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Reproductive Ethics in Clinical Practice最新文献

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Why Reproductive Justice Matters to Reproductive Ethics 为什么生殖公正对生殖伦理很重要
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0003
M. Gilliam, D. Roberts
This chapter addresses the historical and current attempts by physicians and legislators to regulate the reproduction of Black, Latina, and Indigenous women, with a particular focus on Black women. It connects the contemporary language promoting long-acting reversible contraception for “risky” populations to past policies coercing Black, Latina, and Indigenous women to use contraception and undergo sterilization. At the same time, these efforts to regulate the reproduction of women of color coincide with a rising number of abortion restrictions and lack of access to abortion and safe motherhood, which affect women of color disproportionately. Black women bear a disproportionate burden of the staggering and rising maternal mortality rate in the United States. These topics are often omitted from discussions about reproductive ethics, and social justice is often neglected as a major ethical principle. Approaching the reproductive freedom of women of color from a reproductive justice perspective, therefore, offers an important way to expand our understanding of reproductive ethics.
这一章讲述了医生和立法者对黑人、拉丁裔和土著妇女生育的历史和当前尝试,并特别关注黑人妇女。它将当代宣传针对“危险”人群的长效可逆避孕措施的语言与过去强迫黑人、拉丁裔和土著妇女使用避孕措施和接受绝育手术的政策联系起来。与此同时,这些规范有色人种女性生育的努力与越来越多的堕胎限制以及缺乏堕胎和安全孕产的机会相一致,这对有色人种女性的影响尤为严重。黑人妇女在美国惊人且不断上升的孕产妇死亡率中承担着不成比例的负担。这些话题在关于生殖伦理的讨论中经常被忽略,社会正义作为一项主要的伦理原则也经常被忽视。因此,从生殖公正的角度看待有色人种妇女的生殖自由,为我们拓展生殖伦理学的理解提供了一条重要途径。
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引用次数: 1
Doing Harm 做伤害
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0017
J. Flavin, L. Paltrow
Under the guise of “protecting the unborn,” anti-abortion and related measures such as feticide laws are being used as the basis for arresting pregnant women and new mothers. It is often the case that the initial disclosure of information that led to the involvement of criminal law, child welfare, or other state authorities has been made by healthcare professionals, including doctors, nurses, and hospital social workers. Pregnant patients—like other patients—should expect that their medical health is a private matter and that healthcare provider–patient confidentiality will be respected. Such disclosures have legal, social, and public health consequences and frequently lead to interventions that are punitive and counterproductive, not protective. This chapter describes the ethical obligations of healthcare professionals, including their duty to advocate for the protection of confidential information and to work to change unjust practices, policies, and laws.
在“保护未出生胎儿”的幌子下,反堕胎和堕胎法等相关措施正被用作逮捕孕妇和新妈妈的依据。通常情况下,导致刑法、儿童福利或其他国家当局介入的信息的最初披露是由医疗保健专业人员,包括医生、护士和医院社会工作者做出的。怀孕的病人和其他病人一样,应该意识到他们的医疗健康是一个私人问题,医疗服务提供者和病人之间的保密将得到尊重。这种披露具有法律、社会和公共卫生后果,并经常导致惩罚性和适得其反的干预措施,而不是保护性措施。本章描述了医疗保健专业人员的道德义务,包括他们倡导保护机密信息和努力改变不公正的做法、政策和法律的责任。
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引用次数: 0
Who Are Your Patients, and What Happens When They Disagree? 谁是你的病人,当他们意见不一致时会发生什么?
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0010
H. Ross
Third-party reproduction carries significant legal and ethical challenges. Although well-intentioned mutual desire typically guides parties entering a gestational surrogacy or egg donation arrangement, the potential for conflict cannot be avoided. Because the physician’s role includes treating both their patient (the intended parent/s) and the “third-party patient” (the egg donor or surrogate), the physician should be aware of potential conflicting desires about medical treatment (i.e., an intended parent may desire a triplet pregnancy, while the surrogate may prefer to reduce). Systematic bias should also be considered, as it may result in favoring one patient’s medical needs over the other. The laws in this area are unsettled and in many situations no definitive legal answers are available. Prior to engaging in third-party reproduction each patient should be fully informed of potential medical risks and consult with mental health professionals and independent lawyers to confirm agreement with respect to the arrangement.
