Pub Date : 1989-01-01DOI: 10.1177/104345428900600212
P Updike
{"title":"Through the lens of the leading edge scientist/artist: reflections for pediatric oncology nursing.","authors":"P Updike","doi":"10.1177/104345428900600212","DOIUrl":"https://doi.org/10.1177/104345428900600212","url":null,"abstract":"","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"6 2","pages":"23"},"PeriodicalIF":0.0,"publicationDate":"1989-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428900600212","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13877902","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1989-01-01DOI: 10.1177/104345428900600216
L K Birenbaum
prayer, hope, and positive thinking. Intraindividual change in type of coping strategy use was characterized by stability as well as change. That is, the overall level of coping strategy use remained stable (demonstrated minimal increase or decrease over the nine months). Characteristic change included enhancement and replacement of coping strategies. Triangulation of qualitative and quantitative data yielded high agreement. Information gained regarding variability in intraindividual coping may be used as the basis for interventions aimed at facilitating adolescents in coping more effectively with cancer treatment pain.
{"title":"The relationship between parent-siblings' communication and siblings' coping with death experience.","authors":"L K Birenbaum","doi":"10.1177/104345428900600216","DOIUrl":"https://doi.org/10.1177/104345428900600216","url":null,"abstract":"prayer, hope, and positive thinking. Intraindividual change in type of coping strategy use was characterized by stability as well as change. That is, the overall level of coping strategy use remained stable (demonstrated minimal increase or decrease over the nine months). Characteristic change included enhancement and replacement of coping strategies. Triangulation of qualitative and quantitative data yielded high agreement. Information gained regarding variability in intraindividual coping may be used as the basis for interventions aimed at facilitating adolescents in coping more effectively with cancer treatment pain.","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"6 2","pages":"26-7"},"PeriodicalIF":0.0,"publicationDate":"1989-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428900600216","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13877908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1989-01-01DOI: 10.1177/104345428900600232
S L Davies
{"title":"An educational tool for newly diagnosed pediatric patients with aplastic anemia.","authors":"S L Davies","doi":"10.1177/104345428900600232","DOIUrl":"https://doi.org/10.1177/104345428900600232","url":null,"abstract":"","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"6 2","pages":"38"},"PeriodicalIF":0.0,"publicationDate":"1989-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428900600232","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13878529","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1989-01-01DOI: 10.1177/104345428900600108
C L Walker
positive or negative. In a positive correlation, factors A and B vary together in the same direction. For example, as the mother’s anxiety over her child’s forthcoming surgery increases (or decreases), the child’s anxiety will also increase (or decrease). In a negative correlation, factors A and B vary together but in opposite directions; as A increases, B decreases. An example of a negative correlation would be when a favorable prognosis decreases as the patient’s age increases.
{"title":"Correlational research.","authors":"C L Walker","doi":"10.1177/104345428900600108","DOIUrl":"https://doi.org/10.1177/104345428900600108","url":null,"abstract":"positive or negative. In a positive correlation, factors A and B vary together in the same direction. For example, as the mother’s anxiety over her child’s forthcoming surgery increases (or decreases), the child’s anxiety will also increase (or decrease). In a negative correlation, factors A and B vary together but in opposite directions; as A increases, B decreases. An example of a negative correlation would be when a favorable prognosis decreases as the patient’s age increases.","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"6 1","pages":"21-2"},"PeriodicalIF":0.0,"publicationDate":"1989-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428900600108","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14058131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1988-01-01DOI: 10.1177/104345428800500104
B D Blumberg, J T Burklow, J K Laufer, M Cosgrove, M Adams-Greenly, S M Kranstuber
Barbara Blumberg, ScM, is Patient Education Manager, Health Communications and Research, Fox Chase Medical Center, Philadelphia, Pennsylvania. John T. Burklow, MEd, is from the Information Projects Branch, Office of Cancer Communications, National Cancer Institute, Bethesda, Maryland. Jessica K. Laufer, MA, is a Consultant in Los Angeles, California. Michael Cosgrove, PhD, is a Consultant for Nancy Low and Associates, Chevy Chase, Maryland, Margaret Adams-Greenly, MS, is a Social Worker at Memorial Sloan-Kettering Cancer Center, New York, New York. Susan Meeks Kranstuber, RN, MA, is an Oncology Nurse at the Children’s Hospital, Columbus, Ohio. Barbara D. Blumberg, John T. Burklow, Jessica K. Laufer, Michael Cosgrove, Margaret Adams-Greenly, and Susan Meeks Kranstuber
