形式的远程监测。在回顾中提取了远程监测干预的特征和评估结果的数据。采用AMSTAR 2评价质量。结果以交互式证据和差距图的形式呈现,并以叙事方式进行总结。利益相关者、公众和患者参与小组在整个项目中提供反馈。结果:我们纳入了72篇系统评价。其中,61项侧重于远程监测的有效性,24项侧重于其可接受性和/或实施,并对两者进行了一些审查报告。大多数包含来自北美和欧洲的研究(38个包括来自英国的研究)。心血管疾病、糖尿病和呼吸系统疾病患者是研究最多的人群。数据主要使用血压监测仪等常见设备收集,并通过应用程序、网站、电子邮件或患者门户网站传输,通过电话和护士提供反馈。就结果而言,大多数审查侧重于身体健康、精神健康和福祉、卫生服务的使用、可接受性或执行情况。很少有评论报告了不常见的疾病或护理人员或医疗保健专业人员的观点。大多数评论的质量都很低或非常低。限制:许多术语用于描述远程监控;我们尽可能广泛地搜索,但可能遗漏了一些相关评论。远程监测干预的不良报告可能意味着一些纳入的综述包含不符合我们定义的干预措施,而相关的综述可能被排除在外。这也使得对结果的解释变得困难。结论和未来工作:该地图提供了关于远程监测有效性及其可接受性和成功实施的交互式可视化证据。这一证据可以支持远程监测干预措施的调试和交付,而限制和差距可以为进一步的研究和技术开发提供信息。今后的审查应遵循进行和报告系统审查的指导方针,并调查在不太常见的情况下远程监测的应用。审查注册:在OSF登记处注册了一项方案(https://doi.org/10.17605/OSF.IO/6Q7P4).Funding:)。该奖项由国家卫生与保健研究所(NIHR)卫生服务和交付研究计划(NIHR奖励编号:NIHR135450)资助,作为NIHR130538下一系列证据综合的一部分。更多信息,请访问https://fundingawards.nihr.ac.uk/award/NIHR135450和https://fundingawards.nihr.ac.uk/award/NIHR130538。该报告全文发表在《卫生和社会保健服务研究》杂志上;第11卷,第22号。请参阅美国国立卫生研究院资助与奖励网站了解更多项目信息。
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引用次数: 0
Impact of interventions to improve recovery of older adults following planned hospital admission on quality-of-life following discharge: linked-evidence synthesis. 为改善老年人按计划入院后的恢复情况而采取的干预措施对出院后生活质量的影响:相关证据综述。
Pub Date : 2023-11-01 DOI: 10.3310/GHTY5117
Debbie Kinsey, Samantha Febrey, Simon Briscoe, Dylan Kneale, Jo Thompson Coon, Daniele Carrieri, Christopher Lovegrove, John McGrath, Anthony Hemsley, G J Melendez-Torres, Liz Shaw, Michael Nunns

Objectives: To understand the impact of multicomponent interventions to improve recovery of older adults following planned hospital treatment, we conducted two systematic reviews, one of quantitative and one of qualitative evidence, and an overarching synthesis. These aimed to: • understand the effect of multicomponent interventions which aim to enhance recovery and/or reduce length of stay on patient-reported outcomes and health and social care utilisation • understand the experiences of patients, carers and staff involved in the delivery of interventions • understand how different aspects of the content and delivery of interventions may influence patient outcomes.

Review methods: We searched bibliographic databases including MEDLINE ALL, Embase and the Health Management Information Consortium, CENTRAL, and Cumulative Index to Nursing and Allied Health Literature and Allied and Complementary Medicine Database, conducted forward and backward citation searching and examined reference lists of topically similar qualitative reviews. Bibliographic database searches were completed in May/June 2021 and updated in April 2022. We sought primary research from high-income countries regarding hospital inpatients with a mean/median age of minimum 60 years, undergoing planned surgery. Patients experienced any multicomponent hospital-based intervention to reduce length of stay or improve recovery. Quantitative outcomes included length of stay and any patient-reported outcome or experience or service utilisation measure. Qualitative research focused on the experiences of patients, carers/family and staff of interventions received. Quality appraisal was undertaken using the Effective Public Health Practice Project Quality Assessment Tool or an adapted version of the Wallace checklist. We used random-effects meta-analysis to synthesise quantitative data where appropriate, meta-ethnography for qualitative studies and qualitative comparative analysis for the overarching synthesis.

Results: Quantitative review: Included 125 papers. Forty-nine studies met criteria for further synthesis. Enhanced recovery protocols resulted in improvements to length of stay, without detriment to other outcomes, with minimal improvement in patient-reported outcome measures for patients admitted for lower-limb or colorectal surgery. Qualitative review: Included 43 papers, 35 of which were prioritised for synthesis. We identified six themes: 'Home as preferred environment for recovery', 'Feeling safe', 'Individualisation of structured programme', 'Taking responsibility', 'Essential care at home' and 'Outcomes'. Overarching synthesis: Intervention components which trigger successful interventions represent individualised approaches that allow patients to understand their treatment, ask questions and build supportive relationships and strategies to help patients monitor their progress and challenge themselves through early m

