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The interpretation of the reasons for encounter 'cough' and 'sadness' in four international family medicine populations. 在四个国际家庭医学人群中遇到“咳嗽”和“悲伤”的原因解释。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i1.45
Jean K Soler, Inge Okkes, Sibo Oskam, Kees Van Boven, Predrag Zivotic, Milan Jevtic, Frank Dobbs, Henk Lamberts

Background: This is a study of the relationships between common reasons for encounter (RfEs) and common diagnoses (episode titles) within episodes of care (EoCs) in family practice populations in four countries.

Method: Participating family doctors (FDs) recorded details of all their patient contacts in an EoC structure using the International Classification of Primary Care (ICPC), including RfEs presented by the patient, and the FDs' diagnostic labels. The relationships between RfEs and episode titles were studied using Bayesian methods.

Results: The RfE 'cough' is a strong, reliable predictor for the diagnoses 'cough' (a symptom diagnosis), 'acute bronchitis', 'URTI' and 'acute laryngitis/tracheitis' and a less strong, but reliable predictor for 'sinusitis', 'pneumonia', 'influenza', 'asthma', 'other viral diseases (NOS)', 'whooping cough', 'chronic bronchitis', 'wheezing' and 'phlegm'. The absence of cough is a weak but reliable predictor to exclude a diagnosis of 'cough', 'acute bronchitis' and 'tracheitis'. Its presence allows strong and reliable exclusion of the diagnoses 'gastroenteritis', 'no disease' and 'health promotion/prevention', and less strong exclusion of 'adverse effects of medication'. The RfE 'sadness' is a strong, reliable predictor for the diagnoses 'feeling sad/depressed' and 'depressive disorder'. It is a less strong, but reliable predictor of a diagnosis of 'acute stress reaction'. The absence of sadness (as a symptom) is a weak but reliable predictor to exclude the symptom diagnosis 'feeling sad/depressed'. Its presence does not support the exclusion of any diagnosis.

Conclusions: We describe clinically and statistically significant diagnostic associations observed between the RfEs 'cough' and 'sadness', presenting as a new problem in family practice, and all the episode titles in ICPC.

背景:这是一项对四个国家家庭执业人群中常见就诊原因(rfe)和常见诊断(发作标题)之间关系的研究。方法:参与调查的家庭医生(FDs)使用国际初级保健分类(ICPC)在EoC结构中记录所有患者接触者的详细信息,包括患者提交的rfe和FDs的诊断标签。利用贝叶斯方法研究了rfe与剧集名称之间的关系。结果:RfE“咳嗽”是“咳嗽”(一种症状诊断)、“急性支气管炎”、“尿路感染”和“急性喉炎/气管炎”诊断的一个强而可靠的预测因子,而“鼻窦炎”、“肺炎”、“流感”、“哮喘”、“其他病毒性疾病”、“百日咳”、“慢性支气管炎”、“喘息”和“痰”的预测因子则不那么强,但可靠。没有咳嗽是排除“咳嗽”、“急性支气管炎”和“气管炎”诊断的微弱但可靠的预测因素。它的存在可以有力而可靠地排除“肠胃炎”、“无病”和“健康促进/预防”的诊断,而不太有力地排除“药物不良反应”。RfE“悲伤”是诊断“感到悲伤/抑郁”和“抑郁障碍”的一个强大、可靠的预测指标。它是诊断“急性应激反应”的一个不那么强但可靠的预测指标。没有悲伤(作为一种症状)是一种微弱但可靠的预测因素,可以排除“感到悲伤/抑郁”的症状诊断。它的存在并不支持排除任何诊断。结论:我们描述了在临床和统计上观察到的rfe“咳嗽”和“悲伤”之间的诊断关联,这是家庭实践中的一个新问题,以及ICPC中所有的发作标题。
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引用次数: 13
Exploring weight loss services in primary care and staff views on using a web-based programme. 探讨基层医疗的减重服务,以及员工对使用网上计划的意见。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i4.18
Lisa J Ware, Sarah Williams, Katherine Bradbury, Catherine Brant, Paul Little, F D Richard Hobbs, Lucy Yardley

Background: Demand is increasing for primary care to deliver effective weight management services to patients, but research suggests that staff feel inadequately resourced for such a role. Supporting service delivery with a free and effective web-based weight management programme could maximise primary care resource and provide cost-effective support for patients. However, integration of e-health into primary care may face challenges.

