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An Examination of Family Transmission of Traits Measured by the Social Responsiveness Scale-Short Form. 通过社会反应性量表-简表测量特质的家庭传播研究。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-09-13 DOI: 10.1007/s10803-023-06115-2
Anna V Oppenheimer, Marc G Weisskopf, Kristen Lyall

Purpose: The Social Responsiveness Scale (SRS) is frequently used in research settings to measure characteristics associated with autism spectrum disorders (ASD). A short version has been developed but not yet tested for certain properties of the full SRS, such as familiality. The purpose of this study was to determine if prior familiality findings for the full SRS can be replicated using the short form by measuring the associations of the parental Social Responsiveness Scale-Short Form (SRS-SF) scores with child ASD diagnoses and child SRS-SF scores.

Methods: We used a nested case-control study within a longitudinal cohort study design. Participants were selected from the Nurses' Health Study II (NHS II). Cases were children of study participants who had been diagnosed with ASD, while controls had not been diagnosed with ASD and were frequency matched by year of birth to cases. 2144 out of 3161 eligible participants returned SRS forms for a child and at least one parent. Participants in NHS II completed SRS forms for their spouses and spouses completed SRS forms for NHS II participants. Parental SRS-SF scores were based on a subset of 16 questions from the SRS. ASD diagnosis among children was reported by the mothers and validated in a subset using the Autism Diagnostic Interview-Revised, as well as child SRS-SF scores.

Results: Children whose parents both had elevated SRS-SF scores (those in the top 20% of the study distribution) had a higher odds of ASD diagnosis than those who did not have elevated parental scores (OR 2.25; 95% CI 1.41, 3.58). Additionally, children whose fathers had elevated SRS-SF scores had a higher odds of ASD diagnosis (OR 2.18; 95% CI 1.60, 2.97) than those whose fathers scores were not elevated. In sex-stratified analyses, male children with elevated parental SRS-SF scores had a higher odds of ASD diagnosis than those who did not have elevated parental scores. These associations were not as evident among female children. Parental SRS-SF scores also predicted child SRS-SF scores among controls.

Conclusion: These findings are similar to prior findings for the full SRS and support the ability of the SRS-SF to capture familiality of ASD-related traits.

目的:社会反应量表(SRS)经常被用于测量自闭症谱系障碍(ASD)的相关特征。目前已开发出一个简短版本,但尚未对完整 SRS 的某些特性(如家族性)进行测试。本研究的目的是通过测量父母的社会反应性量表-简表(SRS-SF)得分与儿童 ASD 诊断和儿童 SRS-SF 得分之间的关联,确定先前在完整 SRS 中发现的家族性是否可以通过简表复制:我们采用了纵向队列研究设计中的巢式病例对照研究。研究对象选自护士健康研究 II(NHS II)。病例是被诊断患有 ASD 的研究参与者的子女,而对照组则未被诊断患有 ASD,并与病例按出生年份进行了频率匹配。在 3161 名符合条件的参与者中,有 2144 人交回了其子女和至少一名父母的 SRS 表。NHS II 的参与者为其配偶填写 SRS 表,而配偶则为 NHS II 的参与者填写 SRS 表。父母的 SRS-SF 分数基于 SRS 中 16 个问题的子集。儿童的 ASD 诊断由母亲报告,并通过自闭症诊断访谈-修订版和儿童 SRS-SF 分数对子集进行验证:父母双方的 SRS-SF 分数都较高(在研究分布中排名前 20%)的儿童被诊断为自闭症的几率要高于父母分数不高的儿童(OR 2.25; 95% CI 1.41, 3.58)。此外,父亲 SRS-SF 分数升高的儿童被诊断为 ASD 的几率(OR 2.18;95% CI 1.60,2.97)也高于父亲分数未升高的儿童。在性别分层分析中,父母 SRS-SF 分数升高的男性儿童被诊断为 ASD 的几率高于父母分数未升高的儿童。这些关联在女性儿童中并不明显。在对照组中,父母的SRS-SF得分也能预测子女的SRS-SF得分:这些研究结果与之前对完整 SRS 的研究结果相似,并支持 SRS-SF 能够捕捉 ASD 相关特征的家族性。
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引用次数: 0
Perceptions of Parents/Caregivers About the Impact of Oral Conditions on the Quality of Life of Children and Adolescents with Autism Spectrum Disorder. 父母/看护人对口腔状况对自闭症谱系障碍儿童和青少年生活质量影响的看法。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-09-26 DOI: 10.1007/s10803-023-06140-1
Stefania Werneck Procopio, Maisa Costa Tavares, Camila Faria Carrada, Flávia Almeida Ribeiro Scalioni, Rosangela Almeida Ribeiro, Saul Martins Paiva