目的:为了了解多成分干预措施对改善老年人在计划住院治疗后的恢复情况的影响,我们进行了两项系统性综述,一项是定量证据综述,一项是定性证据综述,还有一项是总体综述。其目的在于- 了解旨在促进康复和/或缩短住院时间的多组分干预措施对患者报告的结果以及医疗和社会护理使用的影响 - 了解患者、护理人员和参与干预措施实施的工作人员的经历 - 了解干预措施的内容和实施的不同方面如何影响患者的结果:我们检索了文献数据库,包括 MEDLINE ALL、Embase 和健康管理信息联合会、CENTRAL、护理和辅助健康文献累积索引以及辅助和补充医学数据库,进行了正向和反向引文检索,并检查了主题相似的定性综述的参考文献列表。书目数据库检索于 2021 年 5 月/6 月完成,并于 2022 年 4 月更新。我们从高收入国家寻求有关住院病人的初步研究,这些病人的平均/中位年龄不低于 60 岁,正在接受计划中的手术。患者接受了任何基于医院的多组分干预,以缩短住院时间或改善康复。定量结果包括住院时间和任何患者报告的结果、体验或服务利用率。定性研究主要关注患者、护理人员/家属和工作人员对所接受干预措施的体验。质量评估采用 "有效公共卫生实践项目质量评估工具 "或华莱士核对表的改编版进行。我们酌情使用随机效应荟萃分析法对定量数据进行综合,使用荟萃人种学方法对定性研究进行综合,并使用定性比较分析法进行总体综合:定量综述:纳入了 125 篇论文。有 49 项研究符合进一步综合的标准。对于接受下肢或结肠直肠手术的患者而言,加强恢复方案可缩短住院时间,但不会对其他结果产生不利影响,患者报告的结果指标改善甚微。定性审查:纳入 43 篇论文,其中 35 篇优先进行了综合。我们确定了六个主题:"居家作为康复的首选环境"、"安全感"、"结构化方案的个性化"、"承担责任"、"居家基本护理 "和 "结果"。总体综述:引发成功干预的干预要素包括个性化方法,让患者了解自己的治疗、提出问题并建立支持性关系,以及通过早期动员帮助患者监测进展和挑战自我的策略:讨论:为缩短老年人计划手术后的住院时间而采取的干预措施是有效的,且不会影响患者的其他治疗效果。研究结果强调,有必要从患者的角度重新考虑如何评估患者的恢复情况。试验并未对患者的中长期疗效进行常规评估。此外,即使对患者的疗效进行了评估,报告也往往不完整,或仅使用范围狭窄的患者报告疗效指标,或通过向错误的人提出错误的问题来限制评估范围,同时缺乏长期评估。定性和总体综述的结果将为制定政策提供参考,这些政策涉及在计划入院前、入院期间和入院后委托和提供服务,为患者、护理者和家属提供支持:该试验的注册号为 PROSPERO,注册号为 CRD42021230620:该奖项由国家健康与护理研究所(NIHR)的健康与社会护理服务研究项目(NIHR奖项编号:130576)资助,全文发表于《健康与社会护理服务研究》第11卷第23期。如需了解更多奖项信息,请访问 NIHR Funding and Awards 网站。
{"title":"Impact of interventions to improve recovery of older adults following planned hospital admission on quality-of-life following discharge: linked-evidence synthesis.","authors":"Debbie Kinsey, Samantha Febrey, Simon Briscoe, Dylan Kneale, Jo Thompson Coon, Daniele Carrieri, Christopher Lovegrove, John McGrath, Anthony Hemsley, G J Melendez-Torres, Liz Shaw, Michael Nunns","doi":"10.3310/GHTY5117","DOIUrl":"10.3310/GHTY5117","url":null,"abstract":"<p><strong>Objectives: </strong>To understand the impact of multicomponent interventions to improve recovery of older adults following planned hospital treatment, we conducted two systematic reviews, one of quantitative and one of qualitative evidence, and an overarching synthesis. These aimed to: • understand the effect of multicomponent interventions which aim to enhance recovery and/or reduce length of stay on patient-reported outcomes and health and social care utilisation • understand the experiences of patients, carers and staff involved in the delivery of interventions • understand how different aspects of the content and delivery of interventions may influence patient outcomes.</p><p><strong>Review methods: </strong>We searched bibliographic databases including MEDLINE ALL, Embase and the Health Management Information Consortium, CENTRAL, and Cumulative Index to Nursing and Allied Health Literature and Allied and Complementary Medicine Database, conducted forward and backward citation searching and examined reference lists of topically similar qualitative reviews. Bibliographic database searches were completed in May/June 2021 and updated in April 2022. We sought primary research from high-income countries regarding hospital inpatients with a mean/median age of minimum 60 years, undergoing planned surgery. Patients experienced any multicomponent hospital-based intervention to reduce length of stay or improve recovery. Quantitative outcomes included length of stay and any patient-reported outcome or experience or service utilisation measure. Qualitative research focused on the experiences of patients, carers/family and staff of interventions received. Quality appraisal was undertaken using the Effective Public Health Practice Project Quality Assessment Tool or an adapted version of the Wallace checklist. We used random-effects meta-analysis to synthesise quantitative data where appropriate, meta-ethnography for qualitative studies and qualitative comparative analysis for the overarching synthesis.</p><p><strong>Results: </strong>Quantitative review: Included 125 papers. Forty-nine studies met criteria for further synthesis. Enhanced recovery protocols resulted in improvements to length of stay, without detriment to other outcomes, with minimal improvement in patient-reported outcome measures for patients admitted for lower-limb or colorectal surgery. Qualitative review: Included 43 papers, 35 of which were prioritised for synthesis. We identified six themes: 'Home as preferred environment for recovery', 'Feeling safe', 'Individualisation of structured programme', 'Taking responsibility', 'Essential care at home' and 'Outcomes'. Overarching synthesis: Intervention components which trigger successful interventions represent individualised approaches that allow patients to understand their treatment, ask questions and build supportive relationships and strategies to help patients monitor their progress and challenge themselves through early m","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":"11 23","pages":"1-164"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138886787","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effectiveness and acceptability of multimedia information when recruiting children and young people to trials: the TRECA meta-analysis of SWATs. 招募儿童和青少年参加试验时多媒体信息的有效性和可接受性:TRECA 对 SWATs 的荟萃分析。
Pub Date : 2023-11-01 DOI: 10.3310/HTPM3841
Peter Knapp, Jacqueline Martin-Kerry, Thirimon Moe-Byrne, Rebecca Sheridan, Elizabeth Coleman, Jenny Roche, Bridget Young, Steven Higgins, Jennifer Preston, Peter Bower, Carrol Gamble, Catherine Stones