Objectives: To explore primary care staff experiences of delivering weight management services and their perceptions of a web-based weight management programme to aid service delivery.

Methods: Focus groups were conducted with primary care physicians, nurses and healthcare assistants (n = 36) involved in delivering weight loss services. Data were analysed using inductive thematic analysis.

Results: Participants thought that primary care should be involved in delivering weight management, especially when weight was aggravating health problems. However, they felt under-resourced to deliver these services and unsure as to the effectiveness of their input, as routine services were not evaluated. Beliefs that current services were ineffective resulted in staff reluctance to allocate more resources. Participants were hopeful that supplementing practice with a web-based weight management programme would enhance patient services and promote service evaluation.

Conclusions: Although primary care staff felt they should deliver weight loss services, low levels of faith in the efficacy of current treatments resulted in provision of under-resourced and 'ad hoc' services. Integration of a web-based weight loss programme that promotes service evaluation and provides a cost-effective option for supporting patients may encourage practices to invest more in weight management services.

背景:为患者提供有效体重管理服务的初级保健需求正在增加,但研究表明,工作人员感到资源不足,无法发挥这样的作用。通过免费和有效的基于网络的体重管理程序支持服务提供,可以最大限度地利用初级保健资源,并为患者提供具有成本效益的支持。然而,将电子保健纳入初级保健可能面临挑战。目的:探讨初级保健人员提供体重管理服务的经验,以及他们对基于网络的体重管理计划的看法,以帮助提供服务。方法:对参与减肥服务的初级保健医生、护士和保健助理(n = 36)进行焦点小组调查。数据分析采用归纳专题分析。结果:参与者认为初级保健应该参与体重管理,特别是当体重加重健康问题时。然而,他们感到提供这些服务的资源不足,并且不确定其投入的有效性,因为常规服务没有得到评估。由于认为目前的服务效率低下,工作人员不愿拨出更多的资源。与会者希望以网上体重管理计划作为补充,可改善病人服务和促进服务评估。结论:虽然初级保健人员认为他们应该提供减肥服务,但对当前治疗效果的信心不足导致提供资源不足和“临时”服务。整合基于网络的减肥规划,促进服务评估并为支持患者提供具有成本效益的选择,可能会鼓励实践更多地投资于体重管理服务。
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引用次数: 16
Get moving: the practice nurse is watching you! A case study of the user-centred design process and testing of a web-based coaching system to stimulate the physical activity of chronically ill patients in primary care. 动起来,实习护士在看着你呢!以用户为中心的设计过程和基于网络的指导系统的测试案例研究,以刺激初级保健中慢性病患者的身体活动。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i4.19
Renée Verwey, Sanne van der Weegen, Huibert Tange, Marieke Spreeuwenberg, Trudy van der Weijden, Luc de Witte

Background: The system informs the nurse about levels of physical activity in the daily living of patients who are using the It's LiFe! tool. The tool consists of an accelerometer that transfers data to a smartphone, which is subsequently connected to a server. Nurses can monitor patients' physical activity via a secured website. Physical activity levels are measured in minutes per day compared with pre-set activity goals, which are set in dialogue with the patient.

Objective: To examine user requirements and to evaluate the usability of the secured website, in order to increase the probability of effective use by nurses.

Method: The needs and preferences of nurses towards the system were determined through qualitative research. The usability of the system was evaluated in a laboratory situation and during a three-month pilot study.

