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Editorial 编辑
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2023-01-02 DOI: 10.1080/13575279.2023.2165301
E. Shaffer-Hudkins, Henry Wood-Downie, Jason Hangauer
This special edition of Child Care in Practice presents a range of articles that consider how the wellbeing of children on the autism spectrum can be promoted. This is considered from different perspectives and in different settings, including in education and healthcare. A consistent theme is the importance of environmental factors and adaptations that can be made at this level to promote wellbeing, as well as interventions that more directly focus on the individual child. The first two papers in this special edition address important and commonly co-occurring issues associated with autism. In the first paper, Donaghy et al. (2022) present a narrative review of co-occurring physical health issues associated within neurodivergent populations, including Ehlers-Danlos syndrome, Joint hypermobility syndrome, pain, and gastro-intestinal problems. The authors discuss the impact such conditions can have on the educational experiences of children on the autism spectrum, as well as barriers to obtaining appropriate support. The paper provides recommendations for key stakeholders to support such health issues, such as making environmental adaptations (e.g. to accommodate sensory processing differences), interoceptive training for the young people with health conditions, and the need for better awareness of co-occurring health issues for those that support these young people. In the second paper, Dr Nicola Cann (2022) discusses sleep problems in autism, including their aetiology and interventions to address such issues in children and adolescents on the autism spectrum. The author highlights the high prevalence of sleep issues in autism and the impact on quality of life this can have. Sleep issues are also linked to core aspects of difference in autism, such as social relationships and repetitive behaviours, as well as anxiety. The paper concludes that adopting a person-centred and multi-disciplinary approach is essential when working with autistic children and adolescents with sleep issues. The third and fourth papers identify contemporary recommendations for supporting neurodiversity both in medical settings, related to sensory processing challenges individuals with autism may experience, as well as discussing broader implications of supporting neurodiversity for individuals with autism. In the third paper (Williams et al., 2022), one author describes first-hand experience as an autistic individual receiving inpatient mental health services as an adolescent, while another is an adoptive parent of children with complex needs as well as a licensed psychotherapist specializing in children and family issues. The paper also discusses differences between traditional person-first terminology and identity-first language utilized throughout the paper, as does the fourth paper, through a contemporary lens. Through qualitative research methodology, the authors detail aspects of inpatient hospital stays that can be particularly aversive for autistic individuals from
本期《实践中的儿童护理》特别版提供了一系列关于如何促进自闭症儿童福祉的文章。这是从不同的角度和在不同的环境中考虑的,包括在教育和保健方面。一个一致的主题是环境因素和适应的重要性,可以在这个层面上促进福祉,以及更直接地关注儿童个体的干预措施。本特别版的前两篇论文讨论了与自闭症相关的重要和常见的问题。在第一篇论文中,Donaghy等人(2022)对神经分化人群中共同发生的身体健康问题进行了叙述性回顾,包括Ehlers-Danlos综合征、关节过度活动综合征、疼痛和胃肠道问题。作者讨论了这些条件可能对自闭症儿童的教育经历产生的影响,以及获得适当支持的障碍。该文件为主要利益攸关方提供了支持此类健康问题的建议,例如进行环境适应(例如,适应感觉处理差异),对有健康状况的年轻人进行内感受性培训,以及需要更好地认识支持这些年轻人的人同时发生的健康问题。在第二篇论文中,Nicola Cann博士(2022)讨论了自闭症患者的睡眠问题,包括其病因和干预措施,以解决自闭症儿童和青少年的这些问题。作者强调了自闭症患者普遍存在的睡眠问题及其对生活质量的影响。睡眠问题也与自闭症的核心差异有关,比如社会关系、重复行为以及焦虑。该论文的结论是,在治疗有睡眠问题的自闭症儿童和青少年时,采用以人为本和多学科的方法是必不可少的。第三篇和第四篇论文确定了在医疗环境中支持神经多样性的当代建议,这些建议与自闭症患者可能遇到的感觉处理挑战有关,并讨论了支持自闭症患者神经多样性的更广泛含义。在第三篇论文中(Williams et al., 2022),一位作者描述了作为一名自闭症患者在青少年时期接受住院心理健康服务的第一手经验,而另一位作者是有复杂需求的儿童的养父母,也是一名专门研究儿童和家庭问题的有执照的心理治疗师。本文还讨论了传统的个人第一术语和身份第一语言之间的差异,贯穿全文,第四篇论文也是如此,通过当代的视角。通过定性研究方法,作者从感官角度详细介绍了住院患者对自闭症患者特别反感的方面,并确定了可能降低自闭症患者压力水平的住宿和解决方案。第四篇论文(Izuno-Garcia et al., 2022)讨论了一些自闭症自我倡导者从个人优先到识别优先语言的神经多样性运动,以及这种范式转变的原因。此外,本文还从自闭症个体和家庭的角度详细介绍了在诊断评估过程中的促进因素和障碍,向青少年披露诊断,以及最近关于儿童或儿童接受诊断后成年生活质量的研究
