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Evaluating Participation in Gender-Affirming Care: Cross-Sectional Analysis of Dermatology Program Websites in the United States. 评估性别平等护理的参与情况:美国皮肤病学项目网站的横向分析。
Q3 Medicine Pub Date : 2024-02-12 DOI: 10.2196/54480
Marco Costanza, Jeffrey Sobieraj, Frank Wang
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引用次数: 0
Barriers and Facilitators to Teledermatology and Tele-Eye Care in Department of Veterans Affairs Provider Settings: Qualitative Content Analysis. 退伍军人事务部提供商设置远程皮肤病学和远程眼科护理的障碍和促进因素:定性内容分析。
Q3 Medicine Pub Date : 2024-02-07 DOI: 10.2196/50352
Yiwen Li, Charlene Pope, Jennifer Damonte, Tanika Spates, April Maa, Suephy Chen, Howa Yeung

Background: Veterans Affairs health care systems have been early adopters of asynchronous telemedicine to provide access to timely and high-quality specialty care services in primary care settings for veterans living in rural areas. Scant research has examined how to expand primary care team members' engagement in telespecialty care.

Objective: This qualitative study aimed to explore implementation process barriers and facilitators to using asynchronous telespecialty care (teledermatology and tele-eye care services).

Methods: In total, 30 participants including primary care providers, nurses, telehealth clinical technicians, medical and program support assistants, and administrators from 2 community-based outpatient clinics were interviewed. Semistructured interviews were conducted using an interview guide, digitally recorded, and transcribed. Interview transcripts were analyzed using a qualitative content analysis summative approach. Two coders reviewed transcripts independently. Discrepancies were resolved by consensus discussion.

Results: In total, 3 themes were identified from participants' experiences: positive perception of telespecialty care, concerns and challenges of implementation, and suggestions for service refinement. Participants voiced that the telemedicine visits saved commute and waiting times and provided veterans in rural areas more access to timely medical care. The mentioned concerns were technical challenges and equipment failure, staffing shortages to cover both in-person and telehealth visit needs, overbooked schedules leading to delayed referrals, the need for a more standardized operation protocol, and more hands-on training with formative feedback among supporting staff. Participants also faced challenges with appointment cancellations and struggled to find ways to efficiently manage both telehealth and in-person visits to streamline patient flow. Nonetheless, most participants feel motivated and confident in implementing telespecialty care going forward.

Conclusions: This study provided important insights into the positive perceptions and ongoing challenges in telespecialty care implementation. Feedback from primary care teams is needed to improve telespecialty care service delivery for rural veterans.

背景:退伍军人事务医疗保健系统是异步远程医疗的早期采用者,为居住在农村地区的退伍军人提供了在初级医疗环境中及时获得高质量专科护理服务的机会。很少有研究探讨如何扩大初级医疗团队成员对远程专科医疗的参与:这项定性研究旨在探讨使用异步远程专科护理(远程皮肤科和远程眼科护理服务)的实施过程障碍和促进因素:共采访了 30 名参与者,包括初级保健提供者、护士、远程医疗临床技术人员、医疗和项目支持助理,以及 2 家社区门诊诊所的管理人员。采用访谈指南进行了半结构式访谈,并进行了数字录音和转录。访谈记录采用定性内容分析总结法进行分析。两名编码员独立审阅记录誊本。结果:从参与者的经历中总共确定了 3 个主题:对远程专科护理的积极看法、实施过程中遇到的问题和挑战,以及改进服务的建议。参与者表示,远程医疗就诊节省了通勤和等待时间,为农村地区的退伍军人提供了更多及时就医的机会。提到的问题包括:技术挑战和设备故障;人手不足,无法同时满足面诊和远程医疗访问的需求;预约时间过长,导致转诊延迟;需要更标准化的操作规程;需要在辅助人员中开展更多带有形成性反馈的实践培训。参与者还面临预约取消的挑战,并努力寻找有效管理远程医疗和面对面就诊的方法,以简化患者流程。尽管如此,大多数参与者都对今后实施远程专科护理充满了动力和信心:这项研究为远程专科医疗实施过程中的积极看法和持续挑战提供了重要见解。需要基层医疗团队提供反馈意见,以改善为农村退伍军人提供的远程专科护理服务。
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引用次数: 0
Themes and Topics on Diversity, Equity, and Inclusion in JMIR Dermatology Publications. JMIR 皮肤病学出版物中有关多样性、公平性和包容性的主题和专题。
Q3 Medicine Pub Date : 2024-02-02 DOI: 10.2196/48762
Ramiro Rodriguez, Karima M Osman, Lachlan Anderson, Micah Pascual, Robert P Dellavalle

