Zhen Lim, Si Yin Lim, Siqi Lu, Leslie Morrison Gutman
Background: Web-based mental health forums have the potential to play a significant role in providing accessible support for young people, supplementing in-person services and contributing positively to their mental well-being. However, limited engagement often constrains their impact and effectiveness in supporting young people.
Objective: Using the Behavior Change Wheel framework, this qualitative study explores the barriers and facilitators to young people's engagement with web-based mental health forums, focusing on the behaviors of creating new posts, responding to posts, and reading posts. Behavior change techniques (BCTs) are identified to address these barriers.
Methods: Semistructured interviews were conducted with 13 young people aged 17-25 years who use UK-based youth mental health forums. Three participants self-identified as men, 8 as women, 1 as nonbinary, and 1 chose not to disclose their gender. Transcripts were coded using the Theoretical Domains Framework (TDF), followed by inductive theme generation. TDF barriers were then mapped to BCTs to suggest intervention strategies.
Results: Thematic analysis revealed ten inductive themes across 5 TDF domains. Of these, 3 were enablers, 2 were barriers, and 5 functioned as both enablers and barriers. The findings indicated that skills, beliefs about consequences, emotions, and the social and physical environment are key influences on young people's engagement with web-based mental health forums. Positive emotions experienced after using the forums enabled posting, responding, and reading behaviors. Enablers of more active participation (ie, posting and responding) included anonymity and positive interactions with other users. The presence of moderators acted as an enabler for all 3 behaviors by providing a safe environment, but also as a barrier to posting, as moderation could restrict the content of users' posts. Similarly, mobile access facilitated posting, responding, and reading, whereas layouts not optimized for mobile use acted as barriers to typing and reading on the go.
Conclusions: This study contributes to the existing knowledge base by examining the different ways in which young people engage with youth mental health forums. Different strategies may be prioritized and adopted depending on whether forum providers aim to increase more active forms of engagement (eg, posting and responding, which can be encouraged by fostering positive interactions with other users) or overall engagement (eg, establishing clear rules of engagement and optimizing web page content for mobile access can benefit all forms of engagement). These insights can help improve the delivery of youth mental health forums and foster a positive ecosystem of support for young people.
{"title":"Barriers and Enablers to Young People's Posting, Responding, and Reading Behaviors on Mental Health Forums Using the Behavior Change Wheel: Qualitative Study.","authors":"Zhen Lim, Si Yin Lim, Siqi Lu, Leslie Morrison Gutman","doi":"10.2196/71549","DOIUrl":"10.2196/71549","url":null,"abstract":"<p><strong>Background: </strong>Web-based mental health forums have the potential to play a significant role in providing accessible support for young people, supplementing in-person services and contributing positively to their mental well-being. However, limited engagement often constrains their impact and effectiveness in supporting young people.</p><p><strong>Objective: </strong>Using the Behavior Change Wheel framework, this qualitative study explores the barriers and facilitators to young people's engagement with web-based mental health forums, focusing on the behaviors of creating new posts, responding to posts, and reading posts. Behavior change techniques (BCTs) are identified to address these barriers.</p><p><strong>Methods: </strong>Semistructured interviews were conducted with 13 young people aged 17-25 years who use UK-based youth mental health forums. Three participants self-identified as men, 8 as women, 1 as nonbinary, and 1 chose not to disclose their gender. Transcripts were coded using the Theoretical Domains Framework (TDF), followed by inductive theme generation. TDF barriers were then mapped to BCTs to suggest intervention strategies.</p><p><strong>Results: </strong>Thematic analysis revealed ten inductive themes across 5 TDF domains. Of these, 3 were enablers, 2 were barriers, and 5 functioned as both enablers and barriers. The findings indicated that skills, beliefs about consequences, emotions, and the social and physical environment are key influences on young people's engagement with web-based mental health forums. Positive emotions experienced after using the forums enabled posting, responding, and reading behaviors. Enablers of more active participation (ie, posting and responding) included anonymity and positive interactions with other users. The presence of moderators acted as an enabler for all 3 behaviors by providing a safe environment, but also as a barrier to posting, as moderation could restrict the content of users' posts. Similarly, mobile access facilitated posting, responding, and reading, whereas layouts not optimized for mobile use acted as barriers to typing and reading on the go.</p><p><strong>Conclusions: </strong>This study contributes to the existing knowledge base by examining the different ways in which young people engage with youth mental health forums. Different strategies may be prioritized and adopted depending on whether forum providers aim to increase more active forms of engagement (eg, posting and responding, which can be encouraged by fostering positive interactions with other users) or overall engagement (eg, establishing clear rules of engagement and optimizing web page content for mobile access can benefit all forms of engagement). These insights can help improve the delivery of youth mental health forums and foster a positive ecosystem of support for young people.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e71549"},"PeriodicalIF":3.0,"publicationDate":"2025-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12619017/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145423155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Arisara Jiamsanguanwong, Romanee Luo, Ratchapoom Kaingam, Oran Kittithreerapronchai, Waratta Authayarat
Background: With the rising global adoption of telemedicine, there is a crucial need to address inefficiencies and challenges in current service systems. This case study focused on enhancing the telemedicine service system of a traditional Chinese medicine clinic.
Objective: The primary objective was to identify and address pain points and inefficiencies in the existing telemedicine system with the aim of streamlining service operations for the benefit of both patients and service providers.
Methods: Through comprehensive service design analysis, including the creation of a customer journey map and a service blueprint, key areas for improvement were identified, and the service process was redesigned accordingly. A user-friendly web application was developed and evaluated using usability testing and satisfaction assessments. Participants took part voluntarily. Task testing was conducted using real-world scenarios, with index of item-objective congruence values ranging from 0.84 to 1.00. Participants were assigned role-specific tasks as either patients or service providers in a step-by-step format, followed by role-specific paper-based questionnaires.
