Ari Z Klein, Kaelen Spiegel, José A Bauermeister, Graciela Gonzalez-Hernandez
Background: There has been a recent proliferation of anti-LGBTQ+ (lesbian, gay, bisexual, transgender, queer/questioning) legislation being proposed in the United States, including more than 500 bills across 42 states in 2024. Many of the studies examining the impact of anti-LGBTQ+ legislation have focused specifically on the association with mental health outcomes.
Objective: The objective of this study was to use social media data to more broadly explore health-related concerns of anti-LGBTQ+ legislation among sexual minority men in the United States.
Methods: We leveraged a dataset containing 70 million tweets that were posted by 23,276 users in the United States who self-reported on Twitter that they are sexual minority men. First, we searched these tweets for keywords related to LGBTQ+ legislation. Next, we developed a codebook for identifying those that expressed health-related concerns of anti-LGBTQ+ legislation. Then, we developed a coding scheme to categorize these concerns into one or more themes by using an inductive approach. Finally, we automatically identified the users' geographic location and age for subgroup analyses.
Results: Among 8486 keyword-matched tweets, 493 (5.8%) tweets expressed health-related concerns due to anti-LGBTQ+ legislation and were posted by 288 sexual minority men in the United States: 112 (38.9%) who posted about health care, 84 (29.2%) about safety, 64 (22.2%) about mental health, 62 (21.5%) about general harm, 49 (17%) about human rights, and 40 (13.9%) about support. Health care was the top concern overall and across the United States and age groups. In contrast, the higher prevalence of mental health was driven by the larger number of users in the South, as it was less of a concern in other regions. Similarly, mental health was less of a concern among older age groups. Safety was as much of a concern as mental health overall and across the United States and most age groups.
Conclusions: Our findings may inform a broader range of health interventions and approaches for targeting them at specific populations of sexual minority men. By demonstrating that these concerns are expressed on social media, our findings can be leveraged by advocacy groups to amplify voices and rally public support for countering anti-LGBTQ+ bills.
{"title":"Health-Related Concerns of Anti-LGBTQ+ Legislation: Thematic Analysis Using Social Media Data.","authors":"Ari Z Klein, Kaelen Spiegel, José A Bauermeister, Graciela Gonzalez-Hernandez","doi":"10.2196/68956","DOIUrl":"10.2196/68956","url":null,"abstract":"<p><strong>Background: </strong>There has been a recent proliferation of anti-LGBTQ+ (lesbian, gay, bisexual, transgender, queer/questioning) legislation being proposed in the United States, including more than 500 bills across 42 states in 2024. Many of the studies examining the impact of anti-LGBTQ+ legislation have focused specifically on the association with mental health outcomes.</p><p><strong>Objective: </strong>The objective of this study was to use social media data to more broadly explore health-related concerns of anti-LGBTQ+ legislation among sexual minority men in the United States.</p><p><strong>Methods: </strong>We leveraged a dataset containing 70 million tweets that were posted by 23,276 users in the United States who self-reported on Twitter that they are sexual minority men. First, we searched these tweets for keywords related to LGBTQ+ legislation. Next, we developed a codebook for identifying those that expressed health-related concerns of anti-LGBTQ+ legislation. Then, we developed a coding scheme to categorize these concerns into one or more themes by using an inductive approach. Finally, we automatically identified the users' geographic location and age for subgroup analyses.</p><p><strong>Results: </strong>Among 8486 keyword-matched tweets, 493 (5.8%) tweets expressed health-related concerns due to anti-LGBTQ+ legislation and were posted by 288 sexual minority men in the United States: 112 (38.9%) who posted about health care, 84 (29.2%) about safety, 64 (22.2%) about mental health, 62 (21.5%) about general harm, 49 (17%) about human rights, and 40 (13.9%) about support. Health care was the top concern overall and across the United States and age groups. In contrast, the higher prevalence of mental health was driven by the larger number of users in the South, as it was less of a concern in other regions. Similarly, mental health was less of a concern among older age groups. Safety was as much of a concern as mental health overall and across the United States and most age groups.</p><p><strong>Conclusions: </strong>Our findings may inform a broader range of health interventions and approaches for targeting them at specific populations of sexual minority men. By demonstrating that these concerns are expressed on social media, our findings can be leveraged by advocacy groups to amplify voices and rally public support for countering anti-LGBTQ+ bills.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e68956"},"PeriodicalIF":2.3,"publicationDate":"2025-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12464498/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145042461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: Cyber victimization exposes individuals to numerous risks. Developmental and psychological factors may leave some users unaware of the potential dangers, increasing their susceptibility to psychological distress. Despite this vulnerability, methods for identifying those at risk of cyber victimization within health care settings are limited, as is research that explores their experiences of cyber victimization. The purpose of this study was to analyze how users describe experiences of cyber victimization on the social media platform Reddit (Reddit, Inc) using data mining.
Objective: This study aimed to analyze and describe how users on Reddit describe and discuss their experience of cyber victimization using data mining and computational analysis of unsolicited data.
Methods: This computational qualitative study used data mining, Word Adjacency Graph (WAG) modeling, and thematic analysis to analyze discussions of Reddit users surrounding cyber victimization. Inclusion criteria included posts from 2012 to 2023 from subreddits r/cyberbullying and r/bullying. GPT-4 (OpenAI), an advanced artificial intelligence language model, summarized posts and assisted in cluster labeling. Posts were reviewed to remove irrelevant content and duplicates. User anonymity was maintained throughout the study.
Results: A total of 13,381 posts from 3283 Reddit were analyzed, with approximately 5.1% (n=678) originating between 2012 and 2018 and 94.9% (n=12,703) from 2019 to 2023. The WAG modeling approach identified 38 clusters, with 35 deemed to be relevant to cyber victimization experiences. Two clusters containing irrelevant material were excluded. Six overarching themes emerged: (1) psychological impact, (2) coping and healing, (3) protecting yourself online, (4) protecting yourself offline, (5) victimization across various settings, and (6) seeking meaning and understanding.
Conclusions: The study highlights the effectiveness of data mining and AI in analyzing large public datasets for qualitative research. These methods can inform future studies on risky internet behavior, victimization, and assessment strategies in health care settings.
