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(In) visibility of health and illness: Instagram as an unregulated public health platform. (健康与疾病的可见性:Instagram 作为不受监管的公共卫生平台。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-11-12 DOI: 10.1080/13648470.2024.2386887
Rachael Kent

This paper examines the changing terrain of accessing health and illness guidance and information through the lens of social media, specifically It argues how Instagram, has increasingly become an unregulated -public health platform in today's digital society. Drawing on extensive empirical interview data from two research projects before and during the COVID-19 pandemic, which explored how users showcased and performed health and illness on Instagram, this paper demonstrates how Instagram has became an important forum from which to perform proactive health practices, as well as to legitimate ill health through making healthy behaviours visible, as well as invisible illnesses like disease, COVID-19, and mental health conditions. Over time and through continuous sharing of this content may contribute to increased understanding or even a de-stigmatisation of such illnesses or chronic conditions. With the social media market currently valued at 49.9 billion, and influencer spending around 4.9 billion, the value, reach and direct impact of this 'attention economy' on public health should not be underestimated. Instagram serves as a forum for these practices and helps legitimize ill health by making both healthy behaviours and -invisible illnesses visible. This visibility can contribute to increased understanding and de-stigmatization of chronic conditions and mental health issues. The paper argues that Instagram has evolved into an informal, unregulated public health platform.

本文通过社交媒体的视角审视了获取健康与疾病指导和信息的不断变化的环境,特别是Instagram如何日益成为当今数字社会中一个不受监管的公共卫生平台。本文利用 COVID-19 大流行之前和期间的两个研究项目中的大量实证访谈数据,探讨了用户如何在 Instagram 上展示和表现健康与疾病,从而证明了 Instagram 如何成为一个重要的论坛,通过让健康行为以及疾病、COVID-19 和精神健康状况等隐形疾病变得可见,从而表现出积极的健康实践以及将疾病合法化。随着时间的推移,通过不断分享这些内容,可能会加深人们对此类疾病或慢性病的理解,甚至消除其污名。目前,社交媒体市场价值为 499 亿美元,影响者支出约为 49 亿美元,这种 "注意力经济 "对公共卫生的价值、覆盖面和直接影响不容低估。Instagram 为这些行为提供了一个论坛,并通过让健康行为和 "看不见的疾病 "变得可见,帮助将不健康行为合法化。这种可见性有助于加深人们对慢性疾病和心理健康问题的理解并消除其污名化。本文认为,Instagram 已经发展成为一个非正式的、不受监管的公共卫生平台。
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引用次数: 0
'We are not done': reclaiming care after mobile health in Burkina Faso. 我们还没有完成":布基纳法索移动医疗后的医疗服务。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-11-10 DOI: 10.1080/13648470.2024.2378735
Vincent Duclos, N Hélène Sawadogo, Hamidou Sanou

This paper discusses the afterlives of MOS@N, a mobile health (mHealth) intervention which, between 2014 and 2018, monitored maternal and child health in the district of Nouna, in rural Burkina Faso. The paper documents the work of "godmothers," who were hired and equipped with mobile phones to keep track of pregnant women, and accompany them for medical consultations. As is the case with the majority of mHealth projects in Sub-Saharan Africa, MOS@N was a pilot. This paper examines some of the enduring effects of practices of testing and demoing which were designed as temporary. Indeed, three years after MOS@N was shut down, godmothers are still doing care work. This work is now carried mostly on a voluntary basis and implies the constant repair of decaying technology, which undermines some of the original purposes of MOS@N, and (re)produces gendered forms of social obligation. Ultimately, the paper explores the remnants of a settled intervention, and how they may help us challenge imaginations of global health futures.

MOS@N 是一项移动医疗(mHealth)干预措施,2014 年至 2018 年间,该措施在布基纳法索农村地区的 Nouna 区监测孕产妇和儿童健康状况。论文记录了 "教母 "的工作,她们受雇并配备手机,跟踪孕妇的情况,并陪同她们就诊。与撒哈拉以南非洲的大多数移动保健项目一样,MOS@N 是一个试点项目。本文探讨了测试和演示做法的一些持久影响,这些做法被设计为临时性的。事实上,在 MOS@N 项目关闭三年后,教母们仍在开展护理工作。这项工作现在主要是在自愿的基础上进行的,意味着要不断修复老化的技术,这破坏了 MOS@N 的一些最初目的,并(重新)产生了社会义务的性别形式。最后,本文探讨了定居干预的残余,以及它们如何帮助我们挑战对全球健康未来的想象。
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引用次数: 0
Digital technologies and the future of health: aspirations, care and data. 数字技术与健康的未来:愿望、护理和数据。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-11-07 DOI: 10.1080/13648470.2024.2397921
Claudia Lang, Caroline Meier Zu Biesen, Marian Burchardt

