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An evaluation of an online education programme to improve nurses' ability to support carers to use subcutaneous medicines. 一项在线教育计划的评估,该计划旨在提高护士支持护理人员使用皮下药物的能力。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.538
Deborah Parker, Liz Reymond, Karen Cooper, Jennifer Tieman, Serra Ivynian

Background: Most Australians say they wish to die at home, but many are admitted to inpatient facilities for symptom management. Caring@home resources can be used to support informal carers to manage breakthrough symptoms safely using subcutaneous medicines. Nurses require education about how to teach informal carers to use these resources.

Aim: To evaluate the effectiveness and relevance of an online education programme for registered nurses (RNs) about using the caring@home resources.

Methods: Nurses must complete an online survey prior to the commencement of the online education programme and again upon completion to assess their change in skills, knowledge, confidence and attitudes of the RNs. T-tests were conducted to compare average pre- and post-education scores.

Findings: The knowledge, skills and confidence of RNs to teach carers improved significantly following the completion of an education programme. There was a significant change in attitude, meaning that the perceived benefit of teaching informal carers to give subcutaneous medicines improved. All reported they would use the resources in their clinical practice.

Conclusion: The online education programme is an effective and cost-efficient strategy to educate nurses to support informal carers to help manage breakthrough symptoms using subcutaneous medicines.

背景:大多数澳大利亚人说他们希望死在家里,但许多人被送进住院设施进行症状管理。Caring@home资源可用于支持非正规护理人员使用皮下药物安全管理突破性症状。护士需要接受教育,学习如何教非正规护理人员使用这些资源。目的:评估注册护士(RNs)使用caring@home资源的在线教育计划的有效性和相关性。方法:护士必须在在线教育计划开始前完成一项在线调查,并在完成后再次评估他们对注册护士的技能,知识,信心和态度的变化。采用t检验比较教育前和教育后的平均分数。研究结果:完成教育计划后,注册护士的知识、技能和信心都有了显著提高。态度发生了显著变化,这意味着教导非正式护理人员给予皮下药物的感知效益得到了改善。所有人都表示他们将在临床实践中使用这些资源。结论:在线教育项目是教育护士支持非正式护理人员使用皮下药物帮助管理突破性症状的有效且具有成本效益的策略。
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引用次数: 0
End-of-life care in the patient's home. 病人家中的临终关怀。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.528
Pretty Manyimo, Kay de Vries

Background: Providing end-of-life care in a patient's home is challenging, especially if the nurse is from a different ethnic background from the patient. Evidence shows that people from an ethnic minority background often experience poorer end-of-life care due to care providers not understanding their care needs.

Aim: To explore the experiences of community nursing staff caring for patients with an ethnic minority background at the end of their life.

Method: Using a qualitative descriptive approach, 16 semi-structured interviews were conducted and the data was thematically analysed.

Finding: Participants dealt with large tight-knit families, paternalism and controlling behaviours. There was a mistrust of Western palliative medicine. Language barriers and challenges were faced by the nursing staff, resulting in difficult conversations with the families. Different levels of the nursing staff's spiritual/cultural competencies were also identified. The COVID-19 pandemic intensified the challenges.

Conclusion: This research has shed light on the challenges of individualising end-of-life care in a culturally diverse community in the UK. The nursing staff's cultural/spiritual competencies were challenged.

背景:在病人家中提供临终关怀是具有挑战性的,特别是如果护士来自不同的种族背景的病人。有证据表明,少数族裔背景的人往往经历较差的临终关怀,因为护理提供者不了解他们的护理需求。目的:探讨社区护理人员对少数民族临终病人的护理经验。方法:采用定性描述方法,进行16次半结构化访谈,并对数据进行主题分析。研究发现:参与者面对的是关系紧密的大家庭、家长式作风和控制行为。人们对西方姑息疗法存有不信任。护理人员面临语言障碍和挑战,导致难以与家属交谈。还确定了护理人员的精神/文化能力的不同水平。2019冠状病毒病大流行加剧了这些挑战。结论:这项研究揭示了在英国一个文化多元化的社区中个性化临终关怀的挑战。护理人员的文化/精神能力受到挑战。
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引用次数: 0
Changes in hair cortisol levels and cognitive function among older patients in palliative care. 姑息治疗中老年患者头发皮质醇水平和认知功能的变化。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.556
Rosana Ribić, Tina Košanski, Marijana Neuberg, Tomislav Meštrović

This monocentric pilot study aimed to assess whether there are significant changes in hair cortisol levels and cognitive functioning at baseline and after 3 weeks of hospitalisation in older palliative care patients, and to ascertain whether hair cortisol can be used as a pertinent stress biomarker in this population. Hair cortisol concentration levels were measured with the use of an enzyme-linked immunosorbent assay (ELISA), while cognitive functions were assessed by using 16-point Mini-Mental State Examination 2 (MMSE-2): brief version. A statistically significant difference in mean hair cortisol levels at the start of the hospitalisation was found when compared to the 3-week follow-up (p=0.007). No statistically significant differences were observed regarding MMSE-2 scores using the same time points. These results have direct clinical implications and set the stage for further research endeavours in the field.