{"title":"Data Mining Trauma: AI-Assisted Qualitative Study of Cyber Victimization on Reddit.","authors":"J'Andra Antisdel, Wendy R Miller, Doyle Groves","doi":"10.2196/75493","DOIUrl":"10.2196/75493","url":null,"abstract":"<p><strong>Background: </strong>Cyber victimization exposes individuals to numerous risks. Developmental and psychological factors may leave some users unaware of the potential dangers, increasing their susceptibility to psychological distress. Despite this vulnerability, methods for identifying those at risk of cyber victimization within health care settings are limited, as is research that explores their experiences of cyber victimization. The purpose of this study was to analyze how users describe experiences of cyber victimization on the social media platform Reddit (Reddit, Inc) using data mining.</p><p><strong>Objective: </strong>This study aimed to analyze and describe how users on Reddit describe and discuss their experience of cyber victimization using data mining and computational analysis of unsolicited data.</p><p><strong>Methods: </strong>This computational qualitative study used data mining, Word Adjacency Graph (WAG) modeling, and thematic analysis to analyze discussions of Reddit users surrounding cyber victimization. Inclusion criteria included posts from 2012 to 2023 from subreddits r/cyberbullying and r/bullying. GPT-4 (OpenAI), an advanced artificial intelligence language model, summarized posts and assisted in cluster labeling. Posts were reviewed to remove irrelevant content and duplicates. User anonymity was maintained throughout the study.</p><p><strong>Results: </strong>A total of 13,381 posts from 3283 Reddit were analyzed, with approximately 5.1% (n=678) originating between 2012 and 2018 and 94.9% (n=12,703) from 2019 to 2023. The WAG modeling approach identified 38 clusters, with 35 deemed to be relevant to cyber victimization experiences. Two clusters containing irrelevant material were excluded. Six overarching themes emerged: (1) psychological impact, (2) coping and healing, (3) protecting yourself online, (4) protecting yourself offline, (5) victimization across various settings, and (6) seeking meaning and understanding.</p><p><strong>Conclusions: </strong>The study highlights the effectiveness of data mining and AI in analyzing large public datasets for qualitative research. These methods can inform future studies on risky internet behavior, victimization, and assessment strategies in health care settings.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e75493"},"PeriodicalIF":2.3,"publicationDate":"2025-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12407219/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144994507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Francois Rene Lamy, Seung Chun Paek, Natthani Meemon
Background: By increasing exposure to drug-related advertisements, the illicit digital drug trade promotes drug normalization and eases access to substances, increasing the likelihood of initiation. Social media platforms play an increasingly important role in facilitating the online substance trade by leveraging encrypted communications and user-friendly interfaces to advertise a large variety of readily available substances. Despite its growing importance, there is a paucity of research conducted in Thailand that aims to determine the types of substances, marketing strategies, and public health risks linked to drugs advertised on social media.
Objective: This study aimed to inductively explore the content of tweets on the social media platform X (formerly known as Twitter) advertising drugs in the Thai language.
Methods: Tweets advertising psychoactive substances in the Thai language were collected manually between April and July 2024. A qualitative content analysis was performed on the collected tweets. Tweets were coded based on 5 themes: types of substances advertised, marketing strategies, delivery methods, number of substances per tweet, and location references. The intercoder reliability for each theme was assessed using Krippendorff α, achieving substantial agreement across most codes.
Results: A total of 3832 tweets advertising drugs were collected and analyzed. Most tweets (2424/3832, 63.26%) mentioned 5 or more substances, with depressants such as opioids (2807/3832, 73.25%), antihistamines (2394/3832, 62.47%), and benzodiazepines (2009/3832, 52.42%) being the most frequently advertised. Common marketing techniques included direct contact information (2848/3832, 74.32%) and fast delivery (1216/3832, 31.73%). Delivery methods primarily involved courier services but generally offered multiple options. Tweets that mentioned at least 1 sex-performance enhancer were frequently (422/543, 77.7%) advertised in combination with benzodiazepine.
Conclusions: The results of this study suggest the presence of a large number of substances advertised for sale on the X platform in the Thai language. This digital form of drug trading is facilitated by possible direct messaging and the large number of courier services existing in Thailand. Our findings call for the development of real-time monitoring systems that harness drug-related data from social media to inform public health practitioners about emerging substances and trends and address the challenges posed by the digital drug trade.
{"title":"Online Illicit Drug Distribution in the Thai Language on X: Exploratory Qualitative Content Analysis.","authors":"Francois Rene Lamy, Seung Chun Paek, Natthani Meemon","doi":"10.2196/71703","DOIUrl":"10.2196/71703","url":null,"abstract":"<p><strong>Background: </strong>By increasing exposure to drug-related advertisements, the illicit digital drug trade promotes drug normalization and eases access to substances, increasing the likelihood of initiation. Social media platforms play an increasingly important role in facilitating the online substance trade by leveraging encrypted communications and user-friendly interfaces to advertise a large variety of readily available substances. Despite its growing importance, there is a paucity of research conducted in Thailand that aims to determine the types of substances, marketing strategies, and public health risks linked to drugs advertised on social media.</p><p><strong>Objective: </strong>This study aimed to inductively explore the content of tweets on the social media platform X (formerly known as Twitter) advertising drugs in the Thai language.</p><p><strong>Methods: </strong>Tweets advertising psychoactive substances in the Thai language were collected manually between April and July 2024. A qualitative content analysis was performed on the collected tweets. Tweets were coded based on 5 themes: types of substances advertised, marketing strategies, delivery methods, number of substances per tweet, and location references. The intercoder reliability for each theme was assessed using Krippendorff α, achieving substantial agreement across most codes.