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International journal of palliative nursing最新文献

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When and how to stop palliative antineoplastic treatment and to organise palliative care for patients with incurable cancer. 何时以及如何停止姑息性抗肿瘤治疗,并为无法治愈的癌症患者组织姑息治疗。
Pub Date : 2023-10-02 DOI: 10.12968/ijpn.2023.29.10.499
Mette Raunkiær, Jahan Shabnam, Kristoffer Marsaa, Geana Paula Kurita, Per Sjøgren, Mai-Britt Guldin

Background: Improving the organisational aspects of the delivery of palliative care in order to support patients throughout their disease trajectory has received limited attention.

Aim: To investigate the opportunities and barriers related to organising palliation for people with terminal cancer and their families.

Methods: An explorative interview study was conducted among 31 nurses and three physicians concerning an intervention facilitating a fast transition from treatment at a cancer centre at a university hospital to palliation at home. A thematic analysis was conducted.

Findings: This article presents three out of seven themes: 1) improvement in the cessation of antineoplastic treatment in palliation; 2) improvement in organisations delivering palliation; and 3) improvement in multidisciplinary and cross-sectoral collaboration.

Conclusions: The results demonstrate the demand for flexible, family-centred and integrated palliation at all levels, from communication and the collaborative relationship between healthcare professionals and families to service sectors.

背景:改善姑息治疗的组织方面,以便在患者的整个疾病轨迹中为其提供支持,但受到的关注有限。目的:探讨为癌症晚期患者及其家属组织姑息治疗的机会和障碍。方法:对31名护士和3名医生进行了一项探索性访谈研究,涉及一项干预措施,该干预措施有助于从大学医院癌症中心的治疗快速过渡到在家缓解。进行了专题分析。研究结果:本文提出了七个主题中的三个:1)在姑息治疗中停止抗肿瘤治疗的改善;2) 改善提供缓和的组织;以及3)改进多学科和跨部门合作。结论:研究结果表明,从医疗保健专业人员与家庭之间的沟通和合作关系到服务部门,各个层面都需要灵活、以家庭为中心的综合缓解措施。
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引用次数: 0
Quality of life assessment of patients undergoing palliative chemotherapy. 姑息性化疗患者的生活质量评估。
Pub Date : 2023-10-02 DOI: 10.12968/ijpn.2023.29.10.476
Ana Amélia Belmiro, Dirce Guilhem

Background: Palliative chemotherapy uses systemic antineoplastic agents to treat an incurable malignancy. The results of cancer treatment need to be measured in terms of what physical and psychological limitations it brings to the patient. Therefore, there is a need to evaluate and establish the impact of the disease and its treatment on the patient's quality of life.

Objective: To evaluate the quality of life of cancer patients undergoing palliative antineoplastic chemotherapy.

Method: A cross-sectional study with quali-quantitative unfolding. Three research instruments were applied: sociodemographic and clinical data; European Organization for Research and Treatment of Cancer quality of life questionnaire (EORTC QLQ-C30); interview script with predefined open questions.

Results: The quality of life of the participants was considered good. Fatigue and financial difficulty were the main factors that interfered in daily activities. Three analytical categories emerged from the content analysis of the interviews: communication between the health team and the patient; patient's perception of their health/disease; concerns vs prospects.

Conclusion: The evaluation of quality of life for people who are at the end of life needs to balance technological and therapeutic advances, alongside aspects such as the perspective of these patients and the context of their lives.