{"title":"Responding to the information needs of young people whose parents or siblings have cancer: a description of a National Cancer Institute booklet.","authors":"B D Blumberg, J T Burklow, J K Laufer, M Cosgrove, M Adams-Greenly, S M Kranstuber","doi":"10.1177/104345428800500104","DOIUrl":"https://doi.org/10.1177/104345428800500104","url":null,"abstract":"Barbara Blumberg, ScM, is Patient Education Manager, Health Communications and Research, Fox Chase Medical Center, Philadelphia, Pennsylvania. John T. Burklow, MEd, is from the Information Projects Branch, Office of Cancer Communications, National Cancer Institute, Bethesda, Maryland. Jessica K. Laufer, MA, is a Consultant in Los Angeles, California. Michael Cosgrove, PhD, is a Consultant for Nancy Low and Associates, Chevy Chase, Maryland, Margaret Adams-Greenly, MS, is a Social Worker at Memorial Sloan-Kettering Cancer Center, New York, New York. Susan Meeks Kranstuber, RN, MA, is an Oncology Nurse at the Children’s Hospital, Columbus, Ohio. Barbara D. Blumberg, John T. Burklow, Jessica K. Laufer, Michael Cosgrove, Margaret Adams-Greenly, and Susan Meeks Kranstuber","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"5 1-2","pages":"16-9"},"PeriodicalIF":0.0,"publicationDate":"1988-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428800500104","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14512137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1988-01-01DOI: 10.1177/104345428800500116
J Adams
This study examined the methods used to assess children’s pain related to invasive procedures. Children with cancer frequently experience pain and anxiety due to diagnostic testing and treatment protocols. The variable of acculturation is an additional stress for the families of the Hispanic cultural group. This study adds to the information related to pain assessment and variations that may exist for children of other cultural groups. The research questions addressed by the study were concerned with the reliability and validity of methods used to assess pain in children of two cultural groups who are undergoing invasive procedures as part of their treatment for cancer. A sample of 78 Anglo and Hispanic outpatient pediatric oncology patients ranging in age from 3 to 15 years were both observed and interviewed related to the pain of an invasive procedure. The Procedure Behavioral Checklist (PBCL) was used to observe the child’s response. The Children’s Procedural Interview (CPI), based on the items in the PBCL, with visual analogues (scales of faces indicating varying degrees of pain/anxiety) was administered to the child after the invasive procedure. Data analysis included the determination of the reliability and validity of the two methods in each ethnic subgroup. Due to the possible effect of factors such as ethnicity/acculturation, age, sex, parental and child anxiety, illness duration and stage, and caregivers’ perceptions, information about these factors was gathered. Correlations among these independent variables were done to determine associations with the dependent variables. The findings included reliability coefficients of the behavioral observation scale demonstrating cultural group variability, .78 for Anglos and .54 for Hispanics. Alpha coefficients for the self-report (CPI) were .79 for Anglos and .72 for Hispanics. The Faces rating scales were shown to enhance the reliability coefficient for the CPI, and also to display
{"title":"The assessment of pain related to invasive procedures in Anglo and Hispanic children with cancer.","authors":"J Adams","doi":"10.1177/104345428800500116","DOIUrl":"https://doi.org/10.1177/104345428800500116","url":null,"abstract":"This study examined the methods used to assess children’s pain related to invasive procedures. Children with cancer frequently experience pain and anxiety due to diagnostic testing and treatment protocols. The variable of acculturation is an additional stress for the families of the Hispanic cultural group. This study adds to the information related to pain assessment and variations that may exist for children of other cultural groups. The research questions addressed by the study were concerned with the reliability and validity of methods used to assess pain in children of two cultural groups who are undergoing invasive procedures as part of their treatment for cancer. A sample of 78 Anglo and Hispanic outpatient pediatric oncology patients ranging in age from 3 to 15 years were both observed and interviewed related to the pain of an invasive procedure. The Procedure Behavioral Checklist (PBCL) was used to observe the child’s response. The Children’s Procedural Interview (CPI), based on the items in the PBCL, with visual analogues (scales of faces indicating varying degrees of pain/anxiety) was administered to the child after the invasive procedure. Data analysis included the determination of the reliability and validity of the two methods in each ethnic subgroup. Due to the possible effect of factors such as ethnicity/acculturation, age, sex, parental and child anxiety, illness duration and stage, and caregivers’ perceptions, information about these factors was gathered. Correlations among these independent variables were done to determine associations with the dependent variables. The findings included reliability coefficients of the behavioral observation scale demonstrating cultural group variability, .78 for Anglos and .54 for Hispanics. Alpha coefficients for the self-report (CPI) were .79 for Anglos and .72 for Hispanics. The Faces rating scales were shown to enhance the reliability coefficient for the CPI, and also to display","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"5 1-2","pages":"31"},"PeriodicalIF":0.0,"publicationDate":"1988-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428800500116","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14512144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1988-01-01DOI: 10.1177/104345428800500115
E Danaher
{"title":"Stomatitis in the pediatric bone marrow transplant patient.","authors":"E Danaher","doi":"10.1177/104345428800500115","DOIUrl":"https://doi.org/10.1177/104345428800500115","url":null,"abstract":"","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"5 1-2","pages":"30"},"PeriodicalIF":0.0,"publicationDate":"1988-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428800500115","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14418514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1988-01-01DOI: 10.1177/104345428800500406
G D'Angio