As projects seeking to provide digitized tools in health care and medicine are gaining ground at an accelerating pace, imaginations and incipient formations of digital health have acquired a new political urgency. These projects promise to revolutionize health care and medicine. However, efforts to institutionalize digital technologies in health are often fraught with difficulties that cause them to stall during implementation. We explore digital health technologies with respect to how they are aspired to, designed, used, and resisted. Our central argument is that the spread of digital health technologies has set in motion complex processes around the production, extraction, circulation, and economic valorization of data. These processes reconfigure multiple sets of relationships between people, between human bodies, and machines, and between actors in health care and the diverse institutional landscapes they inhabit. We explore these processes in three interrelated and geographically dispersed fields: (a) imaginaries of health and well-being; (b) new geographies of care; and (c) the datafication and (dis-)embodiment of health. This special issue brings into creative tension case studies from across geographical locations and thematic areas. Taken together, they draw attention to the question of how digital health technologies are situated in making and shaping the future of health care. By foregrounding anthropological perspectives, this Special Issue pushes the epistemological boundaries of the emerging scholarship on digital health technologies and global health. At the same time, it argues for a closer engagement of medical anthropologists and sociologists with processes of digitization in health.

随着寻求在医疗保健和医药领域提供数字化工具的项目日益增多,对数字医疗的想象和雏形已经具有了新的政治紧迫性。这些项目有望彻底改变医疗保健和医学。然而,将数字技术制度化地应用于医疗卫生领域的努力往往困难重重,导致其在实施过程中停滞不前。我们将从数字医疗技术的渴望、设计、使用和抵制等方面对其进行探讨。我们的中心论点是,数字医疗技术的普及启动了围绕数据生产、提取、流通和经济价值化的复杂过程。这些过程重构了人与人之间、人体与机器之间、医疗保健领域的参与者与他们所居住的不同机构环境之间的多种关系。我们在三个相互关联且地理位置分散的领域探索这些过程:(a) 健康与福祉的想象;(b) 新的医疗地理;(c) 健康的数据化与(非)体现。本特刊将来自不同地理位置和主题领域的案例研究结合在一起,形成一种创造性的张力。总之,它们提请人们关注数字医疗技术如何创造和塑造未来医疗保健的问题。通过突出人类学视角,本特刊推动了数字医疗技术和全球健康新兴学术研究的认识论边界。同时,它还主张医学人类学家和社会学家应更密切地参与卫生领域的数字化进程。
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引用次数: 0
The insensitivity of 'sensitive care': the bureaucracy of pregnancy tissue disposal in England, UK. 敏感护理 "的麻木不仁:英国英格兰处理妊娠组织的官僚主义。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-10-24 DOI: 10.1080/13648470.2024.2416804
Susie Kilshaw

The practices surrounding pregnancy ends and pregnancy remains shift and change depending on the cultural and historical context. Based on ethnographic research in one group NHS Hospital organisation in England, the paper explores what practices around pregnancy remains reveal about the values afforded the material in different contexts by different actors and the moments when these intersect. It argues that framing miscarriage as bereavement helps to structure caregiving in clinical settings and that clinical practices produce foetal personhood in ways that may not be in keeping with women's notions of their pregnancy material. It illustrates that hospital practices contain notions of value which become legitimated as the appropriate approach with consequences for normativity. This may lead to women feeling isolated and abnormal when their approach is at odds with that of the clinic. Through an exploration of how women encounter and negotiate disposal practices, the paper argues that current practice requires revision to flexibly respond to diversity but also shifting meaning and values attributed to these experiences and materials.

