Pub Date : 2025-06-24DOI: 10.1186/s12919-025-00334-4
Fadie T Coleman, Danielle E Graham
Engaging students in research and outreach offers a range of benefits, including acquiring scientific knowledge and critical skills, fostering science identity development and increasing persistence in science, and providing broad exposure to STEM careers. Although undergraduate research experiences have been shown to be impactful for developing scientists, exploring ways in which all students can experience these opportunities is an important focus that merits continued discussion. This paper will discuss ways in which well-known strategies for incorporating research into science curricula can be further adapted to have a broader impact on undergraduate education and science outreach programming. In addition, key insights inspired by an "Adapting Your Research for Teaching and Outreach" workshop will be considered. Lastly, this paper will discuss ways in which inclusive strategies can facilitate practical application across diverse educational settings.
{"title":"Strategies for creating undergraduate research and outreach experiences.","authors":"Fadie T Coleman, Danielle E Graham","doi":"10.1186/s12919-025-00334-4","DOIUrl":"10.1186/s12919-025-00334-4","url":null,"abstract":"<p><p>Engaging students in research and outreach offers a range of benefits, including acquiring scientific knowledge and critical skills, fostering science identity development and increasing persistence in science, and providing broad exposure to STEM careers. Although undergraduate research experiences have been shown to be impactful for developing scientists, exploring ways in which all students can experience these opportunities is an important focus that merits continued discussion. This paper will discuss ways in which well-known strategies for incorporating research into science curricula can be further adapted to have a broader impact on undergraduate education and science outreach programming. In addition, key insights inspired by an \"Adapting Your Research for Teaching and Outreach\" workshop will be considered. Lastly, this paper will discuss ways in which inclusive strategies can facilitate practical application across diverse educational settings.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"18 Suppl 1","pages":"30"},"PeriodicalIF":0.0,"publicationDate":"2025-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12186346/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144483114","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-16DOI: 10.1186/s12919-025-00329-1
G K Healey Akearok, C V L Larsen
The proceedings of the One Health Gathering in Iqaluit, Nunavut, Canada, centered on the theme of "Elevating Indigenous Voices in One Health Research in the Arctic." Approximately fifty participants from Greenland, the USA, Canada, and across Nunavut's three regions convened to explore key aspects of research pertinent to this theme. The gathering underscored Indigenous Knowledge and Practices, emphasizing innovative post-secondary education models rooted in Inuit ways of knowing. It also delved into Holistic Worldviews and Health and Wellbeing, spotlighting community country food programs, harvesting practices, and the significance of holistic perspectives in healthcare. Local contexts and community voices were prioritized, with presentations showcasing community-led testing for a parasite in walrus, co-management programs for polar bears, and the vital role of student voices and perspectives. Elder stories and wisdom were shared, adding invaluable insight and depth to discussions. Moreover, the gathering fostered community empowerment and action on One Health research and/or policy, culminating in collaborative recommendations and an art piece aimed at amplifying community engagement and agency in research initiatives. Overall, the event provided a platform for diverse voices to converge, exchange knowledge, and collaborate towards a more inclusive and effective approach to One Health research in the Arctic, reflecting a commitment to Indigenous perspectives, community empowerment, and holistic wellbeing.
{"title":"One Health Gathering: Arctic Indigenous Peoples Voices and Perspectives.","authors":"G K Healey Akearok, C V L Larsen","doi":"10.1186/s12919-025-00329-1","DOIUrl":"10.1186/s12919-025-00329-1","url":null,"abstract":"<p><p>The proceedings of the One Health Gathering in Iqaluit, Nunavut, Canada, centered on the theme of \"Elevating Indigenous Voices in One Health Research in the Arctic.\" Approximately fifty participants from Greenland, the USA, Canada, and across Nunavut's three regions convened to explore key aspects of research pertinent to this theme. The gathering underscored Indigenous Knowledge and Practices, emphasizing innovative post-secondary education models rooted in Inuit ways of knowing. It also delved into Holistic Worldviews and Health and Wellbeing, spotlighting community country food programs, harvesting practices, and the significance of holistic perspectives in healthcare. Local contexts and community voices were prioritized, with presentations showcasing community-led testing for a parasite in walrus, co-management programs for polar bears, and the vital role of student voices and perspectives. Elder stories and wisdom were shared, adding invaluable insight and depth to discussions. Moreover, the gathering fostered community empowerment and action on One Health research and/or policy, culminating in collaborative recommendations and an art piece aimed at amplifying community engagement and agency in research initiatives. Overall, the event provided a platform for diverse voices to converge, exchange knowledge, and collaborate towards a more inclusive and effective approach to One Health research in the Arctic, reflecting a commitment to Indigenous perspectives, community empowerment, and holistic wellbeing.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 12","pages":"16"},"PeriodicalIF":0.0,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12168248/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144301066","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-16DOI: 10.1186/s12919-025-00330-8
David B Nicholas, Fakhri Shafai, Stephen M Edelson, Vanessa Bal, Hilary Nelson, Wenn Lawson, Mary Doherty, Hilde M Geurts, William F Sullivan, B Blair Braden, Gregory L Wallace, Maxine Share, Laura St John, David G Amaral, Agnes H Whitaker, Lori Watters, Terri Robson, Joanne Gauthier, Sylvère Moulanier, Linda Perry, Sandy Stemp, Ellen Wilkinson, Nancy Jokinen, Margaret L Bauman, Robert Hendren, Evdokia Anagnostou, Julian N Trollor
As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.
