首页 > 最新文献

JMIR infodemiology最新文献

英文 中文
Exploring the Impact of the COVID-19 Pandemic on Twitter in Japan: Qualitative Analysis of Disrupted Plans and Consequences. 探索 COVID-19 大流行对日本 Twitter 的影响:对计划被打乱及其后果的定性分析。
IF 3.5 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 DOI: 10.2196/49699
Masaru Kamba, Wan Jou She, Kiki Ferawati, Shoko Wakamiya, Eiji Aramaki

Background: Despite being a pandemic, the impact of the spread of COVID-19 extends beyond public health, influencing areas such as the economy, education, work style, and social relationships. Research studies that document public opinions and estimate the long-term potential impact after the pandemic can be of value to the field.

Objective: This study aims to uncover and track concerns in Japan throughout the COVID-19 pandemic by analyzing Japanese individuals' self-disclosure of disruptions to their life plans on social media. This approach offers alternative evidence for identifying concerns that may require further attention for individuals living in Japan.

Methods: We extracted 300,778 tweets using the query phrase Corona-no-sei ("due to COVID-19," "because of COVID-19," or "considering COVID-19"), enabling us to identify the activities and life plans disrupted by the pandemic. The correlation between the number of tweets and COVID-19 cases was analyzed, along with an examination of frequently co-occurring words.

Results: The top 20 nouns, verbs, and noun plus verb pairs co-occurring with Corona no-sei were extracted. The top 5 keywords were graduation ceremony, cancel, school, work, and event. The top 5 verbs were disappear, go, rest, can go, and end. Our findings indicate that education emerged as the top concern when the Japanese government announced the first state of emergency. We also observed a sudden surge in anxiety about material shortages such as toilet paper. As the pandemic persisted and more states of emergency were declared, we noticed a shift toward long-term concerns, including careers, social relationships, and education.

Conclusions: Our study incorporated machine learning techniques for disease monitoring through the use of tweet data, allowing the identification of underlying concerns (eg, disrupted education and work conditions) throughout the 3 stages of Japanese government emergency announcements. The comparison with COVID-19 case numbers provides valuable insights into the short- and long-term societal impacts, emphasizing the importance of considering citizens' perspectives in policy-making and supporting those affected by the pandemic, particularly in the context of Japanese government decision-making.

