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Paediatric rehabilitation in a developing country--India in relation to aetiology, consequences and outcome in a group of 459 burnt children. 发展中国家——印度的儿科康复:459名烧伤儿童的病因、后果和结局。
Pub Date : 2007-02-01 DOI: 10.1016/J.BURNS.2006.10.373
K. Mathangi Ramakrishnan, V. Jayaraman, A. Andal, J. Shanker, P. Ramachandran
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引用次数: 4
Physician education on infant hearing loss in a developing country. 发展中国家对婴儿听力损失的医师教育。
Pub Date : 2006-10-01 DOI: 10.1080/02640410500521615
Bolajoko O Olusanya, Alero A Roberts

Background: Physicians often account for delays in detection and intervention for infant hearing loss for reasons that are rarely investigated, especially in developing countries. This study, therefore, explores current physician knowledge, attitude and training towards infant hearing loss in Nigeria.

Methods: Knowledge of documented risk factors, intervention options and attitude towards timely intervention for infant hearing loss was investigated through a questionnaire survey among 246 final year medical students and 161 physicians drawn from tertiary hospitals in Lagos.

Results: Medical students were significantly less knowledgeable than practising physicians about most risk factors for hearing loss except for craniofacial anomalies, intra-uterine infections and low birthweight. Few respondents (11.4-42.9%) were knowledgeable about the risk of low birthweight and maternal exposure to noise in pregnancy for infant hearing loss. Medical students were significantly more aware of early detection possibility (67.8% vs 38.9 %, p=0.000) and more knowledgeable about the use of hearing aids for babies (57.3% vs 50.3%). Most respondents had a fairly positive attitude towards parental concern and early detection while medical students were significantly more positive in their attitude towards infant hearing screening (86.6% vs 74.5%, p=0.002).

Conclusions: Medical students demonstrated greater awareness of early detection possibilities for infant hearing loss than physicians, although they had limited knowledge of some important risk factors. Continuing physician education reflecting evidence-based trends in child healthcare is necessary, while medical education also needs to be updated periodically.

背景:医生经常解释婴儿听力损失的检测和干预延迟的原因很少调查,特别是在发展中国家。因此,本研究探讨了尼日利亚目前医生对婴儿听力损失的知识、态度和培训。方法:通过对拉各斯市三级医院246名医学生和161名医师进行问卷调查,了解婴幼儿听力损失的危险因素、干预方案及及时干预态度。结果:除颅面异常、子宫内感染和低出生体重外,医学生对大多数听力损失危险因素的了解程度明显低于执业医师。很少有受访者(11.4-42.9%)了解低出生体重和母亲在怀孕期间接触噪音对婴儿听力损失的风险。医学生对早期发现可能性的认识(67.8% vs 38.9%, p=0.000)和对婴儿助听器使用的了解(57.3% vs 50.3%)显著增加。大多数被调查者对父母关心和早期发现持相当积极的态度,而医学生对婴儿听力筛查的态度更为积极(86.6%比74.5%,p=0.002)。结论:尽管医科学生对一些重要的危险因素的了解有限,但他们对早期发现婴儿听力损失的可能性比医生有更高的认识。继续医生教育反映儿童保健循证趋势是必要的,而医学教育也需要定期更新。
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引用次数: 19
Rehabilitation services for children: therapists' perceptions. 儿童康复服务:治疗师的看法。
Pub Date : 2006-10-01 DOI: 10.1080/13638490600668087
Barbara Mazer, Debbie Feldman, Annette Majnemer, Julie Gosselin, Eva Kehayia

The objective of this study was to examine occupational therapists' (OT) and physiotherapists' (PT) perceptions regarding waiting time and the quality and quantity of the services they provide for children with disabilities. A survey was sent by post to all paediatric OTs and PTs in Quebec, Canada. A Service Delivery Questionnaire included questions regarding therapist/client characteristics, waiting times and quality and quantity of services provided. The Measure of Processes of Care for Service Providers (MPOC-SP) rated use of family-centred care by responding clinicians. Waiting times were longest for OT services (p<0.0001), speech/language interventions (p<0.0001) and services in rehabilitation and community health centres (p<0.0001). Quality of services was rated higher by PTs, experienced therapists and those using more methods of keeping up-to-date. The frequency and duration of services varied according to profession, type of clientele and setting. According to clinicians directly involved in the provision of rehabilitation services, long delays exist for children waiting for rehabilitation services, and perceived quality of services differs according to specific therapist and client characteristics. These findings will assist those involved in planning the distribution of co-ordinated rehabilitation services for children.

