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Parental Perceptions of Access to and Utilization of Services for Autistic Children in African American Families: An Exploratory Study.
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-28 DOI: 10.1007/s40615-025-02283-2
Laurenia Mangum, Valire Carr Copeland, Ifeoluwa Orebiyi, Shataya Taylor, Taja Jones, Janice Nathan, Barry R Nathan, Shaun M Eack

Autism spectrum disorder (ASD) occurs within all racial, ethnic, and demographic pediatric groups. However, Black children with ASD are diagnosed at later stages of their development, and as a result may not receive or may age out of early intervention services, and demonstrate poorer long-term outcomes, across a range of factors. African American parent's perceptions regarding access to and utilization of healthcare services for their autistic children vary. Research examining autism spectrum disorder and parental perceptions of service utilization among African American (AA) families is limited. This qualitative study aimed to understand the challenges African American parents face when initiating healthcare services for their autistic children. Eleven AA mothers of autistic children participated in individual semi-structured interviews. Six themes related to pediatric treatment needs, interactions with providers, and parents' roles as experts and advocates were generated. Implications for pediatric treatment needs of autistic children and areas of opportunity for providers working with AA autistic children are discussed.

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引用次数: 0
E-Cigarette Use and Depression Among American Indian Adults Who Smoke.
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-24 DOI: 10.1007/s40615-025-02294-z
Brady A Garrett, Ashley L Comiford, Justin D Dvorak, Kai Ding, Dorothy A Rhoades, Theodore Wagener, Ashley B Cole, Paul G Spicer, Mark P Doescher

Objective: This study examined the association of e-cigarette use status and history of depression among American Indian (AI) adults who smoke.

Method: We conducted a secondary data analysis using survey data from 375 AI adult smokers collected in 2016 at a tribally operated healthcare facility in northeast Oklahoma. Multivariable logistic regression was used to estimate the association between e-cigarette use and self-reported history of depression while adjusting for potential confounders.

Results: In the adjusted analyses, compared to never users, current and former e-cigarette users had higher estimated odds of depression history (adj. OR 2.66; 95% CI 1.25-5.72 and adj. OR 2.38; 95% CI 1.36-4.26, respectively). Additional factors independently associated with a history of depression included having strong cravings to smoke (adj. OR 2.28; 95% CI 1.13-4.88) and having a history of chronic disease (adj. OR 2.09; 95% CI 1.20-3.70) after controlling for confounding variables.

Conclusions: E-cigarette use among AI adult smokers was independently associated with a history of depression. Whether e-cigarette use among people who smoke results from depression or whether depression results from the combined use of e-cigarettes and cigarettes requires future research using a prospective cohort design.

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引用次数: 0
The Influence of Structural Factors and Telemedicine on Missed Appointments Among Medicaid-Insured Patients.
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-23 DOI: 10.1007/s40615-025-02289-w
Chinedum O Ojinnaka, Lara Johnstun, Omolola E Adepoju, Lora Nordstrom, Sandra Yuh

Background: Missed clinic appointments disproportionately affect Medicaid-insured patients and residents of socioeconomically deprived neighborhoods. The role of the recent telemedicine expansion in reducing these disparities is unclear. We analyzed the relationship between census tract (CT) poverty level, residential segregation, missed appointments, and the role of telemedicine.

Methods: This retrospective cohort study used electronic health records (EHR) data merged with population datasets and restricted to adult patients (≥ 18 years) with completed or missed internal or family medicine outpatient clinic visits (03/2020-12/2022). Using generalized estimating equations, we analyzed the association between missed appointments, CT poverty level, CT residential segregation (operationalized using the isolation index), and appointment modality.

Results: Sample size was 125,229 appointments for 68,471 unique patients (Hispanic [46.6%], White [9.4%], Black [18.7%], Asian [2.6%], Native American [1.9%], and "other race/ethnicity" [0.8%]; 18-39 years [38.2%], 40-64 years [56.4%], and > = 65 years [5.36]). There was an increased likelihood of missed appointments with increasing Hispanic isolation index (OR 1.12; 95% CI 1.03, 1.23) and decreased likelihood with increasing Black isolation index (OR 0.71; 95% CI 0.61, 0.83). The protective effect of telemedicine on missed appointments decreased with increasing Black and Hispanic isolation index.

