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The ethical canary: narrow reflective equilibrium as a source of moral justification in healthcare priority-setting. 道德金丝雀:狭隘的反思平衡作为医疗保健优先级设定中的道德理由来源。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2023-109467
Victoria Charlton, Michael J DiStefano

Healthcare priority-setting institutions have good reason to want to demonstrate that their decisions are morally justified-and those who contribute to and use the health service have good reason to hope for the same. However, finding a moral basis on which to evaluate healthcare priority-setting is difficult. Substantive approaches are vulnerable to reasonable disagreement about the appropriate grounds for allocating resources, while procedural approaches may be indeterminate and insufficient to ensure a just distribution. In this paper, we set out a complementary, coherence-based approach to the evaluation of healthcare priority-setting. Drawing on Rawls, we argue that an institutional priority-setter's claim to moral justification can be assessed, in part, based on the extent to which its many normative commitments are mutually supportive and free from dissonance; that is, on the ability to establish narrow reflective equilibrium across the normative content of a priority-setter's policy and practice. While we do not suggest that the establishment of such equilibrium is sufficient for moral justification, we argue that failure to do so might-like the proverbial canary in the coalmine-act as a generalised warning that something is awry. We offer a theoretical argument in support of this view and briefly outline a practical method for systematically examining coherence across priority-setting policy and practice.

制定医疗优先事项的机构有充分的理由希望证明他们的决定在道德上是合理的,而那些为医疗服务做出贡献和使用医疗服务的人也有充分的理由希望他们的决定在道德上是合理的。然而,要找到一个道德基础来评估医疗服务优先级的设定是很困难的。实质性方法很容易在分配资源的适当理由上出现合理的分歧,而程序性方法可能是不确定的,不足以确保公正的分配。在本文中,我们提出了一种互补的、基于一致性的方法来评估医疗优先权的设定。借鉴罗尔斯的观点,我们认为,机构优先权制定者的道德正当性主张可以部分地根据其众多规范性承诺在多大程度上相互支持且不存在不协调来进行评估;也就是说,可以根据优先权制定者的政策和实践的规范性内容建立狭义的反思性平衡的能力来进行评估。虽然我们不认为建立这种平衡足以证明道德的正当性,但我们认为,如果做不到这一点,就可能像煤矿中的金丝雀一样,成为一种普遍的警示,表明有些事情出了问题。我们提出了支持这一观点的理论论据,并简要概述了系统检查优先事项制定政策与实践一致性的实用方法。
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引用次数: 0
Artificial intelligence in medicine and the negative outcome penalty paradox. 医学中的人工智能与负结果惩罚悖论。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2023-109848
Jacob M Appel

Artificial intelligence (AI) holds considerable promise for transforming clinical diagnostics. While much has been written both about public attitudes toward the use of AI tools in medicine and about uncertainty regarding legal liability that may be delaying its adoption, the interface of these two issues has so far drawn less attention. However, understanding this interface is essential to determining how jury behaviour is likely to influence adoption of AI by physicians. One distinctive concern identified in this paper is a 'negative outcome penalty paradox' (NOPP) in which physicians risk being penalised by juries in cases with negative outcomes, whether they overrule AI determinations or accept them. The paper notes three reasons why AI in medicine is uniquely susceptible to the NOPP and urges serious further consideration of this complex dilemma.

人工智能(AI)为改变临床诊断带来了巨大希望。虽然关于公众对在医学中使用人工智能工具的态度以及可能延迟其应用的法律责任的不确定性已经有了很多论述,但迄今为止,这两个问题的交集却较少引起关注。然而,要确定陪审团的行为可能会如何影响医生对人工智能的采用,了解这两个问题的结合点至关重要。本文提出的一个独特问题是 "负面结果惩罚悖论"(NOPP),即在有负面结果的案件中,医生有可能受到陪审团的惩罚,无论他们是推翻还是接受人工智能的裁决。本文指出了医学中的人工智能特别容易受到 NOPP 影响的三个原因,并敦促进一步认真考虑这一复杂的两难问题。
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引用次数: 0
Critical dialogue method of ethics consultation: making clinical ethics facilitation visible and accessible. 伦理咨询的批判性对话方法:让临床伦理促进工作变得可见和可及。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2024-109927
Clare Delany, Sharon Feldman, Barbara Kameniar, Lynn Gillam