{"title":"Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank.","authors":"David B Nicholas, Fakhri Shafai, Stephen M Edelson, Vanessa Bal, Hilary Nelson, Wenn Lawson, Mary Doherty, Hilde M Geurts, William F Sullivan, B Blair Braden, Gregory L Wallace, Maxine Share, Laura St John, David G Amaral, Agnes H Whitaker, Lori Watters, Terri Robson, Joanne Gauthier, Sylvère Moulanier, Linda Perry, Sandy Stemp, Ellen Wilkinson, Nancy Jokinen, Margaret L Bauman, Robert Hendren, Evdokia Anagnostou, Julian N Trollor","doi":"10.1186/s12919-025-00330-8","DOIUrl":"10.1186/s12919-025-00330-8","url":null,"abstract":"<p><p>As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 11","pages":"15"},"PeriodicalIF":0.0,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12168249/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144301065","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-11DOI: 10.1186/s12919-025-00325-5
{"title":"Abstracts from the Globesync Community Research and Sustainability (GlobeCoReS 2024).","authors":"","doi":"10.1186/s12919-025-00325-5","DOIUrl":"10.1186/s12919-025-00325-5","url":null,"abstract":"","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 9","pages":"14"},"PeriodicalIF":0.0,"publicationDate":"2025-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12153079/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144265237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-22DOI: 10.1186/s12919-025-00326-4
Sheri D Pruitt, Rabia Khan, Nathorn Chaiyakunapruk, Arintaya Phrommintikul, Miguel Angel Díaz Aguilera, Ngiap Chuan Tan, Shoaib Afzal, Andressa da Silva van der Laan, John Weinman
Medication non-adherence is a global challenge with profound implications for patient health outcomes, healthcare systems, and society at large. This widespread issue leads to hundreds of thousands of preventable deaths and hospitalizations annually, and billions of dollars in avoidable healthcare costs. No country is immune to this challenge. The a:care Congress 2024, titled "Adherence is a Behavior: Do We Have the Right One?", addressed this critical issue to understand its societal and economic burden and explore the complex human behaviors driving it. The Congress examined the global impact of non-adherence and local realities, providing a health economic perspective on its consequences. Behavioral factors influencing adherence were analyzed, emphasizing the importance of understanding individual patient motivations. The role of technology and artificial intelligence in the physician-patient relationship was discussed, highlighting opportunities and challenges of integrating these tools. The patient's voice was brought to the forefront, underscoring the importance of communication and trust in the care relationship. A final multidisciplinary session explored the role of each stakeholder in improving adherence. This article provides an overview of the different sessions from the congress, focusing on the challenges associated with medication non-adherence and potential solutions. It emphasizes the need for a multidimensional approach involving all healthcare system stakeholders and the importance of prioritizing the development of new strategies to improve overall health outcomes and healthcare system efficiency.
