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Navigating the Tide Together: Early Collaboration between Tribal and Academic Partners in a CBPR Study. 共同引领潮流:部落和学术伙伴在CBPR研究中的早期合作。
Pub Date : 2013-01-01
Heather S V Lonczak, Lisa Rey Thomas, Dennis Donovan, Lisette Austin, Robin L W Sigo, Nigel Lawrence

Community Based Participatory Research (CBPR) approaches stress the importance of building strong, cohesive collaborations between academic researchers and partnering communities; yet there is minimal research examining the actual quality of CBPR partnerships. The objective of the present paper is to describe and explore the quality of collaborative relationships across the first two years of the Healing of the Canoe project teams, comprised of researchers from the University of Washington and community partners from the Suquamish Tribe. Three quantitative/qualitative process measures were used to assess perceptions regarding collaborative processes and aspects of meeting effectiveness. Staff meetings were primarily viewed as cohesive, with clear agendas and shared communication. Collaborative processes were perceived as generally positive, with Tribal empowerment rated as especially important. Additionally, effective leadership and flexibility were highly rated while a need for a stronger community voice in decision-making was noted. Steady improvements were found in terms of trust between research teams, and both research teams reported a need for more intra-team project- and social-focused interaction. Overall, this data reveals a solid CBPR collaboration that is making effective strides in fostering a climate of respect, trust, and open communication between research partners.

基于社区的参与式研究(CBPR)方法强调在学术研究人员和伙伴社区之间建立强有力的、有凝聚力的合作的重要性;然而,检验CBPR伙伴关系实际质量的研究却很少。本论文的目的是描述和探索独木舟项目团队头两年的合作关系质量,该团队由华盛顿大学的研究人员和苏夸米什部落的社区合作伙伴组成。三个定量/定性过程测量被用来评估关于协作过程和会议有效性方面的看法。工作人员会议主要被认为是有凝聚力的,有明确的议程和共同的沟通。协作过程通常被认为是积极的,部落授权被认为特别重要。此外,有效的领导和灵活性得到高度评价,同时指出需要在决策中有更大的社区发言权。在研究团队之间的信任方面发现了稳步的改善,两个研究团队都报告需要更多的团队内部项目和社会互动。总体而言,这些数据表明,在培养研究伙伴之间尊重、信任和开放沟通的氛围方面,CBPR合作正在取得有效进展。
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引用次数: 0
Community-university Research Liaisons: Translating the Languages of Research and Culture. 社区大学研究联络:翻译研究语言与文化。
Pub Date : 2013-01-01
Ada Bends, Charlene Burns, Pearl Yellowman-Caye, Tammy Rider, Emily Matt Salois, Annette Sutherland, Mike Todd, Deb LaVeaux, Suzanne Christopher

This article describes the experiences of six individuals employed as community-university research liaisons in a grant-funded centre for health disparities research. The liaisons were located in Native American communities and bridged the communities and the university, providing information between these groups, expanding understanding and knowledge of how research can address health disparities, and assisting in the development and ongoing work of partnerships using CBPR approaches. While tribal communities within the state may face similar health disparities, the approach to solving these disparities must be based on an understanding of the context and environment of the specific tribal community. In this paper, the tribal liaisons share their stories of negotiating and navigating their unique positions. Suggestions for utilizing tribal community-university positions to support community and partnership development are offered.

这篇文章描述了在一个资助的健康差异研究中心担任社区大学研究联络员的六个人的经历。联络点设在美洲土著社区,在社区和大学之间架设桥梁,在这些群体之间提供信息,扩大对研究如何解决健康差异的理解和知识,并协助利用CBPR方法建立和开展伙伴关系。虽然国家内部的部落社区可能面临类似的健康差异,但解决这些差异的方法必须基于对具体部落社区的背景和环境的了解。在本文中,部落联络员分享了他们谈判和驾驭独特立场的故事。提出了利用部落社区大学职位来支持社区和伙伴关系发展的建议。
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引用次数: 0
Indigenous Women of Latin America: Unintended Pregnancy, Unsafe Abortion, and Reproductive Health Outcomes. 拉丁美洲土著妇女:意外怀孕、不安全堕胎和生殖健康结果。
Pub Date : 2012-01-01
Heather Wurtz

Indigenous women in Latin America have poorer reproductive health outcomes than the general population and face considerable barriers in accessing adequate health services. Indigenous women have high rates of adolescent fertility and unintended pregnancy and may face increased risks for morbidity and mortality related to unsafe abortion. However, research among this population, particularly focusing on social and cultural implications of unwanted pregnancy and unsafe abortion, is significantly limited. This article reviews the literature on unsafe abortion in Latin America and describes successful interventions to ameliorate reproductive health outcomes within Indigenous communities. It also explores important implications for future research. Shedding light on the circumstances, perspectives, and lived realities of Indigenous women of childbearing age, could encourage further qualitative investigation and mitigate negative outcomes through improved understanding of the topic, targeted culturally appropriate interventions, and recommendations for future policy and programming reformations.