Purpose: To investigate the perceptions of parents/caregivers about the impact of oral conditions on the oral health-related quality of life (OHRQoL) of children/adolescents with autism spectrum disorder (ASD) compared to the perceptions of parents/caregivers of children/adolescents without ASD.

Methods: A comparative cross-sectional study was conducted involving 80 children/adolescents with ASD three to 16 years of age matched by sex and age with 80 children/adolescents without ASD and their parents/caregivers. Clinical examinations were performed for the diagnosis of dental caries experience (DMFT/dmft), clinical consequences of untreated dental caries (PUFA/pufa), visible plaque (VPI), bleeding on probing (BPI), malocclusion and traumatic dental injury (TDI). Parents/caregivers answered a questionnaire addressing sociodemographic characteristics and the Brazilian version of the Parental-Caregiver Perceptions Questionnaire (P-CPQ), which measures OHRQoL from the perspective of parents/caregivers. Data analysis involved the Wilcoxon test, chi-squared test and Poisson regression.

Results: Dental caries experience impacted OHRQoL in the group with ASD regarding the total P-CPQ score (p < 0.001) as well as the "oral symptoms" (p = 0.011) and "wellbeing" (p < 0.011) domains. No differences were found between the perceptions of parents/caregivers of children/adolescents with ASD and perceptions of parents/caregivers of children/adolescents without ASD (p = 0.721).

Conclusion: Dental caries experience can have a negative impact on the OHRQoL of children/adolescents with ASD.

目的:调查父母/照顾者对口腔状况对患有自闭症谱系障碍(ASD)的儿童/青少年口腔健康相关生活质量(OHRQoL)的影响的看法,并与没有自闭症谱系疾病的儿童/少年的父母/照顾人的看法进行比较按性别和年龄匹配的3至16岁,有80名无自闭症谱系障碍的儿童/青少年及其父母/照顾者。临床检查用于诊断龋齿经验(DMFT/DMFT)、未经治疗的龋齿的临床后果(PUFA/PUFA)、可见斑块(VPI)、探查出血(BPI)、错牙合和创伤性牙损伤(TDI)。父母/照顾者回答了一份关于社会人口特征的问卷和巴西版的父母照顾者感知问卷(P-CPQ),该问卷从父母/照顾人员的角度衡量OHRQoL。数据分析包括Wilcoxon检验、卡方检验和泊松回归。结果:在总P-CPQ评分方面,龋齿经历影响了ASD组的OHRQoL(P 结论:龋齿经历会对儿童/青少年ASD的OHRQoL产生负面影响。
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引用次数: 0
Micro-Analyses Reveal Increased Parent-Child Positive Affect in Children with Poorer Adaptive Functioning Receiving the ESDM. 微观分析显示,适应功能较差的儿童在接受 ESDM 后,亲子间的积极情感有所增加。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2022-12-09 DOI: 10.1007/s10803-022-05819-1
Yana Sinai-Gavrilov, Tali Gev, Ilanit Gordon, Irit Mor-Snir, Giacomo Vivanti, Ofer Golan

Synchronous positive affect (SPA) is a key element of parent-child interaction quality which is related to favorable developmental outcomes. Children with autism spectrum disorder (ASD) and their parents tend to show less SPA compared to other populations. The current study explored changes in SPA made by parents and their children with ASD following the Preschool-Based Early Start Denver Model (PB-ESDM) intervention. Thirty children receiving PB-ESDM and 23 receiving treatment-as-usual (TAU) were assessed pre- and post- intervention using microanalysis of video-recorded parent-child interactions, in which SPA was quantified. Results showed a significant increase in SPA among children receiving PB-ESDM who had lower pre-treatment adaptive functioning. These findings suggest that SPA may serve as a sensitive treatment outcome measure for children with poorer adaptive functioning, who often struggle to show significant changes on standardized measures. The study's modest sample and non-randomized design are noted as limitations.