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引用次数: 0
Neurodiversity in Promoting the Well-Being of Children on the Autism Spectrum 促进自闭症谱系儿童福祉的神经多样性
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2023-01-02 DOI: 10.1080/13575279.2022.2126436
Amy K. Izuno-Garcia, Morgan M. McNeel, Rachel H. Fein
ABSTRACT Autism spectrum disorder (ASD) is a neurodevelopmental disorder marked by differences in social communication and the presence of restricted and repetitive patterns of behaviors and interests [American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders]. The prevalence rate of autism has increased in recent years, now occurring in 1 in 44 children in the United States [Maenner et al. (2021). Prevalence of autism spectrum disorder among children aged 8 years – Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018. Surveillance Summaries, 70(11), 1–16. https://doi.org/10.15585/mmwr.ss7011a1 ]. As more children are identified as autistic, more healthcare and educational professionals are involved in the care of these unique individuals. Understanding the challenges, as well as the strengths, of individuals on the autism spectrum is paramount to promoting the well-being of these children. One framework that aids in better understanding and supporting autistic individuals is the neurodiversity paradigm. The purpose of this practitioner review is to: (1) provide a broad overview of the tenets of the neurodiversity paradigm and (2) provide recommendations for neurodiversity affirming service provision.
摘要自闭症谱系障碍(ASD)是一种神经发育障碍,其特征是社交交流存在差异,行为和兴趣存在受限和重复模式[美国精神病学会。(2013)。精神障碍诊断和统计手册]。近年来,自闭症的患病率有所上升,目前美国每44名儿童中就有1名患有自闭症[Menner等人(2021)。8岁儿童自闭症谱系障碍的患病率——自闭症和发育障碍监测网络,11个站点,美国,2018。监督总结,70(11),1-16。https://doi.org/10.15585/mmwr.ss7011a1]。随着越来越多的儿童被认定为自闭症患者,越来越多的医疗和教育专业人员参与到这些独特个体的护理中。了解自闭症谱系中个体的挑战和优势对于促进这些儿童的福祉至关重要。有助于更好地理解和支持自闭症患者的一个框架是神经多样性范式。这篇从业者综述的目的是:(1)对神经多样性范式的原理进行广泛概述,(2)为神经多样性确认服务提供建议。
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引用次数: 1
Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People: A Topical Review and Recommendation 神经分化儿童和青少年共同发生的身体健康挑战:局部回顾和建议
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2023-01-02 DOI: 10.1080/13575279.2022.2149471
B. Donaghy, D. Moore, Jane Green
ABSTRACT Background Neurodivergence has been established as associated with a significant number of co-occurring physical conditions, particularly for autistic individuals who are at risk for increased pain, hypermobility (including Ehlers-Danlos Syndrome) and gastrointestinal problems. However, data, so far, has been focused on adults and generally limited to discussions of condition prevalence alone. Methods The following article will present a topical review of the literature considering evidence for increased physical health concerns within neurodivergent populations, particularly autistic individuals, with a focus on the impact that these physical health concerns may have in an educational setting. Results and discussion The impact of physical health concerns within neurodivergent populations in an educational setting may be concerning. Such populations may face a range of challenges in obtaining appropriate support for physical conditions. We discuss a number of said challenges including; communication challenges, misattributing physical health symptoms as a part of neurodivergence, and a history of not being believed, which limits symptomatic reporting. We further consider the potential impact these physical health concerns may have on scholastic and social development, such as impacts for attainment and attendance. Furthermore, we provide recommendations for teachers, parents/carers and other allied professionals in young people’s lives, on supporting young neurodivergent people with physical health concerns.