背景:尽管 COVID-19 是一种流行病,但其传播的影响却超出了公共卫生的范围,影响到经济、教育、工作方式和社会关系等领域。记录公众意见并估计大流行后的长期潜在影响的调查研究对该领域具有重要价值:本研究旨在通过分析日本人在社交媒体上对其生活计划被打乱情况的自我披露,发现并追踪日本人在 COVID-19 大流行期间的担忧。这种方法为确定生活在日本的个人可能需要进一步关注的问题提供了替代证据:我们使用查询短语 Corona-no-sei("由于 COVID-19"、"因为 COVID-19 "或 "考虑 COVID-19")提取了 300,778 条推文,从而确定了因大流行病而中断的活动和生活计划。我们分析了推文数量与 COVID-19 案例之间的相关性,并对频繁出现的词语进行了研究:结果:提取了与 Corona no-sei 共同出现的前 20 个名词、动词和名词加动词对。前 5 个关键词是毕业典礼、取消、学校、工作和事件。前 5 个动词是消失、去、休息、可以去和结束。我们的研究结果表明,当日本政府宣布首次进入紧急状态时,教育成为最受关注的问题。我们还观察到,对卫生纸等物资短缺的焦虑突然激增。随着疫情的持续和更多紧急状态的宣布,我们注意到人们的关注点开始转向长期问题,包括职业、社会关系和教育:我们的研究结合了机器学习技术,通过使用推特数据进行疾病监测,从而在日本政府宣布紧急状态的三个阶段中识别出潜在的关注点(例如,教育和工作条件受到破坏)。与 COVID-19 病例数的比较为短期和长期的社会影响提供了宝贵的见解,强调了在制定政策和支持受流行病影响者时考虑公民观点的重要性,特别是在日本政府决策的背景下。
{"title":"Exploring the Impact of the COVID-19 Pandemic on Twitter in Japan: Qualitative Analysis of Disrupted Plans and Consequences.","authors":"Masaru Kamba, Wan Jou She, Kiki Ferawati, Shoko Wakamiya, Eiji Aramaki","doi":"10.2196/49699","DOIUrl":"10.2196/49699","url":null,"abstract":"<p><strong>Background: </strong>Despite being a pandemic, the impact of the spread of COVID-19 extends beyond public health, influencing areas such as the economy, education, work style, and social relationships. Research studies that document public opinions and estimate the long-term potential impact after the pandemic can be of value to the field.</p><p><strong>Objective: </strong>This study aims to uncover and track concerns in Japan throughout the COVID-19 pandemic by analyzing Japanese individuals' self-disclosure of disruptions to their life plans on social media. This approach offers alternative evidence for identifying concerns that may require further attention for individuals living in Japan.</p><p><strong>Methods: </strong>We extracted 300,778 tweets using the query phrase Corona-no-sei (\"due to COVID-19,\" \"because of COVID-19,\" or \"considering COVID-19\"), enabling us to identify the activities and life plans disrupted by the pandemic. The correlation between the number of tweets and COVID-19 cases was analyzed, along with an examination of frequently co-occurring words.</p><p><strong>Results: </strong>The top 20 nouns, verbs, and noun plus verb pairs co-occurring with Corona no-sei were extracted. The top 5 keywords were graduation ceremony, cancel, school, work, and event. The top 5 verbs were disappear, go, rest, can go, and end. Our findings indicate that education emerged as the top concern when the Japanese government announced the first state of emergency. We also observed a sudden surge in anxiety about material shortages such as toilet paper. As the pandemic persisted and more states of emergency were declared, we noticed a shift toward long-term concerns, including careers, social relationships, and education.</p><p><strong>Conclusions: </strong>Our study incorporated machine learning techniques for disease monitoring through the use of tweet data, allowing the identification of underlying concerns (eg, disrupted education and work conditions) throughout the 3 stages of Japanese government emergency announcements. The comparison with COVID-19 case numbers provides valuable insights into the short- and long-term societal impacts, emphasizing the importance of considering citizens' perspectives in policy-making and supporting those affected by the pandemic, particularly in the context of Japanese government decision-making.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e49699"},"PeriodicalIF":3.5,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10986681/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Journey of Engaging With Web-Based Self-Harm and Suicide Content: Longitudinal Qualitative Study. 参与基于网络的自残和自杀内容的历程:纵向定性研究。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-28 DOI: 10.2196/47699
Zoë Haime, Laura Kennedy, Lydia Grace, Rachel Cohen, Jane Derges, Lucy Biddle
<p><strong>Background: </strong>Self-harm and suicide are major public health concerns worldwide, with attention focused on the web environment as a helpful or harmful influence. Longitudinal research on self-harm and suicide-related internet use is limited, highlighting a paucity of evidence on long-term patterns and effects of engaging with such content.</p><p><strong>Objective: </strong>This study explores the experiences of people engaging with self-harm or suicide content over a 6-month period.</p><p><strong>Methods: </strong>This study used qualitative and digital ethnographic methods longitudinally, including one-to-one interviews at 3 time points to explore individual narratives. A trajectory analysis approach involving 4 steps was used to interpret the data.</p><p><strong>Results: </strong>The findings from 14 participants established the web-based journey of people who engage with self-harm or suicide content. In total, 5 themes were identified: initial interactions with self-harm or suicide content, changes in what self-harm or suicide content people engage with and where, changes in experiences of self-harm or suicide behaviors associated with web-based self-harm or suicide content engagement, the disengagement-reengagement cycle, and future perspectives on web-based self-harm or suicide content engagement. Initial engagements were driven by participants seeking help, often when offline support had been unavailable. Some participants' exposure to self-harm and suicide content led to their own self-harm and suicide behaviors, with varying patterns of change over time. Notably, disengagement from web-based self-harm and suicide spaces served as a protective measure for all participants, but the pull of familiar content resulted in only brief periods of disconnection. Participants also expressed future intentions to continue returning to these self-harm and suicide web-based spaces, acknowledging the nonlinear nature of their own recovery journey and aiming to support others in the community. Within the themes identified in this study, narratives revealed that participants' behavior was shaped by cognitive flexibility and rigidity, metacognitive abilities, and digital expertise. Opportunities for behavior change arose during periods of cognitive flexibility prompted by life events, stressors, and shifts in mental health. Participants sought diverse and potentially harmful content during challenging times but moved toward recovery-oriented engagements in positive circumstances. Metacognitive and digital efficacy skills also played a pivotal role in participants' control of web-based interactions, enabling more effective management of content or platforms or sites that posed potential harms.</p><p><strong>Conclusions: </strong>This study demonstrated the complexity of web-based interactions, with beneficial and harmful content intertwined. Participants who demonstrated metacognition and digital efficacy had better control over web-based en
背景:自残和自杀是全球关注的主要公共卫生问题,而网络环境对自残和自杀的影响则是关注的焦点。对自残和自杀相关网络使用的纵向研究十分有限,这凸显了有关接触此类内容的长期模式和影响的证据十分匮乏:本研究探讨了人们在 6 个月内接触自残或自杀内容的经历:本研究采用纵向定性和数字人种学方法,包括在 3 个时间点进行一对一访谈,以探究个人叙述。结果:14 名参与者的研究结果确立了网络自残的概念:14名参与者的研究结果确定了参与自残或自杀内容的人的网络历程。总共确定了 5 个主题:与自残或自杀内容的最初互动、人们接触自残或自杀内容的内容和地点的变化、与网络自残或自杀内容接触相关的自残或自杀行为体验的变化、脱离-再接触循环以及对网络自残或自杀内容接触的未来展望。最初参与的原因是参与者寻求帮助,通常是在无法获得线下支持的情况下。一些参与者接触到自残和自杀内容后,开始了自己的自残和自杀行为,并随着时间的推移发生了不同的变化。值得注意的是,脱离网络自残和自杀空间对所有参与者来说都是一种保护措施,但熟悉内容的牵引只会导致短暂的脱离。参与者还表达了未来继续回到这些自残和自杀网络空间的意愿,他们承认自己的康复历程是非线性的,并希望为社区中的其他人提供支持。在本研究确定的主题中,叙述显示,参与者的行为是由认知的灵活性和刚性、元认知能力和数字专业知识决定的。在由生活事件、压力和心理健康变化引起的认知灵活性时期,出现了改变行为的机会。在具有挑战性的时期,参与者会寻求各种可能有害的内容,但在积极的情况下,他们会转向以康复为导向的参与。元认知和数字效能技能在参与者控制网络互动方面也发挥了关键作用,使他们能够更有效地管理可能造成伤害的内容或平台或网站:本研究显示了网络互动的复杂性,有益和有害的内容交织在一起。表现出元认知和数字效能的参与者能够更好地控制网络互动。一些人将这些技能归功于学习过程,包括参与反思日记,这显示了提高用户技能的潜力。本研究还强调了参与者如何在熟悉的网络空间中保持脆弱,强调网络行业领导者有责任开发工具,增强用户的网络安全能力。
{"title":"The Journey of Engaging With Web-Based Self-Harm and Suicide Content: Longitudinal Qualitative Study.","authors":"Zoë Haime, Laura Kennedy, Lydia Grace, Rachel Cohen, Jane Derges, Lucy Biddle","doi":"10.2196/47699","DOIUrl":"10.2196/47699","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Self-harm and suicide are major public health concerns worldwide, with attention focused on the web environment as a helpful or harmful influence. Longitudinal research on self-harm and suicide-related internet use is limited, highlighting a paucity of evidence on long-term patterns and effects of engaging with such content.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study explores the experiences of people engaging with self-harm or suicide content over a 6-month period.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;This study used qualitative and digital ethnographic methods longitudinally, including one-to-one interviews at 3 time points to explore individual narratives. A trajectory analysis approach involving 4 steps was used to interpret the data.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;The findings from 14 participants established the web-based journey of people who engage with self-harm or suicide content. In total, 5 themes were identified: initial interactions with self-harm or suicide content, changes in what self-harm or suicide content people engage with and where, changes in experiences of self-harm or suicide behaviors associated with web-based self-harm or suicide content engagement, the disengagement-reengagement cycle, and future perspectives on web-based self-harm or suicide content engagement. Initial engagements were driven by participants seeking help, often when offline support had been unavailable. Some participants' exposure to self-harm and suicide content led to their own self-harm and suicide behaviors, with varying patterns of change over time. Notably, disengagement from web-based self-harm and suicide spaces served as a protective measure for all participants, but the pull of familiar content resulted in only brief periods of disconnection. Participants also expressed future intentions to continue returning to these self-harm and suicide web-based spaces, acknowledging the nonlinear nature of their own recovery journey and aiming to support others in the community. Within the themes identified in this study, narratives revealed that participants' behavior was shaped by cognitive flexibility and rigidity, metacognitive abilities, and digital expertise. Opportunities for behavior change arose during periods of cognitive flexibility prompted by life events, stressors, and shifts in mental health. Participants sought diverse and potentially harmful content during challenging times but moved toward recovery-oriented engagements in positive circumstances. Metacognitive and digital efficacy skills also played a pivotal role in participants' control of web-based interactions, enabling more effective management of content or platforms or sites that posed potential harms.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;This study demonstrated the complexity of web-based interactions, with beneficial and harmful content intertwined. Participants who demonstrated metacognition and digital efficacy had better control over web-based en","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e47699"},"PeriodicalIF":0.0,"publicationDate":"2024-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11009851/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140308115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of a Medical Social Media Ethics Scale and Assessment of #IRad, #CardioTwitter, and #MedTwitter Posts: Mixed Methods Study. 医疗社交媒体伦理量表的开发及 #IRad、#CardioTwitter 和 #MedTwitter 帖子的评估:混合方法研究。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-27 DOI: 10.2196/47770
Vongai Christine Mlambo, Eric Keller, Caroline Mussatto, Gloria Hwang

Background: Social media posts by clinicians are not bound by the same rules as peer-reviewed publications, raising ethical concerns that have not been extensively characterized or quantified.

