首页 > 最新文献

BMC Health Services Research最新文献

英文 中文
Evaluation of a youth-focused suicide prevention HOPE aftercare service: protocol for a non-randomized hybrid effectiveness-implementation type I design. 以青少年为重点的自杀预防 HOPE 善后服务评估:非随机混合效果-实施类型 I 设计方案。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11795-2
Dzenana Kartal, Tess Jaeger, Michelle Lamblin, Hannah Richards, Katrina Witt, Jo-An Occhipinti, Cathrine Mihalopoulos, Mary Lou Chatterton, Andrew Chanen, Patrick McGorry, Adam Skinner, Isabel Zbukvic, Andrew Thompson, Jonathan Knott, Anna Flego, Craig Hamilton, Marianne Webb, Edward Mullen, Natasha Swingler, Bridget Kenny, Jo Robinson

Background: Suicide is the fourth leading cause of death among young people aged 15-29 worldwide. Young people often present to emergency departments (EDs) with self-harm and suicide-related behaviors. The period following discharge from the ED is recognized as one of elevated risk for both repeated self-harm and suicide. During this critical time, suicide prevention aftercare services are recommended. Despite their increased popularity, evidence demonstrating the effectiveness of these models is very limited.

Methods: Using a hybrid effectiveness-implementation type I design, this evaluation will assess the effectiveness and implementation of a suicide prevention aftercare (Hospital Outreach Post-suicidal Engagement; HOPE) service designed to reduce risk of self-harm and suicide in young people aged 12-25 who are referred to the service following an ED presentation for self-harm or suicide attempt. Two complementing theoretical frameworks will guide this evaluation, specifically the design, data collection, analysis, and interpretation of results. The RE-AIM evaluation framework will be used to assess Reach, Effectiveness (including cost-effectiveness), Adoption, Implementation and Maintenance of the HOPE aftercare service. The PRISM implementation framework will be used to assess multi-level contextual factors hypothesized to affect the RE-AIM outcomes. Several data sources will be used to assess the changes in primary and secondary outcomes from baseline to post-intervention, and at follow-up, including user and provider self-report surveys, semi-structured interviews, and routinely collected hospital data. An historical control study will also be conducted using data from the Self-Harm Monitoring System for Victoria to examine the impact of the service on rates of self-harm and suicide-related presentations to ED, and compare trends prior to and following commencement of the HOPE aftercare service. In addition, dynamic systems modelling will be used to assess the future scalability of the service.

Discussion: Findings from this evaluation will determine the effectiveness, including cost-effectiveness, of the HOPE aftercare service and describe the implementation context. They will inform the future development and sustainability of this and other similar services across Australia and internationally.

Trial registration: This trial was prospectively registered with the Australian New Zealand Clinical Trials Registry (ANZCTR) on the 19th December 2023 (Registration number ACTRN12623001332617). We do not foresee any amendments to this protocol however, if any unforeseen modifications are required, they will be submitted to ANZCTR.

Trial sponsor: Orygen, 35 Poplar Road, Parkville, VIC, 3052, Australia.

背景:自杀是全球 15-29 岁年轻人的第四大死因。急诊科(ED)经常接诊有自我伤害和自杀相关行为的年轻人。从急诊室出院后的一段时间被认为是重复自残和自杀的高危期。在这一关键时期,建议提供自杀预防后续护理服务。尽管这些模式越来越受欢迎,但证明其有效性的证据却非常有限:本评估将采用有效性与实施性混合的 I 型设计,评估自杀预防后护理服务(Hospital Outreach Post-suicidal Engagement; HOPE)的有效性和实施情况,该服务旨在降低因自残或自杀未遂而在急诊室就诊后被转介到该服务的 12-25 岁青少年的自残和自杀风险。两个互补的理论框架将指导本次评估,特别是设计、数据收集、分析和结果解释。RE-AIM 评估框架将用于评估 HOPE 善后护理服务的覆盖面、有效性(包括成本效益)、采用、实施和维护。PRISM 实施框架将用于评估假定会影响 RE-AIM 结果的多层次背景因素。将使用多种数据来源来评估从基线到干预后以及随访期间主要和次要结果的变化,包括使用者和提供者的自我报告调查、半结构化访谈以及医院常规收集的数据。还将利用维多利亚州自残监测系统的数据开展一项历史对照研究,以检查该服务对自残率和与自杀相关的急诊室就诊率的影响,并比较 HOPE 善后护理服务开始之前和之后的趋势。此外,还将使用动态系统模型来评估该服务未来的可扩展性:本次评估的结果将确定 HOPE 善后护理服务的有效性(包括成本效益),并描述其实施背景。这些结果将为该服务以及澳大利亚和国际上其他类似服务的未来发展和可持续性提供参考:本试验已于 2023 年 12 月 19 日在澳大利亚-新西兰临床试验注册中心(ANZCTR)进行了前瞻性注册(注册号为 ACTRN12623001332617)。我们预计不会对该方案进行任何修改,但如果需要进行任何不可预见的修改,则会提交给 ANZCTR:Orygen, 35 Poplar Road, Parkville, VIC, 3052, Australia.
{"title":"Evaluation of a youth-focused suicide prevention HOPE aftercare service: protocol for a non-randomized hybrid effectiveness-implementation type I design.","authors":"Dzenana Kartal, Tess Jaeger, Michelle Lamblin, Hannah Richards, Katrina Witt, Jo-An Occhipinti, Cathrine Mihalopoulos, Mary Lou Chatterton, Andrew Chanen, Patrick McGorry, Adam Skinner, Isabel Zbukvic, Andrew Thompson, Jonathan Knott, Anna Flego, Craig Hamilton, Marianne Webb, Edward Mullen, Natasha Swingler, Bridget Kenny, Jo Robinson","doi":"10.1186/s12913-024-11795-2","DOIUrl":"10.1186/s12913-024-11795-2","url":null,"abstract":"<p><strong>Background: </strong>Suicide is the fourth leading cause of death among young people aged 15-29 worldwide. Young people often present to emergency departments (EDs) with self-harm and suicide-related behaviors. The period following discharge from the ED is recognized as one of elevated risk for both repeated self-harm and suicide. During this critical time, suicide prevention aftercare services are recommended. Despite their increased popularity, evidence demonstrating the effectiveness of these models is very limited.</p><p><strong>Methods: </strong>Using a hybrid effectiveness-implementation type I design, this evaluation will assess the effectiveness and implementation of a suicide prevention aftercare (Hospital Outreach Post-suicidal Engagement; HOPE) service designed to reduce risk of self-harm and suicide in young people aged 12-25 who are referred to the service following an ED presentation for self-harm or suicide attempt. Two complementing theoretical frameworks will guide this evaluation, specifically the design, data collection, analysis, and interpretation of results. The RE-AIM evaluation framework will be used to assess Reach, Effectiveness (including cost-effectiveness), Adoption, Implementation and Maintenance of the HOPE aftercare service. The PRISM implementation framework will be used to assess multi-level contextual factors hypothesized to affect the RE-AIM outcomes. Several data sources will be used to assess the changes in primary and secondary outcomes from baseline to post-intervention, and at follow-up, including user and provider self-report surveys, semi-structured interviews, and routinely collected hospital data. An historical control study will also be conducted using data from the Self-Harm Monitoring System for Victoria to examine the impact of the service on rates of self-harm and suicide-related presentations to ED, and compare trends prior to and following commencement of the HOPE aftercare service. In addition, dynamic systems modelling will be used to assess the future scalability of the service.</p><p><strong>Discussion: </strong>Findings from this evaluation will determine the effectiveness, including cost-effectiveness, of the HOPE aftercare service and describe the implementation context. They will inform the future development and sustainability of this and other similar services across Australia and internationally.</p><p><strong>Trial registration: </strong>This trial was prospectively registered with the Australian New Zealand Clinical Trials Registry (ANZCTR) on the 19th December 2023 (Registration number ACTRN12623001332617). We do not foresee any amendments to this protocol however, if any unforeseen modifications are required, they will be submitted to ANZCTR.</p><p><strong>Trial sponsor: </strong>Orygen, 35 Poplar Road, Parkville, VIC, 3052, Australia.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1395"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11559173/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Essential strategic principles for planning and developing digitally enabled interventions in health and care settings. 规划和开发卫生与护理领域数字化干预措施的基本战略原则。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11819-x
Kathrin Cresswell, Robin Williams