围绕妊娠结局和妊娠遗体的实践会随着文化和历史背景的变化而变化。本文基于对英格兰一家国家医疗服务系统医院集团的人种学研究,探讨了围绕妊娠残留物的实践揭示了不同参与者在不同背景下赋予该物质的价值,以及这些价值交汇的时刻。论文认为,将流产视为丧亲之痛有助于构建临床环境中的护理工作,而临床实践产生胎儿人格的方式可能与妇女对其妊娠材料的观念不一致。这说明医院的做法包含了价值概念,这些概念被合法化为适当的方法,并对规范性产生影响。当妇女的做法与诊所的做法不一致时,这可能会导致她们感到孤立和不正常。通过对妇女如何接触和协商处置方法的探讨,本文认为需要对当前的做法进行修订,以灵活应对多样性,同时也要转变赋予这些经验和材料的意义和价值。
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引用次数: 0
Phantom data and the potentials of radical caretaking in reproductive health. 幻影数据和生殖健康激进护理的潜力。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-10-24 DOI: 10.1080/13648470.2024.2378730
Mary F E Ebeling

The potentials of digital health to improve health outcomes by empowering patients with more control over their health data have transformed into threats of criminalization in the post-Roe era, threats that are creating serious, and at times deadly, harms to patients and the providers that care for them. While patients' health data are increasingly used to criminalize healthcare, data activists, legislators, and lawyers are engaged in radical caretaking strategies to protect health data, patients, and abortion care providers.

数字医疗通过赋予患者对其健康数据更多的控制权来改善健康结果的潜力,在后 Roe 时代已转化为刑事犯罪的威胁,这种威胁正在对患者和为他们提供护理的医疗服务提供者造成严重的伤害,有时甚至是致命的伤害。当患者的健康数据越来越多地被用来对医疗保健进行定罪时,数据活动家、立法者和律师们正在采取激进的保护策略,以保护健康数据、患者和堕胎护理提供者。
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引用次数: 0
Dreaming big with little therapy devices: automated therapy from India. 用小治疗设备实现大梦想:来自印度的自动疗法。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-10-22 DOI: 10.1080/13648470.2024.2378727
Claudia Lang

This paper examines the aspirations, imaginaries and utopias of designers of an AI-based mental health app in India. By looking at automated therapy as both technological fix and sociotechnical object, I ask, What can we learn from engaging with psy technologists' imaginaries and practices of health care futures? What are the assumptions they encode in the app? How does automated therapy reconfigure the geographies and temporalities of care? While automated therapy as instantiated by Wysa provides, I argue, a modest mental health intervention, the scalar aspirations of designers are anything but small. The paper proceeds in three steps. First, it turns to designers' imaginaries of what it means to care for current mental health needs in digitally saturated lifeworlds and how they inscribe them into the app. It identifies nonjudgmental listening, anonymity, acceptance, reframing, and agency as key ideas encoded in Wysa's sociotechnical algorithms, along with a congruence between entrepreneurial and encoded ethics of care. Second, it situates automated therapy within anthropological scholarship on 'little' technical devices in global health to argue that automated therapy devices such as Wysa articulate dreams for minimalist interventions with macro effects. Finally, it explores the new geographies and temporalities of care that automated therapy spurs, tracing the ways the app bridges various spatial and temporal gaps and obstacles of human therapy and upends common global health pathways. This paper contributes to recent scholarship on aspirations, dreams and utopias and on digitization and datafication in global health.

本文研究了印度一款基于人工智能的心理健康应用程序设计者的愿望、想象和乌托邦。通过将自动治疗视为技术修复和社会技术对象,我问道:我们能从心理技术人员对未来医疗保健的想象和实践中学到什么?他们在应用程序中编码的假设是什么?自动化治疗是如何重新配置医疗保健的地理和时间的?我认为,虽然 Wysa 所实现的自动疗法只是一种微不足道的心理健康干预措施,但设计者的期望却非同小可。本文分三步进行。首先,本文探讨了设计者对于在数字饱和的生活世界中满足当前心理健康需求的想象,以及他们是如何将这些想象融入到应用程序中的。它将非评判性倾听、匿名、接纳、重构和代理作为关键理念,并将其编码在 Wysa 的社会技术算法中。其次,它将自动疗法置于全球健康 "小 "技术设备的人类学研究中,认为 Wysa 等自动疗法设备表达了对具有宏观效应的最小干预的梦想。最后,本文探讨了自动疗法所激发的新的医疗地理学和时间性,追溯了该应用如何弥合人类疗法的各种时空差距和障碍,以及如何颠覆常见的全球健康路径。本文为近期关于全球卫生领域的愿望、梦想和乌托邦以及数字化和数据化的学术研究做出了贡献。
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引用次数: 0
Bloodstream: notes towards an anthropology of digital logistics in healthcare. 血流:医疗数字物流人类学笔记。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-10-22 DOI: 10.1080/13648470.2024.2378731
Marian Burchardt, Edwin Ameso