第三方复制带来了重大的法律和道德挑战。虽然善意的共同愿望通常引导双方进入代孕或卵子捐赠安排,潜在的冲突是无法避免的。因为医生的角色包括治疗他们的病人(受赠父母)和“第三方病人”(卵子捐赠者或代孕母亲),医生应该意识到对医疗的潜在冲突愿望(即受赠父母可能希望三胞胎怀孕,而代孕母亲可能倾向于减少)。还应考虑到系统偏差,因为它可能导致偏向于一个病人的医疗需求而不是另一个病人。这方面的法律是不确定的,在许多情况下没有明确的法律答案。在进行第三方生殖之前,每位患者都应充分了解潜在的医疗风险,并咨询精神卫生专业人员和独立律师,以确认同意这一安排。
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引用次数: 0
Prenatal Counseling for Maternal–Fetal Surgery 母胎手术产前咨询
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0018
Stephen D. Brown
This chapter analyzes potential biases and competing interests in prenatal counseling when conditions are diagnosed for which intrauterine surgery may be possible. Such counseling often occurs at the multidimensional interface of obstetrics and pediatrics. After considering clinical, social, and historical contexts of such counseling, the chapter presents a case that illustrates how physician demographics, interspecialty differences, divergent clinical experiences, and larger organizational factors may compound practice variation. It considers how biased counseling may influence patients’ decisions and questions whether value-neutral counseling is attainable when such fetal conditions are diagnosed. It concludes that declared commitments to value neutrality cannot insulate pregnant patients from biases and competing interests. In its recommendations, it discusses organizational responses analogous to conflict-of-interest policies. It further suggests that conversations between clinicians and patients that are mutually open about values may enhance rather than undermine patients’ ability to formulate decisions that most closely embody their true preferences.
本章分析了当诊断出可能进行宫内手术的条件时,产前咨询中潜在的偏见和竞争利益。这种咨询经常发生在产科和儿科的多维界面。在考虑了此类咨询的临床、社会和历史背景后,本章提出了一个案例,说明了医生人口统计学、专业间差异、不同的临床经验和更大的组织因素可能会使实践变化复杂化。它考虑了有偏见的咨询如何影响患者的决定,并质疑当诊断出这种胎儿状况时,是否可以获得价值中立的咨询。它的结论是,宣称对价值中立的承诺不能使孕妇免受偏见和竞争利益的影响。在其建议中,它讨论了类似于利益冲突政策的组织反应。它进一步表明,临床医生和患者之间的对话相互开放的价值观可能会提高而不是破坏患者制定决策的能力,最接近体现他们的真实偏好。
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引用次数: 2
Refusing to Force Treatment 拒绝强迫治疗
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0015
Katie Watson
Abortion is illegal after viability in most US states. However, the law permits, and ethics require, clinicians to respect pregnant people’s refusal of medical treatment throughout pregnancy and delivery even when it might prevent fetal demise or harm. This chapter explains why these seemingly contradictory standards are in fact consistent. It contextualizes pregnant people’s right to refuse medical intervention within the history of the legal and moral status of women, viable fetuses, and women pregnant with viable fetuses, and argues that the principle of justice breaks the tie that some people perceive between autonomy (of women) and beneficence (to fetuses), pushing the scales in favor of women. Finally, it offers ethically sound steps that obstetricians confronted with refusals should take to maximize care, and it considers the moral distress these unusual cases invariably invoke.