本研究的目的是考察职业治疗师(OT)和物理治疗师(PT)对等待时间以及他们为残疾儿童提供服务的质量和数量的看法。一份调查问卷邮寄给加拿大魁北克省的所有儿科门诊医师和专科医师。服务提供问卷包括关于治疗师/客户特征、等待时间以及所提供服务的质量和数量的问题。服务提供者护理过程测量(MPOC-SP)评估了临床医生对以家庭为中心的护理的使用。门诊服务的等待时间最长(p
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引用次数: 21
Weaning children from mechanical ventilation in a post-acute care setting. 在急性后护理环境中使儿童脱离机械通气。
Pub Date : 2006-10-01 DOI: 10.1080/13638490500523192
Jane E O'Brien, David J Birnkrant, Helene M Dumas, Stephen M Haley, Sharon A Burke, Robert J Graham, Virginia S Kharasch

As medical and technological advances have made it possible to prolong the life of children with chronic respiratory failure, children are being referred to post-acute inpatient rehabilitation programmes. In these settings, children can be weaned from their ventilators and receive medical and rehabilitative care in a developmentally supportive environment at a lower financial cost than in an intensive care unit. There is strong evidence that weaning children from mechanical ventilation has beneficial effects on their functionality, ease of care and quality of life. There is, however, little scientific evidence describing how often successful weaning is achieved or the most effective methods. The purpose of this article is to present a consensus report detailing a structured approach to weaning children from mechanical ventilation in a post-acute care setting. This study proposes a Weaning Severity Index and a Weaning Algorithm for use in the assessment and implementation of the weaning process in post-acute rehabilitation. Future clinical studies are needed to validate the suggested approach to ventilator weaning and to determine whether or not the weaning algorithm results in beneficial patient outcomes.

由于医疗和技术的进步,有可能延长患有慢性呼吸衰竭的儿童的生命,儿童被转介到急性后住院康复方案。在这些环境中,儿童可以脱离呼吸机,在有利于发展的环境中接受医疗和康复护理,费用低于重症监护病房。有强有力的证据表明,让儿童脱离机械通气对他们的功能、护理的便利性和生活质量都有有益的影响。然而,很少有科学证据说明成功断奶的频率或最有效的方法。本文的目的是提出一份共识报告,详细介绍了一种在急性后护理环境中使儿童脱离机械通气的结构化方法。本研究提出了断奶严重程度指数和断奶算法,用于急性康复后断奶过程的评估和实施。未来的临床研究需要验证所建议的呼吸机脱机方法,并确定脱机算法是否能带来有益的患者结果。
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引用次数: 14
Visually impaired (VI) education in Romania and the United Kingdom: special education in Romania since 1990 for blind and partially sighted children and young people, with comparisons drawn from similar experiences of legislative and educational changes in England and Wales since 1981. 罗马尼亚和联合王国的视障教育:罗马尼亚自1990年以来对失明和弱视儿童和青少年的特殊教育,与1981年以来英格兰和威尔士立法和教育改革的类似经验进行比较。
Pub Date : 2006-10-01 DOI: 10.1080/13638490500353129
Verginia Cretu, Doru Vlad Popovici, Wendy Sainsbury, Gianetta Corley

This article reviews the educational facilities available in the last decades of the 20th century for blind and partially sighted children and young people in Romania and the UK. A turning point in England and Wales came with the Education (Special Educational Needs) Act 1981. For Romania, the turning point came in 1990 with the overthrow of the Ceaucescu regime in late 1989. Romania is seeking entry to the European Union in 2007. This has provided an incentive to bring special educational philosophy and facilities quickly into line with other countries in the European Union. Similar problems regarding inclusion are encountered in both countries. Differentiating features are their different demographic characteristics and the educational resources and assets available at the time of the major changes. Finally, there is a brief review of the number of people with sight loss in paid employment as the next logical focal point for a national inclusion strategy. The UK has been able to develop and advance further than Romania in this sphere, but the legal framework is in place in Romania. The generic terms visually impaired (VI) and sight loss are both used throughout when referring to blind and partially sighted people.