Background: The information provided to potential trial participants plays a crucial role in their decision-making. Printed participant information sheets for trials have received recurrent criticism as being too long and technical, unappealing and hard to navigate. An alternative is to provide information through multimedia (text, animations, video, audio, diagrams and photos). However, there is limited evidence on the effects of multimedia participant information on research recruitment rates, particularly in children and young people.

Objectives: The study objectives were as follows: 1. to develop template multimedia information resources through participatory design, for use when recruiting children and young people to trials 2. to evaluate the multimedia information resources in a series of Studies Within A Trial, to test their effects on recruitment and retention rates, and participant decision-making, by comparing the provision of multimedia information resources instead of printed participant information sheets, and comparing the provision of multimedia information resources in addition to printed participant information sheets.

Design: Two-phase study: 1. multimedia information resources development including qualitative study; user testing study; readability metrics; enhanced patient and public involvement 2. multimedia information resources' evaluation comprising Studies Within A Trial undertaken within host trials recruiting children and young people.

Setting: United Kingdom trials involving patients aged under 18.

Participants: Development phase: n = 120 (children and young people, parents, clinicians, trial personnel). Evaluation phase: n = 1906 (children and young people being asked to take part in trials).

Interventions: Multimedia information resources (comprising text, audio, 'talking heads' video, trial-specific and trial-generic animations). Printed participant information sheets.

Main outcome measures: Primary outcome: trial recruitment rate comparing multimedia information resource-only with printed participant information sheet-only provision. Secondary outcomes: trial recruitment rate comparing combined multimedia information resource and printed participant information sheet with printed participant information sheet-only provision; trial retention rate; quality of participant decision-making. Results for each trial were calculated and combined in a two-stage random-effects meta-analysis.

Results: Phase 1 generated two multimedia information resource templates: (1) for children aged 6-11 years; (2) for children aged 12-18 years and parents. In the Phase 2 Studies Within A Trial the multimedia information resources improved trial recruitment, when compared to printed information alone [odds ratio (OR) = 1.54; 95% confidence interva

背景:提供给潜在试验参与者的信息对他们的决策起着至关重要的作用。印刷版的试验参与者信息表屡遭批评,被认为过于冗长和技术性,不美观且难以浏览。另一种方法是通过多媒体(文字、动画、视频、音频、图表和照片)提供信息。然而,关于多媒体参与者信息对研究招募率的影响,尤其是对儿童和青少年的影响,目前证据有限:研究目标如下1.通过参与式设计开发多媒体信息资源模板,用于招募儿童和青少年参与试验 2.在一系列 "试验中的研究 "中对多媒体信息资源进行评估,通过比较提供多媒体信息资源而不是印刷的参与者信息表,以及比较提供多媒体信息资源而不是印刷的参与者信息表,测试其对招募率、保留率和参与者决策的影响:设计:两阶段研究:1. 多媒体信息资源开发,包括定性研究;用户测试研究;可读性指标;加强患者和公众参与 2. 多媒体信息资源评估,包括在招募儿童和青少年的主办试验中进行的试验内研究:涉及 18 岁以下患者的英国试验:开发阶段:n = 120(儿童和青少年、家长、临床医生、试验人员)。评估阶段:n = 1906(被要求参加试验的儿童和青少年):多媒体信息资源(包括文字、音频、"对话头像 "视频、特定试验和试验通用动画)。主要结果测量:主要结果:仅提供多媒体信息资源与仅提供印刷版参与者信息表的试验招募率比较。次要结果:综合多媒体信息资源和印刷版参与者信息表与仅提供印刷版参与者信息表的试验招募率比较;试验保留率;参与者决策质量。对每个试验的结果进行计算,并在两阶段随机效应荟萃分析中进行合并:第 1 阶段生成了两个多媒体信息资源模板:(1) 面向 6-11 岁儿童;(2) 面向 12-18 岁儿童和家长。在第 2 阶段的 "试验中的研究 "中,多媒体信息资源与单纯的印刷信息相比,提高了试验招募率[几率比(OR)= 1.54;95% 置信区间(CI)1.05 至 2.28;P = 0.03;I2 = 0%]。当仅提供印刷版参试者信息表与同时提供多媒体信息资源和印刷版参试者信息表进行比较时,两者对试验招募没有影响(OR = 0.89;95% CI 0.53 至 1.50;I2 = 0%)。多媒体信息资源和印刷版参与者信息表在试验保留率和参与者决策质量方面没有差异。在一项假设试验环境的研究中,只提供多媒体信息资源比只提供印刷版参与者信息表产生了更高的 "信息易于理解"(Z = 3.03;p = 0.003)和 "我对决策有信心"(Z = 2.00;p = 0.044)评分:局限性:由于样本量有限,无法将三项 "试验中的研究 "的数据纳入荟萃分析,而且问卷回收率较低,降低了研究结果的说服力:与标准患者信息表相比,多媒体信息的使用提高了儿童和青少年试验的招募率:今后的工作:应进一步评估多媒体信息对儿童和青少年参与试验招募的影响。评估多媒体信息资源对试验招募人员、儿童和青少年以及家长之间沟通的影响也很有价值:本试验注册为TRECA ISRCTN 73136092和北爱尔兰试验方法研究中心SWAT存储库(SWAT 97):该奖项由国家健康与护理研究所(NIHR)健康与社会护理服务研究项目(NIHR奖项编号:14/21/21)资助,全文发表于《健康与社会护理服务研究》(Health and Social Care Delivery Research)第11卷第24期。更多奖项信息请参阅 NIHR Funding and Awards 网站。
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引用次数: 0
Involving carer advisors in evidence synthesis to improve carers' mental health during end-of-life home care: co-production during COVID-19 remote working. 让护理顾问参与证据综合,以改善临终家庭护理期间护理人员的心理健康:新冠肺炎远程工作期间的共同生产。
Pub Date : 2023-10-25 DOI: 10.3310/TGHH6428
Gunn Grande, Kerin Bayliss, Tracey Shield, Jackie Flynn, Christine Rowland, Danielle Harris, Alison Wearden, Morag Farquhar, Maria Panagioti, Alexander Hodkinson, Margaret Booth, David Cotterill, Lesley Goodburn, Cedric Knipe, Penny Bee

