首页 > 最新文献

Journal of pediatric and adolescent gynecology最新文献

英文 中文
Comparing Medical Abortion Outcomes and Experiences Between Young and Adult Women: Evidence From Urban Cambodia 比较年轻和成年妇女的药物流产结果和经验:来自柬埔寨城市的证据。
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.07.007
Erin Pearson PhD, MPH , Paige Logan MPH , Elisabeth Eckersberger PhD, MPA , Jamie Menzel MPH , Bunsoth Mao MD , Sovanthida Suy MAppStat, MSc , Vonthanak Saphonn MD, PhD, MSc , Nathalie Kapp MD, MPH

Introduction

Self-managed abortions are increasingly common globally, but little is known about young women’s experiences.

Methods

Secondary analysis of data from 1847 women accessing MA in urban Cambodia in 2018-2019 and in-depth interviews with seven women aged 15-19. Descriptive statistics compared young and adult women on self-reported abortion outcomes and experiences in clinics and pharmacies, and qualitative data contextualized quantitative findings.

Results

Young women were better represented among clinic clients (30.0%) compared to pharmacy clients (20.2%). Young women had comparable MA success rates and better MA experiences across settings, but young pharmacy clients were more likely to seek support from friends and family.

Discussion

Young women had comparable MA outcomes and experiences as adult women in both clinics and pharmacies, but young women self-managing their abortions may require information and support beyond the pharmacist.
导言:自我管理堕胎在全球越来越普遍,但对年轻女性的经历知之甚少。方法:对2018-2019年柬埔寨城市1847名接受MA治疗的女性的数据进行二次分析,并对7名15-19岁的女性进行深度访谈。描述性统计比较了年轻妇女和成年妇女在诊所和药房自我报告的堕胎结果和经历,定性数据将定量结果纳入背景。结果:年轻女性在诊所客户(30.0%)中比药房客户(20.2%)更具代表性。年轻女性在不同的环境中有相似的MA成功率和更好的MA体验,但年轻的药房客户更有可能从朋友和家人那里寻求支持。讨论:在诊所和药房,年轻女性的MA结果和经历与成年女性相当,但年轻女性自我管理堕胎可能需要药剂师以外的信息和支持。
{"title":"Comparing Medical Abortion Outcomes and Experiences Between Young and Adult Women: Evidence From Urban Cambodia","authors":"Erin Pearson PhD, MPH ,&nbsp;Paige Logan MPH ,&nbsp;Elisabeth Eckersberger PhD, MPA ,&nbsp;Jamie Menzel MPH ,&nbsp;Bunsoth Mao MD ,&nbsp;Sovanthida Suy MAppStat, MSc ,&nbsp;Vonthanak Saphonn MD, PhD, MSc ,&nbsp;Nathalie Kapp MD, MPH","doi":"10.1016/j.jpag.2025.07.007","DOIUrl":"10.1016/j.jpag.2025.07.007","url":null,"abstract":"<div><h3>Introduction</h3><div>Self-managed abortions are increasingly common globally, but little is known about young women’s experiences.</div></div><div><h3>Methods</h3><div>Secondary analysis of data from 1847 women accessing MA in urban Cambodia in 2018-2019 and in-depth interviews with seven women aged 15-19. Descriptive statistics compared young and adult women on self-reported abortion outcomes and experiences in clinics and pharmacies, and qualitative data contextualized quantitative findings.</div></div><div><h3>Results</h3><div>Young women were better represented among clinic clients (30.0%) compared to pharmacy clients (20.2%). Young women had comparable MA success rates and better MA experiences across settings, but young pharmacy clients were more likely to seek support from friends and family.</div></div><div><h3>Discussion</h3><div>Young women had comparable MA outcomes and experiences as adult women in both clinics and pharmacies, but young women self-managing their abortions may require information and support beyond the pharmacist.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 114-120"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144718083","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“I am so grateful you made me do this”: Navigating AYA-Caregiver Discordance on Shared Decision-making about Fertility Preservation “我很感激你让我这样做”在关于生育保护的共同决策中导航保姆和护理人员的不一致。
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.09.016
J.L. Feuerstein DO , S. Menon MD , B. Lockart DNP, APRN, NP , S. Zarnegar-Lumley MD , A.K. Johnson PhD

Study Objective

As survival rates improve for adolescents and young adults (AYAs) with cancer, understanding barriers to fertility preservation (FP) decision-making has become increasingly important. FP decisions involve both AYAs and caregivers, yet discordance in fertility goals is common and may hinder FP utilization. The factors contributing to discordance and its impact remain underexplored. This study used the Ottawa Decision Support Framework (ODSF), which identifies essential medical decision-making needs and categorizes barriers into 7 domains, to examine the experiences of discordance in FP decision-making.

Methods

Semi-structured qualitative interviews were conducted with AYA-caregiver dyads who experienced discordance during FP decision-making. Participants were aged 12-25, were ≥6 months post-cancer diagnosis, read and spoke English, and were at risk for infertility due to gonadotoxic therapy. Interviews were conducted via ZOOM between July 2024 and January 2025. Data analysis used a content analysis approach guided by existing theory and the ODSF.

Results

Caregivers emphasized accurate information, AYAs’ maturity, and seeking external advice, whereas AYAs had greater difficulty with internal confidence and decision-making uncertainty. Caregivers often assumed directive roles due to treatment urgency and perceived AYA immaturity. AYAs, despite valuing autonomy, deferred to caregivers due to emotional distress and limited knowledge.