同步积极情感(SPA)是亲子互动质量的一个关键因素,与良好的发展结果有关。与其他人群相比,患有自闭症谱系障碍(ASD)的儿童及其父母往往表现出较少的同步积极情感(SPA)。本研究探讨了自闭症谱系障碍(ASD)儿童及其父母在接受 "学前早期启蒙丹佛模式"(PB-ESDM)干预后在 SPA 方面的变化。通过对录制的亲子互动视频进行微观分析,对 30 名接受 PB-ESDM 干预的儿童和 23 名接受常规治疗(TAU)的儿童进行了干预前和干预后的评估,并对 SPA 进行了量化。结果显示,在接受 PB-ESDM 的儿童中,治疗前适应功能较低的儿童的 SPA 明显增加。这些研究结果表明,对于适应功能较差的儿童来说,SPA 可以作为一种敏感的治疗结果测量指标,因为这些儿童通常很难在标准化测量指标上显示出明显的变化。该研究的局限性在于样本数量不多和非随机设计。
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引用次数: 0
Action-outcome Regularity Perceptual Sensitivity in Children with Developmental Coordination Disorder. 发育协调障碍儿童的行动-结果-规律-知觉敏感性。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-10-09 DOI: 10.1007/s10803-023-06144-x
Satoshi Nobusako, Wen Wen, Michihiro Osumi, Akio Nakai, Shu Morioka

Purpose: An internal model deficit is considered to underlie developmental coordination disorder (DCD); thus, children with DCD have an altered sense of agency (SoA), which is associated with depressive symptoms. Furthermore, the perception of action-outcome regularity is present in early development, is involved in the generation of SoA, and has roles in adaptive motor learning and coordinated motor skills. However, perceptual sensitivity to action-outcome regularity has not been examined in children with DCD.

Methods: We investigated perceptual sensitivity to action-outcome regularity in 6-15-year-old children with DCD and age- and sex-matched typically developing (TD) children. Both groups were assessed for coordinated motor skills with the Movement Assessment Battery for Children-2nd Edition, while the DCD group was assessed with the DCD Questionnaire, Social Communication Questionnaire, Attention-Deficit/Hyperactivity Disorder-Rating Scale, and Depression Self- Rating Scale for Children.

Results: Perceptual sensitivity to action-outcome regularity was significantly reduced in children with DCD. However, there was a significant correlation between perceptual sensitivity to action-outcome regularity and age in DCD and TD children. Perceptual sensitivity to action-outcome regularity was significantly lower in younger children with DCD than in younger and older TD children, but there were no significant differences between older children with DCD and younger and older TD children.

Conclusion: The current results suggest that children with DCD have significantly reduced perceptual sensitivity to action-outcome regularity at younger ages, which may alter SoA and inhibit internal model development, thereby reducing motor skill coordination.

目的:内部模型缺陷被认为是发育协调障碍(DCD)的基础;因此,DCD儿童的代理感(SoA)发生了改变,这与抑郁症状有关。此外,对动作-结果规律性的感知存在于早期发展中,参与SoA的产生,并在适应性运动学习和协调运动技能中发挥作用。然而,DCD儿童对行动结果规律的感知敏感性尚未得到检验。方法:我们调查了6-15岁DCD儿童和年龄和性别匹配的典型发育(TD)儿童对行动-结果规律的认知敏感性。两组均采用儿童运动评估组第2版对协调运动技能进行评估,而DCD组则采用DCD问卷、社会沟通问卷、注意力缺陷/多动障碍评定量表进行评估,结果:DCD患儿对行动结果规律的感知敏感性显著降低。然而,DCD和TD儿童对行动结果规律的感知敏感性与年龄之间存在显著相关性。年龄较小的DCD儿童对行动结果规律的感知敏感性显著低于年龄较小和年龄较大的TD儿童,但年龄较大的DCD患儿与年龄较小和年长的TD儿童之间没有显著差异。结论:目前的研究结果表明,DCD儿童在较年轻时对动作-结果规律的感知敏感性显著降低,这可能会改变SoA并抑制内部模型的发展,从而降低运动技能协调性。
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引用次数: 0
Greater Physical Activity is Associated with Lower Rates of Anxiety and Depression Among Autistic and ADHD Youth: National Survey of Children's Health 2016-2020. 在自闭症和多动症青少年中,更多的体育活动与较低的焦虑和抑郁率有关:2016-2020年全国儿童健康调查。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-09-26 DOI: 10.1007/s10803-023-06117-0
Amy L Accardo, Nancy M H Pontes, Manuel C F Pontes

