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Pain-Related Injustice Appraisals, Sickle Cell Stigma, and Racialized Discrimination in the Youth with Sickle Cell Disease: A Preliminary Investigation. 疼痛相关的不公正评价,镰状细胞病的耻辱和种族歧视的青年镰状细胞病:初步调查。
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-12-09 DOI: 10.1007/s40615-024-02247-y
Megan M Miller, Ama Kissi, Deanna D Rumble, Adam T Hirsh, Tine Vervoort, Lori E Crosby, Avi Madan-Swain, Jeffrey Lebensburger, Anna M Hood, Zina Trost

Despite the fact that perceptions of racialized discrimination, health-related stigma, and pain-related injustice have been associated with worse patient functioning, little is known about their unique relationships in Black youth living with sickle cell disease (SCD). In this study, we (1) examined the prevalence of perceptions of racialized discrimination, perceptions of health-related stigma, and pain-related injustice appraisals and (2) investigated how the aforementioned variables were uniquely related to functioning (i.e., functional disability, depressive, and anxiety symptoms) in Black youth living with SCD. The study sample included 30 non-Hispanic Black or African American youth living with SCD (17 male, 13 female youths). The average age of the sample was approximately 11.3 years (SD = 2.73). Zero-order correlations and hierarchical regressions were used to examine and compare the multivariate relationships between perceived racialized discrimination, perceived health-related stigma, and perceived pain-related injustice and outcome variables (functional disability, anxiety symptoms, and depressive symptoms). For functional disability, perceived racialized discrimination and perceived pain-related injustice were significant predictors in the final model (F(3,26) = 11.00, p < .01). For depressive symptoms, health-related stigma trended toward significance (p = .09) as a predictor in the final model (F(2,26) = 6.69, p < .01). For anxiety symptoms, perceived pain-related injustice was the only significant predictor in the final model (F(3,26) = 10.25, p < .001). Results suggest that the youth living with SCD experience and perceive racialized discrimination, health-related stigma, and injustice surrounding their pain experience and these factors are associated with worse outcomes.

尽管种族化歧视感、与健康相关的耻辱感和与疼痛相关的不公正感与患者功能的恶化有关,但对于患有镰状细胞病(SCD)的黑人青年而言,人们对它们之间的独特关系知之甚少。在这项研究中,我们(1)检查了种族化歧视感知、健康相关耻辱感和疼痛相关不公正评价的普遍程度;(2)调查了上述变量与患有镰状细胞病的黑人青年的功能(即功能障碍、抑郁和焦虑症状)之间的独特关系。研究样本包括 30 名患有 SCD 的非西班牙裔黑人或非裔美国青年(17 名男性,13 名女性)。样本的平均年龄约为 11.3 岁(SD = 2.73)。我们使用零阶相关和分层回归来研究和比较感知到的种族化歧视、感知到的与健康相关的污名化和感知到的与疼痛相关的不公正与结果变量(功能性残疾、焦虑症状和抑郁症状)之间的多变量关系。就功能性残疾而言,在最终模型中,感知到的种族歧视和感知到的与疼痛相关的不公正是显著的预测因素(F(3,26) = 11.00, p
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引用次数: 0
Health Inequalities Between Afro-descendants and Non-Afro-descendants in Peru: Evidence from the Demographic and Family Health Survey. 秘鲁非洲裔和非非洲裔之间的健康不平等:来自人口和家庭健康调查的证据。
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2025-01-03 DOI: 10.1007/s40615-024-02265-w
Akram Hernández-Vásquez, Rodrigo Vargas-Fernández

Background: The Afro-Peruvian population is one of the ethnic minorities most affected by cultural, socioeconomic, and health barriers; however, there is little evidence on health inequalities in this ethnic group. Therefore, We aimed to determine health inequalities among the Peruvian Afro-descendant population in comparison with non-Afro-descendants.

Methods: A cross-sectional study was conducted using data from the Demographic and Family Health Survey 2022. Twenty indicators related to the health, nutrition, and well-being of the Peruvian Afro-descendant population were included. Individuals identifying as native, as well as those who did not know or did not respond to the ethnicity question, were excluded from the analysis. To assess inequalities in these indicators, the difference in percentages between Afro-descendants and non-Afro-descendants was calculated, and the percentages of these indicators across the tertiles of wealth index and the slope index of inequality (SII) were analysed for each ethnic group.

