Introduction. Multiple sclerosis (MS) is an incurable demyelinating disease of the central nervous system (c.n.s.). The chronic nature of this disease causes deterioration of the physical, mental, emotional and social condition of patients, which significantly reduces their quality of life. Aim. The aim of the study was to determine the quality of life of patients with multiple sclerosis. Material and Methods. The study involved 100 patients with multiple sclerosis, associated in support groups operating in the Silesian voivodeship. Among the respondents were 77 women and 23 men. The FAMS questionnaire — version 4 (Functional Assessment of Multiple Sclerosis Quality of Life Instrument) was chosen to measure the quality of life of patients with multiple sclerosis. The obtained research material was subjected to a statistical analysis, using the statistical package STATISTICA v12 for calculations. In order to calculate the variables, the following measures were used: arithmetic mean, standard deviation, coefficient of variation, asymmetry coefficient, kurtosis coefficient, Person linear correlation coefficient, Spearman rank correlation coefficient. Results. The average results of all subscales of the FAMS questionnaire-version 4 in the examined group reached the value of 111.1 points; that is, a satisfactory level (65% of all respondents), in the absence of bad assessments, and 35% of good grades. The result is at the second level of quality of life, in the numerical range of 58–117 points. The lowest scores were recorded in the “Mobility” subscale (14.39 points), and the highest in “Other ailments” (36.77 points). Strong correlations were found between the FAMS score and individual subscales. As the subscale score increased, the FAMS score increased, and the higher the score, the better the quality of life of MS patients. The higher the respondent’s age, the lower the FAMS results, while the one-way treatment process — either pharmacology or rehabilitation — does not improve the quality of life, only integrated actions increase the quality of life of patients with MS. In the case of a form of the disease — a primary progressive and primary progressive form with exacerbations affect the quality of life of patients with MS. Conclusions. Most MS patients assessed their quality of life as satisfactory, in the absence of bad and with one-third of good scores. The existence of links between the FAMS results and all subscales indicates that the higher the subscales rated, the higher the FAMS result, i.e. the better quality of life of MS patients. Gender does not determine the quality of life of the respondents, while age, the form of the disease and the type of treatment affect the quality of life. (JNNN 2019;8(3):95–101) Key Words: multiple sclerosis, quality of life, demyelinating disease
{"title":"Quality of Life in Patients with Multiple Sclerosis","authors":"G. Franek, Marzena Bieniak, A. Cieślik","doi":"10.15225/PNN.2019.8.3.1","DOIUrl":"https://doi.org/10.15225/PNN.2019.8.3.1","url":null,"abstract":"Introduction. Multiple sclerosis (MS) is an incurable demyelinating disease of the central nervous system (c.n.s.). The chronic nature of this disease causes deterioration of the physical, mental, emotional and social condition of patients, which significantly reduces their quality of life. Aim. The aim of the study was to determine the quality of life of patients with multiple sclerosis. Material and Methods. The study involved 100 patients with multiple sclerosis, associated in support groups operating in the Silesian voivodeship. Among the respondents were 77 women and 23 men. The FAMS questionnaire — version 4 (Functional Assessment of Multiple Sclerosis Quality of Life Instrument) was chosen to measure the quality of life of patients with multiple sclerosis. The obtained research material was subjected to a statistical analysis, using the statistical package STATISTICA v12 for calculations. In order to calculate the variables, the following measures were used: arithmetic mean, standard deviation, coefficient of variation, asymmetry coefficient, kurtosis coefficient, Person linear correlation coefficient, Spearman rank correlation coefficient. Results. The average results of all subscales of the FAMS questionnaire-version 4 in the examined group reached the value of 111.1 points; that is, a satisfactory level (65% of all respondents), in the absence of bad assessments, and 35% of good grades. The result is at the second level of quality of life, in the numerical range of 58–117 points. The lowest scores were recorded in the “Mobility” subscale (14.39 points), and the highest in “Other ailments” (36.77 points). Strong correlations were found