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IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-03-01 DOI: 10.1111/jorc.12413
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引用次数: 0
Intervening on health literacy by knowledge translation processes in kidney transplantation: A feasibility study. 肾移植患者知识转化过程干预健康素养的可行性研究。
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-03-01 Epub Date: 2021-05-30 DOI: 10.1111/jorc.12379
Marit H Andersen, Kristin H Urstad, Marie H Larsen, Gina Fraas Henrichsen, Eivind Engebretsen, John Ødemark, Aud-Eldrid Stenehjem, Anna V Reisaeter, Arve Nordlie, Astrid K Wahl

Background: Patients awaiting kidney transplantation need to be prepared ahead of the upcoming transplantation by developing targeted pre- and post-transplant knowledge. On this background, we designed a new health literacy intervention, including a film and a counselling session, based on motivational interviewing for dialysis patients provided by dialysis nurses.

Aim: To explore patients' and nurses' experiences of the feasibility and acceptability of the intervention, focusing on the patient as a prepared knowledge actor.

Design: An explorative qualitative study.

Participants and methods: Data included in-depth interviews with nine patients and three nurses who participated in the intervention. The interviews were audiotaped and analysed following Kvale and Brinkmann's method for thematic data analysis.

Findings: Three main themes were identified: a different kind of health intervention stimulating new insight; a challenging kind of health conversation and changed relationships and increased security.

Conclusions: Both the patients and the nurses had an overall positive attitude toward the intervention, providing a kind of dialogue to prepare dialysis patients going through kidney transplantation. The nurses found the MI methodology to be challenging. When introducing a comprehensive communication method like MI, potential training and supervision needs for the nurses must be addressed.

背景:等待肾移植的患者需要在即将到来的移植前做好准备,发展有针对性的移植前和移植后知识。在此背景下,我们设计了一种新的健康素养干预措施,包括一部电影和一次咨询会议,基于透析护士对透析患者的动机性访谈。目的:探讨患者和护士对干预的可行性和可接受性的体验,重点关注患者作为有准备的知识行动者。设计:探索性质的研究。参与者和方法:数据包括对参与干预的9名患者和3名护士的深度访谈。对访谈进行录音,并按照Kvale和Brinkmann的主题数据分析方法进行分析。研究结果:确定了三个主题:一种不同的健康干预措施激发了新的见解;一种具有挑战性的健康对话,改变了关系,增加了安全感。结论:患者和护士对干预的态度总体上是积极的,为透析患者接受肾移植提供了一种对话。护士发现MI方法具有挑战性。在引入MI等综合沟通方法时,必须解决护士潜在的培训和监督需求。
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引用次数: 4
Nurse-perceived facilitators and barriers to palliative care in patients with kidney disease: A European Delphi survey. 护士感知的促进因素和障碍在肾脏疾病患者姑息治疗:欧洲德尔菲调查。
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-03-01 Epub Date: 2021-03-24 DOI: 10.1111/jorc.12371
Ilaria de Barbieri, Veronica Strini, Helen Noble, Stefano Amatori, Davide Sisti

Background: The palliative care phenomenon is increasingly invested in all medicine and nursing fields, as care for people with kidney disease who do not wish to embark on dialysis: it encompasses a palliative approach to shared decision-making. To deliver patient-centred optimal care, nephrology healthcare staff should be knowledgeable about palliative care and the appropriate conservative management approach.

Objective: This paper aimed to explore, using a Delphi survey, the barriers and facilitators to palliative care in patients with kidney disease.

Design: An e-Delphi technique with three questionnaire rounds was performed; statements were generated using Likert scales.

Participants and measurements: A list of 80 statements related to palliative care in patients with kidney disease was divided into facilitators and barriers. Questionnaires were administered to 13 nephrology nurse experts in some European countries.

Results: Seven items were removed from the list of 80 statements after the first round of the Delphi study; eight items achieved a significant change of the mean between round two and three, whereas internal stability emerged in all the remaining items.

Conclusions: Specific training and education in palliative care emerged as a facilitator, as well as the role of spiritual and beliefs and the role of family and caregiver. The main barriers were represented by the differences in cultures, beliefs, and practices and by the lack of experience in the role of the staff in palliative care. These statements provide a platform for future research to improve palliative care practice in patients with kidney disease.

