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Enabling prescription-based health apps 启用基于处方的健康应用
V. Osmani, S. Forti, O. Mayora-Ibarra, D. Conforti
We describe an innovative framework for prescription of personalised health apps by integrating Personal Health Records (PHR) with disease-specific mobile applications for managing medical conditions and the communication with clinical professionals. The prescribed apps record multiple variables including medical history enriched with innovative features such as integration with medical monitoring devices and wellbeing trackers to provide patients and clinicians with a personalised support on disease management. Our framework is based on an existing PHR ecosystem called TreC, uniquely positioned between healthcare provider and the patients, which is being used by over 70.000 patients in Trentino region in Northern Italy. We also describe three important aspects of health app prescription and how medical information is automatically encoded through the TreC framework and is prescribed as a personalised app, ready to be installed in the patients' smartphone.
我们通过将个人健康记录(PHR)与特定疾病的移动应用程序集成,以管理医疗条件和与临床专业人员的沟通,描述了个性化健康应用程序处方的创新框架。指定的应用程序记录多个变量,包括病史,并具有创新功能,如与医疗监测设备和健康追踪器集成,为患者和临床医生提供个性化的疾病管理支持。我们的框架是基于一个名为TreC的现有PHR生态系统,它独特地定位于医疗保健提供者和患者之间,被意大利北部特伦蒂诺地区的7万多名患者使用。我们还描述了健康应用程序处方的三个重要方面,以及医疗信息如何通过TreC框架自动编码,并作为个性化应用程序进行处方,准备安装在患者的智能手机中。
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引用次数: 10
Data dialog: facilitating collaborative decision making through data-driven conversations 数据对话:通过数据驱动的对话促进协作决策
Hariharan Subramonyam, Bongshin Lee, M. S. O'Modhrain, Eytan Adar
Shared decision-making is a process that requires active participation from the patient in making treatment related decisions [5]. Through this process, both patients and clinicians develop a shared understanding about the patients' lifestyle choices and how they affect symptoms to make informed treatment related decisions. However, there are communication and process barriers to developing this understanding, including lack of medical knowledge on the part of the patients and lack of standard processes for clinicians to follow. With Data Dialog, we propose a data-driven approach to information exchange between patients and clinicians, using visualizations as 'boundary objects' for communication and collaboration. We outline a number of scenarios in which Data Dialog can be useful, and discuss opportunities and challenges that need to be addressed.
共同决策是指需要患者积极参与治疗相关决策的过程[5]。通过这个过程,患者和临床医生对患者的生活方式选择以及它们如何影响症状形成了共同的理解,从而做出明智的治疗相关决定。然而,在发展这种理解方面存在沟通和流程障碍,包括患者缺乏医学知识和缺乏临床医生可遵循的标准程序。通过数据对话,我们提出了一种数据驱动的方法来进行患者和临床医生之间的信息交换,使用可视化作为沟通和协作的“边界对象”。我们概述了数据对话框可以发挥作用的一些场景,并讨论了需要解决的机遇和挑战。
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引用次数: 0
A hierarchical approach to recognize purposeful movements using inertial sensors: preliminary experiments and results 使用惯性传感器识别有目的运动的分层方法:初步实验和结果
Carme Zambrana, Sebastian Idelsohn-Zielonka, Mireia Claramunt-Molet, Maria Almenara-Masbernat, E. Opisso, J. Tormos, F. Miralles, E. Vargiu
One of the most relevant post-stroke conditions is the hemiparesis, which causes muscle weakness and/or the inability to move one side of the body. Physical and occupational therapy plays an important role in the rehabilitation of patients suffering this condition. On the other hand, daily life use of the impaired arm is crucial for improving and also assessing the evolution of the patient. Currently, this assessment is done through self-questionnaires and interviews, which are subjective and depend on the memory of the patient. In this paper, a hierarchical automatic approach aimed at recognizing purposeful arm movements during patients' daily life activities is presented. This approach relies on two-levels: the former is aimed at distinguishing between arm movement and non-movement; whereas the latter is devoted to recognize between purposeful and non-purposeful movements. In particular, in the first version of the system, we consider arms swing while walking as non-purposeful movement. Experiments have been performed in the lab with 9 healthy volunteers wearing a wristband on each wrist. Six activities have been performed: eating, pouring water, drinking, brushing their teeth, folding a towel, and walking. The proposed approach achieves promising performances, recognizing purposeful movement with an accuracy of 0.91 and an F1-score of 0.87.
