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Psychological predictors of performance-based physical functioning among pediatric pain program participants. 儿科疼痛项目参与者身体功能表现的心理预测因素。
IF 1.9 Q3 Medicine Pub Date : 2024-02-27 DOI: 10.3233/PRM-220132
Elizaveta Bourchtein, Alix McLaughlin, Kimberly Walainis, Amanda Hughes, Eric L Scott, Emily Foxen-Craft

Purpose: The purpose of the present study was to evaluate changes in performance-based physical functioning and investigate psychological predictors of physical functioning over time in pediatric patients with chronic pain who completed an interdisciplinary rehabilitation intensive outpatient program (IOP).

Methods: Participants (N = 55; mean age = 14.92 years; 12.7% male, 87.3% female; 83.6% White, 5.6% African-American/Black; 9.1% Latinx) completed baseline measures assessing pain intensity and modifiable psychological factors (i.e., pain catastrophizing, kinesiophobia, anxiety and depressive symptoms). Participants were administered performance-based assessments of physical functioning (i.e., physical endurance, high-level motor abilities) before and after IOP completion.

Results: Pain intensity was not significantly associated with physical functioning at either timepoint. There was significant improvement on measures of physical functioning after completion of the IOP when controlling for the effects of sex, race, and ethnicity. Depressive symptoms were associated with baseline physical endurance, β = - .28, p = .047, while pain catastrophizing was associated with baseline gross motor abilities, β = - .28, p = .032.

Conclusion: Participation in an IOP led to significant improvement in physical endurance and high-level motor ability. Depressive symptoms and pain catastrophizing were associated with physical functioning at baseline but not post-program completion. Integration of pain psychology and physical therapy in an IOP can help address the interrelated psychological and physical factors impacting physical functioning to improve outcomes for children with chronic pain.

目的:本研究旨在评估完成跨学科康复强化门诊项目(IOP)的慢性疼痛儿科患者随着时间推移在基于表现的身体功能方面的变化,并调查身体功能的心理预测因素:参与者(人数=55;平均年龄=14.92岁;12.7%为男性,87.3%为女性;83.6%为白人,5.6%为非裔美国人/黑人;9.1%为拉丁裔)完成了基线测量,评估疼痛强度和可改变的心理因素(即疼痛灾难化、运动恐惧、焦虑和抑郁症状)。在完成 IOP 之前和之后,对参与者的身体功能(即身体耐力、高级运动能力)进行了基于表现的评估:结果:在任何一个时间点,疼痛强度与身体功能的关系都不明显。在控制了性别、种族和民族的影响后,完成 IOP 后身体功能的测量结果有了明显改善。抑郁症状与基线身体耐力相关,β = - .28,p = .047,而疼痛灾难化与基线粗大运动能力相关,β = - .28,p = .032:结论:参加 IOP 能显著提高身体耐力和高级运动能力。抑郁症状和疼痛灾难化与基线时的身体功能有关,但与计划完成后无关。在 IOP 中整合疼痛心理学和物理疗法有助于解决影响身体功能的相互关联的心理和生理因素,从而改善慢性疼痛儿童的治疗效果。
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引用次数: 0
Non-immersive virtual reality based treatment for children with unilateral cerebral palsy: Preliminary results. 基于非沉浸式虚拟现实技术的单侧脑瘫儿童治疗:初步结果。
IF 1.9 Q3 Medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-230028
Paolo Meriggi, Martina Mandalà, Mattia Randazzo, Elena Brazzoli, Anna Castagna, Valentina Di Giusto, Anna Cavallini, Alberto Marzegan, Tiziana Lencioni, Ivana Olivieri

Purpose: Unilateral cerebral palsy (UCP) represents about 30-40% of overall cerebral palsy diagnoses. Upper limb impairment has a significant negative impact on activities of daily living (ADL), and recent studies have shown that the use of virtual reality (VR) can increase motivation and promote an improvement in ADL. This preliminary study was aimed at exploring the acceptability and usability of a VR rehabilitation treatment, using the VITAMIN Platform, for children with UCP. A secondary goal of the study was to compare the results of usual standardized clinical scales and questionnaires with kinematic results as well as with the quantitative measures acquired by the VITAMIN platform in each exercise of the rehabilitation sessions.

Methods: Six children with UCP (aged 7-15) were recruited for a preliminary investigation in using a non-immersive VR system. The treatment was composed of 10 weekly sessions of 45 minutes. Each child played five types of exergames, using the impaired upper limb to hit virtual objects projected on a wide screen. Standardized clinical scales, kinematic analysis, and questionnaires were used to extensively assess upper limb function before and at the end of treatment. Five typically-developing children provided a reference for the instrumented kinematic assessment.

