Introduction. Neurological disorders have been considered for many years dangerous and are associated with higher risk of in-hospital death. Brain vascular disorders are widely considered as the most severe and related to the highest mortality rate. Aim. The aim of the study was to assess the mortality rate in subjects hospitalized in the Neurology ward within 5 years, in particular the etiology, direct cause and predictability of deaths. Material and Methods. This study is retrospective. The documentation analysis concerned the last 5 years, i.e. from 2015 to 2019. From among the entire database of 8247 patients hospitalized in the Neurology Clinic of the University Hospital No. 1 in Bydgoszcz, 429 deaths were reported and analyzed. Results. The mortality rate was 5.2% among all subjects, 6.6% among all vascular patients and 1.16% among non-vascular subjects. The highest mortality was reported among hemorrhagic stroke (28.4%) and it was significantly higher compared to ischemic stroke (OR = 6.25, 95% CI 4.9–7.8, p < 0.0001). Patients with stroke had significantly higher mortality compared to other neurological disorders (OR = 11.08 95% CI 7.7–15.9, p < 0.0001). The main direct reason of death (80%) was primary cerebral as a result of baseline disease. 7% of deaths were considered as sudden, unexpected and 10.7% were related to complications developed during hospitalization. Conclusions. Stroke, especially hemorrhagic subtype, still remains the cause of the highest in-hospital mortality rate in the Neurology Ward. It is worth to notice that special attention should be paid to patients with coexisting infectious diseases, that contribute to higher mortality risk. (JNNN 2020;9(1):20–26) Key Words: in-hospital mortality, neurological disorders, stroke, prognosis
介绍。神经系统疾病多年来一直被认为是危险的，并且与较高的院内死亡风险相关。脑血管疾病被广泛认为是最严重的疾病，与最高的死亡率有关。的目标。该研究的目的是评估5年内在神经内科病房住院的受试者的死亡率，特别是病因、直接原因和死亡的可预测性。材料和方法。本研究为回顾性研究。文件分析涉及最近5年，即2015年至2019年。在比得哥什第一大学医院神经内科住院的8247名患者的整个数据库中，报告和分析了429例死亡。结果。全组死亡率为5.2%，全血管组死亡率为6.6%，非血管组死亡率为1.16%。出血性卒中死亡率最高(28.4%)，显著高于缺血性卒中(OR = 6.25, 95% CI 4.9-7.8, p < 0.0001)。卒中患者的死亡率明显高于其他神经系统疾病(OR = 11.08 95% CI 7.7-15.9, p < 0.0001)。死亡的主要直接原因(80%)是由基线疾病引起的原发性脑性疾病。7%的死亡被认为是突然的、意外的，10.7%的死亡与住院期间发生的并发症有关。结论。中风，尤其是出血性中风，仍然是神经内科住院死亡率最高的原因。值得注意的是，应特别注意患有共存传染病的患者，因为这些疾病会导致更高的死亡风险。【关键词】住院死亡率;神经系统疾病;脑卒中;预后
{"title":"In-hospital Mortality Among Neurological Patients over the Period of 5 years — a Retrospective, Single-center Study","authors":"A. Wiśniewski","doi":"10.15225/pnn.2020.9.1.3","DOIUrl":"https://doi.org/10.15225/pnn.2020.9.1.3","url":null,"abstract":"Introduction. Neurological disorders have been considered for many years dangerous and are associated with higher risk of in-hospital death. Brain vascular disorders are widely considered as the most severe and related to the highest mortality rate. Aim. The aim of the study was to assess the mortality rate in subjects hospitalized in the Neurology ward within 5 years, in particular the etiology, direct cause and predictability of deaths. Material and Methods. This study is retrospective. The documentation analysis concerned the last 5 years, i.e. from 2015 to 2019. From among the entire database of 8247 patients hospitalized in the Neurology Clinic of the University Hospital No. 1 in Bydgoszcz, 429 deaths were reported and analyzed. Results. The mortality rate was 5.2% among all subjects, 6.6% among all vascular patients and 1.16% among non-vascular subjects. The highest mortality was reported among hemorrhagic stroke (28.4%) and it was significantly higher compared to ischemic stroke (OR = 6.25, 95% CI 4.9–7.8, p < 0.0001). Patients with stroke had significantly higher mortality compared to other neurological disorders (OR = 11.08 95% CI 7.7–15.9, p < 0.0001). The main direct reason of death (80%) was primary cerebral as a result of baseline disease. 7% of deaths were considered as sudden, unexpected and 10.7% were related to complications developed during hospitalization. Conclusions. Stroke, especially hemorrhagic subtype, still remains the cause of the highest in-hospital mortality rate in the Neurology Ward. It is worth to notice that special attention should be paid to patients with coexisting infectious diseases, that contribute to higher mortality risk. (JNNN 2020;9(1):20–26) Key Words: in-hospital mortality, neurological disorders, stroke, prognosis","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"63 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81375818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katarzyna Kujawa, G. Żurek, Agata Gorączko, Roman Olejniczak, Łukasz Poniatowski