Publications dealing with topics considered to be pertinent to diversity, equity, and inclusion are increasing. Due to the increasing trend, dermatology journals have started to implement ways to evaluate and understand these publications. Here, we discuss a keyword approach to identify and then categorize these publications. Keywords identified 43 manuscripts. Two reviewers screened the articles' titles and abstracts, and recommended a full manuscript review for 24 publications. Through the scope of definitions from the National Institutes of Health, an editorial board member performed a full-text review and assigned a primary theme to the publications. Themes included equity (n=20) and diversity/inclusion (n=4). Topics were racial/ethnic differences in care delivery or society (n=17), incomplete understanding of gender and sex (n=3), gender identity (n=2), socioeconomic class and its impact on health (n=1), care for rural underserved communities (n=1), and religion (n=1). The results of this review demonstrate a predominance of equity-related publications, particularly emphasizing racial/ethnic differences in health care delivery, in the publications identified in JMIR Dermatology. Future research can focus on creating a review aid to assist editorial board members when providing feedback to manuscripts, refining the keywords, and using thematic analysis methodology to evaluate large sets of publications.

涉及被认为与多样性、公平性和包容性相关的主题的出版物越来越多。鉴于这一趋势,皮肤病学期刊开始采用一些方法来评估和理解这些出版物。在此,我们讨论用关键词的方法来识别这些出版物,然后进行分类。关键词识别出 43 篇手稿。两位审稿人筛选了文章的标题和摘要,并建议对 24 篇出版物进行全文审稿。根据美国国立卫生研究院的定义范围,一名编辑委员会成员对全文进行了审阅,并为这些出版物指定了一个主要的主题。主题包括公平(n=20)和多样性/包容性(n=4)。主题包括医疗服务或社会中的种族/民族差异(17 篇)、对性别和性的不完全理解(3 篇)、性别认同(2 篇)、社会经济阶层及其对健康的影响(1 篇)、对农村服务不足社区的医疗服务(1 篇)以及宗教(1 篇)。本综述的结果表明,在《JMIR 皮肤病学》中发现的出版物中,与公平相关的出版物占多数,尤其是强调医疗服务中的种族/民族差异的出版物。未来的研究可以集中在创建审稿辅助工具以协助编委会成员对稿件提供反馈、完善关键词以及使用主题分析方法评估大量出版物。
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引用次数: 0
From the Cochrane Library: Systemic Interventions for Steven-Johnson Syndrome (SJS), Toxic Epidermal Necrolysis (TEN), and SJS/TEN Overlap Syndrome. 来自 Cochrane 图书馆:史蒂文-约翰逊综合征 (SJS)、中毒性表皮坏死溶解症 (TEN) 和 SJS/TEN 重叠综合征的系统干预。
Q3 Medicine Pub Date : 2024-01-30 DOI: 10.2196/46580
Gaurav Nitin Pathak, Thu Minh Truong, Amit Singal, Viktoria Taranto, Babar K Rao, Audrey A Jacobsen
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引用次数: 0
Strengthening TikTok Content Analysis in Academia Using Follower Count and Engagement. 利用粉丝数量和参与度加强学术界对 TikTok 内容的分析。
Q3 Medicine Pub Date : 2024-01-30 DOI: 10.2196/54439
Serena Ramjee, Zeeshaan-Ul Hasan
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引用次数: 0
Worldwide Distribution and Extracutaneous Manifestations of Henoch-Schönlein Purpura in Adults: Narrative Review. 成人白癜风的全球分布和皮肤外表现:叙述性综述。
Q3 Medicine Pub Date : 2024-01-25 DOI: 10.2196/49746
Blair W Harris, Luke Maxfield, Abigail Hunter, Mandy Alhajj, Byung Ban, Kayd J Pulsipher

Background: Henoch-Schönlein purpura (HSP), a leukocytoclastic small vessel vasculitis, exhibits both cutaneous and systemic manifestations. While predominantly observed in childhood, it may manifest in adults with more pronounced systemic involvement. Furthermore, HSP is a global phenomenon showcasing epidemiological and systemic variances.

Objective: This study aims to scrutinize extracutaneous manifestations in adults with HSP, discerning distinctions according to geographical regions on a worldwide scale.

Methods: A comprehensive search encompassing PubMed, Embase, Cochrane Library, and Web of Science was executed, covering papers published from January 1, 1970, to December 1, 2019. Keywords used included "Henoch-Schönlein purpura," "henoch schonlein purpura+adult," "IgA vasculitis+adult," "HSP+adult," and "IgAV." A total of 995 publications were identified, from which 42 studies encompassing 4064 patients were selected, with a predominant focus on cases reported in Asia, Europe, and the Americas.

