Pub Date : 2021-07-01DOI: 10.1097/OR9.0000000000000059
Sabina Vatter, N. Bartley, M. Best, I. Juraskova, C. Jacobs, M. Ballinger, David M. Thomas, P. Butow
Abstract Background: In order for genomic testing to fulfil its promise of helping cancer patients and survivors to prevent future disease, it is important to consider its behavioral impact and outcomes. This study explored the factors that participants perceived would impact lifestyle-related behavioral intentions following genome sequencing (GS). Methods: Individual semistructured interviews were conducted to explore behavioral intentions with a purposive subsample of 24 adults with a past or current cancer of likely heritable aetiology who undertook germline GS as part of a larger genetic study (RisC). Participants were interviewed 12 months following their consent to a longitudinal psychosocial sub-study of RisC (PiGeOn study), before receipt of results. Data were analyzed using thematic analysis. Results: Analysis revealed 3 main themes: past prompts, barriers, and motivators to behavior change. The primary goal for behavioral change was to be healthy for oneself and one's family. Past experience of cancer facilitated positive modifications to lifestyle, such as increased exercise and healthy diet, higher prioritization of mental health and well-being, and regular health check-ups and tests. Maintaining these changes, however, was difficult for some due to daily commitments and lack of self-control. Limited knowledge and perceived inevitability of developing cancer due to genetic predisposition were recognized as barriers to making lifestyle changes. Concurrently, future receipt of actionable results was perceived as a powerful driver of behavior change. Conclusion: Understanding barriers and facilitators to behavior intention and patients’ attitudes to recommended lifestyle change in the context of genomic testing can be useful for health care professionals, to guide their discussions of behavioral change.
{"title":"Does undertaking genome sequencing prompt actual and planned lifestyle-related behavior change in cancer patients and survivors? A qualitative study","authors":"Sabina Vatter, N. Bartley, M. Best, I. Juraskova, C. Jacobs, M. Ballinger, David M. Thomas, P. Butow","doi":"10.1097/OR9.0000000000000059","DOIUrl":"https://doi.org/10.1097/OR9.0000000000000059","url":null,"abstract":"Abstract Background: In order for genomic testing to fulfil its promise of helping cancer patients and survivors to prevent future disease, it is important to consider its behavioral impact and outcomes. This study explored the factors that participants perceived would impact lifestyle-related behavioral intentions following genome sequencing (GS). Methods: Individual semistructured interviews were conducted to explore behavioral intentions with a purposive subsample of 24 adults with a past or current cancer of likely heritable aetiology who undertook germline GS as part of a larger genetic study (RisC). Participants were interviewed 12 months following their consent to a longitudinal psychosocial sub-study of RisC (PiGeOn study), before receipt of results. Data were analyzed using thematic analysis. Results: Analysis revealed 3 main themes: past prompts, barriers, and motivators to behavior change. The primary goal for behavioral change was to be healthy for oneself and one's family. Past experience of cancer facilitated positive modifications to lifestyle, such as increased exercise and healthy diet, higher prioritization of mental health and well-being, and regular health check-ups and tests. Maintaining these changes, however, was difficult for some due to daily commitments and lack of self-control. Limited knowledge and perceived inevitability of developing cancer due to genetic predisposition were recognized as barriers to making lifestyle changes. Concurrently, future receipt of actionable results was perceived as a powerful driver of behavior change. Conclusion: Understanding barriers and facilitators to behavior intention and patients’ attitudes to recommended lifestyle change in the context of genomic testing can be useful for health care professionals, to guide their discussions of behavioral change.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"41 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87350226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-07-01DOI: 10.1097/OR9.0000000000000058
Mohamad Baydoun, M. Speca, J. Taylor-Brown, J. Stephen, K. Piedalue, Jill A. Turner, L. Carlson
