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Chemosensory changes during chemotherapy. 化疗期间的化疗感觉变化
Pub Date : 2024-03-02 DOI: 10.12968/ijpn.2024.30.3.147
Mona Abed El-Rahman Mohamed, Noha Mohammed Ibrahim Ibrahim, Hanan Hassan Elezaby, Mariam Sabry Shehab

Background: Chemosensory changes that occur during chemotherapy can significantly impact food enjoyment, quality of life and recovery.

Aim: To investigate chemosensory changes reported by oncology patients during chemotherapy.

Methods: A mixed-method cross-sectional study design was used to explore 100 cancer patients' experiences of chemosensory changes during chemotherapy. All patients completed a questionnaire assessing their taste and smell preferences. A purposive sample of 30 patients underwent a semi-structured interview to elicit their thoughts on their experienced chemosensory changes. Descriptive statistics and themes were examined.

Findings: The mean age of the sample was 50.56 years, and the majority of participants were female. The most stated taste alteration was bitter, while altered food preferences were also commonly experienced. Furthermore, most patients experienced unpleasant odours around food, while some experienced these odours even when food was not present. Overall, five themes were identified: changes in taste, changes in smell, changes in social life, altered comfort and food preferences.

Conclusion: Chemosensory changes related to cancer and its treatment impact a person's nutrient intake, food-related behaviours, quality of life and treatment response. Patients who experience chemotherapy-associated chemosensory changes require specialised nutritional therapy to increase their eating-related pleasure. As part of the nutritional assessment, chemosensory alterations should be evaluated regularly.

背景:化疗期间发生的化疗感官变化会严重影响食物的享用、生活质量和康复。目的:调查肿瘤患者报告的化疗期间化疗感官变化:方法:采用混合方法横断面研究设计,探讨 100 名癌症患者在化疗期间对化感变化的体验。所有患者都填写了一份评估其味觉和嗅觉偏好的问卷。30名患者接受了半结构化访谈,以了解他们对化疗期间化疗感官变化的看法。对描述性统计和主题进行了研究:样本的平均年龄为 50.56 岁,大多数参与者为女性。最明显的味觉改变是苦味,而食物偏好的改变也很常见。此外,大多数患者会在食物周围闻到难闻的气味,有些患者甚至在没有食物的情况下也会闻到这些气味。总体而言,共确定了五个主题:味觉变化、嗅觉变化、社交生活变化、舒适度改变和食物偏好:结论:与癌症及其治疗相关的化疗感官变化会影响患者的营养摄入、与食物相关的行为、生活质量和治疗反应。化疗相关化疗感官变化的患者需要专门的营养治疗,以增加他们与饮食相关的愉悦感。作为营养评估的一部分,应定期对化感改变进行评估。
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引用次数: 0
Patient decision-making in left ventricular assist devices for destination therapy. 左心室辅助装置目的地治疗的患者决策。
Pub Date : 2024-03-02 DOI: 10.12968/ijpn.2024.30.3.108
Megan L Morrison

Background: Heart failure is a common life-limiting disease. A destination therapy for people who will not have a heart transplant is a left ventricular assist device.

Aims: To discover how patients who have a left ventricular assist device for destination therapy make decisions about their healthcare after implantation of the device.

Methods: A descriptive qualitative design with semi-structured, in-depth interviews with 11 participants who are living with a left ventricular assist device for destination therapy.

Findings: People with a left ventricular assist device felt they had 'no choice' when making decisions about their healthcare.

Conclusion: Engaging with patients to contemplate present and future healthcare decisions is a complex process that includes cognitive processes within the patient. Clinicians need to be aware that a gap may occur between what is said and what is heard in communication.

背景:心力衰竭是一种常见的危及生命的疾病:心力衰竭是一种常见的危及生命的疾病。目的:了解植入左心室辅助装置的患者在植入该装置后如何决定他们的医疗保健:方法:采用描述性定性设计,对11名使用左心室辅助装置进行目的地治疗的参与者进行半结构化深入访谈:使用左心室辅助装置的患者认为他们在做出医疗决定时 "别无选择":与患者一起考虑当前和未来的医疗决策是一个复杂的过程,其中包括患者的认知过程。临床医生需要意识到,在沟通过程中,所说与所听之间可能存在差距。
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引用次数: 0
The effect of a mobile application for patients living with gynaecological cancer on their physical and psychosocial adaptation. 针对妇科癌症患者的移动应用程序对其身体和心理适应的影响。
Pub Date : 2024-03-02 DOI: 10.12968/ijpn.2024.30.3.128
Okan Vardar, Pınar Serçekuş

Background: Education of patients with cancer and patient self-management allow better clinical outcomes using e-health or mobile health applications.