between the FAMS score and individual subscales. As the subscale score increased, the FAMS score increased, and the higher the score, the better the quality of life of MS patients. The higher the respondent’s age, the lower the FAMS results, while the one-way treatment process — either pharmacology or rehabilitation — does not improve the quality of life, only integrated actions increase the quality of life of patients with MS. In the case of a form of the disease — a primary progressive and primary progressive form with exacerbations affect the quality of life of patients with MS. Conclusions. Most MS patients assessed their quality of life as satisfactory, in the absence of bad and with one-third of good scores. The existence of links between the FAMS results and all subscales indicates that the higher the subscales rated, the higher the FAMS result, i.e. the better quality of life of MS patients. Gender does not determine the quality of life of the respondents, while age, the form of the disease and the type of treatment affect the quality of life. (JNNN 2019;8(3):95–101) Key Words: multiple sclerosis, quality of life, demyelinating disease","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"4 16","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91418321","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
B. Grabowska-Fudala, Anna Smelkowska, Krytyna Górna, K. Jaracz
{"title":"Health-related Quality of Life in 5-year Stroke Survivors Assessed with EQ-5D-3L","authors":"B. Grabowska-Fudala, Anna Smelkowska, Krytyna Górna, K. Jaracz","doi":"10.15225/pnn.2019.8.2.3","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.2.3","url":null,"abstract":"","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"18 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75798586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. Šupínová, Elena Janiczeková, Zuzana Pojezdálová
{"title":"The Level of Public’s Practical Skills in Provision of First Aid to Patients with Major Epileptic Seizure","authors":"M. Šupínová, Elena Janiczeková, Zuzana Pojezdálová","doi":"10.15225/pnn.2019.8.2.2","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.2.2","url":null,"abstract":"","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81602775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In accordance with the WHO (World Health Organization) definition applicable since 1980, stroke (BS) is a disease syndrome characterized by a sudden occurrence of focal or generalized cerebral dysfunctions, which last longer than 24 hours, unless they are fatal. Thrombolytic therapy is currently the recommended and most effective method of treatment of recent ischemic stroke. The success of treating stroke equally depends on the appropriate organization of the entire team caring for the patient. In order to efficiently conduct thrombolytic treatment in a patient with acute ischemic stroke, medical and nursing staff working in the Department of Stroke Treatment should have the following skills: high level of professional responsibility, high professional competence, have the ability to cooperate in a team and establish interpersonal contacts, including those with the patient and their family. Team members should make difficult decisions jointly, analyze and modify their activities so that treatment could be implemented as soon as possible while maintaining the utmost discretion and clinical alertness. This article was prepared in order to summarize and organize available knowledge on the cooperation between the doctor and nursing staff in the diagnosis and thrombolytic therapy of patients in the acute stroke period. (JNNN
{"title":"Cooperation between the Doctor and Nursing Staff in the Proces of Diagnosis and Thrombolytic Treatment of Patients in Acute Stroke Period","authors":"A. Żdanowicz, M. Wiszniewska, M. Domagalski","doi":"10.15225/pnn.2019.8.1.6","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.1.6","url":null,"abstract":"In accordance with the WHO (World Health Organization) definition applicable since 1980, stroke (BS) is a disease syndrome characterized by a sudden occurrence of focal or generalized cerebral dysfunctions, which last longer than 24 hours, unless they are fatal. Thrombolytic therapy is currently the recommended and most effective method of treatment of recent ischemic stroke. The success of treating stroke equally depends on the appropriate organization of the entire team caring for the patient. In order to efficiently conduct thrombolytic treatment in a patient with acute ischemic stroke, medical and nursing staff working in the Department of Stroke Treatment should have the following skills: high level of professional