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Relationship Between Gastrointestinal Symptoms in Autism Spectrum Disorder and Parent Stress, Anxiety, Depression, Quality of Life and Social Support. 自闭症谱系障碍患者的胃肠道症状与家长压力、焦虑、抑郁、生活质量和社会支持之间的关系。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-09-01 DOI: 10.1007/s10803-023-06110-7
Arlene Mannion, Geraldine Leader

Gastrointestinal (GI) symptoms are a common comorbidity in children and adolescents with autism spectrum disorder (ASD). Little is known about the impact that GI symptoms have on parental well-being. Parents of 409 children and adolescents with ASD completed the GI Symptoms Inventory, Parenting Stress Index-Short Form, World Health Organization Quality of Life Abbreviated Version, Hospital Anxiety and Depression Scale, and the Multidimensional Scale of Perceived Social Support. High levels of stress were demonstrated by parents with 40.1% receiving clinically significant scores. A relationship was found between parental stress and GI symptoms. Parental anxiety and depression were found at high levels but were not more common in parents of individuals with GI symptoms than those without. Lower levels of quality of life were found in parents of individuals with GI symptoms compared to parents of individuals without GI symptoms. Parents of children with GI symptoms were less satisfied with their personal and social relationships with others. Parents of children with GI symptoms had lower scores on a measure of perceived social support than parents of children and adolescents without GI symptoms. GI symptoms are stressful for parents and future research is needed to determine how to alleviate this stress and to improve the quality of life of parents of individuals with ASD.

胃肠道(GI)症状是患有自闭症谱系障碍(ASD)的儿童和青少年的常见并发症。人们对胃肠道症状对父母福祉的影响知之甚少。409 名患有自闭症谱系障碍的儿童和青少年的家长填写了消化道症状量表、养育压力指数简表、世界卫生组织生活质量缩略版、医院焦虑和抑郁量表以及感知社会支持多维量表。40.1%的家长获得了临床意义上的高分,显示出了较高的压力水平。研究发现,父母的压力与消化道症状之间存在关系。父母焦虑和抑郁的程度较高,但在有胃肠道症状的父母中,焦虑和抑郁并不比没有胃肠道症状的父母更常见。与无胃肠道症状者的父母相比,有胃肠道症状者的父母生活质量较低。有胃肠道症状的儿童的父母对自己的人际关系和与他人的社交关系不太满意。与没有消化道症状的儿童和青少年的父母相比,有消化道症状儿童的父母在感知社会支持方面的得分较低。消化道症状会给父母带来压力,今后需要开展研究,以确定如何减轻这种压力并提高 ASD 患者父母的生活质量。
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引用次数: 0
Collateral Effects of the Tell Me MORE! Intervention on the Joint Reminiscing of Mothers of Children with Autism Spectrum Disorder. 告诉我更多的附带影响!自闭症谱系障碍患儿母亲联合回忆的干预。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-09-26 DOI: 10.1007/s10803-023-06103-6
Naima Bhana Lopez, Tracy J Raulston, Christina S Gilhuber

Purpose: The purpose of this study was to analyze secondary data from three mother-child dyads in order to evaluate how family photographs and training in naturalistic strategies affected the way mothers reminisce with their children with autism spectrum disorders.

Method: A secondary analysis (i.e., collateral effects) of a single-case dataset was conducted to assess the impact of family photographs and training in naturalistic strategies on the selected variables.

Results: The introduction of family photographs showed positive effects on the mother's reminiscing style and the child's memory responses across all dyads. Furthermore, additional improvements were observed in these areas after training and coaching in the target strategies.

Conclusion: This study demonstrates the positive impact of using family photographs and naturalistic based strategies in joint-reminiscing conversations for mothers and children with autism spectrum disorder. The intervention improved the mothers reminiscing style and child's memory responses, highlighting the potential value of parent-implemented interventions, especially those based on naturalistic strategies, in supporting individuals with autism spectrum disorder and their caregivers.