Patients who do not communicate verbally or speak in an understandable way are a serious problem in providing appropriate care to patients due to a lack of understanding of their needs. Therefore, it is important that nursing staff have the knowledge and skills of alternative and assistive communication to communicate with patients with speech disorders. The purpose of article is to present the current state of knowledge of the alternative and augmentative communication with special consideration the signs used in Poland with a practicular emphasis laid to the revelant description of the eye tracking device. The literature has been reviewed, including also in this relation topics: alternative and augmentative communication, examples of signs used in alternative communication in Poland and communication and eye tracking. Not everyone has the ability to communicate verbally with the environment. In relation to this problem the solution is the alternative and augmentative communication which uses signs and devices to enable the patient to communicate with other people. (JNNN 2020;9(1):39–45) Key Words: alternative communication, augmentative communication, AAC system, speech disorders, eye track, C-Eye
{"title":"Augmentative and Alternative Communication Systems with Signs and Eye Tracker Used in Poland","authors":"Katarzyna Kujawa, G. Żurek, Agata Gorączko, Roman Olejniczak, Łukasz Poniatowski","doi":"10.15225/pnn.2020.9.1.6","DOIUrl":"https://doi.org/10.15225/pnn.2020.9.1.6","url":null,"abstract":"Patients who do not communicate verbally or speak in an understandable way are a serious problem in providing appropriate care to patients due to a lack of understanding of their needs. Therefore, it is important that nursing staff have the knowledge and skills of alternative and assistive communication to communicate with patients with speech disorders. The purpose of article is to present the current state of knowledge of the alternative and augmentative communication with special consideration the signs used in Poland with a practicular emphasis laid to the revelant description of the eye tracking device. The literature has been reviewed, including also in this relation topics: alternative and augmentative communication, examples of signs used in alternative communication in Poland and communication and eye tracking. Not everyone has the ability to communicate verbally with the environment. In relation to this problem the solution is the alternative and augmentative communication which uses signs and devices to enable the patient to communicate with other people. (JNNN 2020;9(1):39–45) Key Words: alternative communication, augmentative communication, AAC system, speech disorders, eye track, C-Eye","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"17 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73616795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pituitary tumors are the most common tumors of benign brain tumors, accounting for about one-fifth of all intra cranial tumors. Pituitary tumors include; nonfunctional adenomas and prolactinomas are followed by tumors that secrete growth hormone or acromegaly. Physical changes and systemic complications caused by acromegaly have negative effects on the bio-physiological, psychological and social dimensions of individuals. Diagnosis, treatment, care and follow-up of the disease; It requires a approach to multidisciplinary from endocrine to neurosurgery. The nurse should know the signs and symptoms of the disease, treatment, side effects that may be caused by the treatment, complications and the care interventions to solve the problems that arise and should plan the individualized care to improve the psychological health and quality of life by increasing the individual’s biophysiological functions. The use of the nursing process for the scientific and systematic realization of the care, as well as the use of the nursing process to get her with a model/theory, guide the nurse in the provision of individualized care. In this context, individualized care of the patient who is planned to be operated due to acromegaly, a rare disease, is discussed by integrating with the Model of Nursing. (JNNN 2019;8(4):162–169) Key Words: acromegaly, nursing care, nursing diagnosis
{"title":"Nursing Care of Patient with Acromegaly Disease — Case Report","authors":"S. Melikoglu, Yeliz Çulha, H. Kaya, N. Tanrıöver","doi":"10.15225/pnn.2019.8.4.4","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.4.4","url":null,"abstract":"Pituitary tumors are the most common tumors of benign brain tumors, accounting for about one-fifth of all intra cranial tumors. Pituitary tumors include; nonfunctional adenomas and prolactinomas are followed by tumors that secrete growth hormone or acromegaly. Physical changes and systemic complications caused by acromegaly have negative effects on the bio-physiological, psychological and social dimensions of individuals. Diagnosis, treatment, care and follow-up of the disease; It requires a approach to multidisciplinary from endocrine to neurosurgery. The