Results: The redesigned system successfully streamlined operations by automating processes and reducing task complexity, resulting in improved time efficiency for both user groups. Participants included 6 patients (aged 23-54 years) and 7 service providers from various departments. Usability testing revealed a task success rate of 100% for all tasks among patients, coordinators, physicians, and finance personnel as well as 83.33% among pharmacists. Satisfaction outcomes were positive: patients reported a net promoter score of 67, whereas service providers reported a mean System Usability Scale score of 71.4 (SD 20.76).
Conclusions: This study highlights the transformative potential of telemedicine in health care delivery. For patients, consolidating services into a single digital platform improved accessibility and ease of use. For service providers, the system reduced repetitive tasks and facilitated more efficient task completion. These findings demonstrate the effectiveness of service design methodologies in enhancing telemedicine systems, ultimately contributing to improved health care quality and patient outcomes.
{"title":"Redesigning Telemedicine for Traditional Chinese Medicine: Service Design Approach to Digital Transformation.","authors":"Arisara Jiamsanguanwong, Romanee Luo, Ratchapoom Kaingam, Oran Kittithreerapronchai, Waratta Authayarat","doi":"10.2196/76752","DOIUrl":"10.2196/76752","url":null,"abstract":"<p><strong>Background: </strong>With the rising global adoption of telemedicine, there is a crucial need to address inefficiencies and challenges in current service systems. This case study focused on enhancing the telemedicine service system of a traditional Chinese medicine clinic.</p><p><strong>Objective: </strong>The primary objective was to identify and address pain points and inefficiencies in the existing telemedicine system with the aim of streamlining service operations for the benefit of both patients and service providers.</p><p><strong>Methods: </strong>Through comprehensive service design analysis, including the creation of a customer journey map and a service blueprint, key areas for improvement were identified, and the service process was redesigned accordingly. A user-friendly web application was developed and evaluated using usability testing and satisfaction assessments. Participants took part voluntarily. Task testing was conducted using real-world scenarios, with index of item-objective congruence values ranging from 0.84 to 1.00. Participants were assigned role-specific tasks as either patients or service providers in a step-by-step format, followed by role-specific paper-based questionnaires.</p><p><strong>Results: </strong>The redesigned system successfully streamlined operations by automating processes and reducing task complexity, resulting in improved time efficiency for both user groups. Participants included 6 patients (aged 23-54 years) and 7 service providers from various departments. Usability testing revealed a task success rate of 100% for all tasks among patients, coordinators, physicians, and finance personnel as well as 83.33% among pharmacists. Satisfaction outcomes were positive: patients reported a net promoter score of 67, whereas service providers reported a mean System Usability Scale score of 71.4 (SD 20.76).</p><p><strong>Conclusions: </strong>This study highlights the transformative potential of telemedicine in health care delivery. For patients, consolidating services into a single digital platform improved accessibility and ease of use. For service providers, the system reduced repetitive tasks and facilitated more efficient task completion. These findings demonstrate the effectiveness of service design methodologies in enhancing telemedicine systems, ultimately contributing to improved health care quality and patient outcomes.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e76752"},"PeriodicalIF":3.0,"publicationDate":"2025-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12560961/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145393453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Minyoung Jung, Jimin Woo, Sung Jin Kim, You Bin Lim, Younglae Kim, Dongwon Kang, Jung-Sang Min, Bung-Nyun Kim
Background: Attention-deficit/hyperactivity disorder (ADHD) is a prevalent neurodevelopmental disorder affecting 3%-7% of children globally. Alternative treatments are needed to address the limitations of traditional pharmacotherapy and nonpharmacotherapy, such as drug side effects and substantial time and financial costs. In this light, digital therapeutics for childhood ADHD are emerging as an effective alternative, with the benefits of potentially being free from serious side effects associated with software-based treatments and facilitating easy home use without constraints on time or space.
Objective: This study aims to evaluate whether a 4-week digital treatment program can improve symptoms, problem behaviors, and neurocognitive functions in children with ADHD, independent of medication status, while also gauging participant satisfaction with the program.
Methods: We recruited 22 Korean children aged 6-12 years with a diagnosis of ADHD. During the preintervention visit, we collected data on ADHD symptoms, relevant behavior scales, and neurocognitive assessments. Participants then used the program 5 times per day, 5 days a week for 4 weeks at home. At the postintervention visit, we collected the same data as during the preintervention visit and gathered additional feedback on their experience over the 4 weeks.
Results: A total of 19 participants were included in the statistical analysis, showing significant decreases in scores across various categories. These included the Korean ADHD Rating Scale (Total: P=.004; Inattentive: P=.004; and Hyperactive-impulsive: P=.01) and Korean Conners' Parent Rating Scale (Total: P<.001; Impulsive-hyperactive: P=.001; and Conduct Problem I: P=.04). Significant improvements were also noted in the Stroop word (P=.004), color (P<.001), and color-word (P<.001) scores. No significant differences in treatment effects were found between medicated and unmedicated participants. Caregiver and child satisfaction surveys yielded mean ratings of 4.3 and 4.1 out of 5, respectively.
Conclusions: A 4-week gamified intervention improves attention and hyperactivity-impulsivity in children with ADHD, irrespective of medication status, demonstrating its potential effectiveness and acceptability as a treatment option. As this is a small pilot study and underpowered, larger studies with appropriate control groups are needed in future research.
