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Algorithms advise, humans decide: the evidential role of the patient preference predictor. 算法建议,人类决定:患者偏好预测器的证据作用。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-10-09 DOI: 10.1136/jme-2024-110175
Nicholas Makins

An AI-based 'patient preference predictor' (PPP) is a proposed method for guiding healthcare decisions for patients who lack decision-making capacity. The proposal is to use correlations between sociodemographic data and known healthcare preferences to construct a model that predicts the unknown preferences of a particular patient. In this paper, I highlight a distinction that has been largely overlooked so far in debates about the PPP-that between algorithmic prediction and decision-making-and argue that much of the recent philosophical disagreement stems from this oversight. I show how three prominent objections to the PPP only challenge its use as the sole determinant of a choice, and actually support its use as a source of evidence about patient preferences to inform human decision-making. The upshot is that we should adopt the evidential conception of the PPP and shift our evaluation of this technology towards the ethics of algorithmic prediction, rather than decision-making.

基于人工智能的 "患者偏好预测器"(PPP)是一种为缺乏决策能力的患者提供医疗决策指导的建议方法。该方法建议利用社会人口学数据与已知医疗偏好之间的相关性来构建一个模型,预测特定患者的未知偏好。在本文中,我强调了迄今为止在有关购买力平价的辩论中基本上被忽视的一个区别,即算法预测与决策之间的区别,并认为最近的哲学分歧大多源于这一疏忽。我说明了对购买力平价的三个主要反对意见是如何质疑将其用作选择的唯一决定因素的,而实际上支持将其用作有关患者偏好的证据来源,为人类决策提供信息。其结果是,我们应该采用 PPP 的证据概念,并将我们对这项技术的评估转向算法预测伦理,而不是决策伦理。
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引用次数: 0
Defending the disease view of pregnancy: a reply to our critics. 捍卫孕期疾病观:答复我们的批评者。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-10-08 DOI: 10.1136/jme-2024-110459
Joona Räsänen, Anna Smajdor

We recently suggested that there are both pragmatic and normative reasons to classify pregnancy as a disease. Several scholars argued against our claims. In this response, we defend the disease view of pregnancy against their criticism. We claim that the dysfunctional account of disease that some of our critics rely on has some counterintuitive results. Furthermore, we claim that our critics assume what needs to be argued that the primary function of our sexual organs is to reproduce. Since only a small percentage of sexual intercourse leads to pregnancy, it is far from obvious that reproduction is the primary biological function of our sexual organs. We also claim that while taking pregnancy itself as a reference class could avoid the conclusion that pregnancy is a disease, the strategy is problematic since it renders the Boorsean approach to disease and health circular and effectively deprives it of any utility in determining whether a particular phenomenon is a disease or not.

我们最近提出,将怀孕归为一种疾病既有实用的理由,也有规范的理由。一些学者反对我们的观点。在这篇回应中,我们将针对他们的批评为妊娠疾病观辩护。我们声称,我们的一些批评者所依赖的功能失调的疾病观点会产生一些反直觉的结果。此外,我们还声称,我们的批评者假定我们的性器官的主要功能是繁殖。由于只有一小部分性交会导致怀孕,因此,生殖是我们性器官的主要生理功能这一点远非显而易见。我们还声称,虽然把怀孕本身作为参照类可以避免得出怀孕是一种疾病的结论,但这一策略是有问题的,因为它使博尔萨的疾病与健康方法成为循环论证,实际上使它在确定某一现象是否是疾病方面失去了任何效用。
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引用次数: 0
Integrating constructivism in the critical dialogue method of clinical ethics. 将建构主义融入临床伦理学的批判性对话方法。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-10-07 DOI: 10.1136/jme-2024-110353
Ryan J Dougherty, Melanie Jeske, Faith E Fletcher
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引用次数: 0
War crimes, sexual assault and medical confidentiality in Israel. 以色列的战争罪、性侵犯和医疗保密问题。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-10-03 DOI: 10.1136/jme-2024-109861
Zohar Lederman

Hamas militants have raped and mutilated the bodies of dozens of men and women in Israel during their attack and captivity in Gaza. The exact extent of these atrocities, however, is unknown. For reasons of this sort and others, prosecuting sexual abusers during armed conflicts is notoriously difficult. In an attempt to make a legal case against Hamas militants, the Israeli authorities have recently ordered civilian hospitals to breach medical confidentiality and report unidentified data of patients who have suffered bodily mutilation and sexual abuse during the Hamas attack or during captivity in Gaza. Patients were not informed about this policy. This article first establishes a case for why medical confidentiality is such an important existential and normative value. In this light, it then argues that the Israeli policy is morally unjustified.