Results: A monitoring and feedback system to support patients in their intention to be more active was developed in a systematic way. Automatically generated feedback messages were defined based on the requirements of nurses. The results from the usability tests gave insights into how to improve the structure and quality of the information provided. Nurses were positive about the features and ease of use of the system, but made critical remarks about the time that its use entails.

Conclusion: The system supports nurses when performing physical activity counselling in a structured and profound way. The opportunity to support self-management of patients in between regular consultations needs further investigation, and adaptation into the clinical workflow of the nurses.

背景:该系统告知护士使用It's LiFe!工具。该工具由一个加速计组成,该加速计将数据传输到智能手机,智能手机随后连接到服务器。护士可以通过一个安全的网站监控病人的身体活动。与预先设定的活动目标相比,每天的身体活动水平以分钟为单位进行测量,这些目标是与患者对话设定的。目的:了解用户需求,评价安全网站的可用性,提高护士有效使用安全网站的概率。方法:通过定性研究确定护士对该系统的需求和偏好。在实验室情况和为期三个月的试点研究期间,对该系统的可用性进行了评估。结果:系统地建立了一个监测和反馈系统,以支持患者更积极的意愿。根据护士的需求定义自动生成的反馈信息。可用性测试的结果为如何改进所提供信息的结构和质量提供了见解。护士们对该系统的功能和易用性持肯定态度,但对使用该系统所需的时间提出了批评意见。结论:该系统为护士开展体育活动咨询提供了有条理、有深度的支持。在定期会诊之间支持患者自我管理的机会需要进一步调查,并适应护士的临床工作流程。
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引用次数: 21
Developing a survey instrument to assess the readiness of primary care data, genetic and disease registries to conduct linked research: TRANSFoRm International Research Readiness (TIRRE) survey instrument. 开发一种调查工具,以评估初级保健数据、遗传和疾病登记处是否准备好开展相关研究:改造国际研究准备情况调查工具。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i3.26
Emily Leppenwell, Simon de Lusignan, Marilia Tristan Vicente, Georgios Michalakidis, Paul Krause, Steve Thompson, Mark McGilchrist, Frank Sullivan, Terry Desombre, Adel Taweel, Brendan Delaney

Background: Clinical data are collected for routine care in family practice; there are also a growing number of genetic and cancer registry data repositories. The Translational Research and Patient Safety in Europe (TRANSFoRm) project seeks to facilitate research using linked data from more than one source. We performed a requirements analysis which identified a wide range of data and business process requirements that need to be met before linking primary care and either genetic or disease registry data.

Objectives: To develop a survey to assess the readiness of data repositories to participate in linked research - the Transform International Research Readiness (TIRRE) survey.

Method: We develop the questionnaire based on our requirement analysis; with questions at micro-, meso- and macro levels of granularity, study-specific questions about diabetes and gastro-oesophageal reflux disease (GORD), and research track record. The scope of the data required was extensive. We piloted this instrument, conducting ten preliminary telephone interviews to evaluate the response to the questionnaire.

Results: Using feedback gained from these interviews we revised the questionnaire; clarifying questions that were difficult to answer and utilising skip logic to create different series of questions for the various types of data repository. We simplified the questionnaire replacing free-text responses with yes/no or picking list options, wherever possible. We placed the final questionnaire online and encouraged its use (www.clininf.eu/jointirre/info.html).

Conclusion: Limited field testing suggests that TIRRE is capable of collecting comprehensive and relevant data about the suitability and readiness of data repositories to participate in linked data research.