这篇文章回顾了20世纪最后几十年在罗马尼亚和英国为盲人和部分视力儿童和年轻人提供的教育设施。1981年的《教育(特殊教育需要)法案》是英格兰和威尔士的一个转折点。对罗马尼亚来说,转折点出现在1990年,1989年底齐奥塞斯库政权被推翻。罗马尼亚正在寻求在2007年加入欧盟。这为使特殊教育理念和设施迅速与欧洲联盟其他国家保持一致提供了动力。这两个国家都遇到了关于包容的类似问题。不同的人口特征和在重大变化时期可用的教育资源和资产是其区别特征。最后,简要回顾了有偿就业中视力丧失者的数量,作为国家包容性战略的下一个合乎逻辑的焦点。在这一领域,英国比罗马尼亚发展和进步得更远,但罗马尼亚的法律框架已经到位。视障(VI)和视力丧失这两个通用术语在指盲人和部分视力者时始终使用。
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引用次数: 0
Using data visualization and signal processing to characterize the handwriting process. 使用数据可视化和信号处理来表征手写过程。
Pub Date : 2006-10-01 DOI: 10.1080/13638490600667964
Sara Rosenblum, Dan Chevion, Patrice L Tamar Weiss

Introduction: Disturbances in handwriting legibility and speed are found among elementary school-aged children. The aim of this paper is to present a set of sophisticated analytical tools suitable for visualization and evaluation of handwriting disturbances.

Methods: Handwriting samples from 30 children, 15 proficient and 15 non-proficient handwriters, aged 8-9 years were collected with the aid of a digitizing tablet. Temporal and spatial measures of the handwriting process dynamics based on signal processing methods were developed and visually presented.

Results: Significant differences between proficient and non-proficient handwriters were found in handwriting characteristics such as the standard deviations of letter width (t=2.96, p=0.008), letter height (t=3.24, p=0.005) and pen elevation (t=2.91, p=0.008). Significant differences were also found for the number of pen lifts (t=2.27, p=0.03), for the value of the correlation coefficients between letter length and time (t= -6.62, p=0.000) and between the actual and computed number of words (t=2.79, p=0.01).

Conclusions: The techniques described in this paper provide objective measures for handwriting performance presented in a way designed to help clinicians and educators visualize handwriting difficulties during clinical evaluation and intervention. Data visualization and analysis appear to enhance information concerning the spatial and temporal dynamics of handwriting.

导读:在小学学龄儿童中存在字迹易读性和书写速度障碍。本文的目的是提出一套复杂的分析工具,适用于可视化和评估手写干扰。方法:采用数字化写字板采集8 ~ 9岁儿童30例笔迹样本,其中熟练书写者15例,非熟练书写者15例。基于信号处理方法,开发了手写过程动态的时间和空间度量,并进行了可视化展示。结果:字宽(t=2.96, p=0.008)、字高(t=3.24, p=0.005)、笔高(t=2.91, p=0.008)等书写特征在熟练书写者和非熟练书写者之间存在显著差异。笔举次数(t=2.27, p=0.03)、字母长度和时间之间的相关系数值(t= -6.62, p=0.000)以及实际单词数和计算单词数(t=2.79, p=0.01)之间也存在显著差异。结论:本文中描述的技术提供了客观的手写表现测量方法,旨在帮助临床医生和教育工作者在临床评估和干预过程中可视化手写困难。数据可视化和分析似乎增强了有关笔迹空间和时间动态的信息。
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引用次数: 47
Impact of spine surgery on signs and symptoms of spinal deformity. 脊柱手术对脊柱畸形体征和症状的影响。
Pub Date : 2006-10-01 DOI: 10.1080/13638490500402264
Martha Hawes

Paediatric scoliosis is associated with signs and symptoms including reduced pulmonary function, increased pain and impaired quality of life, all of which worsen during adulthood, even when the curvature remains stable. Spinal fusion has been used as a treatment for nearly 100 years. In 1941, the American Orthopedic Association reported that for 70% of patients treated surgically, outcome was fair or poor: an average 65% curvature correction was reduced to 27% at >2 year follow-up and the torso deformity was unchanged or worse. Outcome was worse in children treated surgically before age 10, despite earlier intervention. Today, a reduced magnitude of curvature obtained by spinal fusion in adolescence can be maintained for decades. However, successful surgery still does not eliminate spinal curvature and it introduces irreversible complications whose long-term impact is poorly understood. For most patients there is little or no improvement in pulmonary function. Some report improved pain after surgery, some report no improvement and some report increased pain. The rib deformity is eliminated only by rib resection which can dramatically reduce respiratory function even in healthy adolescents. Outcome for pulmonary function and deformity is worse in patients treated surgically before the age of 10 years, despite earlier intervention. Research to develop effective non-surgical methods to prevent progression of mild, reversible spinal curvatures into complex, irreversible structural deformities, is long overdue.

