Objective: This study examined changes in satisfaction with and ability to participate in social roles and activities over 3 years for people who were aging with long-term physical disability. The goal was to understand the impact of physical health, function, depression, fatigue, and pain on participation.
Design: A 3-wave longitudinal cohort survey study was completed from 2019 to 2022.
Setting: The general community.
Participants: The study included 323 respondents who participated all 3 years. Purposive sampling recruited individuals aged 45-64 with at least 5 years of disability history through community partners, advertisements, and social media.
Interventions: Not applicable.
Main outcome measures: Patient-Reported Outcome Measurement Information System (PROMIS) Adult Ability to Participate in Social Roles and Activities and PROMIS Satisfaction with Participation in Social Roles.
Results: Univariate repeated measures analysis of variance models indicated that satisfaction with participation did not change over time, and ability to participate slightly increased (means T0 44.4, T2 45.5, P=.045). Linear mixed models indicated that greater physical function was associated with greater satisfaction (β=0.21, 95% confidence interval [CI]: 0.14-0.28) and ability to participate (β=0.19, 95% CI: 0.13-0.26). Greater levels of depression, fatigue, and pain were associated with decreased satisfaction (depression β=-0.21, 95% CI: -0.28 to -0.14; fatigue β=-0.18, 95% CI: -0.26 to -0.11; pain β=-0.14, 95% CI: -0.21 to -0.07) and decreased ability to participate (depression β=-0.23, 95% CI: -0.29 to -0.17; fatigue β=-0.19, 95% CI: -0.25 to -0.12; pain β=-0.12, 95% CI: -0.18 to -0.06).
Conclusions: This longitudinal study demonstrated that satisfaction with and ability to participate in social roles fluctuated little over 3 years but were influenced by physical and mental health variables. Findings suggest that decreasing aging-with-disability symptoms and improving health and function may sustain social participation over time. Interventions to address social participation decline are available; however, further exploration into individual differences and external socioeconomic factors is warranted to understand the variance in social participation.
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