背景:收集临床资料用于家庭常规护理;还有越来越多的基因和癌症登记数据库。欧洲转化研究和患者安全(TRANSFoRm)项目旨在促进使用来自多个来源的关联数据的研究。我们进行了需求分析,确定了在将初级保健与遗传或疾病登记数据联系起来之前需要满足的广泛的数据和业务流程需求。目的:开展一项调查,以评估数据存储库参与关联研究的准备情况——转型国际研究准备情况(TIRRE)调查。方法:在需求分析的基础上编制问卷;以微观,中观和宏观粒度水平的问题,关于糖尿病和胃食管反流病(GORD)的研究特定问题,以及研究记录。所需数据的范围很广。我们试用了这一工具,进行了10次初步电话访谈,以评估对问卷的反应。结果:根据访谈反馈,我们对问卷进行了修订;澄清难以回答的问题,并利用跳过逻辑为各种类型的数据存储库创建不同系列的问题。在可能的情况下,我们简化了问卷,用是/否或选择列表选项取代了自由文本的回答。我们将最终的问卷放在网上,并鼓励使用(www.clininf.eu/jointirre/info.html).Conclusion:有限的实地测试表明,TIRRE能够收集有关数据存储库参与关联数据研究的适用性和准备情况的全面和相关数据。
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引用次数: 8
Computerised decision support systems for healthcare professionals: an interpretative review. 医疗保健专业人员的计算机化决策支持系统:解释性综述。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i2.32
Kathrin Cresswell, Azeem Majeed, David W Bates, Aziz Sheikh

Purpose: Computerised decision support systems are designed to support clinicians in making decisions and thereby enhance the quality and safety of care. We aimed to undertake an interpretative review of the empirical evidence on computerised decision support systems, their contexts of use, and summarise evidence on the effectiveness of these tools and insights into how these can be successfully implemented and adopted.

Methods: We systematically searched the empirical literature to identify systematic literature reviews on computerised decision support applications and their impact on the quality and safety of healthcare delivery over a 13-year period (1997-2010). The databases searched included: MEDLINE, EMBASE, The Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, The Cochrane Central Register of Controlled Trials, The Cochrane Methodology Register, The Health Technology Assessment Database, and The National Health Service (NHS) Economic Evaluation Database. To be eligible for inclusion, systematic reviews needed to address computerised decision support systems, and at least one of the following: impact on safety; quality; or organisational, implementation or adoption considerations.

Results: Our searches yielded 121 systematic reviews relating to eHealth, of which we identified 41 as investigating computerised decision support systems. These indicated that, whilst there was a lack of investigating potential risks, such tools can result in improvements in practitioner performance in the promotion of preventive care and guideline adherence, particularly if specific information is available in real time and systems are effectively integrated into clinical workflows. However, the evidence regarding impact on patient outcomes was less clear-cut with reviews finding either no, inconsistent or modest benefits.

Conclusions: Whilst the potential of clinical decision support systems in improving, in particular, practitioner performance is considerable, such technology may also introduce new risks resulting not only from technical challenges (such as data inaccuracies) but also from disruption of clinical workflows. Moving forward, there is a need for system development, procurement and implementation to be characterised by a user 'pull' and then tailor systems to the needs of users.