{"title":"Efficacy and Compliance of a Working Memory Multitasking Task Mobile Intervention for Children With Attention-Deficit/Hyperactivity Disorder: Single-Arm, Pre-Post Pilot Study.","authors":"Minyoung Jung, Jimin Woo, Sung Jin Kim, You Bin Lim, Younglae Kim, Dongwon Kang, Jung-Sang Min, Bung-Nyun Kim","doi":"10.2196/70479","DOIUrl":"10.2196/70479","url":null,"abstract":"<p><strong>Background: </strong>Attention-deficit/hyperactivity disorder (ADHD) is a prevalent neurodevelopmental disorder affecting 3%-7% of children globally. Alternative treatments are needed to address the limitations of traditional pharmacotherapy and nonpharmacotherapy, such as drug side effects and substantial time and financial costs. In this light, digital therapeutics for childhood ADHD are emerging as an effective alternative, with the benefits of potentially being free from serious side effects associated with software-based treatments and facilitating easy home use without constraints on time or space.</p><p><strong>Objective: </strong>This study aims to evaluate whether a 4-week digital treatment program can improve symptoms, problem behaviors, and neurocognitive functions in children with ADHD, independent of medication status, while also gauging participant satisfaction with the program.</p><p><strong>Methods: </strong>We recruited 22 Korean children aged 6-12 years with a diagnosis of ADHD. During the preintervention visit, we collected data on ADHD symptoms, relevant behavior scales, and neurocognitive assessments. Participants then used the program 5 times per day, 5 days a week for 4 weeks at home. At the postintervention visit, we collected the same data as during the preintervention visit and gathered additional feedback on their experience over the 4 weeks.</p><p><strong>Results: </strong>A total of 19 participants were included in the statistical analysis, showing significant decreases in scores across various categories. These included the Korean ADHD Rating Scale (Total: P=.004; Inattentive: P=.004; and Hyperactive-impulsive: P=.01) and Korean Conners' Parent Rating Scale (Total: P<.001; Impulsive-hyperactive: P=.001; and Conduct Problem I: P=.04). Significant improvements were also noted in the Stroop word (P=.004), color (P<.001), and color-word (P<.001) scores. No significant differences in treatment effects were found between medicated and unmedicated participants. Caregiver and child satisfaction surveys yielded mean ratings of 4.3 and 4.1 out of 5, respectively.</p><p><strong>Conclusions: </strong>A 4-week gamified intervention improves attention and hyperactivity-impulsivity in children with ADHD, irrespective of medication status, demonstrating its potential effectiveness and acceptability as a treatment option. As this is a small pilot study and underpowered, larger studies with appropriate control groups are needed in future research.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e70479"},"PeriodicalIF":3.0,"publicationDate":"2025-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12605269/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145393473","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Carol Gonzalez, Marcos Real, Nargis Ahmadi, Raghad Aljenabi, Lana Bridi, Nour Makarem, Job Godino, Tala Al-Rousan
Background: Mass displacement is a grand public health challenge. Refugees and immigrants experience a disparate hypertension burden and disparities in self-management. Successful hypertension self-management is key for improving outcomes, but research on its feasibility in refugee and immigrant health care settings is limited.
Objective: This study aimed to identify clinic staff-perceived barriers to and facilitators of implementing a digital intervention for hypertension self-management among refugee and immigrant patients and to identify its feasibility and usability.
Methods: Primary care physicians and medical assistants who care for refugees and immigrants in San Diego were interviewed using human-centered semistructured methods (n=18). Interviews were analyzed using an inductive approach. Usability testing for the software (Med Pro Care) was conducted with participants (n=15) to test the feasibility of real-time tracking of blood pressure (BP) home readings for hypertension self-management. Clinical staff rated their satisfaction on the System Usability Scale and the NASA Task Load Index, which measured mental workload.
Results: For refugee and immigrant patients self-managing hypertension, clinical staff identified barriers and facilitators in the following areas: (1) social determinants of health increase hypertension burden among refugee and immigrant patients, (2) clinical staff face challenges to effective hypertension care for refugee and immigrant patients, (3) perceived benefits of potential intervention for self-management, and (4) perceived barriers to potential intervention for self-management. Primary care physicians completed 90% of the tasks, and medical assistants completed 83% of the tasks successfully. Most clinic staff found the software system for monitoring BP to be easy to use with an average score for usability of 4.1 of 5.0 (SD 0.4).
Conclusions: Addressing identified barriers to and facilitators of self-management of hypertension is crucial to designing effective interventions in real-world refugee and immigrant health care settings. Telemonitoring interventions using software that transfers BP readings to clinical staff in real time may be feasible from the perspective of clinic staff and can address hypertension disparities in marginalized populations, such as immigrants and refugees. Addressing identified barriers to and facilitators of self-management is crucial to designing effective interventions in real-world refugee and immigrant health care settings. Our findings suggest that clinic staff view digital telemonitoring as both feasible and supportive of patient empowerment, health literacy, and improved communication-factors essential to addressing hypertension disparities in marginalized populations.