In clinical ethics consultations, clinical ethicists bring moral reasoning to bear on concrete and complex clinical ethical problems by undertaking ethical deliberation in collaboration with others. The reasoning process involves identifying and clarifying ethical values which are at stake or contested, and guiding clinicians, and sometimes patients and families, to think through ethically justifiable and available courses of action in clinical situations. There is, however, ongoing discussion about the various methods ethicists use to do this ethical deliberation work. In this paper, we make visible and accessible seven steps of facilitation used in the critical dialogue method of ethics consultation.We describe how the facilitation techniques serve two overall purposes. First, to identify ethically justified responses to ethical questions. Second, to assist participants to gain greater moral clarity, understanding and confidence to respond to ethical challenges as independent moral agents.By describing in detail facilitation steps for clinical ethics consultation, we aim to advance the scholarship of 'clinical ethics facilitation methods' and to demystify the ethical deliberation work undertaken by clinical ethicists.

在临床伦理会诊中,临床伦理学家通过与他人合作进行伦理审议,运用道德推理来解 决具体而复杂的临床伦理问题。在推理过程中,他们要确定和澄清那些岌岌可危或有争议的伦理价值观,并指导临床医生,有时也包括病人和家属,思考在临床情况下如何采取符合伦理要求的可行行动方案。然而,关于伦理学家在开展这项伦理思考工作时所使用的各种方法的讨论仍在继续。在本文中,我们介绍了在伦理咨询的批判性对话方法中使用的七个促进步骤。首先,确定对伦理问题的合理回应。通过详细描述临床伦理学咨询的促进步骤,我们旨在推动 "临床伦理学促进方法 "的学术研究,并揭开临床伦理学工作者所从事的伦理学审议工作的神秘面纱。
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引用次数: 0
Going high and low: on pluralism and neutrality in human embryology policy-making. 忽高忽低:人类胚胎学决策的多元化和中立性。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2022-108515
Hafez Ismaili M'hamdi, Nicolas C Rivron, Eva Ca Asscher

Formulating sound and acceptable embryo research policy remains challenging especially in a pluralistic world. This challenge has acquired a new dimension of complexity with the advent of so-called embryo models, which are derived from stem cells. In this article, we present a normative strategy to facilitate the process of sound policy-making in the field of human embryology. This strategy involves seeking neutral agreements on higher level theories and doctrines as well as seeking agreements on the level of concrete policy proposals. We call this strategy: going high and low. By going high and low, the plurality of reasonable moral and epistemic convictions of stakeholders involved in the domain of human embryology is respected while the process of policy-making in this area is improved.

制定合理的、可接受的胚胎研究政策仍然具有挑战性,尤其是在一个多元化的世界。随着源自干细胞的所谓胚胎模型的出现,这一挑战变得更加复杂。在本文中,我们提出了一种规范性策略,以促进人类胚胎学领域合理政策的制定过程。这一战略包括在更高层次的理论和学说上寻求中立的一致意见,以及在具体的政策建议层面寻求一致意见。我们将这一战略称为:高举高打。通过 "高举高打",既尊重了人类胚胎学领域相关各方合理的道德和认识信念的多元 性,又改进了该领域的政策制定过程。
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引用次数: 0
The Supreme Court's decision in McCulloch v Forth Valley Health Board: Does it condone healthcare injustice? 最高法院在McCulloch诉Forth Valley Health Board一案中的裁决:它是否宽恕了医疗不公正?
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2023-109510
Abeezar I Sarela