Conclusion

The ODSF-guided analysis revealed several sources of discordance, though none led to FP refusal. Structured counseling mitigated decisional conflict, and all participants expressed decision satisfaction. The findings support structured counseling to align AYAs’ autonomy with caregiver support. Future studies should include more diverse sociodemographic, multi-institutional samples and the perspectives of those who declined FP.
研究目的:随着癌症青少年和青壮年(AYAs)存活率的提高(1),了解生育保留(FP)决策的障碍变得越来越重要。计划生育决策涉及到AYAs和照顾者,但生育目标的不一致是常见的,可能会阻碍计划生育的利用。造成不一致的因素及其影响仍未得到充分探讨。本研究使用渥太华决策支持框架(ODSF),该框架确定了基本的医疗决策需求,并将障碍分为七个领域(2),以检查计划生育决策中不一致的经验。方法:采用半结构化的定性访谈,对计划生育决策过程中出现不一致的护理人员夫妇进行访谈。参与者年龄在12-25岁,癌症诊断后≥6个月,能阅读和说英语,有因促性腺毒素治疗导致不孕的风险。访谈在2024年7月至2025年1月期间通过ZOOM进行。数据分析采用现有理论和ODSF指导下的内容分析方法。结果:照顾者强调信息的准确性、aya的成熟度和寻求外部建议,而aya在内部信心和决策不确定性方面存在较大困难。由于治疗的迫切性和AYAs的不成熟,护理人员通常承担指导角色。AYAs虽然重视自主权,但由于情绪困扰和知识有限,他们服从于照顾者。结论:odsf引导的分析揭示了几个不一致的来源,尽管没有一个导致FP拒绝。结构化咨询减轻了决策冲突,所有参与者都表达了决策满意度。研究结果支持结构化咨询,使aya的自主权与照顾者的支持保持一致。未来的研究应该包括更多样化的社会人口统计,多机构样本和那些拒绝计划生育的人的观点。
{"title":"“I am so grateful you made me do this”: Navigating AYA-Caregiver Discordance on Shared Decision-making about Fertility Preservation","authors":"J.L. Feuerstein DO ,&nbsp;S. Menon MD ,&nbsp;B. Lockart DNP, APRN, NP ,&nbsp;S. Zarnegar-Lumley MD ,&nbsp;A.K. Johnson PhD","doi":"10.1016/j.jpag.2025.09.016","DOIUrl":"10.1016/j.jpag.2025.09.016","url":null,"abstract":"<div><h3>Study Objective</h3><div>As survival rates improve for adolescents and young adults (AYAs) with cancer, understanding barriers to fertility preservation (FP) decision-making has become increasingly important. FP decisions involve both AYAs and caregivers, yet discordance in fertility goals is common and may hinder FP utilization. The factors contributing to discordance and its impact remain underexplored. This study used the Ottawa Decision Support Framework (ODSF), which identifies essential medical decision-making needs and categorizes barriers into 7 domains, to examine the experiences of discordance in FP decision-making.</div></div><div><h3>Methods</h3><div>Semi-structured qualitative interviews were conducted with AYA-caregiver dyads who experienced discordance during FP decision-making. Participants were aged 12-25, were ≥6 months post-cancer diagnosis, read and spoke English, and were at risk for infertility due to gonadotoxic therapy. Interviews were conducted via ZOOM between July 2024 and January 2025. Data analysis used a content analysis approach guided by existing theory and the ODSF.</div></div><div><h3>Results</h3><div>Caregivers emphasized accurate information, AYAs’ maturity, and seeking external advice, whereas AYAs had greater difficulty with internal confidence and decision-making uncertainty. Caregivers often assumed directive roles due to treatment urgency and perceived AYA immaturity. AYAs, despite valuing autonomy, deferred to caregivers due to emotional distress and limited knowledge.</div></div><div><h3>Conclusion</h3><div>The ODSF-guided analysis revealed several sources of discordance, though none led to FP refusal. Structured counseling mitigated decisional conflict, and all participants expressed decision satisfaction. The findings support structured counseling to align AYAs’ autonomy with caregiver support. Future studies should include more diverse sociodemographic, multi-institutional samples and the perspectives of those who declined FP.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 43-49"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145258492","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comparison of Long-Acting Reversible Contraceptive (LARC) Choices by Multiethnic U.S. Adolescents and Young Adults With and Without Eating Disorders: A Multicenter Cohort Study 美国多种族有和无饮食失调的青少年和年轻人选择长效可逆避孕药的比较:一项多中心队列研究
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.09.003
Nicole R. Ferrigno-Layton DO , Carly E. Milliren MPH , Sarah Pitts MD , Amy D. DiVasta MD, MMSc , Michelle Escovedo MD , Sarah A. Golub MD, MPH , Susan M. Coupey MD , Sofya Maslyanskaya MD

Study Objective

Body image concerns may influence contraceptive choices of adolescents and young adults (AYAs) with eating disorders (EDOs). We aimed to compare long-acting reversible contraceptive (LARC) choices and continuation rates for AYAs with and without EDOs.

Methods

We used data on LARC insertions from 2017 to 2021 from four US adolescent medicine practices measuring demographics, menstrual history, reason for LARC device, follow-up, and continuation. Additional record search identified participants with EDOs. We examined associations of EDOs and choice of device using adjusted logistic regression and 1-year discontinuation using Cox proportional hazards survival analysis.

Results

The cohort included 2,346 AYAs; 80 (3%) with EDO; 32% White; 29% Hispanic, 15% Black. Mean age at LARC insertion 18.7 ± 2.4 years (range 12-25). Participants with EDO vs. without had higher odds of choosing intrauterine devices (IUD) over implants (OR = 2.18; 95% CI: 1.31, 3.61; p = .003). One-year LARC continuation rates were 77% overall and similar for those with and without EDOs. AYAs with EDOs vs without had similar likelihood of LARC device removal within 1 year. Participants identifying as Black non-Hispanic (OR = 0.34;95% CI: 0.26, 0.45, p < .001) and Hispanic (OR = 0.34; 95% CI: 0.26, 0.45, p < .001) vs White non-Hispanic had lower odds of choosing IUDs over implants. Black non-Hispanic AYAs had higher likelihood than White non-Hispanics for LARC removal within 1-year (HR = 1.58; 95% CI: 1.11, 2.25; p = .01).