卒中后最相关的症状之一是偏瘫,它会导致肌肉无力和/或无法移动身体的一侧。物理和职业治疗在患有这种疾病的患者的康复中起着重要作用。另一方面,受损手臂的日常生活使用对于改善和评估患者的发展至关重要。目前,这种评估是通过自我问卷和访谈来完成的,这是主观的,依赖于患者的记忆。本文提出了一种分层自动方法,旨在识别患者日常生活活动中有目的的手臂运动。这种方法依赖于两个层面:前者旨在区分手臂运动和不运动;而后者则致力于识别有目的和无目的的动作。特别是,在系统的第一个版本中,我们认为走路时手臂摆动是无目的的运动。实验是在实验室里进行的,9名健康的志愿者每个手腕上都戴着一个腕带。他们完成了六项活动:吃饭、倒水、喝水、刷牙、叠毛巾和走路。所提出的方法取得了令人满意的性能,识别有目的运动的准确率为0.91,f1得分为0.87。
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引用次数: 3
Understanding patient experience: a deployment study in cardiac remote monitoring 了解患者体验:心脏远程监测的部署研究
T. Andersen, Pernille R. D. Andersen, Anders C. Kornum, Trine M. Larsen
The term 'patient experience' is currently part of a global discourse on ways to improve healthcare. This study empirically explores what patient experience is in cardiac remote monitoring and considers the implications for user experience (UX). Through interviews around the deployment of a mobile app that enables patients to collaborate with clinicians, we unpack experiences in six themes and present narratives of patients' lifeworlds. We find that patients' emotions are grounded in negative feelings (uncertainty, anxiety, loss of hope) and that positive experiences (relief, reassurance, safety) arise from getting feedback on symptoms and from continuous and comforting interaction with clinicians. With this paper, we aim to sensitise UX researchers and designers of patient-centred e-health by proposing three UX dimensions: connectedness, comprehension, and compassion.
“患者体验”一词目前是改善医疗保健方式的全球讨论的一部分。本研究实证探讨了心脏远程监测的患者体验,并考虑了对用户体验(UX)的影响。通过围绕一个移动应用程序的部署进行采访,使患者能够与临床医生合作,我们在六个主题中揭示了经验,并呈现了患者生活世界的叙述。我们发现,患者的情绪是基于消极的感觉(不确定、焦虑、失去希望),而积极的体验(缓解、放心、安全)来自于对症状的反馈以及与临床医生持续而舒适的互动。在这篇论文中,我们的目标是通过提出三个用户体验维度:连通性、理解力和同情心,来提高用户体验研究人员和设计师对以患者为中心的电子健康的敏感度。
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引用次数: 19
Exploring stroke-associated hemiparesis assessment with support vector machines 用支持向量机探讨卒中相关偏瘫的评估
V. Ramesh, K. Agrawal, B. Meyer, G. Cauwenberghs, Nadir Weibel
Hemiparesis, the weakness of one side of the body, affects the ability of stroke survivors to move and walk. With prevalence in 80% of survivors, hemiparesis is an important measure for stroke severity. It is generally diagnosed through motor tests performed as part of the National Institute of Health Stroke Scale (NIHSS). Here we report on initial work for an alternate way of identifying hemiparesis that leverages body joint position data captured by the Microsoft Kinect v2 of people resting while waiting for the neurological examination. We employ support vector machines with 10 stroke patients and 9 healthy controls to characterize hemiparesis based on the lower core body angles of the participants, and compare our results to neurologists' diagnoses. We were able to identify left-side hemiparesis, right-side hemiparesis, or no hemiparesis with > 89% accuracy when looking at the lower body angles and observing the patients for 1 minute.