nurse should know the signs and symptoms of the disease, treatment, side effects that may be caused by the treatment, complications and the care interventions to solve the problems that arise and should plan the individualized care to improve the psychological health and quality of life by increasing the individual’s biophysiological functions. The use of the nursing process for the scientific and systematic realization of the care, as well as the use of the nursing process to get her with a model/theory, guide the nurse in the provision of individualized care. In this context, individualized care of the patient who is planned to be operated due to acromegaly, a rare disease, is discussed by integrating with the Model of Nursing. (JNNN 2019;8(4):162–169) Key Words: acromegaly, nursing care, nursing diagnosis","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"38 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90183432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Introduction. Satisfaction is a positive feeling, perceived subjectively. Assessment of life satisfaction is undertaken by comparing your own situation with the standards you set, your goals, objectives. Therefore, the measurement of satisfaction is based on individual criteria specific to each person. Aim. The study aims to determine satisfaction with life among nurses working in neurological wards. Material and Methods. The study was conducted in a group of 130 nurses working in neurological wards of hospitals in the Lublin Province. The vast majority of the study group constituted women (93.80%). Most respondents were aged between 36–50 years old (43.08%). The research used a standardized research tool: The Satisfaction with Life Scale (SWLS). Results. The examined group of neurological nurses assessed their satisfaction with life at an average level (20.66 ± 5.72 points). After converting points into sten values, the average was 5.56 ± 2.03 sten. Significant statistical differences in the assessment of life satisfaction were found in the material situation. The higher assessment was provided by nurses who were satisfied with their financial situation (21.70 points). Conclusions. The assessment of satisfaction with life among neurological nurses was at an average level. Selfassessment of the financial situation significantly differentiated the assessment of life satisfaction in the group of surveyed nurses. (JNNN 2019;8(4):157–161) Key Words: satisfaction with life, nurses, neurological wards
{"title":"Selected Aspects of Life Satisfaction Assessment Among Neurological Nurses","authors":"Agata Swatowska, Wiesław Fidecki, M. Wysokiński","doi":"10.15225/pnn.2019.8.4.3","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.4.3","url":null,"abstract":"Introduction. Satisfaction is a positive feeling, perceived subjectively. Assessment of life satisfaction is undertaken by comparing your own situation with the standards you set, your goals, objectives. Therefore, the measurement of satisfaction is based on individual criteria specific to each person. Aim. The study aims to determine satisfaction with life among nurses working in neurological wards. Material and Methods. The study was conducted in a group of 130 nurses working in neurological wards of hospitals in the Lublin Province. The vast majority of the study group constituted women (93.80%). Most respondents were aged between 36–50 years old (43.08%). The research used a standardized research tool: The Satisfaction with Life Scale (SWLS). Results. The examined group of neurological nurses assessed their satisfaction with life at an average level (20.66 ± 5.72 points). After converting points into sten values, the average was 5.56 ± 2.03 sten. Significant statistical differences in the assessment of life satisfaction were found in the material situation. The higher assessment was provided by nurses who were satisfied with their financial situation (21.70 points). Conclusions. The assessment of satisfaction with life among neurological nurses was at an average level. Selfassessment of the financial situation significantly differentiated the assessment of life satisfaction in the group of surveyed nurses. (JNNN 2019;8(4):157–161) Key Words: satisfaction with life, nurses, neurological wards","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"28 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91419531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Introduction. Multiple sclerosis (MS) is a chronic progressive demyelinating disease of the central nervous system which leads to permanent disability. Social support is a resource that is particularly important in the situation of chronic illness. Aim. The aim of the study was to determine the relationship between clinical and sociodemographic variables and the level of social support in people with multiple sclerosis. Material and Methods. 