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Uptake of Large Language Models by London Medical Students: Exploratory Qualitative Interview Study. 伦敦医学院学生对大型语言模型的吸收:探索性质的访谈研究。
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-19 DOI: 10.2196/82828
Maya Alazzawi, Kyle Lam

Background: The popularity of large language models (LLMs) has grown exponentially across health care. Despite the wealth of literature on proposed applications in medical education, there remains a critical gap regarding their real-world use, benefits, and challenges as experienced by medical students themselves.

Objective: We aimed to explore qualitatively and characterize the perceived benefits, facilitators, and barriers associated with the use of LLMs among a cohort of London-based medical students.

Methods: Semistructured interviews were conducted with 15 medical students from preclinical and clinical stages at London-based medical schools. Guided by the technology acceptance model, interview transcripts underwent an inductive thematic analysis to identify themes on actual system use, perceived usefulness, ease of use, and attitudes toward LLMs.

Results: All participants reported frequent use of ChatGPT for concise topic summarization, clarification of complex concepts, generation of examination-style questions, and summarization of research. Students described LLMs as a complementary tool to traditional materials, valuing their immediacy ("Instead of getting a textbook, I can ask ChatGPT to summarise something in X words and read it in under a minute") and ease of use. Peer demonstration and device-agnostic accessibility emerged as key facilitators. Of note, wider applications such as simulating clinical interviews were discovered through peers rather than through formal teaching. Significant barriers were reported. Hallucinations, fabricated references, and outdated information led to loss of trust, with more junior students finding inaccurate outputs difficult to detect ("I stopped using it because I found it to be inaccurate, and I don't want to be learning the wrong things"). Half of the participants interviewed reported a sense of overreliance, defaulting to its use for answers with a perceived loss of critical thinking ability. Students noted inequalities in access to advanced features and voiced concerns about privacy when using LLMs in clinical scenarios.

Conclusions: LLMs have been widely adopted by medical students. While students perceived the efficiency, flexibility, and conversational interface of LLMs as beneficial, substantial reservations remain regarding their reliability, potential de-skilling, and the loss of academic integrity. These findings underpin the urgent need for curricula to both support safe LLM use and also adapt assessment and teaching strategies for artificial intelligence-augmented student practice. Future research should broaden geographical representation, investigate applications in low-resource settings, and integrate educators' perspectives to establish future curricular guidance in an artificial intelligence era.

背景:大型语言模型(llm)的普及在医疗保健领域呈指数级增长。尽管在医学教育中提出的应用方面有丰富的文献,但在医学生自己经历的实际应用、益处和挑战方面仍然存在重大差距。目的:我们旨在定性地探讨和描述在伦敦的一群医科学生中与使用法学硕士相关的感知利益、促进因素和障碍。方法:对伦敦医学院临床前和临床阶段的15名医学生进行半结构化访谈。在技术接受模型的指导下,访谈记录进行了归纳主题分析,以确定实际系统使用、感知有用性、易用性和对法学硕士的态度的主题。结果:所有参与者都报告经常使用ChatGPT进行简明的主题总结,澄清复杂的概念,生成考试式问题以及总结研究。学生们将法学硕士描述为传统教材的补充工具,看重其即时性(“我可以让ChatGPT用X个单词总结一些东西,在一分钟内读完”)和易用性。同行示范和与设备无关的可访问性成为关键的促进因素。值得注意的是,模拟临床访谈等更广泛的应用是通过同伴而不是通过正式教学发现的。据报道存在重大障碍。幻觉、捏造的参考文献和过时的信息导致信任的丧失,更多的低年级学生发现很难发现不准确的输出(“我不再使用它,因为我发现它是不准确的,我不想学错误的东西”)。一半的受访者表示有一种过度依赖的感觉,默认使用它来回答被认为失去批判性思维能力的问题。学生们注意到在使用高级功能方面的不平等,并表达了在临床场景中使用法学硕士时对隐私的担忧。结论:法学硕士已被医学生广泛采用。虽然学生们认为llm的效率、灵活性和对话界面是有益的,但对其可靠性、潜在的去技能化和学术诚信的丧失仍有大量保留意见。这些发现表明,课程迫切需要既支持法学硕士的安全使用,又适应人工智能增强学生实践的评估和教学策略。未来的研究应扩大地域代表性,研究在低资源环境下的应用,并整合教育工作者的观点,以建立人工智能时代的未来课程指导。
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引用次数: 0
Exploring the Preferences and Behavioral Trends of e-Patients in Psychosomatics Towards Telemedicine During and Post COVID-19 Pandemic: Cross-Sectional Analysis. 探讨在COVID-19大流行期间和之后心理疾病电子患者对远程医疗的偏好和行为趋势:横断面分析
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-16 DOI: 10.2196/74167
Moritz Mahling, Alexander McQueeney, Teresa Festl-Wietek, Ken Masters, Stephan Zipfel, Anne Herrmann-Werner, Caroline Rometsch

Background: COVID-19 accelerated the adoption of health services, with a growing number of psychosomatic patients turning to the internet for health-related decisions. This study explored changes in communication behavior, information-seeking habits, and post-pandemic consultation preferences among psychosomatic patients during and after COVID-19.

Objective: This study explored changes in communication behavior, information-seeking habits, and post-pandemic consultation preferences among psychosomatic patients during and after COVID-19.

Methods: In a cross-sectional study, 150 adult patients (>18 y) from the psychosomatic outpatient department in Tübingen, Germany, were invited to complete an ad hoc questionnaire to identify e-patients' preferences related to communication, information-seeking behavior, subjective explanations, and postpandemic preferences. Group comparisons and multiple linear regression analyses were conducted.

Results: The study revealed a slight increase in online-based communication between patients and caregivers (eg, caregivers' system use +10.8%; live video consultations +30.8%), as well as in patient-patient interactions (eg, online correspondence +16.9%). Significant group differences were observed for social media correspondence by patient age (χ2¬=17.44, P<.001) and for live video consultations by gender (χ2¬=70.17, P<.001). For both age and gender, significant group differences were found in the use of medical videos (age χ2¬=6.36, P=.04; gender χ2¬=76.70, P<.001). Age, gender, and preferences for live video consultations were identified as significant predictors (F1,11=14.195, P<.001, R²=0.299) of patients' future preferences for on-site versus online consultations.

