首页 > 最新文献

International journal of palliative nursing最新文献

英文 中文
The role of nutrition in palliative care nursing: a scoping review. 营养在姑息治疗护理中的作用:范围审查。
Pub Date : 2025-11-02 DOI: 10.12968/ijpn.2025.0028
Valentina Perria, Elisabetta Pizzileo, Rosalba Pizzolorusso, Giuseppina Pipitone, Federico Cortese

Background: Nutrition in palliative care is vital for improving the quality of life for chronically ill people. In this context, nurses aid in bridging the gap between palliative care and nutrition by furthering their knowledge and competencies and, ultimately, providing quality care to patients.

Aim: This study aims to analyse nurses' attitudes and knowledge on nutrition in the palliative setting.

Methods: This scoping review was conducted by following Joanna Briggs Institute (JBI) methodology and PRISMA-ScR guidelines during the months of May-June 2024.

Results: Nurses can promote high-quality holistic care through ongoing education. Nutritional interventions, evaluation scales and tools and symptom management, can prevent malnutrition and reduce complications. Nurses and key members of the care team are responsible for assessing nutritional needs, managing symptoms and providing personalised interventions to enhance comfort and reduce distress.

Conclusions: In conclusion, a patient-centered approach with evidence-based nutritional interventions ensures dignified and compassionate care during this period of care.

背景:姑息治疗中的营养对改善慢性病患者的生活质量至关重要。在这种情况下,护士通过提高知识和能力,帮助弥合姑息治疗和营养之间的差距,并最终为患者提供高质量的护理。目的:本研究旨在分析姑息治疗护理人员对营养的态度和知识。方法:在2024年5 - 6月期间,采用乔安娜布里格斯研究所(JBI)的方法和PRISMA-ScR指南进行范围审查。结果:护士可以通过持续教育促进高质量的整体护理。营养干预措施、评估量表和工具以及症状管理可以预防营养不良并减少并发症。护士和护理小组的主要成员负责评估营养需求、管理症状和提供个性化干预措施,以提高舒适度和减少痛苦。结论:总之,以患者为中心的循证营养干预措施可确保在护理期间提供有尊严和富有同情心的护理。
{"title":"The role of nutrition in palliative care nursing: a scoping review.","authors":"Valentina Perria, Elisabetta Pizzileo, Rosalba Pizzolorusso, Giuseppina Pipitone, Federico Cortese","doi":"10.12968/ijpn.2025.0028","DOIUrl":"10.12968/ijpn.2025.0028","url":null,"abstract":"<p><strong>Background: </strong>Nutrition in palliative care is vital for improving the quality of life for chronically ill people. In this context, nurses aid in bridging the gap between palliative care and nutrition by furthering their knowledge and competencies and, ultimately, providing quality care to patients.</p><p><strong>Aim: </strong>This study aims to analyse nurses' attitudes and knowledge on nutrition in the palliative setting.</p><p><strong>Methods: </strong>This scoping review was conducted by following Joanna Briggs Institute (JBI) methodology and PRISMA-ScR guidelines during the months of May-June 2024.</p><p><strong>Results: </strong>Nurses can promote high-quality holistic care through ongoing education. Nutritional interventions, evaluation scales and tools and symptom management, can prevent malnutrition and reduce complications. Nurses and key members of the care team are responsible for assessing nutritional needs, managing symptoms and providing personalised interventions to enhance comfort and reduce distress.</p><p><strong>Conclusions: </strong>In conclusion, a patient-centered approach with evidence-based nutritional interventions ensures dignified and compassionate care during this period of care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 11","pages":"555-561"},"PeriodicalIF":0.0,"publicationDate":"2025-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145643892","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing placement capacity and increasing knowledge and confidence: a children's hospice e-learning placement. 提高安置能力,增加知识和信心:儿童安宁疗护电子学习安置。
Pub Date : 2025-11-02 DOI: 10.12968/ijpn.2025.0006
Jayne Price, Andrea Cockett, Elizabeth Crighton, Dawn Baldock, Geraldine Sheedy

Background: Preparing nursing students to care for children with a life-limiting illness is challenging for two main reasons: misconceptions about the breadth of services provided by a children's hospice and limited placement capacity for such services.