</p><p><strong>Results: </strong>A total of 3832 tweets advertising drugs were collected and analyzed. Most tweets (2424/3832, 63.26%) mentioned 5 or more substances, with depressants such as opioids (2807/3832, 73.25%), antihistamines (2394/3832, 62.47%), and benzodiazepines (2009/3832, 52.42%) being the most frequently advertised. Common marketing techniques included direct contact information (2848/3832, 74.32%) and fast delivery (1216/3832, 31.73%). Delivery methods primarily involved courier services but generally offered multiple options. Tweets that mentioned at least 1 sex-performance enhancer were frequently (422/543, 77.7%) advertised in combination with benzodiazepine.</p><p><strong>Conclusions: </strong>The results of this study suggest the presence of a large number of substances advertised for sale on the X platform in the Thai language. This digital form of drug trading is facilitated by possible direct messaging and the large number of courier services existing in Thailand. Our findings call for the development of real-time monitoring systems that harness drug-related data from social media to inform public health practitioners about emerging substances and trends and address the challenges posed by the digital drug trade.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e71703"},"PeriodicalIF":2.3,"publicationDate":"2025-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12441646/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144981328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Agnes Huguet-Feixa, Wasim Ahmed, Eva Artigues-Barberà, Joaquim Sol, Xavier Gomez-Arbones, Pere Godoy, Marta Ortega Bravo
<p><strong>Background: </strong>The internet and social media have been considered useful platforms for obtaining health information. However, critical and erroneous content about vaccines on social media has been associated with vaccination delays and refusal.</p><p><strong>Objective: </strong>This study aimed to examine how social networks influence access to and perceptions of vaccine-related information. We sought to (1) quantify the proportion of individuals engaging with vaccine-related content on social media and to characterize their demographic and behavioral profiles through an internet-based population survey conducted in Spain and (2) to analyze vaccine-related sentiments and opinions in Spanish and Catalan posts on X (X Corp [formerly Twitter, Inc] and geolocate them using artificial intelligence.</p><p><strong>Methods: </strong>Two complementary methodologies were applied. First, an observational study was conducted via a self-administered internet-based questionnaire among adults in Spain in 2021. Second, we analyzed Spanish- and Catalan-language posts from X, collected between March and December 2021. Sentiment analysis was performed using a workflow developed in Orange Data Mining (Bioinformatics Laboratory, Faculty of Computer and Information Science, University of Ljubljana). Geolocation was based on user-defined locations and visualized using Microsoft Power Business Intelligence. Social network analysis was conducted with NodeXL Pro (Social Media Research Foundation) to identify and characterize the 5 largest user communities discussing vaccines. Although based on independent data sources, the 2 approaches provided complementary methodological insights.</p><p><strong>Results: </strong>Among the 1312 respondents in the survey, 85.7% (1124/1312) stated that they were regular social network users, and 66% (850/1287) reported having encountered antivaccine information on social networks. Of these, 24.3% (205/845) experienced doubts about receiving recommended vaccines, and out of those with doubts, 13.3% (27/203) refused at least 1 vaccine proposed by a health care professional. A total of 479,734 Spanish and Catalan posts on X were analyzed, with 54.44% (n=261,183) posts classified as negative, 28.18% (n=135,194) as neutral, and 17.37% (n=83,357) as positive. Sentiment varied across regions, with more negative posts appearing to derive from South America, with a mix in Europe and more positive posts in North America. Analysis of the topic words and key themes allowed the grouping of the predominant themes of the 5 study groups, which were (1) vaccination efforts during the COVID-19 pandemic, (2) issues of vaccine theft and struggles in managing and securing the vaccine supply, (3) campaigns in the State of Mexico, (4) vaccination efforts for older adults, and (5) the vaccination campaign in Colombia to combat COVID-19.</p><p><strong>Conclusions: </strong>High proportions of exposure to antivaccine content were reported by the su
背景:互联网和社会媒体被认为是获取健康信息的有用平台。然而,社交媒体上关于疫苗的批评和错误内容与疫苗接种延迟和拒绝有关。目的:本研究旨在研究社会网络如何影响疫苗相关信息的获取和认知。我们试图(1)量化在社交媒体上参与疫苗相关内容的个人比例,并通过在西班牙进行的基于互联网的人口调查来描述他们的人口统计和行为概况;(2)分析X (X Corp[以前的Twitter, Inc .]上西班牙语和加泰罗尼亚语帖子中与疫苗相关的情绪和观点,并使用人工智能对其进行地理定位。方法:采用两种互补的方法。首先,一项观察性研究于2021年在西班牙的成年人中通过自我管理的基于互联网的问卷进行。其次,我们分析了X在2021年3月至12月期间收集的西班牙语和加泰罗尼亚语帖子。情感分析使用Orange Data Mining(卢布尔雅那大学计算机与信息科学学院生物信息学实验室)开发的工作流程进行。地理定位基于用户定义的位置,并使用Microsoft Power Business Intelligence实现可视化。使用NodeXL Pro(社交媒体研究基金会)进行了社交网络分析,以确定和描述讨论疫苗的5个最大用户社区。虽然基于独立的数据源,但这两种方法提供了互补的方法见解。结果:在1312名调查对象中,85.7%(1124/1312)的人表示他们是社交网络的常规用户,66%(850/1287)的人表示他们在社交网络上遇到过反疫苗信息。其中,24.3%(205/845)对接受推荐的疫苗有疑虑,而在有疑虑的人中,13.3%(27/203)拒绝了卫生保健专业人员建议的至少一种疫苗。X上共有479,734篇西班牙语和加泰罗尼亚语帖子被分析,其中54.44% (n=261,183)的帖子被分类为负面,28.18% (n=135,194)的帖子被分类为中性,17.37% (n=83,357)的帖子被分类为正面。各地区的情绪各不相同,南美的负面情绪较多,欧洲的负面情绪较多,北美的正面情绪较多。通过对主题词和关键主题的分析,可以对5个研究小组的主要主题进行分组,即:(1)COVID-19大流行期间的疫苗接种工作,(2)疫苗盗窃问题以及在管理和确保疫苗供应方面的困难,(3)墨西哥州的疫苗接种运动,(4)老年人疫苗接种工作,以及(5)哥伦比亚为抗击COVID-19而开展的疫苗接种运动。结论:调查人群中抗疫苗暴露率较高。对社交网络X上的帖子进行情绪分析和地理定位后发现,被归类为负面的西班牙语帖子明显存在,主要来自南美洲。对关于X的对话进行专题分析,可以为了解民众对疫苗的看法提供有价值的见解。
{"title":"Mapping Vaccine Sentiment by Analyzing Spanish-Language Social Media Posts and Survey-Based Public Opinion: Dual Methods Study.","authors":"Agnes Huguet-Feixa, Wasim Ahmed, Eva Artigues-Barberà, Joaquim Sol, Xavier Gomez-Arbones, Pere Godoy, Marta Ortega Bravo","doi":"10.2196/63223","DOIUrl":"https://doi.org/10.2196/63223","url":null,"abstract":"<p><strong>Background: </strong>The internet and social media have been considered useful platforms for obtaining health information. However, critical and erroneous content about vaccines on social media has been associated with vaccination delays and refusal.</p><p><strong>Objective: </strong>This study aimed to examine how social networks influence access to and perceptions of vaccine-related information. We sought to (1) quantify the proportion of individuals engaging with vaccine-related content on social media and to characterize their demographic and behavioral profiles through an internet-based population survey conducted in Spain and (2) to analyze vaccine-related sentiments and opinions in Spanish and Catalan posts on X (X Corp [formerly Twitter, Inc] and geolocate them using artificial intelligence.