Health and care information technologies can improve service delivery, but unfortunately many fail to realise their potential. This is because tools fail to effectively integrate with user and organisational practices. We here draw on two decades and an extensive body of practical and theoretical experience of conducting formative evaluations in health service settings to extract seven essential principles for planning and developing digital tools. Firstly, it is important to determine if digitalisation is the right approach for the desired change and to view these tools as complex interventions needing careful planning. The development process should embrace varying levels of co-creation and adapt to different needs and contexts. Ensuring that tools integrate well with existing information infrastructures and striking a balance between being widely applicable and locally relevant is essential. Furthermore, planning for how these interventions will fit into broader health and care pathways is vital. By considering these factors, decision-makers can significantly improve the chances of successful implementation, adoption and scaling of health and care technologies.

医疗保健信息技术可以改善服务的提供,但遗憾的是,许多信息技术未能发挥其潜力。这是因为工具未能有效地与用户和组织实践相结合。在此,我们借鉴二十年来在医疗服务环境中开展形成性评估的大量实践和理论经验,总结出规划和开发数字化工具的七项基本原则。首先,必须确定数字化是否是实现预期变革的正确方法,并将这些工具视为需要仔细规划的复杂干预措施。开发过程应包含不同程度的共同创造,并适应不同的需求和环境。确保这些工具与现有的信息基础设施很好地整合,并在广泛适用性和本地相关性之间取得平衡,这一点至关重要。此外,规划这些干预措施如何融入更广泛的健康和护理途径也至关重要。通过考虑这些因素,决策者可以大大提高成功实施、采用和推广卫生与护理技术的机会。
{"title":"Essential strategic principles for planning and developing digitally enabled interventions in health and care settings.","authors":"Kathrin Cresswell, Robin Williams","doi":"10.1186/s12913-024-11819-x","DOIUrl":"10.1186/s12913-024-11819-x","url":null,"abstract":"<p><p>Health and care information technologies can improve service delivery, but unfortunately many fail to realise their potential. This is because tools fail to effectively integrate with user and organisational practices. We here draw on two decades and an extensive body of practical and theoretical experience of conducting formative evaluations in health service settings to extract seven essential principles for planning and developing digital tools. Firstly, it is important to determine if digitalisation is the right approach for the desired change and to view these tools as complex interventions needing careful planning. The development process should embrace varying levels of co-creation and adapt to different needs and contexts. Ensuring that tools integrate well with existing information infrastructures and striking a balance between being widely applicable and locally relevant is essential. Furthermore, planning for how these interventions will fit into broader health and care pathways is vital. By considering these factors, decision-makers can significantly improve the chances of successful implementation, adoption and scaling of health and care technologies.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1399"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11562350/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614320","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of the implementability assessment tool for clinical practice guidelines based on the COSMIN framework and factorial experiment: a study protocol. 基于 COSMIN 框架和因子实验开发临床实践指南可实施性评估工具:研究方案。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11754-x
Dongmei Zhong, Gregory A Aarons, Alison M Hutchinson, Zhaolan Liu, Yaolong Chen, William Cw Wong, Zaiwei Song, Yanni Wu, Lijiao Yan, David Makram Bishai, Nan Yang, Zijun Wang, Hui Liu, Dong Roman Xu

Introduction: Clinical practice guidelines are essential tools for standardizing medical practices and improving healthcare quality. However, current guideline implementation is unsatisfactory. Barriers to guideline implementation include external environmental factors (e.g., medical personnel, medical institutions, local policies) and intrinsic characteristics (e.g., context, format, language etc.), with the latter being addressable by optimizing the guidelines themselves. This study aims to develop an appraisal tool to promote effective guideline implementation. Existing guideline implementability appraisal tools lack a clear theoretical basis, evidence of reliability and validity, and/or empirically-based guidance for effective implementation, all of which will be addressed in this study.

Methods and analysis: The research is divided into four phases: (1) Generating a theoretical framework for guideline implementability (i.e., scoping review and concept analysis method); (2) Conducting a factorial experiment (i.e., guideline users simulate the use of different guideline versions to examine the relationship between constructs in the framework and implementability), and removing constructs with weak relationships to form the final implementability theoretical framework; (3) Generating dimensions and items for the guideline implementability appraisal tool based on the constructs in the theoretical framework, conducting comprehensive reliability and validity testing, usability testing, and iterative optimization according to the COSMIN guidelines; (4) Integrating the validated tool with the STAR guideline rating system for guideline appraisal and feedback to promote guideline implementability. STRENGTHS AND LIMITATIONS: (1) Our research will follow a standardized and rigorous process for developing measurement scales, ensuring that the resulting evaluation scale for the implementability of CPGs is theoretically grounded, internally consistent between theory and practice, and reliable and valid. (2) The theoretical framework developed in our study will strengthen the validity and rationality of constructs in the real world. (3) In the confirmatory factor analysis, this study will determine the dimensions and items' weight through factor loadings, allowing for the quantification of the implementability of CPGs and providing users of the guidelines with objective evaluative results. In addition, the clinical practice guideline implementability evaluation tool developed in this study can assist guideline developers in enhancing implementability before, during, and after guideline formulation.