Conclusions: Although a slight increase in online-based communication was observed, resilience in patient-caregiver and patient-patient communication indicated relative stability under challenging circumstances. Older adults and female patients expressed a preference for on-site consultations, emphasizing the significance of in-person care. Male patients demonstrated greater openness towards online consultations, indicating potential for expansion of eHealth services. Identifying preferences is a core essential for providing future eHealth implementations that account for diverse patient needs and for designing care offerings. Incorporating these findings may enhance patient engagement and satisfaction in the evolving landscape of eHealth services for better health care outcomes.

背景:COVID-19加速了卫生服务的采用,越来越多的心身患者转向互联网进行与健康相关的决策。本研究探讨了COVID-19期间和之后心身患者的沟通行为、信息寻求习惯和大流行后咨询偏好的变化。目的:探讨新型冠状病毒肺炎(COVID-19)期间和之后心身患者的沟通行为、信息寻求习惯和大流行后咨询偏好的变化。方法:在一项横断面研究中,来自德国宾根市心身门诊的150名成年患者(bb0 - 18岁)被邀请完成一份特别问卷,以确定电子患者在沟通、信息寻求行为、主观解释和大流行后偏好方面的偏好。进行组间比较和多元线性回归分析。结果:研究显示,患者与护理人员之间的在线交流(例如,护理人员的系统使用+10.8%;实时视频咨询+30.8%)以及患者与患者之间的互动(例如,在线通信+16.9%)略有增加。不同年龄的患者在社交媒体通信方面存在显著的组间差异(χ2¬=17.44,p)。结论:尽管在线沟通略有增加,但在具有挑战性的环境下,患者与护理者和患者之间的沟通弹性相对稳定。老年人和女性患者表达了对现场咨询的偏好,强调了亲自护理的重要性。男性患者对在线咨询表现出更大的开放态度,这表明电子保健服务有扩大的潜力。确定偏好是提供未来的电子健康实现的核心要素,以考虑不同的患者需求和设计护理产品。将这些发现结合起来,可以提高患者对不断发展的电子卫生服务的参与度和满意度,从而获得更好的卫生保健结果。
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引用次数: 0
Support Community Formation on a Mobile App for People Living With HIV and Substance Use Disorder: A Computer-Mediated Discourse Analysis. 为艾滋病毒和物质使用障碍患者提供移动应用程序支持社区形成:计算机介导的话语分析。
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-15 DOI: 10.2196/66564
Adati Tarfa, Kristen Pecanac, Olayinka Shiyanbola, Cameron Liebert, Sarah Dietz, Rebecca Miller, Ryan P Westergaard

Background: People living with HIV and substance use disorders (SUDs) have complex health care needs requiring adaptive and effective support systems. While mobile health apps can foster virtual communities grounded in shared lived experiences, little is known about the dynamics within these digital spaces.

Objective: We examined the formation of a virtual community on the Addiction Comprehensive Health Enhancement Support System (A-CHESS; The Center for Health Enhancement Systems Studies, University of Wisconsin-Madison College of Engineering) message board, a mobile app designed to support HIV care engagement among individuals living with HIV and SUD.

Methods: We conducted a computer-mediated discourse analysis of A-CHESS message board posts to examine communication patterns, interaction structures, and engagement dynamics. Quantitative comparisons were used to assess differences between posters and nonposters using t tests and chi-square tests. We then applied qualitative coding to categorize messages by type, speaker, and function to understand how staff and participants coconstructed a supportive virtual environment.

Results: Among 208 participants, 87 (42%) posted at least once on the A-CHESS message board, contributing 1834 messages between April 2019 and May 2021. Posters and nonposters did not differ significantly in age (t206=-0.64; P=.52), gender (χ²1=0.14; P=.71), or race (χ²1=0.52; P=.47). We identified 3 message types: premeditated, adlib, and participant-driven. Staff initially led with premeditated messages (eg, recovery stories, HIV risk information, and "Thought of the Day" inspiration), which participants often interpreted and adapted to their own SUD recovery. Over time, staff incorporated adlib messaging styles using personalized narratives and polls to sustain engagement. Participants then developed their own posts using similar formats, incorporating Alcoholics Anonymous literature, sharing legal and personal challenges, and suggesting new app features (eg, medication check-ins to support adherence).

Conclusions: A-CHESS staff adapted communication styles to increase engagement, while participants appropriated the app's message board to reflect personal goals and lived experiences. Mobile health interventions may benefit from design elements that support participant-led discourse and customization, fostering ownership, support, and relevance within virtual care communities.