背景:大规模流离失所是一项重大的公共卫生挑战。难民和移民在高血压负担和自我管理方面存在差异。成功的高血压自我管理是改善预后的关键,但对其在难民和移民卫生保健机构可行性的研究有限。目的:本研究旨在确定诊所工作人员对难民和移民患者高血压自我管理实施数字干预的障碍和促进因素,并确定其可行性和可用性。方法:采用以人为中心的半结构化方法对圣地亚哥难民和移民的初级保健医生和医疗助理进行访谈(n=18)。访谈采用归纳法进行分析。对该软件(Med Pro Care)进行可用性测试(n=15),以测试实时跟踪血压(BP)家庭读数用于高血压自我管理的可行性。临床工作人员对系统可用性量表和NASA任务负荷指数(衡量心理工作量)的满意度进行了评分。结果:对于难民和移民患者的高血压自我管理,临床工作人员发现了以下方面的障碍和促进因素:(1)健康的社会决定因素增加了难民和移民患者的高血压负担;(2)临床工作人员面临有效的难民和移民患者高血压护理挑战;(3)自我管理潜在干预的感知利益;(4)自我管理潜在干预的感知障碍。初级保健医生完成了90%的任务,医疗助理成功完成了83%的任务。大多数临床工作人员认为血压监测软件系统易于使用,可用性平均得分为4.1分(SD 0.4)。结论:解决高血压自我管理的障碍和促进因素对于在现实世界的难民和移民卫生保健环境中设计有效的干预措施至关重要。从临床工作人员的角度来看,使用将血压读数实时传递给临床工作人员的软件进行远程监测干预可能是可行的,并且可以解决边缘化人群(如移民和难民)的高血压差异。解决自我管理方面已确定的障碍和促进因素,对于在现实世界的难民和移民保健环境中设计有效的干预措施至关重要。我们的研究结果表明,临床工作人员认为数字远程监测既可行又支持患者赋权、健康素养和改善沟通——这些因素对于解决边缘化人群的高血压差异至关重要。
{"title":"Providers' Perspective on the Feasibility of Digital Self-Management of Blood Pressure in Refugees: Mixed Methods Study.","authors":"Carol Gonzalez, Marcos Real, Nargis Ahmadi, Raghad Aljenabi, Lana Bridi, Nour Makarem, Job Godino, Tala Al-Rousan","doi":"10.2196/66176","DOIUrl":"10.2196/66176","url":null,"abstract":"<p><strong>Background: </strong>Mass displacement is a grand public health challenge. Refugees and immigrants experience a disparate hypertension burden and disparities in self-management. Successful hypertension self-management is key for improving outcomes, but research on its feasibility in refugee and immigrant health care settings is limited.</p><p><strong>Objective: </strong>This study aimed to identify clinic staff-perceived barriers to and facilitators of implementing a digital intervention for hypertension self-management among refugee and immigrant patients and to identify its feasibility and usability.</p><p><strong>Methods: </strong>Primary care physicians and medical assistants who care for refugees and immigrants in San Diego were interviewed using human-centered semistructured methods (n=18). Interviews were analyzed using an inductive approach. Usability testing for the software (Med Pro Care) was conducted with participants (n=15) to test the feasibility of real-time tracking of blood pressure (BP) home readings for hypertension self-management. Clinical staff rated their satisfaction on the System Usability Scale and the NASA Task Load Index, which measured mental workload.</p><p><strong>Results: </strong>For refugee and immigrant patients self-managing hypertension, clinical staff identified barriers and facilitators in the following areas: (1) social determinants of health increase hypertension burden among refugee and immigrant patients, (2) clinical staff face challenges to effective hypertension care for refugee and immigrant patients, (3) perceived benefits of potential intervention for self-management, and (4) perceived barriers to potential intervention for self-management. Primary care physicians completed 90% of the tasks, and medical assistants completed 83% of the tasks successfully. Most clinic staff found the software system for monitoring BP to be easy to use with an average score for usability of 4.1 of 5.0 (SD 0.4).</p><p><strong>Conclusions: </strong>Addressing identified barriers to and facilitators of self-management of hypertension is crucial to designing effective interventions in real-world refugee and immigrant health care settings. Telemonitoring interventions using software that transfers BP readings to clinical staff in real time may be feasible from the perspective of clinic staff and can address hypertension disparities in marginalized populations, such as immigrants and refugees. Addressing identified barriers to and facilitators of self-management is crucial to designing effective interventions in real-world refugee and immigrant health care settings. Our findings suggest that clinic staff view digital telemonitoring as both feasible and supportive of patient empowerment, health literacy, and improved communication-factors essential to addressing hypertension disparities in marginalized populations.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e66176"},"PeriodicalIF":3.0,"publicationDate":"2025-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12551932/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145369036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tessy Boedt, Sharon Lie Fong, Eline Dancet, Merijn Mestdagh, Joke Verbeke, David Geerts, Carl Spiessens, Christophe Matthys
Background: Mobile apps are a promising way to improve healthy lifestyle behavior among people with infertility. However, sufficient engagement with mobile health apps is crucial to influence health outcomes, and identifying features to create more effective interventions is urgently needed.
Objective: This study conducted a process evaluation focusing on the use and user experience of the PreLiFe app, a mobile lifestyle app for couples undergoing in vitro fertilization (IVF).
Methods: A mixed methods approach was used among heterosexual couples with infertility undergoing IVF. An objective quantitative study using a tracking-based system assessed the actual use of the PreLiFe app over time in relation to partner use and in relation to the specific fertility treatment. A subjective quantitative study using online questionnaires assessed the acceptability (using the Mobile App Rating Scale) and partner support (based on the Social Support for Diet and Exercise Scale) experienced while using the PreLiFe app. A subjective qualitative study using semistructured interviews evaluated in-depth user experiences with the PreLiFe app.
Results: A total of 106 couples used the PreLiFe app for 2 to 365 days. Overall use was low; 18.9% (20/106) of the men and 49.1% (52/106) of the women used all the modules of the PreLiFe app. Mixed-model analyses revealed that higher app use was observed when a partner used the app as well and during fertility treatment. The average acceptability score was 6 (SD 1) of 10, and patients felt supported by their partners while using the app. Semistructured interviews with 10 patients indicated that the PreLiFe app was easy to use.
Conclusions: Our findings showed good acceptability and user experiences but low actual objective use of a preconception lifestyle app for couples undergoing IVF. To increase use of and engagement with such apps, future studies should further focus on personalization and interaction with partners, health care providers, and other patient data systems.
