Pub Date : 2022-12-27DOI: 10.1097/JPS.0000000000000374
K. Hansen, K. Trowbridge, A. Wayne
Introduction The objectives of this study were to understand how parents made the decision to do maternal–fetal surgery for myelomeningocele and to determine the influence of the shared decision-making model on their choice. Method This is a qualitative study of parents in a fetal care center after fetal surgery. Interviews were recorded and transcribed. Analysis was completed using iterative code development, and thematic saturation was reached. Results Rapid decision making, often before seeing fetal care professionals, was present, parental agency drove the decision for surgery, exposure to other parents via the Internet was key to reducing uncertainty and increasing hope for the future, positive interactions with the healthcare team played a role in parental choice for surgery, and mothers were surprised by unanticipated pain and discomfort following surgery. Discussion Tenets of shared decision making, such as patients feeling supported by their healthcare professionals, were present. Results learned from this study could be used to tailor interactions with parents seeking fetal surgery.
{"title":"Parent Decision-Making With Fetal Surgery for Myelomeningocele","authors":"K. Hansen, K. Trowbridge, A. Wayne","doi":"10.1097/JPS.0000000000000374","DOIUrl":"https://doi.org/10.1097/JPS.0000000000000374","url":null,"abstract":"Introduction The objectives of this study were to understand how parents made the decision to do maternal–fetal surgery for myelomeningocele and to determine the influence of the shared decision-making model on their choice. Method This is a qualitative study of parents in a fetal care center after fetal surgery. Interviews were recorded and transcribed. Analysis was completed using iterative code development, and thematic saturation was reached. Results Rapid decision making, often before seeing fetal care professionals, was present, parental agency drove the decision for surgery, exposure to other parents via the Internet was key to reducing uncertainty and increasing hope for the future, positive interactions with the healthcare team played a role in parental choice for surgery, and mothers were surprised by unanticipated pain and discomfort following surgery. Discussion Tenets of shared decision making, such as patients feeling supported by their healthcare professionals, were present. Results learned from this study could be used to tailor interactions with parents seeking fetal surgery.","PeriodicalId":90905,"journal":{"name":"Journal of pediatric surgical nursing","volume":"12 1","pages":"22 - 30"},"PeriodicalIF":0.0,"publicationDate":"2022-12-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47631460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-11-23DOI: 10.1097/jps.0000000000000372
Heather Stoner, C. Falyar, N. Hooge, J. Pitman, Julie A. Thompson, Sarah Sattin, Emily M. Funk
{"title":"Implementation of a Shielding Guideline for Pediatric Patients Receiving Intraoperative Ionizing Radiation","authors":"Heather Stoner, C. Falyar, N. Hooge, J. Pitman, Julie A. Thompson, Sarah Sattin, Emily M. Funk","doi":"10.1097/jps.0000000000000372","DOIUrl":"https://doi.org/10.1097/jps.0000000000000372","url":null,"abstract":"","PeriodicalId":90905,"journal":{"name":"Journal of pediatric surgical nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43267589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-11-06DOI: 10.1097/JPS.0000000000000370
Christina Von Colln-Appling, Lauren E. Stoltzfus, Megan A. Infanti Mraz
Spina bifida (SB), the second most common congenital birth defect in North America, is characterized by inadequate closure of spinal canal (Lindsay, 2014). SB leads to permanent and irreversible damage to the nervous system and spinal cord. Children diagnosedwith SB can develop a variety of conditions including bowel and bladder dysfunction, conditions that impact skin integrity, neurological and learning complications, respiratory track problems, and functional limitations (Lindsay, 2014). It is important for school administrators, school nurses, teachers, and the multidisciplinary medical team to have knowledge regarding SB and subsequent limitations of SB to ensure that all children receive the proper care and education (KennedyKrieger Institute, 2009). Adaptations and modifications to the learning environment will be individualized based on the child's needs. The purpose of this article is to present holistic care at the elementary, middle, and high school phases for children with SB. This article will review the importance of the multidisciplinary process to foster autonomy and independence of the child with SB so they can thrive in the school system and community.