背景:艾滋病毒和物质使用障碍(sud)感染者具有复杂的卫生保健需求,需要适应性和有效的支持系统。虽然移动健康应用程序可以建立基于共享生活经历的虚拟社区,但人们对这些数字空间中的动态知之甚少。目的:我们研究了成瘾综合健康增强支持系统(a - chess;健康增强系统研究中心,威斯康星大学麦迪逊工程学院)留言板上虚拟社区的形成,这是一款旨在支持艾滋病毒感染者和SUD患者参与艾滋病毒护理的移动应用程序。方法:我们对a - chess留言板上的帖子进行了计算机媒介话语分析,以检验交流模式、互动结构和参与动态。定量比较使用t检验和卡方检验来评估海报和非海报之间的差异。然后,我们应用定性编码按类型、说话者和功能对消息进行分类,以了解员工和参与者如何共同构建支持性虚拟环境。结果:在208名参与者中,87名(42%)在2019年4月至2021年5月期间在A-CHESS留言板上至少发表过一次,贡献了1834条消息。张贴海报和未张贴海报在年龄(t206=-0.64; P= 0.52)、性别(χ²1=0.14;P= 0.71)和种族(χ²1=0.52;P= 0.47)方面均无显著差异。我们确定了3种信息类型:有预谋的、即兴的和参与者驱动的。最初,工作人员以预先准备好的信息(例如,康复故事、艾滋病毒风险信息和“每日想法”灵感)为指导,参与者经常根据自己的SUD康复情况进行解释和调整。随着时间的推移,员工们采用了adlib的消息传递风格,使用个性化的叙述和民意调查来维持参与度。然后参与者使用类似的格式开发自己的帖子,结合匿名戒酒会的文献,分享法律和个人挑战,并建议新的应用程序功能(例如,药物检查以支持依从性)。结论:A-CHESS的工作人员调整了沟通方式来提高参与度,而参与者则利用应用的留言板来反映个人目标和生活经历。移动卫生干预措施可能受益于支持参与者主导的话语和定制的设计元素,在虚拟护理社区中促进所有权、支持和相关性。
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引用次数: 0
The Effect of Telehomecare on Patients' Health-Related Quality of Life, Satisfaction, Disease Self-Management Skills, Provider Satisfaction, and Informal Caregiver Strain: Longitudinal Cohort and Cross-Sectional Study. 远程家庭护理对患者健康相关生活质量、满意度、疾病自我管理技能、提供者满意度和非正式照顾者压力的影响:纵向队列和横断面研究
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-15 DOI: 10.2196/70809
Troy Francis, Aleksandra Stanimirovic, Sonia Meerai, Nida Shahid, Valeria E Rac
<p><strong>Background: </strong>Heart failure (HF) and chronic obstructive pulmonary disease (COPD) are responsible for a significant amount of the economic and chronic disease burden that impacts the Ontario health system. Telehomecare, a home self-management program launched by the Ontario Telemedicine Network (OTN), was created to improve access to quality care and limit health care use. However, few data are available on patient-, caregiver-, and provider-reported outcomes of telehomecare.</p><p><strong>Objective: </strong>This study aims to evaluate the impact of the OTN telehomecare program on the health-related quality of life (HRQoL), disease-management skills, and satisfaction of patients with HF and those with COPD; informal caregiver strain index; and nurse satisfaction with telehomecare.</p><p><strong>Methods: </strong>We used a prospective longitudinal cohort design, including patients with HF and those with COPD enrolled in Ontario's telehomecare program, informal caregivers of patients in the program, and nurses providing services in telehomecare. Patients and informal caregivers were administered telephone surveys at baseline, month 3, month 6, and month 12 follow-up from July 2016 to December 2019. The outcomes for the longitudinal surveys were patient-perceived HRQoL, disease self-management skills, perception of telehomecare (ease of use and usefulness), satisfaction with telehomecare, and informal caregiver-perceived strain. Cross-sectional surveys were conducted with nurses to assess nurse perception and satisfaction with telehomecare. Participant data were analyzed using general linear mixed models in SAS Statistical Software (version 9.4; SAS Institute Inc).</p><p><strong>Results: </strong>Overall, a total of 194 patients (HF, n=117; COPD, n=77), 62 caregivers, and 24 nurses participated, with an overall response rate of 51% (280/551). The average age of patients with HF and those with COPD was 71 (SD 11.3) years and 70 (SD 11.1) years, respectively, and 52% (100/194) were men. A significant improvement in overall HRQoL was observed among patients with HF at month 12 (-18.37, P<.001). Minimal clinically important differences were observed across all HRQoL domains for people with HF, indicating clinically meaningful improvement over the study period. No statistically significant improvement in HRQoL was observed among patients with COPD; however, minimal clinically important differences were observed in the physical functioning dimension. Patients reported being confident in self-managing their diseases throughout the study, but as patients aged, their perception of and satisfaction with telehomecare was shown to decrease (P=.002 and P=.002, respectively). Caregivers reported relatively low strain scores (mean 10.3, SD 5.9) throughout the program, and nurses reported moderate levels of satisfaction (mean 6.7, SD 1.5) with telehomecare at follow-up.</p><p><strong>Conclusions: </strong>In this population, telehomecare demonstr
背景:心力衰竭(HF)和慢性阻塞性肺疾病(COPD)是影响安大略省卫生系统的经济和慢性疾病负担的重要原因。远程家庭护理是安大略省远程医疗网络(OTN)发起的一项家庭自我管理计划,旨在改善获得高质量护理的机会并限制保健服务的使用。然而,很少有关于病人、护理者和提供者报告的远程家庭护理结果的数据。目的:本研究旨在评估OTN远程家庭护理计划对HF和COPD患者健康相关生活质量(HRQoL)、疾病管理技能和满意度的影响;非正式照顾者压力指数;以及护士对远程家庭护理的满意度。方法:我们采用前瞻性纵向队列设计,包括参加安大略省远程家庭护理计划的HF和COPD患者,该计划患者的非正式护理人员以及提供远程家庭护理服务的护士。在2016年7月至2019年12月的基线、第3个月、第6个月和第12个月随访期间,对患者和非正式护理人员进行电话调查。纵向调查的结果是患者感知的HRQoL、疾病自我管理技能、远程家庭护理的感知(易用性和有用性)、远程家庭护理的满意度和非正式护理者感知的压力。本研究以护士为对象,进行横断面调查,以评估护士对远程家庭护理的认知及满意度。使用SAS Statistical Software (version 9.4; SAS Institute Inc)中的一般线性混合模型分析参与者数据。结果:总体而言,共有194例患者(HF, n=117; COPD, n=77), 62名护理人员和24名护士参与,总有效率为51%(280/551)。HF患者和COPD患者的平均年龄分别为71 (SD 11.3)岁和70 (SD 11.1)岁,男性占52%(100/194)。在HF患者中,在第12个月观察到总体HRQoL的显著改善(-18.37,p)。结论:在该人群中,远程家庭护理证明能够改善HF患者和COPD患者的HRQoL。然而,远程家庭护理后患者HRQoL改善的长期可持续性需要进一步调查。此外,远程家庭护理被证明可以减少非正式照顾者感知的压力,护士对远程家庭护理的满意度和感知的护理质量有中等水平。
{"title":"The Effect of Telehomecare on Patients' Health-Related Quality of Life, Satisfaction, Disease Self-Management Skills, Provider Satisfaction, and Informal Caregiver Strain: Longitudinal Cohort and Cross-Sectional Study.","authors":"Troy Francis, Aleksandra Stanimirovic, Sonia Meerai, Nida Shahid, Valeria E Rac","doi":"10.2196/70809","DOIUrl":"10.2196/70809","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Heart failure (HF) and chronic obstructive pulmonary disease (COPD) are responsible for a significant amount of the economic and chronic disease burden that impacts the Ontario health system. Telehomecare, a home self-management program launched by the Ontario Telemedicine Network (OTN), was created to improve access to quality care and limit health care use. However, few data are available on patient-, caregiver-, and provider-reported outcomes of telehomecare.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aims to evaluate the impact of the OTN telehomecare program on the health-related quality of life (HRQoL), disease-management skills, and satisfaction of patients with HF and those with COPD; informal caregiver strain index; and nurse satisfaction with telehomecare.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;We used a prospective longitudinal cohort design, including patients with HF and those with COPD enrolled in Ontario's telehomecare program, informal caregivers of patients in the program, and nurses providing services in telehomecare. Patients and informal caregivers were administered telephone surveys at baseline, month 3, month 6, and month 12 follow-up from July 2016 to December 2019. The outcomes for the longitudinal surveys were patient-perceived HRQoL, disease self-management skills, perception of telehomecare (ease of use and usefulness), satisfaction with telehomecare, and informal caregiver-perceived strain. Cross-sectional surveys were conducted with nurses to assess nurse perception and satisfaction with telehomecare. Participant data were analyzed using general linear mixed models in SAS Statistical Software (version 9.4; SAS Institute Inc).