Functional Neurological Disorder (FND) presents unique challenges in the emergency department (ED), where patients often arrive with varied and vague symptoms that can be difficult to address. This article provides practical strategies for effectively managing and supporting FND patients in the ED, emphasizing a compassionate, systematic approach, tailored treatments, appropriate use of investigations, and ensuring continuity of care. Key principles include clear communication of the diagnosis, preventing iatrogenic harm, and facilitating appropriate referrals for follow-up care. Consistent and respectful language is important when managing patients with FND. Creating a calm environment reduced stress and symptom exacerbation. Thorough history taking and examination can help build the patient's confidence in their diagnosis. Validating symptoms and providing a clear explanation of the diagnosis are important. FND presentations, such as functional weakness and seizures, require tailored interventions with early involvement of physiotherapy and/or psychological support. A low threshold for investigating potential comorbid neurological conditions should be maintained when patients present to ED, especially in cases of unclear diagnoses or acute presentations, while avoiding repetitive testing that may reinforce illness behaviour. Managing FND in the ED requires a patient-centered, multidisciplinary approach. By adopting these strategies, health professionals can improve outcomes and support patients in managing their condition effectively.
{"title":"Practical strategies for caring for patients with functional neurological disorder in the ED","authors":"Alexander Lehn MD, FRACP","doi":"10.1111/1742-6723.14489","DOIUrl":"https://doi.org/10.1111/1742-6723.14489","url":null,"abstract":"<p>Functional Neurological Disorder (FND) presents unique challenges in the emergency department (ED), where patients often arrive with varied and vague symptoms that can be difficult to address. This article provides practical strategies for effectively managing and supporting FND patients in the ED, emphasizing a compassionate, systematic approach, tailored treatments, appropriate use of investigations, and ensuring continuity of care. Key principles include clear communication of the diagnosis, preventing iatrogenic harm, and facilitating appropriate referrals for follow-up care. Consistent and respectful language is important when managing patients with FND. Creating a calm environment reduced stress and symptom exacerbation. Thorough history taking and examination can help build the patient's confidence in their diagnosis. Validating symptoms and providing a clear explanation of the diagnosis are important. FND presentations, such as functional weakness and seizures, require tailored interventions with early involvement of physiotherapy and/or psychological support. A low threshold for investigating potential comorbid neurological conditions should be maintained when patients present to ED, especially in cases of unclear diagnoses or acute presentations, while avoiding repetitive testing that may reinforce illness behaviour. Managing FND in the ED requires a patient-centered, multidisciplinary approach. By adopting these strategies, health professionals can improve outcomes and support patients in managing their condition effectively.</p>","PeriodicalId":11604,"journal":{"name":"Emergency Medicine Australasia","volume":"36 5","pages":"786-788"},"PeriodicalIF":1.7,"publicationDate":"2024-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142234724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<p>In their article, Craig <i>et al</i>.<span><sup>1</sup></span> eloquently describe how current Australasian ED administrative data sets do not address quality of care and benchmarking and research opportunities. This is unsurprising because these data sets were not designed for these purposes. I agree that the clinical data that <i>could</i> be available would provide valuable insights into the quality of care, areas for improvement and opportunities for research. I admire the ambition of this initiative, but big data comes with big issues.</p><p>Any analysis of big data is only as good as the data entered. For maximum effectiveness and validity, data need to be clean, complete, accurate and formatted consistently. The differences in the design and implementation of health information systems (including electronic medical records [EMRs]) challenge data quality and consistency. For example, not all EMR systems require procedures be specifically captured and there may be differences in coding sets and how they are used.</p><p>Current administrative data sets are jurisdiction-based and government-owned. Development of a national/binational data set will need the participation of governments. With the potential political impacts of comparisons between jurisdictions, obtaining government support will not be easy.</p><p>Also, a data set of the size generated by this initiative will demand sophisticated stewardship, curation and data governance. Who will ‘own’ the data? Who will decide how it is used and by whom? Governments will want a stake in ownership which will open the possibility of influence in project selection and reporting.</p><p>The privacy and consent issues are complex and full discussion is beyond this editorial's remit. The authors' assertion that the use of routinely collected healthcare data for quality improvement and research is generally acceptable to people may be true when people are asked about data in general. It may be less so when asked about the use of their data. Australian evidence suggests that while most patients attending ED expect that data are used in this way, about 20% report that this use without consent will not be acceptable to them; a majority will prefer a consent requirement.<span><sup>2</sup></span> How this can be made workable is challenging, especially if re-identifiability for data linkage is included.</p><p>I do not agree that data collection without consent will be acceptable under legislation. Previous approaches, such as use of privacy notices stating that information may be used for quality improvement and research, are unlikely to be acceptable under privacy legislation.<span><sup>3</sup></span> In my experience, jurisdictions vary in their interpretation of what can be defined as a ‘directly related secondary purpose’ for use of health information, a potentially valid exemption from requiring consent. Also, bundled consent – ‘bundling’ together multiple requests for an individual's consent to a r