背景:姑息性化疗使用全身抗肿瘤药物来治疗无法治愈的恶性肿瘤。癌症治疗的结果需要根据它给患者带来的身体和心理限制来衡量。因此,有必要评估和确定该疾病及其治疗对患者生活质量的影响。目的:评价癌症姑息性抗肿瘤化疗患者的生活质量。方法:采用quali定量展开法进行横断面研究。应用了三种研究工具:社会人口统计和临床数据;欧洲癌症研究与治疗组织生活质量问卷(EORTC QLQ-C30);带有预定义开放式问题的面试脚本。结果:参与者的生活质量被认为是良好的。疲劳和经济困难是干扰日常活动的主要因素。访谈的内容分析产生了三个分析类别:卫生团队与患者之间的沟通;患者对其健康/疾病的认知;关注与前景。结论:评估生命末期患者的生活质量需要平衡技术和治疗进展,以及这些患者的视角和生活背景等方面。
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引用次数: 0
A call to advocacy. 呼吁倡导。
Pub Date : 2023-10-02 DOI: 10.12968/ijpn.2023.29.10.463
Julia Downing
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引用次数: 0
Synopses of a selection of recently published research articles of relevance to palliative care. 最近发表的一些与姑息治疗相关的研究文章摘要。
Pub Date : 2023-10-02 DOI: 10.12968/ijpn.2023.29.10.508
Laura Green
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引用次数: 0
The effect of implementing the COMFORT communication model on communication skills of nursing students. 实施COMFORT沟通模式对护生沟通技能的影响。
Pub Date : 2023-09-02 DOI: 10.12968/ijpn.2023.29.9.412
Farzad Reisi Mahdiabadi, Samaneh Mirzaei, Ahmad Entezari, Khadijeh Nasiriani

Background: Effective communication as a key component of palliative care requires sufficient knowledge and experience to make nursing interventions successful.

Aim: This quasi-experimental study was conducted to determine the effectiveness of the COMFORT communication model as an intervention to improve student nurses' communication skills while they are under clinical training in specialist palliative care inpatient units.

Methods: The population sample included 86 student nurses who were randomly assigned into two groups of 40. The intervention group received training on communication skills using the COMFORT communication model. Nine lectures were delivered online or offline; the lectures lasted between 25 to 60 minutes. The control group received the conventional educational programme about communication with patients and families, according to the curriculum of the bachelor's degree in nursing. Data were collected using the Communication Skills Questionnaire and Communication Skills Attitude Scale and analysed using IBM® SPSS® Statistics 22.0.

Results: The findings showed that, after the implementation of COMFORT communication model, there was a statistically significant difference in communication skills between the intervention group (122.95±9.36) and the control group (110.1±8.92). There was also a significant difference in attitudes toward communication skills between the intervention group (90.25±8.86) and the control group (90.85±9.15) (P=0.0001). The findings of the study revealed that the COMFORT Communication model created significant statistical differences in the student's attitude, knowledge and communication skills.

Conclusion: Novice nurses sometimes struggle with the level of communication skills needed when caring for patients with an end-stage illness. The implementation of the COMFORT communication model significantly improved communication skills and attitudes toward communication. Due to the need to establish effective communication as the core of nursing practice, the implementation of this training programme is recommended for students and qualified nurses, particularly when providing palliative care.

背景:有效的沟通作为姑息治疗的关键组成部分,需要足够的知识和经验才能使护理干预取得成功。目的:本准实验研究旨在确定COMFORT沟通模式作为一种干预措施的有效性,以提高实习护士在专科姑息治疗住院单元接受临床培训时的沟通技能。方法:人群样本包括86名实习护士,他们被随机分为两组,每组40人。干预组接受了使用COMFORT沟通模式的沟通技能培训。九场讲座以线上或线下方式进行;讲座持续了25到60分钟。对照组根据护理学士学位课程,接受关于与患者和家人沟通的传统教育课程。使用沟通技能问卷和沟通技能态度量表收集数据,并使用IBM®SPSS®Statistics 22.0进行分析。结果:在实施COMFORT沟通模型后,干预组(122.95±9.36)与对照组(110.1±8.92)在沟通技能方面存在显著差异,干预组(90.25±8.86)与控制组(90.85±9.15)在沟通态度方面也存在显著差异(P=0.001)该模型在学生的态度、知识和沟通技能方面产生了显著的统计差异。结论:新手护士在照顾终末期疾病患者时,有时会在沟通技巧方面遇到困难。COMFORT沟通模式的实施显著提高了沟通技巧和沟通态度。由于需要将有效沟通作为护理实践的核心,建议学生和合格护士实施这一培训计划,特别是在提供姑息治疗时。
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引用次数: 0
Caring ability and its related factors in the family caregivers of patients with cancer. 癌症患者家庭照顾者的照顾能力及其相关因素。
Pub Date : 2023-09-02 DOI: 10.12968/ijpn.2023.29.9.422
Maryam Rassouli, Samira Beiranvand, Maryam Karami, Azam Eshaghian Dorcheh, Hadis Ashrafizadeh

Background: Caregivers of cancer patients experience a variety of challenges caused by the prolonged burden of care. Many of these caregivers do not have the necessary knowledge, skills and caring ability to fulfil their caring role. Therefore, healthcare providers should support them in learning to provide high-quality care. Evaluating caregivers' ability will be the first step of this supportive programme.

