Pub Date : 2024-11-01Epub Date: 2024-10-13DOI: 10.1080/17518423.2024.2413133
H Adiguzel Tat, P Gunel Karadeniz, U Apaydin, P Atalan Efkere, N Ergun, B Elbasan
Purpose: This correlational study aimed to determine the reliability and validity of the Turkish version of the Visual Function Classification System (VFCS) for children with CP.
Method: Two physiotherapists and caregivers (n = 56) applied the VFCS (n = 120) two times at a 15-day interval. Physiotherapists' classifications were compared for interrater reliability. Same physiotherapists and caregivers' classifications' were compared for intrarater reliability. Expanded & Revised Gross Motor Function Classification System (GMFCS E&R), Manual Ability Classification System (MACS), and Communication Function Classification System (CFCS) were used for assessing validity of the culturally adapted VFCS.
Results: The interrater reliability between physiotherapists was excellent (ICC = 0.974, ICC = 0.988), while interrater reliability between the first physiotherapist and caregivers was good (ICC = 0.866, ICC = 0.893). The intrarater reliability was excellent (ICC = 0.971, ICC = 0.996, ICC = 0.984). A correlation was detected between the VFCS and the GMFCS E&R, MACS, and CFCS levels (r = 0.415, p < .001, r = 0.450, p < .001, r = 0.491, p < .001).
Conclusion: The findings of this study demonstrate the utility, compatibility and reliability of the Turkish version of the VFCS.
{"title":"Reliability and Cross-Cultural Validation of the Turkish Version of the Visual Function Classification System (VFCS) for Children with Cerebral Palsy.","authors":"H Adiguzel Tat, P Gunel Karadeniz, U Apaydin, P Atalan Efkere, N Ergun, B Elbasan","doi":"10.1080/17518423.2024.2413133","DOIUrl":"10.1080/17518423.2024.2413133","url":null,"abstract":"<p><strong>Purpose: </strong>This correlational study aimed to determine the reliability and validity of the Turkish version of the Visual Function Classification System (VFCS) for children with CP.</p><p><strong>Method: </strong>Two physiotherapists and caregivers (<i>n</i> = 56) applied the VFCS (<i>n</i> = 120) two times at a 15-day interval. Physiotherapists' classifications were compared for interrater reliability. Same physiotherapists and caregivers' classifications' were compared for intrarater reliability. Expanded & Revised Gross Motor Function Classification System (GMFCS E&R), Manual Ability Classification System (MACS), and Communication Function Classification System (CFCS) were used for assessing validity of the culturally adapted VFCS.</p><p><strong>Results: </strong>The interrater reliability between physiotherapists was excellent (ICC = 0.974, ICC = 0.988), while interrater reliability between the first physiotherapist and caregivers was good (ICC = 0.866, ICC = 0.893). The intrarater reliability was excellent (ICC = 0.971, ICC = 0.996, ICC = 0.984). A correlation was detected between the VFCS and the GMFCS E&R, MACS, and CFCS levels (<i>r</i> = 0.415, <i>p</i> < .001, <i>r</i> = 0.450, p < .001, <i>r</i> = 0.491, <i>p</i> < .001).</p><p><strong>Conclusion: </strong>The findings of this study demonstrate the utility, compatibility and reliability of the Turkish version of the VFCS.</p><p><strong>Trial registration number: </strong>NCT05102955.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"328-336"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142484003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-10-17DOI: 10.1080/17518423.2024.2410180
Kirsten Nordbye-Nielsen, F Virginia Wright, Ole Rahbek, Bjarne Møller-Madsen, Thomas Maribo
This single group pre and posttest study evaluated the feasibility of a new 10-week group-based motor skills enhancement intervention: "Moving Together," and associated use of the Challenge assessment and Gait Outcomes Assessment List (GOAL). Participant attendance/completion and satisfaction with the assessments and intervention were evaluated, and a first estimate of associated motor skill-related changes obtained. Ten ambulatory children with cerebral palsy (7-14 years) and their parents participated. Ninety percent of Challenge sessions were attended and 82.5% of GOAL questionnaires completed. Program attendance was 83% overall. Satisfaction with assessments was high for the Challenge and moderate for the GOAL, and intervention satisfaction was high. Mean change scores (95% CI) post-intervention for the Challenge and GOAL were 4.2 (-11.4 to 3.1) and 3.6 (-14.4 to 4.0) points (/100) respectively. Challenge and GOAL use was feasible and appropriate for "MovingTogether" and associated with gains in motor skill performance and functional abilities.
