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The unsanitary other and racism during the pandemic: analysis of purity discourses on social media in India, France and United States of America during the COVID-19 pandemic. 大流行期间的不卫生他人与种族主义:对2019冠状病毒病大流行期间印度、法国和美利坚合众国社交媒体上的纯粹性言论的分析
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2180259
Christian Desmarais, Melissa Roy, Minh Thi Nguyen, Vivek Venkatesh, Cecile Rousseau

The global rise of populism and concomitant polarizations across disenfranchised and marginalized groups has been magnified by so-called echo chambers, and a major public health crisis like the COVID-19 pandemic has only served to fuel these intergroup tensions. Media institutions disseminating information on ways to prevent the propagation of the virus have reactivated a specific discursive phenomenon previously observed in many epidemics: the construction of a defiled 'Other'. With anthropological lenses, discourse on defilement is an interesting path to understand the continuous emergence of pseudo-scientific forms of racism. In this paper, the authors focus on 'borderline racism', that is the use of an institutionally 'impartial' discourse to reaffirm the inferiority of another race. The authors employed inductive thematic analysis of 1200 social media comments reacting to articles and videos published by six media in three different countries (France, United States and India). Results delineate four major themes structuring defilement discourses: food (and the relationship to animals), religion, nationalism and gender. Media articles and videos portrayed Western and Eastern countries through contrasting images and elicited a range of reaction in readers and viewers. The discussion reflects on how borderline racism can be an appropriate concept to understand the appearance of hygienic othering of specific subgroups on social media. Theoretical implications and recommendations on a more culturally sensitive approach of media coverage of epidemics and pandemics are discussed.

所谓的回音室放大了民粹主义在全球的兴起以及被剥夺权利和边缘化群体之间随之而来的两极分化,而COVID-19大流行等重大公共卫生危机只会加剧这些群体间的紧张关系。传播关于预防病毒传播方法的信息的媒体机构重新激活了以前在许多流行病中观察到的一种特定的话语现象:构建一个被玷污的“他者”。从人类学的角度来看,关于污秽的论述是理解不断出现的伪科学形式的种族主义的有趣途径。在本文中,作者关注“边缘种族主义”,即使用制度上的“公正”话语来重申另一个种族的劣等性。作者对来自三个不同国家(法国、美国和印度)的六家媒体发布的文章和视频的1200条社交媒体评论进行了归纳主题分析。结果描述了构成污秽话语的四个主要主题:食物(以及与动物的关系)、宗教、民族主义和性别。媒体文章和视频通过对比图像描绘了西方和东方国家,并在读者和观众中引起了一系列反应。讨论反映了边缘种族主义如何成为理解社交媒体上特定子群体的卫生其他外观的适当概念。讨论了对流行病和大流行的媒体报道采取更具文化敏感性的方法的理论含义和建议。
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引用次数: 0
Bodies and orientations. Perspectives and strategies among service users in psychosocial rehabilitation housing facilities in Denmark. 身体和方向。丹麦社会心理康复住房设施服务使用者的观点和策略。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2181573
Anne Mia Steno

Recovery-orientated approaches have grown more and more common in psychosocial rehabilitation in Denmark, thus shifting the focus to the dynamic status of mental health issues that were historically regarded as chronic. This change has caused an important shift towards recognizing service users as humans with equal rights and possibilities. But the recovery-oriented approach is also complex and difficult to apply in practice. Drawing on phenomenological concepts of bodies and orientations in space, the paper discusses how bodies, which are perceived as queer, seek to reorientate themselves. The discussion draws on three empirical cases involving service users from fieldwork at housing facilities for people with severe mental health issues. The paper concludes that psychosocial rehabilitation housing facilities may benefit from adopting a broader perspective on body orientations because this contributes with a focus on service users as active agents who strive to inhabit space.

以康复为导向的方法在丹麦的社会心理康复中越来越普遍,从而将重点转移到历史上被视为慢性的心理健康问题的动态状态上。这一变化导致了一个重要的转变,即承认服务用户是具有平等权利和可能性的人。但以恢复为导向的方法也很复杂,难以在实践中应用。利用现象学的身体和空间取向概念,本文讨论了被认为是酷儿的身体如何寻求重新定位自己。讨论借鉴了三个经验性案例,这些案例涉及在为患有严重精神健康问题的人提供的住房设施进行实地工作的服务使用者。本文的结论是,社会心理康复住房设施可能受益于采用更广泛的身体取向视角,因为这有助于将服务使用者作为努力居住空间的积极主体。
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引用次数: 0
'Small' data, isolated populations, and new categories of rare diseases in Finland and Poland. 芬兰和波兰的“小”数据、孤立人群和罕见疾病新类别。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2022.2152633
Małgorzata Rajtar