偏瘫,即身体一侧的无力,会影响中风幸存者移动和行走的能力。偏瘫在80%的幸存者中流行,是衡量中风严重程度的重要指标。它通常通过运动测试进行诊断,作为国家健康研究所卒中量表(NIHSS)的一部分。在这里,我们报告了一种识别偏瘫的替代方法的初步工作,该方法利用微软Kinect v2捕获的人们在等待神经学检查时休息的身体关节位置数据。我们使用支持向量机对10名中风患者和9名健康对照者进行了基于参与者下核心体角度的偏瘫特征分析,并将我们的结果与神经科医生的诊断结果进行了比较。当观察患者下半身角度1分钟时,我们能够识别左侧偏瘫、右侧偏瘫或无偏瘫,准确率> 89%。
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引用次数: 3
The challenges of individuality to technology approaches to personally collected health data 个性化对个人收集健康数据的技术方法的挑战
F. Rajabiyazdi, Charles Perin, L. Oehlberg, M. Carpendale
While patients' increasing willingness to collect personal health data portends improvements in the individualization of health care, helping health care providers to effectively act upon these personal data collections poses its own challenges. In this paper, we discuss the challenges we have noticed as we work towards the creation of tools to help chronic patients present their data to their clinicians.
虽然患者收集个人健康数据的意愿日益增强,预示着医疗保健个性化的改善,但帮助医疗保健提供者有效地根据这些个人数据收集采取行动本身也存在挑战。在本文中,我们讨论了我们在努力创建工具以帮助慢性患者向临床医生展示他们的数据时所注意到的挑战。
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引用次数: 2
Sharing automatically tracked activity data: implications for therapists and people with mobility impairments 共享自动跟踪的活动数据:对治疗师和行动障碍患者的影响
Meethu Malu, Leah Findlater
The ability to share automatically tracked health and fitness behaviors has yielded benefits ranging from increasing user motivation to providing therapists with greater insight into their patients' progress. While past work on sharing this data has primarily focused on users with typical motor abilities, features are now emerging in mainstream tracking technologies to extend to people with mobility impairments (e.g., tracking wheelchair rolling). This paper explores opportunities specifically for users with mobility impairments to share this automatically tracked data both with peers and with physical, occupational or recreational therapists. We conducted semi-structured interviews with 10 therapists and 10 people with mobility impairments. The interviews focused on current and desired activity-tracking and sharing practices, and included a design probe activity to more concretely assess the perceived utility of sharing tracked fitness data. We report on attitudes and concerns toward sharing fitness data from the perspective of therapists and people with mobility impairments as well as outline design opportunities to explore in future work.
共享自动跟踪的健康和健身行为的能力已经产生了很多好处,从提高用户动力到让治疗师更深入地了解患者的进展。虽然过去共享这些数据的工作主要集中在具有典型运动能力的用户身上,但现在主流跟踪技术的功能正在扩展到行动不便的人身上(例如,跟踪轮椅滚动)。本文专门为行动不便的用户探索了与同行以及物理、职业或娱乐治疗师共享这些自动跟踪数据的机会。我们对10位治疗师和10位行动障碍患者进行了半结构化访谈。访谈集中于当前和期望的活动跟踪和共享实践,并包括一个设计探针活动,以更具体地评估共享跟踪健身数据的感知效用。我们报告了从治疗师和行动障碍患者的角度对共享健身数据的态度和关注,并概述了在未来工作中探索的设计机会。
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引用次数: 17
Exploring clinical correlations in centroid-based gait metrics from depth data collected in the home 从家中收集的深度数据中探索基于质心的步态指标的临床相关性
Robert Wallace, C. Abbott, M. Skubic
A longitudinal study in the home setting using inexpensive depth cameras was done over 34 months to investigate the ability to predict clinical events. Previous work developed a set of metrics based upon the movement of the centroid computed from segmented depth data [14]. A predictive analysis method is developed allowing the identification of significant changes in the subject's gait. These changes are compared to the subject's clinical events and correlated with standard Fall Risk Assessments (FRA). The method developed here allows the proper clustering of all purposeful walks in the residence to isolate the subject from visitors, and identification of significant changes using a set of metrics unique to each subject. Correct detection of events and non-events ranged between 75% and 94% across a set of 7 residents. These predicted events were also found to correlate strongly with established monthly FRAs.