Results: Among adults afflicted with HSP, European patients exhibited a higher propensity for male predominance (P<.001), gastrointestinal involvement (P<.001), and musculoskeletal complications (P<.001). Conversely, patients from the Americas were least likely to experience genitourinary involvement (P<.001).

Conclusions: HSP demonstrates a variance in distribution and extracutaneous manifestations within distinct geographical boundaries. In the adult population, European patients exhibited a higher prevalence of male gender and gastrointestinal and musculoskeletal involvement. Asian patients were more predisposed to genitourinary involvement when compared to their American counterparts. The establishment of prospective studies using standardized reporting measures is imperative to validate the relationships unveiled in this investigation.

背景:白癜风(Henoch-Schönlein purpura,HSP)是一种白细胞破损性小血管炎,有皮肤和全身两种表现。虽然主要见于儿童,但成人也可能出现更明显的全身受累。此外,HSP 是一种全球性现象,显示出流行病学和系统性差异:本研究旨在仔细观察成人 HSP 患者的皮外表现,并在全球范围内根据地理区域进行区分:方法:对PubMed、Embase、Cochrane Library和Web of Science进行全面检索,涵盖1970年1月1日至2019年12月1日发表的论文。使用的关键词包括 "Henoch-Schönlein purpura"、"henoch schonlein purpura+成人"、"IgA 血管炎+成人"、"HSP+成人 "和 "IgAV"。共鉴定了 995 篇出版物,从中选出了 42 项研究,涵盖 4064 名患者,主要集中在亚洲、欧洲和美洲的病例报告中:结果:在患有 HSP 的成人中,欧洲患者以男性为主的倾向较高(PC结论:HSP 的发病率和分布存在差异:HSP在不同地域的分布和皮外表现存在差异。在成年人群中,欧洲患者中男性比例较高,胃肠道和肌肉骨骼受累的比例也较高。与美国患者相比,亚洲患者更易受累于泌尿生殖系统。要验证这项调查所揭示的关系,必须使用标准化的报告措施开展前瞻性研究。
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引用次数: 0
An Unusual Case of Anderson-Fabry Disease: Case Report. 一例罕见的安德森-法布里病:病例报告。
Q3 Medicine Pub Date : 2024-01-16 DOI: 10.2196/49573
Alpana Mohta, Achala Mohta, Pramila Kumari

Angiokeratoma is a group of capillary malformations characterized by the formation of variably sized dark red hyperkeratotic papules. Initially, it was believed that angiokeratoma corporis diffusum was a telltale sign of Anderson-Fabry disease; however, current consensus states that it is also seen in various other lysosomal enzymatic deficiencies. In this report, we present the case of a 12-year-old boy who developed angiokeratoma corporis diffusum with sensorineural deafness, acroparesthesias, and renal involvement.

血管角化瘤是一组毛细血管畸形,其特征是形成大小不一的暗红色角化过度丘疹。起初,人们认为弥漫性血管角化瘤是安德森-法布里病的征兆;但目前的共识是,它也可见于其他各种溶酶体酶缺乏症。在本报告中,我们介绍了一个 12 岁男孩的病例,他患有血管角化瘤,伴有感音神经性耳聋、尖锐湿疣和肾脏受累。
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引用次数: 0
REDCap as a Platform for Cutaneous Disease Management in Street Medicine: Descriptive Study. REDCap 作为街头医疗的皮肤病管理平台:描述性研究。
Q3 Medicine Pub Date : 2024-01-09 DOI: 10.2196/48940
Emily Eachus, Kayla Schwartz, Taha Rasul, Daniel Bergholz, Jonette Keri, Armen Henderson
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引用次数: 0
Reflecting on Decades of Data: The Global Burden of Disease-Cochrane Project. 反思几十年的数据:全球疾病负担--Cochrane 项目。
Q3 Medicine Pub Date : 2024-01-05 DOI: 10.2196/41323
Madeline Adelman, Isaac Weber
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引用次数: 0
Correction: Brachioradial Pruritus Due to Cervical Spine Pathology. 更正:颈椎病变引起的肱动脉瘙痒症。
Q3 Medicine Pub Date : 2023-12-29 DOI: 10.2196/55896
Maria Grabnar, Maneesh Tiwari, Jayesh Vallabh

[This corrects the article DOI: 10.2196/39863.].

[此处更正了文章 DOI:10.2196/39863]。
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引用次数: 0
期刊
JMIR dermatology
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