</p><p><strong>Methods: </strong>Two complementary methodologies were applied. First, an observational study was conducted via a self-administered internet-based questionnaire among adults in Spain in 2021. Second, we analyzed Spanish- and Catalan-language posts from X, collected between March and December 2021. Sentiment analysis was performed using a workflow developed in Orange Data Mining (Bioinformatics Laboratory, Faculty of Computer and Information Science, University of Ljubljana). Geolocation was based on user-defined locations and visualized using Microsoft Power Business Intelligence. Social network analysis was conducted with NodeXL Pro (Social Media Research Foundation) to identify and characterize the 5 largest user communities discussing vaccines. Although based on independent data sources, the 2 approaches provided complementary methodological insights.</p><p><strong>Results: </strong>Among the 1312 respondents in the survey, 85.7% (1124/1312) stated that they were regular social network users, and 66% (850/1287) reported having encountered antivaccine information on social networks. Of these, 24.3% (205/845) experienced doubts about receiving recommended vaccines, and out of those with doubts, 13.3% (27/203) refused at least 1 vaccine proposed by a health care professional. A total of 479,734 Spanish and Catalan posts on X were analyzed, with 54.44% (n=261,183) posts classified as negative, 28.18% (n=135,194) as neutral, and 17.37% (n=83,357) as positive. Sentiment varied across regions, with more negative posts appearing to derive from South America, with a mix in Europe and more positive posts in North America. Analysis of the topic words and key themes allowed the grouping of the predominant themes of the 5 study groups, which were (1) vaccination efforts during the COVID-19 pandemic, (2) issues of vaccine theft and struggles in managing and securing the vaccine supply, (3) campaigns in the State of Mexico, (4) vaccination efforts for older adults, and (5) the vaccination campaign in Colombia to combat COVID-19.</p><p><strong>Conclusions: </strong>High proportions of exposure to antivaccine content were reported by the su","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e63223"},"PeriodicalIF":2.3,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12400125/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144981280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elin Nilsson, Emma Oljans, Anna-Carin Nordvall, Mirko Ancillotti
Background: Antimicrobial resistance (AMR) is a major global health issue heavily influenced by human behavior. Effective communication and awareness-raising are crucial in curbing AMR, with social network sites (SNSs) significantly shaping health behaviors. Despite their potential, current analyses of AMR on SNSs have focused mainly on top-down communication initiatives.
Objective: This study aims to examine AMR on Instagram (Meta Platforms), identifying key actors, content themes, and the nature of the communication to understand how AMR is portrayed and perceived.
Methods: Based on the sender-message-channel-receiver model, this study used content analysis to review publicly accessible posts on Instagram. The data refer to 24 months, focusing on the hashtag "#antibioticresistance." After cleaning the data, 610 posts (10% of the total 6105) were analyzed.
Results: Content creators were predominantly information drivers or professionals in science and health. Posts frequently featured text-dominated visuals or images of bacteria and laboratory tests. However, the AMR posts were found to be siloed, with limited engagement beyond specific interest groups. The study highlighted the neutrality and accuracy of the content but noted the challenge of reaching a broader audience.
Conclusions: While Instagram serves as a platform for accurate and informative AMR communication, the post of it remains confined to niche groups, limiting its broader impact. To enhance engagement, AMR discussions should be integrated into more general interest content, use visually compelling formats, and encourage institutional participation and interactive user engagement.
{"title":"Communicating Antimicrobial Resistance on Instagram: Content Analysis of #AntibioticResistance.","authors":"Elin Nilsson, Emma Oljans, Anna-Carin Nordvall, Mirko Ancillotti","doi":"10.2196/67825","DOIUrl":"https://doi.org/10.2196/67825","url":null,"abstract":"<p><strong>Background: </strong>Antimicrobial resistance (AMR) is a major global health issue heavily influenced by human behavior. Effective communication and awareness-raising are crucial in curbing AMR, with social network sites (SNSs) significantly shaping health behaviors. Despite their potential, current analyses of AMR on SNSs have focused mainly on top-down communication initiatives.</p><p><strong>Objective: </strong>This study aims to examine AMR on Instagram (Meta Platforms), identifying key actors, content themes, and the nature of the communication to understand how AMR is portrayed and perceived.</p><p><strong>Methods: </strong>Based on the sender-message-channel-receiver model, this study used content analysis to review publicly accessible posts on Instagram. The data refer to 24 months, focusing on the hashtag \"#antibioticresistance.\" After cleaning the data, 610 posts (10% of the total 6105) were analyzed.</p><p><strong>Results: </strong>Content creators were predominantly information drivers or professionals in science and health. Posts frequently featured text-dominated visuals or images of bacteria and laboratory tests. However, the AMR posts were found to be siloed, with limited engagement beyond specific interest groups. The study highlighted the neutrality and accuracy of the content but noted the challenge of reaching a broader audience.</p><p><strong>Conclusions: </strong>While Instagram serves as a platform for accurate and informative AMR communication, the post of it remains confined to niche groups, limiting its broader impact. To enhance engagement, AMR discussions should be integrated into more general interest content, use visually compelling formats, and encourage institutional participation and interactive user engagement.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e67825"},"PeriodicalIF":2.3,"publicationDate":"2025-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12367282/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144981322","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jason Dean-Chen Yin, Tzu-Chin Wu, Chia-Yun Chen, Fen Lin, Xiaohui Wang
Background: Prevalence and spread of misinformation are a concern for the exacerbation of vaccine hesitancy and a resulting reduction in vaccine intent. However, few studies have focused on how vaccine misinformation diffuses online, who is responsible for the diffusion, and the mechanisms by which that happens. In addition, researchers have rarely investigated this in non-Western contexts particularly vulnerable to misinformation.
Objective: This study aims to identify COVID-19 vaccine misinformation, map its diffusion, and identify the effect of echo chamber users on misinformation diffusion on a Taiwanese online forum.