Results: At the end of the treatment, Melbourne Assessment 2 (MA2) scores increased for all the participants (mean increase in range of movement (ROM) + 19.1%, accuracy + 4.6%, dexterity + 13.1%, fluency + 10.3%). Shoulder flexion-extension ROM also improved (mean increase + 10.5°), and according to the kinematic analysis, shoulder movements became more similar to reference profiles. These results were confirmed by a general improvement in performing ADL, assessed by the ABILHAND-Kids questionnaire. Finally, a general agreement among the different measures and indexes emerged from the acquired data.

Conclusion: The results show that VR treatment with the VITAMIN platform could be engaging and functional for rehabilitation of children with UCP. The good agreement among the qualitative and quantitative measures and indexes confirms the potential of such novel treatment. However, due to the limited sample size and small number of sessions, further and larger investigations are required to evaluate the effectiveness and to generalize the results.

目的:单侧脑瘫(UCP)约占脑瘫诊断总数的 30-40%。最近的研究表明,使用虚拟现实技术(VR)可以提高患者的积极性,促进其日常生活能力的改善。这项初步研究旨在探索使用 VITAMIN 平台为 UCP 儿童提供 VR 康复治疗的可接受性和可用性。研究的另一个目的是将通常的标准化临床量表和问卷调查结果与运动学结果以及维他命平台在每次康复训练中获得的定量测量结果进行比较:招募了六名患有 UCP 的儿童(7-15 岁),对非沉浸式 VR 系统的使用情况进行初步调查。治疗每周进行 10 次,每次 45 分钟。每个儿童都玩了五种益智游戏,使用受损的上肢击打投影在宽屏幕上的虚拟物体。在治疗前和治疗结束时,采用标准化临床量表、运动学分析和调查问卷对上肢功能进行了广泛评估。五名发育正常的儿童为仪器运动学评估提供了参考:治疗结束时,所有参与者的墨尔本评估2(MA2)得分均有所提高(运动范围(ROM)平均提高19.1%,准确性提高4.6%,灵活性提高13.1%,流畅性提高10.3%)。肩部屈伸运动范围也有所改善(平均增加 + 210.5°),根据运动学分析,肩部运动与参考曲线更加相似。根据 ABILHAND-Kids 问卷的评估,患者在日常活动能力方面的普遍改善也证实了这些结果。最后,从获得的数据中可以看出,不同的测量方法和指标之间基本一致:结果表明,使用 VITAMIN 平台进行的 VR 治疗对患有 UCP 的儿童的康复具有吸引力和功能性。定性和定量测量及指标之间的良好一致性证实了这种新型治疗方法的潜力。然而,由于样本量有限且疗程次数较少,因此需要进一步开展更大规模的调查,以评估疗效并推广结果。
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引用次数: 0
Pure grit: Ordinary and extraordinary. 纯粹的勇气:平凡而不平凡。
IF 1.9 Q3 Medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-240012
Matthew MacCarthy
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引用次数: 0
Utilizing combination intrathecal baclofen and analgesic medication to manage spasticity and pain in patients with pediatric-onset disability: Case series. 利用鞘内巴氯芬和镇痛药联合治疗小儿先天性残疾患者的痉挛和疼痛:病例系列。
IF 1.9 Q3 Medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220100
Denesh Ratnasingam, Tess Woehrlen, Samantha Koerber, Emma Drenth, Neena Marupudi, Melisa Concepcion, Erika Erlandson

Purpose: The use of intrathecal medications for the management of spasticity and various pain syndromes in the adult population has been previously reported. However, no evidence-based guidelines currently exist in the pediatric population. This case series presents patients (n = 8) with pediatric-onset disability who underwent placement of intrathecal baclofen pumps initially for management of severe spasticity. Despite titration of dose and use of oral analgesia, their uncontrolled pain persisted. Each patient was transitioned to a combination of baclofen and analgesic intrathecal therapy. The outcome in pain improvement and quality of life, as reported by patients and/or caregivers, were retrospectively reviewed.

Methods: Retrospective review of the background and decision-making process regarding transition to combination intrathecal therapy identified patient selection characteristics. Each patient and/or their caregivers completed a survey regarding improvements in pain, spasticity, function, and quality of life following initiation of combination intrathecal medications.

Results: Survey results revealed improvements in functional and pain assessments after initiation of combination baclofen and analgesic intrathecal medication. Patients and caregivers reported decreases in pain and oral spasticity medications.

Conclusion: Use of pumps with antispasmodic and analgesic medication for combination intrathecal medication delivery should be considered in the management of patients with childhood-onset disabilities who have both severe spasticity and pain.

