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Chronic relationships and mental health care: global pharmaceuticals in a local healing shrine in India. 慢性关系和精神保健:印度当地治疗圣地的全球药品。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-06-01 DOI: 10.1080/13648470.2023.2212212
Shubha Ranganathan

The paper explores how chronicities and chronic relationships are fostered at a state-sponsored community psychiatry clinic that has been affiliated with a Sufi shrine in western India. The clinic provides free psychotropic treatment to patients, most of whom are pilgrims visiting the shrine. While the clinic has been lauded for its collaborative approach of blending 'medicine and prayer' in the provision of mental health care, observations of clinical encounters reflect the prevalence of a strongly medicalized perspective of mental illness, where local narratives of distress are reframed as globalized categories of mental disorder, thereby permitting pharmacological intervention. Importantly, in a context where free medicines are offered just as other freebies are in development initiatives in India, this results in the creation of long-term, 'chronic' relationships with patients who only seem to return for medicines, never recovering. This paper illustrates how 'chronicity', in many ways, is built into the project from the beginning itself. It becomes evident in the assumptions of the officials and psychiatrists that mental illness is chronic, in the case files of patients that record their consultation and medication histories, and in the clinical conversations about the importance of compliance to treatment. Given that historically, community mental health emerged in the context of reducing long hospital stays and deinstitutionalizing mental health care, it is important to reflect on how these policies and practices result in the creation of a cadre of chronic out-patients.

这篇论文探讨了在印度西部一个隶属于苏菲派圣地的国家资助的社区精神病学诊所中,慢性疾病和慢性关系是如何培养的。该诊所为患者提供免费精神治疗,其中大多数是参拜靖国神社的朝圣者。虽然该诊所因其在提供精神卫生保健方面将“药物和祈祷”相结合的合作方式而受到称赞,但对临床遭遇的观察反映了一种强烈的精神疾病医学化观点的盛行,在这种观点中,当地的痛苦叙述被重新定义为精神障碍的全球化类别,从而允许药物干预。重要的是,在提供免费药物的背景下,就像印度的发展计划中提供其他免费赠品一样,这导致与患者建立了长期的“慢性”关系,这些患者似乎只是为了药物而回来,永远不会康复。这篇文章说明了“慢性”在很多方面是如何从一开始就融入到项目之中的。在官员和精神病学家的假设中,精神疾病是慢性的,在记录患者咨询和用药史的病例档案中,在关于遵守治疗的重要性的临床谈话中,这一点变得很明显。鉴于从历史上看,社区精神健康是在减少长期住院时间和精神保健非机构化的背景下出现的,因此必须反思这些政策和做法是如何导致慢性门诊病人骨干队伍的形成的。
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引用次数: 0
Weeping wombs: Leucorrhea and the chronicity of distress in Gilgit-Baltistan. 哭泣的子宫:白带和吉尔吉特-巴尔蒂斯坦的慢性痛苦。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-06-01 DOI: 10.1080/13648470.2020.1865037
Emma Varley

In Gilgit, capital of the Gilgit-Baltistan region in northern Pakistan, leucorrhea - vaginal discharge known in the vernacular as safaid pani, or 'white water' - serves as both a medical diagnosis and signifier of the chronicity of the reproductive, social, and emotional burdens endured by women. While ethnomedical providers explained safaid pani as resulting from relatively benign forms of 'weakness', which required minimal dietary or ethno-botanical recourse, allopathic physicians approached discharge as evidence of numerous pathologies that necessitated protracted and sometimes also expensive treatments. Physicians' clinical assessments were not solely biomedical, but also integrated informal folk and formal ethnomedical theories of causation. Clinical diagnoses that affirmed leucorrhea as a pathophysiology substantiated women's belief that it was proof of the destructive effects of sustained social inequity, peril, and distress on the body, and the uterus in particular. Women and their treating providers recognized the power of the (dys)functional uterus to not only threaten women's reproductive wellness but also their social, marital, and familial status, which hinged on their ability to become pregnant and give birth, to sons especially. Because of the ailing uterus's expansive importance, weeping wombs served as a potent source for women's claims making and calls for attention and care.

