Journal of psychosocial oncology research and practice最新文献

英文中文

Insights into the use of social comparisons within an advanced cancer setting 深入了解晚期癌症患者社会比较的使用

Journal of psychosocial oncology research and practice

Pub Date : 2019-08-21 DOI: 10.1097/OR9.0000000000000006

R. Starkings, V. Jenkins, V. Shilling

Background The PROACT (Patient Reported Outcomes in cancer, impact of Age and Carer role demands associated with Treatment) study had the primary aim of developing two scales measuring the impact of cancer on wellbeing and caregiving responsibilities, for people with cancer and the individuals supporting them. The project consisted of four consecutive studies; the first stage was the collection of qualitative narratives to understand the patient/caregiver experience. This paper reports on an incidental finding from these narratives. Methods The researchers conducted semi-structured interviews exploring participants’ views on the impact cancer had on their quality of life. They interviewed 24 people with stage III/IV cancer from three tumor groups, Lung (n=6), Melanoma (n=9) and Ovarian (n=9), and 23 informal caregivers. Interviews were recorded and transcribed verbatim and a framework was developed through open coding. A framework approach to thematic analysis was employed. Results Twenty themes and 33 sub-themes were identified including topics such as impact for caregiving and employment. There was an unplanned finding of participants recurrently using concepts of ‘luck’ or good fortune when describing their situations. While not a theme itself this narrative was present across the framework, occurring when individuals made comparisons to ‘other’ groups of people perceived as facing more difficulties. Conclusions This analysis provides insight into the use of language by both patients and informal caregivers in the advanced disease setting, laying the foundation for future research exploring any effects this has on dyadic wellbeing. These interpretations form a basis to explore whether this language can be harnessed by healthcare professionals to deliver information in line with an individual’s conceptualization of their situation.

PROACT(患者报告的癌症预后，年龄和护理人员角色需求与治疗相关的影响)研究的主要目的是开发两个测量癌症对癌症患者和支持他们的个人的健康和照顾责任的影响的量表。该项目包括四个连续的研究;第一阶段是收集定性叙述，以了解患者/护理者的经验。本文报告了这些叙述中的一个偶然发现。研究人员进行了半结构化访谈，探讨了参与者对癌症对其生活质量影响的看法。他们采访了24名III/IV期癌症患者，他们来自三个肿瘤组:肺癌(n=6)、黑色素瘤(n=9)和卵巢癌(n=9)，以及23名非正式护理人员。访谈被逐字记录和转录，并通过开放编码开发了一个框架。专题分析采用了框架方法。结果确定了20个主题和33个副主题，包括对护理和就业的影响等主题。有一个意外的发现是，参与者在描述他们的情况时反复使用“运气”或好运的概念。虽然这本身不是一个主题，但这种叙述在整个框架中都存在，当个体与被认为面临更多困难的“其他”群体进行比较时，就会发生这种情况。该分析提供了对晚期疾病环境中患者和非正式护理人员使用语言的见解，为未来研究探索这对二元健康的任何影响奠定了基础。这些解释形成了一个基础，以探索这种语言是否可以被医疗保健专业人员利用，以提供符合个人对其情况概念化的信息。

{"title":"Insights into the use of social comparisons within an advanced cancer setting","authors":"R. Starkings, V. Jenkins, V. Shilling","doi":"10.1097/OR9.0000000000000006","DOIUrl":"https://doi.org/10.1097/OR9.0000000000000006","url":null,"abstract":"Background \u0000The PROACT (Patient Reported Outcomes in cancer, impact of Age and Carer role demands associated with Treatment) study had the primary aim of developing two scales measuring the impact of cancer on wellbeing and caregiving responsibilities, for people with cancer and the individuals supporting them. The project consisted of four consecutive studies; the first stage was the collection of qualitative narratives to understand the patient/caregiver experience. This paper reports on an incidental finding from these narratives. \u0000 \u0000Methods \u0000The researchers conducted semi-structured interviews exploring participants’ views on the impact cancer had on their quality of life. They interviewed 24 people with stage III/IV cancer from three tumor groups, Lung (n=6), Melanoma (n=9) and Ovarian (n=9), and 23 informal caregivers. Interviews were recorded and transcribed verbatim and a framework was developed through open coding. A framework approach to thematic analysis was employed. \u0000 \u0000Results \u0000Twenty themes and 33 sub-themes were identified including topics such as impact for caregiving and employment. There was an unplanned finding of participants recurrently using concepts of ‘luck’ or good fortune when describing their situations. While not a theme itself this narrative was present across the framework, occurring when individuals made comparisons to ‘other’ groups of people perceived as facing more difficulties. \u0000 \u0000Conclusions \u0000This analysis provides insight into the use of language by both patients and informal caregivers in the advanced disease setting, laying the foundation for future research exploring any effects this has on dyadic wellbeing. These interpretations form a basis to explore whether this language can be harnessed by healthcare professionals to deliver information in line with an individual’s conceptualization of their situation.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"3 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78617690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Journal of Psychosocial Oncology Research and Practice welcome editorial 心理肿瘤研究与实践杂志欢迎社论

