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El papel de enfermería en el seguimiento de los pacientes con EPOC 护理在慢性阻塞性肺病患者随访中的作用
Q4 Medicine Pub Date : 2024-02-19 DOI: 10.1016/j.opresp.2024.100311
Marta Padilla Bernáldez , Marta Villanueva Pérez , Javier de Miguel-Díez
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引用次数: 0
Diagnosis of Alpha-1 Antitrypsin Deficiency (AATD) in Primary Care 在初级医疗中诊断阿尔法-1 抗胰蛋白酶缺乏症 (AATD)
Q4 Medicine Pub Date : 2024-02-19 DOI: 10.1016/j.opresp.2024.100310
Miriam Barrecheguren , Pablo Panero Hidalgo , Juan Marco Figueira Gonçalves , Javier de Miguel Díez
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引用次数: 0
Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies 对接受家庭呼吸疗法的呼吸系统疾病患者的 "患者体验报告测量"(PREM)问卷 "HowRwe "进行心理计量验证
Q4 Medicine Pub Date : 2024-02-15 DOI: 10.1016/j.opresp.2024.100304
David Rudilla , Tamara Alonso , Elena García , Patricia Pérez , Claudia Valenzuela , Rosa Girón , Enrique Zamora , Joan Soriano , Pedro Landete , Julio Ancochea

Introduction

The patient experience is defined as all the interactions that occur between patients and the healthcare system. The experience of patients with respiratory disease with home respiratory treatments (HRT) is not captured in currently available Patient-Reported Outcome Measures (PROM). We present the psychometric validation of the Patient-Reported Experience Measure (PREM) ‘HowRwe’ in Spanish and for respiratory patients with HRT.

Methods

After translation following ISPOR guidelines (International Society for Pharmacoeconomics and Outcomes Research), the questionnaire was administered to adult respiratory patients who were receiving treatment at Hospital Universitario de La Princesa. The administration was done in two stages with 6 months of difference between the pre- and post-test.

Results

We studied 228 respiratory patients, with a mean (SD) age of 64.1 (13.2) years, 52.2% were men, 68.0% were married or coupled, and 56.6% were retired. Reliability coefficients of the scale were adequate, with α = .921 and Ω = .929 for pre-test, and α = .940 and Ω = .958 for post. The confirmatory factor analysis tested for pre- and post-intervention, showed an excellent overall fit: χ2(2) = 49.380 (p < .001), CFI = .941 and SRMR = .072; and χ2(2) = 37.579 (p < .001), CFI = .982 and SRMR = .046, respectively. No statistically significant associations were observed for neither age, adherence nor quality of life, except between HowRwe post-test and quality of life pre-test (r = .14 [.01,.26]; p = .035). No significant differences were found in sociodemographic variables. No differences in pre-test or post-test were found in effect of HRT. 85.6% of patients found the content of HowRwe “Useful”, and the preferred channel to respond it were paper, app and email.

Conclusions

The Spanish version of the ‘HowRwe’ questionnaire to measure the experience in respiratory patients with home respiratory treatments (HRT), has adequate psychometric properties and conceptual and semantic equivalence with the original English version.

导言:患者体验是指患者与医疗系统之间发生的所有互动。目前可用的 "患者报告结果测量法"(PROM)并未反映呼吸系统疾病患者在接受家庭呼吸治疗(HRT)时的体验。方法根据 ISPOR 指南(国际药物经济学与结果研究学会)翻译问卷后,对在拉普林塞萨大学医院接受治疗的成年呼吸道疾病患者进行了问卷调查。结果我们研究了 228 名呼吸系统患者,平均(标清)年龄为 64.1(13.2)岁,52.2% 为男性,68.0% 已婚或已婚,56.6% 退休。量表的信度系数适当,前测的信度系数α = .921,Ω = .929;后测的信度系数α = .940,Ω = .958。对干预前和干预后进行的确认性因素分析表明,总体拟合度非常好:χ2(2) = 49.380 (p < .001),CFI = .941 和 SRMR = .072;χ2(2) = 37.579 (p < .001),CFI = .982 和 SRMR = .046。除了 HowRwe 测试后与生活质量测试前之间的关系(r = .14 [.01,.26]; p = .035)外,年龄、依从性和生活质量之间均未发现有统计学意义的关联。在社会人口变量方面没有发现明显差异。在使用 HRT 的效果方面,测试前和测试后没有发现差异。85.6%的患者认为 "HowRwe "问卷的内容 "有用",回答问卷的首选渠道是纸质问卷、应用程序和电子邮件。
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引用次数: 0
Biologics in COPD 慢性阻塞性肺病的生物制剂
Q4 Medicine Pub Date : 2024-02-15 DOI: 10.1016/j.opresp.2024.100306
Ana L. Kersul , Borja G. Cosio
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引用次数: 0
Consenso Delphi de neumólogos argentinos sobre el manejo de los pacientes con EPOC en la vida real 阿根廷肺科专家就慢性阻塞性肺病患者的实际管理达成的德尔菲共识
Q4 Medicine Pub Date : 2024-02-08 DOI: 10.1016/j.opresp.2024.100302
Miguel Penizzotto , Ana López , Carlos S. Wustten , Vanesa Abratte , Sergio Arias

Introduction

COPD is the third cause of death globally and in Argentina COPD has a prevalence of 14.5%, but the management of patients in real life is unknown. The objectives of this work were: a) To know the opinions of pulmonologists in Argentina who manage patients with COPD in different aspects of daily practice. b) Compare our findings with specialists from Spain and c) Consider our results to plan future directives in the management of COPD in our country.