{"title":"Use and User Experience of a Preconception Lifestyle App for Couples Undergoing in Vitro Fertilization: Mixed Methods Study.","authors":"Tessy Boedt, Sharon Lie Fong, Eline Dancet, Merijn Mestdagh, Joke Verbeke, David Geerts, Carl Spiessens, Christophe Matthys","doi":"10.2196/65815","DOIUrl":"10.2196/65815","url":null,"abstract":"<p><strong>Background: </strong>Mobile apps are a promising way to improve healthy lifestyle behavior among people with infertility. However, sufficient engagement with mobile health apps is crucial to influence health outcomes, and identifying features to create more effective interventions is urgently needed.</p><p><strong>Objective: </strong>This study conducted a process evaluation focusing on the use and user experience of the PreLiFe app, a mobile lifestyle app for couples undergoing in vitro fertilization (IVF).</p><p><strong>Methods: </strong>A mixed methods approach was used among heterosexual couples with infertility undergoing IVF. An objective quantitative study using a tracking-based system assessed the actual use of the PreLiFe app over time in relation to partner use and in relation to the specific fertility treatment. A subjective quantitative study using online questionnaires assessed the acceptability (using the Mobile App Rating Scale) and partner support (based on the Social Support for Diet and Exercise Scale) experienced while using the PreLiFe app. A subjective qualitative study using semistructured interviews evaluated in-depth user experiences with the PreLiFe app.</p><p><strong>Results: </strong>A total of 106 couples used the PreLiFe app for 2 to 365 days. Overall use was low; 18.9% (20/106) of the men and 49.1% (52/106) of the women used all the modules of the PreLiFe app. Mixed-model analyses revealed that higher app use was observed when a partner used the app as well and during fertility treatment. The average acceptability score was 6 (SD 1) of 10, and patients felt supported by their partners while using the app. Semistructured interviews with 10 patients indicated that the PreLiFe app was easy to use.</p><p><strong>Conclusions: </strong>Our findings showed good acceptability and user experiences but low actual objective use of a preconception lifestyle app for couples undergoing IVF. To increase use of and engagement with such apps, future studies should further focus on personalization and interaction with partners, health care providers, and other patient data systems.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e65815"},"PeriodicalIF":3.0,"publicationDate":"2025-10-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12569494/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145287418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<p><strong>Background: </strong>Endometriosis is a chronic disease that affects 1 in 10 women worldwide. The disease affects patients' daily life at physical, psychological, and social levels. In recent years, the management of this disease has evolved, thanks in particular to the emergence of digital technologies and associated interventions. However, despite their growing use, there seems to be no systematic review of their development, design, and efficacy.</p><p><strong>Objective: </strong>A systematic review was conducted with the aim of characterizing the development process, design, and effectiveness of interventions using a digital tool for endometriosis.</p><p><strong>Methods: </strong>A total of 7 databases (MEDLINE, APA PsycArticles, Academic Search Premier, Psychology and Behavioral Sciences Collection, APA PsycInfo, SocINDEX, and SPORTDiscus) were searched to identify relevant articles published between 2010 and 2024. The articles selected were analyzed using a methodological framework specific to the development of digital health interventions (Design and Evaluation of Digital Health Interventions [DEDHI]), consisting of 4 phases: preparation (phase 1, specific to application development), optimization (phase 2, dedicated to identifying the best intervention configurations), evaluation (phase 3, aiming to confirm the effectiveness of the intervention), and implementation (phase 4, implementing and updating the intervention on a large scale).</p><p><strong>Results: </strong>A selection of 10 articles was made from the 381 studies retrieved from the databases. Among these 10 studies, 6 distinct digital health interventions were identified. The interventions based on digital devices produced physical and psychological benefits. Analysis using the DEDHI framework showed (1) a disparity in the responses to the different phases (ie, 9/10, 90% of studies responding to phase 1; 3/10, 30% to phase 2; 4/10, 40% to phase 3; and 2/10, 20% to phase 4) and (2) a variability in the completion of the evaluation criteria ranging from 10% (1/10) to 80% (8/10) in phase 1, 0% (0/13) to 77% (10/13) in phase 2, 0% (0/10) to 80% (8/10) in phase 3, and finally 0% (0/13) to 77% (10/13) in phase 4. The objectives of these digital interventions were to support pain management (5/6, 83%), to provide information about the disease and strategies for managing it (4/6, 67%), and to provide psychosocial support (2/6, 33%).</p><p><strong>Conclusions: </strong>This systematic review highlights an emerging literature, limited regarding the use of digital technology in the management of endometriosis, and heterogeneous concerning the methodologies used. This variability limits the generalizability of the results and requires a nuanced interpretation of the available data. However, the results of this review have demonstrated the value of digital technology-based interventions to support endometriosis, while highlighting the importance of a methodological framework to s
{"title":"Endometriosis Support and Development of Digital Technology-Based Interventions: Systematic Review.","authors":"Tivizio Pavic, Kévin Nadarajah, Alain Somat, Geneviève Cabagno, Florence Terrade","doi":"10.2196/71859","DOIUrl":"10.2196/71859","url":null,"abstract":"<p><strong>Background: </strong>Endometriosis is a chronic disease that affects 1 in 10 women worldwide. The disease affects patients' daily life at physical, psychological, and social levels. In recent years, the management of this disease has evolved, thanks in particular to the emergence of digital technologies and associated interventions. However, despite their growing use, there seems to be no systematic review of their development, design, and efficacy.</p><p><strong>Objective: </strong>A systematic review was conducted with the aim of characterizing the development process, design, and effectiveness of interventions using a digital tool for endometriosis.</p><p><strong>Methods: </strong>A total of 7 databases (MEDLINE, APA PsycArticles, Academic Search Premier, Psychology and Behavioral Sciences Collection, APA PsycInfo, SocINDEX, and SPORTDiscus) were searched to identify relevant articles published between 2010 and 2024. The articles selected were analyzed using a methodological framework specific to the development of digital health interventions (Design and Evaluation of Digital Health Interventions [DEDHI]), consisting of 4 phases: preparation (phase 1, specific to application development), optimization (phase 2, dedicated to identifying the best intervention configurations), evaluation (phase 3, aiming to confirm the effectiveness of the intervention), and implementation (phase 4, implementing and updating the intervention on a large scale).</p><p><strong>Results: </strong>A selection of 10 articles was made from the 381 studies retrieved from the databases. Among these 10 studies, 6 distinct digital health interventions were identified. The interventions based on digital devices produced physical and psychological benefits. Analysis using the DEDHI framework showed (1) a disparity in the responses to the different phases (ie, 9/10, 90% of studies responding to phase 1; 3/10, 30% to phase 2; 4/10, 40% to phase 3; and 2/10, 20% to phase 4) and (2) a variability in the completion of the evaluation criteria ranging from 10% (1/10) to 80% (8/10) in phase 1, 0% (0/13) to 77% (10/13) in phase 2, 0% (0/10) to 80% (8/10) in phase 3, and finally 0% (0/13) to 77% (10/13) in phase 4. The objectives of these digital interventions were to support pain management (5/6, 83%), to provide information about the disease and strategies for managing it (4/6, 67%), and to provide psychosocial support (2/6, 33%).</p><p><strong>Conclusions: </strong>This systematic review highlights an emerging literature, limited regarding the use of digital technology in the management of endometriosis, and heterogeneous concerning the methodologies used. This variability limits the generalizability of the results and requires a nuanced interpretation of the available data. However, the results of this review have demonstrated the value of digital technology-based interventions to support endometriosis, while highlighting the importance of a methodological framework to s","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e71859"},"PeriodicalIF":3.0,"publicationDate":"2025-10-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12569497/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145293961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mirou Jaana, Maude Lévesque Ryan, Haitham Tamim, Edward Riachy, Guy Paré
Background: The aging population presents challenges for healthcare systems. Assistive technologies (ATs) like telemonitoring, fall detection, and self-monitoring devices offer potential solutions to support older adults and their care. However, successful implementation relies on their acceptance, which remains poorly understood, particularly among non-users.