背景:姑息治疗现象越来越多地投资于所有医学和护理领域,作为不希望进行透析的肾病患者的护理:它包含了共同决策的姑息治疗方法。为了提供以患者为中心的最佳护理,肾病保健人员应该了解姑息治疗和适当的保守管理方法。目的:采用德尔菲调查法,探讨肾病患者实施姑息治疗的障碍和促进因素。设计:采用e-Delphi技术进行3轮问卷调查;语句使用李克特量表生成。参与者和测量:80项与肾脏疾病患者姑息治疗相关的陈述被分为促进因素和障碍因素。对欧洲一些国家的13名肾病科护理专家进行问卷调查。结果:在第一轮德尔菲研究后,从80条陈述中剔除了7条;8个项目在第二轮和第三轮之间实现了显著的平均变化,而其余所有项目都出现了内部稳定。结论:在姑息治疗中出现了具体的培训和教育,作为促进者,以及精神和信仰的作用以及家庭和照顾者的作用。主要障碍表现为文化、信仰和做法的差异,以及工作人员在姑息治疗中的作用缺乏经验。这些声明为未来的研究提供了一个平台,以改善肾脏疾病患者的姑息治疗实践。
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引用次数: 4
Decision-making experiences of young adults with long-term conditions. 有长期疾病的年轻人的决策经验。
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-03-01 Epub Date: 2021-03-04 DOI: 10.1111/jorc.12367
Sarah Ofori-Ansah, Michelle Evans, Janice Jones, Nicola Thomas

Background: Young adults with long-term conditions can struggle to accept their diagnosis and can become overwhelmed with managing their condition. Suboptimal transfer from paediatric to adult services with a resultant disengagement with the service can result in less involvement in care and decision-making. Shared decision-making can improve involvement in health decisions and increase satisfaction with treatment/therapy and care.

Objectives: An integrative literature review was conducted to explore and understand young adults' experiences of decision-making in health care.

Design: An integrative literature review.

Data sources: CINAHL, EMCARE, PsycINFO, HMIC, EMBASE, Web of Science, PubMed, MEDLINE, EBSCOHOST and COCHRANE databases were searched for relevant literature published between January 1999 and January 2020.

Findings: Thirteen primary research papers met the inclusion criteria. Four main themes were identified: (1) Information delivery and communication; (2) participation in decision-making; (3) social factors influencing decision-making and (4) emotional impact of decision-making.

Conclusions: Young adults with long-term conditions have specific decision-making needs which can impact their emotional health. Research with a specific focus on young adults' experiences of decision-making in health care is needed.

背景:患有长期疾病的年轻人可能很难接受他们的诊断,并可能在管理他们的病情时变得不堪重负。从儿科到成人服务的次优转移与由此产生的服务脱离可能导致较少参与护理和决策。共同决策可以提高健康决策的参与度,提高对治疗/治疗和护理的满意度。目的:通过文献综述,探讨和了解年轻人在医疗保健方面的决策经验。设计:综合文献综述。数据来源:检索1999年1月至2020年1月间发表的相关文献,检索CINAHL、EMCARE、PsycINFO、HMIC、EMBASE、Web of Science、PubMed、MEDLINE、EBSCOHOST和COCHRANE数据库。结果:13篇主要研究论文符合纳入标准。确定了四个主题:(1)信息传递和传播;(2)参与决策;(3)影响决策的社会因素;(4)决策的情绪影响。结论:患有长期疾病的年轻人有特定的决策需求,这可能会影响他们的情绪健康。需要进行研究,特别关注青年人在卫生保健方面的决策经验。
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引用次数: 5
Relationship between arteriovenous fistula cannulation practices and dialysis adequacy: A prospective, multicenter study. 动静脉瘘插管实践与透析充分性之间的关系:一项前瞻性、多中心研究。
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-03-01 Epub Date: 2021-01-25 DOI: 10.1111/jorc.12365
Nurten Ozen, Aylin Aydin Sayilan, Samet Sayilan, Dilek Mut, Emin B Akin, Suleyman T Ecder

Background: Successful arteriovenous fistula cannulation ensures maximum patient benefit in the haemodialysis procedure.