Objective: We aim to develop a scale to assess ethical issues on medical social media (SoMe) and use it to determine the prevalence of these issues among posts with 3 different hashtags: #MedTwitter, #IRad, and #CardioTwitter.

Methods: A scale was developed based on previous descriptions of professionalism and validated via semistructured cognitive interviewing with a sample of 11 clinicians and trainees, interrater agreement, and correlation of 100 posts. The final scale assessed social media posts in 6 domains. This was used to analyze 1500 Twitter posts, 500 each from the 3 hashtags. Analysis of posts was limited to original Twitter posts in English made by health care professionals in North America. The prevalence of potential issues was determined using descriptive statistics and compared across hashtags using the Fisher exact and χ2 tests with Yates correction.

Results: The final scale was considered reflective of potential ethical issues of SoMe by participants. There was good interrater agreement (Cohen κ=0.620, P<.01) and moderate to strong positive interrater correlation (=0.602, P<.001). The 6 scale domains showed minimal to no interrelation (Cronbach α=0.206). Ethical concerns across all hashtags had a prevalence of 1.5% or less except the conflict of interest concerns on #IRad, which had a prevalence of 3.6% (n=18). Compared to #MedTwitter, posts with specialty-specific hashtags had more patient privacy and conflict of interest concerns.

Conclusions: The SoMe professionalism scale we developed reliably reflects potential ethical issues. Ethical issues on SoMe are rare but important and vary in prevalence across medical communities.

背景:临床医生在社交媒体上发表的文章不受同行评议出版物相同规则的约束,从而引发了尚未广泛定性或量化的伦理问题:我们旨在开发一个量表来评估医疗社交媒体(SoMe)上的伦理问题,并用它来确定这些问题在带有 3 个不同标签的帖子中的普遍程度:#方法:根据以往对专业性的描述制定了量表,并通过对 11 名临床医生和受训人员进行半结构化认知访谈、交互同意以及对 100 篇帖子进行相关性验证。最终量表对 6 个领域的社交媒体帖子进行了评估。该量表用于分析 1500 条 Twitter 帖子,其中 500 条来自 3 个标签。帖子分析仅限于北美医疗保健专业人员在 Twitter 上发布的英文原创帖子。使用描述性统计确定了潜在问题的普遍性,并使用费舍尔精确检验和χ2检验以及耶茨校正比较了不同标签的普遍性:结果:参与者认为最终量表反映了 SoMe 潜在的伦理问题。研究者之间的一致性良好(Cohen κ=0.620, PConclusions):我们开发的 SoMe 职业化量表可靠地反映了潜在的伦理问题。SoMe上的伦理问题很少见,但却很重要,而且在不同的医学界普遍存在。
{"title":"Development of a Medical Social Media Ethics Scale and Assessment of #IRad, #CardioTwitter, and #MedTwitter Posts: Mixed Methods Study.","authors":"Vongai Christine Mlambo, Eric Keller, Caroline Mussatto, Gloria Hwang","doi":"10.2196/47770","DOIUrl":"10.2196/47770","url":null,"abstract":"<p><strong>Background: </strong>Social media posts by clinicians are not bound by the same rules as peer-reviewed publications, raising ethical concerns that have not been extensively characterized or quantified.</p><p><strong>Objective: </strong>We aim to develop a scale to assess ethical issues on medical social media (SoMe) and use it to determine the prevalence of these issues among posts with 3 different hashtags: #MedTwitter, #IRad, and #CardioTwitter.</p><p><strong>Methods: </strong>A scale was developed based on previous descriptions of professionalism and validated via semistructured cognitive interviewing with a sample of 11 clinicians and trainees, interrater agreement, and correlation of 100 posts. The final scale assessed social media posts in 6 domains. This was used to analyze 1500 Twitter posts, 500 each from the 3 hashtags. Analysis of posts was limited to original Twitter posts in English made by health care professionals in North America. The prevalence of potential issues was determined using descriptive statistics and compared across hashtags using the Fisher exact and χ<sup>2</sup> tests with Yates correction.</p><p><strong>Results: </strong>The final scale was considered reflective of potential ethical issues of SoMe by participants. There was good interrater agreement (Cohen κ=0.620, P<.01) and moderate to strong positive interrater correlation (=0.602, P<.001). The 6 scale domains showed minimal to no interrelation (Cronbach α=0.206). Ethical concerns across all hashtags had a prevalence of 1.5% or less except the conflict of interest concerns on #IRad, which had a prevalence of 3.6% (n=18). Compared to #MedTwitter, posts with specialty-specific hashtags had more patient privacy and conflict of interest concerns.</p><p><strong>Conclusions: </strong>The SoMe professionalism scale we developed reliably reflects potential ethical issues. Ethical issues on SoMe are rare but important and vary in prevalence across medical communities.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e47770"},"PeriodicalIF":0.0,"publicationDate":"2024-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11007602/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140295528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Government-Nongovernmental Organization (NGO) Collaboration in Macao's COVID-19 Vaccine Promotion: Social Media Case Study. 澳门 COVID-19 疫苗推广中的政府与非政府组织(NGO)合作:社交媒体案例研究。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-19 DOI: 10.2196/51113
Xuechang Xian, Rostam J Neuwirth, Angela Chang

Background: The COVID-19 pandemic triggered unprecedented global vaccination efforts, with social media being a popular tool for vaccine promotion.

Objective: This study probes into Macao's COVID-19 vaccine communication dynamics, with a focus on the multifaceted impacts of government agendas on social media.

Methods: We scrutinized 22,986 vaccine-related Facebook posts from January 2020 to August 2022 in Macao. Using automated content analysis and advanced statistical methods, we unveiled intricate agenda dynamics between government and nongovernment entities.

Results: "Vaccine importance" and "COVID-19 risk" were the most prominent topics co-occurring in the overall vaccine communication. The government tended to emphasize "COVID-19 risk" and "vaccine effectiveness," while regular users prioritized vaccine safety and distribution, indicating a discrepancy in these agendas. Nonetheless, the government has limited impact on regular users in the aspects of vaccine importance, accessibility, affordability, and trust in experts. The agendas of government and nongovernment users intertwined, illustrating complex interactions.

Conclusions: This study reveals the influence of government agendas on public discourse, impacting environmental awareness, public health education, and the social dynamics of inclusive communication during health crises. Inclusive strategies, accommodating public concerns, and involving diverse stakeholders are paramount for effective social media communication during health crises.