Health policy and academic discourses on rare diseases and people with rare conditions frequently employ terms such as 'low prevalence' and 'unique' to characterize the smallness of the population under consideration and to justify targeted action toward these patient groups. This paper draws from recent anthropological scholarship on smallness and data, ethnographic research in Finland and Poland, as well as document and media analysis to examine how data is utilized in the context of isolated populations that are considered sites of rare diseases in these two countries. Specifically, this paper juxtaposes the notion of Finnish Disease Heritage (FDH) with that of a 'Kashubian gene' in Poland. The concept of FDH was developed by Finnish researchers in the 1970s; it encompasses almost forty rare hereditary diseases that are significantly more prevalent in Finland than elsewhere globally. On the other hand, the notion of the 'Kashubian gene' was first utilized by the media and some members of the Polish medical community around 2008. Based on 'unstable' data gathered during genetic research, the term referred to the high prevalence of a rare metabolic disorder (Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase (LCHAD) deficiency) among Kashubians, an ethnic minority that resides in Northern Poland's Pomerania region. Whereas FDH facilitated the production and branding of 'a unique Finnish genetic identity' (Tupasela 2016b, 61), the notion of the 'Kashubian gene' has engendered health policy interventions targeting members of this ethnic minority and has contributed to stigmatizing practices carried out against Kashubians.

关于罕见病和罕见病患者的卫生政策和学术论述经常使用诸如“患病率低”和“独特”等术语来说明所考虑的人口较少的特点,并为针对这些患者群体采取有针对性的行动提供理由。本文借鉴了最近关于小规模和数据的人类学研究,芬兰和波兰的民族志研究,以及文件和媒体分析,以检查如何在这两个国家被认为是罕见疾病地点的孤立人群的背景下利用数据。具体来说,本文将芬兰疾病遗传(FDH)的概念与波兰的“卡舒比基因”并置。外佣的概念是由芬兰研究人员在20世纪70年代提出的;它涵盖了近40种罕见的遗传性疾病,这些疾病在芬兰比全球其他地方普遍得多。另一方面,媒体和波兰医学界的一些成员在2008年左右首次使用了“卡舒比人基因”的概念。根据基因研究期间收集的“不稳定”数据,该术语指的是居住在波兰北部波美拉尼亚地区的少数民族卡舒比亚人中一种罕见的代谢紊乱(长链3-羟基酰基辅酶a脱氢酶(LCHAD)缺乏症)的高患病率。尽管外帮工促进了“芬兰独特基因身份”的产生和品牌推广(Tupasela 2016b, 61),但“卡舒比基因”的概念引发了针对这一少数民族成员的卫生政策干预,并助长了针对卡舒比人的污名化做法。
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引用次数: 0
'Only parents can understand the problems and needs of children with thalassaemia': parental activism for thalassaemia care in Northern India. “只有父母才能理解地中海贫血儿童的问题和需求”:印度北部地中海贫血护理的父母行动主义。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2180258
Maya Unnithan, Chhaya Pachauli, Sangeeta Chattoo, Karl Atkin

Evolving knowledge of genetics and improved clinical care have re-shaped life choices for those suffering from chronic, incurable conditions and their families. Yet the realisation of care requires complex navigation to access vital therapies which is often difficult for individuals or their family carers. In the article, we explore the struggles and strategies of parents of children with thalassemia (a genetically inherited blood disorder) in a North Indian city, who have come together to ensure better long-term health of their children. A focus on the ways in which families come together and remain apart in their quest for guaranteed access to life-saving substances such as filtered blood, provides insight into the diversity of bio-social strategies at work. It is not only family relationships and kinship, we suggest, but bio-sociality itself which is reshaped with the advent of new rights-based languages, evolving therapies and state support which hold out new possibilities for young people with thalassemia to live as normal a life-course as possible.

