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Improving access to services in neuro-developmental disability: proceedings of a national meeting to advance community capacity. 改善获得神经发育障碍服务的机会:促进社区能力全国会议纪要。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2025-01-21 DOI: 10.1186/s12919-024-00311-3
David B Nicholas, Lucyna M Lach, Samantha B Sutherland, Joanne Maxwell, Stephanie McFarland, Anton R Miller, Angela Clancy, Julie Scorah

As part of a participatory project to advance navigational service delivery systems for children with neurodevelopmental disability (NDD) and their families, this paper addresses proceedings from a capacity-building conference in Vancouver, Canada. A total of 29 invited key stakeholders attended the meeting with the following aims: knowledge sharing amongst provincial/territorial regions advancing NDD navigation capacity; sustainable action-oriented knowledge exchange; and operationalizing next steps to build navigation resources across Canadian regions. Regional representation included multiple and inter-sectoral partners (e.g., not-for-profit organizations, government, education, health, researchers, etc.) strategically invited to address mutually-agreed upon regional challenges, where ideas for envisioning, planning and success could be developed for ultimate operationalization in three Canadian provinces and one territory based on need for building navigational service delivery systems in NDD.Advancements in navigational service delivery were shared by site leads in the four represented regions of the initiative: Alberta, British Columbia, Quebec, and Yukon. Each regional lead conveyed targeted accomplishments, priorities and issues in moving navigation forward. Identified successes comprised the development of trusting partnerships across agencies and sectors, innovation and connection among service/navigation organizations and leaders, and training advances. Struggles included insufficient regional clarity on guiding principles for navigation services, a lack of resources relative to family need for services, and insufficient infrastructural supports in regions. Based on key learnings within and across regional groups, plans for regional development were strategized and shared.

作为促进神经发育障碍儿童及其家庭导航服务提供系统的参与性项目的一部分,本文讨论了加拿大温哥华能力建设会议的会议记录。共有29个受邀的主要利益攸关方参加了会议,目的如下:在省/地区之间分享知识,推进NDD导航能力;可持续的以行动为导向的知识交流;以及落实在加拿大各地区建立导航资源的后续步骤。区域代表包括多个部门间伙伴(例如,非营利组织、政府、教育、卫生、研究人员等),战略邀请他们解决共同商定的区域挑战,在这些挑战中,可以根据在国家发展和发展中建立导航服务提供系统的需要,制定设想、规划和成功的想法,以便最终在加拿大三个省和一个地区实施。阿尔伯塔省、不列颠哥伦比亚省、魁北克省和育空地区四个代表地区的站点领导分享了导航服务提供方面的进展。每个地区的领导都传达了在推动航海前进方面的目标成就、优先事项和问题。确定的成功包括在各机构和部门之间建立信任的伙伴关系,在服务/导航组织和领导人之间进行创新和联系,以及在培训方面取得进展。困难包括导航服务的指导原则在区域上不够明确,家庭对服务的需求方面缺乏资源,以及各区域基础设施支持不足。根据各区域集团内部和各区域集团之间的重要经验教训,制定了区域发展计划并进行了分享。
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引用次数: 0
Managing conflict styles to accelerate leadership effectiveness. 管理冲突风格,提高领导效率。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-12-05 DOI: 10.1186/s12919-024-00313-1
Greg Pennington

When describing leadership effectiveness as influencing and impacting the feelings, thoughts and behaviors of others, it can be seen as a critical skill in the overall effectiveness of leaders in general, including those in higher education. Understanding what leadership skills contribute to differentiating between average leaders and more effective leaders, provides insights into where transitions from individual academic roles to leadership ones can be accelerated. In this article we share thoughts and an approach to identifying the importance of conflict management as a key leadership skill to increasing overall leadership effectiveness. We describe a workshop facilitated as a component of the Accomplishing Career Transitions (ACT) Program of the American Society for Cell Biology (ASCB). The workshop, A Leadership Primer uses the Thomas-Kilmann Instrument (TKI), individual reflection, peer coaching and goal setting to provide insight into the origin and impact of individual conflict management styles. While there is evidence indicating that the use of a Collaborative style provides more opportunities for effective leadership, the participants in the ACT were like other academic leader samples that showed more use of a Compromising style. The workshop and follow up sessions provided coaching support to identify origins of conflict styles and options for increasing flexibility to apply a range of conflict styles.