Background: Family carers play a central role in supporting people at the end of life, but often suffer detrimental impacts on their own mental health as a result. This project conducted evidence synthesis of research into factors that may affect carers' mental health to help identify ways of maintaining their mental health. It worked closely with a carer Review Advisory Panel to help ensure the findings made sense and were communicated meaningfully from the carers' perspective.

Aim: To present: (1) principles and components that facilitated successful patient and public involvement in an evidence synthesis project to help inform patient and public involvement in similar projects; (2) recommendations for carer support that were instigated and produced by the Review Advisory Panel.

Process and principles: Nine Review Advisory Panel meetings including four to five carers, a lay Chair and three researchers were held. Solid 'groundwork' was invested in recruitment and relationship-building prior to meetings, and it was ensured that there was agreement of how to work together and clarification of expectations at the first meeting. Key meeting principles were: having a majority of carers, and a Chair with both carer and patient and public involvement experience, to ensure carer voices remained at the fore substantial researcher representation, including the project lead, to highlight the value placed on Review Advisory Panel meetings flexibility to follow carers' agendas, enabling 'space to talk' and 'space to change' appropriate and prompt carer payment, again emphasising patient and public involvement value to the project. Added general principles were: ongoing training, ample funded time for Review Advisory Panel preparation and ongoing communication outside meetings. COVID moved all meetings online after the first meeting, but the principles were maintained.

Outputs: The project saw an evolution from patient and public involvement consultation to co-production. The main patient and public involvement output was recommendations for supporting carers based on project findings, instigated and produced by the Review Advisory Panel.

Reflection on successful components and challenges: Five carers (including the Chair) and six researchers responded to questions by e-mail. Analysis by one researcher, aided by two other researchers, was then reviewed by all participants and revised. Both carers and researchers felt the components that made the patient and public involvement work were: (1) a shared sense of purpose of and gains from the Review Advisory Panel; (2) personal gains; (3) mutual commitment and respect; and (4) bridging between academic and lay perspectives, through investment in training, ensuring carers were able to meaningfully comment, and continuous negotiation and compromise. Challenges were that the COVID-induced move from face-to-