{"title":"Continuity of Care for the Child With Spina Bifida","authors":"Christina Von Colln-Appling, Lauren E. Stoltzfus, Megan A. Infanti Mraz","doi":"10.1097/JPS.0000000000000370","DOIUrl":"https://doi.org/10.1097/JPS.0000000000000370","url":null,"abstract":"Spina bifida (SB), the second most common congenital birth defect in North America, is characterized by inadequate closure of spinal canal (Lindsay, 2014). SB leads to permanent and irreversible damage to the nervous system and spinal cord. Children diagnosedwith SB can develop a variety of conditions including bowel and bladder dysfunction, conditions that impact skin integrity, neurological and learning complications, respiratory track problems, and functional limitations (Lindsay, 2014). It is important for school administrators, school nurses, teachers, and the multidisciplinary medical team to have knowledge regarding SB and subsequent limitations of SB to ensure that all children receive the proper care and education (KennedyKrieger Institute, 2009). Adaptations and modifications to the learning environment will be individualized based on the child's needs. The purpose of this article is to present holistic care at the elementary, middle, and high school phases for children with SB. This article will review the importance of the multidisciplinary process to foster autonomy and independence of the child with SB so they can thrive in the school system and community.","PeriodicalId":90905,"journal":{"name":"Journal of pediatric surgical nursing","volume":"12 1","pages":"33 - 36"},"PeriodicalIF":0.0,"publicationDate":"2022-11-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49149491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-10-01DOI: 10.1097/jps.0000000000000373
{"title":"Testicular Torsion: Emergent Recognition Through Postperative Care Management","authors":"","doi":"10.1097/jps.0000000000000373","DOIUrl":"https://doi.org/10.1097/jps.0000000000000373","url":null,"abstract":"","PeriodicalId":90905,"journal":{"name":"Journal of pediatric surgical nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42741976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-24DOI: 10.1097/JPS.0000000000000364
Mayra G. Garcia, J. Watt, A. Six-Means
Introduction Childhood obesity has become a significant cause for concern in pediatric health care. Adolescents seek medical care for guidance in the treatment of obesity and comorbidities. Bariatric surgery has become a treatment option for adolescents with obesity. There is a limited understanding of an adolescent's decision to pursue bariatric surgery. The objective of this meta-aggregation review is to identify what is known about the motivations of adolescents to pursue bariatric surgery. Methods Studies were considered if they included adolescents 12–20 years old who have had or are considering bariatric weight loss surgery in all healthcare settings. Using a three-step search approach, published studies were identified in this meta-aggregation review. Each study was appraised by two independent reviewers using the John Hopkins Evidence Level Quality Guide. Synthesized findings were identified. Results Fifty-seven unequivocal findings were extracted from six studies and placed into six categories. These categories were further compiled into three synthesized findings. Findings indicate that adolescent bariatric patients need an external stimulus for surgery and are often motivated by the right time for surgery, as a last resort, and with external support. Motivators for surgery also included a desire for a healthy life and to reach personal goals. Negative body image and self-esteem as well as a desire for social acceptance are other motivators for surgery. Three synthesized themes identified were stimulus for surgery, sense of self, and healthy life. Conclusions Adolescent bariatric surgery is a growing treatment option offered to adolescents with obesity. Little is written about the motivations of adolescents seeking bariatric surgery, and it is not well researched. Further research involving qualitative work with adolescents with obesity who are considering bariatric surgery should be conducted.
{"title":"An Adolescent's Motivation to Pursue Bariatric Surgery","authors":"Mayra G. Garcia, J. Watt, A. Six-Means","doi":"10.1097/JPS.0000000000000364","DOIUrl":"https://doi.org/10.1097/JPS.0000000000000364","url":null,"abstract":"Introduction Childhood obesity has become a significant cause for concern in pediatric health care. Adolescents seek medical care for guidance in the treatment of obesity and comorbidities. Bariatric surgery has become a treatment option for adolescents with obesity. There is a limited understanding of an adolescent's decision to pursue bariatric surgery. The objective of this meta-aggregation review is to identify what is known about the motivations of adolescents to pursue bariatric surgery. Methods Studies were considered if they included adolescents 12–20 years old who have had or are considering bariatric weight loss surgery in all healthcare settings. Using a three-step search approach, published studies were identified in this meta-aggregation review. Each study was appraised by two independent reviewers using the John Hopkins Evidence Level Quality Guide. Synthesized findings were identified. Results Fifty-seven unequivocal findings were extracted from six studies and placed into six categories. These categories were further compiled into three synthesized findings. Findings indicate that adolescent bariatric patients need an external stimulus for surgery and are often motivated by the right time for surgery, as a last resort, and with external support. Motivators for surgery also included a desire for a healthy life and to reach personal goals. Negative body image and self-esteem as well as a desire for social acceptance are other motivators for surgery. Three synthesized themes identified were stimulus for surgery, sense of self, and healthy life. Conclusions Adolescent bariatric surgery is a growing treatment option offered to adolescents with obesity. Little is written about the motivations of adolescents seeking bariatric surgery, and it is not well researched. Further research involving qualitative work with adolescents with obesity who are considering bariatric surgery should be conducted.","PeriodicalId":90905,"journal":{"name":"Journal of pediatric surgical nursing","volume":"12 1","pages":"58 - 64"},"PeriodicalIF":0.0,"publicationDate":"2022-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48669252","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-22DOI: 10.1097/jps.0000000000000367