137 people diagnosed with MS participated in the study. Extended Disability Status Scale (EDSS), Guy’s Neurological Disability Scale (GNDS) and Berlin Social Support Scales were used in the study. Results. Perceived social support is not related to clinical variables such as disability or disease symptoms. However, the relationship between the need for support and disability and some symptoms (i.a. cognitive impairment, mood disorders and intestinal problems) was demonstrated. Women, people married, having children and in better financial condition felt greater social support. Women also need more support and more often seek it. Conclusions. Perceived social support in people with multiple sclerosis is less associated with clinical variables, but more to variables such as gender, marital status or having children. Of the studied types of support, the need for support was most related to the features of the disease. People living with a disability or more severe symptoms need help in daily functioning as well as emotional support. This is also associated with the need for professional support from doctors, psychologists and nurses. (JNNN 2019;8(4):148–156) Key Words: Multiple sclerosis, social support, disability
{"title":"Clinical and Sociodemographic Variables and the Level of Social Support in People with Multiple Sclerosis","authors":"Joanna Dymecka","doi":"10.15225/pnn.2019.8.4.2","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.4.2","url":null,"abstract":"Introduction. Multiple sclerosis (MS) is a chronic progressive demyelinating disease of the central nervous system which leads to permanent disability. Social support is a resource that is particularly important in the situation of chronic illness. Aim. The aim of the study was to determine the relationship between clinical and sociodemographic variables and the level of social support in people with multiple sclerosis. Material and Methods. 137 people diagnosed with MS participated in the study. Extended Disability Status Scale (EDSS), Guy’s Neurological Disability Scale (GNDS) and Berlin Social Support Scales were used in the study. Results. Perceived social support is not related to clinical variables such as disability or disease symptoms. However, the relationship between the need for support and disability and some symptoms (i.a. cognitive impairment, mood disorders and intestinal problems) was demonstrated. Women, people married, having children and in better financial condition felt greater social support. Women also need more support and more often seek it. Conclusions. Perceived social support in people with multiple sclerosis is less associated with clinical variables, but more to variables such as gender, marital status or having children. Of the studied types of support, the need for support was most related to the features of the disease. People living with a disability or more severe symptoms need help in daily functioning as well as emotional support. This is also associated with the need for professional support from doctors, psychologists and nurses. (JNNN 2019;8(4):148–156) Key Words: Multiple sclerosis, social support, disability","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"15 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90496098","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Introduction. Myasthenia gravis is an autoimmune disease of the postsynaptic part of the neuromuscular junction. A characteristic symptom of myasthenia gravis is the so-called fatigability or muscle fatigue, which also affects the respiratory muscles. Plasmapheresis is one of the treatments that improve breathing and reduce the symptoms that cause muscle weakness. Aim. The aim of the study was to assess the functioning of patients with myasthenia gravis before and after plasmapheresis. Material and Methods. The research was conducted in 2019 in the Anaesthesiology and Intensive Care department on a group of 30 patients with clinically confirmed myasthenia gravis. The author’s questionnaire was used to assess the functioning of patients. The research was approved by the Bioethics Committee. Results. The patient’s condition improved after the procedure in each of the analysed areas of functioning (physical activity, movement, breathing, swallowing, mood, social functioning). The plasmapheresis most preferably affected the area of physical activity of the subjects. The conducted statistical analysis proved a significant difference (p = 0.000) for all results, in every aspect (before and after the procedure). At the same time, the highest average increase was observed in relation to physical activity — an increase of 3.17 points. Conclusions. Plasmapheresis had a positive effect on patients’ health in both physical and mental aspects. (JNNN 2019;8(4):143–147) Key Words: myasthenia gravis, plasmapheresis, functional assessment