当将领导效能描述为影响和影响他人的感受、思想和行为时,它可以被视为一般领导者(包括受过高等教育的领导者)整体效能的关键技能。了解领导技能有助于区分普通领导者和更有效的领导者,提供了从个人学术角色到领导角色的加速转变的见解。在这篇文章中,我们分享了一些想法和方法,以确定冲突管理作为提高整体领导效率的关键领导技能的重要性。我们描述了一个研讨会,作为美国细胞生物学学会(ASCB)完成职业过渡(ACT)计划的一个组成部分。这个名为《领导力入门》的研讨会使用了托马斯-基尔曼工具(TKI)、个人反思、同伴指导和目标设定来深入了解个人冲突管理风格的起源和影响。虽然有证据表明,合作风格的使用为有效领导提供了更多的机会,但ACT中的参与者与其他学术领导者样本一样,更多地使用妥协风格。研讨会和后续会议提供了指导支持,以确定冲突类型的起源,并提供了增加灵活性以应用一系列冲突类型的选择。
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引用次数: 0
World Health Organization African Region national heads of units of diagnostics and laboratory services meetings proceedings. 世界卫生组织非洲地区国家诊断和实验室服务单位负责人会议记录。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-11-28 DOI: 10.1186/s12919-024-00305-1
Sheick Oumar Coulibaly, Michelle Amri, Christine Vuguziga, Aminata Binetou-Wahebine Seydi, Lorna Maria Aine, Bertha Kembabazi, Sokona Sy, Lindiwe Elizabeth Makubalo
<p><strong>Background: </strong>In the World Health Organization (WHO) African Region, many cases of serious and preventable diseases remain unmanaged because appropriate and good quality diagnostic support is not available at all levels within countries' health systems. Diagnostic and laboratory services influence the efficiency and effectiveness of both clinical and public health functions, including diagnosis, treatment, health promotion, disease prevention, surveillance and response, and research. Essential to global health security, these services are vital to decision-making processes by clinicians, epidemiologists, public health specialists, and health policymakers. To update, promote, and reinforce diagnostic and laboratory services, it was deemed necessary to organize consultation meetings. These consultation meetings hosted: national diagnostic and laboratory directors or heads of units within ministries of health; officers in charge of laboratories from WHO country offices; representatives of the WHO African Regional Office (AFRO) clusters, units, and Headquarters; experts; and strategic partners. This article details the consultation meetings hosted in Lomé, Togo from 14 to 17 June 2022 and in Kigali, Rwanda from 5 to 7 July 2022.</p><p><strong>Methods: </strong>Although the two meetings were made distinct due to their different operating languages-French and English, respectively-each consultative meeting sought to engage participants in the same thematic areas of discussion, thus containing the same presentations and areas of discussion. This article compiles the presentations of both meetings, where a total of 85 individuals attended, reflecting 30 countries in the African Region.