在巴基斯坦北部吉尔吉特-巴尔蒂斯坦地区的首府吉尔吉特,白带——一种阴道分泌物,在白话中被称为safaid pani,或“白水”——既是一种医学诊断,也是女性承受生殖、社会和情感负担的慢性病的象征。虽然民族医学提供者解释说,恐慌是由相对良性的“虚弱”引起的,这需要很少的饮食或民族植物资源,但对抗疗法医生将出院视为许多疾病的证据,需要长期治疗,有时还需要昂贵的治疗。医生的临床评估不仅仅是生物医学的,而且还整合了非正式的民间和正式的民族医学因果关系理论。临床诊断证实白带是一种病理生理学,这证实了女性的信念,即白带证明了持续的社会不平等、危险和痛苦对身体,尤其是对子宫的破坏性影响。妇女和她们的治疗提供者认识到,(天)功能子宫的力量不仅威胁到妇女的生殖健康,而且威胁到她们的社会、婚姻和家庭地位,这取决于她们怀孕和生育的能力,尤其是生儿子。由于患病的子宫具有广泛的重要性,哭泣的子宫成为女性提出要求和呼吁关注和照顾的有力来源。
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引用次数: 2
Chronic illness in South Asia: rethinking discourses of risk, evidence, and control. 南亚慢性病:重新思考风险、证据和控制的话语。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-06-01 DOI: 10.1080/13648470.2023.2202055
Shubha Ranganathan

This special issue brings together five original research papers on chronic conditions in South Asian contexts with a view to rethink dominant discourses of risk, evidence and control surrounding the category of chronic conditions. Focusing on the multiple and contradictory (re)definitions of what counts as illness, specifically in the context of the rising burden of chronic illness, the papers in this issue deal with a range of health care practices from individual patients negotiating with 'healthy diet', to policy questions about the etiology of emerging disease burden and appropriateness of pharmaceutical interventions in 'traditional' sites of healing. While some of the chronic illnesses addressed in this special issue have received considerable attention from anthropologists (e.g. mental illness, diabetes), others, like leucorrhea have rarely been studied by anthropologists, despite the growing literature on 'chronic illnesses'.

本期特刊汇集了五篇关于南亚慢性病的原创研究论文,旨在重新思考围绕慢性病类别的风险、证据和控制的主流话语。关注疾病的多重和相互矛盾的(重新)定义,特别是在慢性病负担不断增加的背景下,本期的论文涉及一系列卫生保健实践,从个体患者与“健康饮食”的谈判,到有关新出现的疾病负担的病因学和“传统”治疗场所药物干预的适当性的政策问题。虽然本期特刊中讨论的一些慢性疾病已经受到了人类学家的相当大的关注(例如精神疾病、糖尿病),但其他疾病,如白带,很少被人类学家研究,尽管关于“慢性疾病”的文献越来越多。
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引用次数: 0
"Initially, medicines will be given, and then we need to study the case": Medicalized perspectives about chronicity and mental health care in Kerala. “最初,将提供药物,然后我们需要研究病例”:喀拉拉邦慢性病和精神卫生保健的医学观点。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-06-01 DOI: 10.1080/13648470.2023.2212206
Sudarshan R Kottai, Shubha Ranganathan

In response to the global call to upscale mental health services in low--income countries, mental health non-governmental organisations (MHNGOs) have sprung up in Kerala to address mental health needs by partnering with pre-existing locally grown, bottom-up, community-led pain and palliative clinics (PPCs) to increase access to mental health care through task-shifting. The MHNGOs mandate filtering only patients with 'severe mental disorders' from low socioeconomic backgrounds for their free services. This eligibility criterion mandated by the MHNGO is ruffling feathers within the palliative clinics that oppose such -classifications. They believe that suffering cuts across all divisions and should not be discriminated against based on economic background and severity of illnesses. When chronicity and suffering are held universal by the MHNGO and palliative care, respectively, it brings to the fore the enactment of two perspectives of care. Drawing on observations of clinical interactions between patients, MHNGO staff and mental health professionals and interviews with community volunteers of palliative care clinics in Kerala, this paper demonstrates how chronicity narrative promoted by MHNGOs based on biopsychiatric model gains hegemony, whereas the community care model loses traction progressively. The state, caught between these two narratives, frontstages development by submitting its health machinery to the MHNGOs flouting basic medical safety laws in its services to marginalised people like the tribal population. This paper argues that the rising dominance of chronicity narrative in community mental health clinics as well as in popular media discourses evolves out of power relations between the MHNGOs and the palliative clinics.