Conclusion: Our results suggest that further studies are needed to understand the potential impact of telemedicine on healthcare use inequities among residents of residentially segregated areas. Targeted interventions that aim to identify and address structural factors that could limit the benefits of telemedicine use are also needed.

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引用次数: 0
Social Networks, Health Support, and Dietary Intake in Mothers Receiving Home Visiting Services. 接受家访服务的母亲的社会网络、健康支持和饮食摄入。
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-22 DOI: 10.1007/s40615-025-02286-z
Sydney Miller, Sarah-Jeanne Salvy, Nenette Caceres, Trevor Pickering, Wandi Bruine de Bruin, Tom W Valente, John P Wilson, Kayla de la Haye

Home visiting programs (HVPs) provide services to pregnant individuals and parents of young children to improve families' health and well-being. However, little is known about these families' social contexts. This study explores the social networks and dietary intake of mothers enrolled in a HVP, focusing on health support and health undermining. Cross-sectional data from 76 mothers enrolled in a HVP in Los Angeles County were collected by interview, using validated measures. Almost all mothers (95.7%) had one or more health supporters, while 55.1% had one or more health underminers. Some key findings related to health support were that mothers with higher income had more health supporters in their network (b = 1.36, p = 0.03), and network members were more likely to be health supporters if they were a romantic partner (OR = 3.41, p < 0.001), a resource-based connection (OR = 3.46, p < 0.01), or if they lived in the same neighborhood as the mother (OR = 1.68, p < 0.05). Further, having a health supporter who lived in the same neighborhood was associated with consuming more (1 + daily servings) vegetables (OR = 3.0, p < 0.05) and no sugar-sweetened beverages (OR = 0.29, p < 0.05). There were fewer findings related to health undermining: network members more likely to be underminers were romantic partners (OR = 8.93, p < .0001), and those perceived as having overweight or obesity (OR = 3.98, p < 0.001), but health undermining did not predict dietary intake. Overall, a broad set of network features were linked with health support, and given that some types of support were linked with better diet, network-based diet interventions leveraging health support may be effective in this priority population.

家访计划(HVPs)为孕妇和幼儿的父母提供服务,以改善家庭的健康和福祉。然而,人们对这些家庭的社会背景知之甚少。本研究探讨了参加HVP的母亲的社会网络和饮食摄入量,重点关注健康支持和健康破坏。通过访谈收集了洛杉矶县76名参加HVP的母亲的横断面数据,采用了有效的测量方法。几乎所有母亲(95.7%)都有一个或多个健康支持者,而55.1%的母亲有一个或多个健康破坏者。与健康支持有关的一些主要发现是,收入较高的母亲在其网络中有更多的健康支持者(b = 1.36, p = 0.03),如果网络成员是浪漫伴侣,则更有可能成为健康支持者(OR = 3.41, p . 391)
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引用次数: 0
Profiling Sociodemographic Risk Factors and Clinical Outcomes of Women with Endometrial Cancer in Puerto Rico: The Central Role of Obesity and Obstetric Features. 波多黎各子宫内膜癌妇女的社会人口危险因素和临床结果分析:肥胖和产科特征的中心作用。
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-20 DOI: 10.1007/s40615-024-02267-8
Kimberly D García-Irizarry, María E Rojas-Brenes, José A Oliveras-Torres, Camila N Ortiz-Ortiz, William D Cress, Edna Gordián, Ricardo Gómez Martínez, Francisco J Quintana-González, Pedro F Escobar-Rodríguez, Teresita Muñoz-Antonia, Idhaliz Flores

Introduction: Incidence of endometrial cancer (EC) in Hispanic/Latina (H/L) women are higher compared to other race/ethnicities in the United States. EC is the third most common cancer and the fourth cause of cancer-related deaths in Puerto Rican women, yet demographic and clinical information is limited. High rates of EC risk factors such as obesity, diabetes mellitus type 2 (DM2) and hypertension (HTN) have been documented in the Puerto Rican population.

Objective: To describe the demographic, clinical history, lifestyle, obstetrical-gynecological, pathologic, and molecular profiles of women with EC predominantly from Southern/Central Puerto Rico.

Methods: We conducted a retrospective secondary analysis of data abstracted from the Puerto Rico Central Cancer Registry (PRCCR), self-administered questionnaires and medical records of EC cases. Descriptive statistics were conducted using SPSS V28 and RStudio.