目的:以前曾有报道称,在成人人群中使用鞘内药物治疗痉挛和各种疼痛综合征。然而,目前还没有针对儿科人群的循证指南。本病例系列介绍了儿科致残患者(n = 8),他们最初接受了鞘内巴氯芬泵治疗严重痉挛。尽管对剂量进行了滴定并使用了口服镇痛剂,但他们无法控制的疼痛依然存在。每位患者都被转为巴氯芬和鞘内镇痛剂联合治疗。我们对患者和/或护理人员报告的疼痛改善结果和生活质量进行了回顾性回顾:方法:回顾性回顾了有关过渡到鞘内注射联合疗法的背景和决策过程,确定了患者的选择特征。每位患者和/或其护理人员都填写了一份调查问卷,内容涉及开始鞘内联合用药后疼痛、痉挛、功能和生活质量的改善情况:调查结果显示,开始巴氯芬和镇痛剂联合鞘内注射治疗后,患者的功能和疼痛评估均有所改善。患者和护理人员报告疼痛和口服痉挛药物减少:结论:在治疗同时伴有严重痉挛和疼痛的儿童期残疾患者时,应考虑使用带有解痉和镇痛药物的泵进行联合鞘内给药。
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引用次数: 0
A case series on the effect of dynamic neoprene orthosis on lower limb kinematic variables in children with cerebral palsy. 动态氯丁橡胶矫形器对脑瘫儿童下肢运动变量影响的病例系列。
IF 1.9 Q3 Medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-200806
Sedigheh Sadat Mirbagheri, Mahmood Bahramizadeh, Gholamreza Aminian, Hamid Dalvand, Farzam Farahmand, Mohsen Vahedi

Purpose: This study examined the effects of a dynamic neoprene orthosis on kinematic variables of gait in children with spastic bilateral cerebral palsy (CP).

Methods: Five children (whose median age was 9.6 years and who ranged in age from six to 12) with spastic bilateral CP and flexed knee at levels I-III of the Gross Motor Function Classification System were examined using kinematic gait analysis in three different conditions: 1) with dynamic neoprene orthosis; 2) without dynamic neoprene orthosis (immediate effect); and 3) without orthosis after six weeks of intervention.

Results: The comparison between condition one (with dynamic neoprene orthosis) and condition two (without dynamic neoprene orthosis) demonstrated the existence of improvements in minimum hip and knee flexion variables. Moreover, the results indicated that the improvements remained constant in several key gait variables after six weeks.

Conclusion: The results varied from subject to subject, and there were signs of improvement in some of the subjects. Therefore, it was not possible to draw conclusions at a group level. Nonetheless, a number of individuals may benefit from this type of orthosis.

目的:本研究探讨了动态氯丁橡胶矫形器对痉挛性双侧脑瘫(CP)儿童步态运动变量的影响:五名患有痉挛性双侧脑瘫且膝关节屈曲的儿童(中位年龄为 9.6 岁,年龄在 6 岁至 12 岁之间)在粗大运动功能分类系统 I-III 级的三种不同条件下进行了运动步态分析:1)使用动态氯丁橡胶矫形器;2)不使用动态氯丁橡胶矫形器(即时效果);3)干预六周后不使用矫形器:结果:第一种情况(使用动态氯丁橡胶矫形器)和第二种情况(不使用动态氯丁橡胶矫形器)之间的比较表明,最小髋关节和膝关节屈曲变量有所改善。此外,结果表明,六周后,几个关键步态变量的改善保持不变:结论:不同受试者的结果各不相同,部分受试者的情况有改善迹象。因此,无法从群体层面得出结论。不过,许多人可能会从这种矫形器中受益。
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引用次数: 0
Management and treatment of musculoskeletal problems in adults with cerebral palsy: Experience gained from two lifespan clinics. 成人脑瘫患者肌肉骨骼问题的管理和治疗:从两家寿命诊所获得的经验。
IF 1.9 Q3 Medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-240018
Mark Katsma, Haiqing Liu, Xiaoyu Pan, Kyle J Ryan, David P Roye, Henry G Chambers
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引用次数: 0
Making medical missions your mission. 让医疗任务成为你的使命
IF 0.8 Q4 PEDIATRICS Pub Date : 2024-01-01 DOI: 10.3233/PRM-249003
Virginia Simson Nelson
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引用次数: 0
"Tremendous burdens often unveil enormous gifts": The experiences of South African caregivers implementing speech and language teletherapy for children with cerebral palsy during COVID-19. "巨大的负担往往揭示了巨大的天赋":南非护理人员在 COVID-19 期间为脑瘫儿童实施言语和语言远程治疗的经验。
IF 1.9 Q3 Medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220118
Gabriela Evangelou, Skye Nandi Adams

Purpose: In accordance with South Africa's restrictions to mitigate the spread of COVID-19, some speech-language pathologists (SLPs) attempted to engage in novice teletherapy regimes to ensure continuity of care for children with cerebral palsy (CP). This study aimed to explore the experiences of caregivers of children with CP implementing SLP teletherapy during COVID-19 in South Africa. The goal was to shed light on how these families can be better supported and how teletherapy practices can be adjusted for this population.