Objective: The aim of this study was to determine the effect of various cannulation methods used for arteriovenous fistulas on dialysis adequacy.

Design: It is a descriptive, cross-sectional and multicenter study.

Participants: A total of 164 dialysis patients from four dialysis centers were included.

Measurements: Data were collected by determining patients' characteristics and the arteriovenous fistula cannulation method used, in addition to recording the Kt/V and urea reduction ratio values to evaluate dialysis adequacy. The mean Kt/V and urea reduction ratio values over 3 months after dialysis initiation were used. This trial is registered with ClinicalTrials.gov, NCT04270292.

Results: Cannulation with the puncture method was used in 53% of the patients; the fistula needles were inserted in the antegrade direction in 43.9% of the patients; the arterial needle was rotated after fistula needle placement in 63.4% of the patients; and the arterial and venous needles were on the same vascular line in 15.2% of the patients. Placement of the fistula needle in the antegrade direction increased the Kt/V value 0.164 times (95% confidence interval: 0.002-0.212, p = .047).

Conclusion: Antegrade placement could be a factor influencing dialysis adequacy. We suggest antegrade interventions to the fistula to maximize the patient benefit from the haemodialysis treatment.

背景:成功的动静脉瘘插管确保患者在血液透析过程中获得最大的益处。目的:本研究旨在探讨动静脉瘘的不同置管方式对透析充分性的影响。设计:这是一个描述性、横断面和多中心的研究。参与者:来自四个透析中心的164名透析患者被纳入研究。测量方法:通过确定患者特征和采用的动静脉瘘插管方法收集数据,并记录Kt/V和尿素还原比值以评估透析充分性。采用透析开始后3个月的平均Kt/V和尿素还原比值。该试验已在ClinicalTrials.gov注册,编号NCT04270292。结果:53%的患者采用穿刺方式插管;瘘针顺行插入的占43.9%;63.4%的患者置入瘘管针后动脉针发生旋转;15.2%的患者动脉针与静脉针在同一血管线上。顺行置瘘针使Kt/V值增加0.164倍(95%可信区间:0.002 ~ 0.212,p = 0.047)。结论:顺行放置可能是影响透析充分性的因素。我们建议对瘘管进行顺行干预,以使患者从血液透析治疗中获益最大化。
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引用次数: 1
Protein energy wasting and long-term outcomes in nondialysis dependent chronic kidney disease. 非透析依赖性慢性肾脏疾病的蛋白质能量浪费和长期预后
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-03-01 Epub Date: 2021-05-30 DOI: 10.1111/jorc.12378
Bryan B Franco, Wilma M Hopman, Michelle C Lamarche, Rachel M Holden

Background: Nutritional status and protein energy wasting (PEW) is prevalent in patients with nondialysis-dependent chronic kidney disease (CKD). The relationship between PEW and long-term development of clinically important outcomes remains to be examined.

Objectives: To investigate the relationships between PEW, as measured by Subjective Global Assessment (SGA 1-7), and progression to important clinical outcomes: mortality and/or kidney failure.

Design: Prospective cohort design.

Participants: One hundred and thirty-nine participants were well-nourished and 37 moderately malnourished patients with CKD 3-5.

Measurements: The outcomes were 2, 5, and 10-year progression to kidney failure (dialysis or transplant) or mortality, kidney failure alone, and mortality alone. SGA was determined by a registered renal dietitian. Food frequency questionnaires were used to assess dietary intake. Clinical and laboratory baseline characteristics were collected. Multivariable regression models and Cox models were created to examine the relationship between SGA and outcomes.

Results: PEW was associated with the combined outcome of kidney failure or mortality at 2 (p = 0.003), 5 (p = 0.004), but not at 10 (p = 0.73) years. This relationship was primarily driven by the relationship between PEW and kidney failure. In Cox models, the relationship between PEW and kidney failure remained after adjusting for Kidney Failure Risk Equation scores. The multivariable modeling revealed that PEW remained a statistically significant predictor of the combined outcome and ESKD after adjustment for age, estimated glomerular filtration rate (eGFR), sex, albumin-to-creatinine ratio, diabetes, albumin, and protein intake.