{"title":"Functioning of Patients with Myasthenia Gravis after Plasmapheresis","authors":"M. Biercewicz","doi":"10.15225/pnn.2019.8.4.1","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.4.1","url":null,"abstract":"Introduction. Myasthenia gravis is an autoimmune disease of the postsynaptic part of the neuromuscular junction. A characteristic symptom of myasthenia gravis is the so-called fatigability or muscle fatigue, which also affects the respiratory muscles. Plasmapheresis is one of the treatments that improve breathing and reduce the symptoms that cause muscle weakness. Aim. The aim of the study was to assess the functioning of patients with myasthenia gravis before and after plasmapheresis. Material and Methods. The research was conducted in 2019 in the Anaesthesiology and Intensive Care department on a group of 30 patients with clinically confirmed myasthenia gravis. The author’s questionnaire was used to assess the functioning of patients. The research was approved by the Bioethics Committee. Results. The patient’s condition improved after the procedure in each of the analysed areas of functioning (physical activity, movement, breathing, swallowing, mood, social functioning). The plasmapheresis most preferably affected the area of physical activity of the subjects. The conducted statistical analysis proved a significant difference (p = 0.000) for all results, in every aspect (before and after the procedure). At the same time, the highest average increase was observed in relation to physical activity — an increase of 3.17 points. Conclusions. Plasmapheresis had a positive effect on patients’ health in both physical and mental aspects. (JNNN 2019;8(4):143–147) Key Words: myasthenia gravis, plasmapheresis, functional assessment","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"14 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91289435","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Introduction. Pompe disease, a severe metabolic myopathy, is caused by mutations in the gene coding for acid alphaglucosidase (GAA), what lead to intralysosomal accumulation of glycogen in all tissues, most notably in skeletal muscles. Pompe disease was the first documented lysosomal storage disease, nowadays we know around 60 similar disorders. Aim. Presentation of the clinical picture of a man with Pompe’s disease. Case Report. A man at the age of 40, diagnosis of the Pompe’s disease was made only at the age of 31. The first symptoms, indicating the patient’s development of the disease, were already present in the early school age. At first, the clinical picture presented by the patient led to the diagnosis of muscular dystrophy. Discussion. Pompe disease presents as a continuum of clinical phenotypes that differ by age of onset, severity, and organ involvement. Pompe disease affects people of all ages with varying degrees of severity. Two main broad types are recognized based on the onset of symptoms and the presence or absence of cardiomyopathy. Infantile onset Pompe disease (IOPD) as one, and the most severe for mod the disease. Other and less destructive is late-onset Pompe disease (LOPD) manifests any time after 12 months of age. The disease can be successfully treated by enzyme replacement therapy with alglucosidase alfa that was approved for human use in 2006. Conclusions. In big importance is nurses role as educators and support for the patients during their hospitalizations for medicine infusions twice a month. It time when the knowledge and significance of proper life style can be discussed and implemented to empower the patients. (JNNN 2019;8(4):170–176) Key Words: Pompe’s disease, treatment, diagnosis, care
{"title":"Rare Diseases in Neurology — Caring for a Patient with Pompe’s Disease","authors":"A. Roszmann, Mikołaj Hamerski, M. Skrzypek-Czerko","doi":"10.15225/pnn.2019.8.4.5","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.4.5","url":null,"abstract":"Introduction. Pompe disease, a severe metabolic myopathy, is caused by mutations in the gene coding for acid alphaglucosidase (GAA), what lead to intralysosomal accumulation of glycogen in all tissues, most notably in skeletal muscles. Pompe disease was the first documented lysosomal storage disease, nowadays we know around 60 similar disorders. Aim. Presentation of the clinical picture of a man with Pompe’s disease. Case Report. A man at the age of 40, diagnosis of the Pompe’s disease was made only at the age of 31. The first symptoms, indicating the patient’s development of the disease, were already present in the early school age. At first, the clinical picture presented by the patient led to the diagnosis of muscular dystrophy. Discussion. Pompe disease presents as a continuum of clinical phenotypes that differ by age of