遗传学知识的不断发展和临床护理的改善,重新塑造了那些患有慢性不治之症的患者及其家人的生活选择。然而,护理的实现需要复杂的导航才能获得重要的治疗,这对个人或其家庭护理人员来说往往很困难。在这篇文章中,我们探讨了印度北部一个城市患有地中海贫血(一种遗传性血液疾病)儿童的父母的斗争和策略,他们聚集在一起确保他们的孩子更好的长期健康。关注家庭在寻求有保障地获得救生物质(如过滤后的血液)的过程中聚在一起或分开的方式,可以深入了解起作用的生物社会战略的多样性。我们认为,不仅是家庭关系和亲属关系,而且生物社会性本身也随着新的基于权利的语言、不断发展的治疗方法和国家支持的出现而被重塑,这些都为地中海贫血的年轻人尽可能过上正常的生活提供了新的可能性。
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引用次数: 0
Biomedical treatment and divine assistance: complementary reproductive itineraries among catholic women users of assisted reproduction technology in Argentina. 生物医学治疗和神的帮助:阿根廷天主教妇女辅助生殖技术使用者的辅助生殖行程。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144804
Ana Lucia Olmos Alvarez, María Cecilia Johnson

This paper explores how Catholic women in Argentina use assisted reproduction technologies (ARTs), and particularly the way in which they resort to biomedicine and religion as complementary sources of knowledge, support and assistance during reproductive treatments. It is concerned about the role of the Catholic religion in local reproductive itineraries, seeing that Catholicism has such significant social, political and cultural influence in the country. Drawing on a qualitative and ethnographic study of Catholic spaces of worship, a maternity hospital and in-depth interviews with former users from three metropolitan areas in Argentina, we examine how reproductive itineraries involve the users' agency in building health resources from religion, with reference to biomedicine. The data reveal that women address religion as an affective, social and therapeutic recourse intertwined with biomedical power. These findings highlight the multiple and complex forms reproduction acquires in specific social, cultural and normative contexts, and contribute to discussing the complementarity between religion and biomedicine in health experiences.

本文探讨了阿根廷的天主教妇女如何使用辅助生殖技术,特别是她们在生殖治疗期间求助于生物医学和宗教作为补充知识、支持和援助来源的方式。委员会对天主教在地方生育路线中的作用表示关切,因为天主教在该国具有如此重大的社会、政治和文化影响。根据对天主教礼拜场所、一家妇产医院的定性和人种学研究,以及对阿根廷三个大都市地区的前使用者的深入访谈,我们研究了生殖行程如何使使用者的代理机构在参考生物医学的情况下从宗教中建立卫生资源。数据显示,女性将宗教视为与生物医学力量交织在一起的情感、社会和治疗资源。这些发现突出了生殖在特定的社会、文化和规范背景下获得的多种和复杂形式,并有助于讨论宗教和生物医学在健康经验中的互补性。
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引用次数: 0
The woman who chose the terreiro. Lay care and medical landscapes in mental health care in Rio de Janeiro. 选择特雷罗的女人。里约热内卢精神卫生保健的护理和医疗景观。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144131
Manuela R Müller, Francisco Ortega, Angel Martínez-Hernáez

Brazilian mental health care reform understands mental health as a complex social process. There is a large literature production within the country focused on deinstitutionalization policy, social determinants of mental health and human rights, however, with little recognition beyond Latin American borders. In addition, cultural dimensions of mental suffering have been neglected in Brazilian debates which limits an expanded understanding of health care and users' inclusion. This paper aims to discuss the role of cultural determinants in mental health care in Brazil. We followed a patient in the city of Rio de Janeiro who opted for therapy based on her religious beliefs-using ayahuasca in the context of the Afro Brazilian religion of Umbanda-over the treatment-as-usual in mental health. We draw on the notions of autoatención (self, domestic, and group-care in lay contexts) and medical landscapes to examine how therapeutic negotiations reflect embodied cultural traits and both social and political determinants shaping therapeutic spaces. We argue that recognizing sociocultural differences and therapeutic negotiations are key elements in making a more inclusive health practice. Moreover, this recognition enables identifying and reasoning the broader social processes framing health practices. This debate is relevant to the Brazilian mental health context and to other scenarios, especially those where local and global knowledge and practices in mental health are entangled.

巴西精神卫生保健改革将精神卫生理解为一个复杂的社会过程。在国内有大量的文献生产,重点是去机构化政策、精神健康的社会决定因素和人权,然而,在拉丁美洲边界之外很少得到承认。此外,在巴西的辩论中,精神痛苦的文化层面被忽视,这限制了对卫生保健和用户包容的进一步理解。本文旨在讨论巴西精神卫生保健中的文化决定因素的作用。我们跟踪了里约热内卢市的一位病人,她根据自己的宗教信仰选择了治疗——在巴西黑人乌班达宗教的背景下使用死藤水——而不是像往常一样治疗心理健康。我们利用autoatención(在非专业背景下的自我、家庭和团体护理)和医疗景观的概念来研究治疗谈判如何反映具体的文化特征以及塑造治疗空间的社会和政治决定因素。我们认为,认识到社会文化差异和治疗谈判是使更具包容性的卫生实践的关键因素。此外,这种认识使人们能够确定和推理构成卫生做法的更广泛的社会进程。这场辩论与巴西的精神卫生背景和其他情况有关,特别是那些地方和全球精神卫生知识和做法相互纠缠的情况。
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引用次数: 0
Nature cure and public health: illness narratives, medical efficacy, and existential suffering. 自然疗法和公共卫生:疾病叙事,医疗功效,和存在的痛苦。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2106412
Joseph S Alter