Based on ethnographic research in northern Ghana, this article explores the complex logistics of blood and the ways in which the availability of blood has been transformed through the introduction of drones. We explore how drone services affect this ecosystem of supply and contribute to reshaping the practices of physicians, nurses, facility pharmacists and stock managers, as well as the expectations and experiences of patients and their families. Situated at the interface of medical anthropology, critical studies of infrastructure and anthropological studies of digital innovations in healthcare, our paper attends to the emerging anthropological research on medical logistics as a means of connecting people with medical resources. It demonstrates the fundamentally ambivalent nature of technological innovation: on the one hand, drones have fueled health workers' hopes and transformed access to blood. On the other hand, their introduction has also led to connectivity without stock. In line with STS scholarship, we highlight the important role of the physical properties of objects such as blood in shaping their circulation.

本文以加纳北部的人种学研究为基础,探讨了复杂的血液物流,以及通过引入无人机改变血液供应的方式。我们探讨了无人机服务如何影响血液供应的生态系统,如何帮助重塑医生、护士、医疗机构药剂师和库存管理者的实践,以及病人及其家属的期望和体验。我们的论文位于医学人类学、基础设施批判研究和医疗保健领域数字创新人类学研究的交界处,关注新兴的人类学研究,将医疗物流作为连接人与医疗资源的一种手段。它从根本上证明了技术创新的矛盾性:一方面,无人机燃起了医疗工作者的希望,改变了血液的获取方式。另一方面,无人机的引入也导致了无库存的连接。与 STS 学术研究相一致,我们强调了血液等物品的物理属性在形成其流通过程中的重要作用。
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引用次数: 0
Surveillance medicine 2.0: digital monitoring of community health workers in India. 监测医学 2.0:对印度社区卫生工作者的数字监测。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-10-18 DOI: 10.1080/13648470.2024.2378733
Sandra Bärnreuther

This paper examines a digital platform used in the primary health sector in a state in Eastern India. Within a 'regime of tactility,' it is supposed to redefine the state's presence in rural areas, not only by attending to patients but also by screening the population and establishing health databases. While the health workers who operate the digital platform represent the state in 'the peripheries,' the state itself exhibits mistrust towards them and monitors their performance through the platform. Based on long-term ethnographic research, the manuscript analyses the use of digital health technologies as technologies of accountability. The competitive nature of monitoring techniques leads to an ever-higher number of digital consultations, which projects the image of a caring and efficient state. However, the paper also explores the unintended consequences of this politics by display on the provision of healthcare. Even though digital technologies and the managerial form of governance they engender promise to touch people's lives, they lead to intangible forms of care while leaving untouched pressing structural issues that India's health sector has been facing for decades.

本文探讨了印度东部某邦初级卫生部门使用的数字平台。在 "触觉制度 "中,该平台被认为可以重新定义国家在农村地区的存在,不仅可以为病人提供服务,还可以对人口进行筛查并建立健康数据库。虽然操作数字平台的卫生工作者代表着 "边缘地区 "的国家,但国家本身却对他们表现出不信任,并通过平台监控他们的表现。在长期人种学研究的基础上,手稿分析了数字医疗技术作为问责技术的使用情况。监控技术的竞争性质导致数字会诊的数量不断增加,从而塑造了一个关爱和高效的国家形象。然而,本文也探讨了这种政治在提供医疗服务方面的意外后果。尽管数字技术及其带来的管理形式有望触及人们的生活,但它们在带来无形形式的关怀的同时,却忽略了印度卫生部门数十年来一直面临的紧迫结构性问题。
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引用次数: 0
A matter of balance. Positioning of parents' selves through negotiations of symptoms' meaning at a pain clinic for children/young people. 平衡问题。在儿童/青少年疼痛门诊中,通过对症状意义的协商来定位父母的自我。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-09-02 DOI: 10.1080/13648470.2024.2373013
Sara Seerup Laursen