Abstract Background: Online support groups are one forum that can help breast cancer survivors cope with negative mood states, but little is known about their effects compared to self-administered psycho-educational interventions. This randomized controlled trial compared the effects of synchronous, text-based professionally led online support groups (OSGs) plus a psychoeducational coping skills training program, called Nucare, versus Nucare alone in distressed survivors of breast cancer. Methods: Consented participants were randomized to an OSG (90-minute once-weekly session for 12 weeks) plus home-based Nucare or a self-directed home-based Nucare intervention alone. The primary outcome was the Profile of Mood States-Short Form – Total Mood Disturbance score (POMS-TMD). Secondary outcomes included measures of anxiety, depression, coping, illness intrusiveness, and loneliness. Outcomes were measured before and after the intervention, and 3 months post-intervention (follow-up). Results: One hundred twenty-five stage I–III breast cancer survivors enrolled with a mean age of 53 years (OSG plus Nucare [n = 68]; Nucare alone [n = 57]). There was a significant improvement in POMS-TMD scores among the entire study sample during the intervention period (Cohen's d = 0.25, P = .002), which was maintained over follow-up. The group × time interactions on POMS-TMD over the intervention and follow-up periods were not significant (all Ps > .05), indicating neither group outperformed the other. Group x time interactions on three coping domains (positive reframing, use of instrumental support, self-blame) favored Nucare alone over OSG plus Nucare during the intervention period (Cohen's d ranged from 0.40 to 0.48), while group x time interactions over the follow-up period favored OSG plus Nucare over Nucare alone on loneliness (Cohen's d = 0.34) and one coping domain (self-blame) (Cohen's d = 0.58). Anxiety, depression, and illness intrusiveness were not significantly different between groups at any time point (all Ps > .05). Conclusion: OSGs plus Nucare were not found superior to Nucare alone in improving mood disturbance. Mood improvement among the entire sample indicates that regular use of either Nucare alone or in combination with OSGs may have the potential to ameliorate negative mood states in breast cancer survivors.
{"title":"Comparing online support groups with psychoeducation versus psychoeducation alone for distressed breast cancer survivors: a randomized controlled trial","authors":"Mohamad Baydoun, M. Speca, J. Taylor-Brown, J. Stephen, K. Piedalue, Jill A. Turner, L. Carlson","doi":"10.1097/OR9.0000000000000058","DOIUrl":"https://doi.org/10.1097/OR9.0000000000000058","url":null,"abstract":"Abstract Background: Online support groups are one forum that can help breast cancer survivors cope with negative mood states, but little is known about their effects compared to self-administered psycho-educational interventions. This randomized controlled trial compared the effects of synchronous, text-based professionally led online support groups (OSGs) plus a psychoeducational coping skills training program, called Nucare, versus Nucare alone in distressed survivors of breast cancer. Methods: Consented participants were randomized to an OSG (90-minute once-weekly session for 12 weeks) plus home-based Nucare or a self-directed home-based Nucare intervention alone. The primary outcome was the Profile of Mood States-Short Form – Total Mood Disturbance score (POMS-TMD). Secondary outcomes included measures of anxiety, depression, coping, illness intrusiveness, and loneliness. Outcomes were measured before and after the intervention, and 3 months post-intervention (follow-up). Results: One hundred twenty-five stage I–III breast cancer survivors enrolled with a mean age of 53 years (OSG plus Nucare [n = 68]; Nucare alone [n = 57]). There was a significant improvement in POMS-TMD scores among the entire study sample during the intervention period (Cohen's d = 0.25, P = .002), which was maintained over follow-up. The group × time interactions on POMS-TMD over the intervention and follow-up periods were not significant (all Ps > .05), indicating neither group outperformed the other. Group x time interactions on three coping domains (positive reframing, use of instrumental support, self-blame) favored Nucare alone over OSG plus Nucare during the intervention period (Cohen's d ranged from 0.40 to 0.48), while group x time interactions over the follow-up period favored OSG plus Nucare over Nucare alone on loneliness (Cohen's d = 0.34) and one coping domain (self-blame) (Cohen's d = 0.58). Anxiety, depression, and illness intrusiveness were not significantly different between groups at any time point (all Ps > .05). Conclusion: OSGs plus Nucare were not found superior to Nucare alone in improving mood disturbance. Mood improvement among the entire sample indicates that regular use of either Nucare alone or in combination with OSGs may have the potential to ameliorate negative mood states in breast cancer survivors.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"18 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88182646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-07-01DOI: 10.1097/OR9.0000000000000060
S. Attieh, C. Loiselle