Results: Of a total of 16,875 adults and 23,206 women included in the study, 16.9% and 17.3% were of African descent, respectively. Afro-descendant population had a lower proportion of self-reported diabetes (- 1.5 percetange points (pp); 95% confidence interval (CI), - 2.7 to - 0.3); alcohol consumption in the last 30 days (- 4.5 pp; 95% CI, - 7.2 to - 1.8); higher education (- 20.6 pp, 95% CI, - 23.2 to - 18.0); access to improved water (- 3.4 pp; 95% CI, - 4.6 to - 2.1) and sanitation (- 12.1 pp; 95% CI, - 14.2 to - 10.0); cesarean section (- 9.5 pp; 95% CI, - 12.6 to - 6.4); institutional delivery (- 6.3 pp; 95% CI, - 8.4 to - 4.1); early initiation of prenatal care (- 3.3 pp; 95% CI, - 5.8 to - 0.9); birth registration (- 1.8 pp; 95% CI, - 3.4 to - 0.2) and higher proportion of stunting (+ 4.8 pp; 95% CI, 3.0 to 6.6) and adolescent maternity (+ 5.0 pp; 95% CI, 1.4 to 8.6) compared to their non-Afro-descendant counterparts. In addition, a similar wealth gap between Afro-descendant and non-Afro-descendant populations was observed in various indicators.

Conclusions: In Peru, some indicators reflect the worse living conditions faced by the Afro-descendant population compared to their non-Afro-descendant counterparts in terms of health, nutrition, and well-being.

背景:非裔秘鲁人是受文化、社会经济和健康障碍影响最大的少数民族之一;然而,几乎没有证据表明这一族群的健康不平等。因此,我们的目的是确定秘鲁非洲裔人口与非非洲裔人口之间的健康不平等。方法:采用2022年人口与家庭健康调查数据进行横断面研究。其中包括与秘鲁非洲裔人口的健康、营养和福祉有关的20项指标。被认定为本地人的个人,以及那些不知道或没有回答种族问题的人,都被排除在分析之外。为了评估这些指标的不平等,计算了非洲裔和非非洲裔之间的百分比差异,并分析了这些指标在每个种族群体的财富指数和不平等斜率指数(SII)中所占的百分比。结果:在研究中包括的16,875名成年人和23,206名女性中,非洲裔分别为16.9%和17.3%。非洲裔人群自我报告糖尿病的比例较低(- 1.5个百分点);95%置信区间(CI), - 2.7 ~ - 0.3);过去30天内的饮酒量(- 4.5 pp;95% CI, - 7.2至- 1.8);高等教育(- 20.6页,95% CI, 23.2 - 18.0);获得改善的水(- 3.4 pp;95%可信区间,4.6 - 2.1)和卫生设施(- 12.1页;95% CI, - 14.2至- 10.0);剖宫产(- 9.5 pp;95% CI, - 12.6至- 6.4);机构交付(- 6.3 pp;95% CI, - 8.4 ~ - 4.1);早期开始产前护理(- 3.3 pp;95% CI, - 5.8至- 0.9);出生登记(- 1.8页;95% CI, - 3.4至- 0.2)和更高的发育迟缓比例(+ 4.8 pp;95% CI, 3.0 - 6.6)和少女生育(+ 5.0 pp;95% CI, 1.4 - 8.6),与非非洲人后裔相比。此外,在各种指标中也观察到非洲人后裔和非非洲人后裔之间存在类似的财富差距。结论:在秘鲁,一些指标反映出非洲裔人口在健康、营养和福祉方面面临的生活条件比非非洲裔人口更差。
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引用次数: 0
Physicians' Stigma Towards Ethnicity of Patients with Cancer and Its Effects on the Health Outcomes: The Moderating Effect of Ethnic Dissimilar Medical Encounters. 医生对癌症患者种族的污名及其对健康结果的影响:种族不同医疗遭遇的调节作用
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-12-02 DOI: 10.1007/s40615-024-02239-y
Anat Katalan, Anat Drach-Zahavy, Efrat Dagan

Background: This study aimed to examine the moderating effect of ethnic patient-physician similarity versus dissimilarity on the relationship between physicians' stigma towards ethnicity and physicians' communication behaviors during medical encounters and patients' post-meeting anxiety.

Methods: A prospective nested study design with 146 encounters, including 146 patients with cancer and 32 oncology/surgery physicians, was conducted between November 2019 and July 2022 in two medical centers. Before the medical encounters, physicians were asked to complete sociodemographic, professional and the Perceived Ethnic Discrimination Questionnaires (PEDQ-CV). Patients completed sociodemographic, clinical characteristics and State-Trait Anxiety Inventory (STAI) questionnaires before and following the encounters. During the medical encounters, structured "real-time" observations of the physicians' behaviors were assessed using the Four Habits Coding Scheme (4HCS).