Methods: The study uses data from a popular forum in Taiwan called PTT. A crawler scraped all threads on the most popular subforum from January 2021 until December 2022. Vaccine-related threads were identified through keyword searching (n=5818). Types of misinformation, including misleading, disinformation, conspiracy, propaganda, and fabricated content, were coded by 2 researchers. Polarity was proposed as a proxy for measuring an individual's level of involvement in the echo chamber, one of the mechanisms responsible for the viral misinformation on social media. Factors related to information diffusion, including misinformation type and polarity, were then assessed with negative binomial regression.
Results: Of 5818 threads, 3830 (65.8%) were identified as true information, and 1601 (27.5%) contained misinformation, yielding 5431 boards for analysis. Misinformation content did not vary much from other contexts. Propaganda-related information was most likely to be reposted (relative risk: 2.07; P<.001) when comparing to true information. However, the more polarized a user was, the less likely his or her content was to be reposted (relative risk: 0.22; P<.001). By removing the nodes with a high level of indegree, outdegree, and betweenness centrality, we found that the core network and the entire network demonstrated a decreasing trend in average polarity score, which showed that influential users contributed to the polarization in misinformation consumption.
Conclusions: Although the forum exhibits a resilience to echo chambering, active users and brokers contribute significantly to the polarization of the community, particularly through propaganda-style misinformation. This popularity of propaganda-style misinformation may be linked to the political nature of the forum, where public opinion follows "elite cues" on issues, as observed in the United States. The work in this study corroborates this finding and contributes a data point in a non-Western context. To manage the echo chambering of misinformation, more effort can be put into moderating these users to prevent polarization and the spread of misinformation to prevent growing vaccine hesitancy.
{"title":"The Role of Influencers and Echo Chambers in the Diffusion of Vaccine Misinformation: Opinion Mining in a Taiwanese Online Community.","authors":"Jason Dean-Chen Yin, Tzu-Chin Wu, Chia-Yun Chen, Fen Lin, Xiaohui Wang","doi":"10.2196/57951","DOIUrl":"10.2196/57951","url":null,"abstract":"<p><strong>Background: </strong>Prevalence and spread of misinformation are a concern for the exacerbation of vaccine hesitancy and a resulting reduction in vaccine intent. However, few studies have focused on how vaccine misinformation diffuses online, who is responsible for the diffusion, and the mechanisms by which that happens. In addition, researchers have rarely investigated this in non-Western contexts particularly vulnerable to misinformation.</p><p><strong>Objective: </strong>This study aims to identify COVID-19 vaccine misinformation, map its diffusion, and identify the effect of echo chamber users on misinformation diffusion on a Taiwanese online forum.</p><p><strong>Methods: </strong>The study uses data from a popular forum in Taiwan called PTT. A crawler scraped all threads on the most popular subforum from January 2021 until December 2022. Vaccine-related threads were identified through keyword searching (n=5818). Types of misinformation, including misleading, disinformation, conspiracy, propaganda, and fabricated content, were coded by 2 researchers. Polarity was proposed as a proxy for measuring an individual's level of involvement in the echo chamber, one of the mechanisms responsible for the viral misinformation on social media. Factors related to information diffusion, including misinformation type and polarity, were then assessed with negative binomial regression.</p><p><strong>Results: </strong>Of 5818 threads, 3830 (65.8%) were identified as true information, and 1601 (27.5%) contained misinformation, yielding 5431 boards for analysis. Misinformation content did not vary much from other contexts. Propaganda-related information was most likely to be reposted (relative risk: 2.07; P<.001) when comparing to true information. However, the more polarized a user was, the less likely his or her content was to be reposted (relative risk: 0.22; P<.001). By removing the nodes with a high level of indegree, outdegree, and betweenness centrality, we found that the core network and the entire network demonstrated a decreasing trend in average polarity score, which showed that influential users contributed to the polarization in misinformation consumption.</p><p><strong>Conclusions: </strong>Although the forum exhibits a resilience to echo chambering, active users and brokers contribute significantly to the polarization of the community, particularly through propaganda-style misinformation. This popularity of propaganda-style misinformation may be linked to the political nature of the forum, where public opinion follows \"elite cues\" on issues, as observed in the United States. The work in this study corroborates this finding and contributes a data point in a non-Western context. To manage the echo chambering of misinformation, more effort can be put into moderating these users to prevent polarization and the spread of misinformation to prevent growing vaccine hesitancy.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e57951"},"PeriodicalIF":2.3,"publicationDate":"2025-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12360728/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144877147","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sonya Hilberts, Mark Govers, Elena Petelos, Silvia Evers
<p><strong>Background: </strong>Misinformation on social media during natural disasters has become a significant challenge, with the potential to increase public confusion, panic, and distrust. Although individuals rely on social media platforms for timely updates during crises, these platforms also facilitate the rapid spread of unverified and misleading information. Consequently, misinformation can hamper emergency response efforts, misdirect resources, and distort public perception of the disaster's true severity.</p><p><strong>Objective: </strong>This narrative review aims to (1) critically evaluate the available evidence; (2) unpack the dynamics of misinformation on social media in the context of natural disasters, specifically natural hazards, shedding light on the challenges, implications, and potential solutions; and (3) develop a conceptual model linking misinformation, public impact, and disasters, grounded in sourced evidence.</p><p><strong>Methods: </strong>The narrative review examines the impact of social media misinformation in the context of natural disasters. The literature search was conducted using the PubMed database and Google Scholar in April 2024. Studies eligible for inclusion were published in English, with no restrictions on publication date, geographic region, or target population. The inclusion criteria focused on the original research that examined social media misinformation related to natural disasters, specifically natural hazards.