Abstract Background: Addressing the unmet needs of individuals with cancer in a timely manner is imperative for true implementation of person-centered care. Interactive health communication (ie, people's interactions with health information technologies) and more sustainable forms of support (eg, trained volunteers), are increasingly recognized as promising means to address the many barriers to accessing cancer-related support. This pilot study is timely as it tested an accessible cancer supportive approach that included e-handouts on 25 cancer distress-related topics and supportive phone calls by trained volunteers. The study objectives were to document participants’ preferences for the types of support offered, assess changes in distress pre and post, and determine the usability of the approach. Methods: Individuals with various types and stages of cancer (N = 88), diagnosed within the past 6 months were recruited from a university-affiliated cancer center in Montreal, Quebec, Canada. Participants completed the Cancer Support Community Distress measure at baseline, and they were prompted to request different types of support. Participants completed a follow-up questionnaire including the distress measure one to four weeks post support provision. Results: Of the 88 participants who filled out baseline questionnaires, 68 completed the follow up measures. Of the former, 76% (n = 67) made at least one request (e-handouts/phone calls/or both). The most frequently requested e-handout addressed pain/physical discomfort (37 requests) and phone calls were requested mostly for sleep problems (8 requests). Participants who requested both support modalities reported significantly lower distress [F (3,64) = 3.52, P = .02] at follow-up compared to those who made no requests. Ninety-two percent of participants who requested e-handouts reported that other patients would benefit from these. Participants who requested phone calls agreed or strongly agreed that volunteers were knowledgeable. The usability score was excellent (mean = 85.5/100; SD = 16.36). Conclusion: Preliminary findings indicate that this supportive approach is promising. Future work would document the differential contributions of supportive modalities that compare, for instance, professional versus lay (trained) support.
{"title":"Enhancing access to sustainable cancer supportive modalities: the roles of interactive health communication and trained volunteers","authors":"S. Attieh, C. Loiselle","doi":"10.1097/OR9.0000000000000060","DOIUrl":"https://doi.org/10.1097/OR9.0000000000000060","url":null,"abstract":"Abstract Background: Addressing the unmet needs of individuals with cancer in a timely manner is imperative for true implementation of person-centered care. Interactive health communication (ie, people's interactions with health information technologies) and more sustainable forms of support (eg, trained volunteers), are increasingly recognized as promising means to address the many barriers to accessing cancer-related support. This pilot study is timely as it tested an accessible cancer supportive approach that included e-handouts on 25 cancer distress-related topics and supportive phone calls by trained volunteers. The study objectives were to document participants’ preferences for the types of support offered, assess changes in distress pre and post, and determine the usability of the approach. Methods: Individuals with various types and stages of cancer (N = 88), diagnosed within the past 6 months were recruited from a university-affiliated cancer center in Montreal, Quebec, Canada. Participants completed the Cancer Support Community Distress measure at baseline, and they were prompted to request different types of support. Participants completed a follow-up questionnaire including the distress measure one to four weeks post support provision. Results: Of the 88 participants who filled out baseline questionnaires, 68 completed the follow up measures. Of the former, 76% (n = 67) made at least one request (e-handouts/phone calls/or both). The most frequently requested e-handout addressed pain/physical discomfort (37 requests) and phone calls were requested mostly for sleep problems (8 requests). Participants who requested both support modalities reported significantly lower distress [F (3,64) = 3.52, P = .02] at follow-up compared to those who made no requests. Ninety-two percent of participants who requested e-handouts reported that other patients would benefit from these. Participants who requested phone calls agreed or strongly agreed that volunteers were knowledgeable. The usability score was excellent (mean = 85.5/100; SD = 16.36). Conclusion: Preliminary findings indicate that this supportive approach is promising. Future work would document the differential contributions of supportive modalities that compare, for instance, professional versus lay (trained) support.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"3 1","pages":"e060"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45802130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-07-01DOI: 10.1097/or9.0000000000000055
Jami Fukui, Erin Bantum, Madison Meister, Shannon Lim, Ashley Davidson Marumoto, Ian Pagano
Background: Breast cancer is the most common cancer in women, and postoperative breast pain has been reported to be anywhere from 25% to 60%. However, there is sparse data regarding racial/ethnic differences in breast pain among breast cancer patients.
Methods: We performed a cross-sectional anonymous survey of breast cancer patients from the Hawaii Cancer Consortium over a 6-week period between 2019 and 2020. The 237 breast cancer participants were ages 29 to 98, 74% Asian, and mainly from outpatient oncology clinics. We evaluated the prevalence of breast pain in a diverse group of breast cancer patients and characterized the pain using a modified short-form McGill pain questionnaire (sfMPQ).