Aims: This paper examines the development and value of a virtual children's hospice placement for children's nursing students and learning disability nursing students.

Methods: A total of 40 nursing students undertook a week's virtual placement in a children's hospice. The innovative virtual placement used a national evidence-based model-Peer Enhanced e-Placement (PEEP) within a UK children's hospice. It was evaluated through pre- and post-placement surveys.

Findings: Findings suggest that this e-placement, developed collaboratively between a children's hospice and a higher education institution enhanced student knowledge, skills and confidence.

Conclusion: E placements, such as the one described here, can increase placement capacity alongside enhancing students' knowledge, skills and confidence.

背景:准备护理学生照顾患有限制生命疾病的儿童具有挑战性,主要有两个原因:对儿童临终关怀所提供的服务广度的误解以及此类服务的安置能力有限。目的:探讨虚拟儿童安宁疗护的发展与价值,以供儿童护生与学习障碍护生使用。方法:共有40名护生在儿童临终关怀医院进行了为期一周的虚拟实习。创新的虚拟安置在英国儿童临终关怀医院使用了一种基于国家证据的模型——同伴增强电子安置(PEEP)。它是通过安置前和安置后的调查来评估的。研究结果:研究结果表明,儿童安宁疗护机构与高等教育机构合作开发的电子安置项目,提高了学生的知识、技能和信心。结论:E实习,如这里描述的,可以增加实习能力,同时提高学生的知识,技能和信心。
{"title":"Enhancing placement capacity and increasing knowledge and confidence: a children's hospice e-learning placement.","authors":"Jayne Price, Andrea Cockett, Elizabeth Crighton, Dawn Baldock, Geraldine Sheedy","doi":"10.12968/ijpn.2025.0006","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0006","url":null,"abstract":"<p><strong>Background: </strong>Preparing nursing students to care for children with a life-limiting illness is challenging for two main reasons: misconceptions about the breadth of services provided by a children's hospice and limited placement capacity for such services.</p><p><strong>Aims: </strong>This paper examines the development and value of a virtual children's hospice placement for children's nursing students and learning disability nursing students.</p><p><strong>Methods: </strong>A total of 40 nursing students undertook a week's virtual placement in a children's hospice. The innovative virtual placement used a national evidence-based model-Peer Enhanced e-Placement (PEEP) within a UK children's hospice. It was evaluated through pre- and post-placement surveys.</p><p><strong>Findings: </strong>Findings suggest that this e-placement, developed collaboratively between a children's hospice and a higher education institution enhanced student knowledge, skills and confidence.</p><p><strong>Conclusion: </strong>E placements, such as the one described here, can increase placement capacity alongside enhancing students' knowledge, skills and confidence.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 11","pages":"548-554"},"PeriodicalIF":0.0,"publicationDate":"2025-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145643839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Newly diagnosed oncology patients' perceptions of 'hope to cure': a qualitative study. 新诊断肿瘤患者对“希望治愈”的认知:一项定性研究。
Pub Date : 2025-11-02 DOI: 10.12968/ijpn.2025.0038
Anahita Divani, Hooman Shahsavari

Background: In oncology, hope and cure are deeply linked. Hope helps patients endure treatment uncertainty, while cure remains the ultimate goal. Yet cancer diagnosis and treatment reshape how patients perceive this link as 'hope for cure'.

Aims: This study explores how newly diagnosed oncology patients perceive 'hope for cure' during treatment phases.

Methods: A descriptive qualitative research design was employed. In-depth, semi-structured interviews were carried out with 13 participants, who were chosen through purposive sampling. The collected data were then examined using conventional content analysis.

Findings: Four main categories and were identified labeled as 'embracing independence', 'revolutionising mindset', 'support network' and 'nurturing self-belief'.

Conclusion: This study explores how newly diagnosed cancer patients view 'hope for a cure' through independence, resilience, self-belief and support-showing hope as an active process built through daily experiences, not just medical outcomes.