</p><p><strong>Results: </strong>From an initial pool of 173 studies, 9 studies met the inclusion criteria for this review. The selected studies revealed consistent patterns in how misinformation spreads during natural disasters, highlighting the role of users, some influencers, and bots in amplified false narratives. The misleading messages disseminated across social media platforms often outpaced official communications, resulting in reduced trust and exacerbating anxiety, stress, and fear among affected populations. This heightened emotional response and erosion of trust in official communications influenced an individual's susceptibility to the misinformation and prompted inappropriate actions. Consequently, such actions led to resource misallocation, overwhelmed emergency services, and diverted attention away from genuine needs. Collectively, these factors negatively impacted public health outcomes and diminished the effectiveness of emergency management efforts, as illustrated in the conceptual model developed to provide a greater understanding of this critical area of study.</p><p><strong>Conclusions: </strong>This narrative review highlights the significant impact of misinformation in the context of natural disasters, specifically natural hazards. It stresses the urgent need for disaster preparedness and response plans that include targeted interventions such as real-time misinformation detection technologies, public education campaigns focused on digital literacy, and proactive d
{"title":"The Impact of Misinformation on Social Media in the Context of Natural Disasters: Narrative Review.","authors":"Sonya Hilberts, Mark Govers, Elena Petelos, Silvia Evers","doi":"10.2196/70413","DOIUrl":"10.2196/70413","url":null,"abstract":"<p><strong>Background: </strong>Misinformation on social media during natural disasters has become a significant challenge, with the potential to increase public confusion, panic, and distrust. Although individuals rely on social media platforms for timely updates during crises, these platforms also facilitate the rapid spread of unverified and misleading information. Consequently, misinformation can hamper emergency response efforts, misdirect resources, and distort public perception of the disaster's true severity.</p><p><strong>Objective: </strong>This narrative review aims to (1) critically evaluate the available evidence; (2) unpack the dynamics of misinformation on social media in the context of natural disasters, specifically natural hazards, shedding light on the challenges, implications, and potential solutions; and (3) develop a conceptual model linking misinformation, public impact, and disasters, grounded in sourced evidence.</p><p><strong>Methods: </strong>The narrative review examines the impact of social media misinformation in the context of natural disasters. The literature search was conducted using the PubMed database and Google Scholar in April 2024. Studies eligible for inclusion were published in English, with no restrictions on publication date, geographic region, or target population. The inclusion criteria focused on the original research that examined social media misinformation related to natural disasters, specifically natural hazards.</p><p><strong>Results: </strong>From an initial pool of 173 studies, 9 studies met the inclusion criteria for this review. The selected studies revealed consistent patterns in how misinformation spreads during natural disasters, highlighting the role of users, some influencers, and bots in amplified false narratives. The misleading messages disseminated across social media platforms often outpaced official communications, resulting in reduced trust and exacerbating anxiety, stress, and fear among affected populations. This heightened emotional response and erosion of trust in official communications influenced an individual's susceptibility to the misinformation and prompted inappropriate actions. Consequently, such actions led to resource misallocation, overwhelmed emergency services, and diverted attention away from genuine needs. Collectively, these factors negatively impacted public health outcomes and diminished the effectiveness of emergency management efforts, as illustrated in the conceptual model developed to provide a greater understanding of this critical area of study.</p><p><strong>Conclusions: </strong>This narrative review highlights the significant impact of misinformation in the context of natural disasters, specifically natural hazards. It stresses the urgent need for disaster preparedness and response plans that include targeted interventions such as real-time misinformation detection technologies, public education campaigns focused on digital literacy, and proactive d","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e70413"},"PeriodicalIF":2.3,"publicationDate":"2025-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12313155/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144762514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Julina Maharjan, Ruoming Jin, Jennifer King, Jianfeng Zhu, Deric Kenne
Background: User demographics are often hidden in social media data due to privacy concerns. However, demographic information on substance use (SU) can provide valuable insights, allowing public health policy makers to focus on specific cohorts and develop efficient prevention strategies, especially during global crises such as the COVID-19 pandemic.
Objective: This study aimed to analyze SU trends at the user level across different demographic dimensions, such as age, gender, race, and ethnicity, with a focus on the COVID-19 pandemic. The study also establishes a baseline for SU trends using social media data.
Methods: The study was conducted using large-scale English-language data from Twitter (now known as X) over a 3-year period (2019, 2020, and 2021), comprising 1.13 billion posts. Following preprocessing, the SU posts were identified using our custom-trained deep learning model (Robustly Optimized Bidirectional Encoder Representations From Transformers Pretraining Approach [RoBERTa]), which resulted in the identification of 9 million SU posts. Then, demographic attributes, such as user type, age, gender, race, and ethnicity, as well as sentiments and emotions associated with each post, were extracted via a collection of natural language processing modules. Finally, various qualitative analyses were performed to obtain insight into user behaviors based on demographics.
Results: The highest level of user participation in SU discussions was observed in 2020, with a 22.18% increase compared to 2019 and a 25.24% increase compared to 2021. Throughout the study period, male users and teenagers increasingly dominated the SU discussions across all substance types. During the COVID-19 pandemic, user participation in prescription medication discussions was notably higher among female users compared to other substance types. In addition, alcohol use increased by 80% within 2 weeks after the global pandemic declaration in 2020.
Conclusions: This study presents a large-scale, fine-grained analysis of SU on social media data, examining trends by age, gender, race, and ethnicity before, during, and after the COVID-19 pandemic. Our findings, contextualized with sociocultural and pandemic-specific factors, provide actionable insights for targeted public health interventions. This study establishes social media data (powered with artificial intelligence and natural language processing tools) as a valuable platform for real-time SU surveillance and prevention during crises.