onset, severity, and organ involvement. Pompe disease affects people of all ages with varying degrees of severity. Two main broad types are recognized based on the onset of symptoms and the presence or absence of cardiomyopathy. Infantile onset Pompe disease (IOPD) as one, and the most severe for mod the disease. Other and less destructive is late-onset Pompe disease (LOPD) manifests any time after 12 months of age. The disease can be successfully treated by enzyme replacement therapy with alglucosidase alfa that was approved for human use in 2006. Conclusions. In big importance is nurses role as educators and support for the patients during their hospitalizations for medicine infusions twice a month. It time when the knowledge and significance of proper life style can be discussed and implemented to empower the patients. (JNNN 2019;8(4):170–176) Key Words: Pompe’s disease, treatment, diagnosis, care","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"7 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87534608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Beata Gąsowska, M. Chorąży, K. Snarska, C. Dolińska
Introduction. MS is characterized by a large variety of symptoms, which negatively affects the functioning and quality of life of patients. Aim. The purpose of the work is determination of the impact of Multiple Sclerosis on the daily functioning of patients and assessment of the sense of responsibility for one’s own health among patients with Multiple Sclerosis. Material and Methods. The study included 97 patients suffering from Multiple Sclerosis, treated at the Department of Neurology, University Hospital in Białystok. Study group consisted of 73 women and 24 men. The research has been conducted using the diagnostic survey method with following research tools: Activities of Daily Living scale; Instrumental Activities of Daily Living scale; Multidimensional Health Locus of Control and a self-constructed questionnaire. Results. The average age of the respondents was 52 (±10.36) and was comparable for women and men — 52.33 (±10.97) years and 51.79 (±8.42) years, respectively. The duration of the disease was on average 8 years (±3.87). Among the respondents, from the beginning of the disease, on average 5.02 exacerbations of MS (±3.08) have been observed. The most significant problem for MS patients was sphincter control (45.36%), independent bath (34.02%) and use of the toilet (31.96%). According to Lawton’s scale, patients with MS had most difficulties going out for shopping and getting outside walking distance. With the duration of the disease, the internal location of health control decreased significantly. Conclusions. As a result of increasing restrictions on the independent functioning of patients with Multiple Sclerosis, the sense of control over their own health is located in external factors such as chance and the influence of others. (JNNN 2019;8(3):102–111) Key Words: Multiple Sclerosis, health, functional status
{"title":"The Sense of Responsibility for own Health and the Influence of the Disease on Daily Functioning Among Patients with Multiple Sclerosis","authors":"Beata Gąsowska, M. Chorąży, K. Snarska, C. Dolińska","doi":"10.15225/pnn.2019.8.3.2","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.3.2","url":null,"abstract":"Introduction. MS is characterized by a large variety of symptoms, which negatively affects the functioning and quality of life of patients. Aim. The purpose of the work is determination of the impact of Multiple Sclerosis on the daily functioning of patients and assessment of the sense of responsibility for one’s own health among patients with Multiple Sclerosis. Material and Methods. The study included 97 patients suffering from Multiple Sclerosis, treated at the Department of Neurology, University Hospital in Białystok. Study group consisted of 73 women and 24 men. The research has been conducted using the diagnostic survey method with following research tools: Activities of Daily Living scale; Instrumental Activities of Daily Living scale; Multidimensional Health Locus of Control and a self-constructed questionnaire. Results. The average age of the respondents was 52 (±10.36) and was comparable for women and men — 52.33 (±10.97) years and 51.79 (±8.42) years, respectively. The duration of the disease was on average 8 years (±3.87). Among the respondents, from the beginning of the disease, on average 5.02 exacerbations of MS (±3.08) have been observed. The most significant problem for MS patients was sphincter control (45.36%), independent bath (34.02%) and use of the toilet (31.96%). According to Lawton’s scale, patients with MS had most difficulties going out for shopping and getting outside walking distance. With the duration of the disease, the internal location of health control decreased significantly. Conclusions. As a result of increasing restrictions on the independent functioning of patients with Multiple Sclerosis, the sense of control over their own health is located in external factors such as chance and the influence of others. (JNNN 2019;8(3):102–111) Key Words: Multiple Sclerosis, health, functional status","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"28 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82388700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
