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Patient Information Leaflet Feedback on Delusional Infestation. 妄想侵扰》患者信息手册反馈。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-29 DOI: 10.1093/ced/llae471
Parmis Vafapour, Anthony Bewley, Alia Ahmed, Padma Mohandas, Ruth Taylor, Jon Goulding

Background: Delusional parasitosis, also known as Ekbom syndrome, is a poorly understood condition often surrounded by misinformation. Patients and their families frequently encounter skepticism regarding their experiences. This research aimed to create a patient information leaflet (PIL) with a patient centred approach and to gather feedback on its usefulness for sharing information and validating their experiences.

Objective: To evaluate patient feedback on a newly developed PIL designed for individuals with delusional parasitosis, assessing its perceived usefulness and impact.

Methods: A survey was administered to 18 patients before their appointments, incorporating the new PIL. The survey included questions on the leaflet's clarity, usefulness, ability to validate patient experiences and other pointers, measured on a 10-point Likert scale (0 = No answer, 1 = Strongly Disagree, 10 = Strongly Agree). Data was analysed using descriptive statistics and factor analysis. Additionally, the final question allowed for written feedback, which was examined through thematic analysis.

Results: The survey results revealed that the majority of patients were satisfied with the new PIL. Specifically, 94% agreed or strongly agreed that the leaflet was logical and easy to follow, 72% found it useful for understanding their condition, and 89% felt it validated their experiences. Mean scores for these concepts were 8.83, 7.61, and 7.78, respectively. Thematic analysis of written feedback highlighted themes of improved understanding but uncertainty around acknowledgement of experiences.

Conclusion: This new patient-centered PIL for delusional parasitosis was well-received, indicating its potential as a valuable tool for patients and their support networks. By addressing the specific needs and experiences of patients, the leaflet can improve communication and reduce the stigma associated with the condition. Future research should explore long-term impacts and the effectiveness of similar resources in other patient populations.

背景:妄想性寄生虫病(又称埃克博姆综合征)是一种鲜为人知的疾病,常常被错误信息所包围。患者及其家属经常对他们的经历持怀疑态度。本研究旨在以患者为中心制作一份患者信息宣传单(PIL),并收集患者对该宣传单在信息共享和经验验证方面的反馈意见:评估患者对为妄想性寄生虫病患者设计的新开发的患者信息宣传单的反馈,评估其感知的有用性和影响:方法:在 18 名患者就诊前对其进行了调查,其中包括新的 PIL。调查内容包括传单的清晰度、实用性、验证患者经验的能力及其他要点,采用 10 分李克特量表(0 = 无回答,1 = 非常不同意,10 = 非常同意)进行测量。数据分析采用描述性统计和因子分析。此外,还在最后一个问题中提出了书面反馈意见,并通过专题分析对其进行了研究:调查结果显示,大多数患者对新的 PIL 表示满意。具体来说,94% 的人同意或非常同意宣传单合乎逻辑且易于理解,72% 的人认为宣传单有助于了解他们的病情,89% 的人认为宣传单验证了他们的经历。这些概念的平均得分分别为 8.83、7.61 和 7.78。对书面反馈意见的主题分析突出了加深理解的主题,但在经验认可方面存在不确定性:这种针对妄想性寄生虫病的以患者为中心的新型 PIL 广受欢迎,表明它有可能成为患者及其支持网络的重要工具。通过满足患者的特殊需求和经历,该宣传册可以改善沟通,减少与该疾病相关的耻辱感。未来的研究应探讨类似资源在其他患者群体中的长期影响和有效性。
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引用次数: 0
Acquired comedomal plaques in a middle aged female. 一名中年女性的后天性昏迷斑。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-28 DOI: 10.1093/ced/llae472
Jenny G Chung, Mark J Wilsher, Eduardo Calonje, Nadia Magdalinou, Catherine Mummery, Khawar Hussain, Nerys Roberts
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引用次数: 0
Dermatopathology. 皮肤病理学。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-28 DOI: 10.1093/ced/llae452
Peiyu Zhou, Wei Chen, Xueyu Zhang, Hongjie Liu, Lin Wang
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引用次数: 0
Comment on "A not-so healthy glow: a qualitative analysis of sunbed content and viewer engagement on social media". 就 "不那么健康的光彩:对社交媒体上日光浴床内容和观众参与度的定性分析 "发表评论。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-28 DOI: 10.1093/ced/llae474
Amy Long, Alison Long, Joseph Siby, Keavy Conroy, Geoff Hanley, Nasir Mughal, Zelmarie Beselaar, Sarah Fleming, Muireann Roche
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引用次数: 0
Genito-urinary disorders and oral medicine. 泌尿生殖系统疾病和口腔医学。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-28 DOI: 10.1093/ced/llae473
Sree Yazhini Ramar, Sanjana Kotekar, Aravind Sivakumar, Sheetanshu Kumar
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引用次数: 0
Recurrent balanitis and oral blistering in a young man. 一名年轻男子的复发性包皮龟头炎和口腔水疱。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-26 DOI: 10.1093/ced/llae468
Jenny G Chung, Garima Gupta, Mark J Wilsher, John B Mee, Jane Setterfield, Christopher Bunker
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引用次数: 0
Environmental Sustainability in Dermatological Surgery. Part 1: Reducing Carbon Intensity. 皮肤外科的环境可持续性。第 1 部分:降低碳强度。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-26 DOI: 10.1093/ced/llae434
Fatima Ali, Aaron Wernham, Rachel Abbott