为了响应全球对低收入国家高端精神卫生服务的呼吁,精神卫生非政府组织(MHNGOs)在喀拉拉邦如雨后春笋般涌现,通过与当地已有的自下而上、社区主导的疼痛和缓和诊所(PPCs)合作,通过任务转移增加获得精神卫生保健的机会,来解决精神卫生需求。MHNGOs规定,只有社会经济背景较低的“严重精神障碍”患者才能获得免费服务。MHNGO规定的这一资格标准在反对这种分类的姑息治疗诊所中引起了骚动。他们认为痛苦不分阶层,不应该因为经济背景和疾病的严重程度而受到歧视。当慢性和痛苦是普遍持有MHNGO和姑息治疗,分别,它带来了两种观点的制定护理。本文通过观察患者、MHNGO工作人员和精神卫生专业人员之间的临床互动以及对喀拉拉邦临终关怀诊所社区志愿者的访谈,证明了基于生物精神病学模式的MHNGO推广的慢性叙事获得了主导地位,而社区护理模式逐渐失去吸引力。被夹在这两种说法之间的国家,在向部落人口等边缘人群提供服务时,无视基本医疗安全法,将其医疗机构交给跨国公司,从而抢占了发展的先机。本文认为,慢性叙事在社区精神卫生诊所以及大众媒体话语中的主导地位日益上升,是由mhngo与姑息治疗诊所之间的权力关系演变而来的。
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引用次数: 0
Imaginaries of a laparoscope: power, convenience, and sterilization in rural India. 想象中的腹腔镜:印度农村的力量、便利和消毒。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2022.2152634
Eva Fiks

Laparoscopic tubal ligation is the most prevalent method of contraception amongst India's rural and urban poor. Drawing on 18 months of ethnographic fieldwork in rural Rajasthan in 2012-2013, this paper investigates how rural women's perceptions of a biomedical instrument-the laparoscope-influence their perceptions of sterilization, a procedure often entrenched in coercive, target- and incentive-driven population control programme. By investigating how a laparoscope is entangled in global exchanges, national policies, institutional arrangements, and local moral worlds, this paper demonstrates that while wider biomedical discourses perpetuate the narrative of safety and convenience, people's everyday lives inform their understandings of technology that is widely known but rarely seen.

腹腔镜输卵管结扎是印度农村和城市贫困人口中最普遍的避孕方法。根据2012-2013年在拉贾斯坦邦农村进行的为期18个月的人种学田野调查,本文调查了农村妇女对腹腔镜这一生物医学仪器的看法如何影响她们对绝育的看法,绝育通常根深蒂固地存在于强制性、目标驱动和激励驱动的人口控制计划中。通过调查腹腔镜如何与全球交流、国家政策、制度安排和当地道德世界纠缠在一起,本文表明,尽管更广泛的生物医学话语使安全性和便利性的叙述永久化,但人们的日常生活告诉他们对广为人知但很少见到的技术的理解。
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引用次数: 1
The unsanitary other and racism during the pandemic: analysis of purity discourses on social media in India, France and United States of America during the COVID-19 pandemic. 大流行期间的不卫生他人与种族主义:对2019冠状病毒病大流行期间印度、法国和美利坚合众国社交媒体上的纯粹性言论的分析
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2180259
Christian Desmarais, Melissa Roy, Minh Thi Nguyen, Vivek Venkatesh, Cecile Rousseau

The global rise of populism and concomitant polarizations across disenfranchised and marginalized groups has been magnified by so-called echo chambers, and a major public health crisis like the COVID-19 pandemic has only served to fuel these intergroup tensions. Media institutions disseminating information on ways to prevent the propagation of the virus have reactivated a specific discursive phenomenon previously observed in many epidemics: the construction of a defiled 'Other'. With anthropological lenses, discourse on defilement is an interesting path to understand the continuous emergence of pseudo-scientific forms of racism. In this paper, the authors focus on 'borderline racism', that is the use of an institutionally 'impartial' discourse to reaffirm the inferiority of another race. The authors employed inductive thematic analysis of 1200 social media comments reacting to articles and videos published by six media in three different countries (France, United States and India). Results delineate four major themes structuring defilement discourses: food (and the relationship to animals), religion, nationalism and gender. Media articles and videos portrayed Western and Eastern countries through contrasting images and elicited a range of reaction in readers and viewers. The discussion reflects on how borderline racism can be an appropriate concept to understand the appearance of hygienic othering of specific subgroups on social media. Theoretical implications and recommendations on a more culturally sensitive approach of media coverage of epidemics and pandemics are discussed.