&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Overall, a total of 194 patients (HF, n=117; COPD, n=77), 62 caregivers, and 24 nurses participated, with an overall response rate of 51% (280/551). The average age of patients with HF and those with COPD was 71 (SD 11.3) years and 70 (SD 11.1) years, respectively, and 52% (100/194) were men. A significant improvement in overall HRQoL was observed among patients with HF at month 12 (-18.37, P&lt;.001). Minimal clinically important differences were observed across all HRQoL domains for people with HF, indicating clinically meaningful improvement over the study period. No statistically significant improvement in HRQoL was observed among patients with COPD; however, minimal clinically important differences were observed in the physical functioning dimension. Patients reported being confident in self-managing their diseases throughout the study, but as patients aged, their perception of and satisfaction with telehomecare was shown to decrease (P=.002 and P=.002, respectively). Caregivers reported relatively low strain scores (mean 10.3, SD 5.9) throughout the program, and nurses reported moderate levels of satisfaction (mean 6.7, SD 1.5) with telehomecare at follow-up.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;In this population, telehomecare demonstr","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"10 ","pages":"e70809"},"PeriodicalIF":2.0,"publicationDate":"2026-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12856394/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145984689","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Personalized Transdiagnostic Cognitive Behavior Therapy With Midtreatment Stepped Care to Improve Mental Health Among University Students in Sweden: Feasibility Study for a Randomized Controlled Trial. 个性化跨诊断认知行为治疗与中间治疗阶梯式护理改善瑞典大学生心理健康:一项随机对照试验的可行性研究
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-15 DOI: 10.2196/68698
Naira Topooco, Philip Lindner, Claes Andersson, Petra Lindfors, Olof Molander, Martin Kraepelien, Christopher Sundström, George Vlaescu, Gerhard Andersson, Marcus Bendtsen, Anne H Berman
<p><strong>Background: </strong>University students show a high prevalence of diverse mental health problems, requiring adaptable interventions to assist them in improving their mental health.</p><p><strong>Objective: </strong>This study aimed to evaluate the feasibility of transdiagnostic internet-delivered cognitive behavioral therapy (ICBT) for anxiety and depression in preparation for a randomized controlled trial. ICBT incorporated 2 innovative approaches to increase precision: user-steered content personalization and within-treatment adaptive modification based on early symptom trajectory.</p><p><strong>Methods: </strong>This single-group, open-label study was conducted online in Sweden in the autumn of 2021, recruiting from students who had completed the World Health Organization (WHO) World Mental Health International College Student (WMH-ICS) mental health survey. Participants were eligible if they scored 5-19 on the Patient Health Questionnaire-9 (PHQ-9), or ≥5 on the Generalized Anxiety Disorder-7 (GAD-7), or both. Participants completed an 8-week ICBT program with therapist support. They initially personalized their program by selecting a primary problem orientation, anxiety or depression, and choosing additional elective modules, and could consult their therapist regarding these choices. At midtreatment, stepped care was piloted, in which participants without symptom improvement were randomized to adaptive enhancement of therapist support or to continue treatment as before. The main feasibility outcomes included data on reach and uptake, intervention acceptability, stepped care procedures, and assessment retention up to 6 months. The GAD-7 and PHQ-9 were the primary outcome measures, with changes in scores calculated using mixed effects models.</p><p><strong>Results: </strong>Of 749 invited students, 55 (7%) completed the study screening, and 28 (4%) were included. The GAD-7 baseline score was 9.5 (SD 4.4), and the PHQ-9 baseline score was 11.2 (SD 5.2). Participants opened 6.2 (SD 2.2) out of the 8 treatment modules. The user-directed personalization yielded 27 unique treatment configurations across 28 participants. At week 4, 16/27 (59%) participants remaining in treatment were randomized in the stepped care procedure. Ratings on self-report measures showed acceptable to good therapeutic alliance and treatment satisfaction. Eleven participants reported increased stress associated with the treatment. Reductions in depression and anxiety symptoms were observed at postmeasurement and 6 months follow-up, with 43% attrition at those times.</p><p><strong>Conclusions: </strong>This pioneering study of personalized ICBT with adaptive change among university students demonstrated the overall feasibility of the treatment. To enhance the design of a future definitive trial, modifications are necessary to mitigate assessment attrition and reduce treatment-related stress.</p><p><strong>Trial registration: </strong>ClinicalTrials.gov NCT05509660
背景:大学生存在多种心理健康问题,需要适应性强的干预措施来帮助他们改善心理健康。ICBT采用了两种创新方法来提高精度:用户导向的内容个性化和基于早期症状轨迹的治疗内自适应修改。方法:这项单组、开放标签的研究于2021年秋季在瑞典在线进行,招募了完成世界卫生组织(who)世界心理卫生国际大学生(whh - ics)心理健康调查的学生。如果参与者在患者健康问卷-9 (PHQ-9)中得分为5-19,或在广泛性焦虑障碍-7 (GAD-7)中得分≥5,或两者兼有,则符合资格。参与者在治疗师的支持下完成了为期8周的ICBT项目。他们最初通过选择主要问题取向、焦虑或抑郁,以及选择额外的选修模块来个性化他们的项目,并可以就这些选择咨询他们的治疗师。在治疗中期,试点阶梯式护理,其中没有症状改善的参与者被随机分配到适应性增强治疗师支持或继续治疗之前。主要的可行性结果包括覆盖范围和吸收、干预可接受性、分步护理程序和评估保留长达6个月的数据。GAD-7和PHQ-9是主要的结局指标,使用混合效应模型计算得分的变化。结果:在749名受邀学生中,55名(7%)完成了研究筛选,28名(4%)被纳入研究。GAD-7基线评分为9.5 (SD 4.4), PHQ-9基线评分为11.2 (SD 5.2)。参与者打开了8个治疗模块中的6.2个(SD 2.2)。用户导向的个性化在28名参与者中产生了27种独特的治疗配置。在第4周,16/27(59%)仍在接受治疗的参与者被随机分配到分步护理程序中。自我报告量表的评分显示良好的治疗配合度和治疗满意度。11名参与者报告说,治疗增加了他们的压力。在测量后和6个月的随访中观察到抑郁和焦虑症状的减少,在这些时间里减少了43%。结论:在大学生中进行的具有适应性变化的个性化ICBT的开创性研究证明了这种治疗的总体可行性。为了加强未来确定试验的设计,有必要进行修改,以减轻评估损耗和减少治疗相关的压力。试验注册:ClinicalTrials.gov NCT05509660;https://clinicaltrials.gov/study/NCT05509660。
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引用次数: 0
Preferences for an Experience Sampling Method-Based Tool as an Adjunct to Usual Treatment in Patients With Problem Substance Use: Qualitative Study. 对经验抽样方法为基础的工具的偏好,作为问题物质使用患者常规治疗的辅助:定性研究。
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-15 DOI: 10.2196/79510
Adam Kurilla, Natália Čavojská, Theresa Ikegwuonu, Marta Nemčíková, Julia Cc Schulte-Strathaus, Lotte Uyttebroek, Joanne R Beames, Dagmar Breznoščáková, Daniel Dančík, Michal Hajdúk, Anton Heretik, Ľubomíra Izáková, Zuzana Katreniaková, Inez Myin-Germeys, Ján Pečeňák, Ulrich Reininghaus, Anita Schick, Maria Wolters