Aim: The aim of this study was to determine the caring ability of the caregivers of cancer patients and its related factors.

Methods: This descriptive correlational study was performed with 271 caregivers of cancer patients who were selected through convenience sampling conducted from July to December 2021 in selected hospitals in Tehran, the capital city of Iran. The data were collected using the caring ability of family caregivers of patients with cancer scale (CAFCPCS), which was developed by Nemati et al (2020). In addition, the stability reliability coefficient was calculated to be ICC=0.93. Data analysis was performed through Statistical Package for the Social Sciences (version 26), using descriptive and inferential statistics and correlation coefficient tests at a significance level of 0.05.

Results: The mean score for the caring ability of the family caregivers of cancer patients in this study was 91.86±7.59. The mean total score of caring ability scale had a statistically significant correlation with the type of cancer and the duration of patient care (P-value=0.05).

Conclusion: The results of the study demonstrated that the family caregivers of cancer patients do not have the necessary knowledge and awareness to perform their caring role effectively. Therefore, it is recommended to empower caregivers and use strategies to improve their trust, especially in caregivers who oversee patient care for a significant period of time.

背景:癌症患者的护理人员经历了由长期护理负担引起的各种挑战。这些照顾者中的许多人不具备履行照顾职责所需的知识、技能和照顾能力。因此,医疗保健提供者应支持他们学习提供高质量的护理。评估护理人员的能力将是这项支持计划的第一步。目的:了解癌症患者护理人员的护理能力及其相关因素。方法:本描述性相关研究对271名癌症患者的护理人员进行,这些护理人员是通过2021年7月至12月在伊朗首都德黑兰的选定医院进行的方便抽样选择的。使用Nemati等人(2020)开发的癌症患者家庭护理人员的护理能力量表(CAFCPCS)收集数据。此外,计算出稳定性可靠性系数为ICC=0.93。通过《社会科学统计包》(第26版)进行数据分析,采用描述性、推断性统计和相关系数检验,显著性水平为0.05。结果:本研究癌症患者家庭护理人员的护理能力平均得分为91.86±7.59。护理能力量表的平均总分与癌症类型和患者护理持续时间有统计学显著相关性(P值=0.05)。结论:研究结果表明,癌症患者的家庭护理人员不具备有效履行护理角色所需的知识和意识。因此,建议赋予护理人员权力,并使用策略来提高他们的信任,尤其是对长期监督患者护理的护理人员。
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引用次数: 0
Importance of palliative nursing in a critical healthcare world. 姑息护理在关键医疗保健领域的重要性。
Pub Date : 2023-09-02 DOI: 10.12968/ijpn.2023.29.9.411
Bridget Johnston
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引用次数: 0
Participation in inpatient care from the perspective of family members of palliative care patients. 从姑息治疗患者家属的角度参与住院治疗。
Pub Date : 2023-09-02 DOI: 10.12968/ijpn.2023.29.9.446
Johanna Saarinen, Kaisa Mishina, Anu Soikkeli-Jalonen, Hanne Konradsen, Elina Haavisto

Background: The participation of family members in inpatient palliative care has been shown to be meaningful; it contributes to the wellbeing of the patient. Even so, little is known about the perspectives of family members regarding their participation in this type of care.

Aim: The aim of this study was to describe participation in inpatient care from the perspective of family members of palliative care patients.

Method: This study involved semi-structured individual interviews with family members (n=19) of patients receiving inpatient palliative care, as well as inductive thematic analysis.

Findings: Four main themes describing the family members' perspectives of their participation in inpatient palliative care were identified: family members attending to everyday activities, importance of participation to family members, family members providing emotional support to patients and the role of family members in discussions and decision-making processes concerning patient care.

Conclusion: Family members participate in inpatient palliative care in different ways. Participation was experienced as important to patients and family members, and some family members felt that participation may have supported their coping process.