The UK Supreme Court's recent judgement in McCulloch v Forth Valley Health Board clarifies the standard for the identification of 'reasonable' alternative medical treatments. The required standard is that of a reasonable doctor: treatments that would be accepted as proper by a responsible body of medical opinion. Accordingly, the assessment of consent involves a two-stage test: first, a 'reasonable doctor' test for identifying alternative treatments; followed by a 'reasonable person in the patient's position' test for identifying the material risks of these reasonable alternative treatments. The separation of consent into two stages is consistent with not only a certain conception of freedom but also a nuanced construct of respect for autonomy that has a normative base. Furthermore, reliance on a reasonable doctor in the first stage is in keeping with a sociological account of medical professionalism, which posits that only doctors, and none others, can determine what is a proper treatment. Yet, reliance on a reasonable doctor permits a plurality of standards for reasonableness, because differences in opinion among doctors are pervasive. The reasons for some differences might be acceptable as unavoidable imperfections in medical decision-making to a reasonable person. But reasons for other differences might be objectionable; and the resultant inequalities in medical treatments would be considered unfair. One solution is to make the plurality of reasonable alternatives available to the patient, but this would introduce practical uncertainty and it is rejected by the Court. The Court's approach may be pragmatic; however, it seems to allow avoidable injustice in healthcare.

英国最高法院最近在McCulloch诉Forth Valley Health Board一案中的判决澄清了确定“合理”替代医疗方法的标准。所需的标准是一个合理的医生:一个负责任的医学意见机构会接受的适当治疗。因此,对同意的评估涉及两个阶段的测试:首先,确定替代治疗的“合理医生”测试;然后进行“处于患者位置的合理人员”测试,以确定这些合理替代治疗的重大风险。将同意分为两个阶段不仅符合某种自由概念,而且也符合一种有规范基础的尊重自主的微妙结构。此外,在第一阶段对合理医生的依赖符合医学专业性的社会学描述,即只有医生,而不是其他人,才能决定什么是合适的治疗。然而,对一个合理的医生的依赖允许有多种合理的标准,因为医生之间的意见分歧无处不在。对于一个理性的人来说,一些差异的原因可能是医疗决策中不可避免的缺陷。但其他差异的原因可能令人反感;由此造成的医疗不平等将被认为是不公平的。一种解决方案是为患者提供多种合理的替代方案,但这会带来实际的不确定性,因此被法院驳回。法院的做法可能是务实的;然而,它似乎允许医疗保健中本可避免的不公正。
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引用次数: 0
Artificial intelligence risks, attention allocation and priorities. 人工智能风险、注意力分配和优先事项。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2024-110279
Aorigele Bao, Yi Zeng
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引用次数: 0
Sport-related concussion research agenda beyond medical science: culture, ethics, science, policy. 超越医学的体育相关脑震荡研究议程:文化、伦理、科学、政策。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2022-108812
Mike McNamee, Lynley C Anderson, Pascal Borry, Silvia Camporesi, Wayne Derman, Soren Holm, Taryn Rebecca Knox, Bert Leuridan, Sigmund Loland, Francisco Javier Lopez Frias, Ludovica Lorusso, Dominic Malcolm, David McArdle, Brad Partridge, Thomas Schramme, Mike Weed

The Concussion in Sport Group guidelines have successfully brought the attention of brain injuries to the global medical and sport research communities, and has significantly impacted brain injury-related practices and rules of international sport. Despite being the global repository of state-of-the-art science, diagnostic tools and guides to clinical practice, the ensuing consensus statements remain the object of ethical and sociocultural criticism. The purpose of this paper is to bring to bear a broad range of multidisciplinary challenges to the processes and products of sport-related concussion movement. We identify lacunae in scientific research and clinical guidance in relation to age, disability, gender and race. We also identify, through multidisciplinary and interdisciplinary analysis, a range of ethical problems resulting from conflicts of interest, processes of attributing expertise in sport-related concussion, unjustifiably narrow methodological control and insufficient athlete engagement in research and policy development. We argue that the sport and exercise medicine community need to augment the existing research and practice foci to understand these problems more holistically and, in turn, provide guidance and recommendations that help sport clinicians better care for brain-injured athletes.