{"title":"Differential Analysis of Age, Gender, Race, Sentiment, and Emotion in Substance Use Discourse on Twitter During the COVID-19 Pandemic: A Natural Language Processing Approach.","authors":"Julina Maharjan, Ruoming Jin, Jennifer King, Jianfeng Zhu, Deric Kenne","doi":"10.2196/67333","DOIUrl":"10.2196/67333","url":null,"abstract":"<p><strong>Background: </strong>User demographics are often hidden in social media data due to privacy concerns. However, demographic information on substance use (SU) can provide valuable insights, allowing public health policy makers to focus on specific cohorts and develop efficient prevention strategies, especially during global crises such as the COVID-19 pandemic.</p><p><strong>Objective: </strong>This study aimed to analyze SU trends at the user level across different demographic dimensions, such as age, gender, race, and ethnicity, with a focus on the COVID-19 pandemic. The study also establishes a baseline for SU trends using social media data.</p><p><strong>Methods: </strong>The study was conducted using large-scale English-language data from Twitter (now known as X) over a 3-year period (2019, 2020, and 2021), comprising 1.13 billion posts. Following preprocessing, the SU posts were identified using our custom-trained deep learning model (Robustly Optimized Bidirectional Encoder Representations From Transformers Pretraining Approach [RoBERTa]), which resulted in the identification of 9 million SU posts. Then, demographic attributes, such as user type, age, gender, race, and ethnicity, as well as sentiments and emotions associated with each post, were extracted via a collection of natural language processing modules. Finally, various qualitative analyses were performed to obtain insight into user behaviors based on demographics.</p><p><strong>Results: </strong>The highest level of user participation in SU discussions was observed in 2020, with a 22.18% increase compared to 2019 and a 25.24% increase compared to 2021. Throughout the study period, male users and teenagers increasingly dominated the SU discussions across all substance types. During the COVID-19 pandemic, user participation in prescription medication discussions was notably higher among female users compared to other substance types. In addition, alcohol use increased by 80% within 2 weeks after the global pandemic declaration in 2020.</p><p><strong>Conclusions: </strong>This study presents a large-scale, fine-grained analysis of SU on social media data, examining trends by age, gender, race, and ethnicity before, during, and after the COVID-19 pandemic. Our findings, contextualized with sociocultural and pandemic-specific factors, provide actionable insights for targeted public health interventions. This study establishes social media data (powered with artificial intelligence and natural language processing tools) as a valuable platform for real-time SU surveillance and prevention during crises.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e67333"},"PeriodicalIF":2.3,"publicationDate":"2025-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12340460/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144735900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Amrutha S Alibilli, Vidur Jain, Heran Mane, Xiaohe Yue, Alexandria Ratzki-Leewing, Junaid S Merchant, Shaniece Criss, Quynh C Nguyen, Rozalina G McCoy, Thu T Nguyen
Background: In recent years, there has been a dramatic increase in the popularity and use of glucagon-like peptide-1 receptor agonists (GLP-1 RAs) for weight loss. As such, it is essential to understand users' real-world discussions of short-term, long-term, and co-occurrent adverse events associated with currently used GLP-1 RA medications.
Objective: This study aims to quantitatively analyze temporal and co-occurrent GLP-1 RA adverse event trends through discussions of GLP-1 RA weight loss medications on Facebook from 2022 to 2024.
Methods: We collected 64,202 Facebook posts (59,293 posts after removing duplicate posts) from January 1, 2022, to May 31, 2024, through CrowdTangle, a public insights tool from Meta. Using English language social media posts from the United States, we examined discussions of adverse event mentions for posts referencing 7 GLP-1 RA weight loss product categories (ie, semaglutide, Ozempic, Wegovy, tirzepatide, Mounjaro, Zepbound, and GLP-1 RA as a class). All analyses were conducted using Python (version 3; Python Software Foundation) in a Google Colab environment.
Results: Temporal time series analysis revealed that the GLP-1 RAs' adverse event mentions on social media aligned with several key events: the Food and Drug Administration's approval of Wegovy for pediatric weight management in December 2022, increased media coverage in August 2023, celebrity endorsement in December 2023, and Medicare Part D coverage expansion for weight loss medications in March 2024. Gastrointestinal (GI)-related adverse events (general term) were most prevalent for posts mentioning the GLP-1 RA class (210/4885, 4.30%) and Mounjaro (241/4031, 5.98%). In contrast, the most prevalent adverse event mentions noted for tirzepatide were headache (78/4202, 1.86%) and joint pain (71/4202, 1.69%). Hypertension (13/1769, 0.73%) was frequently mentioned in Zepbound posts, while pancreatitis was commonly associated with Mounjaro posts (44/4031, 1.08%), and 2.85% (139/4885) of posts broadly referring to the GLP-1 RA class. Furthermore, an integrated node network analysis revealed 3 distinct GLP-1 RA adverse events-mentioned clusters: cluster 1 (purple) contained allergies, anxiety, depression, chronic obstructive pulmonary disease, fatigue, fever, hypertension, indigestion, insomnia, gastroesophageal reflux disease, hives, swelling, restlessness, and seizures. Cluster 2 (pink) contained constipation, dehydration, headache, diarrhea, dizziness, hypoglycemia, sweating, and jaundice. Cluster 3 (brown) contained GI symptoms, such as nausea, pancreatitis, rash, and vomiting. The GI symptoms, such as nausea, vomiting, pancreatitis, diarrhea, and indigestion, were strongly associated together (≥100 co-occurrence mentions), while the mentioned neurological symptoms, such as anxiety, depression, and insomnia, were highly correlated with each other (50-100 co-occurrence men
{"title":"Harnessing Facebook to Investigate Real-World Mentions of Adverse Events of Glucagon-Like Peptide-1 Receptor Agonist (GLP-1 RA) Medications: Observational Study of Facebook Posts From 2022 to 2024.","authors":"Amrutha S Alibilli, Vidur Jain, Heran Mane, Xiaohe Yue, Alexandria Ratzki-Leewing, Junaid S Merchant, Shaniece Criss, Quynh C Nguyen, Rozalina G McCoy, Thu T Nguyen","doi":"10.2196/73619","DOIUrl":"10.2196/73619","url":null,"abstract":"<p><strong>Background: </strong>In recent years, there has been a dramatic increase in the popularity and use of glucagon-like peptide-1 receptor agonists (GLP-1 RAs) for weight loss. As such, it is essential to understand users' real-world discussions of short-term, long-term, and co-occurrent adverse events associated with currently used GLP-1 RA medications.</p><p><strong>Objective: </strong>This study aims to quantitatively analyze temporal and co-occurrent GLP-1 RA adverse event trends through discussions of GLP-1 RA weight loss medications on Facebook from 2022 to 2024.</p><p><strong>Methods: </strong>We collected 64,202 Facebook posts (59,293 posts after removing duplicate posts) from January 1, 2022, to May 31, 2024, through CrowdTangle, a public insights tool from Meta. Using English language social media posts from the United States, we examined discussions of adverse event mentions for posts referencing 7 GLP-1 RA weight loss product categories (ie, semaglutide, Ozempic, Wegovy, tirzepatide, Mounjaro, Zepbound, and GLP-1 RA as a class). All analyses were conducted using Python (version 3; Python Software Foundation) in a Google Colab environment.</p><p><strong>Results: </strong>Temporal time series analysis revealed that the GLP-1 RAs' adverse event mentions on social media aligned with several key events: the Food and Drug Administration's approval of Wegovy for pediatric weight management in December 2022, increased media coverage in August 2023, celebrity endorsement in December 2023, and Medicare Part D coverage expansion for weight loss medications in March 2024. Gastrointestinal (GI)-related adverse events (general term) were most prevalent for posts mentioning the GLP-1 RA class (210/4885, 4.30%) and Mounjaro (241/4031, 5.98%). In contrast, the most prevalent adverse event mentions noted for tirzepatide were headache (78/4202, 1.86%) and joint pain (71/4202, 1.69%). Hypertension (13/1769, 0.73%) was frequently mentioned in Zepbound posts, while pancreatitis was commonly associated with Mounjaro posts (44/4031, 1.08%), and 2.85% (139/4885) of posts broadly referring to the GLP-1 RA class. Furthermore, an integrated node network analysis revealed 3 distinct GLP-1 RA adverse events-mentioned clusters: cluster 1 (purple) contained allergies, anxiety, depression, chronic obstructive pulmonary disease, fatigue, fever, hypertension, indigestion, insomnia, gastroesophageal reflux disease, hives, swelling, restlessness, and seizures. Cluster 2 (pink) contained constipation, dehydration, headache, diarrhea, dizziness, hypoglycemia, sweating, and jaundice. Cluster 3 (brown) contained GI symptoms, such as nausea, pancreatitis, rash, and vomiting. The GI symptoms, such as nausea, vomiting, pancreatitis, diarrhea, and indigestion, were strongly associated together (≥100 co-occurrence mentions), while the mentioned neurological symptoms, such as anxiety, depression, and insomnia, were highly correlated with each other (50-100 co-occurrence men","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e73619"},"PeriodicalIF":2.3,"publicationDate":"2025-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12289294/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144710087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: Stroke has become a leading cause of death and disability worldwide, resulting in a significant loss of healthy life years and imposing a considerable economic burden on patients, their families, and caregivers. However, despite the growing role of online videos as an emerging source of health information, the credibility and quality of stroke prevention education videos, especially those in Chinese, remain unclear.