responsibility, high professional competence, have the ability to cooperate in a team and establish interpersonal contacts, including those with the patient and their family. Team members should make difficult decisions jointly, analyze and modify their activities so that treatment could be implemented as soon as possible while maintaining the utmost discretion and clinical alertness. This article was prepared in order to summarize and organize available knowledge on the cooperation between the doctor and nursing staff in the diagnosis and thrombolytic therapy of patients in the acute stroke period. (JNNN","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86931694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Królikowska, A. Gołębiewska, R. Jabłońska, B. Haor, K. Filipska, R. Ślusarz
Introduction. Back pain is a medico-socio-economic problem that affects about 90% of the population. People associated with medical professional are particularly exposed to frequent perceived back pain, which translates into their daily functioning. Aim. The aim of the study is to assess spinal pain in a group of professionally active nurses and their impact on everyday functioning. Material and Methods. The study included a group of 100 nurses from the Provincial Children’s Hospital in Bydgoszcz, who are professionally active. The diagnostic survey method was used, while the tools were: author’s questionnaire, VAS scale and Revised Oswestry Low Back Pain Disability Scale Questionnaire (Polish version). Data has been prepared statistically. The level of p ≤ 0.05 was assumed to be statistically significant. Results. In the group of nurses who have work experience within 11–20 years, the average pain perceived was at the level of 3.21 points, while among women with seniority over 21 years, the average pain perceived was about 4.5 points. Pain ailments were also experienced by nurses working in the profession less than 10 years — the average of 1.62 points. The seniority of the studied women remained statistically significant, the average correlation with the pain results (p = 0.000). Conclusions. The problem of pain in nurses is a frequent phenomenon. Seniority in the profession is related to the occurrence of pain in nurses, i.e. the higher the seniority, the greater the perception of pain, which translates into their functioning. The place and system of nurses’ work are not factors significantly affecting the occurrence of back pain. (JNNN 2019;8(1):16–22)
{"title":"Disability Symptoms Among Professionally Active Nurses Caused by Back Pain","authors":"A. Królikowska, A. Gołębiewska, R. Jabłońska, B. Haor, K. Filipska, R. Ślusarz","doi":"10.15225/pnn.2019.8.1.3","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.1.3","url":null,"abstract":"Introduction. Back pain is a medico-socio-economic problem that affects about 90% of the population. People associated with medical professional are particularly exposed to frequent perceived back pain, which translates into their daily functioning. Aim. The aim of the study is to assess spinal pain in a group of professionally active nurses and their impact on everyday functioning. Material and Methods. The study included a group of 100 nurses from the Provincial Children’s Hospital in Bydgoszcz, who are professionally active. The diagnostic survey method was used, while the tools were: author’s questionnaire, VAS scale and Revised Oswestry Low Back Pain Disability Scale Questionnaire (Polish version). Data has been prepared statistically. The level of p ≤ 0.05 was assumed to be statistically significant. Results. In the group of nurses who have work experience within 11–20 years, the average pain perceived was at the level of 3.21 points, while among women with seniority over 21 years, the average pain perceived was about 4.5 points. Pain ailments were also experienced by nurses working in the profession less than 10 years — the average of 1.62 points. The seniority of the studied women remained statistically significant, the average correlation with the pain results (p = 0.000). Conclusions. The problem of pain in nurses is a frequent phenomenon. Seniority in the profession is related to the occurrence of pain in nurses, i.e. the higher the seniority, the greater the perception of pain, which translates into their functioning. The place and system of nurses’ work are not factors significantly affecting the occurrence of back pain. (JNNN 2019;8(1):16–22)","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"64 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88761694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
R. Jabłońska, Anna Wronkowska, R. Ślusarz, Karolina Filipska, G. Meder, Paweł Sokal