背景:在肿瘤学中,希望和治疗是紧密相连的。希望帮助病人忍受治疗的不确定性,而治愈仍然是最终目标。然而,癌症诊断和治疗重塑了患者对这种联系的看法,即“治愈的希望”。目的:本研究探讨新诊断的肿瘤患者在治疗阶段如何感知“治愈的希望”。方法:采用描述性定性研究设计。通过有目的的抽样,对13名参与者进行了深入的半结构化访谈。然后使用传统的内容分析来检查收集的数据。研究发现:他们主要分为四个类别,分别是“拥抱独立”、“改变思维方式”、“支持网络”和“培养自信”。结论:本研究探讨了新诊断的癌症患者如何通过独立、韧性、自信和支持来看待“治愈的希望”——将希望表现为一个通过日常经历建立起来的积极过程,而不仅仅是医疗结果。
{"title":"Newly diagnosed oncology patients' perceptions of 'hope to cure': a qualitative study.","authors":"Anahita Divani, Hooman Shahsavari","doi":"10.12968/ijpn.2025.0038","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0038","url":null,"abstract":"<p><strong>Background: </strong>In oncology, hope and cure are deeply linked. Hope helps patients endure treatment uncertainty, while cure remains the ultimate goal. Yet cancer diagnosis and treatment reshape how patients perceive this link as 'hope for cure'.</p><p><strong>Aims: </strong>This study explores how newly diagnosed oncology patients perceive 'hope for cure' during treatment phases.</p><p><strong>Methods: </strong>A descriptive qualitative research design was employed. In-depth, semi-structured interviews were carried out with 13 participants, who were chosen through purposive sampling. The collected data were then examined using conventional content analysis.</p><p><strong>Findings: </strong>Four main categories and were identified labeled as 'embracing independence', 'revolutionising mindset', 'support network' and 'nurturing self-belief'.</p><p><strong>Conclusion: </strong>This study explores how newly diagnosed cancer patients view 'hope for a cure' through independence, resilience, self-belief and support-showing hope as an active process built through daily experiences, not just medical outcomes.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 11","pages":"534-546"},"PeriodicalIF":0.0,"publicationDate":"2025-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145643894","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feasibility and outcomes of point-of-care ultrasound training for registered nurses in palliative care. 姑息护理注册护士即时超声培训的可行性和效果。
Pub Date : 2025-11-02 DOI: 10.12968/ijpn.2025.0031
Barbara Ballantyne, Danika Lavoie, Rebecca Chau, Matthew Bertrand, Chidubem Ekpereamaka Okechukwu, Mercy Kingsley-Emereuwa, Zoey Yao, Christine Pun

Background: Point-of-care ultrasound (PoCUS) is increasingly used in palliative care for bedside assessment and symptom management. Despite their integral role in patient care registered nurses (RNs) rarely receive training or use PoCUS in practice.

Aims: To evaluate the feasibility of training palliative care RNs to perform PoCUS exams and expand access to bedside imaging.

Methods: RNs at a local residential hospice and outpatient clinic were trained in PoCUS for urinary retention, ascites and IV access through didactic and hands-on sessions. Data included scan logs, satisfaction surveys and RN feedback.

Findings: RNs successfully performed PoCUS for bladder and ascites assessments, enabling timely interventions and reducing hospital visits. Patient and family satisfaction was high, and RNs reported increased confidence and interest in further training.

Conclusion: Training RNs in PoCUS is feasible and enhances palliative care delivery by supporting timely, appropriate interventions at the bedside.