目的:计算机化决策支持系统旨在支持临床医生做出决策,从而提高护理的质量和安全性。我们的目标是对计算机化决策支持系统及其使用背景的经验证据进行解释性审查,并总结有关这些工具有效性的证据以及如何成功实施和采用这些工具的见解。方法:我们系统地检索了经验文献,以确定13年间(1997-2010)计算机化决策支持应用及其对医疗服务质量和安全的影响的系统文献综述。检索的数据库包括:MEDLINE、EMBASE、Cochrane系统评价数据库、Cochrane效果评价摘要数据库、Cochrane对照试验中央注册库、Cochrane方学注册库、卫生技术评估数据库和国民健康服务(NHS)经济评价数据库。为了有资格纳入,系统评价需要解决计算机化决策支持系统,并且至少满足以下一项:对安全的影响;质量;或组织、实现或采用方面的考虑。结果:我们的搜索产生了121篇与电子健康相关的系统评论,其中我们确定了41篇调查计算机化决策支持系统。这些表明,虽然缺乏对潜在风险的调查,但这些工具可以改善医生在促进预防保健和遵守指南方面的表现,特别是如果实时提供特定信息并且系统有效地集成到临床工作流程中。然而,关于对患者结果的影响的证据不太明确,评论发现没有,不一致或适度的益处。结论:虽然临床决策支持系统在改善,特别是医生表现方面的潜力是相当大的,但这种技术也可能引入新的风险,不仅来自技术挑战(如数据不准确),还来自临床工作流程的中断。展望未来,系统开发、采购和实施需要以用户“拉动”为特征,然后根据用户的需要定制系统。
{"title":"Computerised decision support systems for healthcare professionals: an interpretative review.","authors":"Kathrin Cresswell,&nbsp;Azeem Majeed,&nbsp;David W Bates,&nbsp;Aziz Sheikh","doi":"10.14236/jhi.v20i2.32","DOIUrl":"https://doi.org/10.14236/jhi.v20i2.32","url":null,"abstract":"<p><strong>Purpose: </strong>Computerised decision support systems are designed to support clinicians in making decisions and thereby enhance the quality and safety of care. We aimed to undertake an interpretative review of the empirical evidence on computerised decision support systems, their contexts of use, and summarise evidence on the effectiveness of these tools and insights into how these can be successfully implemented and adopted.</p><p><strong>Methods: </strong>We systematically searched the empirical literature to identify systematic literature reviews on computerised decision support applications and their impact on the quality and safety of healthcare delivery over a 13-year period (1997-2010). The databases searched included: MEDLINE, EMBASE, The Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, The Cochrane Central Register of Controlled Trials, The Cochrane Methodology Register, The Health Technology Assessment Database, and The National Health Service (NHS) Economic Evaluation Database. To be eligible for inclusion, systematic reviews needed to address computerised decision support systems, and at least one of the following: impact on safety; quality; or organisational, implementation or adoption considerations.</p><p><strong>Results: </strong>Our searches yielded 121 systematic reviews relating to eHealth, of which we identified 41 as investigating computerised decision support systems. These indicated that, whilst there was a lack of investigating potential risks, such tools can result in improvements in practitioner performance in the promotion of preventive care and guideline adherence, particularly if specific information is available in real time and systems are effectively integrated into clinical workflows. However, the evidence regarding impact on patient outcomes was less clear-cut with reviews finding either no, inconsistent or modest benefits.</p><p><strong>Conclusions: </strong>Whilst the potential of clinical decision support systems in improving, in particular, practitioner performance is considerable, such technology may also introduce new risks resulting not only from technical challenges (such as data inaccuracies) but also from disruption of clinical workflows. Moving forward, there is a need for system development, procurement and implementation to be characterised by a user 'pull' and then tailor systems to the needs of users.</p>","PeriodicalId":30591,"journal":{"name":"Informatics in Primary Care","volume":"20 2","pages":"115-28"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31460677","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 84
A review of the empirical evidence of the value of structuring and coding of clinical information within electronic health records for direct patient care. 对电子健康记录中临床信息的结构和编码对直接患者护理的价值的经验证据进行审查。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i3.22
Dipak Kalra, Bernard Fernando, Zoe Morrison, Aziz Sheikh

Background: The case has historically been presented that structured and/or coded electronic health records (EHRs) benefit direct patient care, but the evidence base for this is not well documented.

Methods: We searched for evidence of direct patient care value from the use of structured and/or coded information within EHRs. We interrogated nine international databases from 1990 to 2011. Value was defined using the Institute of Medicine's six areas for improvement for healthcare systems: effectiveness, safety, patient-centredness, timeliness, efficiency and equitability. We included studies satisfying the Cochrane Effective Practice and Organisation of Care (EPOC) group criteria.

Results: Of 5016 potentially eligible papers, 13 studies satisfied our criteria: 10 focused on effectiveness, with eight demonstrating potential for improved proxy and actual clinical outcomes if a structured and/or coded EHR was combined with alerting or advisory systems in a focused clinical domain. Three studies demonstrated improvement in safety outcomes. No studies were found reporting value in relation to patient-centredness, timeliness, efficiency or equitability.