Conclusions: PEW, determined by the SGA 1-7, is an important prognostic tool. Further research looking at clinically important outcomes are needed to implement nutritional interventions for nondialysis-dependent CKD patients.

背景:营养状况和蛋白质能量浪费(PEW)在非透析依赖型慢性肾病(CKD)患者中很普遍。PEW与临床重要结果的长期发展之间的关系仍有待检验。目的:研究主观总体评估(SGA 1-7)测量的PEW与重要临床结果(死亡率和/或肾衰竭)进展之间的关系。设计:前瞻性队列设计。参与者:139名参与者营养良好,37名中度营养不良的CKD 3-5患者。测量:结果为2年、5年和10年进展为肾衰竭(透析或移植)或死亡率、单独肾衰竭和单独死亡率。SGA由注册肾脏营养师测定。使用食物频率问卷来评估饮食摄入量。收集临床和实验室基线特征。建立多变量回归模型和Cox模型来检验SGA与结局之间的关系。结果:PEW与2年(p = 0.003)、5年(p = 0.004)、10年(p = 0.73)时肾衰竭或死亡率的综合结局相关。这种关系主要是由PEW和肾衰竭之间的关系驱动的。在Cox模型中,在调整肾衰竭风险方程评分后,PEW与肾衰竭之间的关系仍然存在。多变量模型显示,在调整年龄、肾小球滤过率(eGFR)、性别、白蛋白与肌酐比值、糖尿病、白蛋白和蛋白质摄入量后,PEW仍然是综合结果和ESKD的统计显著预测因子。结论:由SGA 1-7确定的PEW是一个重要的预后工具。对非透析依赖的CKD患者实施营养干预,需要进一步研究临床重要结果。
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引用次数: 3
The needs of families who care for individuals with kidney failure on comprehensive conservative care: A qualitative systematic review 照顾肾功能衰竭患者的家庭对综合保守治疗的需求:一项定性的系统回顾
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-02-28 DOI: 10.1111/jorc.12415
N. Ania-González RN, MSc, J. Martín-Martín RN, PhD, P. Amezqueta-Goñi RN, M. Vázquez-Calatayud RN, PhD

Background

Integrating the family of patients with kidney failure on comprehensive conservative care could benefit patients, families, and the health care system. However, there is a knowledge gap in this phenomenon since no systematic review has focused on the families' needs who care for individuals with kidney failure on comprehensive conservative care.

Objectives

To understand the primary needs of families who care for people with kidney failure on comprehensive conservative care.

Method

A systematic literature review of qualitative studies, followed by a content analysis was carried out. PubMed, CINAHL, and PsycINFO databases were used to search for articles published in English and Spanish between 2010 and 2021. The ENTREQ guideline was used for reporting.

Results

Five relevant studies were included in this study. The analysis has allowed identifying key aspects of knowledge, psychological, social and spiritual needs of family members of patients with kidney failure on comprehensive conservative care.

Conclusions

This systematic review has revealed that families experience a lack of information and continuity of care by health care professionals. Added to this is the psychological burden they bear due to the feeling of indefinite care in time and uncertainty about the death of their loved one. All this, without the necessary support from their immediate family environment and social institutions. In light of these data, a paradigm shift in society and the health care received by these families is essential.