背景:神经分化已被证实与许多共同发生的身体状况有关,特别是对于那些有疼痛增加、活动过度(包括Ehlers-Danlos综合征)和胃肠道问题风险的自闭症患者。然而,到目前为止,数据主要集中在成年人身上,并且通常仅限于单独讨论疾病的患病率。以下文章将对文献进行专题回顾,考虑神经分化人群(特别是自闭症个体)身体健康问题增加的证据,重点关注这些身体健康问题在教育环境中的影响。结果和讨论在教育环境中神经分化人群的身体健康问题的影响可能是值得关注的。这些人群在获得适当的身体条件支持方面可能面临一系列挑战。我们讨论了许多上述挑战,包括;沟通困难,将身体健康症状错误地归因于神经分化的一部分,以及不被相信的历史,这限制了症状报告。我们进一步考虑这些身体健康问题可能对学业和社会发展产生的潜在影响,例如对成绩和出勤的影响。此外,我们为教师、家长/照顾者和其他与年轻人生活相关的专业人员提供建议,以支持有身体健康问题的神经发散性年轻人。
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引用次数: 2
Parents’ Self-efficacy and Children’s Behavior in the First Wave of the COVID-19 Pandemic in Greece 希腊第一波新冠肺炎疫情中父母自我效能感与儿童行为
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2022-10-27 DOI: 10.1080/13575279.2022.2126438
Anastasia Vatou
ABSTRACT This exploratory study examines parents’ views of their parenting self-efficacy and children’s behaviour during the first wave of the COVID-19 pandemic in Greece. One hundred and fifty-nine parents whose children were 3–5 years old completed an online survey. The Short-Form of the Self-Efficacy for Parenting Tasks Index-Toddler Scale (SEPTI-TS) and the Strengths and Difficulties Questionnaire (SDQ) were used to assess parents’ self-efficacy and children’s behaviour problems, respectively. Data were collected from the 1st of April to the 31st of May 2020. Results from the descriptive statistical analysis revealed that young children did not show any behavioural challenges during this period, whereas parents experienced low levels of self-efficacy for their parenting skills, especially on discipline and routines. The results from MANOVA analysis demonstrated that a child’s total difficulties score impacted on a parent’s self-efficacy. The findings suggest that intervention programmes and policies that focus on parents’ support can enhance parents’ self-efficacy during times of crisis.
摘要:这项探索性研究调查了希腊第一波新冠肺炎疫情期间父母对其养育自我效能和儿童行为的看法。159名孩子年龄在3-5岁的父母完成了一项在线调查。采用父母任务自我效能指数幼儿量表(SEPTI-TS)和优势与困难问卷(SDQ)分别评估父母的自我效能感和儿童的行为问题。数据收集时间为2020年4月1日至5月31日。描述性统计分析的结果显示,在此期间,幼儿没有表现出任何行为挑战,而父母在育儿技能方面的自我效能感较低,尤其是在纪律和日常生活方面。MANOVA分析的结果表明,孩子的总困难分数会影响父母的自我效能感。研究结果表明,以父母支持为重点的干预计划和政策可以提高父母在危机时期的自我效能。
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引用次数: 1
The Mediating Role of Self-esteem in the Relationship between Persistence and Satisfaction with School and Life in Elementary School Children 自尊在小学生坚持与学校生活满意度关系中的中介作用
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2022-10-27 DOI: 10.1080/13575279.2022.2124956
Masahiro Imafuku, Airi Akatsuka
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引用次数: 1
An integrated play based curriculum for young children (2nd ed.) 幼儿综合游戏课程(第二版)
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2022-10-27 DOI: 10.1080/13575279.2022.2126217
Catriona Rogers
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引用次数: 0
African Americans Caregiving During COVID-19 非裔美国人在COVID-19期间的护理
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2022-09-27 DOI: 10.1080/13575279.2022.2118672
Nakieta M. Lankster, Jessica C. Williams
ABSTRACT The Coronavirus-19 (COVID-19) pandemic has caused global distress, and communities of color are disproportionately adversely affected. Within this group, many caregivers are concerned about issues such as staying healthy, keeping the family well, paying bills, and caring for children who are housebound. The purpose of this qualitative study is to explore the challenges facing caregivers, the manner in which systemic discrepancies have impacted African American caregivers, and how COVID-19 responses have exacerbated pre-existing issues. To do this, we administered semi-structured interviews to caregivers residing in California, Georgia, Maryland, Indiana, Alabama, and New York regarding their experiences caregiving during the COVID-19 pandemic. Data were then analyzed using grounded theory and content analysis. The results indicate an increase in subjective mental health symptomology, stressors associated with social isolation, and compounded stress due to civil unrest during the COVID-19 pandemic. Practical solutions for practitioners and caregivers are provided based on study findings. In addition, the authors of this study wish to bring awareness to the societal and systemic issues that adversely impact this population.