Background: Mobile health tools that use the Experience Sampling Method (ESM) appear to be a promising tool to streamline and improve the treatment of substance use disorders. However, patient involvement in the development of these tools is uncommon, and research on the preferences of people being treated for substance use disorders has been scarce. In the scope of the European Union IMMERSE (Implementing Mobile Mental health Recording Strategy for Europe) consortium, an ESM-based tool for Digital Mobile Mental Health (DMMH) was first codeveloped and later tested in 4 European countries.

Objective: This study aimed to achieve an understanding of preferences for features of DMMH among mental health service users with problem substance use.

Methods: In 4 European countries, service users were recruited for a semistructured qualitative interview, which started with the presentation of a prototype of the DMMH. Data analysis was performed through directed qualitative content analysis.

Results: The analytical sample consisted of 12 (5 female, 6 male, and 1 nonbinary person) participants with problem substance use aged 18-50 years. There were 4 participants from Slovakia, 3 from Belgium, 4 from Germany, and 1 from Scotland. Patient preferences were classified into 7 categories: notifications, questions, user interface, functionality changes, visualizations, sharing data with clinicians, and sharing data with others. The proposed intensive notification schedule was deemed acceptable by service users as long as the questionnaire is short. Participants expressed a preference for open-text response options, Ecological Momentary Interventions, and options for individual customization of several elements of the tool. Data visualization was considered an important aid for communication with clinicians, with whom all participants wanted to share data obtained with DMMH. The possibility of sharing data with other people depended on the quality of the relationship with them.

Conclusions: In the development of ESM-based mobile health tools for people with problem substance use, their preferences for content, functionality, and appearance of the tools should be considered so they match patients' treatment needs.

背景:使用经验抽样方法(ESM)的移动卫生工具似乎是简化和改善物质使用障碍治疗的有前途的工具。然而,患者参与这些工具的开发并不常见,并且对正在接受药物使用障碍治疗的人的偏好的研究很少。在欧洲联盟实施欧洲流动精神卫生记录战略联盟的范围内,首先共同开发了一种基于esm的数字流动精神卫生(DMMH)工具,后来在4个欧洲国家进行了测试。目的:本研究旨在了解有问题物质使用的精神卫生服务使用者对DMMH特征的偏好。方法:在4个欧洲国家,招募了服务用户进行半结构化定性访谈,首先介绍了DMMH的原型。通过直接定性内容分析进行数据分析。结果:分析样本包括12名年龄在18-50岁的问题物质使用参与者(女性5人,男性6人,非二元人格1人)。斯洛伐克4人,比利时3人,德国4人,苏格兰1人。患者偏好分为7类:通知、问题、用户界面、功能变化、可视化、与临床医生共享数据以及与他人共享数据。只要问卷短,服务用户认为建议的密集通知时间表是可以接受的。参与者表达了对开放文本响应选项、生态瞬时干预和工具若干元素的个人定制选项的偏好。数据可视化被认为是与临床医生沟通的重要辅助手段,所有参与者都希望与临床医生共享从DMMH获得的数据。与他人共享数据的可能性取决于与他们关系的质量。结论:在为问题物质使用人群开发基于esm的移动健康工具时,应考虑他们对工具内容、功能和外观的偏好,以便与患者的治疗需求相匹配。
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引用次数: 0
Contribution of an Online Intervention to Developing Communities of Practice: Mixed Methods Evaluation of an Online Safety Hub to Address Harmful Online Content in Relation to Self-Harm and Suicide. 在线干预对发展实践社区的贡献:在线安全中心解决与自我伤害和自杀有关的有害在线内容的混合方法评估。
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-14 DOI: 10.2196/72130
Arne Mueller, Gemma Hughes, Gregory Maniatopoulos

Background: Online harm affects many people and has been associated with self-harm and suicidal ideation. Although there is an emerging body of evidence that addressing adverse online experiences should be part of the support offered to people who are at risk of self-harm and suicide, there has been little guidance to date on how this support might be provided and how safe conversations can be had on the subject. A UK charity dedicated to offering emotional support to anyone experiencing mental discomfort, having difficulty coping, or being at risk of suicide developed a digital intervention, the Online Safety Hub (the Hub), to address this shortfall.

Objective: The study aimed to evaluate the impact of the Hub on practitioners (people who provide support) and people with lived experiences of suicide and self-harm and to determine what learning environment is best suited to increase and maintain learning in the context of the Hub.

Methods: A sequential explanatory mixed methods evaluation comprised a rapid literature review, data collected from people with lived experience (n=6) and practitioners through an analysis of the Hub's activity data, 2 surveys (survey 1: n=45; survey 2: n=368), interviews (n=9), and focus groups (n=7). Surveys were analyzed for descriptive purposes only, and the interview and focus group analyses comprised coding of data and thematic analysis. The study design was informed by a panel of people with lived experience of online harm resulting in either self-harm and/or suicidal ideation.

Results: Initially, the evaluation found limited uptake of the Hub. Engagement with the Hub was impeded by a lack of clarity on the part of practitioners as to whether they were the intended audience. The evaluation process prompted the charity to design and deliver webinars to facilitate uptake of the Hub. Practitioners who engaged with the Hub via webinars found the content useful and were able to consider incorporating their learning into practice. The webinars offered a more social learning experience than individual engagement with the Hub, providing a community of practice for people with common interests across diverse organizational settings. Opportunities for shared learning and the supportive nature of the community of practice were valued when learning about the sensitive and difficult topic of online harm in relation to self-harm and suicide. The Hub contributed to awareness-raising and shared learning.