导言:临床实践指南是规范医疗实践和提高医疗质量的重要工具。然而,目前指南的实施情况并不令人满意。指南实施的障碍包括外部环境因素(如医务人员、医疗机构、地方政策等)和内在特征(如背景、格式、语言等),后者可通过优化指南本身来解决。本研究旨在开发一种评估工具,以促进指南的有效实施。现有的指南可实施性评估工具缺乏明确的理论基础、可靠性和有效性证据,以及/或基于经验的有效实施指导,本研究将解决所有这些问题:研究分为四个阶段:(1) 生成指南可实施性的理论框架(即范围审查和概念分析方法);(2) 进行因子实验(即指南用户模拟使用指南可实施性评估工具);(3) 对指南可实施性评估工具进行评估;(4) 对指南可实施性评估工具进行评估;(5) 对指南可实施性评估工具进行评估、3)根据理论框架中的构念生成指南可实施性评价工具的维度和条目,并根据 COSMIN 指南进行全面的信度和效度测试、可用性测试和迭代优化;(4)将验证后的工具与 STAR 指南评级系统相结合,进行指南评价和反馈,以促进指南的可实施性。优势与局限性:(1)我们的研究将遵循标准化的严格程序来开发测量量表,确保最终形成的可实施性评价量表具有理论基础、理论与实践的内在一致性以及可靠性和有效性。(2) 我们研究中建立的理论框架将加强建构在现实世界中的有效性和合理性。(3) 在确认性因子分析中,本研究将通过因子载荷确定维度和项目的权重,从而量化临床实践指南的可实施性,为指南使用者提供客观的评价结果。此外,本研究开发的临床实践指南可实施性评价工具还能帮助指南制定者在指南制定前、制定中和制定后提高可实施性。
{"title":"Development of the implementability assessment tool for clinical practice guidelines based on the COSMIN framework and factorial experiment: a study protocol.","authors":"Dongmei Zhong, Gregory A Aarons, Alison M Hutchinson, Zhaolan Liu, Yaolong Chen, William Cw Wong, Zaiwei Song, Yanni Wu, Lijiao Yan, David Makram Bishai, Nan Yang, Zijun Wang, Hui Liu, Dong Roman Xu","doi":"10.1186/s12913-024-11754-x","DOIUrl":"10.1186/s12913-024-11754-x","url":null,"abstract":"<p><strong>Introduction: </strong>Clinical practice guidelines are essential tools for standardizing medical practices and improving healthcare quality. However, current guideline implementation is unsatisfactory. Barriers to guideline implementation include external environmental factors (e.g., medical personnel, medical institutions, local policies) and intrinsic characteristics (e.g., context, format, language etc.), with the latter being addressable by optimizing the guidelines themselves. This study aims to develop an appraisal tool to promote effective guideline implementation. Existing guideline implementability appraisal tools lack a clear theoretical basis, evidence of reliability and validity, and/or empirically-based guidance for effective implementation, all of which will be addressed in this study.</p><p><strong>Methods and analysis: </strong>The research is divided into four phases: (1) Generating a theoretical framework for guideline implementability (i.e., scoping review and concept analysis method); (2) Conducting a factorial experiment (i.e., guideline users simulate the use of different guideline versions to examine the relationship between constructs in the framework and implementability), and removing constructs with weak relationships to form the final implementability theoretical framework; (3) Generating dimensions and items for the guideline implementability appraisal tool based on the constructs in the theoretical framework, conducting comprehensive reliability and validity testing, usability testing, and iterative optimization according to the COSMIN guidelines; (4) Integrating the validated tool with the STAR guideline rating system for guideline appraisal and feedback to promote guideline implementability. STRENGTHS AND LIMITATIONS: (1) Our research will follow a standardized and rigorous process for developing measurement scales, ensuring that the resulting evaluation scale for the implementability of CPGs is theoretically grounded, internally consistent between theory and practice, and reliable and valid. (2) The theoretical framework developed in our study will strengthen the validity and rationality of constructs in the real world. (3) In the confirmatory factor analysis, this study will determine the dimensions and items' weight through factor loadings, allowing for the quantification of the implementability of CPGs and providing users of the guidelines with objective evaluative results. In addition, the clinical practice guideline implementability evaluation tool developed in this study can assist guideline developers in enhancing implementability before, during, and after guideline formulation.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1398"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11562645/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing language barriers in health facilities in Malawi. 评估马拉维医疗机构中的语言障碍。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11901-4
Amelia Taylor, Paul Kazembe

Background: Language barriers in healthcare lead to miscommunication between professionals and patients, thereby reducing the quality of and equitable access to healthcare. In African countries, the recognition and formal study of these barriers is severely limited despite Africa having more languages than any other continent. Our study investigates language barriers in healthcare facilities in Zomba district in Malawi, where three major local languages are spoken.

Methods: We employed a mixed methods approach and conducted a questionnaire-led study. Data were gathered at 22 health facilities, from 79 healthcare professionals and 312 outpatients using a semi-structured questionnaire. Findings were corroborated using document analysis to review legislation and policies, curriculum documents and patient notes.

Results: Language discordance emerged as a problem for professionals and patients. Both faced challenges due to vocabulary limitations for medical terms in English and Chichewa. Professionals did not receive training on how to effectively communicate medical concepts in local languages. Most patients did not speak English, which was used for all written records. Patient understanding of the information given to them verbally during consultations or in written health notes was very low, and this diminished their confidence in the diagnosis or treatment they received. Social factors including gender, age or patient experience, as well as patient literacy or perceived low literacy, poor rapport between healthcare professionals and patients, and a lack of privacy during consultations all exacerbated communication issues. Consequences of language barriers included unsatisfactory care experiences and compromised exchanges of health information. Strategies used by professionals to cope with these challenges were flexibility in the choice of language, reliance on physical checks and non-verbal communication indicators and the occasional use of ad-hoc interpretations.

Conclusion: Language barriers in healthcare facilities in Malawi have serious implications on the quality of healthcare provided. We propose solutions such as the development of dictionaries with phrases for symptoms and conditions, sensitisation courses that incorporate language considerations for both professionals and patients. Policies such as the provision of interpreters and staff allocation are discussed. We recognise that coordinated efforts at national and international levels are key to securing significant funding for effective interventions.