Results: Eighty-fourrespondents(35.4%) reported breast pain. On univariable analysis, we found significant racial/ethnic differences in the amount of breast pain, where Chinese and Japanese participants reported significantly less pain compared to White participants on a 10-point pain scale. We found differences in breast pain according to age and endocrine therapy use as well as survey location, however, no differences were seen according to chemotherapy, radiation, or breast surgery. Based on the sfMPQ, the most common descriptors of breast pain were sensory (throbbing, shooting, and stabbing) compared to affective (tiring-exhausting, sickening, fearful, and punishing-cruel) characteristics. Although they were described as mild and intermittent, in women with breast pain, 33.4% reported the breast pain affected their sleep, 16.7% their work, and 15.4% their sexual activity.
Conclusions: Breast pain is a significant problem in our breast cancer community. This survey assessment has informed our understanding of breast pain in our diverse population. In turn, we are developing culturally appropriate pain management strategies to treat this challenging symptom common in breast cancer survivors.
{"title":"A cross-sectional study of breast pain in a diverse population of breast cancer patients.","authors":"Jami Fukui, Erin Bantum, Madison Meister, Shannon Lim, Ashley Davidson Marumoto, Ian Pagano","doi":"10.1097/or9.0000000000000055","DOIUrl":"10.1097/or9.0000000000000055","url":null,"abstract":"<p><strong>Background: </strong>Breast cancer is the most common cancer in women, and postoperative breast pain has been reported to be anywhere from 25% to 60%. However, there is sparse data regarding racial/ethnic differences in breast pain among breast cancer patients.</p><p><strong>Methods: </strong>We performed a cross-sectional anonymous survey of breast cancer patients from the Hawaii Cancer Consortium over a 6-week period between 2019 and 2020. The 237 breast cancer participants were ages 29 to 98, 74% Asian, and mainly from outpatient oncology clinics. We evaluated the prevalence of breast pain in a diverse group of breast cancer patients and characterized the pain using a modified short-form McGill pain questionnaire (sfMPQ).</p><p><strong>Results: </strong>Eighty-fourrespondents(35.4%) reported breast pain. On univariable analysis, we found significant racial/ethnic differences in the amount of breast pain, where Chinese and Japanese participants reported significantly less pain compared to White participants on a 10-point pain scale. We found differences in breast pain according to age and endocrine therapy use as well as survey location, however, no differences were seen according to chemotherapy, radiation, or breast surgery. Based on the sfMPQ, the most common descriptors of breast pain were sensory (throbbing, shooting, and stabbing) compared to affective (tiring-exhausting, sickening, fearful, and punishing-cruel) characteristics. Although they were described as mild and intermittent, in women with breast pain, 33.4% reported the breast pain affected their sleep, 16.7% their work, and 15.4% their sexual activity.</p><p><strong>Conclusions: </strong>Breast pain is a significant problem in our breast cancer community. This survey assessment has informed our understanding of breast pain in our diverse population. In turn, we are developing culturally appropriate pain management strategies to treat this challenging symptom common in breast cancer survivors.</p>","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"3 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8389166/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39365948","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-06-01DOI: 10.1097/or9.0000000000000054
{"title":"IPOS 2021 Abstracts Booklet","authors":"","doi":"10.1097/or9.0000000000000054","DOIUrl":"https://doi.org/10.1097/or9.0000000000000054","url":null,"abstract":"","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"6 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73425240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-01DOI: 10.1097/OR9.0000000000000048
J. Stanić, J. Barth, Nadia Danon, G. Bondolfi, F. Jermann, M. Eicher