拉丁美洲土著妇女的生殖健康状况比普通人口差,在获得适当的卫生服务方面面临相当大的障碍。土著妇女的青少年生育率和意外怀孕率很高,可能面临与不安全堕胎有关的发病率和死亡率增加的风险。然而,对这一人群的研究,特别是对意外怀孕和不安全堕胎的社会和文化影响的研究,非常有限。本文回顾了拉丁美洲关于不安全堕胎的文献,并描述了改善土著社区生殖健康结果的成功干预措施。它还探讨了对未来研究的重要意义。阐明育龄土著妇女的情况、观点和生活现实,可以鼓励进一步的定性调查,并通过提高对该主题的理解、有针对性的适合文化的干预措施以及对未来政策和方案改革的建议来缓解负面结果。
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引用次数: 0
Health Is Life in Balance: Students and Communities Explore Healthy Lifestyles in a Culturally Based Curriculum. 健康是平衡的生活:学生和社区在一个基于文化的课程中探索健康的生活方式。
Pub Date : 2011-01-01
Lynn Aho, Joni Ackerman, Shelley Bointy, Marilyn Cuch, Mary Hindelang, Stephanie Pinnow, Suzanne Turnbull

From exploring knowledge from wise members of the community to investigating the science of homeostasis, students learn healthy ways of living through a new hands-on curriculum, Diabetes Education in Tribal Schools: Health Is Life in Balance. The curriculum integrates science and Native American traditions to educate students about science, diabetes and its risk factors, and the importance of nutrition and physical activity in maintaining health and balance in life. Applying an inquiry-based approach to learning, the curriculum builds skills in observation, measurement, prediction, experimentation, and communication, and provides healthy lifestyle messages and innovative science activities for all students. The curriculum is now available to teachers and health educators at no cost through a federal grant.Health Is life in Balance incorporates interdisciplinary standards as well as storytelling to help children understand important messages. Implementation evaluation of the curriculum indicated improved knowledge and attitudes about science and health, positive teacher and student comments, and culturally relevant content. The lessons highlighted in this article give a glimpse into this hands-on curriculum which integrates science and Native American traditions, looking to our past and listening to the wisdom of our Elders, to gain powerful information for healthy, holistic living. The circle of balance is a theme in many indigenous belief systems and is woven into the lessons, providing enduring understandings of health behaviours that can prevent type 2 diabetes in the context of Native American cultural themes.

从从社区的智慧成员那里探索知识到调查体内平衡的科学,学生们通过新的实践课程学习健康的生活方式,部落学校的糖尿病教育:健康就是平衡的生活。课程将科学与美国土著传统结合起来,教育学生科学、糖尿病及其风险因素,以及营养和体育活动在维持健康和平衡生活中的重要性。课程采用探究式的学习方法,培养学生观察、测量、预测、实验和交流的技能,并为所有学生提供健康的生活方式信息和创新的科学活动。该课程现在通过联邦拨款免费提供给教师和健康教育工作者。《健康是平衡的生活》结合了跨学科的标准以及讲故事来帮助孩子们理解重要的信息。对课程实施情况的评价表明,对科学和健康的认识和态度有所改善,师生评价积极,内容与文化相关。这篇文章中强调的课程让我们得以一窥这个实践课程,它将科学与美国原住民的传统结合在一起,回顾我们的过去,倾听我们长辈的智慧,为健康、全面的生活获得有力的信息。平衡之圈是许多土著信仰体系的一个主题,并融入了课程,提供了在美洲土著文化主题背景下可以预防2型糖尿病的健康行为的持久理解。
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引用次数: 0
Life Story Board: A Tool in the Prevention of Domestic Violence. 生活故事板:预防家庭暴力的工具。
Pub Date : 2010-09-10
Rob Chase, Javier Mignone, Linda Diffey

The high rate of domestic violence in Aboriginal communities points to the need to explore new ways of understanding how this violence occurs in its context and to seek new and creative ways of preventing the perpetuation of this vicious cycle. The Life Story Board (LSB) is a game board with sets of cards, markers, and a notation system with which to construct a visual representation of someone's life experience at personal, family, and community levels. Initially invented as an interview tool in an expressive art program for war-affected children, the LSB has broader potential for use by those working with youth, adults, and families in a variety of contexts, and as a tool for program evaluation and applied research. This article describes LSB methods and how they may apply in the context of Canadian First Nations, Inuit, and Métis community efforts to respond to, understand, and prevent domestic violence.