这项单中心试点研究旨在评估老年姑息治疗患者在基线和住院3周后头发皮质醇水平和认知功能是否有显著变化,并确定头发皮质醇是否可以用作该人群的相关应激生物标志物。使用酶联免疫吸附试验(ELISA)测量毛发皮质醇浓度水平,使用16点迷你精神状态检查2 (MMSE-2):简要版本评估认知功能。与3周随访相比,住院开始时平均头发皮质醇水平有统计学显著差异(p=0.007)。在相同的时间点上,MMSE-2得分没有统计学上的显著差异。这些结果具有直接的临床意义,并为该领域的进一步研究奠定了基础。
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引用次数: 0
Research Roundup. 研究综述。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.562
Laura Green

Synopses of a selection of recently published research articles of relevance to palliative care.

最近发表的与姑息治疗相关的研究文章的摘要。
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引用次数: 0
Effectiveness of home-based palliative care programmes for older people and their family caregivers in Thailand. 泰国老年人及其家庭照顾者家庭姑息治疗规划的有效性。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.518
Kanyanat Supaporn, Sang-Arun Isaramalai, Uayart Chuchuen, Patcharin Manee

Background: People in Thailand receiving palliative care at home can have complex needs and this means that the family caregiver can have a high burden of care.

Aim: To assess the impact of a nursing care activities for a home-based palliative care programme (NHBPC) on the care burden among family caregivers and the care quality in older people at the palliative care stage.

Methods: This quasi-experimental repeated measure study was used to investigate the effects of the nursing care activities for a NHBPC programme.

Results: The mean caregiving burden and care quality scores in the experimental and control groups at post-test and 2-weeks follow-up showed significant differences (p<.05). In addition, improvement was not seen in the control group.

Conclusion: The NHBPC programme significantly improved caregiving burden and quality of care in Thai older people and their family caregiver. This confirms that the NHBPC programme plays a crucial role in helping them to improve quality of life.

背景:在泰国,在家接受姑息治疗的人可能有复杂的需求,这意味着家庭照护者可能有很高的照护负担。目的:评估以家庭为基础的姑息治疗计划(NHBPC)的护理活动对家庭照顾者的护理负担和老年人姑息治疗阶段的护理质量的影响。方法:采用准实验重复测量法研究护理活动对新生儿健康护理计划的影响。结果:实验组和对照组在测试后和2周随访时的平均照护负担和照护质量得分有显著差异(p)结论:NHBPC方案显著改善了泰国老年人及其家庭照护者的照护负担和照护质量。这证实了NHBPC方案在帮助他们提高生活质量方面起着至关重要的作用。
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引用次数: 0
Only the dead have seen the end of war. 只有死者才能看到战争的结束。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.517
Dion Smyth
Always Lost is a unique collection of photographs, poems, and prose that recognizes the sacrifices of our American troops in Iraq and Afghanistan. Retired Marine Corps Major Kevin Burns titled the exhibition after an observation by American writer Gertrude Stein: “War is never fatal but always lost. Always lost.” A sacred space in which to contemplate the personal and collective costs of war, Always Lost features the Wall of the Dead, photos and names of nearly 6,000 American service members who have perished in the Middle East since September 11, 2001; the literary work they inspired; Pulitzer Prize-winning combat photos by David Leeson and Cheryl Diaz Meyer (The Dallas Morning News); interviews and portraits of Iraq/Afghanistan student-veterans from Western Nevada College; and the poetry and profile of SPC Noah Pierce, who took his own life after serving two tours in Iraq. Your donation will support the effort to keep the Wall of the Dead current and to send Always Lost throughout the U.S. to colleges, universities, and veterans’ groups who are interested in hosting the exhibit. The exhibition’s national tour began at the University of Wisconsin, Marinette in fall 2010 and is currently scheduled through mid-2013. Always Lost has been invited to Washington D.C. by members of the U.S. Senate.
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引用次数: 1
Palliative care: economic challenges for researchers. 缓和医疗:研究人员面临的经济挑战。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.548
Joana C Vieira

The economic challenges for researchers in palliative care is an emerging and challenging topic. Knowing where, how and how much is spent is fundamental for palliative care (PC) provision to be increasingly efficient and with lower costs. To accomplish this, there are three important factors to consider: early access to PC; specialised PC using standardised procedures and informal and home-based PC. Beyond costs, ethical aspects should always be present when this care is being provided in its different forms, locations and contexts. For those who want to study the economic challenges in PC, they need to comprehend the complexity of them, since they will always come from a careful articulation between ethics, the person´s needs, the cost of the care and who these costs are charged to.