{"title":"Big data, big promise and big issues","authors":"Anne-Maree Kelly MD, FACEM, MHealth&MedLaw","doi":"10.1111/1742-6723.14483","DOIUrl":"https://doi.org/10.1111/1742-6723.14483","url":null,"abstract":"<p>In their article, Craig <i>et al</i>.<span><sup>1</sup></span> eloquently describe how current Australasian ED administrative data sets do not address quality of care and benchmarking and research opportunities. This is unsurprising because these data sets were not designed for these purposes. I agree that the clinical data that <i>could</i> be available would provide valuable insights into the quality of care, areas for improvement and opportunities for research. I admire the ambition of this initiative, but big data comes with big issues.</p><p>Any analysis of big data is only as good as the data entered. For maximum effectiveness and validity, data need to be clean, complete, accurate and formatted consistently. The differences in the design and implementation of health information systems (including electronic medical records [EMRs]) challenge data quality and consistency. For example, not all EMR systems require procedures be specifically captured and there may be differences in coding sets and how they are used.</p><p>Current administrative data sets are jurisdiction-based and government-owned. Development of a national/binational data set will need the participation of governments. With the potential political impacts of comparisons between jurisdictions, obtaining government support will not be easy.</p><p>Also, a data set of the size generated by this initiative will demand sophisticated stewardship, curation and data governance. Who will ‘own’ the data? Who will decide how it is used and by whom? Governments will want a stake in ownership which will open the possibility of influence in project selection and reporting.</p><p>The privacy and consent issues are complex and full discussion is beyond this editorial's remit. The authors' assertion that the use of routinely collected healthcare data for quality improvement and research is generally acceptable to people may be true when people are asked about data in general. It may be less so when asked about the use of their data. Australian evidence suggests that while most patients attending ED expect that data are used in this way, about 20% report that this use without consent will not be acceptable to them; a majority will prefer a consent requirement.<span><sup>2</sup></span> How this can be made workable is challenging, especially if re-identifiability for data linkage is included.</p><p>I do not agree that data collection without consent will be acceptable under legislation. Previous approaches, such as use of privacy notices stating that information may be used for quality improvement and research, are unlikely to be acceptable under privacy legislation.<span><sup>3</sup></span> In my experience, jurisdictions vary in their interpretation of what can be defined as a ‘directly related secondary purpose’ for use of health information, a potentially valid exemption from requiring consent. Also, bundled consent – ‘bundling’ together multiple requests for an individual's consent to a r","PeriodicalId":11604,"journal":{"name":"Emergency Medicine Australasia","volume":"36 5","pages":"670-671"},"PeriodicalIF":1.7,"publicationDate":"2024-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1742-6723.14483","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142234837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Functional neurological disorders (FNDs) are conditions of nervous system malfunctioning, rather than a clearly identifiable pathophysiological disease.1 FND can present with an array of symptoms, including functional seizures, weakness and paralysis, movement disorders, speech disturbances, globus sensation, sensory complaints, visual and cognitive symptoms. These symptoms may be acute or chronic, episodic or sustained and patients often have a high rate of representation to the ED.2 These factors make FND a challenge to manage within the constraints of the ED.
Previously, FND was considered a diagnosis of exclusion. Recently, FND has been described as a ‘rule-in’ diagnosis, with positive findings offering the possibility of early diagnosis and management in the ED. Shorter time from symptom onset to diagnosis is an important positive prognostic factor, leading to reduced ED utilisation and improved patient outcomes.3
{"title":"An introduction to functional neurological disorders in the emergency department","authors":"Melanie Eden BBiomedSci (Hons), MD","doi":"10.1111/1742-6723.14492","DOIUrl":"https://doi.org/10.1111/1742-6723.14492","url":null,"abstract":"<p>Functional neurological disorders (FNDs) are conditions of nervous system malfunctioning, rather than a clearly identifiable pathophysiological disease.<span><sup>1</sup></span> FND can present with an array of symptoms, including functional seizures, weakness and paralysis, movement disorders, speech disturbances, globus sensation, sensory complaints, visual and cognitive symptoms. These symptoms may be acute or chronic, episodic or sustained and patients often have a high rate of representation to the ED.<span><sup>2</sup></span> These factors make FND a challenge to manage within the constraints of the ED.</p><p>Previously, FND was considered a diagnosis of exclusion. Recently, FND has been described as a ‘rule-in’ diagnosis, with positive findings offering the possibility of early diagnosis and management in the ED. Shorter time from symptom onset to diagnosis is an important positive prognostic factor, leading to reduced ED utilisation and improved patient outcomes.<span><sup>3</sup></span></p>","PeriodicalId":11604,"journal":{"name":"Emergency Medicine Australasia","volume":"36 5","pages":"777-778"},"PeriodicalIF":1.7,"publicationDate":"2024-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1742-6723.14492","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142234725","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}