Methods: This study employed a qualitative phenomenological research design using in-person and virtual semi-structured interviews with 18 purposively sampled participants with children with CP who received speech and language teletherapy during COVID-19. The data was evaluated using an inductive thematic analysis approach whereby themes elicited from the caregivers' narratives were analyzed.

Results: Interviews (n = 18) unveiled the significant understanding caregivers gained by becoming integral and active stakeholders in the provision of teletherapy. Caregivers were able to meaningfully communicate and bond with their children with CP. However, caregivers also assumed the burden that teletherapy placed on them, as they had to renegotiate their role during the pandemic in order to provide routine teletherapy.

Conclusion: Findings indicated the need for person-centered SLP teletherapy interventions that utilize contextually and culturally responsive techniques and resources.

目的:根据南非减少 COVID-19 传播的限制措施,一些语言病理学家(SLPs)尝试参与新手远程治疗,以确保脑瘫(CP)儿童护理的连续性。本研究旨在探讨南非 COVID-19 期间,脑瘫儿童护理人员实施 SLP 远程治疗的经验。目的是阐明如何为这些家庭提供更好的支持,以及如何针对这一人群调整远程治疗方法:本研究采用了定性现象学研究设计,通过面对面和虚拟半结构化访谈的方式,有目的性地抽取了 18 位在 COVID-19 期间接受过言语和语言远程治疗的 CP 儿童的参与者。采用归纳式主题分析方法对数据进行评估,分析从照顾者的叙述中引出的主题:结果:访谈(n = 18)揭示了护理人员通过成为远程治疗中不可或缺的积极利益相关者而获得的重要理解。照护者能够与患有先天性脑瘫的儿童进行有意义的交流,并增进感情。然而,照护者也承担了远程治疗给他们带来的负担,因为他们不得不在大流行期间重新协商自己的角色,以提供常规远程治疗:研究结果表明,有必要采取以人为本的 SLP 远程治疗干预措施,利用与环境和文化相适应的技术和资源。
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引用次数: 0
Effectiveness of simple and basic home-based exercise programs including pediatric massage executed by caregivers at their homes in the management of children with spastic cerebral palsy: A randomized controlled trial. 简单而基本的家庭锻炼计划(包括由护理人员在家中实施的小儿按摩)在治疗痉挛性脑瘫儿童方面的效果:随机对照试验。
IF 1.9 Q3 Medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220135
Qamar Mahmood, Shaista Habibullah, Hazrat Ullah Aurakzai

Purpose: This study aimed to assess the effectiveness of simple and basic home-based exercise programs (HEPs), including pediatric massage (PM), executed by caregivers at their homes in the management of children with spastic cerebral palsy (CP).

Methods: Sixty-eight children with spastic CP (diplegia) aged 4-12 years were randomly assigned to PM and HEP groups for a randomized controlled trial continuing from November 01, 2021 to June 2022. Parents provided home-based exercises to both groups, five times a week for 12 weeks. However, the PM group was additionally provided with PM. Modified Ashworth Scale (MAS), Gross Motor Function Measure (GMFM-88) and Gross Motor Function Classification System (GMFCS) were used for evaluation of spasticity and gross motor activity at baseline as well as after six and 12 weeks of intervention. Comparative analysis of data was carried out with SPSS-20.

Results: Mean age in HEP and PM groups was 6.65±2.12 and 7.09±2.22 years respectively. Data revealed homogeneity of both groups at the beginning of study. The PM group showed a statistically significant decrease in MAS scores after six and 12 weeks of intervention (p < 0.05) when compared with the HEP group, but similar changes did not happen in GMFM scores and GMFCS levels. However, comparative analysis revealed statistically significant change in GMFM scores and GMFCS levels (p < 0.05) when compared from baseline to 12 weeks of intervention in both groups.

Conclusion: PM along with HEPs can be used effectively to reduce spasticity and to improve gross motor ability if performed for a period of at least six and 12 weeks respectively. In conjunction with HEPs, PM has better outcomes in the management of tone and movement disorders of spastic CP than HEPs alone.