目的:本研究的目的是分析三对母子的二次数据,以评估家庭照片和自然主义策略训练如何影响母亲与患有自闭症谱系障碍的孩子回忆的方式。方法:对单个病例数据集进行二次分析(即附带效应),以评估家庭照片和自然主义策略训练对所选变量的影响。结果:在所有二人组中,家庭照片的引入对母亲的回忆风格和孩子的记忆反应都有积极影响。此外,在目标战略的培训和指导之后,在这些领域观察到了额外的改进。结论:本研究证明了在自闭症谱系障碍母亲和儿童的联合回忆对话中使用家庭照片和基于自然主义的策略的积极影响。该干预措施改善了母亲的回忆方式和孩子的记忆反应,突出了父母实施的干预措施的潜在价值,特别是那些基于自然主义策略的干预措施,在支持自闭症谱系障碍患者及其照顾者方面。
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引用次数: 0
Alcohol Use Patterns Among Underage Autistic and Non-Autistic Youth. 未成年自闭症和非自闭症青年的饮酒模式。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-09-26 DOI: 10.1007/s10803-023-06086-4
Laura Graham Holmes, Ziming Xuan, Emily Quinn, Reid Caplan, Amelia Sanchez, Peter Wharmby, Calliope Holingue, Sharon Levy, Emily F Rothman

Purpose: We explored factors predicting repeated or hazardous alcohol use among autistic and non-autistic U.S. youth ages 16 to 20 years.

Methods: Autistic (n = 94) and non-autistic (n = 92) youth completed an online survey. By design, half of each group reported past-year alcohol use. We compared drinking patterns for autistic and non-autistic youth, and within each group between abstinent or infrequent drinkers (0-1 drinking episodes in past year) versus those who drank 2 + times in past year.

Results: Autistic (vs. non-autistic) youth who drank did so less frequently and consumed fewer drinks per occasion. However, 15% of autistic youth who drank in the past year reported heavy episodic drinking and 9.3% screened positive for AUDIT-C hazardous drinking. For autistic youth only, a diagnosis of depression, bullying or exclusion histories were positively associated with drinking 2 + times in the past year. Autistic youth who put more effort into masking autistic traits were less likely to report drinking 2 + times in the past year. As compared to non-autistic youth, autistic participants were less likely to drink for social reasons, to conform, or to enhance experiences, but drank to cope at similar rates.

Conclusion: Repeated and hazardous underage alcohol occur among autistic youth. Targeted prevention programs designed to address the specific drinking profiles of autistic youth are needed.

目的:我们探讨了在16至20岁的自闭症和非自闭症美国青年中预测重复或危险饮酒的因素。方法:自闭症(n = 94)和非自闭症(n = 92)年轻人完成了一项在线调查。根据设计,每组中有一半的人报告了过去一年的饮酒情况。我们比较了自闭症和非自闭症青年的饮酒模式,并在每组中,节制或不经常饮酒(过去一年中有0-1次饮酒)与饮酒2次的人之间进行了比较 + 过去一年中的次。结果:自闭症(与非自闭症)青年饮酒的频率较低,每次饮酒的次数也较少。然而,在过去一年饮酒的自闭症青年中,15%的人报告有严重的偶发性饮酒,9.3%的人对AUDIT-C危险饮酒筛查呈阳性。仅就自闭症青年而言,抑郁症、欺凌或排斥史的诊断与饮酒呈正相关2 + 在过去的一年中。更多努力掩盖自闭症特征的自闭症青年报告饮酒的可能性较小2 + 在过去的一年中。与非自闭症青年相比,自闭症参与者不太可能因为社交原因、顺从或增强体验而饮酒,但饮酒是为了应对类似的情况。结论:自闭症青年中存在反复饮酒和危险的未成年酒精。需要针对自闭症青年的具体饮酒情况制定有针对性的预防计划。
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引用次数: 0
Adaptive Skills of Individuals with Angelman Syndrome Assessed Using the Vineland Adaptive Behavior Scales, 2nd Edition. 使用文兰适应行为量表评估安杰尔曼综合症患者的适应能力,第 2 版。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-08-15 DOI: 10.1007/s10803-023-06090-8
Angela Gwaltney, Sarah Nelson Potter, Sarika U Peters, Rene L Barbieri-Welge, Lucia T Horowitz, Lisa M Noll, Rachel J Hundley, Lynne M Bird, Wen-Hann Tan, Anjali Sadhwani, Anne Wheeler