{"title":"Feasibility of the <i>Challenge</i> Assessment, the <i>Gait Outcomes Assessment List</i> and '<i>Moving Together' ('Sammen I Bevægels</i>e'), a Group-Based Motor Skills Intervention for Independent School-Aged Children with Cerebral Palsy.","authors":"Kirsten Nordbye-Nielsen, F Virginia Wright, Ole Rahbek, Bjarne Møller-Madsen, Thomas Maribo","doi":"10.1080/17518423.2024.2410180","DOIUrl":"10.1080/17518423.2024.2410180","url":null,"abstract":"<p><p>This single group pre and posttest study evaluated the feasibility of a new 10-week group-based motor skills enhancement intervention: <i>\"Moving Together,\"</i> and associated use of the <i>Challenge</i> assessment and <i>Gait Outcomes Assessment List (GOAL)</i>. Participant attendance/completion and satisfaction with the assessments and intervention were evaluated, and a first estimate of associated motor skill-related changes obtained. Ten ambulatory children with cerebral palsy (7-14 years) and their parents participated. Ninety percent of <i>Challenge</i> sessions were attended and 82.5% of <i>GOAL</i> questionnaires completed. Program attendance was 83% overall. Satisfaction with assessments was high for the <i>Challenge</i> and moderate for the <i>GOAL</i>, and intervention satisfaction was high. Mean change scores (95% CI) post-intervention for the <i>Challenge</i> and <i>GOAL</i> were 4.2 (-11.4 to 3.1) and 3.6 (-14.4 to 4.0) points (/100) respectively. <i>Challenge</i> and <i>GOAL</i> use was feasible and appropriate for \"<i>MovingTogether\"</i> and associated with gains in motor skill performance and functional abilities.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"298-310"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142484002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The aim of this correlational study was to compare the participation in out of school activities, activity preferences, and quality of life (QoL) of children between 8 and 12 years of age with cerebral palsy (CP) (n = 30) and typical development (n = 60) in Turkey. Outcome measures included the Children's Assessment of Participation and Enjoyment, Preferences for Activity of Children, and the Health-Related Quality of Life Questionnaire. Results suggest children with CP were at a disadvantage compared to their typically developing peers in participating in out-of-school activities, however they tended to report greater preference for these activities than their typically developing peers. Based on these findings, we recommended health professionals aim to increase the quality of life for clients with CP by including social participation as one component of rehabilitation.
{"title":"Comparison of participation in out-of-school activities, activity preferences and quality of life of children with cerebral palsy and typical development.","authors":"Gonca Bumin, Sema Akyalcin, Sedanur Gurlek, Gokcen Akyurek","doi":"10.1080/17518423.2024.2410173","DOIUrl":"10.1080/17518423.2024.2410173","url":null,"abstract":"<p><p>The aim of this correlational study was to compare the participation in out of school activities, activity preferences, and quality of life (QoL) of children between 8 and 12 years of age with cerebral palsy (CP) (<i>n</i> = 30) and typical development (<i>n</i> = 60) in Turkey. Outcome measures included the Children's Assessment of Participation and Enjoyment, Preferences for Activity of Children, and the Health-Related Quality of Life Questionnaire. Results suggest children with CP were at a disadvantage compared to their typically developing peers in participating in out-of-school activities, however they tended to report greater preference for these activities than their typically developing peers. Based on these findings, we recommended health professionals aim to increase the quality of life for clients with CP by including social participation as one component of rehabilitation.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"289-297"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142362575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-10-03DOI: 10.1080/17518423.2024.2410961
Sara K Snyder, Kevin M Ayres
Purpose: The current study evaluated treatments derived from two functional analyses (FA) for a 7-year-old student with autism.