Journal of psychosocial oncology research and practice

Pub Date : 2019-07-01 DOI: 10.1097/or9.0000000000000001

L. Carlson, Brian Kelly

引用次数: 1

Pilot Study of Educational Interventions for Pediatric Hematopoietic Stem Cell Sibling Donors to Increase Knowledge of Donation and Transplantation Procedures. 儿童造血干细胞同胞献血者教育干预的试点研究，以增加捐赠和移植程序的知识。

Journal of psychosocial oncology research and practice

Pub Date : 2019-07-01 Epub Date: 2019-07-09 DOI: 10.1097/OR9.0000000000000004

Lori Wiener, Richard W Childs, Nirali N Shah

Background: Siblings are frequently identified as a tissue match for patients with malignant and nonmalignant diseases and are selected to donate hematopoietic stem cells (HSC). Research on preparing siblings donors for stem cell donation is limited. Even after donation procedures are explained, siblings have been found to have difficulty understanding the information and may experience anxiety, particularly amongst younger donors. No prospective studies examining educational tools and transplant knowledge in sibling stem cell donors are currently available. This pilot study assessed donor comprehension of HSC donation procedures and compared knowledge prior to and post an educational intervention.

Methods: Assessment of baseline knowledge regarding HSC donation was assessed before and after the consent/information meeting with the medical team. Donors were then stratified into 2 groups by age. Donors aged 10 to 15 played an adapted version of the therapeutic game ShopTalk and donors aged 16 to 25 were provided a workbook designed for sibling stem cell donors. Assessment of knowledge was repeated 24 hours after the intervention.

Results: Participants included 17 siblings of pediatric transplant recipients, ages 10-25. Mean knowledge scores increased from 59.6% to 68.8% following the meeting with the medical provider and further increased to 88.5% after an educational intervention. Results suggest that education that provides information via a game or workbook increases knowledge in sibling donors.

Conclusion: Limited interactive educational material on stem cell donation is available for pediatric HSC donors. Additional visual and/or interactive information for sibling donors may increase knowledge and perhaps comfort with the donation process, beyond that which is provided by the medical teams. Providing detailed information about donation and discussion of procedures should be tailored to the individual learning style and supplemented with additional visual information.

背景:兄弟姐妹经常被确定为恶性和非恶性疾病患者的组织匹配，并被选择捐献造血干细胞(HSC)。为干细胞捐赠准备兄弟姐妹供体的研究是有限的。即使在解释了捐赠程序之后，兄弟姐妹也很难理解这些信息，并且可能会感到焦虑，尤其是在年轻的捐赠者中。目前还没有前瞻性研究检查教育工具和兄弟姐妹干细胞供者的移植知识。这项初步研究评估了捐赠者对HSC捐赠程序的理解，并比较了教育干预前后的知识。方法:在与医疗团队的同意/信息会议前后评估关于HSC捐献的基线知识。然后将供体按年龄分为两组。10至15岁的捐赠者玩了一个改编版的治疗游戏ShopTalk，而16至25岁的捐赠者则获得了一本专为兄弟姐妹干细胞捐赠者设计的工作手册。干预后24小时重复知识评估。结果:参与者包括17名儿童移植受者的兄弟姐妹，年龄10-25岁。平均知识得分在与医疗提供者会面后从59.6%增加到68.8%，在教育干预后进一步增加到88.5%。结果表明，通过游戏或练习册提供信息的教育可以增加兄弟姐妹捐赠者的知识。结论:针对儿童造血干细胞供者的干细胞捐赠互动教育材料有限。除了医疗团队提供的信息外，为兄弟姐妹献血者提供额外的视觉和/或互动信息可能会增加对捐赠过程的了解和舒适度。提供有关捐赠和程序讨论的详细信息应根据个人学习方式进行调整，并辅以额外的视觉信息。