Conclusions

AYAs with EDOs compared to those without EDOs are more likely to choose IUDs over implants and they have similar high 1-year LARC continuation rates . AYAs of non-White race/ethnicities independent of EDO diagnosis are less likely to choose IUDs.
研究目的:身体形象问题可能会影响青少年和年轻成人(AYAs)饮食失调(edo)的避孕选择。我们的目的是比较长效可逆避孕(LARC)的选择和持续率的AYAs有和没有EDOs。方法:我们使用了来自美国四个青少年医学实践的2017-2021年LARC植入数据,包括人口统计学、月经史、LARC装置使用原因、随访和延续。额外的记录搜索确定了患有edo的参与者。我们使用调整后的逻辑回归和Cox比例风险生存分析检查了EDOs与器械选择的关系。结果:该队列包括2346名AYAs;80例(3%)为EDO;32%的白人;29%是西班牙裔,15%是黑人。LARC插入时的平均年龄为18.7±2.4岁(范围12-25岁)。EDO患者与非EDO患者相比,选择宫内节育器(IUD)的几率高于植入物(OR=2.18; 95% CI:1.31, 3.61; p=0.003)。总体而言,一年LARC延续率为77%,有无EDOs患者的LARC延续率相似。有EDOs的AYAs与没有EDOs的AYAs在一年内移除LARC装置的可能性相似。非西班牙裔黑人参与者(OR=0.34;95% CI;0.26, 0.45, p)结论:与没有EDOs的患者相比,有EDOs的AYAs更有可能选择宫内节育器而不是植入物,并且他们具有相似的高一年LARC延续率。非白种人/族裔独立于EDO诊断的女性更不可能选择宫内节育器。
{"title":"Comparison of Long-Acting Reversible Contraceptive (LARC) Choices by Multiethnic U.S. Adolescents and Young Adults With and Without Eating Disorders: A Multicenter Cohort Study","authors":"Nicole R. Ferrigno-Layton DO ,&nbsp;Carly E. Milliren MPH ,&nbsp;Sarah Pitts MD ,&nbsp;Amy D. DiVasta MD, MMSc ,&nbsp;Michelle Escovedo MD ,&nbsp;Sarah A. Golub MD, MPH ,&nbsp;Susan M. Coupey MD ,&nbsp;Sofya Maslyanskaya MD","doi":"10.1016/j.jpag.2025.09.003","DOIUrl":"10.1016/j.jpag.2025.09.003","url":null,"abstract":"<div><h3>Study Objective</h3><div>Body image concerns may influence contraceptive choices of adolescents and young adults (AYAs) with eating disorders (EDOs). We aimed to compare long-acting reversible contraceptive (LARC) choices and continuation rates for AYAs with and without EDOs.</div></div><div><h3>Methods</h3><div>We used data on LARC insertions from 2017 to 2021 from four US adolescent medicine practices measuring demographics, menstrual history, reason for LARC device, follow-up, and continuation. Additional record search identified participants with EDOs. We examined associations of EDOs and choice of device using adjusted logistic regression and 1-year discontinuation using Cox proportional hazards survival analysis.</div></div><div><h3>Results</h3><div>The cohort included 2,346 AYAs; 80 (3%) with EDO; 32% White; 29% Hispanic, 15% Black. Mean age at LARC insertion 18.7 ± 2.4 years (range 12-25<strong>).</strong> Participants with EDO vs. without had higher odds of choosing intrauterine devices (IUD) over implants (OR = 2.18; 95% CI: 1.31, 3.61; <em>p</em> = .003). One-year LARC continuation rates were 77% overall and similar for those with and without EDOs. AYAs with EDOs vs without had similar likelihood of LARC device removal within 1 year. Participants identifying as Black non-Hispanic (OR = 0.34;95% CI: 0.26, 0.45, <em>p</em> &lt; .001) and Hispanic (OR = 0.34; 95% CI: 0.26, 0.45, <em>p</em> &lt; .001) vs White non-Hispanic had lower odds of choosing IUDs over implants. Black non-Hispanic AYAs had higher likelihood than White non-Hispanics for LARC removal within 1-year (HR = 1.58; 95% CI: 1.11, 2.25; <em>p</em> = .01).</div></div><div><h3>Conclusions</h3><div>AYAs with EDOs compared to those without EDOs are more likely to choose IUDs over implants and they have similar high 1-year LARC continuation rates . AYAs of non-White race/ethnicities independent of EDO diagnosis are less likely to choose IUDs.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 69-75"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145086282","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Trisomy 18 and Ambiguous Genitalia: A Case Report 18三体和生殖器模糊1例报告。
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.10.004
Demet Tosun MD , İlyas Bingöl MD , Nihal Akçay MD , Çiğdem Özlem Sarıcalı MD , Merve Şakar Mehmet MD

Background

Trisomy 18 (Edwards syndrome) is a rare chromosomal disorder characterized by multiple congenital anomalies and poor survival. While the clinical spectrum is well-documented, ambiguous genitalia is not commonly associated with this syndrome and is infrequently reported in the literature.

Case Presentation

We report the case of a 35-day-old female infant presenting with respiratory distress and ambiguous genitalia. Physical examination revealed multiple dysmorphic features including micrognathia, dysmorphic facial features, low-set ears, agenesis of the left auricle, and limb abnormalities such as rocker-bottom feet. Ambiguous genitalia were staged as Prader and Sinnecker stage 2. Echocardiography revealed complex congenital cardiac defects, and chromosomal analysis confirmed 47,XX,+18. Despite severe anomalies, the patient remained clinically stable with supportive care. A multidisciplinary follow-up was initiated.

Discussion

This case highlights the importance of considering chromosomal anomalies such as Edwards syndrome in neonates with ambiguous genitalia, even in the absence of typical phenotypic findings. The presence of ambiguous genitalia should not preclude the diagnosis of Trisomy 18. Early recognition and genetic confirmation allow for appropriate counseling and management.

