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Fetal alcohol spectrum disorders prevention and clinical guidelines research - workshop report. 胎儿酒精谱系障碍预防和临床指南研究--研讨会报告。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-08-07 DOI: 10.1186/s12919-024-00298-x
Tracey Pérez Koehlmoos, Elizabeth Lee, Ilse Rivera, Jennifer Wisdahl, Katie Erdman, Tom Donaldson

It is estimated that up to 1 in 20 people in the United States may have a fetal alcohol spectrum disorder (FASD), or the array of physical, cognitive, emotional, and social disorders caused by exposure to alcohol during prenatal development (May et al., JAMA 319:474-82, 2018). While this condition is present in a broad range of individuals and families, it has not previously been examined in the military community, where cultural factors including an increased prevalence of alcohol misuse may pose a unique set of challenges (Health.mil, Alcohol misuse, 2024).The Uniformed Services University of the Health Sciences (USUHS), in conjunction with FASD United, hosted the second annual Workshop on Fetal Alcohol Spectrum Disorders Prevention and Clinical Guidelines Research on 20 September 2023 in Washington, DC. Organized as part of a four-year, federally-funded health services research initiative on FASD in the U.S. Department of Defense (DoD) Military Health System (MHS), the workshop provided a forum for exploring the initiative's focus and progress; examining current knowledge and practice in the research and clinical spheres; and identifying potential strategies to further improve prevention, screening, diagnosis, interventions, and family support. Building off of the 2022 workshop that covered the state of the science surrounding prenatal alcohol exposure and FASD, the 2023 focused primarily on FASD and efforts aimed at identification and management (Koehlmoos et al., BMC Proc 17 Suppl 12:19, 2023). One hundred and thirty attendees from academia, healthcare, federal agencies, and patient advocacy organizations gathered to share research findings; learn from lived experiences; and discuss initiatives to advance research, screening, and services for at-risk pregnant women as well as families and caregivers supporting individuals with FASD.

据估计,美国每 20 人中就有 1 人可能患有胎儿酒精谱系障碍(FASD),即在产前发育过程中接触酒精而导致的一系列身体、认知、情感和社交障碍(May 等人,JAMA 319:474-82, 2018)。虽然这种情况存在于广泛的个人和家庭中,但此前尚未在军事社区中进行过研究,而军事社区中的文化因素(包括酒精滥用发生率的增加)可能会带来一系列独特的挑战(Health.mil,酒精滥用,2024 年)。2023 年 9 月 20 日,美国卫生科学统一服务大学(USUHS)与 FASD United 联合在华盛顿特区举办了第二届胎儿酒精谱系障碍预防和临床指南研究年度研讨会。作为美国国防部(DoD)军事卫生系统(MHS)一项为期四年、由联邦政府资助的胎儿酒精紊乱症健康服务研究计划的一部分,该研讨会提供了一个论坛,以探讨该计划的重点和进展;检查研究和临床领域的现有知识和实践;并确定进一步改进预防、筛查、诊断、干预和家庭支持的潜在策略。2022 年的研讨会涵盖了产前酒精暴露和 FASD 的科学现状,在此基础上,2023 年的研讨会主要关注 FASD 以及旨在识别和管理 FASD 的工作(Koehlmoos 等人,BMC Proc 17 Suppl 12:19,2023 年)。来自学术界、医疗保健机构、联邦机构和患者权益组织的 130 名与会者齐聚一堂,分享研究成果,学习生活经验,并讨论推进针对高危孕妇以及支持 FASD 患者的家庭和护理人员的研究、筛查和服务的举措。
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引用次数: 0
Abstracts from the 6th International Scientific Conference on Exercise and Quality of Life. 第六届运动与生活质量国际科学会议摘要。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-07-19 DOI: 10.1186/s12919-024-00297-y
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引用次数: 0
Correction: Proceedings of the 2023 International Maternal and Newborn Health Conference. 更正:2023 年国际孕产妇和新生儿健康大会论文集》。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-07-01 DOI: 10.1186/s12919-024-00296-z
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引用次数: 0
Advancing hypertensive disorders of pregnancy management: insights from the 5th preeclampsia scientific symposium in Ghana. 推进妊娠期高血压疾病管理:加纳第五届子痫前期科学研讨会的启示。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-06-13 DOI: 10.1186/s12919-024-00295-0
Koiwah Koi-Larbi, Dorotheah Obiri, Joyce L Browne, Linda Ahenkorah Fondjo, Samantha Katsande, Isabella Garti