背景:COVID-19大流行引发了前所未有的全球疫苗接种工作,而社交媒体则是疫苗宣传的热门工具:本研究探究澳门 COVID-19 疫苗传播动态,重点关注政府议程对社交媒体的多方面影响:我们仔细研究了澳门 2020 年 1 月至 2022 年 8 月期间在 Facebook 上发布的 22,986 条与疫苗相关的帖子。利用自动内容分析和先进的统计方法,我们揭示了政府和非政府实体之间错综复杂的议程动态:结果:"疫苗的重要性 "和 "COVID-19 的风险 "是整个疫苗传播中最突出的共同话题。政府倾向于强调 "COVID-19 风险 "和 "疫苗有效性",而普通用户则优先考虑疫苗的安全性和分发,这表明这些议程之间存在差异。然而,在疫苗的重要性、可获得性、可负担性和对专家的信任度方面,政府对普通用户的影响有限。政府和非政府用户的议程相互交织,显示出复杂的互动关系:本研究揭示了政府议程对公众话语的影响,影响了环境意识、公共卫生教育以及卫生危机期间包容性传播的社会动态。在健康危机期间,包容性策略、兼顾公众关切以及让不同利益相关者参与进来对于有效的社交媒体传播至关重要。
{"title":"Government-Nongovernmental Organization (NGO) Collaboration in Macao's COVID-19 Vaccine Promotion: Social Media Case Study.","authors":"Xuechang Xian, Rostam J Neuwirth, Angela Chang","doi":"10.2196/51113","DOIUrl":"10.2196/51113","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 pandemic triggered unprecedented global vaccination efforts, with social media being a popular tool for vaccine promotion.</p><p><strong>Objective: </strong>This study probes into Macao's COVID-19 vaccine communication dynamics, with a focus on the multifaceted impacts of government agendas on social media.</p><p><strong>Methods: </strong>We scrutinized 22,986 vaccine-related Facebook posts from January 2020 to August 2022 in Macao. Using automated content analysis and advanced statistical methods, we unveiled intricate agenda dynamics between government and nongovernment entities.</p><p><strong>Results: </strong>\"Vaccine importance\" and \"COVID-19 risk\" were the most prominent topics co-occurring in the overall vaccine communication. The government tended to emphasize \"COVID-19 risk\" and \"vaccine effectiveness,\" while regular users prioritized vaccine safety and distribution, indicating a discrepancy in these agendas. Nonetheless, the government has limited impact on regular users in the aspects of vaccine importance, accessibility, affordability, and trust in experts. The agendas of government and nongovernment users intertwined, illustrating complex interactions.</p><p><strong>Conclusions: </strong>This study reveals the influence of government agendas on public discourse, impacting environmental awareness, public health education, and the social dynamics of inclusive communication during health crises. Inclusive strategies, accommodating public concerns, and involving diverse stakeholders are paramount for effective social media communication during health crises.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e51113"},"PeriodicalIF":0.0,"publicationDate":"2024-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10988378/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140159748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction: Verification in the Early Stages of the COVID-19 Pandemic: Sentiment Analysis of Japanese Twitter Users. 更正:COVID-19大流行初期的验证:对日本 Twitter 用户的情感分析。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-14 DOI: 10.2196/57880
Ryuichiro Ueda, Feng Han, Hongjian Zhang, Tomohiro Aoki, Katsuhiko Ogasawara

[This corrects the article DOI: 10.2196/37881.].

[此处更正了文章 DOI:10.2196/37881]。
{"title":"Correction: Verification in the Early Stages of the COVID-19 Pandemic: Sentiment Analysis of Japanese Twitter Users.","authors":"Ryuichiro Ueda, Feng Han, Hongjian Zhang, Tomohiro Aoki, Katsuhiko Ogasawara","doi":"10.2196/57880","DOIUrl":"10.2196/57880","url":null,"abstract":"<p><p>[This corrects the article DOI: 10.2196/37881.].</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e57880"},"PeriodicalIF":0.0,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10979327/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140133385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Social Listening for Digital Public Health Surveillance of Human Papillomavirus Vaccine Misinformation Online: Exploratory Study. 利用社交聆听对网上人类乳头瘤病毒疫苗误导进行数字公共卫生监测:探索性研究。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-03-08 DOI: 10.2196/54000
Dannell Boatman, Abby Starkey, Lori Acciavatti, Zachary Jarrett, Amy Allen, Stephenie Kennedy-Rea

Despite challenges related to the data quality, representativeness, and accuracy of artificial intelligence-driven tools, commercially available social listening platforms have many of the attributes needed to be used for digital public health surveillance of human papillomavirus vaccination misinformation in the online ecosystem.

尽管人工智能驱动的工具在数据质量、代表性和准确性方面存在挑战,但市面上的社交聆听平台已具备许多必要的属性,可用于对网络生态系统中的人类乳头瘤病毒疫苗接种误导信息进行数字公共卫生监测。
{"title":"Using Social Listening for Digital Public Health Surveillance of Human Papillomavirus Vaccine Misinformation Online: Exploratory Study.","authors":"Dannell Boatman, Abby Starkey, Lori Acciavatti, Zachary Jarrett, Amy Allen, Stephenie Kennedy-Rea","doi":"10.2196/54000","DOIUrl":"10.2196/54000","url":null,"abstract":"<p><p>Despite challenges related to the data quality, representativeness, and accuracy of artificial intelligence-driven tools, commercially available social listening platforms have many of the attributes needed to be used for digital public health surveillance of human papillomavirus vaccination misinformation in the online ecosystem.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e54000"},"PeriodicalIF":0.0,"publicationDate":"2024-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10960215/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140061465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of Social Media in Knowledge, Perceptions, and Self-Reported Adherence Toward COVID-19 Prevention Guidelines: Cross-Sectional Study. 社交媒体在 COVID-19 预防指南的知识、认知和自述遵守情况中的作用。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-02-16 DOI: 10.2196/44395
Camryn Garrett, Shan Qiao, Xiaoming Li

Background: Throughout the COVID-19 pandemic, social media has served as a channel of communication, a venue for entertainment, and a mechanism for information dissemination.

Objective: This study aims to assess the associations between social media use patterns; demographics; and knowledge, perceptions, and self-reported adherence toward COVID-19 prevention guidelines, due to growing and evolving social media use.

Methods: Quota-sampled data were collected through a web-based survey of US adults through the Qualtrics platform, from March 15, 2022, to March 23, 2022, to assess covariates (eg, demographics, vaccination, and political affiliation), frequency of social media use, social media sources of COVID-19 information, as well as knowledge, perceptions, and self-reported adherence toward COVID-19 prevention guidelines. Three linear regression models were used for data analysis.

Results: A total of 1043 participants responded to the survey, with an average age of 45.3 years, among which 49.61% (n=515) of participants were men, 66.79% (n=696) were White, 11.61% (n=121) were Black or African American, 13.15% (n=137) were Hispanic or Latino, 37.71% (n=382) were Democrat, 30.21% (n=306) were Republican, and 25% (n=260) were not vaccinated. After controlling for covariates, users of TikTok (β=-.29, 95% CI -0.58 to -0.004; P=.047) were associated with lower knowledge of COVID-19 guidelines, users of Instagram (β=-.40, 95% CI -0.68 to -0.12; P=.005) and Twitter (β=-.33, 95% CI -0.58 to -0.08; P=.01) were associated with perceiving guidelines as strict, and users of Facebook (β=-.23, 95% CI -0.42 to -0.043; P=.02) and TikTok (β=-.25, 95% CI -0.5 to -0.009; P=.04) were associated with lower adherence to the guidelines (R2 0.06-0.23).