In the current study, we examined adaptive skills and trajectories over time in 257 individuals with Angelman syndrome (AS) using the Vineland Adaptive Behavior Scales, 2nd Edition. Multilevel linear models were used to examine differences between molecular subtypes over time, from one year to 13 years of age, in the adaptive domains of communication, daily living skills, socialization and motor skills. Individuals with non-deletion subtypes typically demonstrated a higher level of adaptive skills compared to those with deletion subtypes. Statistically significant growth was observed in all adaptive domains through at least early adolescence. Individuals with AS should continue to receive developmental services and educational supports through adolescence and into adulthood given the slow rates of growth being observed across adaptive domains.

在本研究中,我们使用文兰适应行为量表(第 2 版)研究了 257 名安杰曼综合征(AS)患者的适应技能及其随时间变化的轨迹。我们使用多层次线性模型来研究分子亚型之间在一岁至 13 岁期间,在沟通、日常生活技能、社交和运动技能等适应领域的差异。与缺失亚型患者相比,非缺失亚型患者的适应能力通常更高。据统计,至少在青春期早期,所有适应能力领域都有明显的增长。鉴于在各适应领域观察到的缓慢增长速度,强直性脊柱炎患者在青春期和成年期应继续接受发育服务和教育支持。
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引用次数: 0
Social Anxiety in Autistic People: Does the Clark and Wells Model fit? 自闭症患者的社交焦虑:克拉克和威尔斯模型适用吗?
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-09-26 DOI: 10.1007/s10803-023-06108-1
Alexander C Wilson, Fiona Gullon-Scott

Purpose: Cognitive behaviour therapy based on the Clark and Wells (1995) model is a first-line treatment for neurotypical people seeking support for social anxiety. While autistic people frequently report high social anxiety, it is unclear how appropriate the model is for this population.

Methods: Over 300 autistic and non-autistic adults completed an online survey measuring key variables of the Clark and Wells model (socially-related negative thoughts, safety behaviours, self-focused attention). Using multiple regression and structural equation modelling, we assessed whether these variables accounted for the link between autism and social fears.

Results: In multiple regression, autistic people experienced greater social fears than expected based on Clark and Wells variables, and safety behaviours were less predictive of social fears in autistic people. In structural equation modelling, Clark and Wells variables only mediated half the link between autistic traits and social fears. In exploratory analysis, we found that distress relating to uncertainty was an additional variable that needed to be taken into consideration in the relationship between autistic traits and social fears.

Conclusion: The Clark and Wells variables were relevant in autism, but did not fully explain elevated social fears in autistic people, which suggests that other factors are also important in accounting for social anxiety in autistic people. This means that therapy informed by the model may not be optimal for autistic people. We recommend further research developing adapted therapy for social anxiety in autistic people.

目的:基于Clark和Wells(1995)模型的认知行为疗法是寻求社交焦虑支持的神经正常人群的一线治疗方法。虽然自闭症患者经常报告高度社交焦虑,但尚不清楚该模型对这一人群的适用性。方法:300多名自闭症和非自闭症成年人完成了一项在线调查,测量了克拉克和威尔斯模型的关键变量(与社会相关的消极思想、安全行为、自我关注)。使用多元回归和结构方程模型,我们评估了这些变量是否解释了自闭症和社会恐惧之间的联系。结果:在多元回归中,根据Clark和Wells变量,自闭症患者经历的社会恐惧比预期的要大,而安全行为对自闭症患者社会恐惧的预测能力较弱。在结构方程建模中,Clark和Wells变量只介导了自闭症特征和社会恐惧之间的一半联系。在探索性分析中,我们发现,在自闭症特征和社会恐惧之间的关系中,与不确定性相关的痛苦是一个需要考虑的额外变量。结论:Clark和Wells变量与自闭症相关,但不能完全解释自闭症患者社交恐惧的增加,这表明其他因素在解释自闭症人群社交焦虑方面也很重要。这意味着,该模型所提供的治疗可能不是自闭症患者的最佳选择。我们建议进一步研究开发针对自闭症患者社交焦虑的适应疗法。
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引用次数: 0
Intact Utilization of Contextual Information in Speech Categorization in Autism. 语境信息在自闭症言语分类中的完整利用。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-10-03 DOI: 10.1007/s10803-023-06106-3
Yafit Gabay, Eva Reinisch, Dana Even, Nahal Binur, Bat-Sheva Hadad