Introduction. Stroke is treated as a direct threat to life. Mechanical thrombectomy used as an independent treatment or in combination with systemic thrombolysis is currently the standard care in the treatment of ischemic stroke. Aim. Evaluation of the functional status of patients after ischemic stroke treated with thrombolysis or thrombectomy. Material and Methods. The study involved 50 patients hospitalized due to ischemic stroke. Standardized research tools were used: the Rankin scale, the Barthel scale and the Functional Index “Repty” (WFR). The study was conducted twice in one patient: on the first and ninth day after the treatment. The collected material was developed statistically. Results. Most of the respondents were men — 62%. Thrombolytic treatment was used in all subjects, and thrombectomy in 26% people. Analyses showed that there were differences in the Barthel scale level Z = 4.87; p < 0.001, Rankin Z = 4.80; p < 0.001 and WFR Z = 4.83; p < 0.001. The age of the respondents was related negatively to the Barthel scale score on the 1st day ρ = -0.51; p < 0.001 and the 9th day ρ = -0.53; p < 0.001 and the result in the WFR scale on the 1st day ρ = -0.54; p < 0.001 and the 9th day ρ = -0.52; p < 0.001. Conclusions. The performance of the subjects on the 1st day of treatment was worse than on the 9th day. People who were only treated with thrombolysis had better results in fitness tests and had a lower level of disability than people treated with thrombolysis and thrombectomy. (JNNN 2019;8(2):69–77)
{"title":"Endovascular and Thrombolytic Therapy and the Functional Status of Patients after Ischemic Stroke","authors":"R. Jabłońska, Anna Wronkowska, R. Ślusarz, Karolina Filipska, G. Meder, Paweł Sokal","doi":"10.15225/pnn.2019.8.2.4","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.2.4","url":null,"abstract":"Introduction. Stroke is treated as a direct threat to life. Mechanical thrombectomy used as an independent treatment or in combination with systemic thrombolysis is currently the standard care in the treatment of ischemic stroke. Aim. Evaluation of the functional status of patients after ischemic stroke treated with thrombolysis or thrombectomy. Material and Methods. The study involved 50 patients hospitalized due to ischemic stroke. Standardized research tools were used: the Rankin scale, the Barthel scale and the Functional Index “Repty” (WFR). The study was conducted twice in one patient: on the first and ninth day after the treatment. The collected material was developed statistically. Results. Most of the respondents were men — 62%. Thrombolytic treatment was used in all subjects, and thrombectomy in 26% people. Analyses showed that there were differences in the Barthel scale level Z = 4.87; p < 0.001, Rankin Z = 4.80; p < 0.001 and WFR Z = 4.83; p < 0.001. The age of the respondents was related negatively to the Barthel scale score on the 1st day ρ = -0.51; p < 0.001 and the 9th day ρ = -0.53; p < 0.001 and the result in the WFR scale on the 1st day ρ = -0.54; p < 0.001 and the 9th day ρ = -0.52; p < 0.001. Conclusions. The performance of the subjects on the 1st day of treatment was worse than on the 9th day. People who were only treated with thrombolysis had better results in fitness tests and had a lower level of disability than people treated with thrombolysis and thrombectomy. (JNNN 2019;8(2):69–77)","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"152 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75966024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
K. Filipska, Marcelina Skrzypek-Czero, Klaudia Cwiekala-Lewis, R. Ślusarz
Stroke is the second most common cause of death in the world after ischemic heart disease and is often associated with various long-term physical and neuropsychological consequences. Because stroke is one of the most common causes of disability, interest from researchers arCNSd the world is focused on assessing the functional capacity and quality of life among these patients. Many assessment tools, covering various functional areas, are available to clinicians and researchers working with people who have had a stroke. The presented analysis of research results of various authors indicates that stroke significantly affects physical and mental performance. The change in functional abilities, mood disorders, cognitive impairment and reduced social interactions are often observed in these patients. In stroke patients, the simultaneous use of several different scales for assessing patients’ conditions creates the possibility of correct qualification for rehabilitation, long-term forecasting, estimation of needs for possible care and an objective, more detailed analysis of the obtained results and changes occurring during the treatment process. (JNNN 2019;8(2):86–90)
