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Hospice educators' perspectives on e-learning in palliative care education in Ireland. 爱尔兰安宁疗护教育工作者对姑息关怀教育中电子学习的看法。
Pub Date : 2024-10-02 DOI: 10.12968/ijpn.2024.30.10.536
Joanne Callinan

Background: Knowledge of and understanding the palliative care approach should be a core competency in all healthcare settings. E-learning offers the potential to deliver palliative care education and meet this challenge.

Aim: To examine hospice educator's perspectives of e-learning in palliative care education.

Methods: Semi-structured interviews were conducted with a purposeful sample of hospice educators on the island of Ireland (Republic of Ireland and Northern Ireland). These were transcribed and the data was analysed thematically.

Findings: Many factors were considered when using e-learning: objectives of the programme, learner's characteristics, topic suitability (as palliative care is very emotive) and organisational factors. Barriers to using e-learnning were the preparation time required and developing expertise in e-learning. Support mechanisms for hospice educators to share knowledge would be beneficial.

Conclusions: Educators were keen to adopt a blended approach in their teaching. While acknowledging the challenges and limitations of e-learning, educators felt that e-learning has a positive role in palliative care education.

背景:姑息关怀方法的知识和理解应成为所有医疗机构的核心能力。目的:研究安宁疗护教育工作者对姑息关怀教育中电子学习的看法:方法:对爱尔兰岛(爱尔兰共和国和北爱尔兰)的安宁疗护教育工作者进行了有目的的抽样半结构式访谈。结果:在使用电子教学时,考虑了许多因素:在使用电子学习时,考虑了许多因素:课程的目标、学习者的特点、主题的适宜性(因为姑息关怀非常情绪化)和组织因素。使用电子学习的障碍是所需的准备时间和发展电子学习的专业知识。支持临终关怀教育者分享知识的机制将是有益的:教育工作者热衷于在教学中采用混合式教学方法。在承认电子学习的挑战和局限性的同时,教育者认为电子学习在姑息关怀教育中具有积极的作用。
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引用次数: 0
Nurses' attitude toward futile treatment and its relationship with missed care at the end of life. 护士对无用治疗的态度及其与临终关怀的关系。
Pub Date : 2024-09-02 DOI: 10.12968/ijpn.2024.30.9.486
Nasrin Hanifi, Zahra Gholami, Masoumeh Moqaddam

Background: Avoiding futile treatment for patients at the end of life is among one of the care challenges of nurses in intensive care units (ICUs).

Aims: This study aimed to determine the attitude of intensive care unit nurses toward futile treatment and its relationship with missed care for patients at the end of life.

Method: This cross-sectional study was conducted on 307 ICU nurses. Eleven teaching hospitals were selected from three Iranian provinces, Zanjan Province, East Azerbaijan and West Azerbaijan, in 2021. The data were collected using The Attitudes Toward Futile Treatment Scale (ATFTS) and The Missed Nursing Care Survey (MISSCARE Survey) as self-reports.

Results: According to the obtained results, 94.8% of the nurses agreed that futile treatment should not be performed. However, 97.7% of the nurses reported that missed care occurs less for patients at the end of life. The correlation between the MISSCARE Survey's total scale and the ATFTS's total scale was positive and statistically significant (r =.11).

Conclusion: This research contributes to understanding nurses' attitudes toward futile treatment. Nurses oppose futile treatment, so obstacles to avoiding it should be eliminated. This attitude does not have a significant impact on nursing care quality or missed care for patients at the end of life, but it can lead to enduring distress for nurses. It is recommended to study the reasons for futile treatment, and its link to nurses' mental and physical health.

背景:目的:本研究旨在确定重症监护病房护士对无用治疗的态度及其与错过对生命末期患者的护理之间的关系:这项横断面研究的对象是 307 名重症监护室护士。2021 年,从伊朗的三个省份(赞詹省、东阿塞拜疆和西阿塞拜疆)选取了 11 家教学医院。研究采用 "对无效治疗的态度量表"(ATFTS)和 "护理遗漏调查"(MISSCARE Survey)作为自我报告收集数据:结果显示:94.8%的护士同意不应进行无用治疗。然而,97.7% 的护士表示,生命末期患者的护理遗漏发生率较低。MISSCARE 调查的总量表与 ATFTS 的总量表之间呈正相关,且具有统计学意义(r =.11):本研究有助于了解护士对无用治疗的态度。护士反对无效治疗,因此应消除避免无效治疗的障碍。这种态度不会对护理质量产生重大影响,也不会错过对生命末期患者的护理,但会给护士带来持久的痛苦。建议研究无效治疗的原因及其与护士身心健康的关系。
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引用次数: 0
Research Roundup. 研究综述。
Pub Date : 2024-09-02 DOI: 10.12968/ijpn.2024.30.9.516
Laura Green

Synopses of a selection of recently published research articles of relevance to palliative care.