Conclusions: These results allude to the complex interactions between online and physical environments. Future interventions should be tailored to subpopulations based on their demographics and social media site use. Efforts to mitigate misinformation and implement digital public health policy must account for the impact of the digital landscape on knowledge, perceptions, and level of adherence toward prevention guidelines for effective pandemic control.

背景:在 COVID-19 大流行期间,社交媒体一直是沟通的渠道、娱乐的场所和信息传播的机制:由于社交媒体的使用在不断增长和发展,本研究旨在评估社交媒体使用模式、人口统计学、COVID-19 预防指南知识、看法和自我报告遵守情况之间的关联:方法: 2022 年 3 月 15 日至 23 日,通过 Qualtrics 平台对美国成年人进行了在线调查,收集了配额抽样数据,以评估协变量(如人口统计学、疫苗接种、政治派别)、社交媒体使用频率、COVID-19 信息的社交媒体来源,以及对 COVID-19 预防指南的了解、感知和自我报告的遵守情况。数据分析采用了三个线性回归模型:共有 1,043 名参与者回复了调查,平均年龄为 45.3 岁,其中 49.4% 为男性,66% 为白人,11.3% 为黑人,13.1% 为西班牙裔/拉丁美洲裔,36.7% 为民主党人,29.4% 为共和党人,25% 未接种疫苗。控制协变量后,TikTok 用户(ß= -0.31,P=.03,95% CI [-.06,-.02])对 COVID-19 指南的了解程度较低;Instagram 用户(ß= -0.33,P=.02,95% CI [-.59,-.06])和 Twitter 用户(ß= -0.28,P=.02,95% CI [-.53,-.05])对 COVID-19 指南的了解程度较高。结论:这些研究结果表明,Facebook( ß= -0.23,P=.02,95% CI [-.42,-.043])和 TikTok( ß= -0.25,P=.04,95% CI [-.28,.12])的用户对指南的遵守程度较低(R2 .06 - .23):这些结果表明了网络环境和物理环境之间复杂的相互作用。未来的干预措施应根据亚人群的人口统计学特征和社交媒体网站的使用情况量身定制。减少错误信息和实施数字公共卫生政策的努力必须考虑到数字环境对知识、观念和预防指南遵守水平的影响,以有效控制流行病:
{"title":"The Role of Social Media in Knowledge, Perceptions, and Self-Reported Adherence Toward COVID-19 Prevention Guidelines: Cross-Sectional Study.","authors":"Camryn Garrett, Shan Qiao, Xiaoming Li","doi":"10.2196/44395","DOIUrl":"10.2196/44395","url":null,"abstract":"<p><strong>Background: </strong>Throughout the COVID-19 pandemic, social media has served as a channel of communication, a venue for entertainment, and a mechanism for information dissemination.</p><p><strong>Objective: </strong>This study aims to assess the associations between social media use patterns; demographics; and knowledge, perceptions, and self-reported adherence toward COVID-19 prevention guidelines, due to growing and evolving social media use.</p><p><strong>Methods: </strong>Quota-sampled data were collected through a web-based survey of US adults through the Qualtrics platform, from March 15, 2022, to March 23, 2022, to assess covariates (eg, demographics, vaccination, and political affiliation), frequency of social media use, social media sources of COVID-19 information, as well as knowledge, perceptions, and self-reported adherence toward COVID-19 prevention guidelines. Three linear regression models were used for data analysis.</p><p><strong>Results: </strong>A total of 1043 participants responded to the survey, with an average age of 45.3 years, among which 49.61% (n=515) of participants were men, 66.79% (n=696) were White, 11.61% (n=121) were Black or African American, 13.15% (n=137) were Hispanic or Latino, 37.71% (n=382) were Democrat, 30.21% (n=306) were Republican, and 25% (n=260) were not vaccinated. After controlling for covariates, users of TikTok (β=-.29, 95% CI -0.58 to -0.004; P=.047) were associated with lower knowledge of COVID-19 guidelines, users of Instagram (β=-.40, 95% CI -0.68 to -0.12; P=.005) and Twitter (β=-.33, 95% CI -0.58 to -0.08; P=.01) were associated with perceiving guidelines as strict, and users of Facebook (β=-.23, 95% CI -0.42 to -0.043; P=.02) and TikTok (β=-.25, 95% CI -0.5 to -0.009; P=.04) were associated with lower adherence to the guidelines (R<sup>2</sup> 0.06-0.23).</p><p><strong>Conclusions: </strong>These results allude to the complex interactions between online and physical environments. Future interventions should be tailored to subpopulations based on their demographics and social media site use. Efforts to mitigate misinformation and implement digital public health policy must account for the impact of the digital landscape on knowledge, perceptions, and level of adherence toward prevention guidelines for effective pandemic control.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":" ","pages":"e44395"},"PeriodicalIF":0.0,"publicationDate":"2024-02-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10907931/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139405447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Verification in the Early Stages of the COVID-19 Pandemic: Sentiment Analysis of Japanese Twitter Users. 日本 Twitter 用户的情感分析:COVID-19 感染传播初期的验证。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-02-06 DOI: 10.2196/37881
Ryuichiro Ueda, Feng Han, Hongjian Zhang, Tomohiro Aoki, Katsuhiko Ogasawara

Background: The COVID-19 pandemic prompted global behavioral restrictions, impacting public mental health. Sentiment analysis, a tool for assessing individual and public emotions from text data, gained importance amid the pandemic. This study focuses on Japan's early public health interventions during COVID-19, utilizing sentiment analysis in infodemiology to gauge public sentiment on social media regarding these interventions.

Objective: This study aims to investigate shifts in public emotions and sentiments before and after the first state of emergency was declared in Japan. By analyzing both user-generated tweets and retweets, we aim to discern patterns in emotional responses during this critical period.

Methods: We conducted a day-by-day analysis of Twitter (now known as X) data using 4,894,009 tweets containing the keywords "corona," "COVID-19," and "new pneumonia" from March 23 to April 21, 2020, approximately 2 weeks before and after the first declaration of a state of emergency in Japan. We also processed tweet data into vectors for each word, employing the Fuzzy-C-Means (FCM) method, a type of cluster analysis, for the words in the sentiment dictionary. We set up 7 sentiment clusters (negative: anger, sadness, surprise, disgust; neutral: anxiety; positive: trust and joy) and conducted sentiment analysis of the tweet groups and retweet groups.

Results: The analysis revealed a mix of positive and negative sentiments, with "joy" significantly increasing in the retweet group after the state of emergency declaration. Negative emotions, such as "worry" and "disgust," were prevalent in both tweet and retweet groups. Furthermore, the retweet group had a tendency to share more negative content compared to the tweet group.