Data from the National Survey of Children's Health 2016-2020 was used to examine the association between physical activity and anxiety and depression among autistic youth, non-autistic youth with ADHD, and non-autistic non-ADHD youth. There was a significant negative association between physical activity and anxiety among all groups. Reduction in anxiety or depression associated with greater physical activity was at least as large or larger among autistic or nonautistic youth with ADHD than among non-autistic non-ADHD youth. Unfortunately, even autistic youth who were physically active 4 to 7 days a week showed very high rates of anxiety (54.5%) and depression (23.1%). Very high levels of dual diagnosis of anxiety and depression in autistic youth and youth with ADHD also emerged. Findings highlight a need to determine the cause-and-effect relationships among physical activity, anxiety, and depression across groups and to prioritize mental health screenings and support for autistic youth and youth with ADHD.

2016-2020年全国儿童健康调查的数据用于研究自闭症青年、患有多动症的非自闭症青年和非自闭症非多动症青年的体育活动与焦虑和抑郁之间的关系。在所有组中,体育活动与焦虑之间存在显著的负相关。患有多动症的自闭症或非自闭症青年与非自闭症非多动症青年相比,与更多的体育活动相关的焦虑或抑郁的减少幅度至少同样大或更大。不幸的是,即使是每周运动4到7天的自闭症青年,其焦虑和抑郁的发生率也很高(54.5%)。自闭症青年和多动症青年的焦虑和抑郁双重诊断水平也很高。研究结果强调,需要确定不同群体的体育活动、焦虑和抑郁之间的因果关系,并优先考虑对自闭症青年和多动症青年进行心理健康筛查和支持。
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引用次数: 0
The Earlier, the Better? An In-Depth Interview Study on the Ethics of Early Detection with Parents of Children at an Elevated Likelihood for Autism. 越早越好?一项关于自闭症高危儿童父母早期检测伦理的深入访谈研究。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-09-26 DOI: 10.1007/s10803-023-06139-8
Gert-Jan Vanaken, Ilse Noens, Jean Steyaert, Lotte van Esch, Petra Warreyn, Kristien Hens

Autism is increasingly viewed as an expression of neurodiversity deserving accommodation, rather than merely as a disorder in need of remediation or even prevention. This reconceptualization has inspired calls to broaden the ethical debate on early autism care beyond matters of efficient screenings and effective interventions. We conducted 14 in-depth interviews with 26 parents of infants at an increased likelihood for autism (siblings, preterms and children with persistent feeding difficulties) to understand which benefits and risks these parents see for the implementation of a systematic, early autism detection program in our region. With this study, we aim to contribute empirically to the ethical debate on good and just early autism care in the age of neurodiversity. Data were analyzed according to the QUAGOL-methodology. Three main themes emerged from our analysis. In their evaluation of early autism detection, parents discussed how a diagnosis helps gain a different perspective fostering understanding and recognition for both child and parent. Second, a diagnosis supports parents in adjusting their parenting practices, to justify this deviation from "normal" parenting and to strive for such adjusted environments beyond the nuclear family. Third, an autism diagnosis induces ambiguities parents need to navigate, involving questions on whether and when to mobilize the diagnostic label and which language to use to talk about autism. We discuss the complex position of parents of a (potentially) autistic child in terms of moving back and forth across the ab/normal binary and describe implications for the ethical debate on early autism detection.