背景:即时超声(PoCUS)越来越多地用于姑息治疗的床边评估和症状管理。尽管注册护士在病人护理中扮演着不可或缺的角色,但他们很少接受培训或在实践中使用PoCUS。目的:评估培训姑息治疗注册护士进行PoCUS检查和扩大床边成像的可行性。方法:通过教学和实践课程,对当地一家安老院和门诊的注册护士进行尿潴留、腹水和静脉注射的PoCUS培训。数据包括扫描日志、满意度调查和RN反馈。结果:注册护士成功地对膀胱和腹水进行PoCUS评估,能够及时干预并减少住院次数。患者和家属的满意度很高,注册护士对进一步培训的信心和兴趣也增加了。结论:在PoCUS培训注册护士是可行的,并通过支持及时、适当的床边干预来提高姑息治疗的提供。
{"title":"Feasibility and outcomes of point-of-care ultrasound training for registered nurses in palliative care.","authors":"Barbara Ballantyne, Danika Lavoie, Rebecca Chau, Matthew Bertrand, Chidubem Ekpereamaka Okechukwu, Mercy Kingsley-Emereuwa, Zoey Yao, Christine Pun","doi":"10.12968/ijpn.2025.0031","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0031","url":null,"abstract":"<p><strong>Background: </strong>Point-of-care ultrasound (PoCUS) is increasingly used in palliative care for bedside assessment and symptom management. Despite their integral role in patient care registered nurses (RNs) rarely receive training or use PoCUS in practice.</p><p><strong>Aims: </strong>To evaluate the feasibility of training palliative care RNs to perform PoCUS exams and expand access to bedside imaging.</p><p><strong>Methods: </strong>RNs at a local residential hospice and outpatient clinic were trained in PoCUS for urinary retention, ascites and IV access through didactic and hands-on sessions. Data included scan logs, satisfaction surveys and RN feedback.</p><p><strong>Findings: </strong>RNs successfully performed PoCUS for bladder and ascites assessments, enabling timely interventions and reducing hospital visits. Patient and family satisfaction was high, and RNs reported increased confidence and interest in further training.</p><p><strong>Conclusion: </strong>Training RNs in PoCUS is feasible and enhances palliative care delivery by supporting timely, appropriate interventions at the bedside.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 11","pages":"525-532"},"PeriodicalIF":0.0,"publicationDate":"2025-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145643943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Knowledge and attitudes of undergraduate nursing students towards palliative care. 本科护生对姑息治疗的认知与态度。
Pub Date : 2025-10-02 DOI: 10.12968/ijpn.2025.0030
Kofi Gyasi Agyei, Ahmed-Rufai Yahaya, Cecilia Ackon Ansong, Josephine Sarfo, Bright Oteng, Gifty Boahe, Sally A Norton

Background: While palliative care education has been integrated into the nursing curriculum in Ghana, there remains a scarcity of research that assesses the knowledge and attitudes of undergraduate nursing students toward palliative care and care of the dying.

Aim: This study assessed the knowledge and attitudes of undergraduate nursing students regarding palliative care.

Methods: A cross-sectional study design was used, including a questionnaire-based survey. A total of 272 undergraduate nursing students were selected through convenience sampling.

Results: Most respondents demonstrated poor PC knowledge. Most students exhibited positive attitudes towards palliative care. Factors significantly associated with PC knowledge included being an older student (p=.028) and female gender (p=.038). Positive attitudes towards PC were significantly influenced by experiencing the death of a patient during clinical placement (p=.036), female gender (p=.001), and academic level (fourth year; p=.032).

Conclusions: The study revealed that the nursing students who participated had a positive attitude towards palliative care but poor knowledge.

背景:虽然姑息治疗教育已被纳入加纳的护理课程,但仍然缺乏评估本科护理学生对姑息治疗和临终关怀的知识和态度的研究。目的:了解本科护生对姑息治疗的知识和态度。方法:采用横断面研究设计,包括以问卷为基础的调查。采用方便抽样的方法,选取272名本科护生。结果:大多数受访者表现出较差的PC知识。大多数学生对姑息治疗持积极态度。与PC知识显著相关的因素包括年龄较大(p= 0.028)和女性(p= 0.038)。临床实习期间患者死亡经历(p= 0.036)、女性性别(p= 0.001)和学术水平(第四年;p= 0.032)显著影响对PC的积极态度。结论:参与研究的护生对姑息治疗态度积极,但知识贫乏。
{"title":"Knowledge and attitudes of undergraduate nursing students towards palliative care.","authors":"Kofi Gyasi Agyei, Ahmed-Rufai Yahaya, Cecilia Ackon Ansong, Josephine Sarfo, Bright Oteng, Gifty Boahe, Sally A Norton","doi":"10.12968/ijpn.2025.0030","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0030","url":null,"abstract":"<p><strong>Background: </strong>While palliative care education has been integrated into the nursing curriculum in Ghana, there remains a scarcity of research that assesses the knowledge and attitudes of undergraduate nursing students toward palliative care and care of the dying.</p><p><strong>Aim: </strong>This study assessed the knowledge and attitudes of undergraduate nursing students regarding palliative care.</p><p><strong>Methods: </strong>A cross-sectional study design was used, including a questionnaire-based survey. A total of 272 undergraduate nursing students were selected through convenience sampling.</p><p><strong>Results: </strong>Most respondents demonstrated poor PC knowledge. Most students exhibited positive attitudes towards palliative care. Factors significantly associated with PC knowledge included being an older student (p=.028) and female gender (p=.038). Positive attitudes towards PC were significantly influenced by experiencing the death of a patient during clinical placement (p=.036), female gender (p=.001), and academic level (fourth year; p=.032).</p><p><strong>Conclusions: </strong>The study revealed that the nursing students who participated had a positive attitude towards palliative care but poor knowledge.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 10","pages":"473-482"},"PeriodicalIF":0.0,"publicationDate":"2025-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145380557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers to peaceful end-of-life care for older patients with advanced chronic illnesses. 对患有晚期慢性疾病的老年患者进行安宁临终护理的障碍。
Pub Date : 2025-10-02 DOI: 10.12968/ijpn.2024.0002
Lian Jun Zhao, Waraporn Kongsuwan, Tippamas Chinnawong