背景:家庭护理人员在临终时为人们提供支持方面发挥着核心作用,但往往会因此对他们自己的心理健康产生不利影响。该项目对可能影响护理人员心理健康的因素进行了证据综合研究,以帮助确定维持他们心理健康的方法。它与护理人员审查咨询小组密切合作,以帮助确保调查结果有意义,并从护理人员的角度进行有意义的沟通。目的:提出:(1)促进患者和公众成功参与证据综合项目的原则和组成部分,以帮助患者和公众参与类似项目;(2) 审查咨询小组倡导和提出的护理人员支持建议。程序和原则:举行了九次审查咨询小组会议,包括四到五名护理人员、一名非专业主席和三名研究人员。在会议之前,在招聘和关系建设方面投入了坚实的“基础”,并确保在第一次会议上就如何合作达成一致并澄清期望。主要会议原则是:拥有大多数护理人员,以及一位具有护理人员、患者和公众参与经验的主席,以确保护理人员的声音始终处于重要地位——包括项目负责人在内的大量研究人员代表,以强调审查咨询小组会议的价值——灵活遵循护理人员议程,使“谈话的空间”和“改变的空间”能够适当而及时地支付护理人员的费用,再次强调患者和公众参与对项目的价值。增加的一般原则是:持续的培训、充足的资金用于审查咨询小组的筹备以及持续的外部会议沟通。新冠肺炎在第一次会议后将所有会议都转移到了网上,但原则得到了维护。产出:该项目经历了从患者和公众参与咨询到联合制作的演变。主要的患者和公众参与产出是根据审查咨询小组倡导和提出的项目调查结果为护理人员提供支持的建议。对成功组成部分和挑战的反思:五名护理人员(包括主席)和六名研究人员通过电子邮件回答了问题。由一名研究人员在另外两名研究人员的协助下进行的分析,随后由所有参与者进行审查和修订。护理人员和研究人员都认为,使患者和公众参与发挥作用的组成部分是:(1)审查咨询小组的共同目标感和收益;(2) 个人利益;(3) 相互承诺和尊重;以及(4)通过对培训的投资,确保护理人员能够发表有意义的评论,以及持续的谈判和妥协,在学术和非专业观点之间架起桥梁。挑战在于,新冠疫情导致的从面对面会议到在线会议的转变减少了非正式性、灵活性、个人联系和非语言交流。然而,早期的基础工作有助于团队应对这些挑战。事实证明,在更广泛的研究管理小组中,患者和公众参与的代表不太成功,这表明了在所有项目层面谈判和定义患者和公众参与者角色的重要性。结论:所采用的患者和公众参与原则,包括会议组成和主持,以及遵循护理人员议程的灵活性,似乎有助于从咨询到共同制定护理人员建议,但需要进一步测试。应进一步调查远程工作成功的先决条件,因为面对面会议和虚拟会议的不同优势可以通过混合工作结合起来。真正的合作制作所需的迭代和响应性工作可能需要更灵活的患者和公众参与资金模式。研究注册:本研究注册为PROSPERO注册2019 CRD42019130279https://www.crd.york.ac.uk/prospero/.Funding:该项目由国家卫生与护理研究所(NIHR)卫生与社会护理提供研究计划资助(拨款18/01/01),并将在《卫生与社会保健提供研究》上全文发表。有关更多项目信息,请访问NIHR期刊图书馆网站。
{"title":"Involving carer advisors in evidence synthesis to improve carers' mental health during end-of-life home care: co-production during COVID-19 remote working.","authors":"Gunn Grande,&nbsp;Kerin Bayliss,&nbsp;Tracey Shield,&nbsp;Jackie Flynn,&nbsp;Christine Rowland,&nbsp;Danielle Harris,&nbsp;Alison Wearden,&nbsp;Morag Farquhar,&nbsp;Maria Panagioti,&nbsp;Alexander Hodkinson,&nbsp;Margaret Booth,&nbsp;David Cotterill,&nbsp;Lesley Goodburn,&nbsp;Cedric Knipe,&nbsp;Penny Bee","doi":"10.3310/TGHH6428","DOIUrl":"https://doi.org/10.3310/TGHH6428","url":null,"abstract":"<p><strong>Background: </strong>Family carers play a central role in supporting people at the end of life, but often suffer detrimental impacts on their own mental health as a result. This project conducted evidence synthesis of research into factors that may affect carers' mental health to help identify ways of maintaining their mental health. It worked closely with a carer Review Advisory Panel to help ensure the findings made sense and were communicated meaningfully from the carers' perspective.</p><p><strong>Aim: </strong>To present: (1) principles and components that facilitated successful patient and public involvement in an evidence synthesis project to help inform patient and public involvement in similar projects; (2) recommendations for carer support that were instigated and produced by the Review Advisory Panel.</p><p><strong>Process and principles: </strong>Nine Review Advisory Panel meetings including four to five carers, a lay Chair and three researchers were held. Solid 'groundwork' was invested in recruitment and relationship-building prior to meetings, and it was ensured that there was agreement of how to work together and clarification of expectations at the first meeting. Key meeting principles were: having a majority of carers, and a Chair with both carer and patient and public involvement experience, to ensure carer voices remained at the fore substantial researcher representation, including the project lead, to highlight the value placed on Review Advisory Panel meetings flexibility to follow carers' agendas, enabling 'space to talk' and 'space to change' appropriate and prompt carer payment, again emphasising patient and public involvement value to the project. Added general principles were: ongoing training, ample funded time for Review Advisory Panel preparation and ongoing communication outside meetings. COVID moved all meetings online after the first meeting, but the principles were maintained.</p><p><strong>Outputs: </strong>The project saw an evolution from patient and public involvement consultation to co-production. The main patient and public involvement output was recommendations for supporting carers based on project findings, instigated and produced by the Review Advisory Panel.</p><p><strong>Reflection on successful components and challenges: </strong>Five carers (including the Chair) and six researchers responded to questions by e-mail. Analysis by one researcher, aided by two other researchers, was then reviewed by all participants and revised. Both carers and researchers felt the components that made the patient and public involvement work were: (1) a shared sense of purpose of and gains from the Review Advisory Panel; (2) personal gains; (3) mutual commitment and respect; and (4) bridging between academic and lay perspectives, through investment in training, ensuring carers were able to meaningfully comment, and continuous negotiation and compromise. Challenges were that the COVID-induced move from face-to-","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":" ","pages":"1-34"},"PeriodicalIF":0.0,"publicationDate":"2023-10-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71415796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reducing unplanned hospital admissions from care homes: a systematic review. 减少护理院的非计划住院人数:一项系统综述。
Pub Date : 2023-10-01 DOI: 10.3310/KLPW6338
Duncan Chambers, Anna Cantrell, Louise Preston, Carl Marincowitz, Lynne Wright, Simon Conroy, Adam Lee Gordon

Background: Care homes predominantly care for older people with complex health and care needs, who are at high risk of unplanned hospital admissions. While often necessary, such admissions can be distressing and provide an opportunity cost as well as a financial cost.

Objectives: Our objective was to update a 2014 evidence review of interventions to reduce unplanned admissions of care home residents. We carried out a systematic review of interventions used in the UK and other high-income countries by synthesising evidence of effects of these interventions on hospital admissions; feasibility and acceptability; costs and value for money; and factors affecting applicability of international evidence to UK settings.