Conclusions: This study conducted sentiment analysis of Japanese tweets and retweets to explore public sentiments during the early stages of COVID-19 in Japan, spanning 2 weeks before and after the first state of emergency declaration. The analysis revealed a mix of positive (joy) and negative (anxiety, disgust) emotions. Notably, joy increased in the retweet group after the emergency declaration, but this group also tended to share more negative content than the tweet group. This study suggests that the state of emergency heightened positive sentiments due to expectations for infection prevention measures, yet negative information also gained traction. The findings propose the potential for further exploration through network analysis.

背景:COVID-19 在我省的爆发引发了全球性的行为限制,影响了公众的心理健康。情感分析是一种从文本数据中评估个人和公众情绪的工具,在疫情中变得越来越重要。本研究重点关注日本在 COVID-19 期间的早期公共卫生干预措施,利用信息发病学中的情感分析来评估公众在社交媒体上对这些干预措施的情感:本研究旨在调查日本首次宣布进入紧急状态前后公众情绪和情感的变化。通过分析用户生成的推文和转发,本研究旨在发现这一关键时期的情绪反应模式:我们使用 4,894,009 条包含关键词 "日冕"、"COVID-19 "和 "新肺炎 "的推文,对推特数据进行了逐日分析,分析时间为 2020 年 3 月 23 日至 4 月 21 日,即日本首次宣布进入紧急状态前后约两周。我们还将推文数据处理成每个单词的向量,对情感词典中的单词采用聚类分析的一种--模糊-C-Means(FCM)方法,建立了七个情感聚类(负面:愤怒、悲伤、惊讶、厌恶;中性:焦虑;正面:信任和喜悦),并按推文组和转发组进行情感分析:分析结果显示,在宣布进入紧急状态后,转发组中的 "喜悦 "情绪明显增加。消极情绪,如 "担忧 "和 "厌恶",在推文组和转发组中都很普遍。此外,与推特组相比,转发组倾向于分享更多负面内容:本研究对日本的推文和转发(RTs)进行了情感分析,以探讨在日本 COVID-19 的早期阶段,即首次宣布进入紧急状态前后两周内的公众情感。分析结果显示了积极(喜悦)和消极(焦虑、厌恶)的混合情绪。值得注意的是,在宣布紧急状态后,RT 组的喜悦感有所增加,但与 Tweet 组相比,该组也表现出分享更多负面内容的倾向。研究表明,由于对预防感染措施的期望,紧急状态增强了人们的积极情绪,但负面信息也获得了关注。研究结果提出了通过网络分析进一步探索的可能性:
{"title":"Verification in the Early Stages of the COVID-19 Pandemic: Sentiment Analysis of Japanese Twitter Users.","authors":"Ryuichiro Ueda, Feng Han, Hongjian Zhang, Tomohiro Aoki, Katsuhiko Ogasawara","doi":"10.2196/37881","DOIUrl":"10.2196/37881","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 pandemic prompted global behavioral restrictions, impacting public mental health. Sentiment analysis, a tool for assessing individual and public emotions from text data, gained importance amid the pandemic. This study focuses on Japan's early public health interventions during COVID-19, utilizing sentiment analysis in infodemiology to gauge public sentiment on social media regarding these interventions.</p><p><strong>Objective: </strong>This study aims to investigate shifts in public emotions and sentiments before and after the first state of emergency was declared in Japan. By analyzing both user-generated tweets and retweets, we aim to discern patterns in emotional responses during this critical period.</p><p><strong>Methods: </strong>We conducted a day-by-day analysis of Twitter (now known as X) data using 4,894,009 tweets containing the keywords \"corona,\" \"COVID-19,\" and \"new pneumonia\" from March 23 to April 21, 2020, approximately 2 weeks before and after the first declaration of a state of emergency in Japan. We also processed tweet data into vectors for each word, employing the Fuzzy-C-Means (FCM) method, a type of cluster analysis, for the words in the sentiment dictionary. We set up 7 sentiment clusters (negative: anger, sadness, surprise, disgust; neutral: anxiety; positive: trust and joy) and conducted sentiment analysis of the tweet groups and retweet groups.</p><p><strong>Results: </strong>The analysis revealed a mix of positive and negative sentiments, with \"joy\" significantly increasing in the retweet group after the state of emergency declaration. Negative emotions, such as \"worry\" and \"disgust,\" were prevalent in both tweet and retweet groups. Furthermore, the retweet group had a tendency to share more negative content compared to the tweet group.</p><p><strong>Conclusions: </strong>This study conducted sentiment analysis of Japanese tweets and retweets to explore public sentiments during the early stages of COVID-19 in Japan, spanning 2 weeks before and after the first state of emergency declaration. The analysis revealed a mix of positive (joy) and negative (anxiety, disgust) emotions. Notably, joy increased in the retweet group after the emergency declaration, but this group also tended to share more negative content than the tweet group. This study suggests that the state of emergency heightened positive sentiments due to expectations for infection prevention measures, yet negative information also gained traction. The findings propose the potential for further exploration through network analysis.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":" ","pages":"e37881"},"PeriodicalIF":0.0,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10849083/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138833290","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dynamic Associations Between Centers for Disease Control and Prevention Social Media Contents and Epidemic Measures During COVID-19: Infoveillance Study. COVID-19 期间美国疾病控制和预防中心社交媒体内容与流行病措施之间的动态关联:信息监控研究。
Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-01-23 DOI: 10.2196/49756
Shuhua Yin, Shi Chen, Yaorong Ge
<p><strong>Background: </strong>Health agencies have been widely adopting social media to disseminate important information, educate the public on emerging health issues, and understand public opinions. The Centers for Disease Control and Prevention (CDC) widely used social media platforms during the COVID-19 pandemic to communicate with the public and mitigate the disease in the United States. It is crucial to understand the relationships between the CDC's social media communications and the actual epidemic metrics to improve public health agencies' communication strategies during health emergencies.</p><p><strong>Objective: </strong>This study aimed to identify key topics in tweets posted by the CDC during the pandemic, investigate the temporal dynamics between these key topics and the actual COVID-19 epidemic measures, and make recommendations for the CDC's digital health communication strategies for future health emergencies.</p><p><strong>Methods: </strong>Two types of data were collected: (1) a total of 17,524 COVID-19-related English tweets posted by the CDC between December 7, 2019, and January 15, 2022, and (2) COVID-19 epidemic measures in the United States from the public GitHub repository of Johns Hopkins University from January 2020 to July 2022. Latent Dirichlet allocation topic modeling was applied to identify key topics from all COVID-19-related tweets posted by the CDC, and the final topics were determined by domain experts. Various multivariate time series analysis techniques were applied between each of the identified key topics and actual COVID-19 epidemic measures to quantify the dynamic associations between these 2 types of time series data.