Carmen R. Duque, Danielle Altares Sarik, Charles P. Buscemi, Cindy Garlesky
{"title":"Caring for the Pediatric Patient Post-Nuss Procedure","authors":"Carmen R. Duque, Danielle Altares Sarik, Charles P. Buscemi, Cindy Garlesky","doi":"10.1097/jps.0000000000000367","DOIUrl":"https://doi.org/10.1097/jps.0000000000000367","url":null,"abstract":"","PeriodicalId":90905,"journal":{"name":"Journal of pediatric surgical nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42716924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Introduction Adolescents undergoing surgery have expressed a willingness to obtain information about their surgery and to be involved in the decisions about their health care process. Around 80% of adolescents experience anxiety before undergoing surgery. On the basis of the adolescents' shared experiences, areas of possible nursing intervention have been identified to prevent anxiety and the multitude of adverse effects associated with it. The purpose of this study is to present a nursing intervention program to prevent perioperative anxiety in adolescents (3P2A) designed based on the first phase of the complex intervention's framework. Methods The design of this program followed the updated guidance for developing complex interventions issued by the Medical Research Council and the National Institute for Health Research. Five Portuguese nurses, experts in perioperative nursing, and pediatric specialists evaluated and validated the final version of this program. Results The nursing intervention program to prevent perioperative anxiety in adolescents (3P2A) consists of three phases that correspond to the preoperative, intraoperative, and postoperative periods. The first phase includes conducting a preoperative nursing consultation to identify stressors, providing written and verbal information about the surgery, and applying nonpharmacological interventions to reduce anxiety. In the intraoperative period, nonpharmacological interventions are implemented in the anesthetic induction room immediately before the adolescent falls asleep. Finally, the postoperative period comprises a nursing visit to identify postoperative complications and promote the adolescents' well-being. Discussion The program is structured with specific interventions to be implemented in each of the perioperative periods. Because of its flexibility, it may be fully or partially implemented considering the identified needs, priorities, and resources when caring for an adolescent with anxiety during the perioperative period.
{"title":"Design of a Nursing Intervention Program to Prevent Adolescents' Perioperative Anxiety","authors":"Marcia Pestana-Santos, Adriana Pestana-Santos, Inês Esteves Martins, Margarida Reis Santos, Lurdes Lomba","doi":"10.1097/JPS.0000000000000365","DOIUrl":"https://doi.org/10.1097/JPS.0000000000000365","url":null,"abstract":"Introduction Adolescents undergoing surgery have expressed a willingness to obtain information about their surgery and to be involved in the decisions about their health care process. Around 80% of adolescents experience anxiety before undergoing surgery. On the basis of the adolescents' shared experiences, areas of possible nursing intervention have been identified to prevent anxiety and the multitude of adverse effects associated with it. The purpose of this study is to present a nursing intervention program to prevent perioperative anxiety in adolescents (3P2A) designed based on the first phase of the complex intervention's framework. Methods The design of this program followed the updated guidance for developing complex interventions issued by the Medical Research Council and the National Institute for Health Research. Five Portuguese nurses, experts in perioperative nursing, and pediatric specialists evaluated and validated the final version of this program. Results The nursing intervention program to prevent perioperative anxiety in adolescents (3P2A) consists of three phases that correspond to the preoperative, intraoperative, and postoperative periods. The first phase includes conducting a preoperative nursing consultation to identify stressors, providing written and verbal information about the surgery, and applying nonpharmacological interventions to reduce anxiety. In the intraoperative period, nonpharmacological interventions are implemented in the anesthetic induction room immediately before the adolescent falls asleep. Finally, the postoperative period comprises a nursing visit to identify postoperative complications and promote the adolescents' well-being. Discussion The program is structured with specific interventions to be implemented in each of the perioperative periods. Because of its flexibility, it may be fully or partially implemented considering the identified needs, priorities, and resources when caring for an adolescent with anxiety during the perioperative period.","PeriodicalId":90905,"journal":{"name":"Journal of pediatric surgical nursing","volume":"12 1","pages":"88 - 94"},"PeriodicalIF":0.0,"publicationDate":"2022-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45904543","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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