体育运动脑震荡小组指导方针成功地使全球医学界和体育研究界关注脑损伤问题,并对与脑损伤相关的实践和国际体育规则产生了重大影响。尽管它是全球最先进科学、诊断工具和临床实践指南的宝库,但随之而来的共识声明仍受到伦理和社会文化方面的批评。本文旨在对与运动相关的脑震荡运动的过程和产物提出广泛的多学科挑战。我们指出了与年龄、残疾、性别和种族有关的科学研究和临床指导方面的缺陷。通过多学科和跨学科分析,我们还发现了一系列伦理问题,这些问题源于利益冲突、运动相关脑震荡专业知识的归属过程、不合理的狭隘方法控制以及运动员对研究和政策制定的参与不足。我们认为,运动医学界需要加强现有的研究和实践重点,以便更全面地了解这些问题,进而提供指导和建议,帮助体育临床医生更好地护理脑损伤运动员。
{"title":"Sport-related concussion research agenda beyond medical science: culture, ethics, science, policy.","authors":"Mike McNamee, Lynley C Anderson, Pascal Borry, Silvia Camporesi, Wayne Derman, Soren Holm, Taryn Rebecca Knox, Bert Leuridan, Sigmund Loland, Francisco Javier Lopez Frias, Ludovica Lorusso, Dominic Malcolm, David McArdle, Brad Partridge, Thomas Schramme, Mike Weed","doi":"10.1136/jme-2022-108812","DOIUrl":"10.1136/jme-2022-108812","url":null,"abstract":"<p><p>The Concussion in Sport Group guidelines have successfully brought the attention of brain injuries to the global medical and sport research communities, and has significantly impacted brain injury-related practices and rules of international sport. Despite being the global repository of state-of-the-art science, diagnostic tools and guides to clinical practice, the ensuing consensus statements remain the object of ethical and sociocultural criticism. The purpose of this paper is to bring to bear a broad range of multidisciplinary challenges to the processes and products of sport-related concussion movement. We identify lacunae in scientific research and clinical guidance in relation to age, disability, gender and race. We also identify, through multidisciplinary and interdisciplinary analysis, a range of ethical problems resulting from conflicts of interest, processes of attributing expertise in sport-related concussion, unjustifiably narrow methodological control and insufficient athlete engagement in research and policy development. We argue that the sport and exercise medicine community need to augment the existing research and practice foci to understand these problems more holistically and, in turn, provide guidance and recommendations that help sport clinicians better care for brain-injured athletes.</p>","PeriodicalId":16317,"journal":{"name":"Journal of Medical Ethics","volume":" ","pages":"68-76"},"PeriodicalIF":3.3,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10824394","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Existential risk and the justice turn in bioethics. 生命伦理学中的生存风险与正义转向。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2024-110282
Paolo Corsico
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引用次数: 0
Failing to deliver: why pregnancy is not a disease. 分娩失败:为什么怀孕不是一种疾病?
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2024-109956
Paul Rezkalla, Emmanuel Smith

In their article 'Is Pregnancy a Disease? A Normative Approach', Anna Smajdor and Joona Räsänen contend that, on several of the most prominent accounts of disease, pregnancy should be considered a disease. More specifically, of the five accounts they discuss, each renders pregnancy a disease or suffers serious conceptual problems otherwise. They take issue specifically with the dysfunction account of disease and argue that it suffers several theoretical difficulties. In this response, we focus on defending the dysfunction account against their main objections and show why a version of the dysfunction account is viable on account of the indispensability of normativity in biology and medicine. After disarming their main objections to the dysfunction account, we briefly respond to their treatment of the normality of pregnancy and then draw a distinction between adverse symptoms and underlying causes to show why even though pregnancy may have 'disease-like' features, it is not a disease.