Objective: This study explores older adults' perceptions of ATs, including perceived benefits, adoption barriers, and factors influencing willingness to use these technologies.
Methods: A qualitative study was conducted with 31 participants (aged 65+) with varying levels of health and care needs. Data were collected through six focus groups and six in-depth interviews, then analyzed thematically using NVivo software.
Results: Seven themes emerged: 1) Limited familiarity, with greater recognition of fall detection and self-monitoring devices compared to telemonitoring; 2) Perceived benefits, include safety, independence, and chronic disease management; 3) Key concerns include usability, cost, reliability, privacy, and psychological impacts; 4) Suggested improvements comprise user-friendly designs and training programs; 5) Contextual influences identified with independent older adults perceiving greater utility; 6) Strategies for ATs' promotion proposed such as media campaigns, government subsidies, and healthcare endorsements; and 7) Overall willingness to adopt ATs, driven by perceived need, social and healthcare influence, and ease of use.
Conclusions: While ATs offer clear benefits, adoption remains limited due to usability, cost, and psychological concerns. Improving accessibility, training, and integration into traditional healthcare services delivery may facilitate acceptance and use. Future research should focus on inclusive designs and policy interventions to maximize ATs' potential in aging populations.
{"title":"A Qualitative Study of Older Adults' Perspectives on Assistive Technology: Yes but No Thanks!","authors":"Mirou Jaana, Maude Lévesque Ryan, Haitham Tamim, Edward Riachy, Guy Paré","doi":"10.2196/74214","DOIUrl":"10.2196/74214","url":null,"abstract":"<p><strong>Background: </strong>The aging population presents challenges for healthcare systems. Assistive technologies (ATs) like telemonitoring, fall detection, and self-monitoring devices offer potential solutions to support older adults and their care. However, successful implementation relies on their acceptance, which remains poorly understood, particularly among non-users.</p><p><strong>Objective: </strong>This study explores older adults' perceptions of ATs, including perceived benefits, adoption barriers, and factors influencing willingness to use these technologies.</p><p><strong>Methods: </strong>A qualitative study was conducted with 31 participants (aged 65+) with varying levels of health and care needs. Data were collected through six focus groups and six in-depth interviews, then analyzed thematically using NVivo software.</p><p><strong>Results: </strong>Seven themes emerged: 1) Limited familiarity, with greater recognition of fall detection and self-monitoring devices compared to telemonitoring; 2) Perceived benefits, include safety, independence, and chronic disease management; 3) Key concerns include usability, cost, reliability, privacy, and psychological impacts; 4) Suggested improvements comprise user-friendly designs and training programs; 5) Contextual influences identified with independent older adults perceiving greater utility; 6) Strategies for ATs' promotion proposed such as media campaigns, government subsidies, and healthcare endorsements; and 7) Overall willingness to adopt ATs, driven by perceived need, social and healthcare influence, and ease of use.</p><p><strong>Conclusions: </strong>While ATs offer clear benefits, adoption remains limited due to usability, cost, and psychological concerns. Improving accessibility, training, and integration into traditional healthcare services delivery may facilitate acceptance and use. Future research should focus on inclusive designs and policy interventions to maximize ATs' potential in aging populations.</p><p><strong>Clinicaltrial: </strong></p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":" ","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12608056/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145303791","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<p><strong>Background: </strong>As digital technology advances, health-related data can be scientifically analyzed to predict illnesses. The analysis of international data collected during health examinations and health status monitoring, along with data collected during medical care delivery, can contribute to precision medicine and the public good. Understanding citizens' attitudes and predictors of digital health data sharing is critical in promoting data-driven research.</p><p><strong>Objective: </strong>This study aims to determine the public acceptability of data sharing and the attitudes and influencing factors toward data sharing.</p><p><strong>Methods: </strong>A cross-sectional web-based survey was conducted in Japan from November 11-18, 2023. We analyzed 1000 valid responses. Five factors were investigated as predictors of participants' attitudes toward sharing digital health data for social benefit: (1) individual sociodemographic characteristics, (2) types of health data shared, (3) motivation for sharing data, (4) data sharing concerns, and (5) reasonable access and control over the data. The association of these factors with the respondents' willingness to share was analyzed. We summarized demographic characteristics based on gender, age group, affiliated educational institution, and education history and degree. Continuous variables are expressed as mean (SE). Logistic regression was used to analyze the association between attitudes and acceptability of sharing digital health data and the predicting factors, such as participants' preferences regarding data access and control, underlying concerns, motivations for data sharing, demographic characteristics, and eHealth literacy.