Results: We identified 105 EC cases aged 28-82. The major risk factors were BMI ≥ 30 (72%), HTN (33%), and DM2 (20%). Endometrioid adenocarcinoma was the main histological tumor type (80%), of which 74% were Type I. Obesity and nulliparity were associated with younger age at diagnosis. Older age at diagnosis (> 65 y/o) was associated with more advanced disease.

Conclusions: This study defined the clinical-demographic profile of women with EC from Puerto Rico and identified risks factors that are associated with younger or older age at diagnosis.

Impact: Profiling the risk factors for EC may help improve diagnostic accuracy and clinical management and result in better outcomes for this under-served, under-researched cancer patient population.

在美国,西班牙裔/拉丁裔(H/L)女性的子宫内膜癌(EC)发病率高于其他种族/民族。EC是波多黎各妇女癌症相关死亡的第三大常见癌症和第四大原因,但人口统计和临床资料有限。在波多黎各人口中,肥胖、2型糖尿病(DM2)和高血压(HTN)等EC危险因素的发生率很高。目的:描述主要来自波多黎各南部/中部的EC妇女的人口统计学、临床病史、生活方式、妇产科、病理和分子特征。方法:我们对波多黎各中央癌症登记处(PRCCR)的数据、自我管理的问卷和EC病例的医疗记录进行了回顾性的二次分析。采用SPSS V28和RStudio进行描述性统计。结果:我们发现了105例EC病例,年龄在28-82岁之间。主要危险因素为BMI≥30(72%)、HTN(33%)和DM2(20%)。子宫内膜样腺癌是主要的组织学肿瘤类型(80%),其中74%为i型。肥胖和不孕与诊断时年龄较小有关。诊断时年龄越大(65岁/岁)与疾病进展越严重相关。结论:本研究确定了波多黎各妇女EC的临床人口学特征,并确定了诊断时年龄较小或较大的风险因素。影响:分析EC的风险因素可能有助于提高诊断准确性和临床管理,并为这一服务不足、研究不足的癌症患者群体带来更好的结果。
{"title":"Profiling Sociodemographic Risk Factors and Clinical Outcomes of Women with Endometrial Cancer in Puerto Rico: The Central Role of Obesity and Obstetric Features.","authors":"Kimberly D García-Irizarry, María E Rojas-Brenes, José A Oliveras-Torres, Camila N Ortiz-Ortiz, William D Cress, Edna Gordián, Ricardo Gómez Martínez, Francisco J Quintana-González, Pedro F Escobar-Rodríguez, Teresita Muñoz-Antonia, Idhaliz Flores","doi":"10.1007/s40615-024-02267-8","DOIUrl":"https://doi.org/10.1007/s40615-024-02267-8","url":null,"abstract":"<p><strong>Introduction: </strong>Incidence of endometrial cancer (EC) in Hispanic/Latina (H/L) women are higher compared to other race/ethnicities in the United States. EC is the third most common cancer and the fourth cause of cancer-related deaths in Puerto Rican women, yet demographic and clinical information is limited. High rates of EC risk factors such as obesity, diabetes mellitus type 2 (DM2) and hypertension (HTN) have been documented in the Puerto Rican population.</p><p><strong>Objective: </strong>To describe the demographic, clinical history, lifestyle, obstetrical-gynecological, pathologic, and molecular profiles of women with EC predominantly from Southern/Central Puerto Rico.</p><p><strong>Methods: </strong>We conducted a retrospective secondary analysis of data abstracted from the Puerto Rico Central Cancer Registry (PRCCR), self-administered questionnaires and medical records of EC cases. Descriptive statistics were conducted using SPSS V28 and RStudio.</p><p><strong>Results: </strong>We identified 105 EC cases aged 28-82. The major risk factors were BMI ≥ 30 (72%), HTN (33%), and DM2 (20%). Endometrioid adenocarcinoma was the main histological tumor type (80%), of which 74% were Type I. Obesity and nulliparity were associated with younger age at diagnosis. Older age at diagnosis (> 65 y/o) was associated with more advanced disease.</p><p><strong>Conclusions: </strong>This study defined the clinical-demographic profile of women with EC from Puerto Rico and identified risks factors that are associated with younger or older age at diagnosis.</p><p><strong>Impact: </strong>Profiling the risk factors for EC may help improve diagnostic accuracy and clinical management and result in better outcomes for this under-served, under-researched cancer patient population.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143007319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Geographic Variation in Racial Disparities in Age-Adjusted Mortality Rates in Mississippi. 密西西比州年龄调整死亡率中种族差异的地理差异。
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-20 DOI: 10.1007/s40615-024-02276-7
Isaac M E Dodd, Yousaf Zafar, Malachi E Scott, Richard F Gillum