2019冠状病毒病(COVID-19)大流行给全球带来了痛苦,有色人种社区受到的不利影响尤为严重。在这个群体中,许多照顾者关心的问题是保持健康、保持家庭健康、支付账单和照顾在家的孩子。本定性研究的目的是探讨护理人员面临的挑战,系统性差异对非裔美国护理人员的影响方式,以及COVID-19应对措施如何加剧了已有的问题。为此,我们对居住在加利福尼亚州、佐治亚州、马里兰州、印第安纳州、阿拉巴马州和纽约州的护理人员进行了半结构化访谈,了解他们在COVID-19大流行期间的护理经历。然后使用扎根理论和内容分析对数据进行分析。结果表明,主观心理健康症状增加,与社会隔离相关的压力因素增加,以及COVID-19大流行期间内乱造成的复合压力。根据研究结果,为从业人员和护理人员提供了实用的解决方案。此外,本研究的作者希望引起人们对影响这一人群的社会和系统问题的认识。
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引用次数: 1
Health Education, its Methods and Effects on Parents’ Knowledge, Attitudes, and Behaviours to Prevent Unintentional Child Injuries at Home: A Systematic Review 健康教育、方法及其对父母在家预防儿童意外伤害的知识、态度和行为的影响:系统综述
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2022-09-27 DOI: 10.1080/13575279.2022.2121682
Muna Al Mushaikhi, Julie Taylor, Ben Donagh, A. Swift
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引用次数: 1
Can Child Protection Social Workers Forecast Future Actions, Events and Outcomes? a Case Study of Long-term Work with Five Families. 儿童保护社会工作者能否预测未来的行动、事件和结果?与五个家庭长期工作的个案研究。
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2022-09-27 DOI: 10.1080/13575279.2022.2118674
D. Wilkins, M. Meindl
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引用次数: 0
Child Protection and Welfare During the COVID 19 Pandemic: Revisiting the Value of Resilience-Building, Systems Theory, Adverse Childhood Experiences and Trauma-Informed Approaches COVID - 19大流行期间的儿童保护和福利:重新审视复原力建设、系统理论、不良童年经历和创伤知情方法的价值
IF 1.9 Q3 FAMILY STUDIES Pub Date : 2022-09-27 DOI: 10.1080/13575279.2022.2118673
S. Flynn
ABSTRACT The purpose of this paper is to present a reading of child protection and welfare practice in the recent covid 19 pandemic, with reference to several popular concepts in social work. The focus is on the relevance of these concepts to the contemporary circumstances in which child protection and welfare social workers often now find themselves. The specific intention is to extract learning from four traditionally popular approaches in social work, namely, resilience-building, systems theory, ACES and trauma-informed approaches. This will be achieved by first introducing, and then explaining key ideas and conventions of each approach. Here, relevant and established literature will be referenced to inform explanations. As the utility of the systemic perspective for child protection work is already well established, the paper considers how this perspective can be extended to assist in work with children and young people in the pandemic who have Adverse Childhood Experiences (ACEs). In this paper, exploration of the detail of that extension lies in resilience building and trauma-informed practice. Whilst concepts of trauma-sensitivity and resilience are variously embedded in ACEs literature, their mutual treatment tends to be deficient in one regard. Specifically, these concepts are often not thought about in a systemic manner, necessitating the inclusion of a systemic lens. Overall, the case of child protection and welfare social work offers an important focus by which one might question the relevancy of these approaches to contemporary practice in a global pandemic. In concluding, the paper’s core proposition is revisited. Specifically, it is argued that the focal approaches, traditionally popular in social work, remain both instrumental and imperative, for understanding the complexities of child protection and welfare unfolding in a global pandemic.
摘要本文旨在参考社会工作中的几个流行概念,介绍最近新冠肺炎19大流行中的儿童保护和福利实践。重点是这些概念与儿童保护和福利社会工作者现在所处的当代环境的相关性。具体目的是从四种传统上流行的社会工作方法中汲取经验教训,即复原力建设、系统理论、ACES和创伤知情方法。这将通过首先介绍,然后解释每种方法的关键思想和惯例来实现。在这里,将参考相关和已建立的文献来进行解释。由于系统视角对儿童保护工作的效用已经很好地确立,本文考虑了如何将这一视角扩展到帮助在疫情中有不良儿童经历(ACE)的儿童和年轻人的工作中。在本文中,对这种扩展的细节的探索在于韧性建设和创伤知情实践。虽然创伤敏感性和恢复力的概念在ACE文献中有不同的嵌入,但它们的相互治疗往往在一个方面存在不足。具体而言,这些概念往往没有以系统的方式进行思考,因此必须包含系统的视角。总的来说,儿童保护和福利社会工作的案例提供了一个重要的焦点,人们可能会质疑这些方法与全球疫情中的当代实践的相关性。最后,重新审视了论文的核心命题。具体而言,有人认为,传统上在社会工作中流行的重点方法,对于理解全球疫情中儿童保护和福利的复杂性,仍然是有用和必要的。
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引用次数: 1
期刊
Child Care in Practice
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