{"title":"Clinimetric Evaluation of Functional Capacity and Quality of Life of Stroke Patients — Study Review","authors":"K. Filipska, Marcelina Skrzypek-Czero, Klaudia Cwiekala-Lewis, R. Ślusarz","doi":"10.15225/pnn.2019.8.2.6","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.2.6","url":null,"abstract":"Stroke is the second most common cause of death in the world after ischemic heart disease and is often associated with various long-term physical and neuropsychological consequences. Because stroke is one of the most common causes of disability, interest from researchers arCNSd the world is focused on assessing the functional capacity and quality of life among these patients. Many assessment tools, covering various functional areas, are available to clinicians and researchers working with people who have had a stroke. The presented analysis of research results of various authors indicates that stroke significantly affects physical and mental performance. The change in functional abilities, mood disorders, cognitive impairment and reduced social interactions are often observed in these patients. In stroke patients, the simultaneous use of several different scales for assessing patients’ conditions creates the possibility of correct qualification for rehabilitation, long-term forecasting, estimation of needs for possible care and an objective, more detailed analysis of the obtained results and changes occurring during the treatment process. (JNNN 2019;8(2):86–90)","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"203 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78142125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Teresa Kaczan, R. Śmigiel, Magdalena Kazimierska-Zając, R. Dymarek, J. Rosińćzuk
Introduction. Noonan syndrome (NS) is a genetically determined disease, inherited from autosomal dominant. About 50% of patients have a mutation in the PTPN11 gene, and mutations in the other genes are much less frequent, up to 10–15% for SOS1, RAF1, and RIT1, as well as up to 1–2% for others. Aim. To present the clinical picture of a child with NS with a non-frequent mutation in the RAF1 gene and to describe a proposal of good practice based on the multi-specialty child care procedures used from birth to 3 years of age. Case Report. The paper presents a boy with NS and his psychomotor and linguistic development during the 36 months of his life. The infant was born by cesarean section in average general condition and with features of macrosomia. Castillo-Morales rehabilitation techniques were used to improve the coordination of suction, swallowing and breathing. Bobath Neurodevelopmental Treatment was also used on the hospital ward. The NS child’s development was assessed using the Munich Functional Developmental Diagnostics (MFDD). At the age of 36 months, the boy presents psychomotor development appropriate for the age of a healthy child. He remains under multidisciplinary team care and is intensively rehabilitated accordingly to both movement and linguistic functions. Discussion. Management of NS should be comprehensive and multidisciplinary, and continuous monitoring of patients is crucial. Although a number of patients experience learning difficulties and a mild form of mental impairment, the diagnosis of NS does not predispose to mental disorders. Conclusions. NS is a multi-symptomatic disease that manifests itself in the expression of clinical symptoms requiring the interdisciplinary cooperation of many specialists. The fact is that the identified mutation in the RAF1 gene in patients with NS does not mean they are predestined to develop psychomotor disorders. (JNNN 2019;8(2):78–85)
{"title":"Neurodevelopmental Stimulation of a Child with a Noonan Syndrome with a Non-Frequent Mutation in RAF1 Gene — Case Report","authors":"Teresa Kaczan, R. Śmigiel, Magdalena Kazimierska-Zając, R. Dymarek, J. Rosińćzuk","doi":"10.15225/pnn.2019.8.2.5","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.2.5","url":null,"abstract":"Introduction. Noonan syndrome (NS) is a genetically determined disease, inherited from autosomal dominant. About 50% of patients have a mutation in the PTPN11 gene, and mutations in the other genes are much less frequent, up to 10–15% for SOS1, RAF1, and RIT1, as well as up to 1–2% for others. Aim. To present the clinical picture of a child with NS with a non-frequent mutation in the RAF1 gene and to describe a proposal of good practice based on the multi-specialty child care procedures used from birth to 3 years of age. Case Report. The paper presents a boy with NS and his psychomotor and linguistic development during the 