背景:医疗保健中的语言障碍会导致专业人员和患者之间沟通不畅,从而降低医疗保健的质量和公平性。在非洲国家,尽管非洲的语言种类比其他任何大陆都多,但对这些障碍的认识和正式研究却非常有限。我们的研究调查了马拉维松巴地区医疗机构中的语言障碍,该地区使用三种主要的当地语言:我们采用了混合方法,开展了一项以问卷调查为主导的研究。采用半结构式问卷调查法,在 22 家医疗机构收集了 79 名医疗专业人员和 312 名门诊患者的数据。研究结果还通过文件分析法对立法和政策、课程文件和病人笔记进行了核实:结果:语言不协调是专业人员和患者面临的一个问题。由于英语和奇切瓦语医疗术语词汇量的限制,双方都面临着挑战。专业人员没有接受过如何用当地语言有效传达医学概念的培训。大多数患者不会说英语,所有书面记录都使用英语。患者对问诊时口头提供的信息或书面健康记录的理解程度非常低,这削弱了他们对所接受的诊断或治疗的信心。包括性别、年龄或患者经历在内的社会因素,以及患者识字率或被认为识字率低、医护人员与患者之间关系不融洽、就诊时缺乏隐私等因素都加剧了沟通问题。语言障碍的后果包括护理体验不尽人意和健康信息交流受到影响。专业人员应对这些挑战的策略包括灵活选择语言、依赖身体检查和非语言沟通指标,以及偶尔使用临时翻译:马拉维医疗机构中的语言障碍严重影响了医疗质量。我们提出了一些解决方案,如编写包含症状和病症短语的字典,为专业人员和患者开设包含语言注意事项的宣传课程。我们还讨论了提供翻译和人员分配等政策。我们认识到,国家和国际层面的协调努力是确保为有效干预措施提供大量资金的关键。
{"title":"Assessing language barriers in health facilities in Malawi.","authors":"Amelia Taylor, Paul Kazembe","doi":"10.1186/s12913-024-11901-4","DOIUrl":"10.1186/s12913-024-11901-4","url":null,"abstract":"<p><strong>Background: </strong>Language barriers in healthcare lead to miscommunication between professionals and patients, thereby reducing the quality of and equitable access to healthcare. In African countries, the recognition and formal study of these barriers is severely limited despite Africa having more languages than any other continent. Our study investigates language barriers in healthcare facilities in Zomba district in Malawi, where three major local languages are spoken.</p><p><strong>Methods: </strong>We employed a mixed methods approach and conducted a questionnaire-led study. Data were gathered at 22 health facilities, from 79 healthcare professionals and 312 outpatients using a semi-structured questionnaire. Findings were corroborated using document analysis to review legislation and policies, curriculum documents and patient notes.</p><p><strong>Results: </strong>Language discordance emerged as a problem for professionals and patients. Both faced challenges due to vocabulary limitations for medical terms in English and Chichewa. Professionals did not receive training on how to effectively communicate medical concepts in local languages. Most patients did not speak English, which was used for all written records. Patient understanding of the information given to them verbally during consultations or in written health notes was very low, and this diminished their confidence in the diagnosis or treatment they received. Social factors including gender, age or patient experience, as well as patient literacy or perceived low literacy, poor rapport between healthcare professionals and patients, and a lack of privacy during consultations all exacerbated communication issues. Consequences of language barriers included unsatisfactory care experiences and compromised exchanges of health information. Strategies used by professionals to cope with these challenges were flexibility in the choice of language, reliance on physical checks and non-verbal communication indicators and the occasional use of ad-hoc interpretations.</p><p><strong>Conclusion: </strong>Language barriers in healthcare facilities in Malawi have serious implications on the quality of healthcare provided. We propose solutions such as the development of dictionaries with phrases for symptoms and conditions, sensitisation courses that incorporate language considerations for both professionals and patients. Policies such as the provision of interpreters and staff allocation are discussed. We recognise that coordinated efforts at national and international levels are key to securing significant funding for effective interventions.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1393"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11559215/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Survival models and longitudinal medical events for hospital readmission forecasting. 用于再入院预测的生存模型和纵向医疗事件。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11771-w
Sacha Davis, Russell Greiner

Background: The rate of 30-day all-cause hospital readmissions can affect the funding a hospital receives. An accurate and reliable readmission prediction model could save money and increase quality-of-care. Few projects have explored formulating this task as a survival prediction problem, where models can exploit a real-valued time-to-readmission target. This paper demonstrates the effectiveness of a survival-inspired readmission model, especially when paired with a longitudinal patient representation that is agnostic to disease-cohort and predictive task.

Methods: We forecast readmissions for a population-level cohort of 421,088 patients discharged in 2015 and 2016 from hospitals in Alberta, Canada. Clinical features and sequences of historical medical codes (calculated from at least four full years prior to discharge) from linked administrative sources serve as model inputs. We trained binary 30-day readmission models (XGBoost and a Deep Neural Network) and time-to-event readmission models (CoxPH and N-MTLR) with and without machine-learned medical knowledge at initialization, then compared against the popular LACE-based model using the AUROC score at 30 days (AUROC@30). Survival models are additionally evaluated using concordance, Integrated Brier, and L1-loss scores.

Results: All models that utilize sequence features markedly out-perform even the best models trained on only clinical features. Further, a time-to-event target improves predictive performance at 30 days, given the same model inputs and architecture. N-MTLR, using solely sequence inputs and initialized with pre-learned medical knowledge, achieves an average AUROC@30 of 0.8460 over five folds with a standard deviation of 0.003. All trained models match or out-perform the LACE baseline of 0.6587±0.003.

Conclusion: Sequences of administrative medical codes contain rich predictive information for forecasting readmissions, and embedding medical knowledge a priori using machine learning provides readmission models an advantageous foundation for training. When combined with a model that can leverage a time-to-event target, excellent performance is possible on the 30-day all-cause readmission task using only administrative data.

背景:30 天全因再入院率会影响医院获得的资金。一个准确可靠的再入院预测模型可以节省资金并提高医疗质量。很少有项目探讨过将这一任务表述为生存预测问题,即模型可以利用真实值的再入院时间目标。本文展示了受生存启发的再入院模型的有效性,尤其是在与纵向患者代表搭配时,这种模型与疾病队列和预测任务无关:我们预测了加拿大艾伯塔省医院 2015 年和 2016 年出院的 421,088 名患者的再入院率。临床特征和历史医疗代码序列(出院前至少整整四年的计算结果)来自相关的行政来源,作为模型输入。我们训练了二元 30 天再入院模型(XGBoost 和深度神经网络)和时间到事件再入院模型(CoxPH 和 N-MTLR),在初始化时使用和不使用机器学习的医疗知识,然后使用 30 天的 AUROC 分数(AUROC@30)与流行的基于 LACE 的模型进行比较。此外,还使用一致性、综合布赖尔和 L1 损失分数对生存模型进行了评估:结果:所有使用序列特征的模型都明显优于仅使用临床特征训练的最佳模型。此外,在相同的模型输入和架构下,时间到事件目标可提高 30 天的预测性能。N-MTLR 仅使用序列输入,并以预先学习的医学知识进行初始化,在五次折叠中平均 AUROC@30 为 0.8460,标准偏差为 0.003。所有经过训练的模型都达到或超过了 LACE 基线(0.6587±0.003):行政医疗代码序列包含丰富的预测信息,可用于预测再入院情况,利用机器学习嵌入先验医疗知识可为再入院模型的训练提供有利的基础。当模型与能够利用时间到事件目标的模型相结合时,仅使用行政数据就能在 30 天全因再入院任务中取得优异成绩。
{"title":"Survival models and longitudinal medical events for hospital readmission forecasting.","authors":"Sacha Davis, Russell Greiner","doi":"10.1186/s12913-024-11771-w","DOIUrl":"10.1186/s12913-024-11771-w","url":null,"abstract":"<p><strong>Background: </strong>The rate of 30-day all-cause hospital readmissions can affect the funding a hospital receives. An accurate and reliable readmission prediction model could save money and increase quality-of-care. Few projects have explored formulating this task as a survival prediction problem, where models can exploit a real-valued time-to-readmission target. This paper demonstrates the effectiveness of a survival-inspired readmission model, especially when paired with a longitudinal patient representation that is agnostic to disease-cohort and predictive task.</p><p><strong>Methods: </strong>We forecast readmissions for a population-level cohort of 421,088 patients discharged in 2015 and 2016 from hospitals in Alberta, Canada. Clinical features and sequences of historical medical codes (calculated from at least four full years prior to discharge) from linked administrative sources serve as model inputs. We trained binary 30-day readmission models (XGBoost and a Deep Neural Network) and time-to-event readmission models (CoxPH and N-MTLR) with and without machine-learned medical knowledge at initialization, then compared against the popular LACE-based model using the AUROC score at 30 days (AUROC@30). Survival models are additionally evaluated using concordance, Integrated Brier, and L1-loss scores.</p><p><strong>Results: </strong>All models that utilize sequence features markedly out-perform even the best models trained on only clinical features. Further, a time-to-event target improves predictive performance at 30 days, given the same model inputs and architecture. N-MTLR, using solely sequence inputs and initialized with pre-learned medical knowledge, achieves an average AUROC@30 of 0.8460 over five folds with a standard deviation of 0.003. All trained models match or out-perform the LACE baseline of 0.6587±0.003.</p><p><strong>Conclusion: </strong>Sequences of administrative medical codes contain rich predictive information for forecasting readmissions, and embedding medical knowledge a priori using machine learning provides readmission models an advantageous foundation for training. When combined with a model that can leverage a time-to-event target, excellent performance is possible on the 30-day all-cause readmission task using only administrative data.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1394"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11559171/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142613714","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Implementation Process Assessment Tool: translation, contextualization, and psychometric evaluation of a Swedish version in a municipal elderly care context. 实施过程评估工具:瑞典语版本在市级老年护理环境中的翻译、情境化和心理测量评估。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11889-x
Monica Kaltenbrunner, Heidi Hagerman, Cecilia Fagerström, Miriam Hartveit, Espen Nordheim, Mirjam Ekstedt