Method: The FA assessment was conducted at different times of the day and each revealed different functions in the morning and the afternoon.
Results: The morning FA suggested that problem behavior was maintained by positive reinforcement in the form of attention, whereas the afternoon FA showed that problem behavior was maintained by both positive reinforcement in the form of attention and negative reinforcement in the form of escape from task demands.
Discussion: results of this study suggested that differential reinforcement for appropriate behavior in a multiple schedule arrangement effectively reduced multiply maintained problem behavior across the school day.
{"title":"Assessment and treatment of multiply maintained problem behavior dependent on the time of day.","authors":"Sara K Snyder, Kevin M Ayres","doi":"10.1080/17518423.2024.2410961","DOIUrl":"10.1080/17518423.2024.2410961","url":null,"abstract":"<p><strong>Purpose: </strong>The current study evaluated treatments derived from two functional analyses (FA) for a 7-year-old student with autism.</p><p><strong>Method: </strong>The FA assessment was conducted at different times of the day and each revealed different functions in the morning and the afternoon.</p><p><strong>Results: </strong>The morning FA suggested that problem behavior was maintained by positive reinforcement in the form of attention, whereas the afternoon FA showed that problem behavior was maintained by both positive reinforcement in the form of attention and negative reinforcement in the form of escape from task demands.</p><p><strong>Discussion: </strong>results of this study suggested that differential reinforcement for appropriate behavior in a multiple schedule arrangement effectively reduced multiply maintained problem behavior across the school day.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"320-327"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142368003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-10-07DOI: 10.1080/17518423.2024.2410169
Nathalia Caroline Soares Chaves, Adriane Santos de Oliveira, Ana Clara Geremias Fischer, Jessica Paiva Tavares, André Luís Ferreira Meireles
Aim: This study investigated the impact of the World Cerebral Palsy Day (WCPD) campaign on the public interest using Google Trends Analysis data in Brazil.
Methods: Google Trends was used to collect Relative Search Volume (RSV) data for "cerebral palsy" from 2004 to 2011 (control years) and 2012 to 2022 (WCPD years). RSV during the 4 weeks around WCPD (period of interest) was compared with the rest of the year (control period) in each timeframe. Regional RSV, search queries, and main topics were also investigated.
Results: RSV increased by 62.22% from pre-campaign to campaign period. During the WCPD years, a 21.36% RSV increase occurred in campaign weeks, with an average difference of 12.16 (95% CI: 1.74, 22.58); notably in in the last five years in the southeast 9.47 (95% CI: 2.93, 16.01) and south 8.66 (95% CI: 1.66, 15.66) macro-regions.
Conclusion: The campaign has fulfilled its role, but targeting more vulnerable areas could further amplify its impact.
{"title":"Impact of World Cerebral Palsy Day on Public Interest in Brazil: Evidence from Internet Search Data.","authors":"Nathalia Caroline Soares Chaves, Adriane Santos de Oliveira, Ana Clara Geremias Fischer, Jessica Paiva Tavares, André Luís Ferreira Meireles","doi":"10.1080/17518423.2024.2410169","DOIUrl":"10.1080/17518423.2024.2410169","url":null,"abstract":"<p><strong>Aim: </strong>This study investigated the impact of the World Cerebral Palsy Day (WCPD) campaign on the public interest using Google Trends Analysis data in Brazil.</p><p><strong>Methods: </strong>Google Trends was used to collect Relative Search Volume (RSV) data for \"cerebral palsy\" from 2004 to 2011 (control years) and 2012 to 2022 (WCPD years). RSV during the 4 weeks around WCPD (period of interest) was compared with the rest of the year (control period) in each timeframe. Regional RSV, search queries, and main topics were also investigated.</p><p><strong>Results: </strong>RSV increased by 62.22% from pre-campaign to campaign period. During the WCPD years, a 21.36% RSV increase occurred in campaign weeks, with an average difference of 12.16 (95% CI: 1.74, 22.58); notably in in the last five years in the southeast 9.47 (95% CI: 2.93, 16.01) and south 8.66 (95% CI: 1.66, 15.66) macro-regions.</p><p><strong>Conclusion: </strong>The campaign has fulfilled its role, but targeting more vulnerable areas could further amplify its impact.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"283-288"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142383028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2024-09-23DOI: 10.1080/17518423.2024.2398151
Michèle Widmer, Alice Minghetti, Jacqueline Romkes, Martin Keller, Ramon Gysin, Cornelia Neuhaus, Bastian Widmer, Morgan Sangeux, Elke Viehweger
Purpose: This pilot study assessed the safety and effects of progressive functional high-intensity training in a group setting for adolescents with unilateral cerebral palsy (CP) on daily function indicators.