Background: Many older patients with advanced chronic illnesses have not experienced a peaceful end of life in China.

Aim: To explore the barriers to peaceful end-of-life care for older patients with advanced chronic illnesses from the perspectives of male nurses.

Methods: A qualitative study was used. Ten male nurses in Guiyang City who met the inclusion criteria participated in individual interviews via telephone with audio recording. The interview transcriptions were analysed by using the content analysis method. Trustworthiness was established by following Lincoln and Guba's criteria.

Findings: Barriers to peaceful end-of-life care include not prioritising end-of-life care; not respecting the patient's autonomy to die; not having a comfortable caring environment for dying; family caregivers' lack of knowledge and experience in end-of-life care; and traditional and cultural beliefs regarding death and painkillers.

Conclusion: The findings need to be given due consideration to improve the quality of peaceful end-of-life care for older patients with advanced chronic illnesses.

背景:在中国,许多患有晚期慢性疾病的老年患者并没有平静地结束生命。目的:从男护士的角度探讨高龄慢性疾病患者安宁临终护理的障碍。方法:采用定性研究方法。10名符合纳入标准的贵阳市男护士通过电话录音进行了个别访谈。采用内容分析法对访谈笔录进行分析。诚信是通过遵循林肯和古巴的标准建立起来的。研究结果:安宁临终关怀的障碍包括没有优先考虑临终关怀;不尊重病人死亡的自主权;没有一个舒适的临终关怀环境;家庭照护者缺乏临终关怀知识和经验;以及关于死亡和止痛药的传统和文化信仰。结论:提高老年晚期慢性疾病患者安宁临终关怀的质量,应予以重视。
{"title":"Barriers to peaceful end-of-life care for older patients with advanced chronic illnesses.","authors":"Lian Jun Zhao, Waraporn Kongsuwan, Tippamas Chinnawong","doi":"10.12968/ijpn.2024.0002","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0002","url":null,"abstract":"<p><strong>Background: </strong>Many older patients with advanced chronic illnesses have not experienced a peaceful end of life in China.</p><p><strong>Aim: </strong>To explore the barriers to peaceful end-of-life care for older patients with advanced chronic illnesses from the perspectives of male nurses.</p><p><strong>Methods: </strong>A qualitative study was used. Ten male nurses in Guiyang City who met the inclusion criteria participated in individual interviews via telephone with audio recording. The interview transcriptions were analysed by using the content analysis method. Trustworthiness was established by following Lincoln and Guba's criteria.</p><p><strong>Findings: </strong>Barriers to peaceful end-of-life care include not prioritising end-of-life care; not respecting the patient's autonomy to die; not having a comfortable caring environment for dying; family caregivers' lack of knowledge and experience in end-of-life care; and traditional and cultural beliefs regarding death and painkillers.</p><p><strong>Conclusion: </strong>The findings need to be given due consideration to improve the quality of peaceful end-of-life care for older patients with advanced chronic illnesses.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 10","pages":"508-514"},"PeriodicalIF":0.0,"publicationDate":"2025-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145380589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A descriptive qualitative study exploring family dynamics in end-of-life care. 一项探讨临终关怀家庭动态的描述性定性研究。
Pub Date : 2025-10-02 DOI: 10.12968/ijpn.2024.0043
Antoinette Biney, Collins Atta Poku, Gladys Dzansi, David Atsu Deegbe, Lillian Akorfa Ohene, Jacob Owusu Sarfo, Fidelis Atibila, Gilbert Ti-Enkawol Nachinab, Emmanuel Anaba, Priscilla Yeye Adumoah Attafuah

Background: The extent of involvement of family caregivers in Ghana ranges from giving physical care and emotional support to making medical decisions and liaising with healthcare professionals.

