International journal of palliative nursing最新文献

Background: Few studies evaluate the satisfaction of patients with cancer receiving palliative care with the nursing care received.

Objective: To evaluate satisfaction among patients with cancer in hospitalised palliative care with respect to the nursing care they received.

Method: This was a quantitative, descriptive-correlational and cross-sectional study that was reported in accordance with Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines. It was carried out in a university hospital in the city of Belém, Brazil. The participants were adults with cancer who were receiving palliative care and who had been hospitalised for more than 72 hours. Data collection took place between December 2022 and September 2023, and instruments were used for bedside interviews.

Results: Patients receiving minimal care reported being satisfied with their nursing care in the technical-professional dimension (p=0.04).

Conclusion: The association between patient satisfaction and the degree of dependence is unprecedented in the scientific scenario and has the potential to motivate more in-depth studies in this area.

Background: Low-prevalence diseases (LPDs), previously referred to as orphan diseases or rare diseases, entail a substantial potential for mortality and impose a remarkable burden of symptoms for patients. The process of diagnosing these diseases is often lengthy, and viable treatment options for such conditions are scarce, or in some cases, non-existent.

Methods: A narrative review was carried out following the Scale for the Assessment of Narrative Review Articles (SANRA) methodology to establish the role of palliative care in the treatment and follow-up of patients with LPDs. A search was carried out by a multidisciplinary team in EMBASE, PUBMED, Web of Science, CINHAL and OVID. Peer-reviewed articles reporting on the role of palliative care in the multidisciplinary treatment of LPDs were included.

Results: The review identified significant areas where palliative care specialists play a crucial role in caring for LPDs. These areas include addressing complex physical and emotional symptoms, assisting patients in adjusting their expectations through genetic counselling, facilitating decision-making across short, medium and long-term perspectives based on disease prognosis, and offering support with care transitions, advanced planning and the grieving process for families.

Conclusion: Patients with LPDs and their caregivers experience complex care needs that should be assessed by a palliative care specialist and supported by a multidisciplinary medical group.

Background: Patients with cancer can have problems sleeping. One measure that can help patients with cancer to improve the quality of their sleep is the 5A Self Management Model method.

Aim: This study aimed to determine the effect of the 5A Self Management Model on the quality of sleep of patients with cancer.

Methods: In this clinical trial, 106 patients with cancer were recruited by convenient sampling, and randomly allocated to experimental and control groups. Data collection tools were a demographic checklist and Pittsburgh Sleep Quality Questionnaire. Patients in the experimental group received a self-management programme with the 5A method for 3 months and the control group obtained the routine intervention. Data were analysed via SPSS 25 software using Wilcoxon, Mann-Whitney U, independent t-test, paired t-test and descriptive statistics.

Results: Before the intervention, the mean scores of sleep quality were 13.41 (1.78) in the experimental group and 9.64 (2.45) in the control group. However, after the intervention, the mean score of sleep quality decreased in the experimental group to 5.07 (1.19) and increased by 12.81 (2.26) in the control group, significantly.

Conclusion: The 5A Self Management Model programme improved the quality of sleep of patients with cancer in this trial. It is recommended nurses consider this method as a part of caring for patients with cancer.

Background: To explore and understand the narratives of service users in the hospice setting regarding the value they place on complementary therapies and their perceived impact on overall wellbeing.

Methods: This qualitative pilot study, informed by narrative inquiry principles, used purposive sampling to recruit and interview 11 service users receiving complementary therapies in a hospice setting. Data were analysed using a two-cycle coding approach, through manual inductive recognition of patterns.

Findings: Three themes were identified: developing trust in complementary therapy; informal psychological support and applications to everyday life. The benefits derived from complementary therapy sessions include managing anxiety and stress, developing better sleep strategies and devising coping techniques for personal situations and contexts through guided discussions and personal reflection.

Implications: The study suggests a need for further inquiry and professional complementary therapist development to fully harness the therapeutic potential of complementary therapy in a palliative care context. There is potential for palliative settings that incorporate and provide complementary therapies to enhance the role that complementary therapy services play in facilitating coping abilities, reducing anxiety and potentially improving sleep and pain management.

Background: Black Americans are twice as likely to die from the leading causes of death in the US due to economic and social disparities, which exacerbate the emotional and social burdens of bereavement and increase the risk of prolonged grief (PG). Untreated, PG leads to depression, self-harm risk, deteriorating health, elevated healthcare use and mortality risk. Studies reveal a reluctance among Black Americans to seek bereavement support, compounded by limited care access, mental health stigma, biased providers and cultural gaps.

Aims: To evaluate the acceptability and efficacy of a culturally adapted Prolonged Grief Group Therapy intervention for Black Americans.

Methods: This protocol outlines a study employing a pilot three-arm quasi-experimental design. The study aims to explore cultural, systemic and psychological factors shaping grief in this population and refine the intervention to enhance its relevance and effectiveness.

Conclusions: By addressing this significant gap, the research seeks to provide evidence for an accessible and culturally sensitive therapeutic approach, ultimately improving emotional wellbeing and mitigating the adverse impacts of prolonged grief in this underrepresented population.

Background: Palliative care (PC) is described by the World Health Organization (WHO) as an interprofessional approach that improves the quality of life of patients (adults and children) and their families who are facing problems associated with life-threatening illness. One strategy for increasing access to PC services is to integrate village health volunteers (VHVs) into community-based palliative care teams in Thailand.

Aims: The study had two specific aims: (1) to describe the cultural context of death and dying in a southern province in Thailand, and (2) to identify palliative care interventions used by VHV to promote dying in a southern province in Thailand.

Methods: The study was conducted using a qualitative, explorative descriptive design. Descriptive statistics were used to describe the sample's characteristics, such as means for continuous variables and frequencies for categorical variables. The transcripts from the interviews and field notes were the data sources for analysis. A 6-step thematic analysis method was used in this study to analyse transcripts from the focus group discussion (FGD) interviews and the field notes. A total of 77 VHV participants from two community hospitals and one rural health promoting hospital participated in the FGD. Of the participants, 96% were women. The mean age was 47.13 years, and the mean number of years spent in their current position was 11.24 years.

Results: Five major themes emerged, the importance of the Thai cultural context, VHVs are the point of connection, basic physical care, supporting spiritual care and providing emotional support.

Conclusion: Future studies should explore how to integrate the findings of this study into culturally-tailored palliative care programmes and to provide training for VHV on effective interventions to provide emotional and spiritual support. Having the VHV on the interprofessional team could be a way to ensure compassionate end-of-life care for palliative care patients and their circles of support.

Background: Newborns and children with chronic and life-limiting illnesses and their families benefit from family-centered interdisciplinary palliative care, PC). The value of PC for patients and their families, coupled with health inequities, especially in low- and middle-income countries, LMICs) and limited resource settings, make neonatal and paediatric palliative care, NPPC) a worldwide public health necessity.

Aims: To explore the evidence concerning an interprofessional healthcare provider adoption of culturally responsive policies, procedures and clinical protocols in India for PC following an education programme.

Methods: An integrated literature review including electronic data search of CINAHL, PubMed and Embase.

Findings: Health professional audiences express high interest in education regarding effective PC delivery. However, there is a lack of specificity and inclusion of neonatal and paediatric populations when addressing PC knowledge and care delivery in India.

Conclusion: Although interest in education on PC delivery is high, additional research and resources are needed to adequately equip healthcare providers to develop evidence-based NPPC education programmes that effectively guide PC programme construction and care delivery.

Synopses of a selection of recently published research articles of relevance to palliative care.