Methods: Nine adolescents (mean age 16.9 years, GMFCS levels I-II) participated in 12 weeks of training (2x/week). Evaluations included 3D gait analysis, the 6-min walking test (6MWT), clinical exams, and the Gross Motor Function Measure-66 (GMFM-66).
Results: No adverse events occurred, and GMFM-66 scores significantly improved (p = .031, Δ = 2.19%). Although increases in 6MWT (p = .09, Δ = 29.8 m) performance and propulsion ratio (p = .067, Δ = 5.4%) for the affected leg were observed, they were not statistically significant.
Discussion: The study suggests that this training is safe and may enhance gross motor function, endurance, and gait asymmetry in unilateral CP. Future research should include upper limb evaluations and out-of-clinic motion analysis with wearable inertial measurement units (IMUs) to provide a more comprehensive assessment of functional movements.
{"title":"Group-based progressive functional, high-intensity training in adolescents and young adults with unilateral cerebral palsy - a tool to improve gross motor function, endurance and gait? - a pilot study.","authors":"Michèle Widmer, Alice Minghetti, Jacqueline Romkes, Martin Keller, Ramon Gysin, Cornelia Neuhaus, Bastian Widmer, Morgan Sangeux, Elke Viehweger","doi":"10.1080/17518423.2024.2398151","DOIUrl":"10.1080/17518423.2024.2398151","url":null,"abstract":"<p><strong>Purpose: </strong>This pilot study assessed the safety and effects of progressive functional high-intensity training in a group setting for adolescents with unilateral cerebral palsy (CP) on daily function indicators.</p><p><strong>Methods: </strong>Nine adolescents (mean age 16.9 years, GMFCS levels I-II) participated in 12 weeks of training (2x/week). Evaluations included 3D gait analysis, the 6-min walking test (6MWT), clinical exams, and the Gross Motor Function Measure-66 (GMFM-66).</p><p><strong>Results: </strong>No adverse events occurred, and GMFM-66 scores significantly improved (<i>p</i> = .031, Δ = 2.19%). Although increases in 6MWT (<i>p</i> = .09, Δ = 29.8 m) performance and propulsion ratio (<i>p</i> = .067, Δ = 5.4%) for the affected leg were observed, they were not statistically significant.</p><p><strong>Discussion: </strong>The study suggests that this training is safe and may enhance gross motor function, endurance, and gait asymmetry in unilateral CP. Future research should include upper limb evaluations and out-of-clinic motion analysis with wearable inertial measurement units (IMUs) to provide a more comprehensive assessment of functional movements.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"235-242"},"PeriodicalIF":0.0,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142304539","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2024-09-23DOI: 10.1080/17518423.2024.2398158
Kennea Martins Almeida Ayupe, Amanda Larissa Oliveira Lima, Gabrielly Cristine de Alcântara Gomes, Deysiane Sobrinho de Sousa, Ana Cristina Resende Camargos, Paula Silva de Carvalho Chagas, Hércules Ribeiro Leite, Egmar Longo, Aline Martins de Toledo
Children with Cerebral palsy (CP) present movement and posture disorders. The Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication Function Classification System (CFCS), Eating and Drinking Ability Classification System (EDACS), and Visual Function Classification System (VFCS) enhance the understanding of their performance. We verified inter-rater reliability and associations between the classification levels. Physical therapists classified 100 Brazilian children with CP (3-17 years) according to GMFCS, MACS, CFCS, EDACS, and VFCS. To evaluate inter-rater reliability (Intraclass Correlation Coefficient-ICC) two independent examiners concurrently assessed a subset of 60 participants. According to Spearman's correlation coefficients, there were associations between GMFCS/MACS (r = 0.81), GMFCS/CFCS (r = 0.70), MACS/CFCS (r = 0.73), GMFCS/VFCS (r = 0.61), MACS/VFCS (r = 0.61), CFCS/EDACS (r = 0.58), CFCS/VFCS (r = 0.50), and EDACS/VFCS (r = 0.45) (p < .05). The inter-rater reliability ranged from excellent (ICC = 0.93-0.99) to good (ICC = 0.89), p < .05. The classification systems are reliable, and the levels associated with each other in Brazilian children, especially the GMFCS, MACS, and CFCS.
