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Data from the PALS (Pregnancy and Lifestyle Study), a Community-Based Study of Lifestyle on Fertility and Reproductive Outcome 数据来自PALS(妊娠和生活方式研究),这是一项基于社区的生活方式对生育能力和生殖结果的研究
Pub Date : 2015-11-10 DOI: 10.5334/OHD.AP
J. Ford
In order to assess the possible effects of lifestyle on fertility and pregnancy outcome, the PALS (Pregnancy and Lifestyle study) collected extensive data on a broad range of parameters termed ‘lifestyle’ from couples who were planning a natural (non-assisted) pregnancy in the coming months. There was no intervention. Participants were recruited over a six year period from 1988 to 1993 in response to extensive promotion in the local media. Male and female partners were interviewed independently and all interviews were conducted prospectively before the couple attempted to conceive. The result of each month of ‘trying’ was recorded and pregnancies were confirmed by urine tests and by ultrasound. The length of gestation of each pregnancy was recorded and pregnancies at term were classified with respect to weight. Multiple pregnancies and/or babies with congenital abnormalities have been excluded from the dataset. The data is stored as an xls file and each variable has a codename. For each of 582 couples there are 355 variables, the codes for which are described in a separate metadata file. The questionnaire based data includes information about households, occupation, chemical exposures at work and home, diet, smoking, alcohol use, hobbies, exercise and health. Recorded observations include monthly pregnancy tests and pregnancy outcomes.
为了评估生活方式对生育能力和妊娠结局的可能影响,PALS(妊娠和生活方式研究)从计划在未来几个月内自然(非辅助)怀孕的夫妇中收集了关于“生活方式”的广泛参数的大量数据。没有干预。参加者是在1988年至1993年的6年期间征聘的,以响应当地传播媒介的广泛宣传。男性和女性伴侣分别接受了采访,所有采访都是在夫妇试图怀孕之前进行的。每个月的“尝试”结果都被记录下来,并通过尿检和超声波确认怀孕。记录每次妊娠的妊娠期,并根据体重对足月妊娠进行分类。多胎妊娠和/或有先天性异常的婴儿已被排除在数据集中。数据以xls文件的形式存储,每个变量都有一个代号。对于582对中的每一对,有355个变量,其代码在单独的元数据文件中描述。基于问卷的数据包括家庭、职业、工作和家庭中的化学物质暴露、饮食、吸烟、饮酒、爱好、锻炼和健康等信息。记录的观察结果包括每月妊娠检查和妊娠结果。
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引用次数: 1
A Relational Database of WHO Mortality Data Prepared to Facilitate Global Mortality Research 为促进全球死亡率研究而编制的世卫组织死亡率数据关系数据库
Pub Date : 2015-09-30 DOI: 10.5334/OHD.AO
A. Roos
Detailed world mortality data such as collected by the World Health Organization gives a wealth of information about causes of death worldwide over a time span of 60 year. However, the raw mortality data in text format as provided by the WHO is not directly suitable for systematic research and data mining. In this Data Paper, a relational database is presented that is created from the raw WHO mortality data set and includes mortality rates, an ICD-code table and country reference data. This enriched database, as a corpus of global mortality data, can be readily imported in relational databases but can also function as the data source for other types of databases. The use of this database can therefore greatly facilitate global epidemiological research that may provide new clues to genetic or environmental factors in the origins of diseases.
世界卫生组织收集的详细的世界死亡率数据提供了60年来世界范围内死亡原因的丰富信息。然而,世界卫生组织提供的文本格式的原始死亡率数据并不直接适用于系统研究和数据挖掘。在本数据文件中,提出了根据世卫组织原始死亡率数据集创建的关系数据库,其中包括死亡率、国际疾病分类代码表和国家参考数据。这个丰富的数据库作为全球死亡率数据的语料库,可以很容易地导入到关系数据库中,但也可以作为其他类型数据库的数据源。因此,使用这一数据库可以极大地促进全球流行病学研究,为疾病起源中的遗传或环境因素提供新的线索。
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引用次数: 0
The Health and Retirement Study: A Public Data Resource for Research on Aging 健康与退休研究:老龄化研究的公共数据资源
Pub Date : 2014-10-16 DOI: 10.5334/OHD.AM
A. Sonnega, D. Weir
The Health and Retirement Study (HRS) is a nationally representative longitudinal survey of more than 37,000 individuals in 23,000 households over age 50 in the United States. Fielded biennially since 1992, it was established to provide a national resource for data on the changing health and economic circumstances associated with aging. HRS covers four broad topic areas—income and wealth; health, cognition, and use of health care services; work and retirement; and family connections. HRS data are also linked at the individual level to administrative records from Social Security and Medicare, Veteran’s Administration, the National Death Index, and employer-provided pension plan information. In 2006, data collection expanded to include biomarkers and genetics and greater depth in psychosocial well-being and social context. This blend of economic, health, and psychosocial information provides unprecedented potential to study increasingly complex questions about aging and retirement. HRS prioritizes rapid release of data while simultaneously protecting the confidentiality of respondents. Three categories of data—public, sensitive, and restricted—can be accessed through procedures described on the HRS website (hrsonline.isr.umich.edu).