Results: The mixed linear analysis model revealed that the two-way interaction effects between physicians' stigma toward ethnicity and the ethnic similarity between the physician and patient on physician communication behaviors (b = - .822, p < .05) and patients' post-meeting anxiety (b = .580, p < .05) were significant. In ethnic dissimilar medical encounters, physician stigma towards ethnicity was associated with poor communication behaviors and higher post meeting patients' anxiety. However, in ethnic similar medical encounters, physician ethnic stigma was associated with improve communication behaviors and stable levels of anxiety.

Conclusions: Our study highlights the significant role of similar versus dissimilar ethnic medical encounters on the effect of ethnic stigma on health outcomes. These findings call for implementing a climate of diversity management to limit the additive effect of stigma towards ethnicity and to provide fair and equal care.

背景:本研究旨在探讨民族医患相似度与不同度对医生种族污名、医生就诊沟通行为和患者会诊后焦虑之间关系的调节作用。方法:在2019年11月至2022年7月期间,在两个医疗中心进行了一项前瞻性嵌套研究设计,其中包括146名癌症患者和32名肿瘤/外科医生。在就诊前,要求医生填写社会人口学、专业和种族歧视感知问卷(PEDQ-CV)。患者在接触前后完成社会人口学、临床特征和状态-特质焦虑量表(STAI)问卷调查。在就诊期间,使用四种习惯编码方案(4HCS)对医生行为进行结构化的“实时”观察。结果:混合线性分析模型显示,医师族群污名与医患族群相似度对医师沟通行为的双向交互作用(b = -)。822, p结论:我们的研究强调了种族歧视对健康结果影响的重要作用。这些发现要求实施多样性管理氛围,以限制对种族的耻辱的附加影响,并提供公平和平等的护理。
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引用次数: 0
"Our Voices Will Get Louder": A Qualitative Exploration of Factors Influencing Arab/Middle Eastern North African (MENA) American Patient Participation in US-Based Health Care and Health Research. “我们的声音将变得更大”:影响阿拉伯/中东北非(MENA)美国患者参与美国医疗保健和健康研究的因素的定性探索。
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-12-09 DOI: 10.1007/s40615-024-02255-y
Siwaar Abouhala, Aber Abdulle, Ghada Aziz, Asma Hussein, Noor Zanial, Itedal Shalabi, Matthew Jaber Stiffler, Roula Hawa, Madiha Tariq, Ghadeer Ady, Germine H Awad, Nadia N Abuelezam

Background: Heightened anti-Arab/Middle Eastern and North African (MENA) xenophobia in the United States (US) coupled with the addition of a MENA category on the next US Census call into attention the health needs of this minoritized population. Targeted research is needed to better understand the factors that influence Arab/MENA American participation in US-based health research and health care.

Methods: A novel qualitative interview guide was constructed to better understand the health research experiences, health care experiences and needs of Arab/MENA patients nationally. Patients were recruited through the Arab American Health Network Alliance (AAHNA) community connections. Semi-structured interviews were conducted virtually in English and Arabic, and qualitative data was interpreted through iterative thematic analysis using inductive reasoning.

Results: A total of seventeen interviews (n = 17) were completed (14 in English, 3 in Arabic). Notably, the majority identified as female (82%) and have resided in the US for 18 years or longer (53%). Three main themes were identified (1) Individual-level Comfortability and Access to Research Participation, (2) Advancing Community Health Outcomes and Participation, and (3) Structural Barriers as Drivers of Health Disparities.

Conclusion: The health research and health care experiences explored in this project have the potential of informing future inquiries on Arab/MENA American health. For instance, we suggest building community trust, providing equitable compensation and support, increasing health workforce diversity, and advocating for affordable health care, all to improve Arab/MENA patient participation in health research.