36 months of his life. The infant was born by cesarean section in average general condition and with features of macrosomia. Castillo-Morales rehabilitation techniques were used to improve the coordination of suction, swallowing and breathing. Bobath Neurodevelopmental Treatment was also used on the hospital ward. The NS child’s development was assessed using the Munich Functional Developmental Diagnostics (MFDD). At the age of 36 months, the boy presents psychomotor development appropriate for the age of a healthy child. He remains under multidisciplinary team care and is intensively rehabilitated accordingly to both movement and linguistic functions. Discussion. Management of NS should be comprehensive and multidisciplinary, and continuous monitoring of patients is crucial. Although a number of patients experience learning difficulties and a mild form of mental impairment, the diagnosis of NS does not predispose to mental disorders. Conclusions. NS is a multi-symptomatic disease that manifests itself in the expression of clinical symptoms requiring the interdisciplinary cooperation of many specialists. The fact is that the identified mutation in the RAF1 gene in patients with NS does not mean they are predestined to develop psychomotor disorders. (JNNN 2019;8(2):78–85)","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"49 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78491459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zenebe Geneme, A. Perera, Daiwai M. Olson, Sonja E. Stutzman
Introduction. The population of younger people having strokes is growing. Persons who are younger and have a stroke have specific stressors after a stroke that those over 60 may not experience (e.g., ability to earn an income, provide for a family, returning to work, etc.). Aim. In order to address some of these age-specific stressors, new and novel approaches to stress mediation are needed. In order to address this gap in the literature this study piloted a mindfulness meditation with younger in hospital
{"title":"Piloting Test of a Mindfulness Meditation Intervention to Reduce Stress in Younger Stroke Patients","authors":"Zenebe Geneme, A. Perera, Daiwai M. Olson, Sonja E. Stutzman","doi":"10.15225/pnn.2019.8.2.1","DOIUrl":"https://doi.org/10.15225/pnn.2019.8.2.1","url":null,"abstract":"Introduction. The population of younger people having strokes is growing. Persons who are younger and have a stroke have specific stressors after a stroke that those over 60 may not experience (e.g., ability to earn an income, provide for a family, returning to work, etc.). Aim. In order to address some of these age-specific stressors, new and novel approaches to stress mediation are needed. In order to address this gap in the literature this study piloted a mindfulness meditation with younger in hospital","PeriodicalId":22776,"journal":{"name":"The Journal of Neurological and Neurosurgical Nursing","volume":"50 9","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91441540","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katarzyna Rajtar-Bojarczuk, Wiesław Fidecki, M. Wysokiński, Lilla Walas, D. Kulina, Kamil Kuszplak
Introduction . Quality of life and old age are closely related. Aging is perceived as a destructive, progressive, and irreversible process. This process is caused by biological factors related to physical involution as well as psychosocial factors. Elderly people have difficulties related to deteriorating health. Aim . The study aims to determine the quality of life of elderly people with neurological disorders. Material and Methods . The research was conducted in the Lublin Voivodeship, in a group of 111 elderly people diagnosed with neurological diseases. 51.35% of participants were female. The age of the respondents was in the range of 65–95 years. A standardized questionnaire: the WHOQOL-BREF constituted the research tool. Results . In the examined group of patients, the general quality of life was assessed at an average level of 3.11 ± 1.12, and the assessment of health at the level of 2.81 ± 1.00. The respondents rated the highest the environmental domain (57.05 ± 16.23). The social relationship domain was at an average level; 54.00 ± 24.08, while the psychological one was 46.38 ± 13.16. The physical health domain received the lowest scores (44.53 ± 12.42). Conclusions . The self-evaluation of the quality of life completed by elderly people with neurological disorders was at a low level. Marital status differentiated the quality of life in the social domain. The residence of the studied seniors influenced the assessment of their overall quality of life. (JNNN 2019;8(1):11–15)
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