Current theories of Autism Spectrum Disorder (ASD) suggest atypical use of context in ASD, but little is known about how these atypicalities influence speech perception. We examined the influence of contextual information (lexical, spectral, and temporal) on phoneme categorization of people with ASD and in typically developed (TD) people. Across three experiments, we found that people with ASD used all types of contextual information for disambiguating speech sounds to the same extent as TD; yet they exhibited a shallower identification curve when phoneme categorization required temporal processing. Overall, the results suggest that the observed atypicalities in speech perception in ASD, including the reduced sensitivity observed here, cannot be attributed merely to the limited ability to utilize context during speech perception.

目前关于自闭症谱系障碍(ASD)的理论表明,自闭症谱系疾病对上下文的使用是非典型的,但对这些非典型性如何影响言语感知知之甚少。我们研究了语境信息(词汇、光谱和时间)对ASD患者和典型发育(TD)患者音位分类的影响。在三个实验中,我们发现ASD患者使用所有类型的上下文信息来消除语音歧义的程度与TD相同;然而,当音素分类需要时间处理时,它们表现出较浅的识别曲线。总的来说,研究结果表明,在ASD中观察到的言语感知的非典型性,包括这里观察到的敏感性降低,不能仅仅归因于在言语感知过程中利用上下文的能力有限。
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引用次数: 0
Diversity of Participants in Williams Syndrome Intervention Studies. 威廉姆斯综合症干预研究参与者的多样性。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-08-16 DOI: 10.1007/s10803-023-06088-2
Eva Shin, Caitlin Ravichandran, Danielle Renzi, Barbara R Pober, Christopher J McDougle, Robyn P Thom

Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies.

Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and ethnicity.

Results: Eleven eligible articles were identified. Reporting rates of demographic factors varied considerably, with the highest rates for age and sex (100%) and the lowest reporting rates for race (18%) and ethnicity (9%). Combining demographic data from the two studies that reported on race and/or ethnicity (n = 33), 88% of participants were White. The combined participant mean age was 20.9 years.

Conclusion: There is a low frequency of reporting on several demographic factors including socioeconomic status, race, and ethnicity in WS intervention studies. There is a need for increased representation of racial and ethnic minority groups, older participants, and more cognitively impaired patients in WS research.

目的:本研究描述了威廉姆斯综合症(WS)干预研究中参与者的多样性:方法:通过文献检索来确定包括 WS 患者在内的前瞻性治疗研究。研究提取了有关年龄、性别、认知能力、社会经济地位、种族和民族的报告和信息数据:结果:共发现 11 篇符合条件的文章。人口统计学因素的报告率差异很大,其中年龄和性别的报告率最高(100%),种族(18%)和民族(9%)的报告率最低。将报告了种族和/或民族的两项研究(n = 33)中的人口统计学数据合并,88% 的参与者为白人。合并后的参与者平均年龄为 20.9 岁:结论:在 WS 干预研究中,对包括社会经济地位、种族和民族在内的一些人口统计因素的报告频率较低。在 WS 研究中,有必要增加少数种族和民族群体、年龄较大的参与者以及认知功能受损患者的代表性。
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引用次数: 0
Automated Video Tracking of Autistic Children's Movement During Caregiver-Child Interaction: An Exploratory Study. 自闭症儿童在照顾者与儿童互动过程中动作的自动视频跟踪:一项探索性研究
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-08-29 DOI: 10.1007/s10803-023-06107-2
Alexandra L Bey, Maura Sabatos-DeVito, Kimberly L H Carpenter, Lauren Franz, Jill Howard, Saritha Vermeer, Ryan Simmons, Jesse D Troy, Geraldine Dawson