哈马斯武装分子在袭击和囚禁加沙期间,在以色列强奸和肢解了数十名男子和妇女的尸体。然而,这些暴行的确切程度尚不得而知。由于诸如此类的原因,在武装冲突期间起诉性侵犯者是出了名的困难。为了在法律上起诉哈马斯武装分子,以色列当局最近命令平民医院违反医疗保密规定,报告在哈马斯袭击期间或在加沙被俘期间遭受身体残害和性虐待的病人的身份不明的数据。病人并未被告知这一政策。本文首先论证了医疗保密为何是如此重要的存在和规范价值。有鉴于此,本文认为以色列的政策在道义上是不合理的。
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引用次数: 0
Promising for patients or deeply disturbing? The ethical and legal aspects of deepfake therapy. 是对患者大有可为,还是令人深感不安?深度伪造疗法的伦理和法律问题。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-09-30 DOI: 10.1136/jme-2024-109985
Saar Hoek, Suzanne Metselaar, Corrette Ploem, Marieke Bak

Deepfakes are hyper-realistic but fabricated videos created with the use of artificial intelligence. In the context of psychotherapy, the first studies on using deepfake technology are emerging, with potential applications including grief counselling and treatment for sexual violence-related trauma. This paper explores these applications from the perspective of medical ethics and health law. First, we question whether deepfake therapy can truly constitute good care. Important risks are dangerous situations or 'triggers' to the patient during data collection for the creation of a deepfake, and when deepfake therapy is started, there are risks of overattachment and blurring of reality, which can complicate the grieving process or alter perceptions of perpetrators. Therapists must mitigate these risks, but more research is needed to evaluate deepfake therapy's efficacy before it can be used at all. Second, we address the implications for the person depicted in the deepfake. We describe how privacy and portrait law apply and argue that the legitimate interests of those receiving therapy should outweigh the interests of the depicted, as long as the therapy is an effective and 'last resort' treatment option, overseen by a therapist and the deepfakes are handled carefully. We suggest specific preventative measures that can be taken to protect the depicted person's privacy. Finally, we call for qualitative research with patients and therapists to explore dependencies and other unintended consequences. In conclusion, while deepfake therapy holds promise, the competing interests and ethicolegal complexities demand careful consideration and further investigation alongside the development and implementation of this technology.

深度伪造是利用人工智能制作的超逼真但虚假的视频。在心理治疗方面,关于使用深度伪造技术的首批研究正在出现,其潜在应用包括悲伤咨询和性暴力相关创伤的治疗。本文从医学伦理和卫生法的角度探讨了这些应用。首先,我们质疑深度拟态疗法是否能真正构成良好的护理。重要的风险是,在为创建 deepfake 而收集数据的过程中,患者可能会遇到危险情况或 "触发因素";而当 deepfake 疗法开始时,可能会出现过度关注和模糊现实的风险,这可能会使悲伤过程复杂化或改变对施暴者的看法。治疗师必须降低这些风险,但在完全使用深度拟态疗法之前,还需要更多的研究来评估其疗效。其次,我们讨论了 deepfake 对被描绘者的影响。我们介绍了隐私法和肖像法的适用情况,并认为只要这种疗法是一种有效的 "最后手段 "治疗选择,并有治疗师监督,而且深度伪造疗法得到了谨慎处理,那么接受治疗者的合法权益就应该大于被描绘者的利益。我们建议采取具体的预防措施来保护被描绘者的隐私。最后,我们呼吁对患者和治疗师进行定性研究,以探讨依赖性和其他意想不到的后果。总之,尽管深度仿真疗法前景广阔,但在开发和实施这项技术的同时,还需要仔细考虑利益冲突和伦理法律的复杂性,并开展进一步的调查。
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引用次数: 0
'This has given me the peace of mind I needed': ethnographic insights into Barrett's oesophagus screening using the capsule sponge test. 这给了我所需的安心":使用胶囊海绵试验进行巴雷特食道筛查的人种学见解。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-09-30 DOI: 10.1136/jme-2024-109928
Elspeth Davies

In 2021 and 2022, researchers carried out an implementation trial that considered how the capsule sponge test might be used to screen for Barrett's oesophagus using a mobile clinic in East Anglia. This paper offers insights from 15 months of ethnographic fieldwork studying the trial. It aims to highlight the value of the test in offering reassurance to worried patients, particularly to those with a family history of oesophageal adenocarcinoma. It also considers the variety of aims people held for the capsule sponge test, including the hope that it would address their symptoms of acid reflux, and the conflict that sometimes emerged as a result. The second half of the paper uses fieldwork carried out in virtual support groups for people with Barrett's oesophagus to explore experiences postdiagnosis, which sometimes were defined by fear of future cancers. It describes notable differences between the care offered to people with morphological risk conditions like Barrett's oesophagus and the care given to those with genetic risk conditions, including the provision of genetic counselling. More broadly, the paper highlights a tension between patient-centred and risk-centred medicine that is likely to grow as healthcare services continue to shift towards preventative approaches.

