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Making sense of taxonomies in health informatics. 理解卫生信息学中的分类。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i3.82
Simon de Lusignan
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引用次数: 1
The collection and utilisation of patient ethnicity data in general practices and hospitals in the United Kingdom: a qualitative case study. 收集和利用病人种族数据在一般做法和医院在联合王国:定性案例研究。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i3.63
Zoe Morrison, Bernard Fernando, Dipak Kalra, Kathrin Cresswell, Ann Robertson, Aziz Sheikh

Background: Although the collection of patient ethnicity data is a requirement of publicly funded healthcare providers in the UK, recording of ethnicity is sub-optimal for reasons that remain poorly understood.

Aims and objectives: We sought to understand enablers and barriers to the collection and utilisation of ethnicity data within electronic health records, how these practices have developed and what benefit this information provides to different stakeholder groups.

Methods: We undertook an in-depth, qualitative case study drawing on interviews and documents obtained from participants working as academics, managers and administrators within the UK.

Results: Information regarding patient ethnicity was collected and coded as administrative patient data, and/or in narrative form within clinical records. We identified disparities in the classification of ethnicity, approaches to coding and levels of completeness due to differing local, regional and national policies and processes. Most participants could not identify any clinical value of ethnicity information and many did not know if and when data were shared between services or used to support quality of care and research.

Conclusions: Findings highlighted substantial variations in data classification, and practical challenges in data collection and usage that undermine the integrity of data collected. Future work needs to focus on explaining the uses of these data to frontline clinicians, identifying resources that can support busy professionals to collect standardised data and then, once collected, maximising the utility of these data.

背景:虽然收集患者种族数据是英国公共资助的医疗保健提供者的要求,但由于人们对种族记录的了解仍然很少,因此不太理想。目的和目标:我们试图了解在电子健康记录中收集和利用种族数据的推动因素和障碍,这些做法是如何发展的,以及这些信息为不同的利益攸关方群体提供了什么好处。方法:我们进行了深入的定性案例研究,利用访谈和从英国学者、管理人员和管理人员中获得的文件。结果:有关患者种族的信息被收集和编码为行政患者数据,和/或在临床记录中以叙述的形式。由于不同的地方、区域和国家政策和流程,我们确定了种族分类、编码方法和完整性水平方面的差异。大多数参与者无法确定种族信息的任何临床价值,许多人不知道数据是否以及何时在服务之间共享或用于支持护理和研究质量。结论:研究结果强调了数据分类的实质性差异,以及数据收集和使用方面的实际挑战,这些挑战破坏了所收集数据的完整性。未来的工作需要集中在向一线临床医生解释这些数据的用途,确定可以支持忙碌的专业人员收集标准化数据的资源,然后,一旦收集到,最大限度地利用这些数据。
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引用次数: 11
The John Bryden memorial lecture: Improving health with the community health index and developments in record linkage. 约翰-布赖登纪念讲座:利用社区健康指数和记录链接的发展改善健康状况。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i4.76
Frank Sullivan

Dr. John Bryden was the executive officer of European Federation for Medical Informatics for a decade between 1998 and 2008. When he retired from active work within the federation, he was awarded an honorary fellowship. In one of his early papers from the 1960s, he described how some relatively novel machines called computers might replace the punched cards that were being used at the time. He saw, before many others, that computers could be used for the care of individual patients and even more so for groups of patients. He implemented a unique patient identifier (community health index) which has enabled Scotland to link electronic medical record data for clinical management of chronic disease deterministically. An example was the development of the Glasgow Coma Scale. One benefit of demonstrating significant value in projects such as this at an early stage of record linkage was that the governance framework for the use of data became relatively permissive. Another major success was diabetes care; it became possible to apply insights from the aggregate data to improve services and make them more efficient. Scotland has developed safe havens for data where not only the physical environment but also the people, mechanisms and projects are all subject to control to ensure safety and confidentiality. Similar moves are under way in Europe. TRANSFoRm (www.transformproject.eu) led by King's college in London is mainly focused on primary care data. Excellence in medical informatics is possible as a result of the work of its pioneers, including John Bryden's first paper suggesting that computers might be useful.