Background: Racial disparities in mortality rates have been well-documented in the last century. Intersectionality theory has helped to identify the root causes of these health disparities. Few studies have examined disparities using the latest data for the state of Mississippi.

Methods: Mortality data for the state of Mississippi (MS) were obtained from the vital statistics program of the Centers for Disease Control & Prevention for years 1999-2020. The age-adjusted mortality rate (AAMR) for ages 35-84 years was calculated by county, gender-male (M) vs female (F), and race-black (B) vs white (W), among non-Hispanics (NH) for all causes of death.

Results: In 2020, MS had the highest AAMR per 100,000 among states in the US: 1624.76 (1605.61-1643.91) for age group 35-84. In 1999-2020 combined, AAMR varied among counties for each gender-race group. High AAMR was concentrated in the delta region for NH black males (NHBM) and females (NHBF). This was less so for NH white males (NHWM) and not so for females (NHWF). The Black/White AAMR ratio among males and females was highest (1.42, 1.36) in the small metropolitan areas and lowest (1.18, 1.05) in the large fringe metropolitan areas. In 1999-2020 for NH males, the ratio of AAMR in NHB to NHW varied from 0.9 to 1.8. In NH females, the ratio varied from 0.9 to 2.2. In both genders, the ratio was significantly correlated with the percent of the population that was NH black.

Conclusions: The AAMR in MS varied greatly among counties as did the Black/White ratio of AAMR. Further research is needed to explain this geographic variation in racial disparity.

背景:在上个世纪,死亡率的种族差异已被充分记录。交叉性理论有助于确定这些健康差异的根本原因。很少有研究使用密西西比州的最新数据来检查差异。方法:从美国疾病控制与预防中心1999-2020年的人口动态统计程序中获取密西西比州(MS)的死亡率数据。35-84岁年龄调整死亡率(AAMR)按县计算,性别男性(M) vs女性(F),种族黑人(B) vs白人(W),非西班牙裔(NH)的所有死因。结果:2020年,美国35-84岁年龄组MS的AAMR最高,为1624.76(1605.61-1643.91)/ 10万。在1999年至2020年的总和中,每个性别和种族群体的AAMR在县之间有所不同。NH黑人男性(NHBM)和女性(NHBF)的高AAMR集中在三角洲地区。这在NH白人男性(NHWM)中较少,而在女性(NHWF)中则没有。男性和女性的AAMR比在小都市圈最高(1.42,1.36),在大边缘都市圈最低(1.18,1.05)。1999-2020年,NHB与NHW的AAMR比值在0.9 ~ 1.8之间变化。在NH女性中,这一比例从0.9到2.2不等。在两种性别中,该比率都与NH黑人人口的百分比显著相关。结论:不同县的MS患者AAMR差异较大,AAMR的黑白比也存在较大差异。需要进一步的研究来解释这种种族差异的地理差异。
{"title":"Geographic Variation in Racial Disparities in Age-Adjusted Mortality Rates in Mississippi.","authors":"Isaac M E Dodd, Yousaf Zafar, Malachi E Scott, Richard F Gillum","doi":"10.1007/s40615-024-02276-7","DOIUrl":"https://doi.org/10.1007/s40615-024-02276-7","url":null,"abstract":"<p><strong>Background: </strong>Racial disparities in mortality rates have been well-documented in the last century. Intersectionality theory has helped to identify the root causes of these health disparities. Few studies have examined disparities using the latest data for the state of Mississippi.</p><p><strong>Methods: </strong>Mortality data for the state of Mississippi (MS) were obtained from the vital statistics program of the Centers for Disease Control & Prevention for years 1999-2020. The age-adjusted mortality rate (AAMR) for ages 35-84 years was calculated by county, gender-male (M) vs female (F), and race-black (B) vs white (W), among non-Hispanics (NH) for all causes of death.</p><p><strong>Results: </strong>In 2020, MS had the highest AAMR per 100,000 among states in the US: 1624.76 (1605.61-1643.91) for age group 35-84. In 1999-2020 combined, AAMR varied among counties for each gender-race group. High AAMR was concentrated in the delta region for NH black males (NHBM) and females (NHBF). This was less so for NH white males (NHWM) and not so for females (NHWF). The Black/White AAMR ratio among males and females was highest (1.42, 1.36) in the small metropolitan areas and lowest (1.18, 1.05) in the large fringe metropolitan areas. In 1999-2020 for NH males, the ratio of AAMR in NHB to NHW varied from 0.9 to 1.8. In NH females, the ratio varied from 0.9 to 2.2. In both genders, the ratio was significantly correlated with the percent of the population that was NH black.</p><p><strong>Conclusions: </strong>The AAMR in MS varied greatly among counties as did the Black/White ratio of AAMR. Further research is needed to explain this geographic variation in racial disparity.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143007317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Spatial-Structural Mechanisms of Racialized Disparities in Overdose Mortality: A Spatiotemporal Analysis. 药物过量死亡率种族差异的空间结构机制:一个时空分析。
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-17 DOI: 10.1007/s40615-024-02223-6
Rina Ghose, Amir Masoud Forati, Fahimeh Mohebbi, John R Mantsch