健康与退休研究(HRS)是一项具有全国代表性的纵向调查,调查了美国23,000个50岁以上家庭的37,000多名个人。该项目自1992年以来每两年开展一次,目的是提供关于与老龄化有关的不断变化的健康和经济情况的国家数据资源。HRS涵盖四个广泛的主题领域:收入和财富;健康、认知和卫生保健服务的使用;工作和退休;还有家庭关系。在个人层面上,HRS数据还与来自社会保障和医疗保险、退伍军人管理局、国家死亡指数和雇主提供的养老金计划信息的行政记录相关联。2006年,数据收集扩大到包括生物标记物和遗传学,并更深入地研究社会心理健康和社会背景。这种经济、健康和社会心理信息的融合为研究老龄化和退休等日益复杂的问题提供了前所未有的潜力。HRS优先考虑快速发布数据,同时保护受访者的机密性。可以通过HRS网站(hrsonlinee.isr.umich.edu)上描述的程序访问三类数据——公共数据、敏感数据和受限数据。
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引用次数: 49
1970 British Cohort Study 1970年英国队列研究
Pub Date : 2014-10-16 DOI: 10.5334/OHD.AL
Matt Brown
The 1970 British Cohort Study (BCS70) is one of Britain’s world famous national longitudinal birth cohort studies, three of which are run by the Centre for Longitudinal Studies at the Institute of Education, University of London.  BCS70 follows the lives of more than 17,000 people born in England, Scotland and Wales in a single week of 1970. Over the course of cohort members lives, the BCS70 has collected information on health, physical, educational and social development, and economic circumstances among other factors. Since the birth survey in 1970, there have been nine ‘sweeps’ of all cohort members at ages 5, 10, 16, 26, 30, 34, 38 and most recently at 42. Data has been collected from a number of different sources (the midwife present at birth, parents of the cohort members, head and class teachers, school health service personnel and the cohort members themselves). The data has been collected in a variety of ways including via paper and electronic questionnaires, clinical records, medical examinations, physical measurements, tests of ability, educational assessments and diaries. The majority of BCS70 survey data can be accessed by bona fide researchers through the UK Data Service at the University of Essex.
1970年英国队列研究(BCS70)是英国世界著名的国家纵向出生队列研究之一,其中三项研究由伦敦大学教育学院纵向研究中心进行。BCS70追踪了1970年一周内出生在英格兰、苏格兰和威尔士的17000多人的生活。在队列成员的一生中,BCS70收集了关于健康、身体、教育和社会发展以及经济环境等方面的信息。自1970年的出生调查以来,对所有队列成员进行了九次“扫荡”,年龄分别为5岁、10岁、16岁、26岁、30岁、34岁和38岁,最近一次是42岁。数据是从许多不同的来源收集的(分娩时在场的助产士、队列成员的父母、班主任和班主任、学校卫生服务人员以及队列成员本身)。收集数据的方式多种多样,包括纸质和电子问卷、临床记录、医学检查、身体测量、能力测试、教育评估和日记。大多数BCS70调查数据可以由真正的研究人员通过埃塞克斯大学的英国数据服务访问。
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引用次数: 27
Longitudinal, Whole-population Data Examining Pathways of Risk from Conception to Disease: The Western Australian Schizophrenia High-risk e-Cohort 纵向,全人群数据检查从受孕到疾病的风险途径:西澳大利亚精神分裂症高风险e队列
Pub Date : 2014-09-22 DOI: 10.5334/OHD.AJ
V. Morgan, G. Valuri, M. Croft, Sonal Shah, P. D. Prinzio, Jennifer A. Griffith, T. Mcneil, A. Jablensky
This database has been constructed to support a program of work designed to untangle genetic and environmental contributions to the risk for schizophrenia and other adverse outcomes in the offspring of mothers with schizophrenia and other severe mental illness. To do this, it utilises Western Australian whole-population health and social services databases. Records on the Western Australian psychiatric case register have been linked to Midwives’ Notification of Birth records and to Registrations of Births (for paternal links) as well as to other data sets. Maternal links identify women with psychosis who gave birth in Western Australia between 1980 and 2001. Comparison mothers are those with no record of psychiatric illness who gave birth in Western Australia over the same period. The study database comprises 246,873 mothers and 467,945 children: 889 mothers with schizophrenia (1,672 children); 1,644 mothers with bipolar disorder (3,358 children); 4,200 mothers with unipolar major depression (8,864 children); 775 mothers with other psychoses (1,592 children); and 239,365 comparison mothers (452,459 children). Full psychiatric histories for mothers, fathers and children have been extracted. At the time of the most recent update to the psychiatric data on children, 33,363 children had a history of psychiatric illness; 5,500 of these had had at least one contact