所谓的回音室放大了民粹主义在全球的兴起以及被剥夺权利和边缘化群体之间随之而来的两极分化,而COVID-19大流行等重大公共卫生危机只会加剧这些群体间的紧张关系。传播关于预防病毒传播方法的信息的媒体机构重新激活了以前在许多流行病中观察到的一种特定的话语现象:构建一个被玷污的“他者”。从人类学的角度来看,关于污秽的论述是理解不断出现的伪科学形式的种族主义的有趣途径。在本文中,作者关注“边缘种族主义”,即使用制度上的“公正”话语来重申另一个种族的劣等性。作者对来自三个不同国家(法国、美国和印度)的六家媒体发布的文章和视频的1200条社交媒体评论进行了归纳主题分析。结果描述了构成污秽话语的四个主要主题:食物(以及与动物的关系)、宗教、民族主义和性别。媒体文章和视频通过对比图像描绘了西方和东方国家,并在读者和观众中引起了一系列反应。讨论反映了边缘种族主义如何成为理解社交媒体上特定子群体的卫生其他外观的适当概念。讨论了对流行病和大流行的媒体报道采取更具文化敏感性的方法的理论含义和建议。
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引用次数: 0
Bodies and orientations. Perspectives and strategies among service users in psychosocial rehabilitation housing facilities in Denmark. 身体和方向。丹麦社会心理康复住房设施服务使用者的观点和策略。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2181573
Anne Mia Steno

Recovery-orientated approaches have grown more and more common in psychosocial rehabilitation in Denmark, thus shifting the focus to the dynamic status of mental health issues that were historically regarded as chronic. This change has caused an important shift towards recognizing service users as humans with equal rights and possibilities. But the recovery-oriented approach is also complex and difficult to apply in practice. Drawing on phenomenological concepts of bodies and orientations in space, the paper discusses how bodies, which are perceived as queer, seek to reorientate themselves. The discussion draws on three empirical cases involving service users from fieldwork at housing facilities for people with severe mental health issues. The paper concludes that psychosocial rehabilitation housing facilities may benefit from adopting a broader perspective on body orientations because this contributes with a focus on service users as active agents who strive to inhabit space.

以康复为导向的方法在丹麦的社会心理康复中越来越普遍,从而将重点转移到历史上被视为慢性的心理健康问题的动态状态上。这一变化导致了一个重要的转变,即承认服务用户是具有平等权利和可能性的人。但以恢复为导向的方法也很复杂,难以在实践中应用。利用现象学的身体和空间取向概念,本文讨论了被认为是酷儿的身体如何寻求重新定位自己。讨论借鉴了三个经验性案例,这些案例涉及在为患有严重精神健康问题的人提供的住房设施进行实地工作的服务使用者。本文的结论是,社会心理康复住房设施可能受益于采用更广泛的身体取向视角,因为这有助于将服务使用者作为努力居住空间的积极主体。
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引用次数: 0
'Small' data, isolated populations, and new categories of rare diseases in Finland and Poland. 芬兰和波兰的“小”数据、孤立人群和罕见疾病新类别。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2022.2152633
Małgorzata Rajtar

Health policy and academic discourses on rare diseases and people with rare conditions frequently employ terms such as 'low prevalence' and 'unique' to characterize the smallness of the population under consideration and to justify targeted action toward these patient groups. This paper draws from recent anthropological scholarship on smallness and data, ethnographic research in Finland and Poland, as well as document and media analysis to examine how data is utilized in the context of isolated populations that are considered sites of rare diseases in these two countries. Specifically, this paper juxtaposes the notion of Finnish Disease Heritage (FDH) with that of a 'Kashubian gene' in Poland. The concept of FDH was developed by Finnish researchers in the 1970s; it encompasses almost forty rare hereditary diseases that are significantly more prevalent in Finland than elsewhere globally. On the other hand, the notion of the 'Kashubian gene' was first utilized by the media and some members of the Polish medical community around 2008. Based on 'unstable' data gathered during genetic research, the term referred to the high prevalence of a rare metabolic disorder (Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase (LCHAD) deficiency) among Kashubians, an ethnic minority that resides in Northern Poland's Pomerania region. Whereas FDH facilitated the production and branding of 'a unique Finnish genetic identity' (Tupasela 2016b, 61), the notion of the 'Kashubian gene' has engendered health policy interventions targeting members of this ethnic minority and has contributed to stigmatizing practices carried out against Kashubians.