自闭症越来越被视为神经多样性的一种表现,值得调节,而不仅仅是一种需要补救甚至预防的疾病。这种重新概念化激发了人们的呼声,将关于早期自闭症护理的伦理辩论扩大到有效筛查和有效干预之外。我们对26名自闭症可能性增加的婴儿父母(兄弟姐妹、学龄前儿童和持续喂养困难的儿童)进行了14次深入访谈,以了解这些父母认为在我们地区实施系统的早期自闭症检测计划有哪些好处和风险。通过这项研究,我们旨在从经验上为神经多样性时代关于良好和公正的早期自闭症护理的伦理辩论做出贡献。根据QUAGOL方法对数据进行分析。我们的分析提出了三个主要主题。在对早期自闭症检测的评估中,父母讨论了诊断如何有助于获得不同的视角,促进孩子和父母的理解和认可。其次,诊断支持父母调整他们的育儿方式,以证明这种偏离“正常”育儿的行为是合理的,并为核心家庭之外的这种调整环境而努力。第三,自闭症诊断会引发父母需要处理的歧义,包括是否以及何时使用诊断标签以及使用哪种语言谈论自闭症的问题。我们讨论了(潜在)自闭症儿童父母在ab/正常二元中来回移动的复杂立场,并描述了对早期自闭症检测的伦理辩论的影响。
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引用次数: 0
Sensory Symptoms and Signs of Hyperarousal in Individuals with Fragile X Syndrome: Findings from the FORWARD Registry and Database Multisite Study. 脆性X综合征患者的感觉症状和高觉醒体征:来自FORWARD注册和数据库多站点研究的发现。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-10-16 DOI: 10.1007/s10803-023-06135-y
Ave M Lachiewicz, Tracy M Stackhouse, Kristin Burgess, Debra Burgess, Howard F Andrews, Tse-Hwei Choo, Walter E Kaufmann, Sharon A Kidd

This study was designed to increase our understanding about characteristics and the impact of sensory symptoms (SS) and signs of hyperarousal (HA) in individuals with fragile X syndrome (FXS) from childhood through early adulthood and by gender. Data derived from the Fragile X Online Registry With Accessible Research Database (FORWARD), a natural history study of FXS, were analyzed using descriptive statistics and multivariate linear and logistic regression models to examine SS and signs of HA, their impact on behavioral regulation and limitations on the subject/family. The sample (N = 933) consisted of 720 males and 213 females. More males were affected with SS (87% vs. 68%) and signs of HA (92% vs. 79%). Subjects who were endorsed as having a strong sensory response had more comorbidities, including behavioral problems. The predominant SS was difficulty with eye gaze that increased with age in both genders. As individuals age, there was less use of non-medication therapies, such as occupational therapy (OT)/physical therapy (PT), but there was more use of psychopharmacological medications and investigational drugs for behaviors. Multiple regression models suggested that endorsing SS and signs of HA was associated with statistically significantly increased ABC-C-I subscale scores and limited participation in everyday activities. This study improves our understanding of SS and signs of HA as well as their impact in FXS. It supports the need for more research regarding these clinical symptoms, especially to understand how they contribute to well-known behavioral concerns.

