Journal of Autism and Developmental Disorders最新文献

Purpose: The diagnosis of Autism relies partly on the evaluation of social behavior. What is perceived as "appropriate" (social) behavior is influenced by culture, as culture shapes norms and beliefs about behavior. Culture might thus influence the interpretation of autistic traits and the diagnostic process. We aimed to study whether culture affects the interpretation and reporting of autistic traits and how autism knowledge is associated with these relations.

Methods: To do so, we investigated cross-cultural differences in self-reported autistic traits (autism-spectrum Quotient) and the commonness of these traits in Iran (n = 88), Malaysia (n = 181), Morocco (n = 94), and the Netherlands (n = 113). Additionally, we explored the relationship between (the commonness of) autistic traits and autism knowledge (Revised Autism Knowledge Survey) across these countries.

Results: The results indicated, consistent with previous studies, cross-cultural differences in both self-reported autistic traits and the commonness of these traits. Cross-cultural differences in reporting autistic traits showed that cultural background might affect their interpretation. There was a relationship between self-reported and the commonness of autistic traits. When autistic traits are considered more common, people also self-report more traits. In addition, more knowledge about autism was related to lower self-reported traits. However, within individual countries, the relationships were more nuanced.

Conclusion: It is, hence, essential to consider cultural background and autism knowledge when assessing autism cross-culturally.

Anxiety is a common co-occurring condition for autistic preschoolers. Whilst there has been extensive research evaluating anxiety prevention/reduction interventions for neurotypical preschoolers, such research is limited for autistic children. Fifty-seven parents of autistic 4-5-year olds, with varying levels of anxiety, participated in a randomised controlled trial of an autism-specific, parent-mediated intervention (CLK-CUES) to prevent or reduce anxiety in autistic preschoolers. Baseline, short-term (post-intervention) and longer term (12 months follow-up) assessments included child anxiety (ASC-ASD-P and PAS-R), intolerance of uncertainty, and parent well-being. (Trial registration ACTRN12620001322921). There were no reports of harmful effects of the intervention or trial. Linear mixed models show a significant group x time interaction for ASC-ASD-P Total score and the Uncertainty subscale with medium and large effect sizes. Post-hoc analyses show a significant decline for only the intervention group in anxiety (specifically, anxiety around uncertainty) from pre-post intervention, maintained at one year follow-up. There was no change on the PAS-R or other ASC-ASD-P subscales. CLK-CUES shows promise as a way to prevent and reduce anxiety in young autistic children, specifically anxiety related to uncertainty. Trials with larger samples are warranted. Findings also highlight the importance of using measures designed for autistic children.

Autistic individuals have varying levels of verbal fluency which can impact social outcomes. Although 70-75% of autistic individuals have functional language, findings regarding language patterns (syntax and semantics) in autistic adolescents remain inconclusive. Additionally, previous studies of language complexity use narrative samples, which do not capture autistic language in conversation. The current study examined language patterns in autistic (n = 20) and non-autistic (n = 17) youth aged 9-16 years during a conversation with a familiar versus unfamiliar adult. The study aimed to address gaps in the literature regarding autistic youth's language patterns, particularly in conversation, and the impact of speaking partners. Recordings of the conversation task were transcribed using SALT software conventions to yield measures of language production. Average length of communication units was higher among autistic compared to non-autistic youth, and among all youth when talking with familiar compared to unfamiliar partners. Youth speech also reflected greater linguistic diversity with familiar interlocutors, with no differences between autistic and non-autistic youth. Additionally, familiar interlocutors used more speech elicitation strategies (i.e., questions, prompts) than unfamiliar interlocutors across groups and interlocutors speaking with autistic youth used more speech elicitation strategies. These findings identify important similarities and differences between autistic and non-autistic youth and interlocutor speech that provide a better understanding of language patterns in autism. Importantly, this study can increase understanding and enhance support of autistic youth by highlighting that some aspects of autistic youth's language patterns in the context of conversation may be currently underestimated.

The purpose of this study was to examine parent perceptions of professional and community attitudes about autism through the lens of parenting their autistic children from birth through adulthood. Implications of this research may assist with future development and study of professional and community supports of individuals on the autism spectrum and their families. The study participants consisted of 51 parents who had an adult-aged child on the autism spectrum. One-on-one interviews were conducted with parents about their experiences raising a child with autism. Data were double-coded and analyzed using a qualitative, phenomenological approach to explore parents' experiences with and perceptions of society members' attitudes towards autism. Positive and negative themes were identified across parents' perceptions of professionals and of community members. Themes regarding professional attitudes included cooperating with family requests, presuming competence of individuals with autism, complacency towards the needs of families and individuals with autism, and discrimination towards the individual with autism based on age or level of need. Themes regarding community member attitudes included valuing the strengths of individuals with autism, accommodating autistic differences, intolerance of autistic traits, and prejudice towards individuals with autism. Findings indicate that professional and community members presented with both positive and negative attitudes towards autism and individuals on the autism spectrum, with negative attitudes proving more prevalent in parent recollections. Results suggest a need for further research and related training to improve interactions with and support of individuals with autism and their families.

