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Liberalism and mitochondrial replacement technique. 自由主义和线粒体替代技术。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2025-01-09 DOI: 10.1136/jme-2024-110373
Marco Tang

How should defenders of liberalism think about access to reproductive technologies? Mitochondrial replacement technique (MRT) enables women with pathogenic variations of mitochondrial disease to have children without the fear of transmission. This technology can also allow lesbians, or partners with female-assigned physiology (PFP), to have genetically related offspring. Cavaliere and Palacios-Gonzalez argue that lesbians should be able to access MRT on autonomy grounds. They argue MRT should not be restricted to those with mitochondrial disease because it is non-therapeutic and invokes the Millian harm principle. Yet, Baylis argues that a desire for genetically related offspring is not sufficient to access MRT because it contributes to harmful social narratives about adopted families. I strengthen Cavaliere and Palacios-Gonzalez's liberal defence by bringing another liberal commitment-equality. Ultimately, I argue that the liberal state must allow PFPs to use MRT. I first show that the use of MRT by PFPs is permissible even if MRT is therapeutic by comparing MRT with cosmetic surgery-that is, social uses of therapeutic interventions are permitted if we are interested in doing so. Borrowing from Dillard, a possible interest is self-replication. Next, I outline and respond to a possible criticism by Baylis-MRT is necessary but not sufficient for self-replication. Ultimately, I show that the liberal state must permit MRT because (a) it provides PFPs with an equal opportunity to experience having genetically related offspring with their partner and (b) contributing to harmful social narratives is insufficient for limiting autonomy.

自由主义的捍卫者应该如何看待获得生殖技术的途径?线粒体替代技术(MRT)使患有线粒体疾病致病变异的妇女能够生育孩子,而不必担心传播。这项技术还可以让女同性恋者或具有女性生理特征(PFP)的伴侣拥有基因相关的后代。卡瓦列尔和帕拉西奥斯-冈萨雷斯认为,女同性恋应该能够以自主的理由使用捷运。他们认为,MRT不应该局限于线粒体疾病患者,因为它没有治疗作用,而且援引了米利安伤害原则。然而,贝利斯认为,对遗传相关后代的渴望不足以让人接受MRT,因为它会助长对收养家庭的有害社会叙事。我通过提出另一个自由主义的承诺——平等,来加强卡瓦利尔和帕拉西奥斯-冈萨雷斯的自由主义辩护。最后,我认为自由主义国家必须允许pfp使用捷运。我首先表明,即使与整容手术相比,磁共振成像是治疗性的,但PFPs使用磁共振成像是允许的——也就是说,如果我们有兴趣的话,治疗性干预的社会用途是允许的。借用迪拉德的话,一个可能的兴趣是自我复制。接下来,我概述并回应baylis可能提出的批评,即mrt是必要的,但不足以进行自我复制。最后,我表明,自由主义国家必须允许MRT,因为(a)它为pfp提供了一个平等的机会来体验与伴侣有基因关联的后代,(b)造成有害的社会叙事不足以限制自主性。
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引用次数: 0
Concepts in African philosophy to improve bioethics. 非洲哲学的概念,以提高生物伦理。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2025-01-07 DOI: 10.1136/jme-2024-110540
Stephen S Hanson
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引用次数: 0
Impermissibility of euthanasia and self-regarding duties to stay alive. 不允许安乐死和自我生存的责任。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2025-01-03 DOI: 10.1136/jme-2024-110567
Xiang Yu, Daniel T Kim
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引用次数: 0
When should doctors nudge? Nudging and preference-sensitive care. 什么时候医生应该轻推?轻推和偏好敏感护理。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2025-01-02 DOI: 10.1136/jme-2024-110268
Ainar Miyata

When should doctors nudge their patients towards the treatments they think are best? If the nudge is compatible with the patient giving informed consent, then the nudge could be permissible. To be compatible with informed consent, the nudge must, at minimum: (1) not make the patient's understanding worse and (2) not make it hard for the patient to resist consenting. Arguably, many nudges will meet these criteria. However, since unjustified nudging, in this context, would also be unjustified paternalism, the permissibility of nudging hinges on whether it is justified. Perhaps surprisingly, this is often not the case. In situations where the best medical judgement does not conclusively favour a single course of action but there are multiple viable options, patient preference ought to be the deciding factor. In such contexts of preference-sensitive care, there is no good reason for doctors to nudge the patient towards a specific course of action, and hence, nudging is unjustified. Outside such contexts, nudging may be both justified and permissible.