Conclusions: Online resources alone may not be sufficient for an intervention to effectively raise awareness and change practice. Social learning facilitated through communities of practice can enhance engagement, uptake, and learning.

背景:网络伤害影响到许多人,并与自我伤害和自杀意念有关。尽管有越来越多的证据表明,解决不良的网络经历应该成为向有自残和自杀风险的人提供支持的一部分,但迄今为止,关于如何提供这种支持以及如何安全地就这个话题进行对话的指导很少。一家英国慈善机构致力于为任何经历精神不适、难以应对或有自杀风险的人提供情感支持,为了解决这一不足,他们开发了一种数字干预手段——在线安全中心(Hub)。目的:本研究旨在评估中心对从业人员(提供支持的人)和有自杀和自残生活经历的人的影响,并确定哪种学习环境最适合在中心的背景下增加和维持学习。方法:顺序解释性混合方法评估包括快速文献综述,从有生活经验的人(n=6)和通过分析中心活动数据收集的从业者中收集的数据,2项调查(调查1:n=45;调查2:n=368),访谈(n=9)和焦点小组(n=7)。调查的分析仅用于描述目的,访谈和焦点小组分析包括数据编码和专题分析。这项研究的设计是由一组有过网络伤害经历的人提供的,这些人要么会自残,要么会产生自杀念头。结果:最初,评估发现对Hub的吸收有限。由于从业者不清楚他们是否是目标受众,因此阻碍了与该中心的接触。评估过程促使慈善机构设计和举办网络研讨会,以促进对中心的吸收。通过网络研讨会参与Hub的从业者发现内容很有用,并且能够考虑将他们的学习融入实践。网络研讨会提供了比个人参与Hub更社会化的学习体验,为不同组织环境中有共同兴趣的人提供了一个实践社区。在了解与自我伤害和自杀相关的在线伤害这一敏感和困难的话题时,共享学习的机会和实践社区的支持性质受到重视。该中心有助于提高认识和共享学习。结论:在线资源本身可能不足以进行干预,以有效地提高认识和改变做法。通过实践社区促进的社会学习可以增强参与、吸收和学习。
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引用次数: 0
Evaluating the Efficacy of AI-Based Interactive Assessments Using Large Language Models for Depression Screening: Development and Usability Study. 使用大型语言模型评估基于人工智能的抑郁症筛查互动评估的有效性:开发和可用性研究。
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-13 DOI: 10.2196/78401
Zheng Jin, Jiaxing Hu, Dandan Bi, Kaibin Zhao, Huan Yu

Background: The evolution of language models, particularly large language models, has introduced transformative potential for psychological assessment, challenging traditional rating scale methods that have dominated clinical practice for over a century.

Objective: This study aimed to develop and validate an automated assessment paradigm that integrates natural language processing with conventional measurement tools to assess depressive symptoms, exploring its feasibility as a novel approach in psychological evaluation.

Methods: A cohort of 115 participants, including 28 (24.3%) individuals diagnosed with depression, completed the Beck Depression Inventory Fast Screen via a custom ChatGPT interface (BDI-FS-GPT) and the Chinese version of the Patient Health Questionnaire-9 (PHQ-9). Statistical analyses included the Spearman correlation (PHQ-9 vs BDI-FS-GPT scores), Cohen κ (diagnostic agreement), and area under the curve (AUC) evaluation.

Results: Spearman analysis revealed a moderate correlation between PHQ-9 and BDI-FS-GPT scores. The Cohen κ indicated moderate diagnostic agreement between the PHQ-9 and the BDI-FS-GPT (κ=0.43; 76.5% agreement), substantial agreement between the BDI-FS-GPT and the clinical diagnosis (κ=0.72; 88.7% agreement), and moderate agreement between the PHQ-9 and the clinical diagnosis (κ=0.55; 71.4% agreement). The BDI-FS-GPT demonstrated excellent diagnostic accuracy (AUC=0.953) at a cutoff of 3, detecting 89.3% of participants with depression with an 11.5% false-positive rate compared to the PHQ-9 (AUC=0.859) at a cutoff of 5 (sensitivity=71.4%; false-positive rate=13.8%). Participants also reported significantly higher satisfaction with the automated assessment compared to the traditional scale (P=.02).

Conclusions: The automated assessment paradigm framework combines the interactivity and personalization of natural language processing-powered tools with the psychometric rigor of traditional scales, suggesting a preliminary feasibility paradigm for future psychological assessment. Its ability to enhance engagement while maintaining reliability and validity provides encouraging evidence, warranting validation in larger and more diverse studies as large language model technology advances.

International registered report identifier (irrid): RR2-10.1101/2024.07.19.24310543.