</p><p><strong>Results: </strong>Summaries of technical presentations at both meetings are provided, which have the following titles: (1) "AFRO: new vision for the laboratory sector;" (2) "WHO strategies for strengthening laboratories;" (3) "Collaborative registration process for in vitro diagnostic products: introduction and implementation;" (4) "Status of diagnostics and laboratory regulations in the African Region;" (5) "Health technology management;" (6) "The Global Laboratory Leadership Programme;" (7) "Model list of essential in vitro diagnostic devices;" (8) "Primary health care & laboratory and diagnostic services;" (9) "Antimicrobial resistance control and laboratory systems;" and (10) "Integrated laboratory systems' contributions to disease control programmes."</p><p><strong>Discussion: </strong>Following the technical presentations, thematic exchanges were planned around six key areas, with one country presenting their experiences per theme, both at the meeting held in French and for the meeting held in English. Therefore, two countries' experiences are detailed around each of the six thematic areas, which are: laboratory governance (Guinea and Sierra Leone), laboratory policy and planning (Togo and Zimbabwe), regulation and legislation (Senegal
背景:在世界卫生组织(世卫组织)非洲地区,由于各国卫生系统的各个层面都无法提供适当和优质的诊断支持,许多严重和可预防疾病的病例仍然得不到管理。诊断和实验室服务影响着临床和公共卫生职能的效率和效果,包括诊断、治疗、健康促进、疾病预防、监测和应对以及研究。这些服务对全球卫生安全至关重要,对临床医生、流行病学家、公共卫生专家和卫生政策制定者的决策过程也至关重要。为了更新、促进和加强诊断与实验室服务,有必要组织磋商会议。这些磋商会议的与会者包括:各国卫生部的诊断和实验室主任或单位负责人;世卫组织国家办事处的实验室负责人;世卫组织非洲地区办事处(AFRO)各分组、单位和总部的代表;专家;以及战略合作伙伴。本文详细介绍了2022年6月14日至17日在多哥洛美和2022年7月5日至7日在卢旺达基加利举行的磋商会议:尽管这两次会议的语言不同(分别为法语和英语),但每次磋商会议都力求让与会者参与相同主题领域的讨论,因此包含相同的发言和讨论领域。本文汇编了这两次会议的发言,共有 85 人参加了会议,反映了非洲地区 30 个国家的情况:结果:提供了两次会议的技术演讲摘要,标题如下:(1) "非洲实验室组织:实验室部门的新愿景";(2) "世界卫生组织加强实验室的战略";(3) "体外诊断产品的合作注册程序:引入和实施";(4) "非洲地区诊断和实验室条例的现状";(5) "卫生技术管理";(6) "全球实验室领导计划";(7) "基本体外诊断设备示范清单";(8) "初级卫生保健与实验室和诊断服务";(9) "抗菌药耐药性控制与实验室系统";(10) "综合实验室系统对疾病控制计划的贡献"。"讨论:在技术专题介绍之后,计划围绕六个关键领域进行专题交流,每个专题由一个国家在以法语举行的会议和以英语举行的会议上介绍其经验。因此,六个专题领域中的每个领域都详细介绍了两个国家的经验,这六个领域是:实验室管理(几内亚和塞拉利昂)、实验室政策和规划(多哥和津巴布韦)、监管和立法(塞内加尔和加纳)、伙伴关系(刚果民主共和国和尼日利亚)、实验室技术管理(加蓬和赞比亚)以及国家实验室网络(布基纳法索和卢旺达):通过这些会议,实验室领导人不仅能够学习最佳做法,预测各自国家面临的挑战,还能从加入实验室领导人平台中获益,在其职业生涯中促进跨国联系。最终,这些会议标志着非洲地区在实验室和诊断服务方面的许多富有成效的合作和机会的开始。
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引用次数: 0
How to construct and deliver an elevator pitch: a formula for the research scientist. 如何撰写和发表电梯演讲:研究科学家的公式。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-11-26 DOI: 10.1186/s12919-024-00312-2
Leslie A Caromile, Ankita Jha, Jaye C Gardiner, Ozlem Dilek, Ryoma Ohi, Lee Ligon
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引用次数: 0
Meeting report of the seventh annual Tri-Service Microbiome Consortium Symposium. 三军微生物组联合会第七届年度研讨会会议报告。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-11-07 DOI: 10.1186/s12919-024-00307-z
Zachary S Liechty, Richard T Agans, Robyn A Barbato, Sophie M Colston, Monica R Christian, Rasha Hammamieh, Melissa R Kardish, J Philip Karl, Dagmar H Leary, Camilla A Mauzy, Ida Pantoja-Feliciano de Goodfellow, Kenneth Racicot, Jason W Soares, Blake W Stamps, Charles R Sweet, Sara M Tuck, Jordan A Whitman, Michael S Goodson