{"title":"Functional classification systems in Brazilian children with cerebral palsy: Reliability and associations between functional levels.","authors":"Kennea Martins Almeida Ayupe, Amanda Larissa Oliveira Lima, Gabrielly Cristine de Alcântara Gomes, Deysiane Sobrinho de Sousa, Ana Cristina Resende Camargos, Paula Silva de Carvalho Chagas, Hércules Ribeiro Leite, Egmar Longo, Aline Martins de Toledo","doi":"10.1080/17518423.2024.2398158","DOIUrl":"10.1080/17518423.2024.2398158","url":null,"abstract":"<p><p>Children with Cerebral palsy (CP) present movement and posture disorders. The Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication Function Classification System (CFCS), Eating and Drinking Ability Classification System (EDACS), and Visual Function Classification System (VFCS) enhance the understanding of their performance. We verified inter-rater reliability and associations between the classification levels. Physical therapists classified 100 Brazilian children with CP (3-17 years) according to GMFCS, MACS, CFCS, EDACS, and VFCS. To evaluate inter-rater reliability (Intraclass Correlation Coefficient-ICC) two independent examiners concurrently assessed a subset of 60 participants. According to Spearman's correlation coefficients, there were associations between GMFCS/MACS (<i>r</i> = 0.81), GMFCS/CFCS (<i>r</i> = 0.70), MACS/CFCS (<i>r</i> = 0.73), GMFCS/VFCS (<i>r</i> = 0.61), MACS/VFCS (<i>r</i> = 0.61), CFCS/EDACS (<i>r</i> = 0.58), CFCS/VFCS (<i>r</i> = 0.50), and EDACS/VFCS (<i>r</i> = 0.45) (<i>p</i> < .05). The inter-rater reliability ranged from excellent (ICC = 0.93-0.99) to good (ICC = 0.89), <i>p</i> < .05. The classification systems are reliable, and the levels associated with each other in Brazilian children, especially the GMFCS, MACS, and CFCS.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"243-250"},"PeriodicalIF":0.0,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142304538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Children and adolescents with Intellectual Disability (ID) experience a worse Quality-of-Life (QoL) relative to typically developing peers. Thus, QoL evaluation is important for identifying support needs and improving rehabilitation effectiveness. Nevertheless, currently in Italy there are not tools with this scope. This study aims to translate and cross-culturally adapt the Quality-of-Life Inventory-Disability (QI-Disability) into Italian. The process consisted in forward-backward translation, cross-cultural adaptation and cognitive debriefing. Eventually, QI-Disability was conceptually and semantically equivalent to the original one. A validation study is necessary to make the tool available in Italian clinical practice and educational contexts to improve these children's QoL.