Background: The number of older adults with complex healthcare needs is growing alongside limited resources available in health services. To meet this challenge, it is urgent that healthcare staff are motivated and able to continuously translate new knowledge and working methods into daily practice. To facilitate such implementation, supportive measures responding to the healthcare personnel's needs seem essential. The present study aims to translate, contextualize and test a Swedish version of the Implementation Process Assessment Tool (IPAT) for measuring the facilitation needs among staff implementing a new working process in municipal elderly care.

Methods: A mixed-method design was used. First, the existing instrument was translated into Swedish. Thereafter, twelve staff members with different professions working in healthcare and at the municipal elderly care were interviewed using Think-aloud interviews to contextualize and test the face validity of the translated instrument. Lastly, the adjusted instrument (Swe-IPAT) was psychometrically evaluated through a cross-sectional survey among 305 staff members working in municipal elderly care.

Results: The psychometric evaluation of the Swe-IPAT revealed satisfying properties. Three factors, largely in line with the original IPAT, are suggested. Internal consistency assessed using Cronbach's alpha was 0.93 for the factor individual phases for behavioral change and perception of the intervention, 0.84 for the factor individual activities, and 0.95 for the factor collective readiness and support.

Conclusions: The 27-item Swe-IPAT, translated into Swedish and contextualized, demonstrated satisfactory psychometric properties when tested in an elderly care context. The instrument is suggested to be useful in providing feedback to managers in tailoring support and assessing implementation efforts among healthcare staff in elderly care. However, more research is needed to evaluate its properties throughout the entire implementation process and to test the usability of Swe-IPAT in other settings.

背景:在医疗服务资源有限的同时,有复杂医疗需求的老年人数量也在不断增加。为了应对这一挑战,当务之急是激励医护人员不断将新知识和工作方法转化为日常实践。为促进新知识和工作方法的实施,采取满足医护人员需求的支持性措施似乎至关重要。本研究旨在翻译和测试瑞典语版的实施过程评估工具(IPAT),以衡量医护人员在市级养老机构实施新工作流程时的促进需求:方法:采用混合方法设计。首先,将现有工具翻译成瑞典语。然后,使用 "思考-朗读 "访谈法对 12 名在医疗保健领域和市立养老院工作的不同职业的员工进行了访谈,以了解情况并检验翻译工具的表面效度。最后,通过对 305 名在市级养老机构工作的工作人员进行横断面调查,对调整后的工具(Swe-IPAT)进行了心理测量学评估:结果:对 Swe-IPAT 的心理测量评估显示出令人满意的特性。结果:Swe-IPAT 的心理测量评估结果显示了令人满意的特性,提出了三个因素,与最初的 IPAT 基本一致。使用 Cronbach's alpha 评估的内部一致性为:行为改变的个人阶段和干预感知因子为 0.93,个人活动因子为 0.84,集体准备和支持因子为 0.95:27个项目的Swe-IPAT被翻译成瑞典语并进行了情境化处理,在老年人护理环境中进行测试时显示出令人满意的心理测量特性。该工具可为管理人员提供反馈,帮助他们定制支持方案并评估医护人员在老年护理中的实施工作。不过,还需要进行更多的研究,以评估其在整个实施过程中的特性,并测试 Swe-IPAT 在其他环境中的可用性。
{"title":"The Implementation Process Assessment Tool: translation, contextualization, and psychometric evaluation of a Swedish version in a municipal elderly care context.","authors":"Monica Kaltenbrunner, Heidi Hagerman, Cecilia Fagerström, Miriam Hartveit, Espen Nordheim, Mirjam Ekstedt","doi":"10.1186/s12913-024-11889-x","DOIUrl":"10.1186/s12913-024-11889-x","url":null,"abstract":"<p><strong>Background: </strong>The number of older adults with complex healthcare needs is growing alongside limited resources available in health services. To meet this challenge, it is urgent that healthcare staff are motivated and able to continuously translate new knowledge and working methods into daily practice. To facilitate such implementation, supportive measures responding to the healthcare personnel's needs seem essential. The present study aims to translate, contextualize and test a Swedish version of the Implementation Process Assessment Tool (IPAT) for measuring the facilitation needs among staff implementing a new working process in municipal elderly care.</p><p><strong>Methods: </strong>A mixed-method design was used. First, the existing instrument was translated into Swedish. Thereafter, twelve staff members with different professions working in healthcare and at the municipal elderly care were interviewed using Think-aloud interviews to contextualize and test the face validity of the translated instrument. Lastly, the adjusted instrument (Swe-IPAT) was psychometrically evaluated through a cross-sectional survey among 305 staff members working in municipal elderly care.</p><p><strong>Results: </strong>The psychometric evaluation of the Swe-IPAT revealed satisfying properties. Three factors, largely in line with the original IPAT, are suggested. Internal consistency assessed using Cronbach's alpha was 0.93 for the factor individual phases for behavioral change and perception of the intervention, 0.84 for the factor individual activities, and 0.95 for the factor collective readiness and support.</p><p><strong>Conclusions: </strong>The 27-item Swe-IPAT, translated into Swedish and contextualized, demonstrated satisfactory psychometric properties when tested in an elderly care context. The instrument is suggested to be useful in providing feedback to managers in tailoring support and assessing implementation efforts among healthcare staff in elderly care. However, more research is needed to evaluate its properties throughout the entire implementation process and to test the usability of Swe-IPAT in other settings.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1391"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11558869/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142613811","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Design of logistics indicators for monitoring the COVID-19 vaccination process in Colombia : Logistic indicators for vaccination process. 设计用于监测哥伦比亚 COVID-19 疫苗接种过程的物流指标 :疫苗接种过程的物流指标。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11843-x
Nubia Velasco, Andrea Herrera, Johanna Trujillo-Diaz, Ciro-Alberto Amaya, Catalina González-Uribe, Estefania Hernandez

Background: The vaccine supply chain (VSC) integrates all activities from production to dispensing, characterized by complexity and low responsiveness. This study aims to define key performance indicators (KPIs) to evaluate the logistic and operational performance during the COVID-19 National Vaccination Plan in Colombia.