Conclusions: We conclude that, to date, there has been patchy effort to investigate empirically the value from structuring and coding EHRs for direct patient care. Future investments in structuring and coding of EHRs should be informed by robust evidence as to the clinical scenarios in which patient care benefits may be realised.

背景:历史上一直有人提出结构化和/或编码电子健康记录(EHRs)有利于患者的直接护理,但这方面的证据基础没有得到很好的记录。方法:我们从电子病历中使用结构化和/或编码信息中寻找直接患者护理价值的证据。从1990年到2011年,我们查询了9个国际数据库。价值是根据医学研究所提出的医疗保健系统改进的六个方面来定义的:有效性、安全性、以患者为中心、及时性、效率和公平性。我们纳入了符合Cochrane有效实践和护理组织(EPOC)组标准的研究。结果:在5016篇可能符合条件的论文中,13篇研究满足我们的标准:10篇研究侧重于有效性,8篇研究表明,如果结构化和/或编码的电子病历与重点临床领域的警报或咨询系统相结合,可能会改善代理和实际临床结果。三项研究证明了安全性结果的改善。没有研究发现报告与病人为中心、及时性、效率或公平性有关的价值。结论:我们得出的结论是,到目前为止,已经有零星的努力调查经验价值从结构和编码电子病历直接病人护理。未来在电子病历的结构和编码方面的投资应该有关于患者护理益处可能实现的临床场景的有力证据。
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引用次数: 15
The provision and impact of online patient access to their electronic health records (EHR) and transactional services on the quality and safety of health care: systematic review protocol. 提供患者在线访问其电子健康记录(EHR)和交易服务对卫生保健质量和安全的影响:系统审查协议。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i4.17
Freda Mold, Beverley Ellis, Simon de Lusignan, Aziz Sheikh, Jeremy C Wyatt, Mary Cavill, Georgios Michalakidis, Fiona Barker, Azeem Majeed, Tom Quinn, Phil Koczan, Theo Avanitis, Toto Anne Gronlund, Christina Franco, Mary McCarthy, Zoë Renton, Umesh Chauhan, Hannah Blakey, Neha Kataria, Simon Jones, Imran Rafi

Background: Innovators have piloted improvements in communication, changed patterns of practice and patient empowerment from online access to electronic health records (EHR). International studies of online services, such as prescription ordering, online appointment booking and secure communications with primary care, show good uptake of email consultations, accessing test results and booking appointments; when technologies and business process are in place. Online access and transactional services are due to be rolled out across England by 2015; this review seeks to explore the impact of online access to health records and other online services on the quality and safety of primary health care.

Objective: To assess the factors that may affect the provision of online patient access to their EHR and transactional services, and the impact of such access on the quality and safety of health care.

Method: Two reviewers independently searched 11 international databases during the period 1999-2012. A range of papers including descriptive studies using qualitative or quantitative methods, hypothesis-testing studies and systematic reviews were included. A detailed eligibility criterion will be used to shape study inclusion. A team of experts will review these papers for eligibility, extract data using a customised extraction form and use the Grading of Recommendations Assessment, Development and Evaluation (GRADE) instrument to determine the quality of the evidence and the strengths of any recommendation. Data will then be descriptively summarised and thematically synthesised. Where feasible, we will perform a quantitative meta-analysis. Prospero (International Prospective Register of Systematic Reviews) registration number: crd42012003091.