Nature cure is a globalized system of nineteenth century European medicine that developed synergistically in opposition to biomedicine, and that has become popular in India. This essay examines the question of how anthropologists should understand claims that all diseases can be cured with earth, air, sunlight, water and raw food. The question is complicated by a paradox of relativism deeply embedded in the desire to find cures, to articulate those cures as panaceas, and to the way illness narratives personalize and essentialize contexts of meaning that resolve sickness and suffering with experiential healing. Focused on suffering that motivates people to experiment on themselves and engage in exotic cures, this essay presents an argument for extending skepticism concerning claims of efficacy to a politics of medicine and public health that is ecological rather than phenomenological, medical or biological. Suffering, as well as empathy for those who suffer, transforms radically relativized personal convictions into forms of embodied, existential activism that relate to, but extend beyond, the hegemony of biomedicine and institutionalized public health.

自然疗法是19世纪欧洲医学的一种全球化体系,它在与生物医学的对抗中协同发展,并在印度流行起来。这篇文章探讨了人类学家应该如何理解所有疾病都可以用泥土、空气、阳光、水和生食来治愈的说法。这个问题被一种相对主义的悖论所复杂化,这种悖论深深嵌入到寻找治疗方法的愿望中,将这些治疗方法阐明为灵丹妙药,以及疾病叙事个人化和本质化的方式,即通过经验治疗来解决疾病和痛苦。这篇文章关注的是促使人们在自己身上做实验并参与奇异疗法的痛苦,它提出了一个论点,将对功效声称的怀疑延伸到医学和公共卫生的政治,而不是现象学、医学或生物学。痛苦,以及对那些受苦者的同情,从根本上将相对化的个人信念转化为具体化的、存在主义的行动主义,这种行动主义与生物医学和制度化的公共卫生的霸权有关,但又超出了这种霸权。
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引用次数: 0
The work of reform: a critical examination of health policy. 改革工作:对卫生政策的批判性审查。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144805
Na'amah Razon, Alissa Bernstein Sideman

Anthropologists have critically examined a range of reforms from education and land to finance and health. Yet the predominant way of looking at reforms has been through a lens focused on neoliberal governance. For example, prior studies of health reforms focus on insurance, financing, and access to care. Yet, seeing reform in this way fails to attend to other types of cultural work at play when calling a policy or law a reform. In this paper, we draw on ethnographic research on health policy reforms in Israel and Bolivia to examine the concept of reform and the work it does within national movements. We argue that while the language of reform often signals change or novelty, reforms also carry forward historical continuities and reifications of the past. By delving into the past and its relationship with ongoing health reforms, we attend to how reforms can reinforce and maintain health inequities in some cases, while creating a national language for new possibilities in others. Reform, as we will discuss in this paper, is not only about political ideology, neoliberal governance, or on-the-ground policy implementation, but centrally it is about representations of aspirations, and about crafting relationships between past, present, and future.

人类学家对从教育和土地到财政和卫生的一系列改革进行了批判性的研究。然而,看待改革的主要方式是通过聚焦于新自由主义治理的镜头。例如,先前对医疗改革的研究侧重于保险、融资和获得医疗服务。但是,这样看待改革,在把一项政策或法律称为改革时,却没有考虑到其他方面的文化工作。在本文中,我们借鉴了以色列和玻利维亚卫生政策改革的民族志研究,以研究改革的概念及其在民族运动中的工作。我们认为,虽然改革的语言往往是变化或新奇的信号,但改革也发扬了历史的连续性和对过去的具体化。通过深入研究过去及其与正在进行的卫生改革的关系,我们关注改革如何在某些情况下加强和维持卫生不平等,同时在其他情况下为新的可能性创造一种国家语言。正如我们将在本文中讨论的那样,改革不仅涉及政治意识形态、新自由主义治理或实地政策实施,而且主要涉及愿望的表达,以及构建过去、现在和未来之间的关系。
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引用次数: 0
Latinx immigrant experiences with chronic illness management in Central Texas: reframing agency and liminality through nepantla. 德州中部拉丁移民的慢性病管理经验:透过nepantla重新建构代理与限制。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144803
Scott J Spivey Provencio