Methods: This study employed the design science research (DSR) methodology to develop a dashboard for monitoring COVID-19 vaccination progress. DSR is a problem-solving paradigm focused on conceiving, testing, and evaluating artifacts to tackle specific challenges. The dashboard integrated a set of Key Performance Indicators (KPIs) that incorporated three dimensions: epidemiological, humanitarian, and logistical. Both, the dashboard and the KPIs underwent validation through three iterative DSR cycles, in collaboration with both private and public health stakeholders.

Results: A set of 38 validated KPIs, grouped into eight categories, was consolidated into an online dashboard. This tool enabled real-time tracking of the National Vaccination Plan at both national and departmental levels, providing stakeholders with a comprehensive view of the vaccine supply chain. It also allowed for the assessment and comparison of the execution and effectiveness of public policies.

Conclusions: These KPIs supported decision-making from a logistical standpoint, enhancing the planning, preparation, and continuous improvement of mass vaccination processes, thereby increasing their potential impact even further.

背景:疫苗供应链(VSC)整合了从生产到分发的所有活动,具有复杂性和响应速度低的特点。本研究旨在确定关键绩效指标(KPI),以评估哥伦比亚 COVID-19 国家疫苗接种计划期间的物流和运营绩效:本研究采用了设计科学研究(DSR)方法来开发用于监控 COVID-19 疫苗接种进度的仪表板。设计科学研究是一种解决问题的范式,侧重于构思、测试和评估人工制品,以应对特定挑战。仪表板整合了一套关键绩效指标 (KPI),包括三个方面:流行病学、人道主义和后勤。在私营和公共卫生利益相关者的合作下,通过三个迭代的 DSR 周期对仪表板和关键绩效指标进行了验证:结果:一套 38 个经过验证的关键绩效指标(分为 8 个类别)被整合到一个在线仪表板中。该工具可在国家和部门层面对国家疫苗接种计划进行实时跟踪,为利益相关方提供疫苗供应链的全面视图。它还允许对公共政策的执行情况和效果进行评估和比较:这些关键绩效指标从后勤角度为决策提供了支持,加强了大规模疫苗接种过程的规划、准备和持续改进,从而进一步提高了其潜在影响。
{"title":"Design of logistics indicators for monitoring the COVID-19 vaccination process in Colombia : Logistic indicators for vaccination process.","authors":"Nubia Velasco, Andrea Herrera, Johanna Trujillo-Diaz, Ciro-Alberto Amaya, Catalina González-Uribe, Estefania Hernandez","doi":"10.1186/s12913-024-11843-x","DOIUrl":"10.1186/s12913-024-11843-x","url":null,"abstract":"<p><strong>Background: </strong>The vaccine supply chain (VSC) integrates all activities from production to dispensing, characterized by complexity and low responsiveness. This study aims to define key performance indicators (KPIs) to evaluate the logistic and operational performance during the COVID-19 National Vaccination Plan in Colombia.</p><p><strong>Methods: </strong>This study employed the design science research (DSR) methodology to develop a dashboard for monitoring COVID-19 vaccination progress. DSR is a problem-solving paradigm focused on conceiving, testing, and evaluating artifacts to tackle specific challenges. The dashboard integrated a set of Key Performance Indicators (KPIs) that incorporated three dimensions: epidemiological, humanitarian, and logistical. Both, the dashboard and the KPIs underwent validation through three iterative DSR cycles, in collaboration with both private and public health stakeholders.</p><p><strong>Results: </strong>A set of 38 validated KPIs, grouped into eight categories, was consolidated into an online dashboard. This tool enabled real-time tracking of the National Vaccination Plan at both national and departmental levels, providing stakeholders with a comprehensive view of the vaccine supply chain. It also allowed for the assessment and comparison of the execution and effectiveness of public policies.</p><p><strong>Conclusions: </strong>These KPIs supported decision-making from a logistical standpoint, enhancing the planning, preparation, and continuous improvement of mass vaccination processes, thereby increasing their potential impact even further.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1397"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11562858/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614303","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Higher interest to continue COVID-19 practice recommendations in non-pandemic times among German GPs with better crisis leadership skills (egePan study). 危机领导能力更强的德国全科医生在非流行病时期继续执行 COVID-19 实践建议的兴趣更高(egePan 研究)。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1186/s12913-024-11855-7
Benjamin Aretz, Yelda Krumpholtz, Simon Kugai, Nicola Amarell, Manuela Schmidt, Birgitta Weltermann

Background: The German College of General Practitioners and Family Physicians (DEGAM) issued a COVID-19 guideline with eleven recommendations to support primary care services during the pandemic. Their use in general practices beyond the pandemic can contribute to pandemic preparedness. This study analysed general practitioners' (GPs) interest in applying recommended organisational changes in non-pandemic times.

Methods: Data from the German egePan GP survey (n = 516 GPs) - a multi-level clustered randomised web-based survey - were analysed. GPs' interest in the future application of the eleven guideline recommendations was calculated. In addition, each recommendation was evaluated by the GPs using a Net-Promoter-Score (NPS range - 100 to 100). A linear regression model identified GP and practice characteristics associated with a higher interest in applying recommendations in non-pandemic times.

Results: 98.5% of the GPs indicated the intention to implement at least one guideline recommendation prospectively: disinfectant dispensers at the entrance (86%), optimised consultation scheduling to reduce waiting times (83%), and glass screens in the reception area (72%), which also received the highest NPS scores. In contrast, lower interest was observed for items such as insurance card readers handled by patients (48%), only selected staff treating infectious patients (44%), and video consultations for patients with infections (26%). A higher interest to implement recommendations in non-pandemic times was associated with a higher crisis leadership score (p < 0.001), using the Corona-Warn-App (p = 0.007), and being a female GP (p = 0.045). In addition, GPs from Western, Northern, and Southern, and those with a higher patient volume per three months, were more interested in future implementation.

Conclusions: Overall, GPs demonstrated the readiness to follow the DEGAM COVID-19 guideline outside pandemic periods, establishing them as key contributors to pandemic preparedness in Germany.