Data sources: We searched the following databases in December 2021 for studies published since 2014: Cochrane Central Register of Controlled Trials and Cochrane Database of Systematic Reviews; Cumulative Index to Nursing and Allied Health Literature; Health Management Information Consortium; Medline; PsycINFO; Science and Social Sciences Citation Indexes; Social Care Online; and Social Service Abstracts. 'Grey' literature (January 2022) and citations were searched and reference lists were checked.

Methods: We included studies of any design reporting interventions delivered in care homes (with or without nursing) or hospitals to reduce unplanned hospital admissions. A taxonomy of interventions was developed from an initial scoping search. Outcomes of interest included measures of effect on unplanned admissions among care home residents; barriers/facilitators to implementation in a UK setting and acceptability to care home residents, their families and staff. Study selection, data extraction and risk of bias assessment were performed by two independent reviewers. We used published frameworks to extract data on intervention characteristics, implementation barriers/facilitators and applicability of international evidence. We performed a narrative synthesis grouped by intervention type and setting. Overall strength of evidence for admission reduction was assessed using a framework based on study design, study numbers and direction of effect.

Results: We included 124 publications/reports (30 from the UK). Integrated care and quality improvement programmes providing additional support to care homes (e.g. the English Care Homes Vanguard initiatives and hospital-based services in Australia) appeared to reduce unplanned admissions relative to usual care. Simpler training and staff development initiatives showed mixed results, as did interventions aimed at tackling specific problems (e.g. medication review). Advance care planning was key to the success of most quality improvement programmes but do-not-hospitalise orders were problematic. Qualitative research identified tensions affecting decision-making involving paramedics, care home staf

背景:养老院主要照顾有复杂健康和护理需求的老年人,他们有很高的意外入院风险。虽然这种录取通常是必要的,但可能会令人痛苦,并带来机会成本和财务成本。目标:我们的目标是更新2014年干预措施的证据审查,以减少护理院居民的计划外入院。我们对英国和其他高收入国家使用的干预措施进行了系统审查,综合了这些干预措施对住院人数影响的证据;可行性和可接受性;成本和物有所值;以及影响国际证据适用于英国环境的因素。数据来源:2021年12月,我们在以下数据库中搜索了自2014年以来发表的研究:Cochrane对照试验中央登记册和Cochrane系统评价数据库;护理及相关健康文献累积索引;健康管理信息联盟;Medline;PsycINFO;科学与社会科学引文索引;在线社会关怀;和社会服务摘要检索格雷的文献(2022年1月)和引文,并检查参考文献列表。方法:我们纳入了任何设计报告干预措施的研究,这些干预措施是在养老院(有或没有护理)或医院提供的,以减少计划外住院人数。干预措施的分类法是从最初的范围搜索中发展起来的。感兴趣的结果包括对护理院居民计划外入院的影响测量;在英国实施的障碍/促进者以及护理院居民、他们的家人和工作人员的可接受性。研究选择、数据提取和偏倚风险评估由两名独立评审员进行。我们使用已发表的框架提取了有关干预特征、实施障碍/促进者和国际证据适用性的数据。我们进行了一个按干预类型和背景分组的叙事综合。使用基于研究设计、研究数量和效果方向的框架来评估减少入院的总体证据强度。结果:我们纳入了124份出版物/报告(30份来自英国)。为养老院提供额外支持的综合护理和质量改善计划(例如,英国养老院先锋计划和澳大利亚的医院服务)似乎减少了与常规护理相比的计划外入院人数。更简单的培训和员工发展举措显示出喜忧参半的结果,旨在解决特定问题的干预措施(如药物审查)也是如此。提前护理计划是大多数质量改进计划成功的关键,但不住院订单是有问题的。定性研究确定了影响护理人员、护理院工作人员和居民/家庭护理人员决策的紧张关系。面对不一致且质量普遍较低的证据,通过获得姑息治疗来减少临终入院人数的最佳方法尚不清楚。结论:在居民护理途径的各个阶段有效实施干预措施可以减少非计划入院。大多数干预措施都很复杂,需要适应当地情况。在卫生和社会护理之间的接口工作是成功实施的关键。局限性:由于不受控制的研究设计和小样本量等因素,许多已确定的证据质量较低。无法进行荟萃分析。未来的工作:我们发现需要改进经济证据,并评估医院团队提供的那种综合护理模式。考虑到目前养老院面临的巨大压力,研究人员应该仔细考虑在研究设计和数据收集方面什么是现实的。研究注册:该研究注册为PROSPERO数据库CRD42021289418。资助:该项目由国家卫生与护理研究所(NIHR)卫生与社会护理提供研究计划资助(奖项编号NIHR13384),并将在《卫生与社会保健提供研究》上全文发表;第11卷第18期。有关更多项目信息,请访问NIHR期刊图书馆网站。
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引用次数: 0
Integration, effectiveness and costs of different models of primary health care provision for people who are homeless: an evaluation study. 为无家可归者提供初级保健的不同模式的整合、有效性和成本:一项评估研究。
Pub Date : 2023-10-01 DOI: 10.3310/WXUW5103
Maureen Crane, Louise Joly, Blánaid Jm Daly, Heather Gage, Jill Manthorpe, Gaia Cetrano, Chris Ford, Peter Williams

Background: There is a high prevalence of health problems among single people who are homeless. Specialist primary health care services for this population have been developed in several locations across England; however, there have been very few evaluations of these services.