背景:在美国,反阿拉伯/中东和北非(MENA)仇外情绪加剧,加上在下一次美国人口普查中增加了中东和北非(MENA)类别,引起人们对这一少数群体人口的卫生需求的关注。需要进行有针对性的研究,以便更好地了解影响阿拉伯/中东和北非地区美国人参与美国卫生研究和卫生保健的因素。方法:为更好地了解全国阿拉伯/中东和北非地区患者的卫生研究经历、卫生保健经历和需求,构建了一种新的定性访谈指南。患者通过阿拉伯裔美国人健康网络联盟(AAHNA)社区联系招募。半结构化访谈以英语和阿拉伯语进行,定性数据通过使用归纳推理的迭代主题分析进行解释。结果:共完成17次访谈(n = 17),其中英语访谈14次,阿拉伯语访谈3次。值得注意的是,大多数是女性(82%),在美国居住了18年或更长时间(53%)。确定了三个主要主题:(1)个人水平的舒适度和参与研究的机会;(2)促进社区健康结果和参与;(3)结构性障碍作为健康差异的驱动因素。结论:本项目探讨的卫生研究和卫生保健经验有可能为今后关于阿拉伯/中东和北非地区美国卫生的调查提供信息。例如,我们建议建立社区信任,提供公平的补偿和支持,增加卫生人力多样性,倡导负担得起的卫生保健,所有这些都可以改善阿拉伯/中东和北非患者对卫生研究的参与。
{"title":"\"Our Voices Will Get Louder\": A Qualitative Exploration of Factors Influencing Arab/Middle Eastern North African (MENA) American Patient Participation in US-Based Health Care and Health Research.","authors":"Siwaar Abouhala, Aber Abdulle, Ghada Aziz, Asma Hussein, Noor Zanial, Itedal Shalabi, Matthew Jaber Stiffler, Roula Hawa, Madiha Tariq, Ghadeer Ady, Germine H Awad, Nadia N Abuelezam","doi":"10.1007/s40615-024-02255-y","DOIUrl":"10.1007/s40615-024-02255-y","url":null,"abstract":"<p><strong>Background: </strong>Heightened anti-Arab/Middle Eastern and North African (MENA) xenophobia in the United States (US) coupled with the addition of a MENA category on the next US Census call into attention the health needs of this minoritized population. Targeted research is needed to better understand the factors that influence Arab/MENA American participation in US-based health research and health care.</p><p><strong>Methods: </strong>A novel qualitative interview guide was constructed to better understand the health research experiences, health care experiences and needs of Arab/MENA patients nationally. Patients were recruited through the Arab American Health Network Alliance (AAHNA) community connections. Semi-structured interviews were conducted virtually in English and Arabic, and qualitative data was interpreted through iterative thematic analysis using inductive reasoning.</p><p><strong>Results: </strong>A total of seventeen interviews (n = 17) were completed (14 in English, 3 in Arabic). Notably, the majority identified as female (82%) and have resided in the US for 18 years or longer (53%). Three main themes were identified (1) Individual-level Comfortability and Access to Research Participation, (2) Advancing Community Health Outcomes and Participation, and (3) Structural Barriers as Drivers of Health Disparities.</p><p><strong>Conclusion: </strong>The health research and health care experiences explored in this project have the potential of informing future inquiries on Arab/MENA American health. For instance, we suggest building community trust, providing equitable compensation and support, increasing health workforce diversity, and advocating for affordable health care, all to improve Arab/MENA patient participation in health research.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":"418-431"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142801448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessment of Depression Among Students Studying in Higher Educational Institutions Using PHQ 9 in Tamil Nadu-A Cross-sectional Study. 泰米尔纳德邦使用 PHQ 9 评估高等院校学生抑郁状况--一项横断面研究。
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-10-21 DOI: 10.1007/s40615-024-02221-8
Bala Ganesh Pichamuthu, Kalpana Kosalram, Sathya Thennavan, Sharmila Govardhanan

Background: Depression is one of the significant public health concerns, accounting for about 800,000 suicides every year and affecting an estimated 300 million globally. Among the mental health issues students face, depression has become increasingly prevalent and detrimental to multiple factors that can either impact academic performance or overall health and well-being. This study aims to estimate the prevalence and identify factors associated with depression among students in higher education in Tamil Nadu.

Methods: The cross-sectional survey with a sample size of 4059 and logistic regression was performed.

Results: The results showed 51.2% of the students had depression. The risk for depression was greater in students between 23 and 24 years of age, with an odds ratio of 2.14 at p = 0.01 and a 95% confidence interval of 1.19-3.83. It was even more probable for pupils aged 25 and older, with an OR of 2.53 and p = 0.00, within the 95% CI: 1.66-3.86. Married students were less likely to suffer from depression compared to their non-married counterparts, with an OR of 0.22 and p = 0.014, within the 95% CI: 0.06-0.74. Those students who paid a high fee had a higher chance of suffering from depression, with an OR of 1.55 and p = 0.00, with a 95% CI: 1.20-2.00.

Conclusion: Age, marital status, and socioeconomic status showed significant associations with depression. These findings highlight the critical need for mental health support programs in higher education.