{"title":"Pilot Study of Educational Interventions for Pediatric Hematopoietic Stem Cell Sibling Donors to Increase Knowledge of Donation and Transplantation Procedures.","authors":"Lori Wiener, Richard W Childs, Nirali N Shah","doi":"10.1097/OR9.0000000000000004","DOIUrl":"https://doi.org/10.1097/OR9.0000000000000004","url":null,"abstract":"Background: Siblings are frequently identified as a tissue match for patients with malignant and nonmalignant diseases and are selected to donate hematopoietic stem cells (HSC). Research on preparing siblings donors for stem cell donation is limited. Even after donation procedures are explained, siblings have been found to have difficulty understanding the information and may experience anxiety, particularly amongst younger donors. No prospective studies examining educational tools and transplant knowledge in sibling stem cell donors are currently available. This pilot study assessed donor comprehension of HSC donation procedures and compared knowledge prior to and post an educational intervention.Methods: Assessment of baseline knowledge regarding HSC donation was assessed before and after the consent/information meeting with the medical team. Donors were then stratified into 2 groups by age. Donors aged 10 to 15 played an adapted version of the therapeutic game ShopTalk and donors aged 16 to 25 were provided a workbook designed for sibling stem cell donors. Assessment of knowledge was repeated 24 hours after the intervention.Results: Participants included 17 siblings of pediatric transplant recipients, ages 10-25. Mean knowledge scores increased from 59.6% to 68.8% following the meeting with the medical provider and further increased to 88.5% after an educational intervention. Results suggest that education that provides information via a game or workbook increases knowledge in sibling donors.Conclusion: Limited interactive educational material on stem cell donation is available for pediatric HSC donors. Additional visual and/or interactive information for sibling donors may increase knowledge and perhaps comfort with the donation process, beyond that which is provided by the medical teams. Providing detailed information about donation and discussion of procedures should be tailored to the individual learning style and supplemented with additional visual information.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/OR9.0000000000000004","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38641615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Progress toward integrating Distress as the Sixth Vital Sign: a global snapshot of triumphs and tribulations in precision supportive care 将窘迫作为第六个生命体征整合的进展:精确支持性护理的胜利与磨难的全球快照

Journal of psychosocial oncology research and practice

Pub Date : 2019-07-01 DOI: 10.1097/or9.0000000000000002

E. Fradgley, B. Bultz, B. Kelly, M. Loscalzo, L. Grassi, Brindha Sitaram

引用次数: 11

Understanding and addressing global inequities in cancer survivorship care 了解和解决全球癌症生存护理的不平等

Journal of psychosocial oncology research and practice

Pub Date : 2019-07-01 DOI: 10.1097/or9.0000000000000005

P. Jacobsen, M. Mollica

引用次数: 10

Navigating the path to care and death at home—it is not always smooth: a qualitative examination of the experiences of bereaved family caregivers in palliative care 在家中进行护理和死亡的道路上导航-并不总是一帆风顺:对失去亲人的家庭照顾者在姑息治疗中的经验进行定性检查

Journal of psychosocial oncology research and practice

Pub Date : 2019-01-01 DOI: 10.1097/or9.0000000000000003

E. Lobb, K. Bindley, C. Sanderson, R. MacLeod, J. Mowll

引用次数: 9

首页上一页

类型

全部化学•材料生命科学医学物理工程技术环境•农林材料科学地球科学法学管理学化学环境科学与生态学计算机科学教育学经济学农林科学人文科学生物学数学物理与天体物理心理学综合性期刊其他工业工程理学历史学农学文学信息工程

数据库

全部 ACS Publications Elsevier ieeexplore Springer The Royal Society of Chemistry Wiley

期刊

Journal of psychosocial oncology research and practice

全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.

﹀