Giulio D’Angio, MD, is Director of the Children’s Cancer Research Center at Children’s Hospital of Philadelphia and Professor of Radiation Oncology, Radiology and Pediatrics at the University of Pennsylvania Medical School in Philadelphia, Pennsylvania. Introduction and Background The modem multi-modal team approach to the patient with cancer that includes careful weighing of risks against benefits can be said to have been born in pediatric oncology. It had its origins almost a half century ago when routine postoperative irradiation of the flank was added to nephrectomy for the management of children with Wilms’ tumor, thus uniting the surgeon and radiation therapist in a con-
{"title":"Cure is not enough: late consequences associated with radiation treatment.","authors":"G D'Angio","doi":"10.1177/104345428800500406","DOIUrl":"https://doi.org/10.1177/104345428800500406","url":null,"abstract":"Giulio D’Angio, MD, is Director of the Children’s Cancer Research Center at Children’s Hospital of Philadelphia and Professor of Radiation Oncology, Radiology and Pediatrics at the University of Pennsylvania Medical School in Philadelphia, Pennsylvania. Introduction and Background The modem multi-modal team approach to the patient with cancer that includes careful weighing of risks against benefits can be said to have been born in pediatric oncology. It had its origins almost a half century ago when routine postoperative irradiation of the flank was added to nephrectomy for the management of children with Wilms’ tumor, thus uniting the surgeon and radiation therapist in a con-","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"5 4","pages":"20-3"},"PeriodicalIF":0.0,"publicationDate":"1988-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428800500406","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13987563","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1988-01-01DOI: 10.1177/104345428800500113
J M Ronan, C Caserza
{"title":"Development of an educational handbook: preparing the pediatric patient and family for pre-bone marrow transplant procedures and consults.","authors":"J M Ronan, C Caserza","doi":"10.1177/104345428800500113","DOIUrl":"https://doi.org/10.1177/104345428800500113","url":null,"abstract":"","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"5 1-2","pages":"29"},"PeriodicalIF":0.0,"publicationDate":"1988-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428800500113","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14418512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1988-01-01DOI: 10.1177/104345428800500110
B B Martin
Belinda Barry Martin, RN, MS, is Home Care Coordinator at Childrens Hospital of Los Angeles, Los Angeles, California. Although many studies have documented aspects of adult hospice care, there is little data available about the patterns of care for terminally ill children and the family response to this type of pediatric care. Pediatric hospice care differs in two notable ways from adult hospice care: (1) use of aggressive therapy; and (2) no six-month prognosis restriction. These differences, together with the different family roles between parent and child, make it difficult to generalize from data on adult hospice care to pediatric hospice care. The purpose of this demonstration model research study was: (1) to describe the characteristics of patients and families served over a five-year period, the types and intensity of services provided for home care, the length of stay in the home and in the hospital after entering the program, the costs of home care services, and the family responses to the program and its services; and (2) to examine the relationship between medical and background characteristics and patterns and costs of care. The design for this study was a retrospective crosssectional design. Data for the study were collected from three sources: (1) hospital and hospice program records; (2) home health care records; and (3) telephone interview data. The population studies
{"title":"Predictors of length of home and hospital stay, types of services received, cost and family response in an established pediatric hospice program.","authors":"B B Martin","doi":"10.1177/104345428800500110","DOIUrl":"https://doi.org/10.1177/104345428800500110","url":null,"abstract":"Belinda Barry Martin, RN, MS, is Home Care Coordinator at Childrens Hospital of Los Angeles, Los Angeles, California. Although many studies have documented aspects of adult hospice care, there is little data available about the patterns of care for terminally ill children and the family response to this type of pediatric care. Pediatric hospice care differs in two notable ways from adult hospice care: (1) use of aggressive therapy; and (2) no six-month prognosis restriction. These differences, together with the different family roles between parent and child, make it difficult to generalize from data on adult hospice care to pediatric hospice care. The purpose of this demonstration model research study was: (1) to describe the characteristics of patients and families served over a five-year period, the types and intensity of services provided for home care, the length of stay in the home and in the hospital after entering the program, the costs of home care services, and the family responses to the program and its services; and (2) to examine the relationship between medical and background characteristics and patterns and costs of care. The design for this study was a retrospective crosssectional design. Data for the study were collected from three sources: (1) hospital and hospice program records; (2) home health care records; and (3) telephone interview data. The population studies","PeriodicalId":77742,"journal":{"name":"Journal of the Association of Pediatric Oncology Nurses","volume":"5 1-2","pages":"27"},"PeriodicalIF":0.0,"publicationDate":"1988-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104345428800500110","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14512142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}