: Participant adherence to standardized 8-week mindfulness-based interventions (MBIs) may be challenging, and adaptations from intervention protocols have been reported in mindfulness research. We conducted a scoping review to determine how women with breast or gynecological cancer adhered to standardized 8-week MBIs delivered in intervention studies. Searches were conducted for articles published till February 2020 in PubMed, Embase, CINAHL EBSCO, PsycINFO Ovid SP, and Cochrane Library Wiley. The following outcomes were investigated: class and silent retreat attendance, intervention completion rate (ICR), adherence to home practice, and reasons for dropping out from an MBI study. Among the 25 included MBI studies, mindfulness-based stress reduction was the most often delivered intervention and mostly women with stage I–III breast cancer were represented. The duration of classes varied from 1.5 to 3.5 hours. Planned home practice varied from 20 to 60 min/day, and silent retreat varied from 4.5 to 8 hours. Due to heterogeneity in the reporting of class attendance, the data could not be pooled. Six studies reported an average class attendance ranging from 5 to 8.2 classes. Overall, intervention completion rate (the proportion who completed all classes) varied from 26.3% to 100%; however, discontinuations were not systematically reported. Home practice time was reported in 20% of the studies and ranged from 17 to 24 min/day. The main reasons for dropping out from an MBI study were health-related problems, organizational challenges, travel distance, and lack of motivation/commitment. About 70% of the studies reported some data on participant adherence, revealing a relatively high overall frequency of class attendance. However, the monitoring and reporting of participant adherence should be improved in future studies to increase our knowledge on the required amount of participant engagement to improve health outcomes Abstract Participant adherence to standardized 8-week mindfulness-based interventions (MBIs) may be challenging, and adaptations from intervention protocols have been reported in mindfulness research. We conducted a scoping review to determine how women with breast or gynecological cancer adhered to standardized 8-week MBIs delivered in intervention studies. Searches were conducted for articles published till February 2020 in PubMed, Embase, CINAHL EBSCO, PsycINFO Ovid SP, and Cochrane Library Wiley. The following outcomes were investigated: class and silent retreat attendance, intervention completion rate (ICR), adherence to home practice, and reasons for dropping out from an MBI study. Among the 25 included MBI studies, mindfulness-based stress reduction was the most often delivered intervention and mostly women with stage I – III breast cancer were represented. The duration of classes varied from 1.5 to 3.5hours. Planned home practice varied from 20 to 60min/day, and silent retreat varied from 4.5 to 8hours. Due to heterogeneity in the
{"title":"Adherence to standardized 8-week mindfulness-based interventions among women with breast or gynecological cancer: a scoping review","authors":"J. Stanić, J. Barth, Nadia Danon, G. Bondolfi, F. Jermann, M. Eicher","doi":"10.1097/OR9.0000000000000048","DOIUrl":"https://doi.org/10.1097/OR9.0000000000000048","url":null,"abstract":": Participant adherence to standardized 8-week mindfulness-based interventions (MBIs) may be challenging, and adaptations from intervention protocols have been reported in mindfulness research. We conducted a scoping review to determine how women with breast or gynecological cancer adhered to standardized 8-week MBIs delivered in intervention studies. Searches were conducted for articles published till February 2020 in PubMed, Embase, CINAHL EBSCO, PsycINFO Ovid SP, and Cochrane Library Wiley. The following outcomes were investigated: class and silent retreat attendance, intervention completion rate (ICR), adherence to home practice, and reasons for dropping out from an MBI study. Among the 25 included MBI studies, mindfulness-based stress reduction was the most often delivered intervention and mostly women with stage I–III breast cancer were represented. The duration of classes varied from 1.5 to 3.5 hours. Planned home practice varied from 20 to 60 min/day, and silent retreat varied from 4.5 to 8 hours. Due to heterogeneity in the reporting of class attendance, the data could not be pooled. Six studies reported an average class attendance ranging from 5 to 8.2 classes. Overall, intervention completion rate (the proportion who completed all classes) varied from 26.3% to 100%; however, discontinuations were not systematically reported. Home practice time was reported in 20% of the studies and ranged from 17 to 24 min/day. The main reasons for dropping out from an MBI study were health-related problems, organizational challenges, travel distance, and lack of motivation/commitment. About 70% of the studies reported some data on participant adherence, revealing a relatively high overall frequency of class attendance. However, the monitoring and reporting of participant adherence should be improved in future studies to increase our knowledge on the required amount of participant engagement to improve health outcomes