The 5th Preeclampsia Scientific Symposium (PSS2023) organized by Action on Preeclampsia (APEC) Ghana was themed: 'Realign, Refocus: Improving outcomes of Hypertensive Disorders of Pregnancy through Shared Decision Making, Research & Quality of Care'. It took place on the 18th and 19th of May 2023 at the Ghana College of Physicians and Surgeons (GCPS), Accra Ghana. This transdisciplinary symposium brought together a national representation of experts, policy makers, scientists, and healthcare professionals to discuss key priorities, opportunities, approaches, and strategies to improve the maternal and perinatal outcomes of hypertensive disorders of pregnancy (HDP) in Ghana and the sub-region. The symposium centered around three key themes: realigning/refocusing patient-doctor decision making processes to improve outcomes of HDP; realigning/refocusing clinical care to improve outcomes of HDP; and leveraging on research to predict, recognize and manage high-risk women.This report summarizes insights from the diverse presentations and discussions held at the #PSS2023. This will form a roadmap for future research, policy, and interventions to improve outcomes of HDP in Ghana and the sub-region. The symposium provided a wealth of evidence and knowledge from various experts, highlighting the need for women-centered care, equitable re-allocation of resources, multi-sectoral and innovative approaches, capacity strengthening. Other highlights include knowledge base development and increased stakeholder and community engagement with an overall aim of improving outcomes of HDP. The symposium also fostered inclusivity, welcoming survivors of HDP and their families at a scientific platform. They provided invaluable insights into the challenges faced and the lived experiences of those affected by the disease. Trainees and students also benefited from the symposium as it provided networking opportunities with fellow researchers, and a front row to gaining insights into cutting-edge research in Ghana.

由加纳子痫前期行动组织(APEC)举办的第五届子痫前期科学研讨会(PSS2023)的主题是:"重新调整,重新聚焦:通过共同决策、研究和护理质量提高妊娠高血压疾病的治疗效果"。会议于 2023 年 5 月 18 日和 19 日在加纳阿克拉的加纳内外科医学院(GCPS)举行。这次跨学科研讨会汇聚了全国各地的专家、决策者、科学家和医疗保健专业人员,共同讨论改善加纳和次区域妊娠高血压疾病(HDP)的孕产妇和围产期结局的关键优先事项、机遇、方法和战略。研讨会围绕三个关键主题展开:调整/重新聚焦患者-医生决策过程,以改善妊娠高血压疾病的预后;调整/重新聚焦临床护理,以改善妊娠高血压疾病的预后;利用研究预测、识别和管理高风险妇女。本报告总结了在 #PSS2023 会议上进行的各种发言和讨论的见解,这将为今后的研究、政策和干预措施提供路线图,以改善加纳和次区域的高危产妇死亡率。研讨会上各位专家提供了丰富的证据和知识,强调了以妇女为中心的护理、公平的资源再分配、多部门和创新方法以及加强能力的必要性。其他亮点还包括知识库的开发以及利益攸关方和社区的更多参与,其总体目标是改善人道主义发展计划的成果。研讨会还促进了包容性,在科学平台上欢迎 HDP 幸存者及其家人。他们就受该疾病影响者所面临的挑战和生活经历提供了宝贵的见解。受训人员和学生也从研讨会中获益匪浅,因为他们有机会与同行研究人员进行交流,并有机会深入了解加纳的前沿研究。
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引用次数: 0
Abstracts from the 2nd International Conference of Science, Technology, Education, and Management (InSTEM 2023). 第二届国际科学、技术、教育和管理大会(InSTEM 2023)摘要。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-06-06 DOI: 10.1186/s12919-024-00294-1
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引用次数: 0
Advocacy, experience sharing and action planning toward raising additional financing for primary health care: spending more and spending better towards universal health coverage. 开展宣传、经验交流和行动规划,为初级保健筹集更多资金:为实现全民医保多花钱、花好钱。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-05-23 DOI: 10.1186/s12919-024-00290-5
Diana Kizza, Juliet Nabyonga-Orem, Brendan Kwesiga, Maria Muniz, Ogochukwu Chukwujekwu, Paul Ngwakum

Background: Reallocation of funding to respond the covid-19 pandemic, against a backdrop of longstanding underfunded health systems and high out of pocket expenditures for health, affected access to health services for households, especially those without social protection. These highlighted the urgency in curbing the impact of disruptions on progress towards Universal Health Coverage (UHC) goals. Strategic investments in Primary Health Care (PHC) can help spur the necessary momentum.