{"title":"The silent epidemic of non-adherence - insights from the 2024 a:care congress.","authors":"Sheri D Pruitt, Rabia Khan, Nathorn Chaiyakunapruk, Arintaya Phrommintikul, Miguel Angel Díaz Aguilera, Ngiap Chuan Tan, Shoaib Afzal, Andressa da Silva van der Laan, John Weinman","doi":"10.1186/s12919-025-00326-4","DOIUrl":"10.1186/s12919-025-00326-4","url":null,"abstract":"<p><p>Medication non-adherence is a global challenge with profound implications for patient health outcomes, healthcare systems, and society at large. This widespread issue leads to hundreds of thousands of preventable deaths and hospitalizations annually, and billions of dollars in avoidable healthcare costs. No country is immune to this challenge. The a:care Congress 2024, titled \"Adherence is a Behavior: Do We Have the Right One?\", addressed this critical issue to understand its societal and economic burden and explore the complex human behaviors driving it. The Congress examined the global impact of non-adherence and local realities, providing a health economic perspective on its consequences. Behavioral factors influencing adherence were analyzed, emphasizing the importance of understanding individual patient motivations. The role of technology and artificial intelligence in the physician-patient relationship was discussed, highlighting opportunities and challenges of integrating these tools. The patient's voice was brought to the forefront, underscoring the importance of communication and trust in the care relationship. A final multidisciplinary session explored the role of each stakeholder in improving adherence. This article provides an overview of the different sessions from the congress, focusing on the challenges associated with medication non-adherence and potential solutions. It emphasizes the need for a multidimensional approach involving all healthcare system stakeholders and the importance of prioritizing the development of new strategies to improve overall health outcomes and healthcare system efficiency.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 10","pages":"13"},"PeriodicalIF":0.0,"publicationDate":"2025-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12096470/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144118781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-16DOI: 10.1186/s12919-025-00327-3
Leslie A Caromile, Verónica A Segarra
Start-up packages were once predominantly associated with research-intensive institutions. However, they are now increasingly important for teaching-focused and primarily undergraduate institutions due to rising expectations for research involvement. Effective negotiation for tenure-track start-up packages is essential for aligning the candidates' and institutions' interests and goals. Candidates must understand the various components of an offer, such as start-up funds, teaching loads, research expectations, and tenure requirements, to negotiate terms that align with their needs and goals. However, navigating these negotiations can be daunting, particularly for individuals from historically underserved and excluded groups (HUE) in STEM fields who may lack access to supportive networks. In this article, we aim to provide a detailed guide on how to negotiate an effective tenure-track start-up package. We emphasize that this process can be beneficial for both the candidate and the institution, as it helps ensure that their values and goals are aligned, ultimately increasing the chances of success for both parties. This article builds upon our earlier publications and provides comprehensive guidance for negotiating strategies.
{"title":"Negotiating an academic start-up package and job offer as an incoming tenure-track professor in the life sciences.","authors":"Leslie A Caromile, Verónica A Segarra","doi":"10.1186/s12919-025-00327-3","DOIUrl":"10.1186/s12919-025-00327-3","url":null,"abstract":"<p><p>Start-up packages were once predominantly associated with research-intensive institutions. However, they are now increasingly important for teaching-focused and primarily undergraduate institutions due to rising expectations for research involvement. Effective negotiation for tenure-track start-up packages is essential for aligning the candidates' and institutions' interests and goals. Candidates must understand the various components of an offer, such as start-up funds, teaching loads, research expectations, and tenure requirements, to negotiate terms that align with their needs and goals. However, navigating these negotiations can be daunting, particularly for individuals from historically underserved and excluded groups (HUE) in STEM fields who may lack access to supportive networks. In this article, we aim to provide a detailed guide on how to negotiate an effective tenure-track start-up package. We emphasize that this process can be beneficial for both the candidate and the institution, as it helps ensure that their values and goals are aligned, ultimately increasing the chances of success for both parties. This article builds upon our earlier publications and provides comprehensive guidance for negotiating strategies.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"18 Suppl 1","pages":"29"},"PeriodicalIF":0.0,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12082846/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144085869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-04-23DOI: 10.1186/s12919-025-00321-9
Barbara Tornimbene, Zoila Beatriz Leiva Rioja, Manoel Barral-Netto, Carlos Castillo-Salgado, Irena Djordjevic, Moritz Kraemer, Martina McMenamin, Oliver Morgan
The COVID-19 pandemic highlighted substantial obstacles in real-time data generation and management needed for clinical research and epidemiological analysis. Three years after the pandemic, reflection on the difficulties of data integration offers potential to improve emergency preparedness. The fourth session of the WHO Pandemic and Epidemic Intelligence Forum sought to report the experiences of key global institutions in data integration and synthesis, with the aim of identifying solutions for effective integration. Data integration, defined as the combination of heterogeneous sources into a cohesive system, allows for combining epidemiological data with contextual elements such as socioeconomic determinants to create a more complete picture of disease patterns. The approach is critical for predicting outbreaks, determining disease burden, and evaluating interventions. The use of contextual information improves real-time intelligence and risk assessments, allowing for faster outbreak responses. This report captures the growing acknowledgment of data integration importance in boosting public health intelligence and readiness and show examples of how global institutions are strengthening initiatives to respond to this need. However, obstacles persist, including interoperability, data standardization, and ethical considerations. The success of future data integration efforts will be determined by the development of a common technical and legal framework, the promotion of global collaboration, and the protection of sensitive data. Ultimately, effective data integration can potentially transform public health intelligence and our way to successfully respond to future pandemics.