本研究旨在增加我们对脆性X综合征(FXS)患者从儿童期到成年早期的感觉症状(SS)和超兴奋症状(HA)的特征和影响的理解,并按性别划分。来自Fragile X在线注册可访问研究数据库(FORWARD)的数据是一项FXS的自然史研究,使用描述性统计和多变量线性和逻辑回归模型进行分析,以检查SS和HA的体征,它们对行为调节的影响以及对受试者/家庭的限制。样本(N = 933)由720名男性和213名女性组成。更多的男性受到SS(87%对68%)和HA症状(92%对79%)的影响。被认为具有强烈感觉反应的受试者有更多的合并症,包括行为问题。主要的SS是凝视困难,这种困难随着年龄的增长而增加。随着个体年龄的增长,非药物治疗的使用越来越少,如职业治疗(OT)/物理治疗(PT),但对行为的精神药物和研究药物的使用越来越多。多元回归模型表明,认可SS和HA迹象与ABC-C-I分量表得分的统计学显著增加和日常活动的有限参与有关。这项研究提高了我们对SS和HA体征及其在FXS中的影响的理解。它支持对这些临床症状进行更多研究的必要性,特别是了解它们是如何导致众所周知的行为问题的。
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引用次数: 0
COVID-19 and Neurodevelopmental Disabilities: Examining the Impact of the First 2 Years of the Pandemic on the Demand for Pediatric Inpatient Care. 新冠肺炎与神经发育障碍:研究大流行前2年对儿科住院治疗需求的影响。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-10-04 DOI: 10.1007/s10803-023-06136-x
Chris A Clark, Kailyn Turner, Jennifer Kuntz, Andrea Perri, Avril Deegan, Brian Marriott, Susan Graham, Abdul Rahman, Carly A McMorris

The COVID-19 pandemic has strained the resources of the world's healthcare systems. Most individuals with neurodevelopmental disabilities (NDDs) experience significant mental health issues and face substantial barriers in accessing appropriate supports which have been exacerbated during the pandemic. It is unknown the extent to which COVID-19 impacted the demand for and effectiveness of inpatient care for those with NDDs. The impact of COVID-19 on the number of admissions of youth with NDDs to pediatric inpatient psychiatry units, as well as their functioning and length of stay during the first two years of the pandemic was analyzed using Bayesian structural time series models. Admission data of youth with NDDs from four pediatric inpatient units in Alberta, Canada (n = 2144) was examined. Inpatient admissions of youth with NDDs significantly increased following the onset of the pandemic. Compared to the period prior to the pandemic, patients with NDDs had significantly worse overall functioning and received fewer days of treatment. These findings highlight the need for increased resources to support the mental health needs of this vulnerable population and are consistent with other studies in the general population examining the utilization of inpatient psychiatric units during the pandemic.

新冠肺炎大流行使世界医疗系统的资源紧张。大多数神经发育障碍(NDD)患者都会遇到严重的心理健康问题,在获得适当支持方面面临巨大障碍,而在疫情期间,这种障碍更加严重。目前尚不清楚新冠肺炎对NDD患者住院治疗需求和有效性的影响程度。使用贝叶斯结构时间序列模型分析了新冠肺炎对儿科住院精神科住院的NDD青年人数的影响,以及他们在大流行前两年的功能和住院时间。加拿大阿尔伯塔省四个儿科住院单元的NDD青年入院数据(n = 2144)进行检查。新冠肺炎疫情爆发后,新冠肺炎青年的住院人数显著增加。与疫情前相比,NDD患者的整体功能明显较差,接受治疗的天数也更少。这些发现强调了需要增加资源来支持这一弱势群体的心理健康需求,并与其他针对普通人群的研究一致,这些研究考察了疫情期间住院精神科病房的使用情况。
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引用次数: 0
Mental Health Providers' Perspectives on What Helps and Hinders in Psychotherapy for Autistic Adults with Co-occurring Mental Health Problems. 心理健康提供者对同时存在心理健康问题的自闭症成年人心理治疗的帮助和阻碍的看法。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-10-19 DOI: 10.1007/s10803-023-06143-y
Theresa Jubenville-Wood, David B Nicholas, Jonathan Weiss, Sharon Cairns

Autistic adults experience disproportionate rates of co-occurring mental health problems. Psychotherapy has been recognized as an appropriate treatment approach, but evidence is limited. Researchers used a qualitative research paradigm to explore the experiences of mental health providers who provide psychotherapy to autistic adults. The Enhanced Critical Incident Technique was used to interview 13 mental health providers regarding perceptions of facilitating therapy with autistic adults. This research highlights challenges to providing psychotherapy to autistic adults while also illuminating ways that mental health providers have worked to ameliorate such challenges and create positive experiences in therapy. This research also contrasts therapy for autistic adults relative to the general population. Practice recommendations and suggestions for future research are offered.