背景:德国全科医师和家庭医生学院(DEGAM)发布了 COVID-19 指南,提出了在大流行期间支持初级保健服务的 11 项建议。大流行过后,在全科医疗机构中使用这些建议有助于大流行病的防备工作。本研究分析了全科医生(GPs)在非大流行时期应用建议的组织变革的兴趣:方法:分析了德国 egePan 全科医生调查(n = 516 名全科医生)的数据,这是一项基于网络的多级分组随机调查。计算了全科医生对未来应用 11 项指南建议的兴趣。此外,全科医生还使用净推销员得分(NPS 范围 - 100 至 100)对每项建议进行了评估。一个线性回归模型确定了与在非流行病时期应用建议的兴趣较高相关的全科医生和诊所特征:98.5%的全科医生表示有意前瞻性地实施至少一项指南建议:入口处的消毒剂分配器(86%)、优化就诊时间安排以减少等待时间(83%)以及接待区的玻璃屏幕(72%),这些建议也获得了最高的NPS评分。与此相反,人们对由患者操作保险卡阅读器(48%)、仅由选定的工作人员治疗传染病患者(44%)和为传染病患者提供视频会诊(26%)等项目的兴趣较低。在非流行病时期实施建议的兴趣越高,危机领导力得分越高(p 结论:在非流行病时期实施建议的兴趣越高,危机领导力得分越高:总体而言,全科医生表现出愿意在大流行时期以外遵循 DEGAM COVID-19 指南,从而使他们成为德国大流行准备工作的主要贡献者。
{"title":"Higher interest to continue COVID-19 practice recommendations in non-pandemic times among German GPs with better crisis leadership skills (egePan study).","authors":"Benjamin Aretz, Yelda Krumpholtz, Simon Kugai, Nicola Amarell, Manuela Schmidt, Birgitta Weltermann","doi":"10.1186/s12913-024-11855-7","DOIUrl":"10.1186/s12913-024-11855-7","url":null,"abstract":"<p><strong>Background: </strong>The German College of General Practitioners and Family Physicians (DEGAM) issued a COVID-19 guideline with eleven recommendations to support primary care services during the pandemic. Their use in general practices beyond the pandemic can contribute to pandemic preparedness. This study analysed general practitioners' (GPs) interest in applying recommended organisational changes in non-pandemic times.</p><p><strong>Methods: </strong>Data from the German egePan GP survey (n = 516 GPs) - a multi-level clustered randomised web-based survey - were analysed. GPs' interest in the future application of the eleven guideline recommendations was calculated. In addition, each recommendation was evaluated by the GPs using a Net-Promoter-Score (NPS range - 100 to 100). A linear regression model identified GP and practice characteristics associated with a higher interest in applying recommendations in non-pandemic times.</p><p><strong>Results: </strong>98.5% of the GPs indicated the intention to implement at least one guideline recommendation prospectively: disinfectant dispensers at the entrance (86%), optimised consultation scheduling to reduce waiting times (83%), and glass screens in the reception area (72%), which also received the highest NPS scores. In contrast, lower interest was observed for items such as insurance card readers handled by patients (48%), only selected staff treating infectious patients (44%), and video consultations for patients with infections (26%). A higher interest to implement recommendations in non-pandemic times was associated with a higher crisis leadership score (p < 0.001), using the Corona-Warn-App (p = 0.007), and being a female GP (p = 0.045). In addition, GPs from Western, Northern, and Southern, and those with a higher patient volume per three months, were more interested in future implementation.</p><p><strong>Conclusions: </strong>Overall, GPs demonstrated the readiness to follow the DEGAM COVID-19 guideline outside pandemic periods, establishing them as key contributors to pandemic preparedness in Germany.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1396"},"PeriodicalIF":2.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11562362/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614349","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Financial strain and resilience: a qualitative exploration of parental perspectives on caring for children with sickle cell disease in Ghana. 经济压力与复原力:对加纳父母照顾镰状细胞病患儿观点的定性探索。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-12 DOI: 10.1186/s12913-024-11773-8
Menford Owusu Ampomah, Karl Atkin, Lillian Akorfa Ohene, Gloria Achempim-Ansong, Kwadwo Ameyaw Korsah, Luke Laari

Background: In Ghana, nearly one in four (25%) of the population are sickle cell disease carriers. Furthermore, 2% of all babies born (20 for every 1000 live births) has sickle cell disease. However, little is known about how parents negotiate the financial challenges facing parents of a child with sickle cell disease. This study explores the financial difficulties of parents and children living with sickle cell disease.

Methods: The study adopted a qualitative approach. Twenty-seven parents were purposively selected from a sickle cell clinic in Accra, Ghana. Data collection was through an in-depth, face-to-face interview, using an interview guide based on the research objectives, and analyzed using thematic analysis.

Result: The findings showed that parents faced multiple financial difficulties (both direct and indirect) as they met the direct cost of medications, routine laboratory investigations, and hospital admissions. The National Health Insurance scheme does not wholly cover these costs. Families also describe more indirect costs, such as those associated with maintaining their child's well-being alongside those connected to their caring responsibilities, including the impact of giving up work and reducing working hours. Findings highlight the most pressing challenge, including the lack of access to financial support and a more general lack of understanding of the difficulties they faced on the part of policymakers.

Conclusion: Supporting sickle cell parents' financial needs would improve their emotional and social well-being, enabling them to be more effective family carers.

背景:在加纳,近四分之一的人口(25%)是镰状细胞病携带者。此外,2% 的新生儿(每 1000 名活产婴儿中有 20 名)患有镰状细胞病。然而,人们对镰状细胞病患儿父母如何应对所面临的经济挑战知之甚少。本研究探讨了镰状细胞病父母和患儿的经济困难:研究采用定性方法。从加纳阿克拉的一家镰状细胞诊所有目的地挑选了 27 名家长。根据研究目标,使用访谈指南,通过面对面的深入访谈收集数据,并使用主题分析法进行分析:研究结果表明,家长在支付药物、常规实验室检查和住院的直接费用时,面临着多重经济困难(直接和间接)。国家医疗保险计划并不完全涵盖这些费用。这些家庭还描述了更多的间接成本,例如与维持孩子健康相关的成本,以及与他们的照顾责任相关的成本,包括放弃工作和减少工作时间的影响。研究结果强调了最紧迫的挑战,包括缺乏获得经济支持的途径,以及政策制定者对他们所面临的困难普遍缺乏了解:结论:支持镰状细胞父母的经济需求将改善他们的情感和社会福祉,使他们成为更有效的家庭照顾者。
{"title":"Financial strain and resilience: a qualitative exploration of parental perspectives on caring for children with sickle cell disease in Ghana.","authors":"Menford Owusu Ampomah, Karl Atkin, Lillian Akorfa Ohene, Gloria Achempim-Ansong, Kwadwo Ameyaw Korsah, Luke Laari","doi":"10.1186/s12913-024-11773-8","DOIUrl":"10.1186/s12913-024-11773-8","url":null,"abstract":"<p><strong>Background: </strong>In Ghana, nearly one in four (25%) of the population are sickle cell disease carriers. Furthermore, 2% of all babies born (20 for every 1000 live births) has sickle cell disease. However, little is known about how parents negotiate the financial challenges facing parents of a child with sickle cell disease. This study explores the financial difficulties of parents and children living with sickle cell disease.</p><p><strong>Methods: </strong>The study adopted a qualitative approach. Twenty-seven parents were purposively selected from a sickle cell clinic in Accra, Ghana. Data collection was through an in-depth, face-to-face interview, using an interview guide based on the research objectives, and analyzed using thematic analysis.</p><p><strong>Result: </strong>The findings showed that parents faced multiple financial difficulties (both direct and indirect) as they met the direct cost of medications, routine laboratory investigations, and hospital admissions. The National Health Insurance scheme does not wholly cover these costs. Families also describe more indirect costs, such as those associated with maintaining their child's well-being alongside those connected to their caring responsibilities, including the impact of giving up work and reducing working hours. Findings highlight the most pressing challenge, including the lack of access to financial support and a more general lack of understanding of the difficulties they faced on the part of policymakers.</p><p><strong>Conclusion: </strong>Supporting sickle cell parents' financial needs would improve their emotional and social well-being, enabling them to be more effective family carers.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1380"},"PeriodicalIF":2.7,"publicationDate":"2024-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11556171/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How do patients and healthcare professionals experience foot examinations in diabetes care? - A randomised controlled study of digital foot examinations versus traditional foot examinations. 患者和医护人员如何体验糖尿病护理中的足部检查?- 数字足部检查与传统足部检查的随机对照研究。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-12 DOI: 10.1186/s12913-024-11674-w
Ulla Hellstrand Tang, Roy Tranberg, Leif Sundberg, Isabella Scandurra

Background: Digital solutions in healthcare can facilitate and improve care. However, the experiences and the usefulness of using either digital foot examinations or traditional foot examinations need to be evaluated. The aims of the study were to evaluate: 1) The differences in patient experiences, having their foot examined supported by the Clinical Decision Support System as compared with having their foot examined in traditional practice, 2) How healthcare professionals, by using the digital tool, experienced the routine compared with performing the foot examination as in traditional practice.