</p><p><strong>Results: </strong>The mean age of the participants and the SD was 52.8 (19.8) years. We identified the factors influencing respondents' willingness to share a wide range of personal digital health data in Japan, including data in medical records, biobank samples, and digitized social communication. Approximately 70% of the participants were willing to share their digital health data. The motives associated with positive willingness to share digital health data were helping future patients (odds ratio [OR] 2.5860, 95% CI 1.8849-3.5481; P<.001), receiving their own results (OR 2.2261, 95% CI 1.6243-3.0509; P<.001), and receiving financial benefits (OR 1.8059, 95% CI 1.2630-2.5822; P=.001). Concerns associated with negative willingness to share data were data being used for unethical projects (OR 0.5104, 95% CI 0.5104-0.722; P<.001) and agreeing to contract terms that they did not fully understand (OR 0.7114, 95% CI 0.5228-0.9681; P=.04). Compared with men, women were less willing to share data (OR 0.722, 95% CI 0.539-0.967; P=.03). Furthermore, the higher one's eHealth literacy, the more positive their willingness to share digital health data (OR 1.0680, 95% CI 1.0450-1.0920; P<.001).</p><p><strong>Conclusions: </strong>This study found difference
背景:随着数字技术的进步,健康相关数据可以被科学地分析以预测疾病。对健康检查和健康状况监测期间收集的国际数据以及在提供医疗服务期间收集的数据进行分析,可以促进精准医疗和公益事业。了解公民对数字卫生数据共享的态度和预测因素对于促进数据驱动的研究至关重要。目的:本研究旨在确定公众对数据共享的接受程度以及对数据共享的态度和影响因素。方法:于2023年11月11-18日在日本进行基于网络的横断面调查。我们分析了1000个有效回复。研究调查了五个因素作为参与者为社会利益共享数字健康数据态度的预测因子:(1)个人社会人口学特征;(2)共享健康数据的类型;(3)共享数据的动机;(4)数据共享的关注点;(5)对数据的合理访问和控制。分析了这些因素与被调查者分享意愿的关系。我们根据性别、年龄、附属教育机构、教育历史和学位总结了人口统计学特征。连续变量表示为平均值(SE)。使用逻辑回归分析共享数字健康数据的态度和可接受性与预测因素之间的关系,如参与者对数据访问和控制的偏好、潜在问题、数据共享的动机、人口统计学特征和电子健康素养。结果:参与者的平均年龄和SD分别为52.8(19.8)岁。我们确定了影响日本受访者愿意分享广泛的个人数字健康数据的因素,包括医疗记录、生物银行样本和数字化社会通信中的数据。大约70%的参与者愿意分享他们的数字健康数据。与积极分享数字健康数据意愿相关的动机是帮助未来的患者(优势比[OR] 2.5860, 95% CI 1.8849-3.5481;结论:本研究发现人们愿意分享的数据类型存在差异。因此,应该充分向人们传达共享数据的重要性,以激励他们共享数据,为他们的整体健康做出贡献。
{"title":"Public Attitudes and Predictors of Public Awareness of Personal Digital Health Data Sharing for Research: Cross-Sectional Study in Japan.","authors":"Yasue Fukuda, Koji Fukuda","doi":"10.2196/64192","DOIUrl":"10.2196/64192","url":null,"abstract":"<p><strong>Background: </strong>As digital technology advances, health-related data can be scientifically analyzed to predict illnesses. The analysis of international data collected during health examinations and health status monitoring, along with data collected during medical care delivery, can contribute to precision medicine and the public good. Understanding citizens' attitudes and predictors of digital health data sharing is critical in promoting data-driven research.</p><p><strong>Objective: </strong>This study aims to determine the public acceptability of data sharing and the attitudes and influencing factors toward data sharing.</p><p><strong>Methods: </strong>A cross-sectional web-based survey was conducted in Japan from November 11-18, 2023. We analyzed 1000 valid responses. Five factors were investigated as predictors of participants' attitudes toward sharing digital health data for social benefit: (1) individual sociodemographic characteristics, (2) types of health data shared, (3) motivation for sharing data, (4) data sharing concerns, and (5) reasonable access and control over the data. The association of these factors with the respondents' willingness to share was analyzed. We summarized demographic characteristics based on gender, age group, affiliated educational institution, and education history and degree. Continuous variables are expressed as mean (SE). Logistic regression was used to analyze the association between attitudes and acceptability of sharing digital health data and the predicting factors, such as participants' preferences regarding data access and control, underlying concerns, motivations for data sharing, demographic characteristics, and eHealth literacy.</p><p><strong>Results: </strong>The mean age of the participants and the SD was 52.8 (19.8) years. We identified the factors influencing respondents' willingness to share a wide range of personal digital health data in Japan, including data in medical records, biobank samples, and digitized social communication. Approximately 70% of the participants were willing to share their digital health data. The motives associated with positive willingness to share digital health data were helping future patients (odds ratio [OR] 2.5860, 95% CI 1.8849-3.5481; P<.001), receiving their own results (OR 2.2261, 95% CI 1.6243-3.0509; P<.001), and receiving financial benefits (OR 1.8059, 95% CI 1.2630-2.5822; P=.001). Concerns associated with negative willingness to share data were data being used for unethical projects (OR 0.5104, 95% CI 0.5104-0.722; P<.001) and agreeing to contract terms that they did not fully understand (OR 0.7114, 95% CI 0.5228-0.9681; P=.04). Compared with men, women were less willing to share data (OR 0.722, 95% CI 0.539-0.967; P=.03). Furthermore, the higher one's eHealth literacy, the more positive their willingness to share digital health data (OR 1.0680, 95% CI 1.0450-1.0920; P<.001).</p><p><strong>Conclusions: </strong>This study found difference","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e64192"},"PeriodicalIF":3.0,"publicationDate":"2025-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12510434/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145259291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Liam Pearce Allan, Jane Li, Tara Purvis, David Silvera-Tawil, Jan Cameron, Marlien Varnfield, Vanessa Smallbon, Julia Bomke, Natasha A Lannin, Dominique A Cadilhac
Background: We co-designed the novel multicomponent CAPS (Care Assistant and support Program for people after Stroke or transient ischemic attack) to augment the secondary prevention of stroke.