Research emphasizes the importance of seamless transitions from Early Behavioral Intervention (EBI) to school-based services, but formal support during this critical period remains limited, leading to decreased parental satisfaction with autism services. This study aimed to systematically document parents' perception of the quality of services received during the transition from EBI to kindergarten, along with the predictors of this perception. The study adopted a prospective longitudinal design and relied on a validated evaluation framework, the Evaluation of the Trajectory in Autism for Parents (ETAP). ETAP allows to investigate five critical determinants (accessibility, continuity, validity, flexibility, empathy) of service quality, as rated by parents (N = 138 families), which were evaluated at three critical periods of the transition: end of EBI, beginning and end of first year of school. Quality ratings indicated generally positive perceptions but showed small to medium effect size decreases over time; validity had the largest decrease. Predictors of quality ratings and changes in ratings differed by phase of the transition and included child characteristics (gender, age, disabilities, challenging behavior), parent characteristics (maternal origin, fluency in the official language of the province, education level), and family characteristics (number of children). This study's comprehensive analysis of service quality determinants and possible risk and protective factors provides insights into improving support for families navigating the transition to school.Keywords: Autism, Early behavioral intervention, School transition, Parental perception, Service quality, Evaluation framework.

Examine how milestone development, demographics, and emotional/behavioral functioning predict autistic females meeting the cutoff on a commonly used Autism screening tool (Social Communication Questionnaire: SCQ). We hypothesized that autistic girls with fewer developmental delays, whose parents have lower education, or are Black or Multiracial would be less likely to meet the SCQ cutoff. Further, those with more symptoms of Withdrawal/Depression, Social Problems, Thought Problems, and Attention Problems on the (Child Behavioral Checklist: CBCL) would be more likely to screen positive. A subset of participants enrolled in a large national cohort (SPARK) were included (5,946 autistic females). A cutoff score on the SCQ of 11 was used to form groups: Meet (M: N = 5,186) and Not Meeting (NM: N = 760). Autistic girls who had delayed toileting and motor milestones and whose parents attained higher education were more likely to screen positive. Girls who scored within the clinical range on the CBCL Thought Problems and Attention Problems syndrome scales were more likely to screen positive. Race and reported symptoms on the Withdrawn/Depressed and Social Problems syndrome scales did not relate to screening status. Results further support the existing literature suggesting that autistic girls must present with more significant delays/symptoms to be screened and diagnosed with autism, which can could impact their access to early intervention services and future skill development. Future research should examine additional factors that specifically put females at a disadvantage for being accurately identified, particularly for those who are speaking and/or of average cognitive ability.

Camouflaging has been proposed to have a detrimental effect on quality of life, yet previous research has not accounted sufficiently for potential confounding by genetic and shared environmental factors. The current study utilized a co-twin control design providing stringent control for a range of confounders to investigate the hypothesis that camouflaging autistic traits has a negative impact on quality of life. The sample included 140 individual twins from 42 monozygotic (MZ) and 28 dizygotic (DZ) twin-pairs, enriched for participants with neurodevelopmental conditions including 22 autistic participants. All twins provided self-reports of camouflaging and quality of life. Autistic participants and specifically autistic females displayed increased camouflaging behaviors compared to non-autistic participants. Across the sample, higher levels of camouflaging were associated with reduced quality of life, surviving adjustment for confounding effects of autistic traits, ADHD, sex, and age. Within DZ- as well as MZ-pairs, which provide the highest level of control for unmeasured confounders, twins who camouflaged more reported lower quality of life compared to their co-twins, consistent with a causal influence of camouflaging on quality of life. Our results strengthen previous claims purporting camouflaging behaviors as a risk factor for reduced quality of life.

Metalinguistic awareness, the ability to manipulate and reflect upon language, remains largely unexplored in the autistic population. To address this gap, this observational cross-sectional study examines the metalinguistic abilities of school-aged autistic children in comparison to neurotypical peers in a novel tablet-based Grammatical Judgment Task (GJT) of reduced linguistic complexity engaging two kinds of metacognitive resources. Children had to judge non-verbally whether pre-recorded sentences were grammatically correct or not, following the traditional GJT paradigm assessing metamorphosyntactic skills. In addition, sentences with anomalous meaning that were either grammatically correct or grammatically incorrect were introduced to test metasemantic knowledge. Findings reveal no difference in performance between the groups, with participants performing on average above chance level both on the sentences assessing mere metamorphosyntactic skills and on the sentences placing an additional demand on metasemantics. This study shows that autistic individuals are able to mobilize metalinguistic resources when tested via a task of reduced linguistic complexity.