Material and methods

89 pulmonologists from Argentina, experts in COPD, participated in a Delphi consensus, who responded to a survey with five domains. a) Adherence to treatment, b) Control of COPD, c) Treatable features, d) Inhalation devices and e) Accessibility to therapeutic resources.

Results

After two rounds of questions, total consensus was achieved in 77.6% of the statements and discriminating by domain: Treatment adherence: 5/9 (55.5%). COPD control: 10/14 (71.4%). Treatable traits: 6/6 (100%). Inhalation devices: 10/14 (71.4%) and Accessibility to treatment: 6/6 (100%). In most of the affirmations, the results were similar to those obtained by Spanish pulmonologists.

Conclusions

Pulmonologists from Argentina manage COPD patients in a similar way and with minimal differences with our Spanish colleagues. It became evident that, in daily practice, there are factors that negatively impact access to the indicated treatments. Our work could serve as a starting point to improve this situation.

导言慢性阻塞性肺病是全球第三大死因,在阿根廷,慢性阻塞性肺病的发病率为 14.5%,但现实生活中对患者的管理却不得而知。这项工作的目的是:a) 了解阿根廷肺科专家在日常工作中对慢性阻塞性肺病患者不同方面的管理意见;b) 将我们的研究结果与西班牙专家的研究结果进行比较;c) 考虑我们的研究结果,规划未来我国慢性阻塞性肺病的管理方针。材料和方法89 位来自阿根廷的慢性阻塞性肺病专家参与了德尔菲共识,他们对一项包含五个领域的调查做出了回答:a) 坚持治疗;b) 控制慢性阻塞性肺病;c) 可治疗特征;d) 吸入设备;e) 治疗资源的可及性:坚持治疗:5/9 (55.5%).慢性阻塞性肺病控制:10/14(71.4%)。可治疗特征:6/6(100%)。吸入装置:10/14(71.4%)和治疗的可及性:6/6 (100%).结论阿根廷肺科医生管理慢性阻塞性肺疾病患者的方式与西班牙同行相似,差异很小。很明显,在日常实践中,有一些因素对获得指定治疗产生了负面影响。我们的工作可以作为改善这一状况的起点。
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引用次数: 0
Specular Placement After Positive Migration of Endobronchial Stent 支气管内支架阳性移位后的窥镜置入术
Q4 Medicine Pub Date : 2024-01-18 DOI: 10.1016/j.opresp.2024.100299
Pedro J. Rodríguez Martín, Alán J. Solis Solis, Rachid Tazi Mezalek
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引用次数: 0
Lobar Pulmonary Embolism Diagnosed During Endobronchial Ultrasound 支气管内超声诊断出肺叶肺栓塞
Q4 Medicine Pub Date : 2024-01-18 DOI: 10.1016/j.opresp.2024.100298
Juan Cascón-Hernández , Patricia Álvarez Álvarez , Joaquín Martínez-Menéndez
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引用次数: 0
High Follow-up Rate in Smokers With Diffuse Interstitial Lung Diseases: A Magnificent Opportunity for Tobacco Cessation Treatment? 弥漫性间质性肺病吸烟者的高随访率:戒烟治疗的绝佳机会?
Q4 Medicine Pub Date : 2024-01-01 DOI: 10.1016/j.opresp.2023.100292
Alejandro Frino-García , Fernanda Hernández-González , Nuria Albacar , Joel Francesqui , Sandra Cuerpo , Xavier Alsina-Restoy , Nancy Pérez Rodas , María Belén Noboa-Sevilla , Eva Cabrera César , Juan A. Riesco Miranda , Jacobo Sellarés
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引用次数: 0
Challenges of Open Respiratory Archives: Indexing and Impact Factor 开放式呼吸档案的挑战:索引和影响因子
Q4 Medicine Pub Date : 2024-01-01 DOI: 10.1016/j.opresp.2023.100294
Adolfo Alonso-Arroyo , José Ignacio de Granda-Orive , Rafael Aleixandre-Benavent
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引用次数: 0
High-Flow Nasal Therapy Trends in Spain: A Survey-Based Perspective 鼻腔高流量疗法。西班牙使用趋势调查
Q4 Medicine Pub Date : 2024-01-01 DOI: 10.1016/j.opresp.2024.100303
R. Moreno-Zabaleta , P. García Torres , J. Sayas , M. Lujan
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Open Respiratory Archives
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