Conclusion

This case contributes to the limited body of literature documenting ambiguous genitalia in Trisomy 18. Recognizing rare phenotypic presentations expands our understanding of the clinical heterogeneity of Edwards syndrome and supports early cytogenetic evaluation in neonates with multisystem anomalies.
背景:18三体(爱德华兹综合征)是一种罕见的染色体疾病,其特征是多发性先天性异常和生存率低。虽然临床谱是有据可查的,但模糊的生殖器通常不与该综合征相关,并且在文献中很少报道。病例介绍:我们报告一个35天大的女婴出现呼吸窘迫和生殖器模糊的情况。体格检查显示多种畸形特征,包括小颌畸形、畸形面部特征、低耳、左耳廓发育不全和下肢异常,如摇底足。暧昧的生殖器是普拉德和辛内克的第二阶段。超声心动图显示复杂的先天性心脏缺陷,染色体分析证实47,XX,+18。尽管有严重的异常,患者在支持性护理下保持临床稳定。开始了多学科随访。讨论:本病例强调了考虑染色体异常的重要性,如新生儿爱德华兹综合征的生殖器模糊,即使没有典型的表型发现。生殖器模糊不应排除18三体的诊断。早期识别和基因确认允许适当的咨询和管理。结论:本病例增加了文献记载18三体患者生殖器模糊的数量。认识到罕见的表型表现扩大了我们对爱德华兹综合征临床异质性的理解,并支持对多系统异常新生儿进行早期细胞遗传学评估。
{"title":"Trisomy 18 and Ambiguous Genitalia: A Case Report","authors":"Demet Tosun MD ,&nbsp;İlyas Bingöl MD ,&nbsp;Nihal Akçay MD ,&nbsp;Çiğdem Özlem Sarıcalı MD ,&nbsp;Merve Şakar Mehmet MD","doi":"10.1016/j.jpag.2025.10.004","DOIUrl":"10.1016/j.jpag.2025.10.004","url":null,"abstract":"<div><h3>Background</h3><div>Trisomy 18 (Edwards syndrome) is a rare chromosomal disorder characterized by multiple congenital anomalies and poor survival. While the clinical spectrum is well-documented, ambiguous genitalia is not commonly associated with this syndrome and is infrequently reported in the literature.</div></div><div><h3>Case Presentation</h3><div>We report the case of a 35-day-old female infant presenting with respiratory distress and ambiguous genitalia. Physical examination revealed multiple dysmorphic features including micrognathia, dysmorphic facial features, low-set ears, agenesis of the left auricle, and limb abnormalities such as rocker-bottom feet. Ambiguous genitalia were staged as Prader and Sinnecker stage 2. Echocardiography revealed complex congenital cardiac defects, and chromosomal analysis confirmed 47,XX,+18. Despite severe anomalies, the patient remained clinically stable with supportive care. A multidisciplinary follow-up was initiated.</div></div><div><h3>Discussion</h3><div>This case highlights the importance of considering chromosomal anomalies such as Edwards syndrome in neonates with ambiguous genitalia, even in the absence of typical phenotypic findings. The presence of ambiguous genitalia should not preclude the diagnosis of Trisomy 18. Early recognition and genetic confirmation allow for appropriate counseling and management.</div></div><div><h3>Conclusion</h3><div>This case contributes to the limited body of literature documenting ambiguous genitalia in Trisomy 18. Recognizing rare phenotypic presentations expands our understanding of the clinical heterogeneity of Edwards syndrome and supports early cytogenetic evaluation in neonates with multisystem anomalies.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 121-123"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145274971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Fertility Attitudes of Adolescents and Young Adults With Turner Syndrome and Their Parents/Guardians: A Pilot Cross-Sectional Survey Study 青少年和青年特纳综合征及其父母/监护人的生育态度:一项试点横断面调查研究。
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.09.002
Tazim Dowlut-McElroy MD MS , Victoria O. Hyunh MD , Lauren Roth MD , Madeline Ross MD , Anne-Marie Priebe DO , Jacqueline C. Yano Maher MD , Veronica Gomez-Lobo MD

Study Objective

To compare differences in attitudes between adolescents and young adults with Turner syndrome (AYA with TS) and their parents regarding future fertility and fertility preservation.

Design

(1) FertilityConcepTS survey development with a 2-staged Delphi procedure. (2) Cross-sectional survey study.

Setting

(1) Web-based focus groups. (2) Survey dissemination during the multidisciplinary Turner syndrome clinic at a tertiary care children’s hospital and via the social media platform of the Turner Syndrome Global Alliance.

Participants

Members of the Turner syndrome community.

Main outcome Measures

Attitudes about (1) Interest in understanding the effects of TS on fertility and pregnancy, (2) Opinions of having children that are genetically similar, (3) Alternative methods of building a family, and (4) Medical/surgical fertility preservation procedures with unknown outcomes.

Results

Twenty-eight participants were included in the analysis. The median age of AYA with TS was 17.5 (IQR: 10.5) years, and of parents was 48.0 (IQR: 9.3) years. AYA with TS and their parents differed in their consideration for adoption (p = .005), use of donor egg (p < .001), use of a gestational carrier (p < .001) and raising a child as a single parent (p = .002). Although all parents agreed/strongly agreed with oocyte cryopreservation (OC) and ovarian tissue cryopreservation (OTC), 18.8% and 43.8%, of AYA with TS, respectively, disagreed/strongly disagreed with OC (p = .042) and OTC (p = .021).