背景:语言模型的发展,特别是大型语言模型的发展,为心理评估带来了变革潜力,挑战了一个多世纪以来主导临床实践的传统评定量表方法。目的:本研究旨在开发和验证一种将自然语言处理与传统测量工具相结合的抑郁症状自动评估范式,探索其作为一种新的心理评估方法的可行性。方法:115名参与者,其中28名(24.3%)被诊断为抑郁症,通过自定义ChatGPT界面(BDI-FS-GPT)和中文版患者健康问卷-9 (PHQ-9)完成贝克抑郁量表快速筛选。统计分析包括Spearman相关性(PHQ-9与BDI-FS-GPT评分)、Cohen κ(诊断一致性)和曲线下面积(AUC)评估。结果:Spearman分析显示PHQ-9与BDI-FS-GPT评分有中度相关性。Cohen κ表明PHQ-9与BDI-FS-GPT的诊断一致(κ=0.43,一致性76.5%),BDI-FS-GPT与临床诊断一致(κ=0.72,一致性88.7%),PHQ-9与临床诊断一致(κ=0.55,一致性71.4%)。BDI-FS-GPT在截断值为3时显示出出色的诊断准确性(AUC=0.953),与PHQ-9 (AUC=0.859)在截断值为5时(灵敏度=71.4%,假阳性率=13.8%)相比,检测出89.3%的抑郁症参与者,假阳性率为11.5%。与传统量表相比,参与者对自动评估的满意度也显著提高(P= 0.02)。结论:自动评估范式框架将自然语言处理工具的交互性和个性化与传统量表的心理测量严谨性相结合,为未来的心理评估提供了初步的可行性范式。它在保持可靠性和有效性的同时增强参与度的能力提供了令人鼓舞的证据,保证随着大型语言模型技术的进步,在更大、更多样化的研究中得到验证。国际注册报告标识符(irrid): RR2-10.1101/2024.07.19.24310543。
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引用次数: 0
Survey Evaluation of the Role of Social Media and Social Support for Transgender, Nonbinary, and Intersex People: Observational Study. 社会媒体对跨性别、非二元性和双性人社会支持作用的调查评估:观察性研究。
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-13 DOI: 10.2196/79614
Krishnan Nayar, Vivian C Iloabuchi, Juliana M Kling, Bithika Thompson, Christopher Dodoo, Robert Horsley
<p><strong>Background: </strong>Transgender and gender-diverse (TGD) people experience greater health disparities than their cisgender counterparts. Social determinants of health are linked to these health disparities in minority communities, including the TGD community. Lack of social support contributes significantly to these disparities for the TGD community.</p><p><strong>Objective: </strong>The aim of this study was to evaluate the role of social media and social support groups among TGD patients who attend a transgender clinic.</p><p><strong>Methods: </strong>A questionnaire was developed through an iterative process and emailed to TGD people attending a tertiary care TGD-focused clinic. The survey assessed social media use (platforms, duration, and adverse effects), social support groups (past participation and interest in current participation), and demographic characteristics (age, gender, race and ethnicity, educational level, religious affiliation, and income).</p><p><strong>Results: </strong>Our survey garnered 48 responses. Of these participants, 50% (n=24) identified as transfeminine or transgender women, 29.2% (n=14) identified as transmasculine or transgender men, 8.3% (n=4) identified as nonbinary, 2.1% (n=1) identified as genderfluid, and 10.4% (n=5) identified as another identity. Our respondents' average age was 35 (SD 15.6) years. Nearly 70% (n=31, 64.6%) reported at least monthly transphobia, and 35.4% (n=17) reported at least weekly transphobia. Primary social support was reported as coming from an in-person significant other or friend 49% (n=24) of the time and from social media or online friends 12.5% (n=6) of the time. Social media was used for the primary purpose of interacting with queer or TGD people by 65% (n=33) of respondents, and the most common sites used were Discord, Reddit, and Instagram. Among respondents who either were attending or had attended a gender identity-focused support group, 61% (14/23) reported them being beneficial. In total, 52% (25/48) had never attended a support group related to their gender identity, and 60% (15/23) were open to attending.</p><p><strong>Conclusions: </strong>This study found that social media is already being used by TGD people for the purpose of interacting with other queer and transgender people but also that there are risks associated with its use. Given this reality, counseling patients on social media use should focus on safety in use and honest discussions of both the risks and benefits associated with its use. Regarding social support groups focused on gender identity, many current or previous attendants reported that support groups were helpful for finding social support, especially early on in one's transition and when other avenues of support are not present. Additionally, many respondents who had never attended a support group were interested in attending for the perceived benefits of increased social support and interest in meeting other community members. Engag
背景:跨性别和性别多样化(TGD)的人比他们的顺性别同行经历更大的健康差异。健康的社会决定因素与少数民族社区,包括TGD社区的这些健康差异有关。缺乏社会支持在很大程度上导致了TGD社区的这些差异。目的:本研究的目的是评估社交媒体和社会支持团体在参加变性诊所的TGD患者中的作用。方法:通过迭代过程开发一份问卷,并通过电子邮件发送给参加三级保健TGD重点诊所的TGD患者。该调查评估了社交媒体的使用(平台、持续时间和负面影响)、社会支持团体(过去参与和对当前参与的兴趣)和人口特征(年龄、性别、种族和民族、教育水平、宗教信仰和收入)。结果:我们的调查获得了48份回复。在这些参与者中,50% (n=24)被确定为跨女性或跨性别女性,29.2% (n=14)被确定为跨男性或跨性别男性,8.3% (n=4)被确定为非二元性别,2.1% (n=1)被确定为性别流体,10.4% (n=5)被确定为其他身份。受访者的平均年龄为35岁(标准差15.6)。近70% (n=31, 64.6%)报告至少每月有跨性别恐惧症,35.4% (n=17)报告至少每周有跨性别恐惧症。据报道,主要的社会支持来自面对面的重要他人或朋友49% (n=24),来自社交媒体或在线朋友12.5% (n=6)。65% (n=33)的受访者使用社交媒体的主要目的是与酷儿或变性人互动,最常用的网站是Discord、Reddit和Instagram。在正在参加或曾经参加过以性别认同为中心的支持小组的受访者中,61%(14/23)的人表示他们是有益的。总共有52%(25/48)的人从未参加过与他们的性别认同有关的支持小组,60%(15/23)的人愿意参加。结论:这项研究发现,TGD人群已经在使用社交媒体与其他酷儿和变性人进行互动,但使用社交媒体也存在风险。鉴于这一现实,对患者使用社交媒体的咨询应侧重于使用安全性,并诚实地讨论与使用社交媒体相关的风险和益处。关于关注性别认同的社会支持小组,许多现任或以前的参与者报告说,支持小组有助于找到社会支持,特别是在一个人的过渡早期和其他支持途径不存在的时候。此外,许多从未参加过支持小组的受访者对参加支持小组感兴趣,因为他们认为可以增加社会支持,并有兴趣与其他社区成员会面。让TGD患者参与使用社交媒体和社会支持团体来获得性别认同,可能有助于提高对他们的支持,尽管使用社交媒体会带来仇恨和跨性别恐惧症的风险。
{"title":"Survey Evaluation of the Role of Social Media and Social Support for Transgender, Nonbinary, and Intersex People: Observational Study.","authors":"Krishnan Nayar, Vivian C Iloabuchi, Juliana M Kling, Bithika Thompson, Christopher Dodoo, Robert Horsley","doi":"10.2196/79614","DOIUrl":"10.2196/79614","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Transgender and gender-diverse (TGD) people experience greater health disparities than their cisgender counterparts. Social determinants of health are linked to these health disparities in minority communities, including the TGD community. Lack of social support contributes significantly to these disparities for the TGD community.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;The aim of this study was to evaluate the role of social media and social support groups among TGD patients who attend a transgender clinic.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;A questionnaire was developed through an iterative process and emailed to TGD people attending a tertiary care TGD-focused clinic. The survey assessed social media use (platforms, duration, and adverse effects), social support groups (past participation and interest in current participation), and demographic characteristics (age, gender, race and ethnicity, educational level, religious affiliation, and income).