目的:本研究旨在评估简单而基本的家庭锻炼计划(HEP),包括小儿按摩(PM),由护理人员在家中实施对痉挛性脑瘫(CP)儿童进行管理的有效性:方法:在 2021 年 11 月 1 日至 2022 年 6 月期间进行的随机对照试验中,68 名 4-12 岁痉挛性脑瘫(偏瘫)儿童被随机分配到 PM 组和 HEP 组。家长为两组儿童提供每周 5 次、为期 12 周的家庭锻炼。不过,PM 组还额外提供了 PM。在基线以及干预 6 周和 12 周后,采用改良阿什沃斯量表(MAS)、粗大运动功能测量法(GMFM-88)和粗大运动功能分类系统(GMFCS)对痉挛和粗大运动活动进行评估。使用 SPSS-20 对数据进行比较分析:结果:HEP 组和 PM 组的平均年龄分别为 6.65±2.12 岁和 7.09±2.22 岁。数据显示两组在研究开始时具有同质性。与 HEP 组相比,PM 组在干预 6 周和 12 周后的 MAS 分数有了统计学意义上的显著下降(P < 0.05),但 GMFM 分数和 GMFCS 水平没有发生类似的变化。然而,比较分析表明,两组的 GMFM 评分和 GMFCS 水平从基线到干预 12 周之间的比较有显著的统计学变化(p < 0.05):结论: PM与HEPs如果分别持续至少6周和12周,可有效缓解痉挛并改善大运动能力。在治疗痉挛性脊柱侧弯症的张力和运动障碍方面,PM 与 HEPs 联合使用比单独使用 HEPs 效果更好。
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引用次数: 0
Clinical outcomes measurement in pediatric lower limb prosthetics: A scoping review. 小儿下肢假肢的临床效果测量:范围综述。
IF 0.8 Q4 PEDIATRICS Pub Date : 2024-01-01 DOI: 10.3233/PRM-230014
Kevin D Koenig, Michelle J Hall, Caroline Gormley, Mary Kaleta, Meghan Munger, Jennifer Laine, Sara J Morgan

Objective: This study aimed to identify clinical measures that have been used to evaluate function, health related quality of life (HRQoL), and/or satisfaction in children who use lower limb prostheses (LLP). The data reported on psychometric properties for children who use LLP were collected for each measure.

Methods: First, PubMed, CINAHL, and Web of Science databases were searched using broad search terms to identify standardized outcome measures of function, HRQoL, and/or satisfaction with treatment used in pediatric LLP research published in 2001 or after. For each of the eligible measures found, a second search was performed to identify psychometric properties (e.g., validity, reliability) assessed with children who use LLP.

Results: Forty-four standardized outcome measures were identified from 41 pediatric LLP research articles. Five measures (i.e., Gait Outcomes Assessment for Lower Limb Differences, Functional Mobility Assessment, Child Amputee Prosthetics Project- Prosthesis Satisfaction Inventory, Child Amputee Prosthetics Project- Functional Scale Index, and Lower Limb Function Questionnaire) had data on psychometric properties for children who use LLP.

Conclusions: Few studies report psychometric data for assessing the overall HRQoL, function, and/or satisfaction for children who use LLP. Further research is needed to validate or create new outcome measures that assess the HRQoL, satisfaction, and/or function of children who use LLP.

目的:本研究旨在确定用于评估使用下肢假肢(LLP)的儿童的功能、与健康相关的生活质量(HRQoL)和/或满意度的临床测量方法。首先,使用广泛的检索词对 PubMed、CINAHL 和 Web of Science 数据库进行检索,以确定 2001 年或之后发表的儿科 LLP 研究中使用的功能、HRQoL 和/或治疗满意度的标准化结果测量。对于找到的符合条件的每种测量方法,都进行了第二次搜索,以确定对使用 LLP 的儿童进行评估的心理测量特性(如有效性、可靠性):从 41 篇儿科 LLP 研究文章中确定了 44 项标准化结果测量。其中五项测量方法(即下肢差异步态结果评估、功能移动性评估、儿童截肢者假肢项目--假肢满意度量表、儿童截肢者假肢项目--功能量表指数和下肢功能问卷)具有针对使用 LLP 儿童的心理测量特性数据:很少有研究报告了评估使用 LLP 的儿童整体 HRQoL、功能和/或满意度的心理测量数据。需要进一步研究验证或创建新的结果测量方法,以评估使用 LLP 的儿童的 HRQoL、满意度和/或功能。
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引用次数: 0
期刊
Journal of pediatric rehabilitation medicine
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