Aims: To develop a mobile application to increase the physical and psychosocial adaptation for patients with gynecological cancer who are receiving chemotherapy and to investigate the effectiveness of the mobile application.

Methods: This study was planned as a parallel, single-blind, pre-post test randomised controlled experimental study in which two groups (intervention-control) will be compared. A total of 52 gynecological cancer patients were planned to be included in the study.

Findings: This study is in the protocol stage. Therefore, the results of the study have not yet been reported.

Conclusions: Evidence-based information within JineOnkolojik Destek provides rich data on coping with chemotherapy. In addition, the visual and auditory elements, real patient stories and videos, and the ability to ask questions and receive counselling from the research team can positively affect the physical and psychosocial health of the cancer survivors.

背景目的:开发一款移动应用程序,以提高正在接受化疗的妇科癌症患者的身体和心理适应能力,并调查该移动应用程序的有效性:本研究计划开展一项平行、单盲、前-后测试随机对照实验研究,对两组(干预组和对照组)进行比较。研究共计划纳入 52 名妇科癌症患者:研究结果:这项研究还处于方案阶段。结论:JineOnk 的基于证据的信息可以帮助我们更好地了解妇科癌症患者:JineOnkolojik Destek 中以证据为基础的信息为应对化疗提供了丰富的数据。此外,视觉和听觉元素、真实的患者故事和视频,以及提问和接受研究团队咨询的能力,都能对癌症幸存者的身体和心理健康产生积极影响。
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引用次数: 0
Holistic assessment. 整体评估。
Pub Date : 2024-02-02 DOI: 10.12968/ijpn.2024.30.2.55
Sonja McIlfatrick
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引用次数: 0
The experience of cancer pain in South African patients. 南非病人的癌痛经历。
Pub Date : 2024-02-02 DOI: 10.12968/ijpn.2024.30.2.79
Rowan Robinson, Johanna E Maree

Background: Most people with cancer experience pain caused by the disease and treatment.

Aims: To describe the experience of cancer pain of South African patients.

Methods: A qualitative descriptive design was used; 20 (n=20) participants were purposively selected and in-depth interviews were conducted. Inductive content analysis was used to analyse the data.

Findings: Two themes and five subthemes were identified. The themes were pain as a unique multi-dimensional experience, and that the unmet needs of the patient can influence their experience of pain.

Conclusion: The participants experienced total pain. Emotional pain, enhanced by loneliness and unmet information needs was experienced, and this was felt by participants as the worst kind of pain. Pain was mediated by means of medication that did not work well for all, support, compassionate care and hope that God would cure them and take the pain away.

Recommendation: A person-centred approach to pain management is needed, especially in diverse countries, such as South Africa, to better understand the complexity and influence of culture, language and education on the pain experience and to guide individual pain management.

背景:大多数癌症患者都会因疾病和治疗而感到疼痛:目的:描述南非癌症患者的癌痛经历:方法:采用定性描述设计;有目的性地选择 20 名参与者,并进行深入访谈。采用归纳内容分析法对数据进行分析:结果:确定了两个主题和五个次主题。这些主题是:疼痛是一种独特的多维体验,病人未得到满足的需求会影响他们对疼痛的体验:结论:参与者经历了全面的疼痛。参与者体验到了因孤独和信息需求得不到满足而加剧的情感痛苦,这种痛苦是最严重的痛苦。疼痛是通过药物、支持、同情和希望上帝能治愈他们并消除疼痛来缓解的:建议:需要采取以人为本的疼痛管理方法,尤其是在南非这样的多元化国家,以便更好地了解文化、语言和教育对疼痛体验的复杂性和影响,并指导个人的疼痛管理。
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引用次数: 0
Research Roundup. 研究综述。
Pub Date : 2024-02-02 DOI: 10.12968/ijpn.2024.30.2.100

Synopses of a selection of recently published research articles of relevance to palliative care.