The Tri-Service Microbiome Consortium (TSMC) was founded to enhance collaboration, coordination, and communication of microbiome research among DoD organizations and to facilitate resource, material and information sharing among consortium members, which includes collaborators in academia and industry. The 2023 annual symposium was a hybrid meeting held in Washington DC on 26-27 September 2023 concurrent with the virtual attendance, with oral and poster presentations and discussions centered on microbiome-related topics within five broad thematic areas: 1) Environmental Microbiome Characterization; 2) Microbiome Analysis; 3) Human Microbiome Characterization; 4) Microbiome Engineering; and 5) In Vitro and In Vivo Microbiome Models. Collectively, the symposium provided an update on the scope of current DoD and DoD-affiliated microbiome research efforts and fostered collaborative opportunities. This report summarizes the presentations and outcomes of the 7th annual TSMC symposium.

三军微生物组联盟(TSMC)的成立旨在加强国防部各组织之间在微生物组研究方面的合作、协调和交流,并促进联盟成员(包括学术界和工业界的合作者)之间的资源、材料和信息共享。2023 年年度研讨会是一次混合会议,于 2023 年 9 月 26 日至 27 日在华盛顿特区举行,与虚拟出席会议同时进行,口头和海报展示和讨论围绕五大主题领域中与微生物组相关的主题进行:1) 环境微生物组表征;2) 微生物组分析;3) 人类微生物组表征;4) 微生物组工程;5) 体外和体内微生物组模型。总之,研讨会提供了当前国防部和国防部附属微生物组研究工作的最新范围,并促进了合作机会。本报告总结了第七届 TSMC 年度研讨会的发言和成果。
{"title":"Meeting report of the seventh annual Tri-Service Microbiome Consortium Symposium.","authors":"Zachary S Liechty, Richard T Agans, Robyn A Barbato, Sophie M Colston, Monica R Christian, Rasha Hammamieh, Melissa R Kardish, J Philip Karl, Dagmar H Leary, Camilla A Mauzy, Ida Pantoja-Feliciano de Goodfellow, Kenneth Racicot, Jason W Soares, Blake W Stamps, Charles R Sweet, Sara M Tuck, Jordan A Whitman, Michael S Goodson","doi":"10.1186/s12919-024-00307-z","DOIUrl":"10.1186/s12919-024-00307-z","url":null,"abstract":"<p><p>The Tri-Service Microbiome Consortium (TSMC) was founded to enhance collaboration, coordination, and communication of microbiome research among DoD organizations and to facilitate resource, material and information sharing among consortium members, which includes collaborators in academia and industry. The 2023 annual symposium was a hybrid meeting held in Washington DC on 26-27 September 2023 concurrent with the virtual attendance, with oral and poster presentations and discussions centered on microbiome-related topics within five broad thematic areas: 1) Environmental Microbiome Characterization; 2) Microbiome Analysis; 3) Human Microbiome Characterization; 4) Microbiome Engineering; and 5) In Vitro and In Vivo Microbiome Models. Collectively, the symposium provided an update on the scope of current DoD and DoD-affiliated microbiome research efforts and fostered collaborative opportunities. This report summarizes the presentations and outcomes of the 7th annual TSMC symposium.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"18 Suppl 20","pages":"25"},"PeriodicalIF":0.0,"publicationDate":"2024-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11542233/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142589987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intergenerational impact of drought and famine on health systems in developing countries - symposium proceedings. 干旱和饥荒对发展中国家卫生系统的代际影响--研讨会记录。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-11-05 DOI: 10.1186/s12919-024-00310-4
Edson T Marambire, Abdifatah Abdulahi, Awoke Wondie, Addisu Gize, Afework T Mekonnen, Khim Khadka, Ivan Manhica, Nicole Quinn, Nidhi Saiwal, Tiza Mufune, Vahuka Q Valiyakath, Guenter Froeschl

The 2024 edition of the One Health symposium explored the intergenerational health impacts of drought and famine in developing countries, with a focus on innovative strategies for resilience-building in healthcare infrastructures. Organized by students of the CIHLMU Center for International Health at Ludwig-Maximilians-Universität Munich, Germany, the event convened experts and participants from diverse backgrounds to address the urgent challenges posed by climate change-induced crises. Through presentations, panel discussions, and collaborative exchanges, the symposium underscored the profound health and socioeconomic implications of climate-related disasters, emphasizing the need for cross-sectoral cooperation and transformative action. Key recommendations emerged, including integrating climate change considerations into health systems, fostering multidisciplinary collaboration, and empowering communities to withstand future challenges. Despite the severity of the current situation, the symposium instilled optimism and determination among participants, inspiring a collective commitment to building a brighter and more resilient future for generations to come.

2024 年的 "一个健康 "研讨会探讨了发展中国家干旱和饥荒对几代人健康的影响,重点是医疗基础设施抗灾能力建设的创新战略。此次活动由德国慕尼黑路德维希-马克西米利安大学国际健康中心(CIHLMU)的学生组织,召集了来自不同背景的专家和与会者,共同应对气候变化引发的危机所带来的紧迫挑战。通过演讲、小组讨论和合作交流,研讨会强调了与气候有关的灾害对健康和社会经济的深远影响,强调了跨部门合作和变革行动的必要性。会议提出了一些重要建议,包括将气候变化因素纳入卫生系统、促进多学科合作、增强社区抵御未来挑战的能力等。尽管当前形势严峻,但研讨会还是给与会者注入了乐观精神和决心,激励他们共同承诺为子孙后代建设一个更加光明、更具复原力的未来。
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引用次数: 0
Research priorities for the study of atrial fibrillation during acute and critical illness: recommendations from the Symposium on Atrial Fibrillation in Acute and Critical Care. 急危重症期间心房颤动研究的重点:急危重症心房颤动研讨会的建议。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-11-05 DOI: 10.1186/s12919-024-00309-x
Stephanie Sibley, Clare Atzema, Martin Balik, Jonathan Bedford, David Conen, Tessa Garside, Brian Johnston, Salmaan Kanji, Camron Landry, William McIntyre, David M Maslove, John Muscedere, Marlies Ostermann, Frank Scheuemeyer, Andrew Seeley, Marco Sivilotti, Jennifer Tsang, Michael K Wang, Ingeborg Welters, Allan Walkey, Brian Cuthbertson