姑息治疗研究人员面临的经济挑战是一个新兴的、具有挑战性的话题。了解在哪里、如何以及花了多少钱,是提高姑息治疗(PC)提供效率和降低成本的基础。要做到这一点,需要考虑三个重要因素:尽早进入PC平台;使用标准化程序的专业PC和非正式的家庭PC。除了费用之外,在以不同形式、地点和环境提供这种护理时,应始终考虑伦理方面的问题。对于那些想要研究PC经济挑战的人来说,他们需要理解它们的复杂性,因为它们总是来自道德、个人需求、护理成本以及这些成本向谁收费之间的仔细衔接。
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引用次数: 0
Preferred place of death challenges the allocation of health resources in Iran. 首选死亡地点对伊朗卫生资源的分配提出了挑战。
Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.553
Armin Fereidouni, Maryam Rassouli, Maryam Karami, Maryam Pakseresht, Salman Barasteh
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引用次数: 0
Nursing students experiences of end-of-life care. 护理专业学生的临终关怀经历。
Pub Date : 2023-10-02 DOI: 10.12968/ijpn.2023.29.10.466
Kerry Jones, Jan Draper, Nerys Bolton

Background: Undergraduate nursing students spend a significant amount of time in clinical placements where they are involved in care at the end of a person's life and care after death. While their role is to provide compassionate care, some students feel wholly unprepared.

Aims: The aim of this qualitative study was to explore student nurses' experiences of care in death, dying and post death care, and to explore how students can be better prepared to provide such care.

Methods: This is a qualitative descriptive study that is concerned with the subjective reality of participant's experiences.

Findings: Six themes were developed from the analysis: first encounters with death and dying; preparedness; mentoring and support received; the caring role; striving to cope; working with families and working through COVID-19.

Conclusion: Students described their experience of placements in end-of-life care as challenging, yet were also able to adopt ways to develop as compassionate practitioners.

背景:护理本科生在临床实习中花费了大量时间,参与临终关怀和死亡后护理。虽然他们的职责是提供富有同情心的照顾,但一些学生感到完全没有准备。目的:本定性研究的目的是探索实习护士在死亡、临终和死后护理中的护理经验,并探索学生如何更好地准备提供此类护理。方法:这是一项定性描述性研究,关注参与者经历的主观现实。研究结果:分析得出了六个主题:第一次遭遇死亡和垂死;准备;获得辅导和支持;关爱角色;努力应付;与家人一起工作和在COVID-19中工作。结论:学生们描述了他们在临终关怀中的安置经历,认为这很有挑战性,但他们也能够采取方法发展成为富有同情心的从业者。
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引用次数: 0
Spiritual care competence, moral distress and job satisfaction among Iranian oncology nurses. 伊朗肿瘤科护士的精神护理能力、道德困境和工作满意度。
Pub Date : 2023-10-02 DOI: 10.12968/ijpn.2023.29.10.487
Arpi Manookian, Javad Nadali, Shahrzad Ghiyasvandian, Kathryn Weaver, Shima Haghani, Anahita Divani

Background: Nurses have a crucial role in identifying spiritual needs and providing spiritual care to patients living with cancer.

Aim: This study evaluated Iranian oncology nurses' spiritual care competence and its relationship with job satisfaction and moral distress.

Method: This cross-sectional study was conducted on 280 Iranian oncology nurses in 2020 using four questionnaires: demographic questionnaires, the Spiritual Care Competence Questionnaire (SCCQ), the Minnesota Job Satisfaction Questionnaire (MSQ) and the nurses' Moral Distress Questionnaire (MDS-R).

Findings: The mean scores indicated a medium to high Spiritual Care Competence (SCC), mild to moderate moral distress and high job satisfaction. There was a positive correlation between SCC and external job satisfaction (r=184, p<0.05) and a negative correlation between SCC and moral distress (r=-0.356, p<0.05).

Conclusions: SCC diminishes with decreasing external job satisfaction and increasing moral distress. To improve the SCC of nurses working with patients living with cancer, it is recommended that nursing managers and policymakers revise the organisational policies to tackle the obstacles and consider the related factors to provide an ethical climate, implement quality spiritual care and increase job satisfaction.

背景:护士在识别精神需求和为癌症患者提供精神护理方面发挥着至关重要的作用。目的:评价伊朗肿瘤科护士的精神护理能力及其与工作满意度和道德困境的关系。方法:这项横断面研究于2020年对280名伊朗肿瘤科护士进行,使用四份问卷:人口学问卷、精神护理能力问卷(SCCQ)、明尼苏达州工作满意度问卷(MSQ)和护士道德痛苦问卷(MDS-R),轻度至中度的道德困扰和较高的工作满意度。SCC与外部工作满意度呈正相关(r=184,P结论:SCC随着外部工作满意度的降低和道德压力的增加而减少。为了改善癌症患者护理人员的SCC,建议护理经理和决策者修订组织政策以解决障碍,并考虑相关因素,以提供道德氛围,实施高质量的精神护理提高工作满意度。
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引用次数: 0
期刊
International journal of palliative nursing
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