土著社区的家庭暴力发生率很高,这表明需要探索新的方法来理解这种暴力是如何在其背景下发生的,并寻求新的创造性方法来防止这种恶性循环的长期存在。生活故事板(LSB)是一种游戏板,有一组卡片、标记和一个注释系统,用来在个人、家庭和社区层面构建某人生活经历的视觉表示。LSB最初是作为受战争影响儿童的表达艺术项目中的采访工具而发明的,它具有更广泛的潜力,可供那些在各种背景下与青年、成年人和家庭合作的人使用,也可作为项目评估和应用研究的工具。本文描述了LSB方法,以及它们如何在加拿大原住民、因纽特人和梅蒂人社区应对、理解和预防家庭暴力的努力中应用。
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引用次数: 0
Culturally Safe Epidemiology: Oxymoron or Scientific Imperative. 文化安全流行病学:矛盾修饰法还是科学的必要性。
Pub Date : 2010-01-01
Mary Cameron, Neil Andersson, Ian McDowell, Robert J Ledogar

Since the early 20th Century, epidemiological research has brought benefits and burdens to Aboriginal communities in Canada. Many First Nations, Métis, and Inuit continue to view Western research with distrust; quantitative methods are perceived as especially inconsistent with indigenous ways of knowing. There is increasing recognition, however, that rigorous epidemiological research can produce evidence that draws attention and resources to pressing health issues in Aboriginal communities. We present a framework for culturally safe epidemiology, from the identification of research priorities, through fieldwork and analysis, to communication and use of evidence. Modern epidemiology and indigenous knowledge are not inherently discordant; many public health opportunities arise at this interface and good science must begin here too.

自20世纪初以来,流行病学研究给加拿大土著社区带来了利益和负担。许多第一民族、马姆萨提人和因纽特人继续以不信任的态度看待西方的研究;定量方法被认为特别不符合当地的认识方式。然而,人们日益认识到,严格的流行病学研究可以提供证据,引起对土著社区紧迫健康问题的注意和资源。我们提出了一个文化安全流行病学的框架,从确定研究重点,通过实地调查和分析,到交流和使用证据。现代流行病学和土著知识并非天生不协调;许多公共卫生机会出现在这个界面上,良好的科学也必须从这里开始。
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引用次数: 0
Family Violence and the Need for Prevention Research in First Nations, Inuit, and Métis Communities. 第一民族、因努伊特人和梅蒂斯人社区的家庭暴力和预防研究需求。
Pub Date : 2010-01-01
Neil Andersson, Amy Nahwegahbow

Existing sources produce widely varying estimates of family violence in First Nations, Inuit, and Métis communities; taken together, they imply a convincing if poorly quantified higher risk of family violence in Aboriginal communities, with the greater burden borne by women. With the accelerating HIV epidemic in some Aboriginal communities, prevention of domestic violence takes on even greater urgency. Five planks in a prevention research platform include: training emerging researchers from all Aboriginal groups to promote culturally specific research; systematic review of unpublished and published knowledge of interventions that reduce domestic violence; intervention theory development specific to each community; attention to the particular ethical issues; and methods development focused on interventions.

现有资料对原住民、因努伊特人和梅蒂斯人社区家庭暴力的估计大相径庭;综合来看,这些资料意味着原住民社区的家庭暴力风险较高,尽管量化程度不高,但却令人信服,其中妇女承受的负担更大。随着艾滋病毒疫情在一些原住民社区的加速蔓延,预防家庭暴力变得更加紧迫。预防研究平台的五大板块包括:培训来自所有原住民群体的新兴研究人员,以促进针对特定文化的研究;系统审查未发表和已发表的关于减少家庭暴力的干预措施的知识;针对每个社区的干预理论发展;关注特定的伦理问题;以及侧重于干预措施的方法发展。
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引用次数: 0
Reduction of Family Violence in Aboriginal Communities: A Systematic Review of Interventions and Approaches. 减少原住民社区的家庭暴力:干预措施和方法的系统回顾。
Pub Date : 2010-01-01
Beverley Shea, Amy Nahwegahbow, Neil Andersson

Many efforts to reduce family violence are documented in the published literature. We conducted a systematic review of interventions intended to prevent family violence in Aboriginal communities. We retrieved studies published up to October 2009; 506 papers included one systematic review, two randomized controlled trials, and fourteen nonrandomized studies or reviews. Two reviews discussed interventions relevant to primary prevention (reducing the risk factors for family violence), including parenting, role modelling, and active participation. More studies addressed secondary prevention (where risk factors exist, reducing outbreaks of violence) such as restriction on the trading hours for take away alcohol and home visiting programs for high risk families. Examples of tertiary prevention (preventing recurrence) include traditional healing circles and group counselling. Most studies contributed a low level of evidence.