Atrial fibrillation (AF) is a common arrhythmia encountered in acute and critical illness and is associated with poor short and long-term outcomes. Given the consequences of developing AF, research into prevention, prediction and treatment of this arrhythmia in the critically ill are of great potential benefit, however, study of AF in critically ill patients faces unique challenges, leading to a sparse evidence base to guide management in this population. Major obstacles to the study of AF in acute and critical illness include absence of a common definition, challenges in designing studies that capture complex etiology and assess causality, lack of a clear outcome set, difficulites in recruitment in acute environments with respect to timing, consent, and workflow, and failure to embed studies into clinical care platforms and capitalize on emerging technologies. Collaborative effort by researchers, clinicians, and stakeholders should be undertaken to address these challenges, both through interdisciplinary cooperation for the optimization of research efficiency and advocacy to advance the understanding of this common and complex arrhythmia, resulting in improved patient care and outcomes. The Symposium on Atrial Fibrillation in Acute and Critical Care was convened to address some of these challenges and propose potential solutions.

心房颤动(房颤)是急危重症患者常见的心律失常,与短期和长期的不良预后有关。鉴于心房颤动的后果,对危重病人心律失常的预防、预测和治疗进行研究具有巨大的潜在益处,然而,危重病人心房颤动的研究面临着独特的挑战,导致用于指导该人群管理的证据基础稀缺。急危重症患者房颤研究面临的主要障碍包括:缺乏统一的定义;在设计可捕捉复杂病因和评估因果关系的研究时面临挑战;缺乏明确的结果集;急诊环境中的招募在时间、同意和工作流程方面存在困难;未能将研究嵌入临床护理平台并利用新兴技术。研究人员、临床医生和利益相关者应共同努力应对这些挑战,既要通过跨学科合作优化研究效率,又要通过宣传促进对这种常见而复杂的心律失常的了解,从而改善患者护理和治疗效果。召开 "急性和重症监护中的心房颤动 "研讨会就是为了应对其中的一些挑战并提出潜在的解决方案。
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引用次数: 0
Risk stratification in breast screening workshop. 乳腺筛查中的风险分层研讨会。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-10-24 DOI: 10.1186/s12919-024-00306-0
Andrew Anderson, Cristina Visintin, Antonis Antoniou, Nora Pashayan, Fiona J Gilbert, Allan Hackshaw, Rikesh Bhatt, Harry Hill, Stuart Wright, Katherine Payne, Gabriel Rogers, Bethany Shinkins, Sian Taylor-Phillips, Rosalind Given-Wilson

Population screening for breast cancer (BC) is currently offered in the UK for women aged 50 to 71 with the aim of reducing mortality. There is additional screening within the national programme for women identified as having a very high risk of BC. There is growing interest in further risk stratification in breast screening, which would require a whole population risk assessment and the subsequent offer of screening tailored to the individual's risk. Some women would be offered more intensive screening than others or no screening. This might provide a better balance of screening benefits and harms for each individual than the current population age-based programme alone. The UK National Screening Committee (UK NSC) is considering using decision-analytic and other models to evaluate different risk stratification screening strategies and identify remaining gaps in evidence. This paper reports the proceedings of a UK NSC workshop where experts in the field discussed both risk prediction models, as well as decision-analytic models providing a benefit-harm analysis/economic evaluation of risk-stratified screening programmes (see Table 1). The aim of the meeting was to present and discuss the current work of experts, including some data which had not been published at the time of the meeting, to inform the UK NSC. The workshop was not intended to present a balanced evaluation of how to deliver screening in future. Areas for further work identified included methods for comparing models to assess accuracy, the optimum risk assessment tools, the digital screening infrastructure, acceptability of stratification, choice of screening test and reducing inequalities. A move to risk stratification of the whole programme would require a careful phased introduction with continuing assessment of real-world evidence during deployment.