Abstract Participant adherence to standardized 8-week mindfulness-based interventions (MBIs) may be challenging, and adaptations from intervention protocols have been reported in mindfulness research. We conducted a scoping review to determine how women with breast or gynecological cancer adhered to standardized 8-week MBIs delivered in intervention studies. Searches were conducted for articles published till February 2020 in PubMed, Embase, CINAHL EBSCO, PsycINFO Ovid SP, and Cochrane Library Wiley. The following outcomes were investigated: class and silent retreat attendance, intervention completion rate (ICR), adherence to home practice, and reasons for dropping out from an MBI study. Among the 25 included MBI studies, mindfulness-based stress reduction was the most often delivered intervention and mostly women with stage I – III breast cancer were represented. The duration of classes varied from 1.5 to 3.5hours. Planned home practice varied from 20 to 60min/day, and silent retreat varied from 4.5 to 8hours. Due to heterogeneity in the","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"120 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78553267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-01DOI: 10.1097/or9.0000000000000051
B. Bultz, L. Watson, Matthew Loscalzo, B. Kelly, J. Zabora
{"title":"From foundation to inspiration: implementing screening for distress (6th Vital Sign) for optimal cancer care—international leadership perspectives on program development","authors":"B. Bultz, L. Watson, Matthew Loscalzo, B. Kelly, J. Zabora","doi":"10.1097/or9.0000000000000051","DOIUrl":"https://doi.org/10.1097/or9.0000000000000051","url":null,"abstract":"","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"17 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82782969","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-01DOI: 10.1097/or9.0000000000000050
S. Bedoya, H. Battles, C. Gerhardt, L. Wiener
{"title":"The end-of-life trajectory in childhood cancer: Bereaved parents’ perceptions of the availability, use, and helpfulness of support services","authors":"S. Bedoya, H. Battles, C. Gerhardt, L. Wiener","doi":"10.1097/or9.0000000000000050","DOIUrl":"https://doi.org/10.1097/or9.0000000000000050","url":null,"abstract":"","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"53 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89792839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-17DOI: 10.1097/or9.0000000000000040
Adam J. Masa, Helena Martinez-Bredeck, Tamara L. Butler, Kate Anderson, A. Girgis, S. Aoun, J. Cunningham, C. Wakefield, Shaouli Shahid, A. Smith, G. Garvey
Background: Caregivers of Indigenous cancer survivors provide critical unpaid support to survivors, yet they rarely receive information or training for this role and may themselves bene fi t from support services. Little is documented about the experiences of caregivers of Indigenous cancer survivors. The aim of this systematic review was to identify and aggregate qualitative research describing the experiences of caregivers of Indigenous cancer survivors in Australia, New Zealand, Canada and the United States. Methods: We systematically searched PsycINFO, PubMed, CINAHL, Embase, Scopus and Web of Science using keywords relating to Indigenous populations; caregivers; and cancer. Data were extracted from original qualitative research articles published up to March 2020. Results: From 24 full-text articles, 14 articles from 13 studies were analyzed using meta-aggregation. This highlighted key caregiver experiences relating to: the need for information about cancer and services; providing and receiving support; communication challenges and responsibilities; balancing caregiver roles and emotions; and culturally unsafe health systems and settings. Caregivers of Indigenous cancer survivors often act as mediator between Western biomedical approaches to cancer care and Indigenous peoples ’ holistic and family-focused views of health and wellbeing, aiming to ensure that both health professionals and the cancer survivors understand each other ’ s perspectives and preferences for care. Caregivers expressed preferences for family-focussed rather than patient-focussed care. Culturally unsafe health care systems created barriers to optimal care. Conclusions: The fi ndings reveal caregivers ’ unique experiences of caring for an Indigenous cancer survivor, and identi fi es several unmet needs which should be appropriately and systematically addressed. Caregivers should be regarded as co-clients with their own needs as well as co-workers with health professionals providing cancer care. Ultimately supporting caregivers will contribute to improving health outcomes for Indigenous cancer survivors.