Conclusions

In this pilot study, AYA with TS and their parents have differing attitudes about fertility and fertility preservation. Counselling should include consideration of the needs of AYA with TS alongside parent priorities.
研究目的:比较青少年和青壮年特纳综合征(AYA与TS)及其父母对未来生育和保留生育能力的态度差异。设计:1)采用两阶段德尔菲程序开发生育概念调查。2)横断面调查研究。设置:1)基于网络的焦点小组。2)调查在某三级儿童医院特纳综合征多学科门诊及特纳综合征全球联盟社交媒体平台的传播情况。参与者:特纳综合征社区的成员。主要结果测量:1)有兴趣了解TS对生育和怀孕的影响,2)有基因相似的孩子的意见,3)建立家庭的替代方法,以及4)结果未知的医疗/外科生育保留程序。结果:28名受试者被纳入分析。AYA合并TS的中位年龄为17.5 (IQR 10.5)岁,父母的中位年龄为48.0 (IQR 9.3)岁。结论:在本初步研究中,TS患者及其父母对生育和保留生育能力的态度存在差异。咨询应包括考虑有TS的AYA的需要和家长的优先事项。
{"title":"Fertility Attitudes of Adolescents and Young Adults With Turner Syndrome and Their Parents/Guardians: A Pilot Cross-Sectional Survey Study","authors":"Tazim Dowlut-McElroy MD MS ,&nbsp;Victoria O. Hyunh MD ,&nbsp;Lauren Roth MD ,&nbsp;Madeline Ross MD ,&nbsp;Anne-Marie Priebe DO ,&nbsp;Jacqueline C. Yano Maher MD ,&nbsp;Veronica Gomez-Lobo MD","doi":"10.1016/j.jpag.2025.09.002","DOIUrl":"10.1016/j.jpag.2025.09.002","url":null,"abstract":"<div><h3>Study Objective</h3><div>To compare differences in attitudes between adolescents and young adults with Turner syndrome (AYA with TS) and their parents regarding future fertility and fertility preservation.</div></div><div><h3>Design</h3><div>(1) <em>FertilityConcepTS</em> survey development with a 2-staged Delphi procedure. (2) Cross-sectional survey study.</div></div><div><h3>Setting</h3><div>(1) Web-based focus groups. (2) Survey dissemination during the multidisciplinary Turner syndrome clinic at a tertiary care children’s hospital and via the social media platform of the Turner Syndrome Global Alliance.</div></div><div><h3>Participants</h3><div>Members of the Turner syndrome community.</div></div><div><h3>Main outcome Measures</h3><div>Attitudes about (1) Interest in understanding the effects of TS on fertility and pregnancy, (2) Opinions of having children that are genetically similar, (3) Alternative methods of building a family, and (4) Medical/surgical fertility preservation procedures with unknown outcomes.</div></div><div><h3>Results</h3><div>Twenty-eight participants were included in the analysis. The median age of AYA with TS was 17.5 (IQR: 10.5) years, and of parents was 48.0 (IQR: 9.3) years. AYA with TS and their parents differed in their consideration for adoption (<em>p</em> = .005), use of donor egg (<em>p</em> &lt; .001), use of a gestational carrier (<em>p</em> &lt; .001) and raising a child as a single parent (<em>p</em> = .002). Although all parents agreed/strongly agreed with oocyte cryopreservation (OC) and ovarian tissue cryopreservation (OTC), 18.8% and 43.8%, of AYA with TS, respectively, disagreed/strongly disagreed with OC (<em>p</em> = .042) and OTC (<em>p</em> = .021).</div></div><div><h3>Conclusions</h3><div>In this pilot study, AYA with TS and their parents have differing attitudes about fertility and fertility preservation. Counselling should include consideration of the needs of AYA with TS alongside parent priorities.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 35-42"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145225509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Knowledge, Attitude, and Practice of Parents of Children Aged 9-15 Years for Human Papillomavirus Vaccine and Vaccination in Guangdong Province, China 广东省9-15岁儿童父母对人乳头瘤病毒疫苗和疫苗接种的知识、态度和做法
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.09.010
Yijing Wang PhD , Nuomin Sun MPH , Binglin Chen MS , Mengfei Liu , Ruming Bu MPH , Gang Liu MMS

Study Objective

In China, HPV vaccination coverage among young girls is relatively low, with parental knowledge, attitude, and practice (KAP) significantly influencing their daughters' vaccination decisions. To enhance vaccination rates, Guangdong Province has implemented a free vaccination policy for the bivalent HPV vaccine for eligible girls. This study aimed to assess the KAP levels of parents in Guangdong with daughters aged 9-15 regarding HPV vaccine and HPV vaccination and identify associated factors.

Methods

A cross-sectional online survey was conducted from April 21 to 29, 2022, recruiting 4976 parents in Guangdong Province. Socio-demographic characteristics and KAP levels were analyzed using frequencies and percentages. The Chi-square test compared KAP differences across various socio-demographic groups, while multivariable logistic regression identified factors associated with KAP.

Results

The sample included 1837 fathers (36.98%) and 3130 mothers (63.02%). The overall correct response rate of knowledge, attitude and practice questions was 80.91%, 79.05% and 66.26% respectively. 71.41% of parents demonstrated “good” knowledge, 40.69% exhibited “positive” attitude toward vaccination, and 56.79% reported “favorable” practice. Mothers, those aged 35 or older, and individuals with university/college -level education or above were more likely to show “good” knowledge and “positive” attitude, though they also exhibited “unfavorable” practice. Additionally, parents employed in public institutions and being married tended to have better KAP.