背景:家庭成员参与住院姑息治疗已被证明是有意义的;它有助于患者的健康。即便如此,人们对家庭成员参与此类护理的观点知之甚少。目的:本研究的目的是从姑息治疗患者家属的角度描述参与住院治疗的情况。方法:本研究包括对接受住院姑息治疗的患者家属(n=19)的半结构化个人访谈,以及归纳主题分析。研究结果:确定了四个主要主题,描述了家庭成员对其参与住院姑息治疗的看法:家庭成员参与日常活动、参与对家庭成员的重要性、家庭成员为患者提供情感支持以及家庭成员在有关患者护理的讨论和决策过程中的作用。结论:家庭成员以不同方式参与住院姑息治疗。参与对患者和家庭成员来说同样重要,一些家庭成员认为参与可能支持了他们的应对过程。
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引用次数: 0
Compassion in healthcare leadership and the reality of balancing it with effective and efficient service delivery at a time of crisis. 医疗保健领导层的同情心,以及在危机时刻平衡同情心与高效服务的现实。
Pub Date : 2023-09-02 DOI: 10.12968/ijpn.2023.29.9.455
Steve Bass
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引用次数: 0
A qualitative exploration of the spiritual wellbeing of women with advanced cervical cancer in Ghana. 对加纳晚期癌症妇女精神健康状况的定性探索。
Pub Date : 2023-09-02 DOI: 10.12968/ijpn.2023.29.9.434
Kafui Abra Hobenu, Florence Naab

Background: Spiritual wellbeing is one of the most important aspects of human health, alongside physical, psychological and social factors. Religiosity/spirituality can play a critical role in the lives of people experiencing life-threatening illnesses, such as cervical cancer. Most women with cervical cancer in Africa, including Ghana, are diagnosed at the advanced stage. These women lean on their spiritual connections for strength during their illness. Despite the fact that numerous studies have been conducted on the relevance of religiosity/spirituality in the experience of cancer in other jurisdictions, the same cannot be said about Ghana. The study aims to fill this gap in the literature.

Aim: To explore the spiritual wellbeing of women diagnosed with advanced cervical cancer in Ghana.

Method: A qualitative explorative design was employed, with purposive sampling used to recruit 15 women with advanced cervical cancer from a cancer treatment centre of a teaching hospital in Ghana. Individual face-to-face interviews, lasting between 45-90 minutes, were used to gather information. Interviews were audio taped with participants' consent. Data were analysed using thematic content analysis.

Findings: The following sub-themes were identified within one overarching theme of the spiritual wellbeing of women with advanced cervical cancer: the meaning of illness and acceptance; a sense of hope and religiosity; uncertainty; and the will to live.

Conclusion: Many participants believed they were bewitched, and the devil was responsible for their cervical cancer. Healthcare providers should adopt a multi-disciplinary approach and widen their care strategies to include spirituality, to enhance the treatment outcomes of women living with advanced cervical cancer.

背景:精神健康是人类健康最重要的方面之一,与身体、心理和社会因素并列。宗教/灵性可以在患有癌症等危及生命的疾病的人的生活中发挥关键作用。在包括加纳在内的非洲,大多数患有癌症的妇女被诊断为晚期。这些妇女在生病期间依靠她们的精神联系来获得力量。尽管在其他司法管辖区已经对宗教/精神与癌症经历的相关性进行了大量研究,但加纳的情况却并非如此。这项研究旨在填补文献中的这一空白。目的:探讨加纳诊断为晚期癌症妇女的精神健康状况。方法:采用定性探索性设计,采用有目的的抽样方法,从加纳一所教学医院癌症治疗中心招募15名晚期癌症妇女。个人面对面访谈持续45-90分钟,用于收集信息。在征得参与者同意的情况下,对访谈进行了录音。数据采用专题内容分析法进行分析。研究结果:在晚期癌症女性精神健康的一个总体主题中确定了以下子主题:疾病的意义和接受;希望感和虔诚感;不确定性;以及生存的意志。结论:许多参与者认为他们被施了魔法,魔鬼是他们患癌症的罪魁祸首。医疗保健提供者应采用多学科方法,并扩大其护理策略,将精神纳入其中,以提高晚期癌症妇女的治疗效果。
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引用次数: 0
期刊
International journal of palliative nursing
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