2021 年和 2022 年,研究人员在东英吉利海峡开展了一项实施试验,考虑如何利用流动诊所的海绵胶囊测试筛查巴雷特食道。本文通过对试验进行 15 个月的人种学实地调查,提出了自己的见解。本文旨在强调该试验在向忧心忡忡的患者,尤其是有食管腺癌家族史的患者提供安慰方面的价值。论文还考虑了人们对海绵胶囊试验的各种目的,包括希望它能解决他们的胃酸倒流症状,以及有时因此而产生的冲突。论文的后半部分通过在巴雷特食道患者虚拟支持小组中开展的实地调查,探讨了患者在确诊后的经历,这些经历有时是由对未来癌症的恐惧所决定的。论文描述了为巴雷特食道等形态风险疾病患者提供的治疗与为遗传风险疾病患者提供的治疗(包括提供遗传咨询)之间的显著差异。更广泛地说,论文强调了以患者为中心的医学和以风险为中心的医学之间的矛盾,随着医疗服务继续向预防方法转变,这种矛盾可能会加剧。
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引用次数: 0
Ethics consultation as a mental prosthesis: addressing ethical dilemmas in neuropsychiatric disorders. 作为精神假体的伦理咨询:解决神经精神疾病的伦理困境。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-09-27 DOI: 10.1136/jme-2024-110352
Craig Waldence McFarland, Emily Rodriguez, Julia M Pace, Joseph E Brower, Takumi J Britt
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引用次数: 0
African vital force and the permissibility of euthanasia. 非洲生命力与安乐死的可允许性。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-09-24 DOI: 10.1136/jme-2024-110210
Kirk Lougheed

One argument for the permissibility of euthanasia found in the African philosophical tradition suggests that the sole goal of life is to develop one's vital force, which is done by relating harmoniously with one's community. However, this is impossible for people with certain medical conditions. If the goals of life cannot be achieved, then euthanasia is permissible. I challenge this argument by showing that it overlooks the fact that severely ill patients can still be the objects of communal relationships, in addition to a way for caregivers to strengthen their own vital force. I also suggest that usual readings of vital force imply that life itself is to be preserved at all costs and that this acts as a kind of deontological constraint.

非洲哲学传统中允许安乐死的一个论点认为,生命的唯一目标是发展自己的生命力,而这是通过与社区和谐相处来实现的。然而,对于患有某些疾病的人来说,这是不可能的。如果生命的目标无法实现,那么安乐死就是允许的。我对这一论点提出质疑,指出它忽略了一个事实,即重症患者除了可以作为护理者增强自身生命力的一种方式外,还可以成为社区关系的对象。我还提出,通常对生命力的解读意味着不惜一切代价保护生命本身,这也是一种道义上的约束。
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引用次数: 0
Reasons for providing assisted suicide and the expressivist objection: a response to Donaldson. 提供协助自杀的理由与表现主义的反对:对唐纳森的回应。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-09-20 DOI: 10.1136/jme-2023-109697
Esther Braun

According to the expressivist objection, laws that only allow assisted dying for those suffering from certain medical conditions express the judgement that their lives are not worth living. I have recently argued that an autonomy-based approach that legally allows assisted suicide for all who make an autonomous request is a way to avoid the expressivist objection. In response to this, Thomas Donaldson has argued that rather than avoiding the expressivist objection, an autonomy-based approach extends this objection. According to Donaldson, this is because helping a person achieve a goal requires endorsement of that goal. In this reply, I show that Donaldson misunderstands the target of the expressivist objection: it is not aimed at an individual's attitude towards another person's death but rather at a legal regulation. Moreover, helping someone end their life does not necessarily require endorsing this goal-instead, respect for a person's autonomous choice can be another reason for providing assisted suicide. Donaldson also assumes that the autonomy-based approach requires doctors to accept autonomous requests for assisted dying. Yet, this approach merely makes it legal for individuals (not necessarily only doctors) to provide assisted suicide to autonomous persons but does not require anyone to do so.

根据表现主义的反对意见,法律只允许那些患有某些疾病的人协助死亡,这表明他们的生命不值得活下去。我最近提出了一种基于自主的方法,在法律上允许所有提出自主请求的人协助自杀,这是一种避免表达主义者反对的方法。对此,托马斯·唐纳森认为,与其避免表现主义的反对意见,一种基于自治的方法扩展了这种反对意见。根据唐纳森的说法,这是因为帮助一个人实现一个目标需要对这个目标的认可。在这个答复中,我表明Donaldson误解了表现主义反对的目标:它不是针对个人对另一个人的死亡的态度,而是针对法律规定。此外,帮助某人结束生命并不一定需要支持这一目标——相反,尊重一个人的自主选择可能是提供协助自杀的另一个原因。唐纳森还假设,基于自主的方法要求医生接受自主的协助死亡请求。然而,这种方法只是使个人(不一定是医生)为自主的人提供协助自杀合法化,而不要求任何人这样做。
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引用次数: 0
Extending the ladder: a comment on Paetkau's stairway proposal. 延伸阶梯:对 Paetkau 的阶梯建议的评论。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-09-20 DOI: 10.1136/jme-2024-110079
Adam Meylan-Stevenson, Ben Saunders
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引用次数: 0
期刊
Journal of Medical Ethics
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