with mental health services at which a diagnosis of a psychotic disorder had been recorded. Data have also been collected on obstetric complications and a range of infant and childhood morbidities including birth defects, intellectual disability, educational achievement, childhood abuse, criminal offending. The program aims are to: (i) determine the frequency and distribution of obstetric complications in women with schizophrenia compared to a non-psychiatric comparison group of mothers; (ii) explore the spectrum of outcomes for the children born to women with schizophrenia compared to comparison children, and to assess the specificity of these findings to maternal schizophrenia compared to maternal bipolar disorder, unipolar major depression and other psychotic illness; and (iii) examine the relationship between familial psychiatric status, obstetric complications and mental health outcomes for children. The data sit in an Ingres relational database. A full description of the database and its elements has been published [1]. Numbers in this article differ from previously published numbers as a result of new linkages and updates to the database.
该数据库的建立是为了支持一项工作计划,该计划旨在解开遗传和环境因素对精神分裂症风险的影响,以及对患有精神分裂症和其他严重精神疾病的母亲的后代的其他不良后果的影响。为此,它利用了西澳大利亚州全体人口健康和社会服务数据库。西澳大利亚精神病病例登记册上的记录已与助产士出生通知记录和出生登记(父系联系)以及其他数据集联系起来。在1980年至2001年期间在西澳大利亚州分娩的女性患有精神疾病。对照母亲是指同期在西澳大利亚州分娩的没有精神疾病记录的母亲。该研究数据库包括246,873名母亲和467,945名儿童:889名患有精神分裂症的母亲(1,672名儿童);1644名患有双相情感障碍的母亲(3358名儿童);4200名患有单极重度抑郁症的母亲(8864名儿童);775名患有其他精神病的母亲(1592名儿童);239365名母亲(452459名孩子)作为对照。母亲、父亲和孩子的完整精神病史已经被提取出来。在最近一次更新儿童精神病学数据时,有33,363名儿童有精神病史;其中5,500人至少与精神卫生服务机构有过一次接触,并被诊断患有精神病。还收集了关于产科并发症和一系列婴儿和儿童发病率的数据,包括出生缺陷、智力残疾、教育成就、儿童虐待、犯罪。该方案的目的是:(i)确定精神分裂症妇女与非精神病对照组母亲相比产科并发症的频率和分布;(ii)探索精神分裂症妇女所生儿童与对照儿童的结局谱,并评估这些发现与母亲精神分裂症与母亲双相情感障碍、单极重性抑郁症和其他精神疾病相比的特异性;(三)研究家庭精神状况、产科并发症和儿童心理健康结果之间的关系。数据位于Ingres关系数据库中。数据库及其元素的完整描述已在[1]上发布。由于对数据库进行了新的连接和更新,本文中的数字与以前公布的数字有所不同。
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引用次数: 0
National Child Development Study (or 1958 Birth Cohort) 全国儿童发展研究(或1958年出生队列)
Pub Date : 2014-09-22 DOI: 10.5334/OHD.AK
Matt Brown, A. Goodman
The National Child Development Study (NCDS) is one of Britain’s world-renowned national longitudinal birth cohort studies, three of which are run by the Centre for Longitudinal Studies at the Institute of Education, University of London. The study is an ongoing multi-disciplinary longitudinal study which follows the lives of around 17,000 people born in England, Scotland and Wales in a single week of 1958. Over the course of cohort members lives, the NCDS has collected information on health, physical, educational and social development, and economic circumstances among other factors. The broad aim of the study is to examine the impact that circumstances and experiences at one stage of life have on outcomes and achievements in later life. Since the birth survey in 1958, there have been ten ‘sweeps’ of all cohort members at ages 7, 11, 16, 23, 33, 42, 44/5 (a biomedical collection) 46, 50 and most recently at 55. Data has been collected from a number of different sources (the midwife present at birth, parents of the cohort members, teachers, doctors and the cohort members themselves). The data has been collected in a variety of ways including via paper and electronic questionnaires, clinical records, medical examinations, physical measurements, tests of ability and educational assessments. The information collected forms a high quality data resource for scientific investigations across a full range of domains of individuals’ lives and across different points in time in them. The study has been designed so as to ensure comparability with other major cohort studies so as permit the examination of links between social change and the changing experiences of different cohorts. The majority of NCDS survey data can be accessed by bona fide researchers through the UK Data Service at the University of Essex.