背景:抑郁症是重大的公共健康问题之一,每年约有 80 万人自杀,全球约有 3 亿人受到抑郁症的影响。在学生面临的心理健康问题中,抑郁症已变得越来越普遍,并对影响学习成绩或整体健康和幸福的多种因素造成损害。本研究旨在估算泰米尔纳德邦高校学生中抑郁症的患病率,并找出与之相关的因素:方法:对 4059 个样本进行横断面调查,并进行逻辑回归:结果显示,51.2%的学生患有抑郁症。23-24 岁的学生患抑郁症的风险更大,几率比为 2.14(p = 0.01),95% 的置信区间为 1.19-3.83。25 岁及以上的学生患抑郁症的可能性更大,OR 为 2.53,P = 0.00,95% 置信区间为 1.66-3.86。与未婚学生相比,已婚学生患抑郁症的可能性较小,OR 值为 0.22,P = 0.014,95% CI 为 0.06-0.74。支付高额学费的学生患抑郁症的几率更高,OR 为 1.55,P = 0.00,95% CI 为 1.20-2.00:年龄、婚姻状况和社会经济地位与抑郁症有显著关联。这些发现凸显了在高等教育中开展心理健康支持项目的迫切需要。
{"title":"Assessment of Depression Among Students Studying in Higher Educational Institutions Using PHQ 9 in Tamil Nadu-A Cross-sectional Study.","authors":"Bala Ganesh Pichamuthu, Kalpana Kosalram, Sathya Thennavan, Sharmila Govardhanan","doi":"10.1007/s40615-024-02221-8","DOIUrl":"10.1007/s40615-024-02221-8","url":null,"abstract":"<p><strong>Background: </strong>Depression is one of the significant public health concerns, accounting for about 800,000 suicides every year and affecting an estimated 300 million globally. Among the mental health issues students face, depression has become increasingly prevalent and detrimental to multiple factors that can either impact academic performance or overall health and well-being. This study aims to estimate the prevalence and identify factors associated with depression among students in higher education in Tamil Nadu.</p><p><strong>Methods: </strong>The cross-sectional survey with a sample size of 4059 and logistic regression was performed.</p><p><strong>Results: </strong>The results showed 51.2% of the students had depression. The risk for depression was greater in students between 23 and 24 years of age, with an odds ratio of 2.14 at p = 0.01 and a 95% confidence interval of 1.19-3.83. It was even more probable for pupils aged 25 and older, with an OR of 2.53 and p = 0.00, within the 95% CI: 1.66-3.86. Married students were less likely to suffer from depression compared to their non-married counterparts, with an OR of 0.22 and p = 0.014, within the 95% CI: 0.06-0.74. Those students who paid a high fee had a higher chance of suffering from depression, with an OR of 1.55 and p = 0.00, with a 95% CI: 1.20-2.00.</p><p><strong>Conclusion: </strong>Age, marital status, and socioeconomic status showed significant associations with depression. These findings highlight the critical need for mental health support programs in higher education.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":"33-39"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142468391","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Inequities in Indigenous Youth with Rheumatic Fever in the USA: A Single-Center Study. 美国本土青年风湿热患者的不平等:一项单中心研究
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2025-02-20 DOI: 10.1007/s40615-024-02271-y
Simona Martin, Elizabeth Stein, Bhawna Arya, William Tressel, Jason F Deen

Objective: Rheumatic heart disease (RHD) is the most common acquired heart disease in children in the USA and worldwide. This study compares the diagnosis and outcomes of Indigenous and non-Indigenous youth with acute rheumatic fever (ARF) and RHD at a US children's hospital serving a several state catchment area with a large Indigenous population (>270 tribes representing 9.2% of the total US Indigenous population).

Methods: This study involved a retrospective analysis of patients presenting to a major children's hospital between 2008 and 2018. Individuals aged 4-17 with a diagnosis of ARF or RHD were identified using International Classification of Diseases, Ninth and Tenth Revision (ICD-9, 10) codes. Patients with congenital heart disease were excluded.

Results: Chart review was performed on 132 individuals with ARF/RHD. 61% of individuals with non-missing race identified as Indigenous (defined as American Indian, Alaska Native, Native Hawaiian, or Pacific Islander). Average age at diagnosis was found to be 10.3 years for Indigenous youth, compared to 9.1 years for non-Indigenous youth. Indigenous youth were more likely to have cardiac involvement at the time of diagnosis. Indigenous youth had higher rates of aortic regurgitation on initial echocardiography, but no other significant differences were found in incidence of echocardiographic findings.

Conclusion: Indigenous youth were diagnosed with rheumatic fever at a later age than non-Indigenous youth, and more likely to have cardiac involvement at time of diagnosis, indicating disparities between the two populations. This suggests a need for further study and development of screening tools.