背景:创新者已经试点改进了通信,改变了实践模式,并从在线访问电子健康记录(EHR)中赋予患者权力。对处方订购、在线预约和与初级保健的安全通信等在线服务的国际研究表明,人们很好地接受了电子邮件咨询、获取检测结果和预约;当技术和业务流程到位时。到2015年,在线访问和交易服务将在整个英格兰铺开;本综述旨在探讨在线获取健康记录和其他在线服务对初级卫生保健质量和安全的影响。目的:评估可能影响患者在线访问电子病历和交易服务的因素,以及这种访问对卫生保健质量和安全的影响。方法:两位审稿人独立检索1999-2012年11个国际数据库。纳入了一系列论文,包括使用定性或定量方法的描述性研究、假设检验研究和系统综述。详细的资格标准将用于确定研究纳入。一个专家小组将审查这些论文的资格,使用定制的提取表格提取数据,并使用建议评估、发展和评估分级(GRADE)工具来确定证据的质量和任何建议的优势。然后对数据进行描述性总结和主题综合。在可行的情况下,我们将进行定量荟萃分析。普洛斯彼罗(国际前瞻性系统评论注册)注册号:crd42012003091。
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引用次数: 19
Can data extraction from general practitioners' electronic records be used to predict clinical outcomes for patients with type 2 diabetes? 从全科医生的电子病历中提取的数据能否用于预测2型糖尿病患者的临床结果?
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i2.30
Michael Staff

Background: The review of clinical data extraction from electronic records is increasingly being used as a tool to assist general practitioners (GPs) manage their patients in Australia. Type 2 diabetes (T2DM) is a chronic condition cared for primarily in the general practice setting that lends itself to the application of tools in this area.

Objective: To assess the feasibility of extracting data from a general practice medical record software package to predict clinically significant outcomes for patients with T2DM.

Methods: A pilot study was conducted involving two large practices where routinely collected clinical data were extracted and inputted into the United Kingdom Prospective Diabetes Study Outcomes Model to predict life expectancy. An initial assessment of the completeness of data available was performed and then for those patients aged between 45 and 64 years with adequate data life expectancies estimated.

Results: A total of 1019 patients were identified as current patients with T2DM. There were sufficient data available on 40% of patients from one practice and 49% from the other to provide inputs into the UKPDS Outcomes Model. Predicted life expectancy was similar across the practices with women having longer life expectancies than men. Improved compliance with current management guidelines for glycaemic, lipid and blood pressure control was demonstrated to increase life expectancy between 1.0 and 2.4 years dependent on gender and age group.

Conclusion: This pilot demonstrated that clinical data extraction from electronic records is feasible although there are several limitations chiefly caused by the incompleteness of data for patients with T2DM.

背景:在澳大利亚,从电子记录中提取临床数据的审查越来越多地被用作辅助全科医生(gp)管理患者的工具。2型糖尿病(T2DM)是一种慢性疾病,主要在全科医生的环境中进行护理,因此适合在该领域应用工具。目的:评估从全科医疗记录软件包中提取数据以预测T2DM患者临床显著预后的可行性。方法:进行了一项涉及两个大型实践的试点研究,提取常规收集的临床数据并输入英国前瞻性糖尿病研究结果模型以预测预期寿命。对现有数据的完整性进行了初步评估,然后对年龄在45至64岁之间的患者进行了充分的预期寿命估计。结果:共有1019例患者被确定为T2DM患者。有来自一个诊所的40%的患者和来自另一个诊所的49%的患者的足够数据,可以为UKPDS结果模型提供输入。预测的预期寿命在实践中是相似的,女性的预期寿命比男性长。改善对血糖、血脂和血压控制的现行管理指南的依从性被证明可以根据性别和年龄组增加1.0至2.4年的预期寿命。结论:该试点表明,从电子病历中提取临床数据是可行的,但主要由于T2DM患者数据不完整而存在一些局限性。
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引用次数: 11
An exploratory study of the personal health records adoption model in the older adult with chronic illness. 老年慢性病患者个人健康档案采用模式的探索性研究。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i3.21
Melanie D Logue, Judith A Effken

Background: Despite international efforts moving toward integrated care using health information technologies and the potential of electronic PHRs to help us better coordinate patient-centered care, PHR adoption in the United States remains low among patients who have been offered free access to them from private-sector companies. If older adult stand to benefit from the use of PHRs for its usefulness in self-managing chronic illness, why have they not been more readily adopted? Since the chronically ill older adult has unique circumstances that impact their decision to participate in self-directed care, a theoretical framework to help understand factors that influence the adoption of PHRs is important. Here we describe the results of an exploratory study that provided an initial test of such a framework.