小儿脊柱侧凸的体征和症状包括肺功能下降、疼痛增加和生活质量受损,所有这些症状在成年期都会恶化,即使曲度保持稳定。脊柱融合术作为一种治疗方法已经使用了近100年。1941年,美国骨科协会报道,70%接受手术治疗的患者,结果一般或较差:在>2年的随访中,平均65%的曲率矫正率降至27%,躯干畸形没有变化或更糟。在10岁之前接受手术治疗的儿童,尽管早期干预,结果更差。如今,通过青少年脊柱融合术获得的脊柱曲度减小可以维持几十年。然而,成功的手术仍然不能消除脊柱弯曲,它还会引入不可逆的并发症,其长期影响尚不清楚。对于大多数患者,肺功能几乎没有改善。一些报告术后疼痛有所改善,一些报告无改善,一些报告疼痛加重。肋骨畸形只能通过肋骨切除来消除,即使在健康的青少年中也会显著降低呼吸功能。在10岁之前接受手术治疗的患者,尽管早期干预,肺功能和畸形的预后更差。研究开发有效的非手术方法,以防止轻度的,可逆的脊柱弯曲进展为复杂的,不可逆的结构畸形,是早就应该的。
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引用次数: 81
UK physicians' attitudes and practices in long-term non-invasive ventilation of Duchenne Muscular Dystrophy. 英国医生对杜氏肌营养不良症长期无创通气的态度和做法。
Pub Date : 2006-10-01 DOI: 10.1080/13638490600622613
M Kinali, A Y Manzur, E Mercuri, B E Gibson, L Hartley, A K Simonds, F Muntoni

Previous studies have shown that long-term non-invasive ventilation (NIV) is not always routinely offered by all physicians in Duchenne Muscular Dystrophy (DMD), despite evidence that this treatment improves quality of life and survival. This study examined UK physicians' practices related to respiratory follow-up and DMD ventilation. A mailed questionnaire was used. Thirty-eight of the 59 (64%) UK physicians identified via the Muscular Dystrophy Campaign (MDC) responded. Eighty-one per cent of respondents felt ethically obliged to discuss NIV with families while 13% believed that NIV results in poor quality of life. Forty-seven per cent of physicians discuss in-depth the use of NIV when the patient is in respiratory failure. Eighty-four ventilated DMD patients in the respondents' practice use NIV (via Bi-Pap Nasal mask). Nearly 66% of physicians do not consider the public cost to be an impediment to offering NIV, despite significant problems with resources' allocation in their area. While the majority of UK physicians have comparable attitudes and practices regarding NIV, the questionnaire highlighted that not all specialists were aware of the existence of consensus guidelines regarding respiratory monitoring. In addition, different practices of disclosure of life-prolonging ventilation options were used by different physicians. Seventy-one per cent of physicians wished for national consensus guidelines for different DMD age groups.

先前的研究表明,尽管有证据表明长期无创通气(NIV)可以提高生活质量和生存率,但并非所有杜氏肌营养不良症(DMD)的医生都经常提供这种治疗。这项研究调查了英国医生在呼吸随访和DMD通气方面的实践。采用邮寄问卷。通过肌肉萎缩症运动(MDC)确认的59名英国医生中有38名(64%)做出了回应。81%的受访者认为道德上有义务与家人讨论NIV,而13%的人认为NIV会导致生活质量下降。47%的医生会深入讨论患者呼吸衰竭时使用NIV的问题。84例通气DMD患者在调查对象的实践中使用了NIV(通过Bi-Pap鼻罩)。近66%的医生不认为公共成本是提供NIV的障碍,尽管他们所在地区的资源分配存在重大问题。虽然大多数英国医生对无创呼吸有类似的态度和做法,但调查问卷强调,并非所有专家都意识到存在关于呼吸监测的共识指南。此外,不同的医生使用了不同的延长生命的通气选择的披露做法。71%的医生希望针对不同DMD年龄组的全国共识指南。
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引用次数: 25
Comparing two types of augmentative and alternative communication systems for children with autism. 比较自闭症儿童两种类型的辅助和替代沟通系统。
Pub Date : 2006-10-01 DOI: 10.1080/13638490500519984
Seung-Hyun Son, Jeff Sigafoos, Mark O'Reilly, Giulio E Lancioni
This study compared acquisition and preference for two types of augmentative and alternative communication (AAC) systems in three pre-schoolers with autism. Acquisition of requesting behaviour using a picture-exchange system vs a voice-output communication aide (VOCA) was compared in an alternating treatments design. Following acquisition, both ACC systems were simultaneously available and the child could select which one of the two systems to use. There was little difference between picture-exchange and VOCA in terms of acquisition rates. Two children demonstrated a consistent preference for picture-exchange and the third showed a preference for the VOCA. Both speed of acquisition and system preference should be considered when designing AAC interventions for children with autism and related developmental disabilities. Comparamos la adquisición y preferencia en relación a dos tipos de sistemas (AAC) de comunicación alternativa y aumentativa en 3 preescolares con autismo. Se comparó la adquisición de un comportamiento solicitado a través del uso de un sistema de intercambio de dibujos contra una ayuda de comunicación de producción de voz (VOCA), en un diseño de tratamiento alternativo. Después de la adquisición ambos sistemas AAC estuvieron disponibles en forma simultánea, y el niño podía seleccionar cuál de los dos sistemas usar. Hubo poca diferencia entre el intercambio de dibujos y VOCA en término de tasas de adquisición. Dos niños demostraron una preferencia consistente para el intercambio de dibujos y el tercero demostró una preferencia por la VOCA. Tanto la velocidad de adquisición como la preferencia por un sistema deberán ser consideradas cuando se diseñen intervenciones con AAC para niños con autismo y discapacidades en el desarrollo relacionadas. Palabras Clave: comunicación alternativa y aumentativa, intercambio de dibujos, ayudas de comunicación de producción de la voz, adquisición, autismo.
本研究比较了三名学龄前自闭症儿童对两种辅助和替代沟通系统的习得和偏好。在交替治疗设计中,比较了使用图像交换系统和语音输出通信助手(VOCA)获得请求行为。在获得后,两个ACC系统同时可用,孩子可以选择使用两个系统中的哪一个。图片交换和VOCA在获取率方面差别不大。两个孩子表现出对图片交换的一贯偏好,第三个孩子表现出对VOCA的偏好。在设计自闭症及相关发育障碍儿童的AAC干预措施时,应同时考虑习得速度和系统偏好。
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引用次数: 115
Fracture rate in children with cerebral palsy. 脑瘫患儿骨折率。
Pub Date : 2006-10-01 DOI: 10.1080/13638490600668061
Richard D Stevenson, Mark Conaway, John W Barrington, Sara L Cuthill, Gordon Worley, Richard C Henderson