Objective: This study aims to assess the basic characteristics, overall quality, and reliability of Chinese-language online videos related to public health education on stroke prevention.
Methods: We systematically searched and screened stroke prevention-related video resources from 4 popular Chinese domestic video platforms (Bilibili, Douyin, Haokan, and Xigua). General information, including upload date, duration, views, likes, comments, and shares, was extracted and recorded. Two validated evaluation tools were used: the modified DISCERN questionnaire to assess content reliability and the Global Quality Scale (GQS) to evaluate overall quality. Finally, Spearman correlation analysis was conducted to examine potential associations between general video metrics and their quality and reliability.
Results: After searching and screening, a total of 313 eligible videos were included for analysis: 68 from Bilibili, 74 from Douyin, 86 from Haokan, and 85 from Xigua. Among these, 113 (36.1%) were created by health care professionals, followed by news agencies (n=95, 30.4%) and general individual users (n=40, 12.8%). The median scores for the modified DISCERN and GQS were 2 and 3, respectively, suggesting that the included stroke prevention-related videos were relatively unreliable and of moderate quality. Most videos focused on primary stroke prevention and commonly recommended adopting a healthy diet; engaging in physical activity; and managing blood pressure, glucose, and lipid levels. Additionally, videos with longer durations and more comments tended to be more reliable and of higher quality. A positive association was also observed between video quality and reliability.
Conclusions: Overall, the quality and reliability of Chinese-language online videos as a source of stroke prevention information remain unsatisfactory and should be approached with caution by viewers. To address this issue, several measures should be implemented, including establishing an online monitoring and correction system, strengthening the video review process through collaboration with health care professionals, and encouraging more selective and cautious sharing of controversial content. These steps are essential to help curb the spread of online misinformation and minimize its ongoing impact.
{"title":"The Quality and Reliability of Online Videos as an Information Source of Public Health Education for Stroke Prevention in Mainland China: Electronic Media-Based Cross-Sectional Study.","authors":"Rongguang Ge, Haoyi Dai, Chicheng Gong, Yuhong Xia, Rui Wang, Jiaping Xu, Shoujiang You, Yongjun Cao","doi":"10.2196/64891","DOIUrl":"10.2196/64891","url":null,"abstract":"<p><strong>Background: </strong>Stroke has become a leading cause of death and disability worldwide, resulting in a significant loss of healthy life years and imposing a considerable economic burden on patients, their families, and caregivers. However, despite the growing role of online videos as an emerging source of health information, the credibility and quality of stroke prevention education videos, especially those in Chinese, remain unclear.</p><p><strong>Objective: </strong>This study aims to assess the basic characteristics, overall quality, and reliability of Chinese-language online videos related to public health education on stroke prevention.</p><p><strong>Methods: </strong>We systematically searched and screened stroke prevention-related video resources from 4 popular Chinese domestic video platforms (Bilibili, Douyin, Haokan, and Xigua). General information, including upload date, duration, views, likes, comments, and shares, was extracted and recorded. Two validated evaluation tools were used: the modified DISCERN questionnaire to assess content reliability and the Global Quality Scale (GQS) to evaluate overall quality. Finally, Spearman correlation analysis was conducted to examine potential associations between general video metrics and their quality and reliability.</p><p><strong>Results: </strong>After searching and screening, a total of 313 eligible videos were included for analysis: 68 from Bilibili, 74 from Douyin, 86 from Haokan, and 85 from Xigua. Among these, 113 (36.1%) were created by health care professionals, followed by news agencies (n=95, 30.4%) and general individual users (n=40, 12.8%). The median scores for the modified DISCERN and GQS were 2 and 3, respectively, suggesting that the included stroke prevention-related videos were relatively unreliable and of moderate quality. Most videos focused on primary stroke prevention and commonly recommended adopting a healthy diet; engaging in physical activity; and managing blood pressure, glucose, and lipid levels. Additionally, videos with longer durations and more comments tended to be more reliable and of higher quality. A positive association was also observed between video quality and reliability.</p><p><strong>Conclusions: </strong>Overall, the quality and reliability of Chinese-language online videos as a source of stroke prevention information remain unsatisfactory and should be approached with caution by viewers. To address this issue, several measures should be implemented, including establishing an online monitoring and correction system, strengthening the video review process through collaboration with health care professionals, and encouraging more selective and cautious sharing of controversial content. These steps are essential to help curb the spread of online misinformation and minimize its ongoing impact.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e64891"},"PeriodicalIF":2.3,"publicationDate":"2025-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12303359/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144683710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}