Efforts to understand and respond to the opioid crisis have focused on overdose fatalities. Overdose mortality rates (ratios of overdoses resulting in death) are rarely examined though they are important indicators of harm reduction effectiveness. Factors that vary across urban communities likely determine which community members are receiving the resources needed to reduce fatal overdose risk. Identifying communities with higher risk for overdose mortality and understanding influential factors is critical for guiding responses and saving lives. Using incident reports and mortality data from 2018 to 2021, we defined overdose mortality ratios across Milwaukee at the census tract level. To identify neighborhoods displaying higher mortality than predicted, we used Integrated nested Laplace approximation to define standardized mortality ratios (SMRs) for each tract. Geospatial and spatiotemporal analyses were used to identify emerging hotspots for high mortality risk. Overall, mortality was highest in Hispanic and lowest in White communities. Communities with unfavorable SMRs were predominantly Black or Hispanic, younger, less employed, poorer, less educated, and had higher incarceration rates and worse mental and physical health. Communities identified as hotspots for overdoses were predominantly non-White, poorer, and less employed and educated with worse mental and physical health, higher incarceration rates, and less housing stability. The findings demonstrate that overdose mortality rates vary across urban communities and are influenced by racial disparities. A framework that enables identification of challenged communities and guides community responses is needed.

了解和应对阿片类药物危机的努力集中在过量死亡上。虽然过量服用死亡率(过量服用导致死亡的比率)是减少危害效果的重要指标,但很少加以审查。城市社区的不同因素可能决定了哪些社区成员正在接受减少致命过量风险所需的资源。确定药物过量致死风险较高的社区和了解影响因素对于指导对策和拯救生命至关重要。使用2018年至2021年的事件报告和死亡率数据,我们在人口普查区层面定义了密尔沃基的过量死亡率。为了确定死亡率高于预测的社区,我们使用集成嵌套拉普拉斯近似来定义每个小区的标准化死亡率(SMRs)。使用地理空间和时空分析来确定新兴的高死亡率风险热点。总体而言,西班牙裔社区的死亡率最高,白人社区的死亡率最低。smr不利的社区主要是黑人或西班牙裔,年轻,就业少,贫穷,受教育程度低,监禁率高,精神和身体健康状况较差。被确定为过量用药热点的社区主要是非白人,较贫穷,就业和受教育程度较低,精神和身体健康状况较差,监禁率较高,住房稳定性较差。研究结果表明,城市社区的药物过量死亡率各不相同,并受到种族差异的影响。需要建立一个框架,以确定受到挑战的社区并指导社区作出反应。
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引用次数: 0
Speaking Out: Factors Influencing Black Americans' Engagement in COVID-19 Testing and Research. 大声疾呼:影响美国黑人参与COVID-19检测和研究的因素。
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-16 DOI: 10.1007/s40615-024-02268-7
Veronica Newton, Oluyemi Farinu, Herschel Smith, Monisha Issano Jackson, Samantha D Martin