This two-part review addresses the pressing need for environmental sustainability in dermatological surgery, driven by the NHS's commitment to net-zero emissions. Part 1 focuses on strategies to reduce the carbon intensity of dermatological procedures by adopting low-carbon alternatives and optimising operational resource usage. Key strategies for a system-wide reduction in environmental impact include using leveraging local suppliers to reduce transport emissions, streamlining care models, promoting efficient waste management, and using mindful prescribing practices. Another aspect is integrating sustainability into dermatological education whilst minimising the carbon footprint of surgical education. Additionally, the review provides a comprehensive overview of optimising resource use in dermatological surgery, focusing on efficient management of consumables, equipment, and energy. This includes recycling, waste segregation, transitioning to reusable personal protective equipment and surgical instruments, and applying energy-saving and sustainable water use practices. By implementing these strategies, dermatological surgery can significantly reduce its environmental impact while upholding high standards of patient care.

在英国国家医疗服务体系(NHS)净零排放承诺的推动下,本综述分为两部分,探讨了皮肤科手术对环境可持续性的迫切需求。第一部分重点介绍通过采用低碳替代品和优化运营资源使用来降低皮肤外科手术碳强度的策略。全系统减少环境影响的关键策略包括利用本地供应商减少运输排放、简化护理模式、促进有效的废物管理,以及使用注意事项处方。另一个方面是将可持续发展融入皮肤病学教育,同时最大限度地减少外科教育的碳足迹。此外,综述还全面概述了如何优化皮肤科手术中的资源利用,重点关注耗材、设备和能源的有效管理。这包括回收利用、废物分类、过渡到可重复使用的个人防护设备和手术器械,以及采用节能和可持续用水方法。通过实施这些策略,皮肤外科可在坚持高标准患者护理的同时,大幅减少对环境的影响。
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引用次数: 0
Satisfactory Clinical Response to Erlotinib in a Patient Diagnosed with Olmsted Syndrome. 一名被诊断为奥姆斯特德综合征的患者对厄洛替尼有满意的临床反应
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-26 DOI: 10.1093/ced/llae447
Ayse Oktem, Feride Ongun, Hatice Sanli, Halil Karabulut, Can Leblebici
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引用次数: 0
Epidemiological, clinical and histological characteristics of melanoma in young adults: a 30-year retrospective study (1993-2022). 青壮年黑色素瘤的流行病学、临床和组织学特征:一项为期 30 年的回顾性研究(1993-2022 年)。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-25 DOI: 10.1093/ced/llae466
Belén Rodríguez-Sánchez, Enrique Rodríguez-Lomba, José Antonio Avilés-Izquierdo

Background: Melanoma in young adults significantly impacts the survival of this age group. There are limited studies that analyze melanoma characteristics in young patients. We aimed to describe the epidemiological, clinical, and histological characteristics of melanoma in young adults and their temporal trends over the last decades.

Methods: A retrospective observational study was conducted, involving 399 melanoma patients aged 18-44, over a 30-year period (1993-2022). Patients were divided into two groups based on their date of diagnosis (period 1, 1993-2007, and period 2, 2008-2022).