{"title":"Italian Version of QI-Disability for QoL Evaluation in Children and Adolescents with Intellectual Disability: Translation and Cross-Cultural Adaptation Process.","authors":"Federica Piccioni, Manuela Gragnaniello, Erika Benassi, Morena Tafuro, Jenny Downs","doi":"10.1080/17518423.2024.2398159","DOIUrl":"10.1080/17518423.2024.2398159","url":null,"abstract":"<p><p>Children and adolescents with Intellectual Disability (ID) experience a worse Quality-of-Life (QoL) relative to typically developing peers. Thus, QoL evaluation is important for identifying support needs and improving rehabilitation effectiveness. Nevertheless, currently in Italy there are not tools with this scope. This study aims to translate and cross-culturally adapt the Quality-of-Life Inventory-Disability (QI-Disability) into Italian. The process consisted in forward-backward translation, cross-cultural adaptation and cognitive debriefing. Eventually, QI-Disability was conceptually and semantically equivalent to the original one. A validation study is necessary to make the tool available in Italian clinical practice and educational contexts to improve these children's QoL.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"251-257"},"PeriodicalIF":0.0,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142157030","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2024-09-04DOI: 10.1080/17518423.2024.2398155
David Moreno-Naya, Francisco J Vazquez-Araujo, Paula M Castro, Adriana Dapena, Luz González Doniz, Jamile Vivas Costa
Background: Developmental Coordination Disorder (DCD) affects school-age children and interferes with the practice of their daily activities. Task-oriented work and motor imagery have shown great efficacy in addressing this problem.
Objective: This study presents a protocol that seeks to understand the effectiveness of a combined program of both modalities on the motor competence of children susceptible to the presence of DCD.
Desing: Randomised controlled trial.
Methods: The participants are children susceptible to the presence of DCD (from 6 to 12 years old) distributed into an intervention group that received a total of 20 protocol sessions and a control group that continued with their usual school routine.
{"title":"The Efficacy of Motor Imagery Additional to Task-Oriented Training for Children with Developmental Coordination Disorder: A Study Protocol for a Randomized Open-Label Controlled Trial.","authors":"David Moreno-Naya, Francisco J Vazquez-Araujo, Paula M Castro, Adriana Dapena, Luz González Doniz, Jamile Vivas Costa","doi":"10.1080/17518423.2024.2398155","DOIUrl":"10.1080/17518423.2024.2398155","url":null,"abstract":"<p><strong>Background: </strong>Developmental Coordination Disorder (DCD) affects school-age children and interferes with the practice of their daily activities. Task-oriented work and motor imagery have shown great efficacy in addressing this problem.</p><p><strong>Objective: </strong>This study presents a protocol that seeks to understand the effectiveness of a combined program of both modalities on the motor competence of children susceptible to the presence of DCD.</p><p><strong>Desing: </strong>Randomised controlled trial.</p><p><strong>Methods: </strong>The participants are children susceptible to the presence of DCD (from 6 to 12 years old) distributed into an intervention group that received a total of 20 protocol sessions and a control group that continued with their usual school routine.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"258-263"},"PeriodicalIF":0.0,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142135104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2024-08-08DOI: 10.1080/17518423.2024.2385321
Eveline Oppelaar, Johannes Mpj Breur, Lex Wijnroks, Renske Schappin
The aim of this pilot study was to explore whether executive functioning (EF) problems of children with severe congenital heart disease (CHD) could be improved through a personalized EF-training program. Eleven preschool-aged children (mean age = 62 months, SD = 6) received a standardized test battery. Eight children were eligible for training and six children participated in the training and posttest. Due to the small sample size, only effect sizes were analyzed. Clinically relevant improvements were found with large effect sizes. Findings indicate that a personalized EF-training program could be effective in improving EF of children with severe CHD. Further research is needed.
{"title":"Exploring the Potential of a Tailored Executive Functioning Training Program for Children with Congenital Heart Disease: A Brief Report.","authors":"Eveline Oppelaar, Johannes Mpj Breur, Lex Wijnroks, Renske Schappin","doi":"10.1080/17518423.2024.2385321","DOIUrl":"10.1080/17518423.2024.2385321","url":null,"abstract":"<p><p>The aim of this pilot study was to explore whether executive functioning (EF) problems of children with severe congenital heart disease (CHD) could be improved through a personalized EF-training program. Eleven preschool-aged children (mean age = 62 months, SD = 6) received a standardized test battery. Eight children were eligible for training and six children participated in the training and posttest. Due to the small sample size, only effect sizes were analyzed. Clinically relevant improvements were found with large effect sizes. Findings indicate that a personalized EF-training program could be effective in improving EF of children with severe CHD. Further research is needed.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"264-267"},"PeriodicalIF":0.0,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141904001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}