从 1998 年到 2008 年的十年间,约翰-布赖登博士一直担任欧洲医学信息学联合会的执行干事。当他从联合会的工作岗位上退休时,他被授予了荣誉研究员称号。在他 20 世纪 60 年代的一篇早期论文中,他描述了一些被称为计算机的相对新颖的机器如何取代当时使用的打孔卡。他比许多人更早地发现,计算机可以用于对单个病人的护理,更可以用于对群体病人的护理。他采用了一种独特的病人标识符(社区健康指数),使苏格兰能够将电子病历数据连接起来,对慢性病进行确定性的临床管理。格拉斯哥昏迷量表的开发就是一个例子。在病历链接的早期阶段就展示出此类项目的重大价值,这样做的一个好处是,数据使用的管理框架变得相对宽松。另一项重大成功是糖尿病护理;从综合数据中获得的洞察力可以用于改善服务,提高服务效率。苏格兰开发了数据安全港,不仅对物理环境,而且对人员、机制和项目都进行控制,以确保安全和保密。欧洲也在采取类似行动。由伦敦国王学院领导的 TRANSFoRm(www.transformproject.eu)主要关注初级医疗数据。医学信息学的卓越成就得益于其先驱们的工作,包括约翰-布赖登(John Bryden)发表的第一篇论文,他在论文中提出计算机可能是有用的。
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引用次数: 0
How do GPs versus GP trainees adapt to electronic health records? A Portuguese pilot study. 全科医生和全科医生实习生如何适应电子健康记录?葡萄牙试点研究。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i3.51
Filipe Prazeres

Background: This study compares general practitioners (GPs) and general practice trainees (GPTs) on the adaptation to the electronic health records (EHRs) and how they perceive its impact on medical consultations.

Methods: Cross-sectional, descriptive study. The link for an online questionnaire was sent to mainland Portuguese health care centre groups.

Results: A total of 147 physicians (100 females and 47 males). GPs had more learning difficulties in using the EHR (P < 0.05), greater difficulty in keeping regular updated records (P < 0.001) and a more noticeable fear of the possibility of occurring prescription errors (P < 0.05), when compared with GPTs. Most GPs (75%) and GPTs (80.4%) are satisfied with how they use the EHR.

Conclusions: Most participants have adhered to the EHR, and are satisfied with its use. A negative impact on medical consultations was not observed. However, it is the group of GPs that is less adapted to the electronic system.

背景:本研究比较了全科医生(gp)和全科实习生(GPTs)对电子健康记录(EHRs)的适应情况,以及他们如何看待电子健康记录对医疗咨询的影响。方法:横断面、描述性研究。一份在线调查问卷的链接被发送给葡萄牙大陆的卫生保健中心集团。结果:共147名医生(女100名,男47名)。全科医生在使用电子病历方面有更多的学习困难(P < 0.05),在保持定期更新记录方面有更大的困难(P < 0.001),并且对发生处方错误的可能性有更明显的恐惧(P < 0.05)。大多数全科医生(75%)和gp(80.4%)对他们使用电子病历的方式感到满意。结论:大多数参与者坚持使用电子病历,并对其使用感到满意。没有观察到对医疗咨询产生负面影响。然而,这群普通医生对电子系统的适应程度较低。
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引用次数: 3
An integrated organisation-wide data quality management and information governance framework: theoretical underpinnings. 一个集成的全组织数据质量管理和信息治理框架:理论基础。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i4.87
Siaw-Teng Liaw, Christopher Pearce, Harshana Liyanage, Gladys S S Liaw, Simon de Lusignan

Introduction: Increasing investment in eHealth aims to improve cost effectiveness and safety of care. Data extraction and aggregation can create new data products to improve professional practice and provide feedback to improve the quality of source data. A previous systematic review concluded that locally relevant clinical indicators and use of clinical record systems could support clinical governance. We aimed to extend and update the review with a theoretical framework.

Methods: We searched PubMed, Medline, Web of Science, ABI Inform (Proquest) and Business Source Premier (EBSCO) using the terms curation, information ecosystem, data quality management (DQM), data governance, information governance (IG) and data stewardship. We focused on and analysed the scope of DQM and IG processes, theoretical frameworks, and determinants of the processing, quality assurance, presentation and sharing of data across the enterprise.

Findings: There are good theoretical reasons for integrated governance, but there is variable alignment of DQM, IG and health system objectives across the health enterprise. Ethical constraints exist that require health information ecosystems to process data in ways that are aligned with improving health and system efficiency and ensuring patient safety. Despite an increasingly 'big-data' environment, DQM and IG in health services are still fragmented across the data production cycle. We extend current work on DQM and IG with a theoretical framework for integrated IG across the data cycle.