Objectives: To determine the prevalence of previous fracture, the rate of fracture over time and associated risk factors for fracture in children with moderate or severe cerebral palsy (CP).

Study design: Three hundred and sixty-four children with moderate-to-severe motor impairment (Gross Motor Function Classification System III, IV and V) enrolled in a multi-centre, region-based longitudinal study of growth, nutrition and health. Of these, 297 had baseline fracture information and 261 children had at least one follow-up assessment. Median duration of follow-up was 1.6 years, for over 600 person-years of follow-up.

Results: Forty-six (15.5%) children reported 62 previous fractures at baseline assessment. Children with a history of fractures at baseline were older (mean age 11.9 vs. 8.9 years, p<0.0001) and had greater body fat (triceps z-score -0.01 vs. -0.68, p=0.0003) than children with no previous fracture. Twenty children (6.7%) reported 24 fractures during the follow-up period. Factors associated with risk of fracture during the follow-up period were higher body fat (p=0.03), gastrostomy use (p=0.05) and previous fracture (p=0.10). Based on 24 fractures in 604.5 person-years of follow-up, the rate of fracture was 4.0 per hundred children (4.0%) per year. For children with a history of fracture at baseline, the fracture rate was 7.0% per year; for children with gastrostomy, 6.8% per year; and for children with high triceps skinfold, 9.7% per year.

Conclusions: Children with moderate or severe CP are at high risk for fracture. Children with greater body fat, feeding gastrostomy and prior history of fracture are at highest risk and may benefit most from intervention. Further longitudinal study and clinical trials in children with CP are needed to better understand the factors contributing to fracture risk in this population and the best methods of prevention and treatment.

目的:确定中重度脑瘫(CP)患儿既往骨折发生率、骨折发生率及相关骨折危险因素。研究设计:364名患有中重度运动障碍(大运动功能分类系统III、IV和V)的儿童参加了一项多中心、基于区域的生长、营养和健康纵向研究。其中,297名儿童有基线骨折信息,261名儿童至少有一次随访评估。中位随访时间为1.6年,随访超过600人年。结果:46名(15.5%)儿童在基线评估时报告了62例骨折。基线时有骨折史的儿童年龄较大(平均年龄11.9岁vs 8.9岁)。结论:中度或重度CP儿童骨折风险较高。体脂较大、喂养胃造口术和有骨折史的儿童风险最高,可能从干预中获益最多。需要对CP患儿进行进一步的纵向研究和临床试验,以更好地了解导致该人群骨折风险的因素以及最佳的预防和治疗方法。
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引用次数: 144
期刊
Pediatric rehabilitation
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