&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Our survey garnered 48 responses. Of these participants, 50% (n=24) identified as transfeminine or transgender women, 29.2% (n=14) identified as transmasculine or transgender men, 8.3% (n=4) identified as nonbinary, 2.1% (n=1) identified as genderfluid, and 10.4% (n=5) identified as another identity. Our respondents' average age was 35 (SD 15.6) years. Nearly 70% (n=31, 64.6%) reported at least monthly transphobia, and 35.4% (n=17) reported at least weekly transphobia. Primary social support was reported as coming from an in-person significant other or friend 49% (n=24) of the time and from social media or online friends 12.5% (n=6) of the time. Social media was used for the primary purpose of interacting with queer or TGD people by 65% (n=33) of respondents, and the most common sites used were Discord, Reddit, and Instagram. Among respondents who either were attending or had attended a gender identity-focused support group, 61% (14/23) reported them being beneficial. In total, 52% (25/48) had never attended a support group related to their gender identity, and 60% (15/23) were open to attending.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;This study found that social media is already being used by TGD people for the purpose of interacting with other queer and transgender people but also that there are risks associated with its use. Given this reality, counseling patients on social media use should focus on safety in use and honest discussions of both the risks and benefits associated with its use. Regarding social support groups focused on gender identity, many current or previous attendants reported that support groups were helpful for finding social support, especially early on in one's transition and when other avenues of support are not present. Additionally, many respondents who had never attended a support group were interested in attending for the perceived benefits of increased social support and interest in meeting other community members. Engag","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"10 ","pages":"e79614"},"PeriodicalIF":2.0,"publicationDate":"2026-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12798915/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145966299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Perceived Changes to Mental Health When Restricting and Resuming Specific Adaptive Daily Actions: Longitudinal Qualitative Substudy Within a Randomized Controlled Trial. 当限制和恢复特定的适应性日常行为时,探索心理健康的感知变化:随机对照试验中的纵向定性亚研究。
IF 2 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-13 DOI: 10.2196/82986
Alana Fisher, Blake F Dear, Alison Dagnall, Heather D Hadjistavropoulos, Olav Nielssen, Lauren G Staples, Rony Kayrouz, Nickolai Titov
<p><strong>Background: </strong>Anxiety and depressive disorders are common and burdensome, yet many people prefer to self-manage and do not access treatment or fail to achieve meaningful improvement. Prior research indicates that the frequency of performing simple, everyday actions, namely "The Things You Do" (TYD; ie, healthy thinking, meaningful activities, having goals and plans, healthy routines, and social connection), is strongly associated with support mental health and well-being. This research has been primarily quantitative in nature, and so less is known about how people perceive and interpret changes in their mental health when engaging in or limiting these actions.</p><p><strong>Objective: </strong>This study aims to explore participants' perceptions of mental health changes and associated insights into what most impacts their mental health, during a randomized controlled trial involving the systematic restriction and followed by the resumption of the TYD actions.</p><p><strong>Methods: </strong>This longitudinal qualitative substudy analyzed weekly free-text comments from 70 healthy Australian adults (intervention group [IG] n=36; control group [CG] n=34). IG participants completed an 8-week randomized controlled trial comprising 3 phases: a 2-week baseline phase (Phase A), a 2-week behavior restriction phase during which they reduced the frequency of the TYD actions (Phase B), and a 4-week recovery or resumption phase during which they increased the frequency of the TYD actions back to usual levels (Phase C). CG participants were instructed to maintain usual habits and activities. The weekly free-text comments were related to what participants had noticed and learned about their mental health. These were thematically analyzed using framework methods to identify patterns in perceived changes, considering trial phase, group allocation, and participant characteristics.</p><p><strong>Results: </strong>Analyses identified five interrelated themes around what participants reportedly learned and what most impacted their mental health: (1) rhythms of daily life and routine, (2) harnessing internal psychological resources, (3) social support and interpersonal stressors, (4) staying active and enjoying yourself, and (5) environmental and external influences. In the IG, participants reported that behavioral restriction led to subjective disruptions across all 5 themes, precipitating declines in mood, energy, and stability; resumption fostered recovery, along with increased insights into oneself and mental health, coping strategies, and a sense of agency. Compared to the IG, the CG more often emphasized environmental and external influences.</p><p><strong>Conclusions: </strong>The findings reinforce the centrality of specific daily actions, namely the TYD, to people's subjective well-being and suggest an additional "macro-level" comprising environmental and external influences. Exposure to behavioral restriction and resumption/recovery served
背景:焦虑和抑郁障碍是常见和繁重的,但许多人更喜欢自我管理,不接受治疗或未能实现有意义的改善。先前的研究表明,执行简单的日常行动的频率,即“你做的事情”(TYD,即健康的思维,有意义的活动,有目标和计划,健康的日常活动和社会联系),与支持心理健康和福祉密切相关。这项研究本质上主要是定量的,因此人们在参与或限制这些行为时如何感知和解释他们心理健康的变化,我们所知甚少。目的:本研究旨在通过一项随机对照试验,探讨被试对心理健康变化的看法,以及对影响其心理健康的因素的相关见解,该试验包括系统限制和随后恢复的TYD行为。方法:本纵向定性亚研究分析了70名澳大利亚健康成年人每周的自由文本评论(干预组[IG] n=36;对照组[CG] n=34)。IG参与者完成了一项为期8周的随机对照试验,包括3个阶段:2周的基线阶段(a阶段),2周的行为限制阶段,在此期间他们减少了TYD行为的频率(B阶段),以及4周的恢复或恢复阶段,在此期间他们将TYD行为的频率增加到正常水平(C阶段)。CG参与者被要求保持正常的习惯和活动。每周的自由文本评论与参与者注意到和了解到的关于他们心理健康的内容有关。考虑到试验阶段、分组分配和参与者特征,使用框架方法对这些结果进行主题分析,以确定感知变化的模式。结果:分析确定了五个相互关联的主题,围绕参与者报告的学习内容和最影响他们心理健康的因素:(1)日常生活和常规节奏,(2)利用内部心理资源,(3)社会支持和人际压力源,(4)保持活跃和享受自己,以及(5)环境和外部影响。在IG中,参与者报告说,行为限制导致所有5个主题的主观干扰,导致情绪、精力和稳定性的下降;复工促进了康复,同时也增加了对自己和心理健康、应对策略和代理感的洞察力。与IG相比,CG更经常强调环境和外部影响。结论:研究结果强化了具体的日常行为(即TYD)对人们主观幸福感的中心地位,并提出了一个额外的“宏观层面”,包括环境和外部影响。接触行为限制和恢复/恢复有助于突出某些因素对心理健康的重要性,并似乎改善了人们对其心理健康的能动性和控制点的感觉。
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JMIR Formative Research
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