Conclusions: The dimensions of this theory-based framework would require testing with qualitative and quantitative studies to examine the applicability and utility, along with an evaluation of its impact on data quality across the health enterprise.

引言:增加对电子医疗的投资旨在提高医疗的成本效益和安全性。数据提取和聚合可以创造新的数据产品,以改善专业实践,并提供反馈,以提高源数据的质量。先前的一项系统综述得出结论,当地相关的临床指标和使用临床记录系统可以支持临床治理。我们的目标是用一个理论框架来扩展和更新综述。方法:我们使用策治、信息生态系统、数据质量管理(DQM)、数据治理、信息治理(IG)和数据管理等术语对PubMed、Medline、Web of Science、ABI Inform (Proquest)和Business Source Premier (EBSCO)进行检索。我们关注并分析了DQM和IG流程的范围、理论框架以及整个企业中数据的处理、质量保证、呈现和共享的决定因素。研究发现:整合治理有很好的理论依据,但在整个卫生企业中,DQM、IG和卫生系统目标之间存在可变的一致性。存在伦理约束,要求卫生信息生态系统以与提高卫生和系统效率以及确保患者安全相一致的方式处理数据。尽管“大数据”环境越来越多,但卫生服务中的DQM和IG在整个数据生产周期中仍然是分散的。我们扩展了DQM和IG的现有工作,为整个数据周期集成IG提供了一个理论框架。结论:这一基于理论的框架的维度需要通过定性和定量研究进行测试,以检查其适用性和效用,并评估其对整个卫生企业数据质量的影响。
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引用次数: 27
Undertaking sociotechnical evaluations of health information technologies. 对卫生信息技术进行社会技术评价。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i2.54
Kathrin M Cresswell, Aziz Sheikh

There is an increasing international recognition that the evaluation of health information technologies should involve assessments of both the technology and the social/organisational contexts into which it is deployed. There is, however, a lack of agreement on definitions, published guidance on how such 'sociotechnical evaluations' should be undertaken, and how they distinguish themselves from other approaches. We explain what sociotechnical evaluations are, consider the contexts in which these are most usefully undertaken, explain what they entail, reflect on the potential pitfalls associated with such research, and suggest possible ways to avoid these.

国际上日益认识到,对卫生信息技术的评价应包括对技术及其应用的社会/组织环境的评价。然而,在定义上缺乏共识,关于如何进行这种“社会技术评估”的出版指南,以及它们如何与其他方法区分开来。我们解释了什么是社会技术评估,考虑了这些评估最有用的环境,解释了它们所需要的,反思了与此类研究相关的潜在陷阱,并提出了避免这些陷阱的可能方法。
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引用次数: 51
How people with diabetes integrate self-monitoring of blood glucose into their self-management strategies. 糖尿病患者如何将自我血糖监测纳入自我管理策略。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i2.11
Carol S Bond, Jaqui Hewitt-Taylor
BACKGROUNDThe benefit of self-monitoring of blood glucose by patients has been questioned, and UK policy is generally not to support this, although it is identified that there may be unidentified subgroups of people who would benefit from being supported to self-monitor. The purpose of this paper is to explore the self-management approaches of people with diabetes, and how self-testing of blood glucose contributes to self-management strategies.METHODSThis qualitative study of patients' experiences drew data from contributors to online discussion boards for people living with diabetes. The principles of qualitative content analysis were used on posts from a sample of four Internet discussion boards.RESULTSContributors described how they were using self-testing within their self-management strategies. Most saw it as a way of actively maintaining control of their condition. The amount of testing carried varied over time; more testing was done in the early days, when people were still learning how to stay in control of their diabetes. Some people had experienced a lack of support for self-testing from healthcare professionals, or had been expected to change their self-management to fit national policy changes. This was seen as unhelpful, demotivating, stressful, and harmful to the doctor-patient relationship.CONCLUSIONSThe Internet is a valuable source of information about peoples' self-management behaviours. Patients who are using, or who wish to use, self-testing as part of their self-management strategy are one of the subgroups for whom self-testing is beneficial and who should be supported to do so.
背景:患者自我监测血糖的益处一直受到质疑,英国的政策通常不支持这种做法,尽管可以确定的是,可能有一些身份不明的人群会从支持自我监测中受益。本文的目的是探讨糖尿病患者的自我管理方法,以及血糖自测如何有助于自我管理策略。方法:对糖尿病患者的经历进行定性研究,数据来自糖尿病患者在线讨论版的贡献者。定性内容分析的原则被用于从四个互联网讨论板的样本帖子。结果:贡献者描述了他们如何在自我管理策略中使用自我测试。大多数人认为这是一种积极控制病情的方式。测试的数量随着时间的推移而变化;在早期,当人们还在学习如何控制他们的糖尿病时,做了更多的测试。一些人经历了缺乏医疗专业人员对自我测试的支持,或者被期望改变他们的自我管理以适应国家政策的变化。这被认为是无益的、让人失去动力的、有压力的、有害于医患关系的。结论:互联网是人们自我管理行为的宝贵信息来源。正在使用或希望使用自我测试作为自我管理策略一部分的患者是自我测试有益的亚组之一,应该支持他们这样做。
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引用次数: 5
Advantages of using voiced questionnaire and image capture application for data collection from a minority group in rural areas along the Thailand-Myanmar border. 使用语音问卷和图像捕获应用程序收集泰缅边境农村少数民族数据的优势。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i4.84
Siriporn Monyarit, Wirichada Pan-ngum, Saranath Lawpoolsri, Surapon Yimsamran, Suporn Pongnumkul, Jaranit Kaewkungwal, Pratap Singhasivanon