Objectives: This study evaluated the work of different models of primary health care provision in England to determine their effectiveness in engaging people who are homeless in health care and in providing continuity of care for long-term conditions. It concerned single people (not families or couples with dependent children) staying in hostels, other temporary accommodation or on the streets. The influence on outcomes of contextual factors and mechanisms (service delivery factors), including integration with other services, were examined. Data from medical records were collated on participants' use of health care and social care services over 12 months, and costs were calculated.

Design and setting: The evaluation involved four existing Health Service Models: (1) health centres primarily for people who are homeless (Dedicated Centres), (2) Mobile Teams providing health care in hostels and day centres, (3) Specialist GPs providing some services exclusively for patients who are homeless and (4) Usual Care GPs providing no special services for people who are homeless (as a comparison). Two Case Study Sites were recruited for each of the specialist models, and four for the Usual Care GP model.

Participants: People who had been homeless during the previous 12 months were recruited as 'case study participants'; they were interviewed at baseline and at 4 and 8 months, and information was collected about their circumstances and their health and service use in the preceding 4 months. Overall, 363 participants were recruited; medical records were obtained for 349 participants. Interviews were conducted with 65 Case Study Site staff and sessional workers, and 81 service providers and stakeholders.

Results: The primary outcome was the extent of health screening for body mass index, mental health, alcohol use, tuberculosis, smoking and hepatitis A among participants, and evidence of an intervention if a problem was identified. There were no overall differences in screening between the models apart from Mobile Teams, which scored considerably lower. Dedicated Centres and Specialist GPs were more successful in providing continuity of care for participants with depression and alcohol and drug problems. Service use and costs were significantly higher for Dedicated Centre participants and lower for Usual Care GP participants. Participants and staff welcomed flexible and tailored approaches to care, and related services being available in the same building. Across all models, dental needs were unaddressed and staff reported poor availability of mental health services.

背景:在无家可归的单身人士中,健康问题的发生率很高。在英格兰的几个地方已经为这一人群开发了专门的初级卫生保健服务;然而,对这些服务的评价很少。目的:本研究评估了英格兰不同初级卫生保健模式的工作,以确定其在让无家可归者参与卫生保健和为长期疾病提供连续性护理方面的有效性。它涉及住在旅馆、其他临时住所或街头的单身人士(而不是有受抚养子女的家庭或夫妇)。研究了情境因素和机制(服务提供因素)对结果的影响,包括与其他服务的整合。对来自医疗记录的数据进行了整理,记录了参与者在12个月内使用医疗保健和社会护理服务的情况,并计算了费用。设计和设置:评估涉及四种现有的医疗服务模式:(1)主要为无家可归者提供的医疗中心(专门中心);(2)在宿舍和日托中心提供医疗服务的流动团队,(3)专门为无家可归的患者提供一些服务的全科医生和(4)不为无家可归的人提供特殊服务的普通护理全科医生(作为比较)。每个专家模型招募了两个案例研究点,普通护理全科医生模型招募了四个。参与者:在过去12个月内无家可归的人被招募为“案例研究参与者”;他们在基线、4个月和8个月时接受了访谈,并收集了关于他们的情况以及他们在前4个月的健康和服务使用情况的信息。总共招募了363名参与者;获得了349名参与者的医疗记录。对65名案例研究现场工作人员和会期工作人员以及81名服务提供者和利益攸关方进行了访谈。结果:主要结果是参与者的身体质量指数、心理健康、饮酒、肺结核、吸烟和甲型肝炎的健康筛查程度,以及如果发现问题则进行干预的证据。除了得分低得多的Mobile Teams之外,这两个模型在筛选方面没有总体差异。专门的中心和全科医生在为有抑郁症、酒精和毒品问题的参与者提供连续性护理方面更为成功。专用中心参与者的服务使用和成本明显更高,普通护理全科医生参与者的使用和成本更低。与会者和工作人员欢迎灵活和量身定制的护理方法,以及在同一栋大楼内提供的相关服务。在所有模式中,牙科需求都没有得到解决,工作人员报告说,心理健康服务的可用性很差。局限性:常规护理全科医生模式在招募主流全科医生方面存在困难。该模型的14名参与者的医疗记录无法访问。结论:参与者特征、情境因素和机制对决定结果有影响。总的来说,专门中心和其中一个全科医生诊所的结果相对有利。他们有专门的工作人员为无家可归的患者提供“临时”服务、现场心理健康和药物滥用服务,并与医院和无家可归者部门服务部门密切合作。资助:该项目由国家卫生与护理研究所(NIHR)卫生与社会护理提供研究计划(HSDR 13/156/03)资助,并将在《卫生与社会保健提供研究》上全文发表;第11卷第16期。有关更多项目信息,请访问NIHR期刊图书馆网站。
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引用次数: 0
Rapid evaluation of the Special Measures for Quality and challenged provider regimes: a mixed-methods study. 快速评估质量特别措施和受质疑的供应商制度:一项混合方法研究。
Pub Date : 2023-10-01 DOI: 10.3310/GQQV3512
Naomi J Fulop, Estela Capelas Barbosa, Melissa Hill, Jean Ledger, Pei Li Ng, Christopher Sherlaw-Johnson, Lucina Rolewicz, Laura Schlepper, Jonathan Spencer, Sonila M Tomini, Cecilia Vindrola-Padros, Stephen Morris

Background: Health-care organisations in England that are rated as inadequate for leadership and one other domain enter the Special Measures for Quality regime to receive support and oversight. A 'watch list' of challenged providers that are at risk of entering Special Measures for Quality also receive support. Knowledge is limited about whether or not the support interventions drive improvements in quality, the costs of the support interventions and whether or not the support interventions strike the right balance between support and scrutiny.