已发表的文献记载了许多减少家庭暴力的努力。我们对原住民社区预防家庭暴力的干预措施进行了系统回顾。我们检索了截至2009年10月发表的研究;506篇论文包括1篇系统综述、2篇随机对照试验和14篇非随机研究或综述。两篇综述讨论了与初级预防(减少家庭暴力的危险因素)有关的干预措施,包括养育子女、树立榜样和积极参与。更多的研究涉及二级预防(在存在风险因素的地方,减少暴力的爆发),例如限制外带酒精的交易时间和对高风险家庭的家访计划。三级预防(防止复发)的例子包括传统的治疗圈和团体咨询。大多数研究提供了低水平的证据。
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引用次数: 0
Rebuilding from Resilience: Research Framework for a Randomized Controlled Trial of Community-led Interventions to Prevent Domestic Violence in Aboriginal Communities. 复原力重建:原住民社区预防家庭暴力的随机对照研究框架。
Pub Date : 2010-01-01
Neil Andersson, Beverley Shea, Carol Amaratunga, Patricia McGuire, Georges Sioui

This research framework, which competed successfully in the 2008 CIHR open operating grants competition, focuses on protocols to measure the impact of community-led interventions to reduce domestic violence in Aboriginal communities. The project develops and tests tools and procedures for a randomized controlled trial of prevention of family violence. Women's shelters mainly deal with victims of domestic violence, and the framework also addresses other types of domestic violence (male and female children, elderly, and disabled). The partner shelters are in Aboriginal communities across Canada, on and off reserve, in most provinces and territories. The baseline study applies a questionnaire developed by the shelters. Testing the stepped wedge design in an Aboriginal context, shelters randomized themselves to two waves of intervention, half the shelters receiving the resources for the first wave. A repeat survey after two years will measure the difference between first wave and second wave, after which the resources will shift to the second wave. At least two Aboriginal researchers will complete their doctoral studies in the project. The steering committee of 12 shelter directors guides the project and ensures ethical standards related to their populations. Each participating community and the University of Ottawa reviewed and passed the proposal.

这一研究框架在2008年CIHR公开运营赠款竞赛中成功竞争,重点是衡量社区主导的干预措施对减少原住民社区家庭暴力的影响的协议。该项目为预防家庭暴力的随机对照试验开发和测试工具和程序。妇女庇护所主要处理家庭暴力的受害者,该框架还处理其他类型的家庭暴力(男性和女性儿童、老年人和残疾人)。合作伙伴收容所位于加拿大各地的原住民社区,在保护区内外,在大多数省份和地区。基线研究采用了庇护所编制的问卷。在原住民背景下测试阶梯式楔形设计,避难所将自己随机分为两波干预,其中一半的避难所获得了第一波干预的资源。两年后的重复调查将测量第一波和第二波之间的差异,之后资源将转移到第二波。至少有两名土著研究人员将在该项目中完成博士研究。由12名收容所主任组成的指导委员会指导该项目,并确保与他们的人口相关的道德标准。各参与社区和渥太华大学审查并通过了该提案。
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引用次数: 0
Contextualizing CBPR: Key Principles of CBPR meet the Indigenous research context. 情境化CBPR: CBPR的关键原则符合本土研究背景。
Pub Date : 2009-06-01
Deborah Laveaux, Suzanne Christopher

This paper addresses two questions regarding the use of Community-based Participatory Research (CBPR) approaches with tribal communities. First, how do "gold standard" CBPR principles hold up when applied to Native American communities and what additional contextual information is necessary to understand and work with these principles in this setting? Second, what additional principles or recommendations are helpful for researchers interested in conducting research using a CBPR approach with tribal communities? We studied a variety of literature sources on CBPR and Native health research to answer these questions. We are unaware of any publications that contextualize CBPR principles for working with specific populations. This information has direct application for conducting research with tribal communities, and confirms the importance of using CBPR approaches in this setting.

本文讨论了关于在部落社区中使用基于社区的参与式研究方法的两个问题。首先,当“黄金标准”CBPR原则应用于美洲原住民社区时,它是如何维持的?在这种情况下,需要哪些额外的背景信息来理解和使用这些原则?其次,对于有兴趣在部落社区中使用CBPR方法进行研究的研究人员来说,还有哪些其他原则或建议是有帮助的?为了回答这些问题,我们研究了各种关于CBPR和本土健康研究的文献来源。我们不知道有任何出版物将CBPR原则置于特定人群的工作环境中。这一信息可直接用于与部落社区进行研究,并证实了在这种情况下使用CBPR方法的重要性。
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引用次数: 0
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