目的:风湿性心脏病(RHD)是美国和世界范围内儿童最常见的获得性心脏病。本研究比较了美国儿童医院中土著和非土著青年急性风湿热(ARF)和RHD的诊断和结果,该医院服务于几个州的集水区,该地区有大量土著人口(约270个部落,占美国土著人口总数的9.2%)。方法:本研究对2008年至2018年在一家大型儿童医院就诊的患者进行回顾性分析。使用《国际疾病分类》第九版和第十版(icd - 9,10)代码对诊断为ARF或RHD的4-17岁个体进行鉴定。排除先天性心脏病患者。结果:对132例ARF/RHD患者进行了图表回顾。61%的非失踪人种被认定为土著(定义为美洲印第安人、阿拉斯加土著、夏威夷土著或太平洋岛民)。土著青年的平均诊断年龄为10.3岁,而非土著青年为9.1岁。土著青年在诊断时更有可能有心脏受累。原住民青年在初始超声心动图上有较高的主动脉反流率,但在超声心动图上没有发现其他显著差异。结论:土著青年被诊断为风湿热的年龄比非土著青年晚,并且在诊断时更有可能累及心脏,这表明两种人群之间存在差异。这表明需要进一步研究和开发筛选工具。
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引用次数: 0
Exploring Spiritual Concerns, Needs, and Resources in Outpatient Healthcare Facilities Serving Under-Resourced Black Patients: A Qualitative Study. 探索精神问题,需求和资源门诊医疗机构服务资源不足的黑人患者:一项定性研究。
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-12-11 DOI: 10.1007/s40615-024-02258-9
Shena Gazaway, Kwaku Duah Oppong, Emily S Burke, Tamara Nix-Parker, Alexia M Torke, Shelley Varner Perez, George Fitchett, Raegan W Durant, Rachel Wells, Marie Bakitas, Deborah Ejem

Background: Acknowledging patients' spiritual concerns can enhance well-being and is essential to patient-centered chronic illness care. However, unmet spiritual care needs remain a major area of suffering, particularly among under-resourced populations. Limited research exists on how spiritual concerns are acknowledged and integrated into the care of chronically ill older Black patients in these settings.

Purpose: This study aimed to explore the spiritual concerns and needs of chronically ill older Black patients from under-resourced areas and to identify available spiritual support resources for patients seeking healthcare through a community safety net health service.

Methods: Using a qualitative descriptive design, we interviewed 13 chronically ill, older Black patients and key clinicians (physicians, nurse practitioners, allied health, and clergy). The interview focused on patients' illness-related spiritual concerns, sources of distress, and desired spiritual support resources. Participants also reviewed the Spiritual Care and Assessment Intervention (SCAI), a spiritual care intervention, and provided feedback on its content, format, and delivery.

Results: Five themes emerged from qualitative interviews: (1) spirituality is integral to seriously ill Southern patients; (2) clinicians should strive to address spiritual health in encounters; (3) socioeconomic barriers and competing demands impact priority of accessing spiritual care services; (4) spiritual care interventions should be patient-driven, compassionate, and fully integrated into medical care as a comprehensive service; and (5) participants thought SCAI was appropriate for use but should be shortened and provided in-person to increase accessibility.

Discussion: Findings will inform the development and piloting of small-scale culturally responsive spiritual care intervention tailored for seriously ill older Black adults in an ambulatory care setting.

背景:认识到患者的精神关注可以提高幸福感,并且对以患者为中心的慢性病护理至关重要。然而,未得到满足的精神护理需求仍然是一个主要的痛苦领域,特别是在资源不足的人口中。有限的研究存在的精神问题是如何承认和整合到慢性病老年黑人患者的护理在这些设置。目的:本研究旨在探讨来自资源不足地区的黑人老年慢性病患者的精神问题和需求,并为通过社区安全网卫生服务寻求医疗保健的患者确定可用的精神支持资源。方法:采用定性描述设计,我们采访了13名慢性病患者、老年黑人患者和主要临床医生(医生、执业护士、专职健康人员和神职人员)。访谈的重点是患者与疾病有关的精神问题,痛苦的来源,以及所需的精神支持资源。参与者还回顾了精神护理和评估干预(SCAI),这是一种精神护理干预,并就其内容,格式和交付提供了反馈。结果:从定性访谈中得出五个主题:(1)精神是南方重病患者不可或缺的一部分;(2)临床医生应努力解决精神健康的遭遇;(3)社会经济障碍和竞争需求影响精神护理服务的优先性;(4)精神护理干预应以患者为导向,富有同情心,并充分融入医疗保健作为一种综合服务;(5)受访者认为SCAI适合使用,但应缩短时间并提供现场服务,以增加可及性。讨论:研究结果将告知小规模文化响应精神护理干预的发展和试点,为重病黑人老年人在门诊护理环境中量身定制。
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引用次数: 0
Racial/Ethnic Variations in the Intergenerational Transmission of Adolescent Depression. 青少年抑郁症代际传播的种族/民族差异。
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-12-12 DOI: 10.1007/s40615-024-02246-z
Yangjin Park, Yanghyun Park, Pa Thor, Philip Baiden, Sungkyu Lee