Objective: To analyse the responses of trusts to the implementation of (1) interventions for Special Measures for Quality trusts and (2) interventions for challenged provider trusts to determine their impact on these organisations' capacity to achieve and sustain quality improvements.

Design: This was rapid research comprising five interrelated workstreams: (1) a literature review using systematic methods; (2) an analysis of policy documents and interviews at the national level; (3) eight multisite, mixed-methods trust case studies; (4) an analysis of national performance and workforce indicators; and (5) an economic analysis.

Results: The Special Measures for Quality/challenged provider regimes were intended to be 'support' programmes. Special Measures for Quality/challenged provider regimes had an emotional impact on staff. Perceptions of NHS Improvement interventions were mixed overall. Senior leadership teams were a key driver of change, with strong clinical input being vital. Local systems have a role in improvement. Trusts focus efforts to improve across multiple domains. Internal and external factors contribute to positive performance trajectories. Nationally, only 15.8% of Special Measures for Quality trusts exited the regime in 24 months. Entry into Special Measures for Quality/challenged provider regimes resulted in changes in quality indicators (such the number of patients waiting in emergency departments for more than 4 hours, mortality and the number of delayed transfers of care) that were more positive than national trends. The trends in staff sickness and absence improved after trusts left Special Measures for Quality/challenged provider regimes. There was some evidence that staff survey results improved. No association was found between Special Measures for Quality/challenged provider regimes and referral to treatment times or cancer treatment waiting times. NHS Improvement spending in case study trusts was mostly directed at interventions addressing 'training on cultural change' (33.6%), 'workforce quality and safety' (21.7%) and 'governance and assurance' (18.4%). The impact of Special Measures for Quality on financial stability was equivocal; most trusts exiting Special Measures for Quality experienced the same financial stability before and after exiting.

Limitations: The rapi

背景:在英格兰,被评为领导能力不足的医疗保健组织和另一个领域进入了质量特别措施制度,以获得支持和监督。一份有可能进入特别质量措施的受质疑供应商的“观察名单”也得到了支持。关于支持干预措施是否能提高质量、支持干预措施的成本以及支持干预措施能否在支持和审查之间取得正确平衡的知识有限。目的:分析信托对实施(1)质量信托特别措施干预措施和(2)受质疑提供者信托干预措施的反应,以确定其对这些组织实现和维持质量改进能力的影响。设计:这是一项快速研究,包括五个相互关联的工作流:(1)使用系统方法的文献综述;(2) 分析国家一级的政策文件和访谈;(3) 八个多站点、混合方法的信任案例研究;(4) 分析国家业绩和劳动力指标;(5)经济分析。结果:质量/受质疑提供者制度的特别措施旨在成为“支持”方案。质量特别措施/受质疑的供应商制度对工作人员产生了情感影响。总体而言,对NHS改善干预措施的看法参差不齐。高级领导团队是变革的关键驱动力,强有力的临床投入至关重要。地方制度在改进中发挥着作用。信托专注于跨多个领域进行改进。内部和外部因素有助于积极的绩效轨迹。在全国范围内,只有15.8%的质量信托特别措施在24个月内退出了该制度。进入质量特别措施/受质疑的提供者制度导致了质量指标的变化(如在急诊室等待超过4小时的患者人数、死亡率和延迟转移护理的人数),这些变化比全国趋势更为积极。在信托机构离开质量特别措施/受质疑的提供者制度后,员工生病和缺勤的趋势有所改善。有一些证据表明,工作人员调查结果有所改善。质量特别措施/受质疑的提供者制度与转诊治疗时间或癌症治疗等待时间之间没有关联。案例研究信托基金中的NHS改善支出主要用于解决“文化变革培训”(33.6%)、“劳动力质量和安全”(21.7%)和“治理和保证”(18.4%)的干预措施;大多数退出特别质量措施的信托在退出前后都经历了同样的财务稳定性。局限性:快速研究设计和1年时间框架排除了对信托和地方系统的纵向观察。指标数量少,限制了对影响的定量分析。劳动力影响的衡量受到数据可用性的限制。结论:确定了质量特别措施/受质疑的供应商制度产生积极影响的经验证据;然而,人们的看法却喜忧参半。主要经验教训是:(1)实施和嵌入变革需要时间;(2) 需要减少情感成本和耻辱感的方法;(3) 支持战略应更加注重信任;(4) 需要在地方系统内解决组织绩效差的问题;(5) 具有稳定性、强大的临床投入和以往质量特别措施经验的高级领导团队帮助制定了变革;(6) 需要全组织的质量改进战略和能力;(7) 员工参与和开放的倾听文化促进持续学习和质量改进“心态”,这对可持续改进至关重要;以及(8)需要考虑改善患者预后所需的可持续资金水平。未来的工作:未来的工作可能包括评估制度的最新变化、地方制度的作用和纵向方法。研究注册:审查方案在PROSPERO注册(CRD42019131024)。资金:该项目由国家卫生与护理研究所(NIHR)卫生与社会护理提供研究计划资助,并将在《卫生与社会保健提供研究》上全文发表;第11卷第19期。有关更多项目信息,请访问NIHR期刊图书馆网站。
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引用次数: 0
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Health and social care delivery research
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