医生应该在什么时候促使病人接受他们认为最好的治疗?如果轻推与患者的知情同意相容,那么轻推是允许的。为了与知情同意相容,轻推必须至少:(1)不使患者的理解变得更糟;(2)不使患者难以抗拒同意。可以说,许多助推措施将符合这些标准。然而,由于在这种情况下,不合理的轻推也将是不合理的家长式作风,轻推的可接受性取决于它是否合理。也许令人惊讶的是,情况往往并非如此。在最好的医学判断不能确定地支持单一行动方案,但有多种可行选择的情况下,患者的偏好应该是决定性因素。在这种偏好敏感型护理的背景下,医生没有充分的理由推动病人采取特定的行动,因此,推动是不合理的。在这种情况下,轻推可能是合理的,也是允许的。
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引用次数: 0
Permissibility of euthanasia: a response from LATAM. 安乐死的可容许性:LATAM的回应。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-31 DOI: 10.1136/jme-2024-110564
Mariana Dittborn, Daniela P Rojas, Sofía P Salas
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引用次数: 0
Expanding community, vitality and what is permissible: African cultural knowledge and Afro-Caribbean religions in bioethical discourses of euthanasia. 扩大社区,活力和允许:非洲文化知识和非洲-加勒比宗教在安乐死的生物伦理话语。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-31 DOI: 10.1136/jme-2024-110568
Jarrel De Matas, Ginika Oguagha, Francis H H Amuzu
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引用次数: 0
Re-visiting professional ethics in psychotherapy: reflections on the use of talking therapies as a supportive adjunct for myalgic encephalomyelitis/chronic fatigue syndrome and 'medically unexplained symptoms'. 重新审视心理治疗中的职业道德:对使用谈话疗法作为肌痛性脑脊髓炎/慢性疲劳综合征和“医学上无法解释的症状”的辅助疗法的反思。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-31 DOI: 10.1136/jme-2023-109627
Joanne Hunt, Charlotte Blease

Following years of debate over the effectiveness of cognitive behavioural therapy for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), public health bodies in the UK and beyond have determined that no psychotherapy is clinically proven for this patient group. In the field of ME/CFS and the wider arena of 'medically unexplained symptoms' (MUS), patient survey data and qualitative research capturing patient experiences and psychotherapist attitudes suggest that therapeutic practice may sometimes fall short of required ethical standards. This raises questions about how psychotherapists can safely support, as opposed to treat, people with these debilitating conditions. We consider four ethical principles that feature throughout psychotherapists' codes of practice, those of respect, competence, responsibility and integrity, and discuss examples of good and poor practice in this arena as evinced by recent empirical literature. Following this, we offer a variety of suggestions to help strengthen ethical psychotherapy practice with patients with ME/CFS and other MUS. In terms of practitioner education, we recommend greater emphasis on humility, reflexivity and disability-affirming practices, exploration of personal as well professional ethics, and integration of patient expertise-by-experience, accompanied with the latest evidence, into foundational and ongoing training. In terms of ongoing practice, we suggest consideration of formalised patient-focused feedback systems and greater transparency vis-à-vis patient access to clinical notes. Finally, we underline the importance of elevating patients from mere subjects to co-producers of psychotherapy research.

认知行为疗法治疗肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)的有效性经过多年的争论,英国和其他国家的公共卫生机构已经确定,没有任何心理疗法在临床上证明适用于这一患者群体。在ME/CFS领域和更广泛的“医学上无法解释的症状”(MUS)领域,患者调查数据和捕捉患者经验和心理治疗师态度的定性研究表明,治疗实践有时可能达不到所需的道德标准。这就提出了一个问题,即心理治疗师如何能够安全地支持,而不是治疗患有这些衰弱疾病的人。我们考虑了贯穿心理治疗师实践准则的四项道德原则,即尊重、能力、责任和正直,并讨论了最近实证文献所证明的这一领域的良好实践和不良实践的例子。在此基础上,我们提出了各种建议,以帮助加强对ME/CFS和其他MUS患者的伦理心理治疗实践。在从业者教育方面,我们建议更加强调谦逊、反思和残疾肯定实践,探索个人和职业道德,并将患者经验与最新证据结合起来,融入基础和持续培训中。就正在进行的实践而言,我们建议考虑正式的以患者为中心的反馈系统,并在-à-vis患者访问临床记录方面提高透明度。最后,我们强调将患者从单纯的受试者提升到心理治疗研究的共同生产者的重要性。
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引用次数: 0
Distributive justice, best options and organ markets: a reply to Semrau. 分配正义、最佳选择和器官市场:对 Semrau 的答复。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-26 DOI: 10.1136/jme-2024-110561
Andreas Albertsen

How important is it, morally speaking, that banning the sale of organs removes the best option available to would-be organ sellers? According to a widespread argument called the best option argument, this is very important. In a recent article I criticised such reasoning, drawing on considerations of distributive justice. Luke Semrau has argued that I have misunderstood the best option argument. In this article, I respond to Semrau's criticism and elaborate on my original argument.