在美国大多数州,怀孕后堕胎是非法的。但是,法律允许并且道德要求临床医生尊重孕妇在整个怀孕和分娩期间拒绝接受治疗的权利,即使这样做可能防止胎儿死亡或伤害。本章解释了为什么这些看似矛盾的标准实际上是一致的。它将孕妇拒绝医疗干预的权利置于妇女、可存活胎儿和怀有可存活胎儿的妇女的法律和道德地位的历史背景下,并认为正义原则打破了一些人认为的(妇女)自主权和(对胎儿)仁慈之间的联系,推动天平向有利于妇女的方向倾斜。最后,它提供了道德上合理的步骤,产科医生面对拒绝应该采取最大限度地照顾,它考虑到这些不寻常的情况总是引起道德上的痛苦。
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引用次数: 0
Oncofertility
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0012
B. D. de Carvalho, J. Rodrigues, T. Woodruff
Advances in cancer treatment, particularly chemotherapeutics, are expected to lead to significant improvements in survival rates. While cancer incidence and death rates are decreasing, quality of life after cancer may be reduced due to early functional failure of the gonads and, consequently, infertility, resulting from either the disease itself or its treatment. This chapter introduces clinicians to the new field of oncofertility and the ethical issues it raises. It will consider the situation of young cancer patients facing reproductive consequences globally, the retrieval of gametes or gonadal tissue from minors, and the use of these tissues long term. The field of oncofertility is new, but ethical considerations regarding reproductive interventions are old. Understanding how we approach these issues on a personal level and from the public’s perspective will be assessed in this chapter.
癌症治疗的进步,特别是化学疗法,有望显著提高生存率。虽然癌症发病率和死亡率正在下降,但癌症后的生活质量可能由于性腺的早期功能衰竭而降低,从而由于疾病本身或其治疗而导致不孕。本章介绍临床医生的新领域的肿瘤生育和伦理问题,它提出。它将考虑全球面临生殖后果的年轻癌症患者的情况,从未成年人身上提取配子或性腺组织,以及长期使用这些组织。肿瘤生育是一个新的领域,但是关于生殖干预的伦理考虑是古老的。本章将评估我们如何从个人层面和公众的角度来处理这些问题。
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引用次数: 0
The Reproduction of Stratified (Assisted) Reproduction 分层(辅助)生殖的繁殖
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0008
L. Harris
This chapter considers epidemiological, historical, and ideological forces that constructed infertility as a “white” ailment and in vitro fertilization (IVF) as a treatment for the infertility of white professional women in their late 30s, 40s, and beyond. The author begins with a case from her own practice and then returns to IVF’s origins in the United States in the 1980s to show how in its practice and its technical details it reproduces race and class inequalities. Ultimately, the author argues that IVF grew out of an ideology of stratified reproduction, in which the fertility, reproduction, and motherhood of white, professional women was valued and that of poor women and women of color was not. While usual bioethical analyses of infertility treatment focus on the questions raised in sensational cases, here the author considers the race and class coding of infertility as a moral issue because, as she concludes, it is a question of whose lives matter.
本章考虑流行病学、历史和意识形态的力量,这些力量将不孕症构建为一种“白人”疾病,并将体外受精(IVF)作为一种治疗30多岁、40多岁及以上的白人职业女性不孕症的方法。作者从她自己的一个案例开始,然后回到20世纪80年代美国试管婴儿的起源,以展示其实践和技术细节如何再现种族和阶级不平等。最后,作者认为体外受精产生于一种分层生殖的意识形态,在这种意识形态中,白人职业女性的生育能力、生育能力和母性受到重视,而贫穷女性和有色人种女性则不受重视。虽然通常对不孕症治疗的生物伦理分析集中在耸人听闻的病例中提出的问题上,但在这里,作者认为不孕症的种族和阶级编码是一个道德问题,因为正如她总结的那样,这是一个谁的生命重要的问题。
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引用次数: 0
Professional Ethics in Obstetric Practice, Innovation, and Research 产科实践、创新和研究中的职业道德
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0016
F. Chervenak, L. Mccullough
Obstetric clinical practice, innovation, and research should be guided by professional ethics in obstetrics. In this chapter, the authors distinguish professional medical ethics from medical ethics and bioethics. They set out an ethical framework for obstetrics based on the invention of professional medical ethics by two eighteenth-century physician-ethicists, John Gregory (1724–1773) and Thomas Percival (1740–1804). Professional ethics in obstetrics appeals to the ethical principles of beneficence and respect for autonomy and the ethical concept of the fetus as a patient. This framework is deployed to provide ethically justified, practical guidance about two ethical challenges in obstetric practice: the professionally responsible role of nondirective counseling of pregnant women about induced abortion and the professionally responsible role of directive counseling about planned home birth. This framework is also deployed to provide ethically justified, practical guidance about professionally responsible obstetric innovation and research for fetal benefit.