Conclusion

While parents in Guangdong display high knowledge and positive attitude towards HPV vaccine and HPV vaccination, inconsistencies exist between their knowledge, attitude, and practice. Future interventions should focus on well-designed educational campaigns with clear messaging and timely, transparent communication through trusted sources, in order to promote favorable practice alongside improving parental knowledge and attitude.
研究目的:在中国,年轻女孩的HPV疫苗接种率相对较低,父母的知识、态度和实践(KAP)显著影响其女儿的疫苗接种决策。为了提高疫苗接种率,广东省对符合条件的女孩实施了免费接种二价HPV疫苗的政策。本研究旨在评估广东省9-15岁女儿父母对HPV疫苗和HPV疫苗接种的KAP水平,并确定相关因素。方法:于2022年4月21日至29日对广东省4976名家长进行横断面在线调查。使用频率和百分比分析社会人口统计学特征和KAP水平。卡方检验比较了不同社会人口统计学群体的KAP差异,而多变量逻辑回归确定了与KAP相关的因素。结果:样本包括1837名父亲(36.98%)和3130名母亲(63.02%)。知识、态度和实践问题的总体正确率分别为80.91%、79.05%和66.26%。71.41%的家长对疫苗接种有“良好”的认识,40.69%的家长对疫苗接种有“积极”的态度,56.79%的家长对疫苗接种有“良好”的态度。母亲、年龄在35岁或以上的人,以及受过大学或学院教育或以上的人更有可能表现出“良好”的知识和“积极”的态度,尽管他们也表现出“不利”的行为。此外,在公共机构工作和已婚的父母往往有更好的KAP。结论:广东省家长对HPV疫苗和HPV疫苗接种的认知度较高,态度积极,但存在知识、态度和行为不一致的问题。未来的干预措施应侧重于精心设计的教育活动,通过可靠的来源提供明确的信息和及时、透明的沟通,以促进有利的做法,同时提高家长的知识和态度。
{"title":"Knowledge, Attitude, and Practice of Parents of Children Aged 9-15 Years for Human Papillomavirus Vaccine and Vaccination in Guangdong Province, China","authors":"Yijing Wang PhD ,&nbsp;Nuomin Sun MPH ,&nbsp;Binglin Chen MS ,&nbsp;Mengfei Liu ,&nbsp;Ruming Bu MPH ,&nbsp;Gang Liu MMS","doi":"10.1016/j.jpag.2025.09.010","DOIUrl":"10.1016/j.jpag.2025.09.010","url":null,"abstract":"<div><h3>Study Objective</h3><div>In China, HPV vaccination coverage among young girls is relatively low, with parental knowledge, attitude, and practice (KAP) significantly influencing their daughters' vaccination decisions. To enhance vaccination rates, Guangdong Province has implemented a free vaccination policy for the bivalent HPV vaccine for eligible girls. This study aimed to assess the KAP levels of parents in Guangdong with daughters aged 9-15 regarding HPV vaccine and HPV vaccination and identify associated factors.</div></div><div><h3>Methods</h3><div>A cross-sectional online survey was conducted from April 21 to 29, 2022, recruiting 4976 parents in Guangdong Province. Socio-demographic characteristics and KAP levels were analyzed using frequencies and percentages. The Chi-square test compared KAP differences across various socio-demographic groups, while multivariable logistic regression identified factors associated with KAP.</div></div><div><h3>Results</h3><div>The sample included 1837 fathers (36.98%) and 3130 mothers (63.02%). The overall correct response rate of knowledge, attitude and practice questions was 80.91%, 79.05% and 66.26% respectively. 71.41% of parents demonstrated “good” knowledge, 40.69% exhibited “positive” attitude toward vaccination, and 56.79% reported “favorable” practice. Mothers, those aged 35 or older, and individuals with university/college -level education or above were more likely to show “good” knowledge and “positive” attitude, though they also exhibited “unfavorable” practice. Additionally, parents employed in public institutions and being married tended to have better KAP.</div></div><div><h3>Conclusion</h3><div>While parents in Guangdong display high knowledge and positive attitude towards HPV vaccine and HPV vaccination, inconsistencies exist between their knowledge, attitude, and practice. Future interventions should focus on well-designed educational campaigns with clear messaging and timely, transparent communication through trusted sources, in order to promote favorable practice alongside improving parental knowledge and attitude.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 27-34"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145186106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hidradenitis Suppurativa in the Pediatric and Adolescent Population 儿童和青少年人群中的化脓性汗腺炎。
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.09.007
Natalie Hickerson MD , Hadar Lev-Tov MD, MAS , Sara Danker MD , Judith Simms-Cendan MD
Hidradenitis suppurativa (HS) is a complex disease that manifests with nodules, abscesses, and tunnels in the intertriginous regions of the body. Symptoms often begin after adrenarche and may progress to severe disease with draining tunnels and permanent scars, leading to a significant reduction in quality of life and mental health. Diagnostic delays are common, increasing the risk of disease progression. Timely diagnosis and effective management are essential to the prevention of complications in the pediatric and adolescent population. This review will cover the currently available information on pathophysiology, risk factors, presentation, diagnosis, and management of HS in this population.
化脓性汗腺炎(HS)是一种复杂的疾病,表现为结节,脓肿和隧道在身体的三角间区。症状通常在肾上腺素激增后开始,并可能发展为严重的疾病,并伴有引流隧道和永久性疤痕,导致生活质量和心理健康的显著下降。诊断延误是常见的,增加了疾病进展的风险。及时诊断和有效管理对于预防儿科和青少年人群的并发症至关重要。这篇综述将涵盖目前可获得的关于这一人群中HS的病理生理、危险因素、表现、诊断和管理的信息。
{"title":"Hidradenitis Suppurativa in the Pediatric and Adolescent Population","authors":"Natalie Hickerson MD ,&nbsp;Hadar Lev-Tov MD, MAS ,&nbsp;Sara Danker MD ,&nbsp;Judith Simms-Cendan MD","doi":"10.1016/j.jpag.2025.09.007","DOIUrl":"10.1016/j.jpag.2025.09.007","url":null,"abstract":"<div><div>Hidradenitis suppurativa (HS) is a complex disease that manifests with nodules, abscesses, and tunnels in the intertriginous regions of the body. Symptoms often begin after adrenarche and may progress to severe disease with draining tunnels and permanent scars, leading to a significant reduction in quality of life and mental health. Diagnostic delays are common, increasing the risk of disease progression. Timely diagnosis and effective management are essential to the prevention of complications in the pediatric and adolescent population. This review will cover the currently available information on pathophysiology, risk factors, presentation, diagnosis, and management of HS in this population.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 17-24"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145213155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intraoperative Care and Complications of Symptomatic Adolescent and Young Adult Patients Undergoing Laparoscopy to Diagnose and/or to Treat Endometrioses: A Multi-Institutional Review 有症状的青少年和年轻成人患者接受腹腔镜诊断和/或治疗子宫内膜异位症的术中护理和并发症:多机构回顾
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.07.010
Jacquelyn R. Evans DO , Katherine Bergus MD , Lindsey Asti PhD, MPH , Lesley L. Breech MD , Ruiqi Cen PhD, MPH , Yuan Yuan Gong MD , S. Paige Hertweck MD , Holly R. Hoefgen MD , Anne H. Horne MSN, RN, CPN , Ashli Lawson MD, MS , Seema Menon MD , Kathleen E. O’Brien MD , Shashwati Pradhan MD , Brenna Rachwal MPH , Yolanda R. Smith MD , Priya Suvarna , Sarah Van Son MD , Geri Hewitt MD

Study Objective

This multi-institutional, retrospective study explores the risks of laparoscopy for diagnosis and treatment of endometriosis to facilitate shared medical decision-making in patients age < 22 years old with chronic pain considering surgery.