近期发表的与姑息关怀相关的研究文章选摘。
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引用次数: 0
What enhances the quality of death and dying? A perspective from patients with terminal cancer. 是什么提高了死亡和临终的质量?癌症晚期患者的观点。
Pub Date : 2024-09-02 DOI: 10.12968/ijpn.2024.30.9.496
Maria Wajid, Eslavath Rajkumar, John Romate

Aim: This study aimed to determine which factors improve the quality of dying and death from the point of view of patients with cancer who are nearing the end of their lives. The goal was to find out what they think are necessary conditions for a good death and how they would like to be cared for and supported at the end of their lives.

Methods: This study used an exploratory research approach. Purposive sampling was used to select 21 participants from two hospices in Bengaluru and Hyderabad (Karunashraya and Sparsh), and Karnataka Cancer Hospital in Bangalore, India. Semi-structured interviews were undertaken to obtain data from the patients. Thematic analysis was used to examine the data.

Results: Four themes were identified: 1) Spirituality and religiosity, 2) socioemotional support, 3) Breaking silence about the stage of the disease and 4) Preparation for and embracing death. There were distinct sub-themes within some of these that were highlighted using quotes from the participants.

Conclusions: The study provided a comprehensive understanding of end-of-life care, the criteria for a high-quality end of life, strategies for achieving it, and the quality of the dying process and death in advanced cancer patients. Studying patients' experiences will help inform a more robust intervention strategy and action plan to improve the quality of end-of-life care in the Indian community.

目的:本研究旨在从生命即将终结的癌症患者的角度,确定哪些因素可以提高死亡和濒死的质量。目的是了解他们认为什么是美好死亡的必要条件,以及他们希望在生命的最后阶段得到怎样的照顾和支持:本研究采用探索性研究方法。方法:本研究采用了探索性研究方法,从印度班加罗尔和海德拉巴的两家临终关怀机构(卡鲁纳什拉亚和斯巴什)以及班加罗尔的卡纳塔克癌症医院中选择了 21 名参与者。通过半结构式访谈从病人那里获取数据。结果:结果:确定了四个主题:1) 精神和宗教信仰;2) 社会情感支持;3) 打破对疾病阶段的沉默;4) 为死亡做准备并拥抱死亡。在其中一些主题中,还存在着明显的次主题,并通过引用参与者的话进行了强调:这项研究让我们对生命末期护理、高质量生命末期的标准、实现高质量生命末期的策略以及晚期癌症患者的死亡过程和死亡质量有了全面的了解。研究患者的经历将有助于制定更有力的干预策略和行动计划,以提高印度社区的临终关怀质量。
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引用次数: 0
The gap between expectations and reality in advance care planning in long-term care settings. 长期护理环境中预先护理计划的期望与现实之间的差距。
Pub Date : 2024-09-02 DOI: 10.12968/ijpn.2024.30.9.474
Kuai In Tam, Sok Leng Che, Sok Man Leong, Wing Sze Lau

Background: Advance care planning (ACP) is an integral part of good quality end-of-life care. This study aimed to explore the role and practice of ACP among health and social care professionals (HSCPs) in a community long-term care facility.

Methods: This was a mixed-methods study. The study purposefully sampled 12 HSCPs from one community long-term care facility in Macao, China. All data were collected in November 2022.

Results: Some participants had discussed with terminally ill residents or with families in terms of end-of-life care preferences, the average correct rate of ACP knowledge was 67.4%. Interview data showed that HSCPs were primarily concerned with information-giving. The responsibility of decision-making was found to have been placed predominantly on family members of the residents.

Conclusion: Study findings raised awareness in that the execution of ACP has remained in discord with the expectations in practicing ACP. The study illuminated that the perceived sense of responsibility among HSCPs was influenced by the potential legal risks involved and consequentially impacted on the adherence to individual's decisions.