Aims: To compare the quality of data collection via electronic data capture (EDC) with voiced questionnaire (QNN) and data image capture features using a tablet versus standard paper-based QNN, to assess the user's perception of using the EDC tool, and to compare user satisfaction with the two methods.

Study design: Randomised cross-over study. Study sites: This study was conducted in two villages along the Thailand-Myanmar border.

Methodology: This study included 30 community health volunteers (CHVs) and 120 Karen hill tribe villagers. Employing a cross-over study design, the CHVs were allocated randomly to two groups, in which they performed interviews in different sequences using EDC and QNN.

Results: Data discrepancies were found between the two data-collection methods, when data from the paper-based and image-capture methods were compared, and when conducting skip pattern questions. More than 90% of the CHVs perceived the EDC to be useful and easy to use. Both interviewers and interviewees were more satisfied with the EDC compared with QNN in terms of format, ease of use, and system speed.

Conclusion: The EDC can effectively be used as an alternative method to paper-based QNNs for data collection. It produces more accurate data that can be considered evidence-based.

目的:比较电子数据采集(EDC)与语音问卷(QNN)的数据收集质量,以及使用平板电脑与标准纸质QNN的数据图像采集功能,评估用户对使用EDC工具的感知,并比较用户对两种方法的满意度。研究设计:随机交叉研究。研究地点:本研究在泰缅边境的两个村庄进行。方法:本研究包括30名社区卫生志愿者和120名克伦山部落村民。采用交叉研究设计,将chv随机分为两组,使用EDC和QNN以不同的顺序进行访谈。结果:两种数据收集方法之间存在数据差异,当比较基于纸张和图像捕获方法的数据时,以及在进行跳过模式问题时。超过90%的chv认为EDC有用且易于使用。与QNN相比,采访者和被采访者在格式、易用性和系统速度方面都更满意EDC。结论:EDC可以作为一种有效的替代基于纸质qnn的数据收集方法。它产生了更准确的数据,可以被认为是基于证据的。
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引用次数: 4
Approaches and challenges to optimising primary care teams' electronic health record usage. 优化初级保健团队电子健康记录使用的方法和挑战。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i3.57
Nancy Pandhi, Wan-Lin Yang, Zaher Karp, Alexander Young, John W Beasley, Sally Kraft, Pascale Carayon

Background: Although the presence of an electronic health record (EHR) alone does not ensure high quality, efficient care, few studies have focused on the work of those charged with optimising use of existing EHR functionality.

Objective: To examine the approaches used and challenges perceived by analysts supporting the optimisation of primary care teams' EHR use at a large U.S. academic health care system.

Methods: A qualitative study was conducted. Optimisation analysts and their supervisor were interviewed and data were analysed for themes.