英国目前为 50 至 71 岁的妇女提供乳腺癌(BC)人群筛查,目的是降低死亡率。在国家计划中,还为被确定为乳腺癌高危人群的妇女提供额外筛查。人们对乳腺筛查中的进一步风险分层越来越感兴趣,这需要对整个人群进行风险评估,然后根据个人风险提供筛查。一些妇女将接受比其他妇女更密集的筛查,或者不接受筛查。与目前基于人口年龄的计划相比,这可能会更好地平衡每个人的筛查利弊。英国国家筛查委员会(UK National Screening Committee,UK NSC)正在考虑使用决策分析和其他模型来评估不同的风险分层筛查策略,并找出剩余的证据差距。本文报告了英国国家筛查委员会研讨会的会议记录,会上该领域的专家讨论了风险预测模型以及决策分析模型,这些模型提供了风险分层筛查计划的效益-危害分析/经济评估(见表 1)。会议的目的是介绍和讨论专家们目前的工作,包括一些在会议召开时尚未公布的数据,为英国国家健康委员会提供参考。研讨会并不打算对未来如何开展筛查进行均衡评估。已确定的进一步工作领域包括:比较模型以评估准确性的方法、最佳风险评估工具、数字筛查基础设施、分层的可接受性、筛查试验的选择以及减少不平等。对整个计划进行风险分层需要谨慎地分阶段进行,并在部署过程中持续评估真实世界的证据。
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引用次数: 0
Meeting Abstracts from the 9th Annual Atlantic Corridor Medical Student Research Conference : Clinical Science Institute, School of Medicine University of Galway 10th November, 2023. 第九届大西洋走廊医科学生研究年会会议摘要:戈尔韦大学医学院临床科学研究所,2023 年 11 月 10 日。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-10-15 DOI: 10.1186/s12919-024-00304-2
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引用次数: 0
Ethical use of big data for healthy communities and a strong nation: unique challenges for the Military Health System. 合乎道德地使用大数据促进健康社区和强大国家:军事卫生系统面临的独特挑战。
Q2 Biochemistry, Genetics and Molecular Biology Pub Date : 2024-10-15 DOI: 10.1186/s12919-024-00308-y
Tracey Perez Koehlmoos, Jessica Korona-Bailey, Jared Elzey, Brandeis Marshall, Lea A Shanley

Recent advances in artificial intelligence (AI) created powerful tools for research, particularly for extracting meaningful insights from extremely large data sets. These developments increase research benefits of big data and risks posed to individual privacy, forcing a re-examination of ethics in research which is of particular importance to the Military Health System. To advance discussion of research ethics in this context, the Forum on Health and National Security: Ethical Use of Big Data for Healthy Communities and a Strong Nation was held in December 2018. The workshop was designed to identify ethical questions relevant to population and health research studies using difficult to access, health-related data in the Department of Defense (DoD). Discussions explored researchers' ethical obligations to research subjects, particularly in the areas of privacy, trust, and consent, as well as potential methods to improve researchers' ability to collect, access, and share data while protecting privacy and potential risks to national security. These include creating risk management frameworks and data governance policies, improving education and workplace training, and increasing community involvement in research design and practice. While the workshop was conducted in 2018, the discussion of data ethics is still relevant today. The research agenda of the nation is best served by building ethics into the research ecosystem. There are substantial challenges to fully realizing this goal including commitments of time and funding to address the ethical complexities, train others to understand them, and create appropriate ethical frameworks before research begins.

人工智能(AI)的最新进展为研究创造了强大的工具,特别是从超大数据集中提取有意义的见解。这些发展提高了大数据的研究效益,也增加了个人隐私面临的风险,迫使人们重新审视研究伦理,这对军事卫生系统尤为重要。为了推动在此背景下对研究伦理的讨论,健康与国家安全论坛:2018年12月举办了 "健康与国家安全:大数据的伦理使用促进健康社区和强大国家 "论坛。该研讨会旨在确定与使用国防部(DoD)难以获取的健康相关数据的人口和健康研究相关的伦理问题。讨论探讨了研究人员对研究对象的伦理义务,特别是在隐私、信任和同意方面,以及在保护隐私和国家安全潜在风险的同时提高研究人员收集、访问和共享数据能力的潜在方法。这些方法包括创建风险管理框架和数据治理政策,改进教育和工作场所培训,以及提高社区对研究设计和实践的参与度。虽然研讨会是在 2018 年举办的,但有关数据伦理的讨论在今天仍然具有现实意义。将伦理建设纳入研究生态系统最有利于国家的研究议程。全面实现这一目标面临着巨大的挑战,包括投入时间和资金来解决复杂的伦理问题、培训其他人了解这些问题,以及在研究开始前创建适当的伦理框架。
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引用次数: 0
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