自闭症成年人同时出现心理健康问题的比例不成比例。心理治疗已被公认为一种适当的治疗方法,但证据有限。研究人员使用定性研究范式来探索为自闭症成年人提供心理治疗的心理健康提供者的经历。使用强化危重事件技术采访了13名心理健康提供者,了解他们对促进自闭症成年人治疗的看法。这项研究强调了为自闭症成年人提供心理治疗的挑战,同时也阐明了心理健康提供者如何努力缓解这些挑战,并在治疗中创造积极体验。这项研究还对比了自闭症成年人与普通人群的治疗。对今后的研究提出了实践建议和建议。
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引用次数: 0
A Pilot Randomised Control Trial Exploring the Feasibility and Acceptability of Delivering a Personalised Modular Psychological Intervention for Anxiety Experienced by Autistic Adults: Personalised Anxiety Treatment-Autism (PAT-A). 探索为自闭症成年人提供个性化模块化心理干预的可行性和可接受性的随机对照试验:个性化焦虑治疗自闭症(PAT-A)。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-11-01 Epub Date: 2023-09-20 DOI: 10.1007/s10803-023-06112-5
Jacqui Rodgers, Samuel Brice, Patrick Welsh, Barry Ingham, Colin Wilson, Gemma Evans, Katie Steele, Emily Cropper, Ann Le Couteur, Mark Freeston, Jeremy R Parr

Anxiety is commonly experienced by autistic people and impacts on quality of life and social participation. New anxiety interventions are required to effectively meet the needs of autistic people. Personalised Anxiety Treatment-Autism (PAT-A©) is a bespoke, modular approach to treating anxiety in up to 12 sessions. This study explored the feasibility and acceptability of delivering PAT-A© in the UK National Health Service (NHS). A single-blind randomised controlled trial design. Thirty-four autistic adults were recruited via clinical services and randomised to receive either PAT-A© or enhanced treatment as usual (CCSP). Outcome assessments relating to anxiety, quality of life and related constructs were completed at baseline, immediately post intervention; and at 3 and 12 months. Seventy-one percent of the PAT-A© group and 65% of the CCSP met diagnostic threshold for at least three anxiety disorders. Retention was good across both groups, with 82% (N = 14/17) completing the full course of PAT-A© and 71% (N = 12/17) attending both psychoeducational sessions in CCSP. 94% in PAT-A© and 82% in CCSP completed some follow up assessment 3 months post-intervention. Thematic analysis of interview data revealed that many participants valued the personalised approach, developed transferable skills and experienced positive changes to their anxiety. Participants were willing to be recruited and randomised, PAT-A© was feasible to deliver in the NHS and the trial methods and materials were acceptable. Our findings indicate that a fully powered clinical and cost-effectiveness trial of PAT-A© is warranted.

自闭症患者通常会经历焦虑,焦虑会影响生活质量和社会参与。需要新的焦虑干预措施来有效满足自闭症患者的需求。个性化焦虑治疗自闭症(PAT-A©)是一种定制的模块化方法,可在多达12个疗程中治疗焦虑。本研究探讨了在英国国家医疗服务体系(NHS)提供PAT-A©的可行性和可接受性。一项单盲随机对照试验设计。34名自闭症成年人通过临床服务招募,并随机接受PAT-A©或常规强化治疗(CCSP)。在基线时,即干预后立即完成与焦虑、生活质量和相关结构相关的结果评估;在3个月和12个月时。71%的PAT-A©组和65%的CCSP符合至少三种焦虑症的诊断阈值。两组患者的保留率均良好,82%(N = 14/17)完成全部PAT-A©课程和71%(N = 12/17)参加CCSP的两次心理教育课程。94%的PAT-A患者和82%的CCSP患者在干预后3个月完成了一些随访评估。对访谈数据的专题分析显示,许多参与者重视个性化的方法,发展了可转移的技能,并经历了焦虑的积极变化。参与者愿意被招募和随机分配,PAT-A©在英国国家医疗服务体系中是可行的,试验方法和材料是可接受的。我们的研究结果表明,PAT-a©的全面临床和成本效益试验是有必要的。
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Journal of Autism and Developmental Disorders
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