近期发表的与姑息关怀相关的研究文章选摘。
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引用次数: 0
Intention to sign an advance directive among nephrology medical staff and its related factors. 肾内科医务人员签署预先医疗指示的意向及其相关因素。
Pub Date : 2024-02-02 DOI: 10.12968/ijpn.2024.30.2.57
Li Fang, Li-Ping Hsiao, Shu-Hui Fang

Background: Advance care planning enables people to record their future health and care wishes and appoint someone as an advocate. An advance directive can be made in the event that a person is incapacitated, so that their wishes are still upheld. The beliefs of the nephrology team might affect patients' choices and willingness to sign an advance directive. To increase the number of dialysis patients who have signed an advance directive, it is necessary to educate the nephrology medical staff.

Aim: To explore the intention to sign an advance directive and its related factors among nephrology medical staff.

Methods: A cross-sectional and correlational design was used. This study recruited 160 nephrology medical staff. Data were analysed by using the Statistical Package for Social Science 21.0 for Windows.

Findings: The results found that the longer someone has worked as part of the nephology medical staff, the more knowledgeable they were about an advance directive. This led to them being more likely to want to sign an advance directive for themselves.

Conclusion: In order to improve the knowledge and awareness of advance directives among nephrology medical staff, hospital managers should provide continuing education on this topic.

背景:预先护理规划使人们能够记录自己未来的健康和护理愿望,并指定某人作为代言人。预先医疗指示可以在患者丧失行为能力的情况下做出,这样他们的意愿仍然可以得到支持。肾内科团队的理念可能会影响患者的选择和签署预先医疗指示的意愿。为了增加签署预先医疗指示的透析患者人数,有必要对肾内科医务人员进行教育。目的:探讨肾内科医务人员签署预先医疗指示的意向及其相关因素:方法:采用横断面和相关性设计。本研究招募了 160 名肾内科医务人员。数据采用社会科学统计软件包 21.0 for Windows 进行分析:结果发现,肾内科医务人员的工作时间越长,他们对预先医疗指示的了解就越多。这使得他们更愿意为自己签署预先医疗指示:为了提高肾内科医务人员对预先医疗指示的了解和认识,医院管理者应提供有关这一主题的继续教育。
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引用次数: 0
Nursing interventions for dyspnoea management among inpatients with cancer in palliative care. 姑息治疗癌症住院患者呼吸困难管理的护理干预措施。
Pub Date : 2024-02-02 DOI: 10.12968/ijpn.2024.30.2.87
Johanna Kero, Jaana-Maija Koivisto, Anne Kuusisto, Pauliina Kesonen, Elina Haavisto

Background: Dyspnoea, a commonly reported symptom among patients with cancer, necessitates the need for appropriate non-pharmacological interventions for its management and suitable assessment scales.

Aims: To explore the nursing interventions and assessment scales for managing dyspnoea in patients with cancer receiving palliative care.

Methods: Systematic review. Five databases (CINAHL Complete, PubMed, Web of Science, Scopus and the Cochrane Central Register of Controlled Trials) were searched, and seven studies were identified. Only studies that comprised randomised controlled trials (RCTs), non-randomised controlled trials or quasi-experimental settings were included.

Findings: Nursing interventions, that support a patient's physical breathing and mental functioning, are effective in managing dyspnoea. It is crucial to use both subjective and physical assessment methods to accurately measure the outcomes of these interventions.

Conclusion: These interventions have been proven to be effective, with outcomes centred on changes in physiological measurements and patients' subjective expressions.

背景:目的:探讨对接受姑息治疗的癌症患者进行呼吸困难管理的护理干预措施和评估量表:方法:系统回顾。检索了五个数据库(CINAHL Complete、PubMed、Web of Science、Scopus 和 Cochrane Central Register of Controlled Trials),确定了七项研究。仅包括随机对照试验 (RCT)、非随机对照试验或准实验环境的研究:研究结果:支持患者身体呼吸和心理功能的护理干预能有效控制呼吸困难。使用主观和身体评估方法来准确衡量这些干预措施的效果至关重要:这些干预措施已被证明是有效的,其结果主要集中在生理测量和患者主观表达的变化上。
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引用次数: 0
Exploring the experiences of adults adjustment when living with a primary brain tumour. 探索成年人在患有原发性脑肿瘤时的适应经验。
Pub Date : 2024-02-02 DOI: 10.12968/ijpn.2024.30.2.66
Brian Nyatanga, Rosemary Wormington, Lucy Wilkinson

Background: Brain tumours are the ninth most common cancer in the UK, and account for 3% of all new cancer cases.