{"title":"Data integration and synthesis for pandemic and epidemic intelligence.","authors":"Barbara Tornimbene, Zoila Beatriz Leiva Rioja, Manoel Barral-Netto, Carlos Castillo-Salgado, Irena Djordjevic, Moritz Kraemer, Martina McMenamin, Oliver Morgan","doi":"10.1186/s12919-025-00321-9","DOIUrl":"10.1186/s12919-025-00321-9","url":null,"abstract":"<p><p>The COVID-19 pandemic highlighted substantial obstacles in real-time data generation and management needed for clinical research and epidemiological analysis. Three years after the pandemic, reflection on the difficulties of data integration offers potential to improve emergency preparedness. The fourth session of the WHO Pandemic and Epidemic Intelligence Forum sought to report the experiences of key global institutions in data integration and synthesis, with the aim of identifying solutions for effective integration. Data integration, defined as the combination of heterogeneous sources into a cohesive system, allows for combining epidemiological data with contextual elements such as socioeconomic determinants to create a more complete picture of disease patterns. The approach is critical for predicting outbreaks, determining disease burden, and evaluating interventions. The use of contextual information improves real-time intelligence and risk assessments, allowing for faster outbreak responses. This report captures the growing acknowledgment of data integration importance in boosting public health intelligence and readiness and show examples of how global institutions are strengthening initiatives to respond to this need. However, obstacles persist, including interoperability, data standardization, and ethical considerations. The success of future data integration efforts will be determined by the development of a common technical and legal framework, the promotion of global collaboration, and the protection of sensitive data. Ultimately, effective data integration can potentially transform public health intelligence and our way to successfully respond to future pandemics.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 4","pages":"12"},"PeriodicalIF":0.0,"publicationDate":"2025-04-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12016051/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143975923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-04-15DOI: 10.1186/s12919-025-00324-6
{"title":"Proceedings of the 2nd edition of the International e-Health Forum 2024.","authors":"","doi":"10.1186/s12919-025-00324-6","DOIUrl":"https://doi.org/10.1186/s12919-025-00324-6","url":null,"abstract":"","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 8","pages":"11"},"PeriodicalIF":0.0,"publicationDate":"2025-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11998125/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143976139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-04-08DOI: 10.1186/s12919-025-00323-7
Vienna Cheng, Preet Kang, Laurie Proulx, Neda Amiri, Mary A De Vera
Background: Arthritis is a group of chronic inflammatory conditions, including systemic lupus erythematosus and rheumatoid arthritis, that disproportionately impact females more than men, often during the childbearing years. Challenges with pregnancy and parenting continue to significantly impact patients and families living with arthritis, compounded by the historical lack of research that has hindered the ability to make informed family planning decisions.
Objectives: In ongoing efforts to broadly translate our expanding research findings in this area, we held two public webinars on pregnancy and parenting in arthritis with the following goals: 1) to create forums for discussion among researchers, patients, and clinicians; 2) raise awareness on emerging issues requiring future research; and 3) provide evidence-based, practical advice for patients, caregivers and families. The first webinar on Pregnancy and Arthritis united perspectives from patients, clinicians and researchers. We learned firsthand challenges of navigating pregnancy with arthritis from patients of various backgrounds, including those who highlighted longstanding healthcare disparities. A rheumatologist specializing in pregnancy and reproductive health shared insights, concluding with the positive outlook that perinatal research is underway on emerging antirheumatic therapies. The second webinar on Parenting and Arthritis discussed evidence-based resources and strategies to support parents, integrating insights from researchers and clinicians.