</p><p><strong>Results: </strong>Four major topics from the CDC's COVID-19 tweets were identified: (1) information on the prevention of health outcomes of COVID-19; (2) pediatric intervention and family safety; (3) updates of the epidemic situation of COVID-19; and (4) research and community engagement to curb COVID-19. Multivariate analyses showed that there were significant variabilities of progression between the CDC's topics and the actual COVID-19 epidemic measures. Some CDC topics showed substantial associations with the COVID-19 measures over different time spans throughout the pandemic, expressing similar temporal dynamics between these 2 types of time series data.</p><p><strong>Conclusions: </strong>Our study is the first to comprehensively investigate the dynamic associations between topics discussed by the CDC on Twitter and the COVID-19 epidemic measures in the United States. We identified 4 major topic themes via topic modeling and explored how each of these topics was associated with each major epidemic measure by performing various multivariate time series analyses. We recommend that it is critical for public health agencies, such as the CDC, to update and disseminate timely and accurate information to the public and align major topics with key epidemic measures over time.
背景:卫生机构已广泛采用社交媒体来传播重要信息、就新出现的健康问题教育公众并了解公众意见。在 COVID-19 大流行期间,美国疾病控制和预防中心(CDC)广泛使用社交媒体平台与公众沟通并缓解疫情。了解疾病预防控制中心的社交媒体传播与实际疫情指标之间的关系对于改善公共卫生机构在卫生突发事件中的传播策略至关重要:本研究旨在确定疾病预防控制中心在疫情期间发布的推文中的关键话题,调查这些关键话题与 COVID-19 实际疫情指标之间的时间动态关系,并为疾病预防控制中心未来的突发卫生事件数字健康传播策略提出建议:收集了两类数据:(1)2019 年 12 月 7 日至 2022 年 1 月 15 日期间中国疾病预防控制中心发布的与 COVID-19 相关的英文推文共计 17524 条;(2)2020 年 1 月至 2022 年 7 月期间约翰霍普金斯大学公共 GitHub 存储库中的美国 COVID-19 流行措施。采用潜在德里希勒分配主题模型从美国疾病预防控制中心发布的所有 COVID-19 相关推文中识别关键主题,最终主题由领域专家确定。在每个确定的关键主题和实际的 COVID-19 流行指标之间应用了各种多元时间序列分析技术,以量化这两类时间序列数据之间的动态关联:从疾病预防控制中心的 COVID-19 推文中确定了四个主要议题:(1) 有关预防 COVID-19 健康后果的信息;(2) 儿科干预和家庭安全;(3) COVID-19 流行情况的更新;(4) 遏制 COVID-19 的研究和社区参与。多变量分析表明,疾病预防控制中心的主题与 COVID-19 实际流行情况之间存在显著的进展差异。在整个大流行期间的不同时间跨度内,疾病预防控制中心的一些主题与 COVID-19 的测量结果显示出实质性的关联,这表明这两类时间序列数据之间存在相似的时间动态:我们的研究首次全面调查了美国疾病预防控制中心在 Twitter 上讨论的话题与 COVID-19 流行病指标之间的动态关联。我们通过话题建模确定了 4 个主要话题主题,并通过各种多变量时间序列分析探讨了每个话题与每个主要流行病指标之间的关联。我们建议,对于疾病预防控制中心等公共卫生机构来说,及时向公众更新和传播准确的信息,并随着时间的推移使主要话题与关键流行病措施保持一致至关重要。我们建议,社交媒体可以帮助公共卫生机构向公众通报突发卫生事件并有效缓解这些事件。
{"title":"Dynamic Associations Between Centers for Disease Control and Prevention Social Media Contents and Epidemic Measures During COVID-19: Infoveillance Study.","authors":"Shuhua Yin, Shi Chen, Yaorong Ge","doi":"10.2196/49756","DOIUrl":"10.2196/49756","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Health agencies have been widely adopting social media to disseminate important information, educate the public on emerging health issues, and understand public opinions. The Centers for Disease Control and Prevention (CDC) widely used social media platforms during the COVID-19 pandemic to communicate with the public and mitigate the disease in the United States. It is crucial to understand the relationships between the CDC's social media communications and the actual epidemic metrics to improve public health agencies' communication strategies during health emergencies.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aimed to identify key topics in tweets posted by the CDC during the pandemic, investigate the temporal dynamics between these key topics and the actual COVID-19 epidemic measures, and make recommendations for the CDC's digital health communication strategies for future health emergencies.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;Two types of data were collected: (1) a total of 17,524 COVID-19-related English tweets posted by the CDC between December 7, 2019, and January 15, 2022, and (2) COVID-19 epidemic measures in the United States from the public GitHub repository of Johns Hopkins University from January 2020 to July 2022. Latent Dirichlet allocation topic modeling was applied to identify key topics from all COVID-19-related tweets posted by the CDC, and the final topics were determined by domain experts. Various multivariate time series analysis techniques were applied between each of the identified key topics and actual COVID-19 epidemic measures to quantify the dynamic associations between these 2 types of time series data.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Four major topics from the CDC's COVID-19 tweets were identified: (1) information on the prevention of health outcomes of COVID-19; (2) pediatric intervention and family safety; (3) updates of the epidemic situation of COVID-19; and (4) research and community engagement to curb COVID-19. Multivariate analyses showed that there were significant variabilities of progression between the CDC's topics and the actual COVID-19 epidemic measures. Some CDC topics showed substantial associations with the COVID-19 measures over different time spans throughout the pandemic, expressing similar temporal dynamics between these 2 types of time series data.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;Our study is the first to comprehensively investigate the dynamic associations between topics discussed by the CDC on Twitter and the COVID-19 epidemic measures in the United States. We identified 4 major topic themes via topic modeling and explored how each of these topics was associated with each major epidemic measure by performing various multivariate time series analyses. We recommend that it is critical for public health agencies, such as the CDC, to update and disseminate timely and accurate information to the public and align major topics with key epidemic measures over time. ","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e49756"},"PeriodicalIF":0.0,"publicationDate":"2024-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10848128/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139522381","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis. 使用社交媒体表达和处理先天性角化障碍的医疗不确定性:内容分析》(The Use of Social Media to Expression and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis)。
IF 3.5 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-01-15 DOI: 10.2196/46693
Emily Pearce, Hannah Raj, Ngozika Emezienna, Melissa B Gilkey, Allison J Lazard, Kurt M Ribisl, Sharon A Savage, Paul Kj Han