Results: Age at diagnosis was higher in the most recent period (34.3 vs 37; p=0.001). Over time, there was a reduction in thickness (1 vs 0.68 mm; p=0.01), a rise in melanomas located on the head and neck (6.5% vs 14.8%) and extremities (42.2% vs 45%), along with a decrease on the trunk (51.3% vs 40.2%) (p=0.009); and an increase in lentigo maligna (2.3% vs 5.3%) and superficial spreading melanomas (76.5% vs 84%), along with reduction in nodular types (16.1% vs 5.9%) (p=0.012). Women had, compared to men, higher limb melanoma prevalence (56.3% vs 27.1%; p<0.001), family history (11.7% vs 5.1%; p=0.020), lower thickness (0.69 vs 1.10; p= 0.001) and better prognosis (14.4% vs 20.9% deaths; p=0.012).

Conclusions: Melanoma diagnoses in young adults occur at progressively advanced ages, with a rise in melanomas situated on the head and extremities and in histological types linked to prolonged sun exposure. Strategies like minimizing sun exposure from a young age and encouraging self-examination could lead to improved survival rates.

背景:年轻人患上黑色素瘤会严重影响这个年龄组的生存。分析年轻患者黑色素瘤特征的研究非常有限。我们旨在描述青壮年黑色素瘤的流行病学、临床和组织学特征及其在过去几十年中的时间趋势:我们开展了一项回顾性观察研究,涉及 399 名年龄在 18-44 岁之间的黑色素瘤患者,时间跨度长达 30 年(1993-2022 年)。根据诊断日期将患者分为两组(第一组,1993-2007 年;第二组,2008-2022 年):结果:确诊时的年龄在最近一期较高(34.3 岁对 37 岁;P=0.001)。随着时间的推移,黑色素瘤的厚度有所减少(1 mm vs 0.68 mm; p=0.01),位于头颈部(6.5% vs 14.8%)和四肢(42.2% vs 45%)的黑色素瘤有所增加,而位于躯干(51.3% vs 40.2%)的黑色素瘤有所减少。3%对40.2%)(P=0.009);恶性扁平苔藓(2.3%对5.3%)和浅表扩散型黑色素瘤(76.5%对84%)增加,结节型黑色素瘤减少(16.1%对5.9%)(P=0.012)。与男性相比,女性的肢端黑色素瘤发病率更高(56.3% 对 27.1%;P=0.012):青壮年黑色素瘤的诊断年龄逐渐增大,位于头部和四肢的黑色素瘤以及与长期日晒有关的组织学类型的黑色素瘤有所增加。从年轻时起就尽量减少阳光照射和鼓励自我检查等策略可提高存活率。
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引用次数: 0
Findings of the British Association of Dermatologists Career Survey of Dermatologists in Training and New Consultant Dermatologists 2023. 英国皮肤科医师协会对培训中的皮肤科医师和 2023 年新任皮肤科顾问医师进行的职业调查的结果。
IF 3.7 4区 医学 Q1 DERMATOLOGY Pub Date : 2024-10-25 DOI: 10.1093/ced/llae467
Lauren Passby, Ajoy Bardhan, Tamara Griffiths, Mahbub M Chowdhury

Previous surveys of UK dermatology trainees have identified key patterns regarding future career intentions that can help to inform workforce planning as consultant vacancies continue to grow. We invited all doctors training in dermatology, as well as all dermatology doctors who have completed training between 2018-2023 to complete separate surveys over a six-week period. These surveys explored: career locations, working patterns, pull factors towards particular posts, and push factors away from NHS consultant posts. The findings of these surveys confirm persisting trends towards less than full time working, ongoing limited geographical mobility of trainees, and a reducing appetite for academic work all identified in previous surveys. This survey offers the first insight into the working lives and factors influencing these career choices of consultants who completed their dermatology training between 2018-2023.

之前对英国皮肤科受训医生进行的调查发现了未来职业意向的关键模式,这有助于在顾问职位空缺持续增长的情况下为劳动力规划提供信息。我们邀请所有接受皮肤病学培训的医生以及所有在 2018-2023 年间完成培训的皮肤病学医生在六周内分别完成调查。这些调查探讨了:职业定位、工作模式、对特定职位的吸引力因素,以及远离 NHS 顾问职位的推力因素。这些调查结果证实了以往调查中发现的持续趋势,即工作时间少于全职、受训人员的地域流动性持续受限以及对学术工作的热情下降。本次调查首次深入了解了 2018-2023 年间完成皮肤科培训的顾问的工作生活以及影响其职业选择的因素。
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Clinical and Experimental Dermatology
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