I. Wróblewska, Małgorzata Dziechciaż, Z. Wróblewska
Introduction. Stroke is currently among the most dangerous civilization diseases and the most common cause of death and secondary disability in people over 65 years of age. Disease-related disability significantly affects all spheres of human functioning, leading to dependence on third parties’ assistance. One of the most important activities to be undertaken in relation to a disabled patient is diagnosing the level of disability and implementing active efforts for the patient to regain optimal performance and/or accept the disability. Limitation in daily activities is a considerable stress factor that has a negative effect on the seniors’ recovery and becomes a cause of institutionalization. Aim. To investigate the impact of ischemic stroke on the level of independence in elderly people. Material and Methods. Medical records of 186 patients of a neurological ward were analysed. The majority of participants were women (55.91%), seniors aged 76–85 (36.02%), living in a city (55.38%) and being widowed (41.93%). The standardized Norton and Tinetti scales were applied in the analyses. Results. The most important factors influencing the incidence and course of stroke were the patient’s age and the presence of concomitant diseases: diabetes (81.72%) and arterial hypertension (73.65%). Among the stroke complications, the majority of patients presented aphasia (76.88%), hemiparesis (67.20%), dysphagia (63.44%) and urinary bladder dysfunction (60.21%). The study subjects were predominantly (86.56%) classified in the third category of care; 38.17% were referred for further rehabilitation in a post-hospital rehabilitation unit, 19.89% were referred to a medical care and treatment institution, and 19.36% died. The majority of the respondents achieved less than 14 points (77.96%) in the Norton scale and less than 19 points (34.41%) in the Tinetti scale. Conclusions. Ischemic stroke reduces or completely terminates the patient’s ability to function independently. The patient’s age is of greatest significance for the level of his independence and functioning immediately after ischemic stroke. (JNNN 2019;8(3):112–118) Key Words: ischemic stroke, disability, elderly people
{"title":"The Level of Independence Among Seniors with a History of Ischemic Stroke","authors":"I. Wróblewska, Małgorzata Dziechciaż, Z. Wróblewska","doi":"10.15225/pnn.2019.8.3.3","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.3.3","url":null,"abstract":"Introduction. Stroke is currently among the most dangerous civilization diseases and the most common cause of death and secondary disability in people over 65 years of age. Disease-related disability significantly affects all spheres of human functioning, leading to dependence on third parties’ assistance. One of the most important activities to be undertaken in relation to a disabled patient is diagnosing the level of disability and implementing active efforts for the patient to regain optimal performance and/or accept the disability. Limitation in daily activities is a considerable stress factor that has a negative effect on the seniors’ recovery and becomes a cause of institutionalization. Aim. To investigate the impact of ischemic stroke on the level of independence in elderly people. Material and Methods. Medical records of 186 patients of a neurological ward were analysed. The majority of participants were women (55.91%), seniors aged 76–85 (36.02%), living in a city (55.38%) and being widowed (41.93%). The standardized Norton and Tinetti scales were applied in the analyses. Results. The most important factors influencing the incidence and course of stroke were the patient’s age and the presence of concomitant diseases: diabetes (81.72%) and arterial hypertension (73.65%). Among the stroke complications, the majority of patients presented aphasia (76.88%), hemiparesis (67.20%), dysphagia (63.44%) and urinary bladder dysfunction (60.21%). The study subjects were predominantly (86.56%) classified in the third category of care; 38.17% were referred for further rehabilitation in a post-hospital rehabilitation unit, 19.89% were referred to a medical care and treatment institution, and 19.36% died. The majority of the respondents achieved less than 14 points (77.96%) in the Norton scale and less than 19 points (34.41%) in the Tinetti