Depression tends to be experienced across generations and among racial/ethnic groups through various pathways. However, little is known about racial/ethnic variations in the transmission of adolescent depression among different racial/ethnic groups. This study aims to investigate the intergenerational transmission of adolescent depression across three generations among White, Black, and Hispanic groups. Data were drawn from the Future of Families and Child Wellbeing Study. This study used a nationally representative sample of 2,604 individuals. A multi-group serial mediation analysis was conducted using structural equation modeling. As hypothesized, adolescent depression was transmitted across three generations, from the maternal side. Furthermore, the intergenerational transmission of depression was identified as a sequential transfer from one generation to the next, as opposed to exhibiting a generation-skipping effect. However, no statistically significant racial/ethnic variation was found in the pathways of intergenerational transmission of adolescent depression. In conclusion, depression is a mental disorder that can be transmitted from one generation to the next, and its transmission pathway is shared and similar across White, Black, and Hispanic groups. Regardless of racial/ethnic group, the intergenerational transmission process of depression can be halted with the implementation of appropriate interventions and treatment.

抑郁症往往会通过各种途径在不同的世代和种族/民族群体中经历。然而,关于不同种族/民族群体之间青少年抑郁症传播的种族/民族差异,我们所知甚少。本研究旨在探讨青少年抑郁症在白人、黑人和西班牙裔群体中的代际传播。数据来自未来家庭和儿童健康研究。这项研究使用了2604个具有全国代表性的样本。采用结构方程模型进行多组序列中介分析。正如假设的那样,青少年抑郁症是从母亲那里遗传给三代人的。此外,抑郁症的代际传播被确定为从一代到下一代的连续传递,而不是表现出代际跳跃效应。然而,在青少年抑郁症的代际传播途径中,没有发现统计学上显著的种族/民族差异。总之,抑郁症是一种精神障碍,可以从一代传给下一代,其传播途径在白人、黑人和西班牙裔群体中是共享和相似的。无论种族/民族群体,抑郁症的代际传播过程可以通过实施适当的干预和治疗而停止。
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引用次数: 0
Prevalence of Diabetic Retinopathy Among Native Americans with Diabetes at a Tribal Clinic in Oklahoma. 在俄克拉何马州的一个部落诊所中,美国印第安人糖尿病视网膜病变的患病率。
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-12-10 DOI: 10.1007/s40615-024-02256-x
Elizabeth Fairless, Jarret Garbrecht, Zachary Powell, Kai Ding, Ronald Kingsley, Bradley Farris

Purpose: Native Americans (NAs) have the highest prevalence of diabetes mellitus (DM) of any racial group in the USA and are therefore at higher risk for diabetic retinopathy (DR) and diabetic macular edema (DME). This study estimated the prevalence of DR and DME among NAs receiving eye exams at the Citizen Potawatomi Nation (CPN) clinic, a tribal clinic in Oklahoma serving members of multiple tribes, and characterized risk markers associated with the presence and severity of DR.

Methods: A retrospective chart review identified tribal members with DM who received dilated retinal fundus exams at the CPN clinic between 2021 and 2023. The presence and stage of DR and DME among participants were recorded. Hypotheses of association between the presence or severity of DR and medical and socioeconomic factors were tested.

Results: Among the 504 participants, the prevalence of DR was 19.4% (95% CI 16.1-23.2%), including 16.3% (95% CI 13.2-19.8%) with non-proliferative DR and 3.2% (95% CI 1.8-5.1%) with proliferative DR, and 3.4% (95% CI 2.0-5.4%) with DME. Nephropathy, longer duration of DM, higher HbA1c, insulin use, and Medicaid insurance were associated with the presence of DR (p < 0.05).

Conclusions: This study found a lower prevalence of DR than did earlier studies of NAs with DM. The mean HbA1c in this cohort was lower than in earlier studies, suggesting that diabetes management has improved. Several medical or socioeconomic factors were associated with the presence and severity of DR.

目的:美洲原住民(NAs)是美国所有种族中糖尿病(DM)患病率最高的,因此他们患糖尿病视网膜病变(DR)和糖尿病黄斑水肿(DME)的风险更高。本研究估计了在Citizen Potawatomi Nation (CPN)诊所接受眼科检查的NAs中DR和DME的患病率,CPN是俄克拉何马州的一家部落诊所,为多个部落的成员提供服务,并描述了与DR存在和严重程度相关的风险标志物。方法:回顾性图表回顾确定了2021年至2023年间在CPN诊所接受视网膜眼底扩张检查的DM部落成员。记录参与者中DR和DME的存在和阶段。检验了DR的存在或严重程度与医学和社会经济因素之间的关联假设。结果:在504名参与者中,DR患病率为19.4% (95% CI 16.1-23.2%),其中非增生性DR患病率为16.3% (95% CI 13.2-19.8%),增生性DR患病率为3.2% (95% CI 1.8-5.1%), DME患病率为3.4% (95% CI 2.0-5.4%)。肾病、糖尿病持续时间较长、HbA1c较高、胰岛素使用和医疗保险与DR的存在相关(p)。结论:该研究发现DR的患病率低于早期对NAs合并DM的研究。该队列的平均HbA1c低于早期研究,表明糖尿病管理得到改善。一些医学或社会经济因素与DR的存在和严重程度有关。
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引用次数: 0
COVID-Related Discrimination and Health Care Access among a Nationally Representative, Diverse Sample of US Adults. 在具有全国代表性的不同美国成年人样本中,与冠状病毒相关的歧视和医疗保健获取
IF 2.4 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2026-02-01 Epub Date: 2024-12-17 DOI: 10.1007/s40615-024-02260-1
Miciah J Wilkerson, Alexis L Green, Allana T Forde, Stephanie A Ponce, Anita L Stewart, Anna M Nápoles, Paula D Strassle