Results: Analysts needed to reconcile the tension created by organisational mandates focused on the standardisation of EHR processes with the primary care teams' demand for EHR customisation. They gained an understanding of health information technology (HIT) leadership's and primary care team's goals through attending meetings, reading meeting minutes and visiting with clinical teams. Within what was organisationally possible, EHR education could then be tailored to fit team needs. Major challenges were related to organisational attempts to standardise EHR use despite varied clinic contexts, personnel readiness and technical issues with the EHR platform. Forcing standardisation upon clinical needs that current EHR functionality could not satisfy was difficult.

Conclusions: Dedicated optimisation analysts can add value to health systems through playing a mediating role between HIT leadership and care teams. Our findings imply that EHR optimisation should be performed with an in-depth understanding of the workflow, cognitive and interactional activities in primary care.

背景:虽然电子健康记录(EHR)的存在本身并不能确保高质量、高效的护理,但很少有研究关注那些负责优化现有EHR功能使用的人的工作。目的:研究在美国一个大型学术卫生保健系统中,支持初级保健团队使用电子病历优化的分析人员所使用的方法和面临的挑战。方法:进行定性研究。对优化分析师及其主管进行了访谈,并对主题进行了数据分析。结果:分析人员需要协调组织授权所产生的紧张关系,重点是电子病历流程的标准化与初级保健团队对电子病历定制的需求。他们通过参加会议、阅读会议记录和访问临床团队,了解卫生信息技术(HIT)领导层和初级保健团队的目标。在组织可能的范围内,电子病历教育可以根据团队的需要进行调整。主要的挑战与组织尝试标准化电子病历的使用有关,尽管不同的诊所环境,人员准备和电子病历平台的技术问题。目前EHR功能无法满足的临床需求是很难强制标准化的。结论:专门的优化分析师可以通过在HIT领导和护理团队之间发挥中介作用来增加卫生系统的价值。我们的研究结果表明,电子病历优化应该在深入了解初级保健工作流程、认知和互动活动的基础上进行。
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引用次数: 26
Using video-based observation research methods in primary care health encounters to evaluate complex interactions. 在初级保健卫生接触中使用基于视频的观察研究方法来评估复杂的相互作用。
Pub Date : 2014-01-01 DOI: 10.14236/jhi.v21i4.72
Onur Asan, Enid Montague

Objective: The purpose of this paper is to describe the use of video-based observation research methods in primary care environment and highlight important methodological considerations and provide practical guidance for primary care and human factors researchers conducting video studies to understand patient-clinician interaction in primary care settings.

Methods: We reviewed studies in the literature which used video methods in health care research, and we also used our own experience based on the video studies we conducted in primary care settings.

Results: This paper highlighted the benefits of using video techniques, such as multi-channel recording and video coding, and compared "unmanned" video recording with the traditional observation method in primary care research. We proposed a list that can be followed step by step to conduct an effective video study in a primary care setting for a given problem. This paper also described obstacles, researchers should anticipate when using video recording methods in future studies.

Conclusion: With the new technological improvements, video-based observation research is becoming a promising method in primary care and HFE research. Video recording has been under-utilised as a data collection tool because of confidentiality and privacy issues. However, it has many benefits as opposed to traditional observations, and recent studies using video recording methods have introduced new research areas and approaches.

目的:本文的目的是描述基于视频的观察研究方法在初级保健环境中的使用,强调重要的方法学考虑,并为初级保健和人为因素研究人员进行视频研究以了解初级保健环境中的医患互动提供实践指导。方法:我们回顾了在卫生保健研究中使用视频方法的文献,并根据我们在初级保健机构进行的视频研究运用我们自己的经验。结果:本文强调了多通道录像、视频编码等视频技术在基层医疗研究中的优势,并将“无人”录像与传统的观察方法进行了比较。我们提出了一份清单,可以一步一步地进行有效的视频研究,在初级保健环境中针对给定的问题。本文还描述了研究人员在未来研究中使用视频记录方法时应预见的障碍。结论:随着新技术的进步,基于视频的观察研究正在成为初级保健和HFE研究的一种有前途的方法。由于保密性和隐私问题,录像作为一种数据收集工具没有得到充分利用。然而,与传统的观察相比,它有很多好处,最近使用视频记录方法的研究引入了新的研究领域和方法。
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引用次数: 129
期刊
Informatics in Primary Care
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