Anna Smajdor 和 Joona Räsänen 在《怀孕是一种疾病吗?A Normative Approach "一文中,安娜-斯马伊多尔(Anna Smajdor)和约娜-拉萨宁(Joona Räsänen)认为,根据几种最著名的疾病论述,怀孕应被视为一种疾病。更具体地说,在她们讨论的五种说法中,每一种都将怀孕视为一种疾病,或在概念上存在严重问题。他们特别对疾病的功能障碍说法提出了质疑,并认为这种说法存在一些理论上的困难。在这篇回应中,我们将重点针对他们的主要反对意见为功能障碍说进行辩护,并说明为什么功能障碍说的一个版本在生物学和医学中规范性不可或缺的情况下是可行的。在解除了他们对功能障碍说的主要反对意见之后,我们简要回应了他们对怀孕正常性的处理,然后区分了不良症状和潜在原因,以说明为什么即使怀孕可能具有 "类似疾病 "的特征,它却不是一种疾病。
{"title":"Failing to deliver: why pregnancy is not a disease.","authors":"Paul Rezkalla, Emmanuel Smith","doi":"10.1136/jme-2024-109956","DOIUrl":"10.1136/jme-2024-109956","url":null,"abstract":"<p><p>In their article 'Is Pregnancy a Disease? A Normative Approach', Anna Smajdor and Joona Räsänen contend that, on several of the most prominent accounts of disease, pregnancy should be considered a disease. More specifically, of the five accounts they discuss, each renders pregnancy a disease or suffers serious conceptual problems otherwise. They take issue specifically with the dysfunction account of disease and argue that it suffers several theoretical difficulties. In this response, we focus on defending the dysfunction account against their main objections and show why a version of the dysfunction account is viable on account of the indispensability of normativity in biology and medicine. After disarming their main objections to the dysfunction account, we briefly respond to their treatment of the normality of pregnancy and then draw a distinction between adverse symptoms and underlying causes to show why even though pregnancy may have 'disease-like' features, it is not a disease.</p>","PeriodicalId":16317,"journal":{"name":"Journal of Medical Ethics","volume":" ","pages":"52-53"},"PeriodicalIF":3.3,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141086665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pregnant women are often not listened to, but pathologising pregnancy isn't the solution. 孕妇往往得不到倾听,但将怀孕病理化并不是解决办法。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-23 DOI: 10.1136/jme-2024-109931
Brad Partridge, Taryn Rebecca Knox

Smajdor and Rasanen (2024) argue that pregnant women are routinely denied appropriate treatment because pregnancy is seen as normal, and so they are denied 'patient status'. They claim that formally classifying pregnancy as a disease may lead to better treatment for pregnant women. In this response, we argue that pathologising pregnancy and classifying all pregnant women as 'diseased patients' won't reconfigure care in ways that benefit all women. Rather, it will likely only embolden the view that clinicians are entitled to exercise jurisdiction over pregnant women and beget the increased use of medical intervention where it is not necessarily needed.

Smajdor 和 Rasanen(2024 年)认为,孕妇通常得不到适当的治疗,因为怀孕被视为正常现象,因此她们被剥夺了 "病人身份"。他们声称,将怀孕正式归类为一种疾病可能会为孕妇带来更好的治疗。在这篇回应中,我们认为,将怀孕病理化并将所有孕妇归类为 "病人",并不会以有益于所有妇女的方式重新配置医疗服务。相反,它很可能只会使临床医生有权对孕妇行使管辖权的观点更加大胆,并导致在不一定需要医疗干预的情况下更多地使用医疗干预。
{"title":"Pregnant women are often not listened to, but pathologising pregnancy isn't the solution.","authors":"Brad Partridge, Taryn Rebecca Knox","doi":"10.1136/jme-2024-109931","DOIUrl":"10.1136/jme-2024-109931","url":null,"abstract":"<p><p>Smajdor and Rasanen (2024) argue that pregnant women are routinely denied appropriate treatment because pregnancy is seen as normal, and so they are denied 'patient status'. They claim that formally classifying pregnancy as a disease may lead to better treatment for pregnant women. In this response, we argue that pathologising pregnancy and classifying all pregnant women as 'diseased patients' won't reconfigure care in ways that benefit all women. Rather, it will likely only embolden the view that clinicians are entitled to exercise jurisdiction over pregnant women and beget the increased use of medical intervention where it is not necessarily needed.</p>","PeriodicalId":16317,"journal":{"name":"Journal of Medical Ethics","volume":" ","pages":"50-51"},"PeriodicalIF":3.3,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142605160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Medical Ethics
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