Black communities in the United States (U.S.) have faced stark inequalities in COVID-19 outcomes. The underrepresentation of Black participants in COVID-19 testing research is detrimental to the understanding of the burden of the disease as well as the impact of risk factors for disease acquisition among Black Americans. Prior scholarship notes that the reluctance to engage in medical research among Black people is, in part, due to the exploitation and abuse this community has seen from the medical field and other social institutions. To better understand the barriers and motivations for COVID-19 testing among Black Americans, this study utilized intersectionality as methodological and theoretical frameworks to examine and investigate the barriers and motivations influencing participation in COVID-19 serosurveys (blood test and interview) among the metro-Atlanta Black communities. From May to October 2021, we took a community-based participatory research approach and conducted 52 semi-structured interviews to uncover different Black communities' feelings and opinions towards COVID-19 testing. Key reasons participants agreed to the blood test include (1) curiosity; (2) health upkeep; (3) family/community/social responsibility; and (4) importance of research. Participants' reasons for rejecting the blood test were (1) unnecessary/no benefit; (2) fear (of the known and unknown); (3) fear of needles and/or blood; and (4) discomfort with test setting/procedure. Our findings show that perspectives on willingness to engagement in testing or to not participate varied across gender and age for Black individuals.

美国黑人社区在COVID-19结果方面面临着严重的不平等。在COVID-19检测研究中,黑人参与者的代表性不足,不利于了解这种疾病的负担,也不利于了解黑人美国人患病风险因素的影响。先前的学术研究指出,黑人不愿意从事医学研究,部分原因是由于该社区从医疗领域和其他社会机构那里看到了剥削和虐待。为了更好地了解美国黑人进行COVID-19检测的障碍和动机,本研究利用交叉性作为方法和理论框架,检查和调查影响亚特兰大大都市黑人社区参与COVID-19血清调查(血液检测和访谈)的障碍和动机。2021年5月至10月,我们采用基于社区的参与式研究方法,进行了52次半结构化访谈,揭示了不同黑人社区对COVID-19检测的感受和意见。参与者同意验血的主要原因包括:(1)好奇心;(二)保健;(3)家庭/社区/社会责任;研究的重要性。受试者拒绝验血的理由为:(1)不必要/无益处;(2)对已知和未知的恐惧;(3)害怕针头和/或血液;(4)不适应试验设置/程序。我们的研究结果表明,对于黑人个体来说,参与测试或不参与测试的意愿因性别和年龄而异。
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引用次数: 0
Structural, Institutional, and Interpersonal Racism: Calling for Equity in Autism Research and Practice. 结构、制度和人际种族主义:呼吁自闭症研究和实践中的公平。
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-16 DOI: 10.1007/s40615-024-02280-x
Jennifer S Singh, Susan Brasher, Jennifer Sarrett, Brian Barger, Karen Guerra, Laura J Dilly, I Leslie Rubin, Jennifer L Stapel-Wax, Teal Benevides, Samuel Fernandez-Carriba

Disparities in autism research and practices based on race and ethnicity are evident across many outcomes and life course stages. However, most of the research has focused on outlining differences and not the underlying systemic inequities driving these disparities. In this conceptual paper, we aim to shift the focus by outlining mechanisms of structural racism within the institutions of science, healthcare, and residential segregation and educational systems in the United States (U.S.). We argue that these and other forms of institutional racism constitute structural racism that are influencing the racial and ethnic disparities we see in autism services and care. For each of these institutions, we identify institutional racism related to autism and offer an example of how it shapes interpersonal racism and adverse outcomes, including misdiagnosis, delayed diagnosis, unequal access to educational services, and differential treatment in clinical encounters. We then provide anti-racism approaches in autism research and practice for each of these institutions that addresses institutional and interpersonal racism shaping autism inequities among racial and ethnic minorities. We conclude with a call to action to clinicians, researchers, and others to prioritize and disrupt the impacts of structural, institutional, and interpersonal racism through targeted anti-racism approaches.