背景:土著癌症幸存者的照顾者为幸存者提供重要的无偿支持，但他们很少接受这一角色的信息或培训，他们自己也可能从支持服务中受益。关于土著癌症幸存者看护人的经历，文献记载甚少。本系统综述的目的是确定并汇总描述澳大利亚、新西兰、加拿大和美国土著癌症幸存者护理人员经历的定性研究。方法:系统地检索PsycINFO、PubMed、CINAHL、Embase、Scopus和Web of Science等与土著人群相关的关键词;护理人员;和癌症。数据提取自截至2020年3月发表的原始定性研究文章。结果:从24篇全文文章中，对13项研究的14篇文章进行meta-aggregation分析。这突出了与以下相关的关键护理人员经验:对癌症和服务信息的需求;提供和接受支持的;沟通挑战与责任;平衡照顾者的角色和情绪;以及文化上不安全的卫生系统和环境。土著癌症幸存者的照顾者经常充当西方生物医学癌症护理方法与土著人民整体和以家庭为中心的健康和福祉观之间的调解人，旨在确保卫生专业人员和癌症幸存者了解彼此对护理的观点和偏好。护理人员表示更倾向于以家庭为中心而不是以病人为中心的护理。文化上不安全的卫生保健系统为最佳护理创造了障碍。结论:研究结果揭示了照顾者照顾土著癌症幸存者的独特经历，并确定了几个未满足的需求，这些需求应该得到适当和系统的解决。护理人员应被视为具有自身需求的共同客户，以及提供癌症护理的卫生专业人员的同事。最终，支持护理人员将有助于改善土著癌症幸存者的健康结果。
{"title":"The experiences of caregivers of Indigenous cancer survivors in Australia, Canada, New Zealand, and the United States: a systematic review","authors":"Adam J. Masa, Helena Martinez-Bredeck, Tamara L. Butler, Kate Anderson, A. Girgis, S. Aoun, J. Cunningham, C. Wakefield, Shaouli Shahid, A. Smith, G. Garvey","doi":"10.1097/or9.0000000000000040","DOIUrl":"https://doi.org/10.1097/or9.0000000000000040","url":null,"abstract":"Background: Caregivers of Indigenous cancer survivors provide critical unpaid support to survivors, yet they rarely receive information or training for this role and may themselves bene fi t from support services. Little is documented about the experiences of caregivers of Indigenous cancer survivors. The aim of this systematic review was to identify and aggregate qualitative research describing the experiences of caregivers of Indigenous cancer survivors in Australia, New Zealand, Canada and the United States. Methods: We systematically searched PsycINFO, PubMed, CINAHL, Embase, Scopus and Web of Science using keywords relating to Indigenous populations; caregivers; and cancer. Data were extracted from original qualitative research articles published up to March 2020. Results: From 24 full-text articles, 14 articles from 13 studies were analyzed using meta-aggregation. This highlighted key caregiver experiences relating to: the need for information about cancer and services; providing and receiving support; communication challenges and responsibilities; balancing caregiver roles and emotions; and culturally unsafe health systems and settings. Caregivers of Indigenous cancer survivors often act as mediator between Western biomedical approaches to cancer care and Indigenous peoples ’ holistic and family-focused views of health and wellbeing, aiming to ensure that both health professionals and the cancer survivors understand each other ’ s perspectives and preferences for care. Caregivers expressed preferences for family-focussed rather than patient-focussed care. Culturally unsafe health care systems created barriers to optimal care. Conclusions: The fi ndings reveal caregivers ’ unique experiences of caring for an Indigenous cancer survivor, and identi fi es several unmet needs which should be appropriately and systematically addressed. Caregivers should be regarded as co-clients with their own needs as well as co-workers with health professionals providing cancer care. Ultimately supporting caregivers will contribute to improving health outcomes for Indigenous cancer survivors.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83030812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
During COVID-19 pandemic, how can cancer patients adjust their psychological status? In this article, some questions and suggestions are given to share. I listed some of negative emotions could happen on cancer patients and showed their harm and gave suggestions accordingly, especially in how to keep cancer patients in a healthy attitude during the difficult time.
{"title":"Psychological reactions and interventions to help Cancer patients cope during the COVID-19 pandemic in China.","authors":"Xiaohong Liu, Feng Liu, Fei Tong, Wanglian Peng, Minni Wen, Ran Zou, Lemeng Zhang, Ling Jiang, Hui Yang, Lili Yi, Xufen Huang","doi":"10.1097/OR9.0000000000000035","DOIUrl":"https://doi.org/10.1097/OR9.0000000000000035","url":null,"abstract":"<p><p>During COVID-19 pandemic, how can cancer patients adjust their psychological status? In this article, some questions and suggestions are given to share. I listed some of negative emotions could happen on cancer patients and showed their harm and gave suggestions accordingly, especially in how to keep cancer patients in a healthy attitude during the difficult time.</p>","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":" ","pages":"e35"},"PeriodicalIF":0.0,"publicationDate":"2020-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/OR9.0000000000000035","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39145647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
京公网安备 11010802042870号
京ICP备2023020795号-1
扫码关注我们
求助内容：
应助结果提醒方式：