国家儿童发展研究(NCDS)是英国享誉世界的国家纵向出生队列研究之一,其中三项研究由伦敦大学教育学院纵向研究中心负责。这项研究是一项正在进行的多学科纵向研究,追踪了1958年一周内出生在英格兰、苏格兰和威尔士的约1.7万人的生活。在队列成员的生活过程中,非传染性疾病收集了关于健康、身体、教育和社会发展以及经济环境等因素的信息。这项研究的主要目的是研究人生某个阶段的环境和经历对以后生活的结果和成就的影响。自1958年出生调查以来,对所有队列成员在7岁、11岁、16岁、23岁、33岁、42岁、44/5岁(生物医学收集)、46岁、50岁和最近的55岁时进行了10次“扫荡”。数据从许多不同的来源收集(出生时在场的助产士,队列成员的父母,教师,医生和队列成员本身)。收集数据的方式多种多样,包括纸质和电子问卷、临床记录、医疗检查、身体测量、能力测试和教育评估。收集到的信息为科学调查提供了高质量的数据资源,涵盖了个人生活的各个领域和不同的时间点。这项研究的目的是确保与其他主要的队列研究具有可比性,以便审查社会变化与不同队列不断变化的经历之间的联系。大多数非传染性疾病调查数据可以由真正的研究人员通过埃塞克斯大学的英国数据服务访问。
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引用次数: 7
A First Attempt at Modelling Roe Deer (Capreolus capreolus) Distributions Over Europe 对欧洲狍分布建模的首次尝试
Pub Date : 2014-07-14 DOI: 10.5334/OHD.AH
N. Alexander, D. Morley, J. Medlock, K. Searle, W. Wint
The presence of roe deer can be an important component within ecological and epidemiological systems contributing to the risk and spread of a range of vector-borne diseases. Deer are important hosts for many vectors, and may therefore serve as a focal point or attractant for vectors or may themselves act as a reservoir for vector-borne disease. Three spatial modelling techniques were used to generate an ensemble model describing the proportion of suitable roe deer habitat within recorded distributions for Europe as identified from diverse sources. The resulting model is therefore an index of presence, which may be useful in supporting the modelling of vector-borne disease across Europe.
狍的存在可能是生态和流行病学系统中的一个重要组成部分,有助于一系列病媒传播疾病的风险和传播。鹿是许多病媒的重要宿主,因此可作为病媒的焦点或引诱物,或本身可作为病媒传播疾病的宿主。使用三种空间建模技术生成了一个集合模型,描述了欧洲记录分布中从不同来源确定的合适狍栖息地的比例。因此,由此产生的模型是一个存在指数,这可能有助于支持整个欧洲媒介传播疾病的建模。
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引用次数: 13
A First Attempt at Modelling Red Deer (Cervus elaphus) Distributions Over Europe 马鹿(Cervus elaphus)在欧洲分布模型的首次尝试
Pub Date : 2014-07-14 DOI: 10.5334/OHD.AG
W. Wint, D. Morley, J. Medlock, N. Alexander
The presence of red deer may be a contributing factor within the ecological and epidemiological systems contributing to the risk and spread of a range of vector-borne diseases. Deer are important hosts for many vectors, and may therefore serve as a focal point or attractant for vectors or may themselves become a reservoir for vector-borne disease. Three spatial modelling techniques were used to generate an ensemble model describing the proportion of suitable red deer habitat within recorded distributions for Europe as identified from diverse sources. The resulting model is therefore an index of presence, which may be useful in supporting the modelling of vector-borne disease across Europe.