Methods: Of a total of 141 patients, 100 patients with diabetes were single-blind digitally randomised to one of two parallel arms: having their foot examined by a healthcare professional using a digital tool (n = 47) or having their foot examined as in traditional practice (n = 53) at the Department of Prosthetics and Orthotics at Sahlgrenska University Hospital, Gothenburg, Sweden. Patients filled in a modified version of the National Patient Survey and the Orthotics and Prosthetics Users' Survey at study end. Two healthcare professionals, working at a Department of Prosthetics and Orthotics, answered surveys regarding the interaction between the patient and the certified prosthetist and orthotist.

Results: Patients, aged 66 ± 13 years, perceived a high level of satisfaction with the service at the department, regardless of the method used. No significant differences between groups were found when evaluated by 27 questions in the National Patient Survey or by the Orthotics and Prosthetics Users' Survey, with scores of 67.17 ± 12.18 vs. 66.35 ± 16.52 (p = 0.78) for the intervention and control group respectively. For the same patient that healthcare professionals foot examined, the risk class was fully obtained when the risk to develop foot ulcers was assessed by using the digital tool, whereas only 2% of the patients were classified when foot assessed in traditional practice.

Conclusions: Regardless of the method used for the foot examination, patients perceived a high level of satisfaction with the services at the Department of Prosthetics and Orthotics. All the patients were risk classified in the intervention group. The healthcare professionals found that, by using the Clinical Decision Support System, the foot examination was structured and followed clinical guidelines. Furthermore, the documentation in the electronic health record was thorough, even though further improvements, such as integration with co-existing health record systems, were requested.

Trial registration: Clinical Trials NCT03088566 , Registered 23 March 2017.

背景:医疗保健领域的数字化解决方案可以促进和改善护理工作。然而,无论是使用数字化足部检查还是传统足部检查,其经验和实用性都需要进行评估。本研究旨在评估1)在临床决策支持系统的支持下进行足部检查与传统足部检查相比,患者的体验有何不同;2)与传统足部检查相比,医护人员在使用数字化工具时如何体验常规足部检查:在瑞典哥德堡萨赫勒格伦斯卡大学医院假肢和矫形器科的 141 名患者中,100 名糖尿病患者被单盲数字随机分配到两个平行组中的一个:由医护人员使用数字工具进行足部检查(n = 47)或按照传统做法进行足部检查(n = 53)。患者在研究结束时填写了一份修改版的全国患者调查表和矫形器与假肢使用者调查表。两名在假肢和矫形器部门工作的医护人员回答了有关患者与认证假肢和矫形器师之间互动的调查:患者的年龄为(66 ± 13)岁,无论采用哪种方法,他们对该部门的服务都非常满意。干预组和对照组的得分分别为(67.17 ± 12.18)和(66.35 ± 16.52)(p = 0.78)。对于医护人员足部检查的同一患者,在使用数字工具评估其患足部溃疡的风险时,可完全获得风险等级,而在传统足部评估中,仅有2%的患者获得了风险等级:无论采用哪种方法进行足部检查,患者对修复与矫形科的服务都非常满意。在干预组中,所有患者都进行了风险分类。医护人员发现,通过使用临床决策支持系统,足部检查有条不紊,并遵循了临床指南。此外,电子健康记录中的文档记录也很详尽,尽管还需要进一步改进,例如与现有的健康记录系统进行整合:临床试验 NCT03088566 ,2017 年 3 月 23 日注册。
{"title":"How do patients and healthcare professionals experience foot examinations in diabetes care? - A randomised controlled study of digital foot examinations versus traditional foot examinations.","authors":"Ulla Hellstrand Tang, Roy Tranberg, Leif Sundberg, Isabella Scandurra","doi":"10.1186/s12913-024-11674-w","DOIUrl":"10.1186/s12913-024-11674-w","url":null,"abstract":"<p><strong>Background: </strong>Digital solutions in healthcare can facilitate and improve care. However, the experiences and the usefulness of using either digital foot examinations or traditional foot examinations need to be evaluated. The aims of the study were to evaluate: 1) The differences in patient experiences, having their foot examined supported by the Clinical Decision Support System as compared with having their foot examined in traditional practice, 2) How healthcare professionals, by using the digital tool, experienced the routine compared with performing the foot examination as in traditional practice.</p><p><strong>Methods: </strong>Of a total of 141 patients, 100 patients with diabetes were single-blind digitally randomised to one of two parallel arms: having their foot examined by a healthcare professional using a digital tool (n = 47) or having their foot examined as in traditional practice (n = 53) at the Department of Prosthetics and Orthotics at Sahlgrenska University Hospital, Gothenburg, Sweden. Patients filled in a modified version of the National Patient Survey and the Orthotics and Prosthetics Users' Survey at study end. Two healthcare professionals, working at a Department of Prosthetics and Orthotics, answered surveys regarding the interaction between the patient and the certified prosthetist and orthotist.</p><p><strong>Results: </strong>Patients, aged 66 ± 13 years, perceived a high level of satisfaction with the service at the department, regardless of the method used. No significant differences between groups were found when evaluated by 27 questions in the National Patient Survey or by the Orthotics and Prosthetics Users' Survey, with scores of 67.17 ± 12.18 vs. 66.35 ± 16.52 (p = 0.78) for the intervention and control group respectively. For the same patient that healthcare professionals foot examined, the risk class was fully obtained when the risk to develop foot ulcers was assessed by using the digital tool, whereas only 2% of the patients were classified when foot assessed in traditional practice.</p><p><strong>Conclusions: </strong>Regardless of the method used for the foot examination, patients perceived a high level of satisfaction with the services at the Department of Prosthetics and Orthotics. All the patients were risk classified in the intervention group. The healthcare professionals found that, by using the Clinical Decision Support System, the foot examination was structured and followed clinical guidelines. Furthermore, the documentation in the electronic health record was thorough, even though further improvements, such as integration with co-existing health record systems, were requested.</p><p><strong>Trial registration: </strong>Clinical Trials NCT03088566 , Registered 23 March 2017.</p>","PeriodicalId":9012,"journal":{"name":"BMC Health Services Research","volume":"24 1","pages":"1387"},"PeriodicalIF":2.7,"publicationDate":"2024-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11558827/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
BMC Health Services Research
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1