在长达34个月的时间里,在家庭环境中使用廉价的深度相机进行了一项纵向研究,以调查预测临床事件的能力。先前的工作开发了一套基于分段深度数据计算的质心运动的指标[14]。开发了一种预测分析方法,可以识别受试者步态的显著变化。这些变化与受试者的临床事件进行比较,并与标准跌倒风险评估(FRA)相关联。这里开发的方法允许对住宅中所有有目的的散步进行适当的聚类,以将主题与访客隔离开来,并使用一组独特的指标来识别每个主题的重大变化。在一组7名居民中,事件和非事件的正确检测范围在75%到94%之间。这些预测的事件也被发现与确定的每月fra密切相关。
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引用次数: 0
Supporting shoulder pain prevention and treatment with wearable technology 支持肩关节疼痛预防和治疗的可穿戴技术
Jiachun Du, Qi Wang, L. D. Baets, P. Markopoulos
This research examines how wearable technology and supporting applications can help office workers maintain good posture and guide them to carry out shoulder exercises at their workplace. Specifically, we describe a smart garment designed to monitor upper body posture that provides vibrotactile notifications at different joint areas in order to remind users to correct their posture. We present the design and evaluation of a related smartphone application that supports shoulder training exercises to treat and prevent shoulder pain. The usability of the system for shoulder training was evaluated positively in a laboratory test (N=17). The effectiveness of the system for posture monitoring was assessed with a field deployment (N=25) in which students working with laptops used the posture monitoring system for a whole day. The results demonstrate the system can help the participants facilitate improving their posture in sedentary work.
这项研究考察了可穿戴技术和配套应用如何帮助上班族保持良好的姿势,并指导他们在工作场所进行肩部锻炼。具体来说,我们描述了一种智能服装,旨在监测上身姿势,在不同的关节区域提供振动触觉通知,以提醒用户纠正他们的姿势。我们提出了一个相关的智能手机应用程序的设计和评估,该应用程序支持肩部训练练习,以治疗和预防肩部疼痛。该系统用于肩部训练的可用性在实验室测试中得到了积极的评价(N=17)。姿势监测系统的有效性通过现场部署(N=25)进行评估,其中学生使用笔记本电脑使用姿势监测系统一整天。结果表明,该系统可以帮助参与者改善久坐工作时的姿势。
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引用次数: 8
SuperNurse: nurses' workarounds informing the design of interactive technologies for home wound care 超级护士:护士的工作环境通知交互式技术的设计为家庭伤口护理
Dawood Al-Masslawi, Lori Block, C. Ronquillo, Shannon Handfield, S. Fels, R. Lea, L. Currie
The increasing aging population needing homecare is leading to additional clinical work for homecare nurses. Wound care and documentation are substantial components of this work required to monitor patients and make appropriate clinical decisions. However, due to barriers in the systems that nurses are expected to use, and context of their activities, they create and use workarounds to get their job done. In this study, the most common themes of workarounds were identified and used to inform design iterations of a wound documentation application: SuperNurse. The exploratory and experimental design iterations involved homecare nurses, who expressed: curiosity, leading to further reflection; frustration, leading to identifying problems; and surprise, leading to identifying useful and easy to use designs. We found that nurse-centred design, informed by workarounds, led to using mobile, wearable, and speech recognition technology and improving ease of use and usefulness in SuperNurse.
越来越多的老年人口需要家庭护理,这导致家庭护理护士需要更多的临床工作。伤口护理和记录是这项工作的重要组成部分,需要监测患者并做出适当的临床决定。然而,由于期望护士使用的系统及其活动背景存在障碍,他们创造并使用变通办法来完成工作。在本研究中,确定了最常见的解决方案主题,并将其用于伤口记录应用程序SuperNurse的设计迭代。探索性和实验性的设计迭代涉及家庭护理护士,他们表达了:好奇心,导致进一步的反思;沮丧,导致发现问题;令人惊讶的是,这导致了识别有用且易于使用的设计。我们发现,以护士为中心的设计,通过变通方法,导致使用移动、可穿戴和语音识别技术,并提高SuperNurse的易用性和实用性。
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引用次数: 7
期刊
Proceedings of the 11th EAI International Conference on Pervasive Computing Technologies for Healthcare
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