Methods: This study used a descriptive exploratory qualitative methodology grounded in ethnographic theory. Data were collected through observations and interviews with 20 unpaid informal caregivers following a purposeful sampling recruitment. Semi-structured in-depth interviews, lasting 45 to 80 minutes, were conducted at home and on hospital premises, focusing on caregivers' involvement and the support services they received. Data were transcribed, translated and analysed using thematic analysis principles.

Results: The study found that caregivers were predominately female. Male caregivers were typically brothers, spouses or sons. Two primary themes emerged: the extent of caregiver involvement and the reasons for family involvement. Caregivers, despite their central roles in decision-making and extensive physical and emotional support, faced communication challenges with healthcare teams. These challenges, coupled with their moral and family obligations, underscore the complexity of their role.

Conclusion: The findings highlight the critical role of family caregivers in the care of terminally ill patients and the diverse motivations behind their involvement. It is imperative that healthcare professionals, researchers and policymakers, recognise and support the vital contributions of family caregivers. This recognition and support are not only essential for improving palliative care outcomes, but also for ensuring the well-being of these caregivers.

背景:在加纳,家庭照顾者的参与程度从提供身体护理和情感支持到做出医疗决定和与保健专业人员联络。方法:本研究采用以民族志理论为基础的描述性探索性定性方法。在有目的的抽样招募后,通过对20名无薪非正式护理人员的观察和访谈收集数据。在家中和医院进行了45至80分钟的半结构化深度访谈,重点关注护理人员的参与和他们获得的支持服务。利用专题分析原则对数据进行转录、翻译和分析。结果:研究发现照顾者以女性为主。男性看护人通常是兄弟、配偶或儿子。两个主要主题出现了:照顾者参与的程度和家庭参与的原因。尽管护理人员在决策和广泛的身体和情感支持方面发挥着核心作用,但他们面临着与医疗团队沟通的挑战。这些挑战,加上她们的道德和家庭义务,突出了她们作用的复杂性。结论:研究结果强调了家庭照顾者在临终病人护理中的关键作用,以及他们参与背后的不同动机。卫生保健专业人员、研究人员和政策制定者必须认识到并支持家庭照顾者的重要贡献。这种认识和支持不仅对改善姑息治疗结果至关重要,而且对确保这些照护者的福祉也至关重要。
{"title":"A descriptive qualitative study exploring family dynamics in end-of-life care.","authors":"Antoinette Biney, Collins Atta Poku, Gladys Dzansi, David Atsu Deegbe, Lillian Akorfa Ohene, Jacob Owusu Sarfo, Fidelis Atibila, Gilbert Ti-Enkawol Nachinab, Emmanuel Anaba, Priscilla Yeye Adumoah Attafuah","doi":"10.12968/ijpn.2024.0043","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0043","url":null,"abstract":"<p><strong>Background: </strong>The extent of involvement of family caregivers in Ghana ranges from giving physical care and emotional support to making medical decisions and liaising with healthcare professionals.</p><p><strong>Methods: </strong>This study used a descriptive exploratory qualitative methodology grounded in ethnographic theory. Data were collected through observations and interviews with 20 unpaid informal caregivers following a purposeful sampling recruitment. Semi-structured in-depth interviews, lasting 45 to 80 minutes, were conducted at home and on hospital premises, focusing on caregivers' involvement and the support services they received. Data were transcribed, translated and analysed using thematic analysis principles.</p><p><strong>Results: </strong>The study found that caregivers were predominately female. Male caregivers were typically brothers, spouses or sons. Two primary themes emerged: the extent of caregiver involvement and the reasons for family involvement. Caregivers, despite their central roles in decision-making and extensive physical and emotional support, faced communication challenges with healthcare teams. These challenges, coupled with their moral and family obligations, underscore the complexity of their role.</p><p><strong>Conclusion: </strong>The findings highlight the critical role of family caregivers in the care of terminally ill patients and the diverse motivations behind their involvement. It is imperative that healthcare professionals, researchers and policymakers, recognise and support the vital contributions of family caregivers. This recognition and support are not only essential for improving palliative care outcomes, but also for ensuring the well-being of these caregivers.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 10","pages":"484-498"},"PeriodicalIF":0.0,"publicationDate":"2025-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145380582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Compassionate leadership. 有同情心的领导。
Pub Date : 2025-10-02 DOI: 10.12968/ijpn.2025.0098
Lucy Coombes
{"title":"Compassionate leadership.","authors":"Lucy Coombes","doi":"10.12968/ijpn.2025.0098","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0098","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 10","pages":"471-472"},"PeriodicalIF":0.0,"publicationDate":"2025-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145380574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Synopses of a selection of recently published research articles of relevance to palliative care. 最近发表的与姑息治疗相关的研究文章的摘要。
Pub Date : 2025-10-02 DOI: 10.12968/ijpn.2025.0097
Laura Green
{"title":"Synopses of a selection of recently published research articles of relevance to palliative care.","authors":"Laura Green","doi":"10.12968/ijpn.2025.0097","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0097","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 10","pages":"516-518"},"PeriodicalIF":0.0,"publicationDate":"2025-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145380568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The roller coaster of preparation for death. 像过山车一样准备死亡。
Pub Date : 2025-10-02 DOI: 10.12968/ijpn.2025.0024
Jhon Henry Osorio Castaño, Luz Estella Varela Londoño