Methods

A retrospective review of patients less than 22 years old who had surgically proven endometriosis at eight pediatric hospitals was completed. Patient demographics, operative interventions, concurrent procedures, and complications were evaluated.

Results

There were 284 patients with pathologically confirmed endometriosis with a median age of 16.86 years (15.51, 18.06). During the index procedure, diagnostic biopsy alone was performed (35.92%), followed by ablation (29.93%), excision (20.07%), excision and ablation (12.68%), and cryoablation (1.41%). Most common procedures performed concurrently included LNG-IUS placement (58.10%), ovarian cystectomy (11.27%), endoscopy (1.76%), and appendectomy (1.41%). Most patients (86.27%) experienced no postoperative complications within 30 days of the procedure. Significant postoperative pain was seen in 14 patients (4.93%) with 9 patients (3.17%) requiring additional narcotics and 5 patients (1.76%) requiring admission for pain control. One patient experienced a venous thromboembolism (0.35%). Reoperation rate was 12.32% with a median interval of 1.7 years (IQR: 0.93, 4) from initial surgery.

Conclusions

We demonstrate that laparoscopy for diagnosis and/or treatment of endometriosis has low complication and reoperation rates in adolescent and young adult patients. Performing concurrent indicated procedures, particularly LNG-IUS placement, is safe and should be considered to avoid additional anesthesia exposure and cost. Anticipatory guidance regarding postoperative pain may be beneficial in this patient population. This evidence-based data aids in shared medical decision-making.
研究:这项多机构的回顾性研究探讨了腹腔镜诊断和治疗子宫内膜异位症的风险,以促进年龄< 22岁的慢性疼痛患者考虑手术的共同医疗决策。方法:对8家儿科医院22岁以下经手术证实的子宫内膜异位症患者进行回顾性分析。评估患者人口统计学、手术干预、并发手术和并发症。结果病理证实子宫内膜异位症284例,中位年龄16.86岁(15.51岁,18.06岁)。在指数手术中,单纯诊断活检(35.92%),其次是消融(29.93%)、切除(20.07%)、切除+消融(12.68%)和冷冻消融(1.41%)。同时进行的最常见手术包括LNG-IUS放置(58.10%)、卵巢囊肿切除术(11.27%)、内窥镜检查(1.76%)和阑尾切除术(1.41%)。大多数患者(86.27%)在手术30天内无术后并发症。术后有14例(4.93%)患者出现明显疼痛,其中9例(3.17%)患者需要额外麻醉,5例(1.76%)患者需要住院控制疼痛。1例发生静脉血栓栓塞(0.35%)。术后再手术率为12.32%,中位间隔为1.7年(IQR: 0.93, 4)。结论:我们证明腹腔镜诊断和/或治疗子宫内膜异位症在青少年和青壮年患者中具有低并发症和再手术率。同时进行指征手术,特别是LNG-IUS放置,是安全的,应考虑避免额外的麻醉暴露和成本。关于术后疼痛的预期指导可能对这类患者有益。这些基于证据的数据有助于共同的医疗决策。
{"title":"Intraoperative Care and Complications of Symptomatic Adolescent and Young Adult Patients Undergoing Laparoscopy to Diagnose and/or to Treat Endometrioses: A Multi-Institutional Review","authors":"Jacquelyn R. Evans DO ,&nbsp;Katherine Bergus MD ,&nbsp;Lindsey Asti PhD, MPH ,&nbsp;Lesley L. Breech MD ,&nbsp;Ruiqi Cen PhD, MPH ,&nbsp;Yuan Yuan Gong MD ,&nbsp;S. Paige Hertweck MD ,&nbsp;Holly R. Hoefgen MD ,&nbsp;Anne H. Horne MSN, RN, CPN ,&nbsp;Ashli Lawson MD, MS ,&nbsp;Seema Menon MD ,&nbsp;Kathleen E. O’Brien MD ,&nbsp;Shashwati Pradhan MD ,&nbsp;Brenna Rachwal MPH ,&nbsp;Yolanda R. Smith MD ,&nbsp;Priya Suvarna ,&nbsp;Sarah Van Son MD ,&nbsp;Geri Hewitt MD","doi":"10.1016/j.jpag.2025.07.010","DOIUrl":"10.1016/j.jpag.2025.07.010","url":null,"abstract":"<div><h3>Study Objective</h3><div>This multi-institutional, retrospective study explores the risks of laparoscopy for diagnosis and treatment of endometriosis to facilitate shared medical decision-making in patients age &lt; 22 years old with chronic pain considering surgery.</div></div><div><h3>Methods</h3><div>A retrospective review of patients less than 22 years old who had surgically proven endometriosis at eight pediatric hospitals was completed. Patient demographics, operative interventions, concurrent procedures, and complications were evaluated.</div></div><div><h3>Results</h3><div>There were 284 patients with pathologically confirmed endometriosis with a median age of 16.86 years (15.51, 18.06). During the index procedure, diagnostic biopsy alone was performed (35.92%), followed by ablation (29.93%), excision (20.07%), excision and ablation (12.68%), and cryoablation (1.41%). Most common procedures performed concurrently included LNG-IUS placement (58.10%), ovarian cystectomy (11.27%), endoscopy (1.76%), and appendectomy (1.41%). Most patients (86.27%) experienced no postoperative complications within 30 days of the procedure. Significant postoperative pain was seen in 14 patients (4.93%) with 9 patients (3.17%) requiring additional narcotics and 5 patients (1.76%) requiring admission for pain control. One patient experienced a venous thromboembolism (0.35%). Reoperation rate was 12.32% with a median interval of 1.7 years (IQR: 0.93, 4) from initial surgery.</div></div><div><h3>Conclusions</h3><div>We demonstrate that laparoscopy for diagnosis and/or treatment of endometriosis has low complication and reoperation rates in adolescent and young adult patients. Performing concurrent indicated procedures, particularly LNG-IUS placement, is safe and should be considered to avoid additional anesthesia exposure and cost. Anticipatory guidance regarding postoperative pain may be beneficial in this patient population. This evidence-based data aids in shared medical decision-making.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 94-100"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144804351","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From Avoidance to Empowerment: Coping Strategies in Women With Müllerian agenesis (MRKH) After McIndoe Reconstruction: A Descriptive Phenomenological Study 从回避到赋权:麦氏重建后女性<s:1>勒氏发育不全(MRKH)的应对策略——一项描述性现象学研究。
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.10.013
Perihan Güner PhD, RN , Tuğba Ulukaya RN