关于罕见病和罕见病患者的卫生政策和学术论述经常使用诸如“患病率低”和“独特”等术语来说明所考虑的人口较少的特点,并为针对这些患者群体采取有针对性的行动提供理由。本文借鉴了最近关于小规模和数据的人类学研究,芬兰和波兰的民族志研究,以及文件和媒体分析,以检查如何在这两个国家被认为是罕见疾病地点的孤立人群的背景下利用数据。具体来说,本文将芬兰疾病遗传(FDH)的概念与波兰的“卡舒比基因”并置。外佣的概念是由芬兰研究人员在20世纪70年代提出的;它涵盖了近40种罕见的遗传性疾病,这些疾病在芬兰比全球其他地方普遍得多。另一方面,媒体和波兰医学界的一些成员在2008年左右首次使用了“卡舒比人基因”的概念。根据基因研究期间收集的“不稳定”数据,该术语指的是居住在波兰北部波美拉尼亚地区的少数民族卡舒比亚人中一种罕见的代谢紊乱(长链3-羟基酰基辅酶a脱氢酶(LCHAD)缺乏症)的高患病率。尽管外帮工促进了“芬兰独特基因身份”的产生和品牌推广(Tupasela 2016b, 61),但“卡舒比基因”的概念引发了针对这一少数民族成员的卫生政策干预,并助长了针对卡舒比人的污名化做法。
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引用次数: 0
'Only parents can understand the problems and needs of children with thalassaemia': parental activism for thalassaemia care in Northern India. “只有父母才能理解地中海贫血儿童的问题和需求”:印度北部地中海贫血护理的父母行动主义。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2180258
Maya Unnithan, Chhaya Pachauli, Sangeeta Chattoo, Karl Atkin

Evolving knowledge of genetics and improved clinical care have re-shaped life choices for those suffering from chronic, incurable conditions and their families. Yet the realisation of care requires complex navigation to access vital therapies which is often difficult for individuals or their family carers. In the article, we explore the struggles and strategies of parents of children with thalassemia (a genetically inherited blood disorder) in a North Indian city, who have come together to ensure better long-term health of their children. A focus on the ways in which families come together and remain apart in their quest for guaranteed access to life-saving substances such as filtered blood, provides insight into the diversity of bio-social strategies at work. It is not only family relationships and kinship, we suggest, but bio-sociality itself which is reshaped with the advent of new rights-based languages, evolving therapies and state support which hold out new possibilities for young people with thalassemia to live as normal a life-course as possible.

遗传学知识的不断发展和临床护理的改善,重新塑造了那些患有慢性不治之症的患者及其家人的生活选择。然而,护理的实现需要复杂的导航才能获得重要的治疗,这对个人或其家庭护理人员来说往往很困难。在这篇文章中,我们探讨了印度北部一个城市患有地中海贫血(一种遗传性血液疾病)儿童的父母的斗争和策略,他们聚集在一起确保他们的孩子更好的长期健康。关注家庭在寻求有保障地获得救生物质(如过滤后的血液)的过程中聚在一起或分开的方式,可以深入了解起作用的生物社会战略的多样性。我们认为,不仅是家庭关系和亲属关系,而且生物社会性本身也随着新的基于权利的语言、不断发展的治疗方法和国家支持的出现而被重塑,这些都为地中海贫血的年轻人尽可能过上正常的生活提供了新的可能性。
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引用次数: 0
Biomedical treatment and divine assistance: complementary reproductive itineraries among catholic women users of assisted reproduction technology in Argentina. 生物医学治疗和神的帮助:阿根廷天主教妇女辅助生殖技术使用者的辅助生殖行程。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144804
Ana Lucia Olmos Alvarez, María Cecilia Johnson

This paper explores how Catholic women in Argentina use assisted reproduction technologies (ARTs), and particularly the way in which they resort to biomedicine and religion as complementary sources of knowledge, support and assistance during reproductive treatments. It is concerned about the role of the Catholic religion in local reproductive itineraries, seeing that Catholicism has such significant social, political and cultural influence in the country. Drawing on a qualitative and ethnographic study of Catholic spaces of worship, a maternity hospital and in-depth interviews with former users from three metropolitan areas in Argentina, we examine how reproductive itineraries involve the users' agency in building health resources from religion, with reference to biomedicine. The data reveal that women address religion as an affective, social and therapeutic recourse intertwined with biomedical power. These findings highlight the multiple and complex forms reproduction acquires in specific social, cultural and normative contexts, and contribute to discussing the complementarity between religion and biomedicine in health experiences.

本文探讨了阿根廷的天主教妇女如何使用辅助生殖技术,特别是她们在生殖治疗期间求助于生物医学和宗教作为补充知识、支持和援助来源的方式。委员会对天主教在地方生育路线中的作用表示关切,因为天主教在该国具有如此重大的社会、政治和文化影响。根据对天主教礼拜场所、一家妇产医院的定性和人种学研究,以及对阿根廷三个大都市地区的前使用者的深入访谈,我们研究了生殖行程如何使使用者的代理机构在参考生物医学的情况下从宗教中建立卫生资源。数据显示,女性将宗教视为与生物医学力量交织在一起的情感、社会和治疗资源。这些发现突出了生殖在特定的社会、文化和规范背景下获得的多种和复杂形式,并有助于讨论宗教和生物医学在健康经验中的互补性。
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引用次数: 0
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