背景:将肾功能衰竭患者家属纳入综合保守治疗对患者、家庭和医疗保健系统都有好处。然而,这一现象存在知识缺口,因为没有系统的综述集中在照顾肾功能衰竭患者的家庭需要的综合保守治疗上。目的了解照顾肾功能衰竭患者的家庭对综合保守治疗的主要需求。方法对定性研究进行系统文献综述,并进行内容分析。使用PubMed、CINAHL和PsycINFO数据库搜索2010年至2021年间以英语和西班牙语发表的文章。采用ENTREQ指南进行报告。结果本研究共纳入5项相关研究。该分析确定了肾衰竭患者家属在综合保守治疗方面的知识、心理、社会和精神需求的关键方面。结论:本系统综述揭示了家庭缺乏卫生保健专业人员的信息和连续性护理。除此之外,他们还承受着由于时间上不确定的照顾和对亲人死亡的不确定感而带来的心理负担。所有这些都没有得到他们的直系亲属环境和社会机构的必要支持。根据这些数据,社会和这些家庭获得的保健服务的模式转变是至关重要的。
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引用次数: 1
Exploring patients' experiences of the impact of dialysis therapies on quality of life and wellbeing 探讨透析治疗对患者生活质量和健康的影响
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-02-28 DOI: 10.1111/jorc.12416
Joe Antoun BSc, Daniel J. Brown PhD, Daniel J. W. Jones PhD, Beth G. Clarkson PhD, Anthony I. Shepherd PhD, Nicholas C. Sangala MBBS, Robert J. Lewis MD, Melitta A. McNarry PhD, Kelly A. Mackintosh PhD, Laura Mason PhD, Jo Corbett PhD, Zoe L. Saynor PhD

Background

When people with chronic kidney disease reach kidney failure, renal replacement therapy is usually required to improve symptoms and maintain life. Although in-centre haemodialysis is most commonly used for this purpose, other forms of dialysis are available, including home haemodialysis and peritoneal dialysis.

Objectives

We aimed to explore the experiences of adults living with chronic kidney disease who were either approaching the need for dialysis or had reached kidney failure and were receiving a form of dialysis. In particular, we explored how different forms of dialysis affect their quality of life, wellbeing, and physical activity.

Methods

Individual semistructured interviews were conducted with 40 adults with kidney failure, comprising four groups (n = 10 each): those receiving in-centre haemodialysis, home haemodialysis or peritoneal dialysis, or predialysis. Interviews were transcribed verbatim, thematically analysed, and then composite vignettes were subsequently developed to present a rich narrative of the collective experiences of each group.

Findings

Compared with adults who were predialysis, quality of life and wellbeing improved upon initiation of their home haemodialysis or peritoneal dialysis. Conversely, minimal improvement was perceived by those receiving in-centre haemodialysis. Low physical activity was reported across all four groups, although those receiving home haemodialysis and peritoneal dialysis reported a greater desire and ability to be physically active than those in-centre.

Conclusion

These findings highlight that dialysis modalities not requiring regular hospital attendance (i.e., home haemodialysis and peritoneal dialysis) improve independence, quality of life, wellbeing, and can facilitate a more physically active lifestyle.

当慢性肾脏病患者达到肾功能衰竭时,通常需要肾脏替代治疗来改善症状和维持生命。虽然中心血液透析最常用于此目的,但也可采用其他形式的透析,包括家庭血液透析和腹膜透析。我们的目的是探讨患有慢性肾脏疾病的成年人的经历,他们要么接近透析的需要,要么已经达到肾衰竭,正在接受某种形式的透析。特别是,我们探索了不同形式的透析如何影响他们的生活质量、健康和身体活动。方法对40例成人肾功能衰竭患者进行了半结构化访谈,分为四组(n = 10):接受中心血液透析、家庭血液透析或腹膜透析和透析前透析。采访被逐字记录下来,按主题进行分析,然后合成小插曲随后被开发出来,以呈现每个群体的集体经历的丰富叙述。研究结果:与透析前的成年人相比,开始家庭血液透析或腹膜透析后,生活质量和健康状况有所改善。相反,接受中心血液透析的患者改善甚微。尽管接受家庭血液透析和腹膜透析的患者比接受中心透析的患者更渴望和更有能力进行身体活动,但四组患者的身体活动水平均较低。这些发现强调,不需要定期住院的透析方式(即家庭血液透析和腹膜透析)可以提高独立性、生活质量和健康,并可以促进更积极的生活方式。
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引用次数: 4
Reviewer Summary for Journal of Renal Care 《肾脏护理杂志》审稿人摘要
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-02-10 DOI: 10.1111/jorc.12381
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引用次数: 0
Issue Information: Journal of Renal Care 1/2022 期刊信息:Journal of Renal Care 1/2022
IF 1.9 4区 医学 Q1 Nursing Pub Date : 2022-02-10 DOI: 10.1111/jorc.12382
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引用次数: 0
期刊
Journal of renal care
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