Study Objective

To explore coping strategies among women with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome following McIndoe vaginal reconstruction, focusing on how they adapt emotionally, cognitively, relationally, and spiritually.

Methods

A descriptive phenomenological study was conducted at a tertiary university hospital in Türkiye. Ten women with MRKH syndrome who underwent McIndoe vaginoplasty were recruited. Data were collected through semi-structured, in-depth interviews and analyzed using Colaizzi’s seven-step framework. Reporting adhered to the COREQ checklist.

Results

Six overarching themes and twelve subthemes were identified:1 managing silence and avoidance,2 reframing and positive reappraisal,3 spiritual coping,4 relational dynamics of support and stigma,5 disclosure dilemmas, and6 pathways to empowerment. Coping strategies were dynamic, shifting from avoidance to eventual empowerment, and were shaped by family dynamics, cultural norms, spirituality, and relational contexts.

Conclusion

Coping following McIndoe reconstruction extends beyond surgical success to encompass psychological adjustment, relational support, and the creation of cultural and spiritual meaning. Holistic interventions-including psychoeducation, culturally sensitive counselling, family- and couple-based approaches, and structured peer networks-may strengthen resilience and promote well-being in this population.
研究目的:探讨McIndoe阴道重建术后MRKH (mayer - rokitansky - k ster- hauser)综合征女性的应对策略,重点关注她们在情感、认知、关系和精神方面的适应情况。方法:采用描述性现象学研究方法在浙江省某三级大学附属医院进行。10名患有MRKH综合征的女性接受了McIndoe阴道成形术。通过半结构化的深度访谈收集数据,并使用Colaizzi的七步框架进行分析。报告遵循COREQ检查表。结果:确定了6个总体主题和12个副主题:(1)管理沉默和回避,(2)重构和积极的重新评价,(3)精神应对,(4)支持和耻辱的关系动力学,(5)披露困境,(6)赋权途径。应对策略是动态的,从回避到最终的授权,并由家庭动态、文化规范、精神和关系背景形成。结论:McIndoe重建术后的应对不仅仅是手术成功,还包括心理调整、关系支持以及文化和精神意义的创造。整体干预措施——包括心理教育、文化敏感咨询、以家庭和夫妻为基础的方法,以及结构化的同伴网络——可能会增强这一人群的适应力,促进他们的福祉。
{"title":"From Avoidance to Empowerment: Coping Strategies in Women With Müllerian agenesis (MRKH) After McIndoe Reconstruction: A Descriptive Phenomenological Study","authors":"Perihan Güner PhD, RN ,&nbsp;Tuğba Ulukaya RN","doi":"10.1016/j.jpag.2025.10.013","DOIUrl":"10.1016/j.jpag.2025.10.013","url":null,"abstract":"<div><h3>Study Objective</h3><div>To explore coping strategies among women with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome following McIndoe vaginal reconstruction, focusing on how they adapt emotionally, cognitively, relationally, and spiritually.</div></div><div><h3>Methods</h3><div>A descriptive phenomenological study was conducted at a tertiary university hospital in Türkiye. Ten women with MRKH syndrome who underwent McIndoe vaginoplasty were recruited. Data were collected through semi-structured, in-depth interviews and analyzed using Colaizzi’s seven-step framework. Reporting adhered to the COREQ checklist.</div></div><div><h3>Results</h3><div>Six overarching themes and twelve subthemes were identified:<span><span><sup>1</sup></span></span> managing silence and avoidance,<span><span><sup>2</sup></span></span> reframing and positive reappraisal,<span><span><sup>3</sup></span></span> spiritual coping,<span><span><sup>4</sup></span></span> relational dynamics of support and stigma,<span><span><sup>5</sup></span></span> disclosure dilemmas, and<span><span><sup>6</sup></span></span> pathways to empowerment. Coping strategies were dynamic, shifting from avoidance to eventual empowerment, and were shaped by family dynamics, cultural norms, spirituality, and relational contexts.</div></div><div><h3>Conclusion</h3><div>Coping following McIndoe reconstruction extends beyond surgical success to encompass psychological adjustment, relational support, and the creation of cultural and spiritual meaning. Holistic interventions-including psychoeducation, culturally sensitive counselling, family- and couple-based approaches, and structured peer networks-may strengthen resilience and promote well-being in this population.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 101-108"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145390737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adolescents, Abortion, and Reproductive Justice: An Unpostponable Debt 青少年、堕胎和生殖正义:一笔不可推迟的债务。
IF 1.8 4区 医学 Q3 OBSTETRICS & GYNECOLOGY Pub Date : 2026-02-01 DOI: 10.1016/j.jpag.2025.09.015
Marisa Labovsky MD, IFEPAG (FIGIJ President)
{"title":"Adolescents, Abortion, and Reproductive Justice: An Unpostponable Debt","authors":"Marisa Labovsky MD, IFEPAG (FIGIJ President)","doi":"10.1016/j.jpag.2025.09.015","DOIUrl":"10.1016/j.jpag.2025.09.015","url":null,"abstract":"","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"39 1","pages":"Pages 25-26"},"PeriodicalIF":1.8,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145213025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of pediatric and adolescent gynecology
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1