基于种族和民族的自闭症研究和实践的差异在许多结果和生命历程阶段都很明显。然而,大多数研究都集中在概述差异上,而不是导致这些差异的潜在系统性不平等。在这篇概念性论文中,我们的目标是通过概述美国科学、医疗、居住隔离和教育系统中结构性种族主义的机制来转移焦点。我们认为,这些和其他形式的制度性种族主义构成了结构性种族主义,影响了我们在自闭症服务和护理中看到的种族和民族差异。对于这些机构,我们确定了与自闭症相关的机构种族主义,并提供了一个例子,说明它如何塑造人际种族主义和不良后果,包括误诊、延误诊断、获得教育服务的不平等机会,以及临床遭遇中的差别待遇。然后,我们为这些机构提供自闭症研究和实践中的反种族主义方法,以解决造成种族和少数民族之间自闭症不平等的制度和人际种族主义。最后,我们呼吁临床医生、研究人员和其他人采取行动,通过有针对性的反种族主义方法,优先考虑并破坏结构性、制度性和人际性种族主义的影响。
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引用次数: 0
The Invisibility of the Multiply Stigmatized Patient: Intersections of Ethnic Prejudice and Stigma of Chronic Disease in Medical Students. 多重污名患者的隐形:医学生慢性疾病的种族偏见与污名的交集。
IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-16 DOI: 10.1007/s40615-024-02272-x
Edita Fino, Paolo Maria Russo

Ethnic prejudice in healthcare has been widely examined, yet little is known about its intersection with stigma and prejudice based on one's health status. The present study investigates the intersections of ethnic prejudice and stigma of chronic disease in a healthcare setting as shaping unique forms of disadvantage. From an intersectional perspective, we examined whether ethnically diverse patients affected by stigmatized health conditions would be differentially perceived and cared for by prospective medical doctors. In a within-subjects, experimental design, preclinical medical students read, and evaluated clinical vignettes describing patients, who were presented as either White Italian or Middle Eastern migrants and were affected by visible and concealable stigmatized chronic conditions. Emotional reactions, attributions about disease-onset, caretaking attitudes, and meta-beliefs about patient disclosure behavior were assessed. Results showed that when reading of patients affected by visible compared to concealable stigmatized conditions medical students experienced stigma-related emotions (e.g., disgust, pity, fear) and attributed patients a higher tendency to be embarrassed, to hide, and to avoid disclosure for fear of others' negative reactions. However, Middle Eastern migrants when affected by conditions with visible and behavioral manifestations were attributed a lesser tendency to feel embarrassed, to hide, and to avoid illness disclosure for fear of others' negative reactions compared to White Italian patients with the same conditions. These findings indicate that at the intersection of ethnic prejudice and health-related stigma, multiply stigmatized patients may become invisible and not fully considered in the eyes of medical students. Present results underscore the need to enhance diversity representation in higher medical education for a more inclusive healthcare curriculum and practice.

医疗保健中的种族偏见已经被广泛研究,但很少有人知道它与基于一个人的健康状况的耻辱和偏见的交集。本研究调查了种族偏见和耻辱的交叉点慢性疾病在医疗保健设置塑造独特形式的劣势。从交叉的角度来看,我们研究了受污名化健康状况影响的种族不同的患者是否会被未来的医生不同地感知和照顾。在受试者内实验设计中,临床前医学院学生阅读并评估了描述患者的临床小短文,这些患者被描述为意大利白人或中东移民,受到可见和可隐藏的耻辱性慢性病的影响。评估情绪反应、疾病发病归因、护理态度和关于患者披露行为的元信念。结果显示,与隐蔽性污名化条件相比,当阅读受可见污名化条件影响的患者时,医学生体验到与污名化相关的情绪(如厌恶、怜悯、恐惧),并认为患者更倾向于尴尬、隐藏和避免披露,因为害怕他人的负面反应。然而,与患有同样疾病的意大利白人患者相比,中东移民在受到有可见和行为表现的疾病的影响时,由于害怕他人的负面反应而感到尴尬、隐藏和避免透露病情的倾向较小。这些发现表明,在种族偏见和健康相关污名的交叉点上,多重污名患者可能在医学生的眼中变得不可见,没有得到充分的考虑。目前的研究结果强调了在高等医学教育中加强多样性代表的必要性,以实现更具包容性的医疗保健课程和实践。
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引用次数: 0
期刊
Journal of Racial and Ethnic Health Disparities
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