Aim: To understand the impact of living with a primary brain tumour and identify adjustments that patients make in order to cope with their condition. This also encomapsses the impact of interventions like support groups in terms of care and therapeutic value.

Methods: After ethical approval, a qualitative approach was employed, which set out to interview 11 adult patients living with primary brain tumours. The interviews were conducted face-to-face and were semi-structured interviews. Interview data were coded and thematic analysis used.

Findings: Four themes were developed, namely: adjustment; loss of independence; support; and health and symptoms.

Conclusion: Living with a brain tumour leads to an inevitable adjustment to maintain day-to-day life. The findings suggest there are a number of adjustments that patients make to maintain some independence. Many people valued the support they received from support groups, while others felt that the support they received was inadequate. The mandatory loss of a driving licence for people in the UK was the most concerning. Its removal led to a loss of confidence and made them immediately dependent on others for travel. While support was provided, there was an apparent omission in the provision of psychological support. Oncology and palliative care nurses are in key positions to explore psychological concerns and offer tailored support.

背景:脑肿瘤是英国第九大常见癌症,占所有新发癌症病例的 3%:目的:了解原发性脑肿瘤对患者生活的影响,并确定患者为应对病情而做出的调整。目的:了解原发性脑肿瘤对患者生活的影响,确定患者为应对病情而做出的调整,同时评估支持小组等干预措施在护理和治疗价值方面的影响:在获得伦理批准后,我们采用了定性方法,对 11 名成年原发性脑肿瘤患者进行了访谈。访谈以半结构化访谈的形式面对面进行。对访谈数据进行了编码,并采用了主题分析法:结果:形成了四个主题,即:适应;丧失独立性;支持;健康和症状:结论:脑肿瘤患者在生活中不可避免地要进行调整,以维持日常生活。研究结果表明,为了保持一定的独立性,患者需要做出一些调整。许多人重视从支持小组获得的支持,而其他人则认为他们获得的支持不够。最令人担忧的是英国人被强制吊销驾驶执照。取消驾照使他们丧失了信心,并使他们在出行时立即依赖他人。虽然提供了支持,但在提供心理支持方面显然存在疏漏。肿瘤学和姑息治疗护士在探究心理问题和提供有针对性的支持方面处于关键地位。
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引用次数: 0
Spiritual care models of patients living with cancer in Taiwan. 台湾癌症患者的精神关怀模式。
Pub Date : 2024-01-02 DOI: 10.12968/ijpn.2024.30.1.40
Ling-Chun Tseng, Ya-Lie Ku, Chun-Hsiang Lee, Chin Tang Tu

Background: Psychological, social and spiritual needs are often unmet during the care of patients with cancer in Taiwan.

Aim: The purpose of this study was to confirm the spiritual care models including the spiritual distress symptoms (SDS), spiritual distress symptoms interventions (SDSI), and spiritual distress outcomes criteria (SDOC) of patients with cancer in the initial, relapse and terminal stages.

Method: This cross-sectional survey collected data from 150 professional nurses about their perceptions of the SDS, SDSI and SDOC for patients with cancer.

Results: The significant total effects of SDS on SDOC by SDSI of the patients with cancer in the initial, relapse and terminal stages were found. Additionally, the direct effects of SDS on SDOC by SDSI of the patients with cancer from the initial, relapse to terminal stage were gradually enhanced.

Conclusions: The relationship between spiritual distress symptoms, interventions and outcomes was significantly higher from the initial to relapse state until at the end of life, based on the perceptions of 150 professional nurses.

背景:目的:本研究旨在确认癌症初期、复发和晚期患者的精神关怀模式,包括精神痛苦症状(SDS)、精神痛苦症状干预(SDSI)和精神痛苦结果标准(SDOC):这项横断面调查收集了 150 名专业护士对癌症患者精神困扰症状(SDS)、精神困扰症状干预(SDSI)和精神困扰结果标准(SDOC)的看法:结果:发现SDS对初治期、复发期和晚期癌症患者的SDOC和SDSI有明显的总体影响。此外,从初期、复发期到晚期,SDS 对癌症患者 SDSI 的 SDOC 的直接影响逐渐增强:根据 150 名专业护士的看法,从初期到复发直至临终阶段,精神痛苦症状、干预措施和结果之间的关系显著增强。
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引用次数: 0
期刊
International journal of palliative nursing
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