Conclusion: These webinars illuminated the profound impacts of arthritis on patients and families and revealed knowledge gaps for future research.
{"title":"Lessons learned from Café Scientifique public webinars on pregnancy and parenting in arthritis: perspectives from patients, clinicians, and researchers.","authors":"Vienna Cheng, Preet Kang, Laurie Proulx, Neda Amiri, Mary A De Vera","doi":"10.1186/s12919-025-00323-7","DOIUrl":"10.1186/s12919-025-00323-7","url":null,"abstract":"<p><strong>Background: </strong>Arthritis is a group of chronic inflammatory conditions, including systemic lupus erythematosus and rheumatoid arthritis, that disproportionately impact females more than men, often during the childbearing years. Challenges with pregnancy and parenting continue to significantly impact patients and families living with arthritis, compounded by the historical lack of research that has hindered the ability to make informed family planning decisions.</p><p><strong>Objectives: </strong>In ongoing efforts to broadly translate our expanding research findings in this area, we held two public webinars on pregnancy and parenting in arthritis with the following goals: 1) to create forums for discussion among researchers, patients, and clinicians; 2) raise awareness on emerging issues requiring future research; and 3) provide evidence-based, practical advice for patients, caregivers and families. The first webinar on Pregnancy and Arthritis united perspectives from patients, clinicians and researchers. We learned firsthand challenges of navigating pregnancy with arthritis from patients of various backgrounds, including those who highlighted longstanding healthcare disparities. A rheumatologist specializing in pregnancy and reproductive health shared insights, concluding with the positive outlook that perinatal research is underway on emerging antirheumatic therapies. The second webinar on Parenting and Arthritis discussed evidence-based resources and strategies to support parents, integrating insights from researchers and clinicians.</p><p><strong>Conclusion: </strong>These webinars illuminated the profound impacts of arthritis on patients and families and revealed knowledge gaps for future research.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 7","pages":"10"},"PeriodicalIF":0.0,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11977863/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143802400","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-24DOI: 10.1186/s12919-025-00315-7
Tamara P Lambert, Grzegorz Zapotoczny, Bianca Riello, Nadine Afari, Yaniv Bar-Cohen, Madison Christmas, Salima Jamal, Shahida Qazi, Melissa A Bent, Juan Espinoza
On August 9, 2024, the CTIP symposium brought together various stakeholders in pediatric medical device (PMD) innovation to discuss the current state of pediatric medical devices (PMDs) and action steps that can collectively be taken to further drive PMD innovation. Meeting topics included 1) the Future of Pediatric Innovation, 2) Engaging Patients and Their Families in PMD Development, 3) Partnership Opportunities to Support PMD Research and Development (R&D), 4) Leveraging Real-World Evidence to Enhance PMDs, and 5) Fundraising and Investing in Pediatrics. This paper provides a comprehensive summary of the symposium proceedings, highlighting the critical needs, challenges, and opportunities in the PMD sector, and outlines potential areas for collaboration among stakeholders to drive progress in PMD development.
{"title":"Proceedings from The Consortium for Technology & Innovation in Pediatrics (CTIP) 2024 Annual Pediatric Device Innovation Symposium.","authors":"Tamara P Lambert, Grzegorz Zapotoczny, Bianca Riello, Nadine Afari, Yaniv Bar-Cohen, Madison Christmas, Salima Jamal, Shahida Qazi, Melissa A Bent, Juan Espinoza","doi":"10.1186/s12919-025-00315-7","DOIUrl":"10.1186/s12919-025-00315-7","url":null,"abstract":"<p><p>On August 9, 2024, the CTIP symposium brought together various stakeholders in pediatric medical device (PMD) innovation to discuss the current state of pediatric medical devices (PMDs) and action steps that can collectively be taken to further drive PMD innovation. Meeting topics included 1) the Future of Pediatric Innovation, 2) Engaging Patients and Their Families in PMD Development, 3) Partnership Opportunities to Support PMD Research and Development (R&D), 4) Leveraging Real-World Evidence to Enhance PMDs, and 5) Fundraising and Investing in Pediatrics. This paper provides a comprehensive summary of the symposium proceedings, highlighting the critical needs, challenges, and opportunities in the PMD sector, and outlines potential areas for collaboration among stakeholders to drive progress in PMD development.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 3","pages":"8"},"PeriodicalIF":0.0,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11931763/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143690925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}