Methods: Under the collaborative platform of the Harmonization for Health in Africa's Health Financing Technical Working Group; UNICEF Regional Office for East and Southern Africa and WHO Regional Office for Africa convened the first PHC financing forum for 21 countries across the Eastern and Southern Africa Region. The three-day forum engaged key health and financing decision makers in constructive dialogue to identify practical actions and policy changes needed to accelerate delivery of UHC through improvements in PHC financing mechanisms and arrangements. The forum was attended by over 130 senior policy makers and technicians from governments, United Nations agencies and nonstate actors drawn from within country, regional and affiliating headquarter institutions.

Results: The Regional Forum engaged participants in meaningful, and constructive discussions. Five themes emerged (1) regular measurement and monitoring of PHC services and spending (2) increasing investments in PHC (3) enhancing efficiency, effectiveness, and equity of PHC spending, (4) ensuring an enabling environment to invest more and better in PHC, and (5) better partnerships for the realization of commitments. An outcome statement summarizing the main recommendations of the meeting was approved at the end of the forum, and action plans were developed by 14 government delegations to improve PHC financing within country-specific context and priorities.

Conclusions and recommendations: The aims of this meeting in augmenting the political will created through the Africa Leadership Meeting (ALM), by catalyzing technical direction for increased momentum for improved health financing across all African countries was achieved. Peer exchanges offered practical approaches countries can take to improve health financing in ways that are suited to regional context providing a channel for incremental improvements to health outcomes in the countries.

背景:在卫生系统长期资金不足、自付医疗费用高昂的背景下,重新分配资金以应对科维德-19 大流行病,影响了家庭,特别是那些没有社会保障的家庭获得医疗服务的机会。这些都凸显了遏制干扰对实现全民医保(UHC)目标的影响的紧迫性。对初级卫生保健(PHC)进行战略性投资有助于推动必要的发展势头:在协调非洲卫生筹资技术工作组的合作平台下,联合国儿童基金会东部和南部非洲区域办事处与世界卫生组织非洲区域办事处为东部和南部非洲区域的 21 个国家举办了首次初级卫生保健筹资论坛。在为期三天的论坛上,主要的卫生和筹资决策者参与了建设性对话,以确定通过改善初级保健筹资机制和安排加快实现全民保健所需的实际行动和政策变革。来自各国政府、联合国机构和非国家行为者的 130 多名高级决策者和技术人员参加了论坛,他们分别来自国家、地区和附属总部机构:成果:地区论坛让与会者参与了有意义和建设性的讨论。论坛提出了五个主题:(1) 定期衡量和监测初级保健服务和支出;(2) 增加对初级保健的投资;(3) 提高初级保健支出的效率、效益和公平性;(4) 确保创造有利环境,更多更好地投资于初级保健;(5) 为实现承诺建立更好的伙伴关系。论坛结束时批准了一份总结会议主要建议的成果声明,14 个政府代表团制定了行动计划,以根据具体国情和优先事项改善初级保健筹资:本次会议的目的是加强非洲领导人会议(ALM)所形成的政治意愿,通过促进技术指导来增强所有非洲国家改善卫生筹资的势头。同行交流为各国提供了切实可行的方法,使其能够以适合地区情况的方式改善卫生筹资,为逐步改善各国的卫生成果提供了渠道。
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引用次数: 0
Meeting Abstracts from the 5th National Big Data Health Science Conference. 第五届全国大数据健康科学大会会议摘要。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-05-16 DOI: 10.1186/s12919-024-00292-3
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引用次数: 0
Insights into treatment of complex Crohn's perianal fistulas 对复杂克罗恩病肛周瘘治疗的见解
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-04-25 DOI: 10.1186/s12919-024-00291-4
Gregor Norčič, Nataša Smrekar, Srđan Marković, Goran Barišić, Gediminas Kiudelis, Henrikas Paužas, Tamás Molnár, Attila Szijarto, Z. Serclova, Tina Roblek, Viktor Uršič, I. White
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引用次数: 0
Correction: Proceedings of the 2023 International Maternal and Newborn Health Conference 更正:2023 年国际孕产妇和新生儿健康大会记录
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-04-17 DOI: 10.1186/s12919-024-00293-2
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引用次数: 0
Proceedings of the 2023 International Maternal Newborn Health Conference. 2023 年国际孕产妇和新生儿健康大会论文集。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-03-21 DOI: 10.1186/s12919-024-00289-y
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引用次数: 0
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BMC Proceedings
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