Background: Preparation for the death of a family member is a key part of a transition into a caregiving role for family caregivers.

Aim: To understand the experience of family caregivers preparing for the death of a significant other with a chronic disease.

Methods: Grounded theory was used, and the participants were family caregivers of a person in the process of dying. The sample was obtained by theoretical saturation and an analysis was carried out through open, axial and selective coding.

Findings: Four categories were identified as part of the family caregiver's preparation for the death of their family member: encounter with the disease, the caregiver relationship, the departure and new meanings.

Conclusion: Preparing for the death of a loved one can be described as a roller coaster of emotions with many ups and downs. Preparing for this grief can be helpful for some people, but many participants said that they still felt unprepared.

背景:为家庭成员的死亡做准备是家庭照顾者过渡到照顾角色的关键部分。目的:了解家庭照顾者准备与慢性病的重要的另一个人的死亡的经验。方法:采用扎根理论,参与者为濒死者的家属照顾者。通过理论饱和获得样品,并通过开放编码、轴向编码和选择性编码进行分析。研究发现:家庭照顾者对其家庭成员死亡的准备分为四类:遭遇疾病、照顾者关系、离开和新的意义。总结:为亲人的离世做准备就像坐过山车一样起伏不定。对一些人来说,为这种悲伤做好准备是有帮助的,但许多参与者表示,他们仍然感到措手不及。
{"title":"The roller coaster of preparation for death.","authors":"Jhon Henry Osorio Castaño, Luz Estella Varela Londoño","doi":"10.12968/ijpn.2025.0024","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0024","url":null,"abstract":"<p><strong>Background: </strong>Preparation for the death of a family member is a key part of a transition into a caregiving role for family caregivers.</p><p><strong>Aim: </strong>To understand the experience of family caregivers preparing for the death of a significant other with a chronic disease.</p><p><strong>Methods: </strong>Grounded theory was used, and the participants were family caregivers of a person in the process of dying. The sample was obtained by theoretical saturation and an analysis was carried out through open, axial and selective coding.</p><p><strong>Findings: </strong>Four categories were identified as part of the family caregiver's preparation for the death of their family member: encounter with the disease, the caregiver relationship, the departure and new meanings.</p><p><strong>Conclusion: </strong>Preparing for the death of a loved one can be described as a roller coaster of emotions with many ups and downs. Preparing for this grief can be helpful for some people, but many participants said that they still felt unprepared.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 10","pages":"500-508"},"PeriodicalIF":0.0,"publicationDate":"2025-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145380580","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
International journal of palliative nursing
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1