背景:预先护理计划(ACP)是高质量临终关怀不可或缺的一部分。本研究旨在探讨在社区长期护理机构中,医护和社会护理专业人员(HSCPs)在预先护理计划中的作用和实践:这是一项混合方法研究。研究有目的地从中国澳门的一家社区长期护理机构抽取了 12 名医护人员。所有数据均于 2022 年 11 月收集:部分参与者曾与临终患者或家属讨论临终关怀偏好,ACP知识的平均正确率为67.4%。访谈数据显示,临终关怀中心主要负责提供信息。结论:研究结果提高了人们的认识,即 ACP 的执行仍与实践 ACP 的期望不符。研究结果表明,住院医师的责任感受到潜在法律风险的影响,进而影响到对个人决定的遵守。
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引用次数: 0
Challenges and upgrade: Advanced nursing roles. 挑战与升级:高级护理角色。
Pub Date : 2024-09-02 DOI: 10.12968/ijpn.2024.30.9.471
Valentina Biagioli
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引用次数: 0
Student nurses' perceptions of preparedness for palliative care delivery at the point of registration. 学生护士在注册时对姑息关怀服务准备情况的看法。
Pub Date : 2024-09-02 DOI: 10.12968/ijpn.2024.30.9.510
Michelle Brown, Gerri Mortimore
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引用次数: 0
Avoidable emergency admissions: defining the concept. 可避免的急诊入院:界定概念。
Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.432
Tânia Dos Santos Afonso, Lurdes Martins, Manuel Luís Capelas

Background: The transfer of end-of-life patients to hospital via admission to an emergency service mainly happens because of a lack of community support nearby and a lack of resources in palliative care.

Aims: This study aimed to define the concept of avoidable admission to an emergency department for palliative patients.

Methods: An integrative literature review was performed. The results of this were put to a panel of palliative care experts via a Delphi process to determine their consensus and agreement with the statements.

Findings: The results of the two-step Delphi process reached a high level of consensus and agreement that patients with palliative needs accompanied by home palliative care teams should not go to the emergency department. There was a low level of consensus and agreement about the appropriate admission of a patient in pain in the absence of any information about previous community support.

Conclusion: The findings allowed the definition of an 'avoidable emergency admission', which is an emergency admission for any symptom or condition that could be supported in a home context or primary health care, or any emergency admission that does not require immediate nursing or medical intervention, nor leads to greater comfort or quality of life for the patient.

背景:生命末期患者通过急诊入院转院的主要原因是附近缺乏社区支持以及缺乏姑息关怀方面的资源:方法:进行了综合文献综述。方法:进行了一次综合文献综述,并通过德尔菲程序将综述结果提交给姑息关怀专家小组,以确定他们对陈述的共识和认同:两步德尔菲程序的结果达成了高度共识和一致意见,即有姑息关怀需求的病人在居家姑息关怀团队的陪同下不应去急诊科。对于在没有任何关于先前社区支持的信息的情况下,是否应该收治疼痛患者的问题,达成的共识和一致意见较少:研究结果允许对 "可避免的急诊入院 "进行定义,即因任何可在家庭环境或初级医疗保健中得到支持的症状或病症而急诊入院,或任何不需要立即进行护理或医疗干预,也不会提高患者舒适度或生活质量的急诊入院。
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引用次数: 0
Iranian Muslim women's adaptation after mastectomy. 伊朗穆斯林妇女在乳房切除术后的适应情况。
Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.451
Marzieh Beygom Bigdeli Shamloo, Nasrin Elahi, Aziz Shamsi

Background: Breast cancer is the most common malignancy among women. Women with breast cancer need to adapt all aspects of their life following their diagnosis.

Aim: To investigate how women with breast cancer make adaptations in their lives to cope with the condition.

Methods: A directed content analysis was used for this study and 23 participants were interviewed. The participants included women undergoing a mastectomy and their husbands, oncologists, oncology ward nurses and psychologists. Questions were asked regarding the participants' experiences of their adaptation to a mastectomy and cancer.

Results: Data analysis led to the emergence of four dimensions; the physical dimension, self-concept, role-playing and interdependence. These four dimensions consisted of 21 main categories, 59 subcategories and 111 codes.

Conclusion: The present study showed that despite the emergence of different coping approaches, women undergoing mastectomy have had various physical and mental problems that lead to role disruption. It is recommended that solutions be adopted to increase the adaptation of these patients.

背景:乳腺癌是女性最常见的恶性肿瘤:乳腺癌是女性最常见的恶性肿瘤。目的:调查患有乳腺癌的妇女如何调整生活以应对病情:本研究采用了定向内容分析法,对 23 名参与者进行了访谈。参与者包括接受乳房切除术的妇女及其丈夫、肿瘤学家、肿瘤病房护士和心理学家。研究人员就参与者适应乳房切除术和癌症的经历提出了问题:数据分析得出了四个维度:身体维度、自我概念、角色扮演和相互依存。这四个维度包括 21 个主要类别、59 个子类别和 111 个代码:本研究表明,尽管出现了不同的应对方法,但接受乳房切除术的妇女仍有各种生理和心理问题,导致角色混乱。建议采取相应的解决方案,提高这些患者的适应能力。
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引用次数: 0
Synopses of a selection of recently published research articles of relevance to palliative care. 近期发表的与姑息关怀相关的研究文章选摘。
Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.464
Laura Green
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引用次数: 0
期刊
International journal of palliative nursing
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