<p><strong>Background: </strong>Social media has the potential to provide social support for rare disease communities; however, little is known about the use of social media for the expression of medical uncertainty, a common feature of rare diseases.</p><p><strong>Objective: </strong>This study aims to evaluate the expression of medical uncertainty on social media in the context of dyskeratosis congenita, a rare cancer-prone inherited bone marrow failure and telomere biology disorder (TBD).</p><p><strong>Methods: </strong>We performed a content analysis of uncertainty-related posts on Facebook and Twitter managed by Team Telomere, a patient advocacy group for this rare disease. We assessed the frequency of uncertainty-related posts, uncertainty sources, issues, and management and associations between uncertainty and social support.</p><p><strong>Results: </strong>Across all TBD social media platforms, 45.98% (1269/2760) of posts were uncertainty related. Uncertainty-related posts authored by Team Telomere on Twitter focused on scientific (306/434, 70.5%) or personal (230/434, 53%) issues and reflected uncertainty arising from probability, ambiguity, or complexity. Uncertainty-related posts in conversations among patients and caregivers in the Facebook community group focused on scientific (429/511, 84%), personal (157/511, 30.7%), and practical (114/511, 22.3%) issues, many of which were related to prognostic unknowns. Both platforms suggested uncertainty management strategies that focused on information sharing and community building. Posts reflecting response-focused uncertainty management strategies (eg, emotional regulation) were more frequent on Twitter compared with the Facebook community group (χ<sup>2</sup><sub>1</sub>=3.9; P=.05), whereas posts reflecting uncertainty-focused management strategies (eg, ordering information) were more frequent in the Facebook community group compared with Twitter (χ<sup>2</sup><sub>1</sub>=55.1; P<.001). In the Facebook community group, only 36% (184/511) of members created posts during the study period, and those who created posts did so with a low frequency (median 3, IQR 1-7 posts). Analysis of post creator characteristics suggested that most users of TBD social media are White, female, and parents of patients with dyskeratosis congenita.</p><p><strong>Conclusions: </strong>Although uncertainty is a pervasive and multifactorial issue in TBDs, our findings suggest that the discussion of medical uncertainty on TBD social media is largely limited to brief exchanges about scientific, personal, or practical issues rather than ongoing supportive conversation. The nature of uncertainty-related conversations also varied by user group: patients and caregivers used social media primarily to discuss scientific uncertainties (eg, regarding prognosis), form social connections, or exchange advice on accessing and organizing medical care, whereas Team Telomere used social media to express scientific and personal issu
背景:社交媒体有可能为罕见病社区提供社会支持;然而,人们对利用社交媒体表达医疗不确定性知之甚少,而医疗不确定性是罕见病的常见特征:本研究旨在评估在先天性角化不良(一种罕见的易患癌症的遗传性骨髓衰竭和端粒生物学疾病(TBD))的背景下,社交媒体对医疗不确定性的表达:我们对该罕见病患者权益组织 Telomere 团队管理的 Facebook 和 Twitter 上与不确定性相关的帖子进行了内容分析。我们评估了不确定性相关帖子的频率、不确定性来源、问题和管理以及不确定性与社会支持之间的关联:在所有 TBD 社交媒体平台上,45.98%(1269/2760)的帖子与不确定性有关。Telomere 团队在 Twitter 上发布的与不确定性相关的帖子主要集中在科学(306/434,70.5%)或个人(230/434,53%)问题上,反映了由概率、模糊性或复杂性引起的不确定性。在 Facebook 社区小组中,患者和护理人员对话中与不确定性相关的帖子主要集中在科学问题(429/511,84%)、个人问题(157/511,30.7%)和实际问题(114/511,22.3%)上,其中许多都与预后未知因素有关。两个平台都提出了以信息共享和社区建设为重点的不确定性管理策略。与 Facebook 社区组相比(χ21=3.9;P=.05),Twitter 上反映以反应为中心的不确定性管理策略(如情绪调节)的帖子更多,而 Facebook 社区组与 Twitter 相比(χ21=55.1;P=.05),反映以不确定性为中心的管理策略(如订购信息)的帖子更多:尽管不确定性是 TBDs 中普遍存在的多因素问题,但我们的研究结果表明,TBD 社交媒体上对医疗不确定性的讨论主要限于有关科学、个人或实际问题的简短交流,而非持续的支持性对话。不确定性相关对话的性质也因用户群体而异:患者和护理人员使用社交媒体主要是为了讨论科学上的不确定性(例如,关于预后)、建立社会联系或交流关于获取和组织医疗护理的建议,而 Telomere 团队则使用社交媒体来表达科学和个人的不确定性问题以及解决不确定性对情绪的影响。女性家长在 TBD 社交媒体上的参与度较高,这表明与其他群体相比,母亲在不确定性管理方面可能承担着更大的负担。还需要进一步研究,以了解社交媒体参与管理 TBD 社区医疗不确定性的动态。
{"title":"The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis.","authors":"Emily Pearce, Hannah Raj, Ngozika Emezienna, Melissa B Gilkey, Allison J Lazard, Kurt M Ribisl, Sharon A Savage, Paul Kj Han","doi":"10.2196/46693","DOIUrl":"10.2196/46693","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Social media has the potential to provide social support for rare disease communities; however, little is known about the use of social media for the expression of medical uncertainty, a common feature of rare diseases.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aims to evaluate the expression of medical uncertainty on social media in the context of dyskeratosis congenita, a rare cancer-prone inherited bone marrow failure and telomere biology disorder (TBD).&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;We performed a content analysis of uncertainty-related posts on Facebook and Twitter managed by Team Telomere, a patient advocacy group for this rare disease. We assessed the frequency of uncertainty-related posts, uncertainty sources, issues, and management and associations between uncertainty and social support.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Across all TBD social media platforms, 45.98% (1269/2760) of posts were uncertainty related. Uncertainty-related posts authored by Team Telomere on Twitter focused on scientific (306/434, 70.5%) or personal (230/434, 53%) issues and reflected uncertainty arising from probability, ambiguity, or complexity. Uncertainty-related posts in conversations among patients and caregivers in the Facebook community group focused on scientific (429/511, 84%), personal (157/511, 30.7%), and practical (114/511, 22.3%) issues, many of which were related to prognostic unknowns. Both platforms suggested uncertainty management strategies that focused on information sharing and community building. Posts reflecting response-focused uncertainty management strategies (eg, emotional regulation) were more frequent on Twitter compared with the Facebook community group (χ&lt;sup&gt;2&lt;/sup&gt;&lt;sub&gt;1&lt;/sub&gt;=3.9; P=.05), whereas posts reflecting uncertainty-focused management strategies (eg, ordering information) were more frequent in the Facebook community group compared with Twitter (χ&lt;sup&gt;2&lt;/sup&gt;&lt;sub&gt;1&lt;/sub&gt;=55.1; P&lt;.001). In the Facebook community group, only 36% (184/511) of members created posts during the study period, and those who created posts did so with a low frequency (median 3, IQR 1-7 posts). Analysis of post creator characteristics suggested that most users of TBD social media are White, female, and parents of patients with dyskeratosis congenita.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;Although uncertainty is a pervasive and multifactorial issue in TBDs, our findings suggest that the discussion of medical uncertainty on TBD social media is largely limited to brief exchanges about scientific, personal, or practical issues rather than ongoing supportive conversation. The nature of uncertainty-related conversations also varied by user group: patients and caregivers used social media primarily to discuss scientific uncertainties (eg, regarding prognosis), form social connections, or exchange advice on accessing and organizing medical care, whereas Team Telomere used social media to express scientific and personal issu","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"4 ","pages":"e46693"},"PeriodicalIF":3.5,"publicationDate":"2024-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10825764/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139467364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
JMIR infodemiology
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1