Objective, quantitative measures of caregiver-child interaction during play are needed to complement caregiver or examiner ratings for clinical assessment and tracking intervention responses. In this exploratory study, we examined the feasibility of using automated video tracking, Noldus EthoVision XT, to measure 159 2-to-7-year-old autistic children's patterns of movement during play-based, caregiver-child interactions and examined their associations with standard clinical measures and human observational coding of caregiver-child joint engagement. Results revealed that autistic children who exhibited higher durations and velocity of movement were, on average, younger, had lower cognitive abilities, greater autism-related features, spent less time attending to the caregiver, and showed lower levels of joint engagement. After adjusting for age and nonverbal cognitive abilities, we found that children who remained in close proximity to their caregiver were more likely to engage in joint engagement that required support from the caregiver. These findings suggest that video tracking offers promise as a scalable, quantitative, and relevant measure of autism-related behaviors.

我们需要对游戏过程中照顾者与儿童之间的互动进行客观、定量的测量,以补充照顾者或检查者的评分,从而进行临床评估和跟踪干预反应。在这项探索性研究中,我们考察了使用 Noldus EthoVision XT 自动视频追踪系统测量 159 名 2-7 岁自闭症儿童在游戏中与照顾者和儿童互动时的运动模式的可行性,并研究了这些运动模式与标准临床测量和照顾者与儿童共同参与的人类观察编码之间的关联。结果显示,运动持续时间和速度较高的自闭症儿童平均年龄较小,认知能力较低,自闭症相关特征较强,关注照顾者的时间较少,共同参与程度较低。在对年龄和非语言认知能力进行调整后,我们发现,与照顾者保持近距离的儿童更有可能参与需要照顾者支持的共同活动。这些研究结果表明,视频追踪有望成为一种可扩展、定量和相关的自闭症相关行为测量方法。
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引用次数: 0
Symmetry Detection in Autistic Adults Benefits from Local Processing in a Contour Integration Task. 自闭症成人的对称性检测得益于轮廓整合任务中的局部处理。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-08-29 DOI: 10.1007/s10803-023-06093-5
Sabrina Subri, Letizia Palumbo, Emma Gowen

Symmetry studies in autism are inconclusive possibly due to different types of stimuli used which depend on either local or global cues. Therefore, this study compared symmetry detection between 20 autistic and 18 non-autistic adults matched on age, IQ, gender and handedness, using contour integration tasks containing open and closed contours that rely more on local or global processing respectively. Results showed that the autistic group performed equally well with both stimuli and outperformed the non-autistic group only for the open contours, possibly due to a different strategy used in detecting symmetry. However, there were no group differences for the closed contour. Results explain discrepant findings in previous symmetry studies suggesting that symmetry tasks that favour a local strategy may be advantageous for autistic individuals. Implications of the findings towards understanding visual sensory issues in this group are discussed.

自闭症患者的对称性研究尚无定论,这可能是由于所使用的刺激类型不同,这些刺激依赖于局部或整体线索。因此,本研究比较了 20 名自闭症成人和 18 名非自闭症成人的对称检测能力,他们的年龄、智商、性别和手型均匹配,使用的轮廓整合任务包含开放式和封闭式轮廓,分别更依赖于局部或全局处理。结果显示,自闭症组在两种刺激下的表现不相上下,只有在开放轮廓下的表现优于非自闭症组,这可能是由于他们在检测对称性时采用了不同的策略。然而,对于封闭轮廓线,自闭症组与非自闭症组没有差异。研究结果解释了以往对称性研究中的不同发现,表明采用局部策略的对称性任务可能对自闭症患者有利。本文还讨论了研究结果对理解该群体视觉感官问题的影响。
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引用次数: 0
Comparing Physical Intimacy and Romantic Relationships of Autistic and Non-autistic Adults: A Qualitative Analysis. 比较自闭症和非自闭症成人的身体亲密关系和恋爱关系:定性分析。
IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-10-01 Epub Date: 2023-08-16 DOI: 10.1007/s10803-023-06109-0
Giorgia Sala, Jessica Hooley, Merrilyn Hooley, Mark A Stokes
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引用次数: 0
期刊
Journal of Autism and Developmental Disorders
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