从道义上讲,禁止出售器官消除了可能出售器官者的最佳选择,这一点有多重要?根据一种被称为 "最佳选择论 "的广泛论点,这一点非常重要。在最近的一篇文章中,我从分配正义的角度对这种推理进行了批评。卢克-塞姆劳(Luke Semrau)认为我误解了最佳选择论证。在本文中,我将回应塞姆劳的批评,并详细阐述我最初的论点。
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引用次数: 0
A worthwhile wager: the ethics of open-label placebo treatment in clinical practice. 值得打赌的是:临床实践中开放标签安慰剂治疗的伦理问题。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-26 DOI: 10.1136/jme-2024-110270
Doug Hardman, Franklin Miller

There is increasing evidence for the use of open-label placebo (OLP) as an effective and safe treatment for a range of chronic conditions. OLP is generally conceived as an ethical alternative to classic placebo treatment because patients know that they are taking a placebo and are hence not deceived. However, despite its potential benefits and lack of side effects, the paradoxical nature of OLP may make it difficult to propose as a treatment option in clinical practice. To mitigate this issue, we propose a practical way for clinicians and patients to conceive of OLP in clinical practice: namely, as a worthwhile wager.

越来越多的证据表明,使用开放标签安慰剂(OLP)作为一系列慢性疾病的有效和安全的治疗方法。OLP通常被认为是传统安慰剂治疗的道德替代方案,因为患者知道他们服用的是安慰剂,因此不会被欺骗。然而,尽管OLP具有潜在的益处和缺乏副作用,但其矛盾的性质可能使其难以在临床实践中作为一种治疗选择。为了缓解这个问题,我们提出了一种实用的方法,让临床医生和患者在临床实践中构想OLP:即,作为一个值得的赌注。
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引用次数: 0
Professional obligations and the demandingness of acting against one's conscience. 职业义务和违背良心行事的要求。
IF 3.3 2区 哲学 Q1 ETHICS Pub Date : 2024-12-24 DOI: 10.1136/jme-2024-110447
Alberto Giubilini

Conscience is typically invoked in healthcare to defend a right to conscientious objection, that is, the refusal by healthcare professionals to perform certain activities in the name of personal moral or religious views. On this approach, freedom of conscience should be respected when the individual is operating in a professional capacity. Others would argue, however, that a conscientious professional is one who can set aside one's own moral or religious views when they conflict with professional obligations. The debate on conscientious objection has by and large crystallised around these two positions, with compromise positions aiming at striking a balance between the two, for instance, by arguing for referral requirements by objecting healthcare professionals.In this article, I suggest that the debate on conscientious objection in healthcare could benefit from being reframed as a problem around demandingness rather than one about freedom of conscience and moral integrity. Being a professional, and a healthcare professional specifically, typically requires taking on additional burdens compared with non-professionals. For instance, healthcare professionals are expected to take on themselves higher risks than the rest of the population. However, it is also widely agreed that there are limits to the additional risks and burdens that healthcare professionals should be expected to take on themselves. Thus, a question worth exploring is whether, among the extra burdens that healthcare professionals should be expected to take on themselves as a matter of professional obligation, there is the burden of acting against one's own conscience.

在医疗保健中,良心通常被用来捍卫出于良心拒服兵役的权利,即医疗保健专业人员以个人道德或宗教观点的名义拒绝从事某些活动。根据这种方法,当个人以专业身份工作时,应尊重良心自由。然而,其他人会争辩说,一个有责任心的专业人士是一个当自己的道德或宗教观点与职业义务相冲突时可以把它们放在一边的人。关于良心拒服兵役的辩论基本上围绕着这两种立场,妥协的立场旨在在两者之间取得平衡,例如,通过反对医疗保健专业人员来争论转诊要求。在这篇文章中,我建议将医疗保健中关于良心反对的辩论重新定义为一个围绕要求的问题,而不是一个关于良心自由和道德诚信的问题,这可能会受益。作为一名专业人士,特别是医疗保健专业人士,与非专业人士相比,通常需要承担额外的负担。例如,医疗保健专业人员被期望承担比其他人更高的风险。然而,人们也普遍认为,医疗保健专业人员应该承担的额外风险和负担是有限的。因此,一个值得探讨的问题是,在医疗保健专业人员作为职业义务应该承担的额外负担中,是否存在违背自己良心的负担。
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Journal of Medical Ethics
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