Methods: The study used a descriptive survey methodology with 38 older adults. The survey questionnaire asked about the personal barriers and facilitators associated with personal health record adoption and included items measuring each of the PHRAM's four interacting factors (environmental factors, personal factors, technology factors, and self-management), and the resulting behavioral outcome.

Results: Younger seniors had a more positive attitude toward computers, knew what health resources were available on the internet, agreed that they had the resources in place to use PHRs, and would be more influenced by a family member than a healthcare provider to use them. Conversely, older seniors reported less confidence in their ability to use Internet-based PHRs and did not perceive that they had the resources in place to use them.

Conclusions: The results of this study indicated that personal, environmental, technology, chronic illness, and behavioral factors operated concurrently as personal barriers and/or facilitators to the adoption of PHRs among the older adult with chronic illness. These factors cannot be isolated because the person commonly weighs risk with benefit and determines the personal value of adopting PHRs.

背景:尽管国际上正在努力利用卫生信息技术和电子病历帮助我们更好地协调以患者为中心的护理,朝着综合护理的方向发展,但在美国,从私营公司免费提供的患者中,病历的采用率仍然很低。如果老年人能够从phrr的使用中受益,因为它在自我管理慢性病方面很有用,为什么它们没有被更容易地采用呢?由于慢性病老年人具有影响其参与自我指导护理决定的独特环境,因此帮助理解影响采用PHRs的因素的理论框架非常重要。在这里,我们描述了一项探索性研究的结果,该研究为这种框架提供了初步测试。方法:采用描述性调查方法对38名老年人进行调查。调查问卷询问与个人健康记录采用相关的个人障碍和促进因素,并包括测量PHRAM的四个相互作用因素(环境因素、个人因素、技术因素和自我管理)的项目,以及由此产生的行为结果。结果:较年轻的老年人对计算机的态度更为积极,他们知道互联网上可获得的卫生资源,同意他们有适当的资源来使用医疗记录,并且更容易受到家庭成员而不是医疗保健提供者的影响来使用它们。相反,年长的老年人报告说,他们对使用基于互联网的PHRs的能力缺乏信心,并且没有意识到他们有适当的资源来使用它们。结论:个人因素、环境因素、技术因素、慢性疾病因素和行为因素共同作用于慢性疾病老年人采用个人健康计划的障碍和/或促进因素。这些因素不能被孤立,因为人们通常会权衡风险与收益,并决定采用phrr的个人价值。
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引用次数: 40
Coding the present problem. 对当前问题进行编码。
Pub Date : 2012-01-01 DOI: 10.14236/jhi.v20i3.20
Simon de Lusignan
Coding of the ‘problem’ in computerised medical records is sine qua non in the informatics community. The ‘problem’ should be formulation of what the clinician thought was the underlying pathological process, ideally not simply a symptom, or procedure (Box 1). Many in informatics take it for granted that coding clinical data is a good thing; without considering if there is an evidence base for this activity. Whilst much of what we know about health and disease comes from routinely recorded computer data, the quality of that data and our ability to extract it without loss in its fidelity limit its usefulness. The informatics community has focused on data quality rather than developing an evidence base about the value and utility of the data collected. Data quality is defined in terms of its completeness and accuracy, currency (i.e. how up-to-date it is), and in terms of its positive predictive value and sensitivity that someone identified by routine data actually has that condition. Data quality has also been described functionally in terms of its ‘fitness for purpose.’ Kalra et al., in their review of the empirical evidence wakes us up to how there is little high-quality evidence for the benefits of clinical coding. There is no evidence of harm, but a dearth of studies providing positive evidence of benefit from coding data. The principal benefit, in terms of outcomes arising from the use of coded data, is in the management of longterm conditions in which prevention or therapeutic intervention reminders are linked to coded data. This same type of linkage is also used to improve patient safety by providing relevant prescribing alerts.
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引用次数: 1
期刊
Informatics in Primary Care
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