This paper traces how the meaning of symptoms and the positioning of selves are entangled and discursively constructed in therapeutic conversations between parents and therapists at a pain clinic for children and young people (age 8 to 18) with recurrent or chronic pain or other somatic symptoms with no established biophysical pathology. Based on data material from an ethnographic fieldwork it is examined how the selves of respectively children/young people and their parents are discursively positioned in conversational encounters and the role positioning of selves play in the context of establishing and negotiating the symptoms' meaning. The bearer of medically unexplained symptoms is oftentimes subjected to moral assessments. In this paper it will be shown that parents, in the institutional setting of the pain clinic, enter the negotiation of moral assessments assigned to their children, and that these moral assessments not only concern the sufferers' selves but also the selves of the parents. The overall argument is that dialogues between parents and therapists concerning the meaning and source of their children's symptoms are simultaneously negotiations in which not only the sufferers'  but also their parents' moral positions are at stake.

本文追溯了在一家疼痛诊所中,父母与治疗师之间的治疗对话中,症状的意义和自我的定位是如何纠缠在一起并进行话语建构的,该诊所的服务对象是患有反复发作或慢性疼痛或其他躯体症状但未确定生物物理病理学的儿童和青少年(8 至 18 岁)。根据人种学实地调查的数据资料,研究了儿童/青少年及其父母的自我在对话中是如何进行话语定位的,以及自我定位在确立和协商症状意义方面所起的作用。医学上无法解释的症状的携带者经常受到道德评价。本文将说明,在疼痛诊所的机构环境中,父母参与了对其子女的道德评估的协商,这些道德评估不仅涉及患者的自我,也涉及父母的自我。总的论点是,父母与治疗师之间关于其子女症状的意义和来源的对话同时也是一场谈判,在这场谈判中,不仅涉及患者的道德立场,也涉及其父母的道德立场。
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引用次数: 0
Telecare that works: lessons on integrating digital technologies in elder care from Indian transnational families. 行之有效的远程护理:印度跨国家庭在将数字技术融入老年人护理方面的经验教训。
IF 1.5 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-08-30 DOI: 10.1080/13648470.2024.2378726
Tanja Ahlin, Kasturi Sen, Jeannette Pols

In recent decades, policy makers around the world have been working on implementing various technologies into healthcare, and the Covid19 pandemic fueled this process. The specialized technological solutions for telecare - the use of technologies for care at a distance - are often adopted by users in different ways than intended, or are abandoned if the users cannot find applications that are meaningful to them. However, beyond specialized healthcare technologies, people are incorporating mundane digital technologies into their (health)care practices. In this paper, we draw on ethnographic research on the use of everyday digital technologies in Indian families where migrating children who are professional nurses care for their aging parents at a distance. Our findings show that 1) remote elder care is enacted through frequent calling which further fosters trust, necessary to provide healthcare remotely; 2) the motivation for older adults to engage with digital technologies is grounded in the value of family and affect which is consequential also for health; 3) technologies, too, require care-work in the form of everyday maintenance; and 4) in-person visits from children remain important, indicating that hybrid interaction is optimal for good care at a distance. We conclude that taking these findings into account may contribute to a more successful implementation of formal telecare systems.

近几十年来,世界各地的政策制定者一直在努力将各种技术应用到医疗保健领域,而 Covid19 大流行则推动了这一进程。远程医疗的专业技术解决方案--使用远程医疗技术--往往被用户以不同于预期的方式采用,或者如果用户找不到对他们有意义的应用,就会放弃。然而,除了专门的医疗保健技术之外,人们还将普通的数字技术融入到他们的(医疗)保健实践中。在本文中,我们通过人种学研究了解了印度家庭中日常数字技术的使用情况,在这些家庭中,身为专业护士的移民子女远程照顾年迈的父母。我们的研究结果表明:1)远程老人护理是通过频繁的通话来实现的,这进一步促进了远程医疗所需的信任;2)老年人使用数字技术的动机是基于家庭和情感的价值,这对健康也是有影响的;3)技术也需要日常维护形式的护理工作;4)子女的亲自探访仍然很重要,这表明混合互动是实现良好远程护理的最佳方式。我们的结论是,考虑到这些发现可能有助于更成功地实施正规远程护理系统。
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引用次数: 0
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Anthropology & Medicine
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