Immigrant rights have become increasingly contentious and partisan issues in the United States, and especially within the U.S. healthcare system. It is particularly essential to pay attention to Latinx immigrants-the largest immigrant and uninsured population in the United States. Latinx immigrants face many structural and legal challenges that may impact their biomedical healthcare access and treatment, creating a state of liminality or in-betweenness, especially when managing a chronic illness such as diabetes, hypertension, or arthritis. Using qualitative methods at a free healthcare clinic in Central Texas, the study reveals how the chronic illness narrative becomes inextricable from the immigrant narrative for this particular group, and how a unique 'dual-liminality' emerges from living with both an immigrant status and chronic condition. This study also introduces how Gloria Anzaldúa's theory of nepantla can be used to push existing understandings of migrant liminality in medical anthropology by reframing the experiences of U.S. Latinx immigrants with chronic illness as ones of opportunity. Nepantla functions as a novel theoretical lens to better understand how Latinx immigrants may regain agency in their chronic illness management and promote social change by helping others in similar situations.

移民权利在美国已经成为越来越有争议的党派问题,特别是在美国的医疗保健系统内。特别重要的是要关注拉丁裔移民——美国最大的移民和无保险人口。拉丁裔移民面临着许多结构性和法律上的挑战,这些挑战可能会影响他们获得生物医学保健和治疗的机会,造成一种限制或中间状态,特别是在治疗糖尿病、高血压或关节炎等慢性疾病时。该研究在德克萨斯州中部的一家免费医疗诊所使用定性方法,揭示了慢性疾病叙事如何与移民叙事不可分割,以及独特的“双重阈值”如何从移民身份和慢性疾病中出现。本研究还介绍了Gloria Anzaldúa的nepantla理论如何通过将患有慢性疾病的美国拉丁裔移民的经历重新定义为机会,来推动医学人类学中对移民阈值的现有理解。Nepantla作为一种新的理论视角,可以更好地理解拉丁裔移民如何在慢性病管理中重新获得代理,并通过帮助处于类似情况的其他人来促进社会变革。
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引用次数: 0
Apophatic love, contagion, and surveillance: Orthodox Christian responses to the global pandemic. 冷漠的爱、传染和监视:东正教对全球大流行的反应。
IF 1.8 4区 社会学 Q2 ANTHROPOLOGY Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2080180
Timothy Carroll, Nicholas Lackenby, Jenia Gorbanenko

As the COVID-19 pandemic hit, Orthodox Christians globally reacted to the possibility of contagion and risk in dialogue with theological positions about materials, their own long history which includes surviving previous pandemics and plagues, governmental and civil expectations and edicts, and pious - but often unofficial - understandings about protection and the sacrality of religious artefacts and the space of the temple. This article draws upon primary ethnographic research amongst Orthodox Christians in the UK, Serbia, Greece and Russia, as well as news articles about and primary ecclesiastical documents from Orthodox Churches more widely, to highlight commonalities and divergences in Orthodox Christian responses to the pandemic. Examining both the theological basis, and socio-political differences, this article considers how the Orthodox theology of apophaticism and relationality impacts wider discourses of contagion (both positive and negative), and consequently compliance with public health initiatives. Comparison across diverse Orthodox settings suggests that Orthodox Christians are concerned with the neighbour - both in terms of who may be watching (and reporting) them, and who may fall sick because of them.

随着COVID-19大流行的到来,全球东正教基督徒通过与神学立场的对话来应对感染和风险的可能性,他们自己的悠久历史,包括在以前的大流行和瘟疫中幸存下来,政府和民间的期望和法令,以及对宗教文物和寺庙空间的保护和神圣性的虔诚(但通常是非官方的)理解。本文借鉴了英国、塞尔维亚、希腊和俄罗斯东正教基督徒的主要民族志研究,以及更广泛的东正教会的新闻文章和主要教会文件,以突出东正教对疫情反应的共同点和分歧。本文考察了神学基础和社会政治差异,考虑了东正教神学的关怀主义和关系如何影响更广泛的传染话语(积极和消极),并因此遵守公共卫生倡议。不同东正教背景的比较表明,东正教基督徒关心邻居——无论是谁可能监视(和报告)他们,还是谁可能因为他们而生病。
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引用次数: 1
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