Background: In the United States, COVID-related discrimination towards racial and ethnic minority populations is well documented; however, its impact on healthcare access during the pandemic has not been assessed.

Methods: We used data from our nationally representative, online survey of 5,500 American Indian/Alaska Native (AIAN), Asian, Black, Native Hawaiian/Pacific Islander, Latino, White, and multiracial adults conducted between 12/2020-2/2021 (baseline) and 8/2021-9/2021 (6-month follow-up; 35.1% response rate). At baseline, participants were asked how often they experienced discriminatory behaviors "because they think you might have COVID-19" (modified Everyday Discrimination Scale). Participants were asked if they were unable to get needed health care (e.g., cancer screening), or COVID-19 testing at both time-points. Vaccine willingness was assessed at baseline and uptake at follow-up.

Results: Experiencing COVID-related discrimination was associated with not being able to get health care at baseline (OR = 3.66, 95% CI = 2.91-4.59) and follow-up (OR = 1.86, 95% CI = 1.16-2.97) and not being able to get a COVID-19 test at baseline (OR = 2.11, 95% CI = 1.68-2.65) and follow-up (OR = 4.12, 95% CI = 2.20-7.72). Experiencing discrimination was also associated with being less likely to have received a COVID-19 vaccine (OR = 0.52, 95% CI = 0.30-0.90), despite individuals who experienced discrimination being more willing to vaccinate at baseline (OR = 1.56, 95% CI = 1.10-2.22).

Conclusions: COVID-related discrimination was associated with an increased likelihood of being unable to get health care across all racial and ethnic populations, although associations were strongest among Asian, AIAN, and Latino adults. Healthcare providers should be aware of the impact of discrimination on healthcare utilization, delays, and health-seeking behaviors, especially among racial and ethnic minorities.

背景:在美国,与 COVID 相关的针对少数种族和少数民族人口的歧视已被充分记录在案;然而,其对大流行期间医疗保健获取的影响尚未得到评估:我们使用了在 2020 年 12 月至 2021 年 2 月(基线)和 2021 年 8 月至 2021 年 9 月(6 个月随访;回复率为 35.1%)期间对 5500 名美国印第安人/阿拉斯加原住民、亚裔、黑人、夏威夷原住民/太平洋岛民、拉丁裔、白人和多种族成年人进行的具有全国代表性的在线调查数据。在基线调查中,参与者被问及 "因为他们认为您可能患有 COVID-19"(修改后的日常歧视量表)而遭受歧视行为的频率。在两个时间点,参与者都被问及是否无法获得所需的医疗保健(如癌症筛查)或 COVID-19 检测。在基线时评估接种疫苗的意愿,在随访时评估接种疫苗的情况:结果:在基线(OR = 3.66,95% CI = 2.91-4.59)和随访(OR = 1.86,95% CI = 1.16-2.97)和随访(OR = 4.12,95% CI = 2.20-7.72)时,遭受与 COVID 相关的歧视与无法获得医疗保健服务有关;在基线(OR = 2.11,95% CI = 1.68-2.65)和随访(OR = 4.12,95% CI = 2.20-7.72)时,遭受与 COVID-19 相关的歧视与无法获得 COVID-19 检测有关。尽管遭受歧视的人在基线时更愿意接种疫苗(OR = 1.56,95% CI = 1.10-2.22),但遭受歧视也与接种 COVID-19 疫苗的可能性较低有关(OR = 0.52,95% CI = 0.30-0.90):结论:在所有种族和民族中,COVID 相关歧视与无法获得医疗保健的可能性增加有关,但在亚裔、亚裔美国人和拉丁裔成年人中相关性最强。医疗保健提供者应该意识到歧视对医疗保健利用、延迟和寻求健康行为的影响,尤其是在少数种族和民族中。
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引用次数: 0
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Journal of Racial and Ethnic Health Disparities
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