马鹿的存在可能是生态和流行病学系统中的一个促成因素,有助于一系列媒介传播疾病的风险和传播。鹿是许多病媒的重要宿主,因此可能成为病媒的焦点或引诱物,或者本身可能成为病媒传播疾病的宿主。利用三种空间建模技术生成了一个整体模型,该模型描述了欧洲不同来源的记录分布中适宜马鹿栖息地的比例。因此,由此产生的模型是一个存在指数,这可能有助于支持整个欧洲媒介传播疾病的建模。
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引用次数: 10
The Midlife in the United States (MIDUS) Series: A National Longitudinal Study of Health and Well-being. 美国中年(MIDUS)系列:一项关于健康和幸福的全国性纵向研究。
Pub Date : 2014-01-01 DOI: 10.5334/ohd.ai
Barry T Radler

Midlife in the United States (MIDUS) is a national longitudinal study of health and well-being (http://midus.wisc.edu/). It was conceived by a multidisciplinary team of scholars interested in understanding aging as an integrated bio-psycho-social process, and as such it includes data collected in a wide array of research protocols using a variety of survey and non-survey instruments. The data captured by these different protocols (comprising around 20,000 variables) represent survey measures, cognitive assessments, daily stress diaries, clinical, biomarker and neuroscience data which are contained in separate flat or stacked data files with a common ID system that allows easy data merges among them. All MIDUS datasets and documentation are archived at the ICPSR (http://www.icpsr.umich.edu/) repository at the University of Michigan and are publicly available in a variety of formats and statistical packages. Special attention is given to providing clear user-friendly documentation; the study has embraced the Data Documentation Initiative (DDI) metadata standard and produces DDI-Lifecycle compliant codebooks. Potential for secondary use of MIDUS is high and actively encouraged. The study has become very popular with the research public as measured by data downloads and citation counts (see Reuse Potential below).

美国中年(MIDUS)是一项关于健康和幸福的全国性纵向研究(http://midus.wisc.edu/)。它是由一个多学科的学者团队构思的,他们对将衰老理解为一个综合的生物-心理-社会过程感兴趣,因此它包括使用各种调查和非调查工具在广泛的研究协议中收集的数据。这些不同协议捕获的数据(包括大约20,000个变量)代表调查措施,认知评估,日常压力日记,临床,生物标志物和神经科学数据,这些数据包含在单独的平面或堆叠数据文件中,使用通用ID系统,可以轻松地将数据合并在一起。所有MIDUS数据集和文档都存档在密歇根大学的ICPSR (http://www.icpsr.umich.edu/)存储库中,并以各种格式和统计软件包公开提供。特别注意提供清楚的方便用户的文件;该研究采用了数据文档计划(DDI)元数据标准,并生成了符合DDI生命周期的代码本。MIDUS的二次使用潜力很高,并受到积极鼓励。从数据下载和引用次数来看,这项研究在研究公众中非常受欢迎(参见下面的重用潜力)。
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引用次数: 43
Data from "Social determinants of unmet hospitalisation need amongst the poor in Andhra Pradesh, India: A cross- sectional study." 数据来自“印度安得拉邦穷人未满足住院需求的社会决定因素:一项横断面研究”。
Pub Date : 2013-11-04 DOI: 10.5334/JOPHD.AF
Srikant Nagulapalli
The dataset is of a health survey amongst the 21.5 million poor families of the Indian state of Andhra Pradesh conducted during April and May 2013. The dataset captures individual characteristics and household characteristics of the past 365 days. Data was collected by 2022 trained field staff of Aarogyasri Health Care Trust (AHCT) of Government of Andhra Pradesh using a questionnaire modelled after that used for the health surveys by National Sample Survey Organisation of India.
该数据集是2013年4月至5月期间对印度安得拉邦2150万贫困家庭进行的一项健康调查。该数据集捕获了过去365天的个人特征和家庭特征。数据由安得拉邦政府Aarogyasri卫生保健信托基金(AHCT)的2022名训练有素的实地工作人员使用仿照印度国家抽样调查组织用于健康调查的问卷收集。
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引用次数: 0
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Open health data
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