scale. Conclusions. Ischemic stroke reduces or completely terminates the patient’s ability to function independently. The patient’s age is of greatest significance for the level of his independence and functioning immediately after ischemic stroke. (JNNN 2019;8(3):112–118) Key Words: ischemic stroke, disability, elderly people","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"13 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81848535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Introduction. Constant updating and expanding the scope of professional knowledge is the responsibility of every nurse/midwife and the basic condition for proper practice. The professional development of nurses in the field of neurology and neurosurgery includes professional activity as part of self-education or organized forms and types of postgraduate education through undergoing specialist training, acquiring professional skills in the narrower fields of nursing or providing specific health services and improvement in other forms of education. The conducted research indicates that the career path for neuro-nurses is unregulated and varies in different countries. Aim. The aim of the study was to analyse the professional development of neurosurgical nurses. Material and Methods. The study was conducted on a group of 93 nurses employed in 6 neurosurgical centres in the Kuyavian-Pomeranian voivodeship. Professional improvement was assessed using a diagnostic survey with a survey questionnaire. The issues related to pre- and post-graduate education and professional experience were analysed. Results. The most popular form of postgraduate education is the development course and congress/conference/ symposium. Most people said that their training was financed by the employer or own/private funds. No specific training for neurosurgical nurses was demonstrated. Among the difficulties/problems related to professional development, the lack of time for training and the lack of interesting training topics were indicated most often. Most respondents have no opinion on whether professional training should be based on the award of educational/ credit points. Conclusions. The conducted research indicates a large diversity in the area of pre- and post-graduate education. There was also a lack of a consistent career path for neuro-nurses. (JNNN 2019;8(3):119–123) Key Words: neuro-nursing, pre- and post-graduate education, professional experience
{"title":"Professional Development of Neurosurgical Nurses. Preliminary Reports","authors":"Robert Ślusarz","doi":"10.15225/pnn.2019.8.3.4","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.3.4","url":null,"abstract":"Introduction. Constant updating and expanding the scope of professional knowledge is the responsibility of every nurse/midwife and the basic condition for proper practice. The professional development of nurses in the field of neurology and neurosurgery includes professional activity as part of self-education or organized forms and types of postgraduate education through undergoing specialist training, acquiring professional skills in the narrower fields of nursing or providing specific health services and improvement in other forms of education. The conducted research indicates that the career path for neuro-nurses is unregulated and varies in different countries. Aim. The aim of the study was to analyse the professional development of neurosurgical nurses. Material and Methods. The study was conducted on a group of 93 nurses employed in 6 neurosurgical centres in the Kuyavian-Pomeranian voivodeship. Professional improvement was assessed using a diagnostic survey with a survey questionnaire. The issues related to pre- and post-graduate education and professional experience were analysed. Results. The most popular form of postgraduate education is the development course and congress/conference/ symposium. Most people said that their training was financed by the employer or own/private funds. No specific training for neurosurgical nurses was demonstrated. Among the difficulties/problems related to professional development, the lack of time for training and the lack of interesting training topics were indicated most often. Most respondents have no opinion on whether professional training should be based on the award of educational/ credit points. Conclusions. The conducted research indicates a large diversity in the area of pre- and post-graduate education. There was also a lack of a consistent career path for neuro-nurses. (JNNN 2019;8(3):119–123) Key Words: neuro-nursing, pre- and post-graduate education, professional experience","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"3 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89869358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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