产科临床实践、创新和研究应以产科职业道德为指导。在本章中,作者将职业医学伦理学与医学伦理学和生命伦理学区分开来。他们在两位18世纪的医学伦理学家John Gregory(1724-1773)和Thomas Percival(1740-1804)所创立的职业医学伦理的基础上,为产科建立了一个伦理框架。产科的职业道德呼吁仁慈和尊重自主权的伦理原则以及胎儿作为病人的伦理观念。该框架旨在为产科实践中的两个伦理挑战提供道德上合理的实用指导:对孕妇进行人工流产的非指导性咨询的专业责任作用,以及对计划生育的指导性咨询的专业责任作用。该框架还用于为专业负责的产科创新和胎儿利益研究提供道德上合理的实用指导。
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引用次数: 0
Accessing Reproductive Technology in France 在法国获得生殖技术
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0013
Laurence Brunet, V. Fournier
This chapter compares French and American approaches to assisted reproductive technologies (ART). These countries are a fascinating (and unexplored) mirror: the United States focuses on the individual, while France emphasizes the best interest of society as a whole. This results in an access to ART largely open in the United States, yet all costs are covered by patients, and an access strictly regulated by law in France (and quite restricted until recent changes), yet costs are fully financed. This chapter introduces readers to the legal framework of access to ART in France and its cultural foundations. It highlights the insistence on the “right to privacy” in the United States, a concept much less valued in France, and concludes with a discussion, using clinical cases, of the ethical issues underlying tensions between reproductive autonomy and public policymaking, which differ in both countries.
本章比较了法国和美国在辅助生殖技术(ART)方面的做法。这两个国家是一面迷人的(未被探索过的)镜子:美国关注个人,而法国强调整个社会的最大利益。这导致抗逆转录病毒治疗在美国基本上是开放的,但所有费用都由患者支付,而在法国,抗逆转录病毒治疗受到法律的严格管制(直到最近的变化才受到严格限制),但费用完全由患者支付。本章向读者介绍法国获得ART的法律框架及其文化基础。它强调了美国对“隐私权”的坚持,而法国对这一概念的重视程度要低得多。最后,它用临床案例讨论了两国不同的生殖自主权和公共政策制定之间存在紧张关系的伦理问题。
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引用次数: 0
Ethical Issues in Academic Global Reproductive Health 全球生殖健康学术中的伦理问题
Pub Date : 2021-07-01 DOI: 10.1093/med/9780190873028.003.0019
Kayte Spector-Bagdady, T. Johnson
This chapter addresses the ethical issues relevant to all academics and academic institutions engaging in global health, with a focus on international experiences in women’s health. The ethical issues for educational and clinical program development, such as sustainability, mutual benefit, and transparency, are relatively new interests. The authors discuss the ethical issues involved with global health research, including funding, community involvement, and informed consent and institutional review boards and argue that sustainability, mutual benefit, and fiscal transparency should be part of formal agreements and memoranda of understanding between academic global health partners; exchanges of learners should be bilateral and equitable; funding should be sustainable and fairly distributed; transcultural and translational issues must be welcomed and valued; research must be ethically grounded because of fundamental disparities between universities in low- and high-income countries; and issues of governance and institutional autonomy must be considered as transnational university partnerships are developed.
本章论述与从事全球卫生工作的所有学者和学术机构有关的伦理问题,重点是妇女健康方面的国际经验。教育和临床项目发展的伦理问题,如可持续性、互惠互利和透明度,是相对较新的兴趣。作者讨论了涉及全球卫生研究的伦理问题,包括供资、社区参与、知情同意和机构审查委员会,并认为可持续性、互利和财政透明度应成为学术全球卫生合作伙伴之间正式协议和谅解备忘录的一部分;留学生交流应该是双边的、公平的;资金应可持续并公平分配;跨文化和翻译问题必须受到欢迎和重视;研究必须有道德基础,因为低收入国家和高收入国家的大学之间存在根本差异;在发展跨国大学伙伴关系时,必须考虑治理和机构自治问题。
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引用次数: 0
期刊
Reproductive Ethics in Clinical Practice
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