Objective: Following completion of a feasibility study, we sought feedback from Australian clinicians and service provider representatives (the potential deliverers of CAPS) regarding their perceptions of CAPS for secondary prevention and the pathways to real-world adoption.
Methods: This was a qualitative descriptive study of clinicians and service provider representatives involved in the delivery of stroke care around Australia. A pragmatic convenience sample was obtained by contacting previous CAPS co-design study participants; leveraging professional networks (eg, LinkedIn); and distributing study flyers and newsletters via primary health care networks, general practitioner (GP) networks, and social media posts (Commonwealth Scientific and Industrial Research Organization's LinkedIn pages). Semistructured interviews and focus groups were conducted virtually with clinicians and representatives of the Stroke Foundation (Australia). Qualitative content analysis was undertaken.
Results: Overall, 18 clinicians and 3 Stroke Foundation representatives participated from 5 Australian states, including medical specialists, GPs, nurses, and allied health professionals. We collected their perceptions of CAPS, categorized as potential benefits of the program for secondary prevention, and the considerations for facilitators and challenges to real-world program implementation. The perceived benefits of supporting self-management for patients and facilitating informed decision-making for clinicians were identified. Discussions regarding program implementation included program initiation and duration, patient support considerations, and workflow alignment, which involved consideration of the barriers and enablers to uptake within primary care practice and Stroke Foundation outreach support programs.
Conclusions: There was support from participants for the potential of CAPS to improve the secondary prevention of stroke. However, approaches for addressing the challenges raised by participants, including further implementation and integration considerations, such as sustainability of the model of care, are likely required for CAPS to be successfully embedded within clinical settings.
{"title":"Clinician Perceptions of a Novel Multicomponent Digital Care Assistant and Support Program for People After Stroke or Transient Ischemic Attack (CAPS) for the Secondary Prevention of Stroke: Qualitative Study.","authors":"Liam Pearce Allan, Jane Li, Tara Purvis, David Silvera-Tawil, Jan Cameron, Marlien Varnfield, Vanessa Smallbon, Julia Bomke, Natasha A Lannin, Dominique A Cadilhac","doi":"10.2196/72873","DOIUrl":"10.2196/72873","url":null,"abstract":"<p><strong>Background: </strong>We co-designed the novel multicomponent CAPS (Care Assistant and support Program for people after Stroke or transient ischemic attack) to augment the secondary prevention of stroke.</p><p><strong>Objective: </strong>Following completion of a feasibility study, we sought feedback from Australian clinicians and service provider representatives (the potential deliverers of CAPS) regarding their perceptions of CAPS for secondary prevention and the pathways to real-world adoption.</p><p><strong>Methods: </strong>This was a qualitative descriptive study of clinicians and service provider representatives involved in the delivery of stroke care around Australia. A pragmatic convenience sample was obtained by contacting previous CAPS co-design study participants; leveraging professional networks (eg, LinkedIn); and distributing study flyers and newsletters via primary health care networks, general practitioner (GP) networks, and social media posts (Commonwealth Scientific and Industrial Research Organization's LinkedIn pages). Semistructured interviews and focus groups were conducted virtually with clinicians and representatives of the Stroke Foundation (Australia). Qualitative content analysis was undertaken.</p><p><strong>Results: </strong>Overall, 18 clinicians and 3 Stroke Foundation representatives participated from 5 Australian states, including medical specialists, GPs, nurses, and allied health professionals. We collected their perceptions of CAPS, categorized as potential benefits of the program for secondary prevention, and the considerations for facilitators and challenges to real-world program implementation. The perceived benefits of supporting self-management for patients and facilitating informed decision-making for clinicians were identified. Discussions regarding program implementation included program initiation and duration, patient support considerations, and workflow alignment, which involved consideration of the barriers and enablers to uptake within primary care practice and Stroke Foundation outreach support programs.</p><p><strong>Conclusions: </strong>There was support from participants for the potential of CAPS to improve the secondary prevention of stroke. However, approaches for addressing the challenges raised by participants, including further implementation and integration considerations, such as sustainability of the model of care, are likely required for CAPS to be successfully embedded within clinical settings.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e72873"},"PeriodicalIF":3.0,"publicationDate":"2025-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12510440/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145259330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah Annalise Sanders, Serwaa Omowale, Andrea Casas, Alexis Kiyanda, Abigail Smith Kosbie, Yu-Hsuan Lai, Meredith Wallace, Stephen Rathbun, Tiffany Gary-Webb, Esa Davis, Lora Burke, Dara Méndez
Background: The collection of dietary behavior data is crucial in childbearing populations. In addition to observed inequities in perinatal dietary intake and quality, burdensome assessment methods (eg, 24-h dietary recall) may limit research participation for some groups. Ecological momentary assessment (EMA) is associated with reduced recall bias and participant convenience, but there is a dearth of studies with diverse cohorts.
Objective: Our aim is to describe participant completion of food intake items in EMA surveys, overall and across individual characteristics (eg, prepregnancy BMI).
Methods: Using secondary EMA data from participants in a longitudinal study, we report average completion rates of survey items regarding dietary behavior (eg, number of meals eaten in a day) across individual demographic variables (eg, age) and combined strata (eg, race+age) during late pregnancy and throughout 12 months post partum.
Results: In our analytic sample (N=310), the average completion rate was 52.4% (SD 27.8%) during pregnancy, rising to 59.1% (SD 22.0%) after giving birth. Participants who were older (>30 y), overweight before pregnancy, self-identified as White, working, or earning higher annual income (>US $50,000) had higher average completion rates than their counterparts. Examining combined strata, we found some variation in survey completion within racial groups. Black participants using a study phone had higher average completion rates during pregnancy and post partum, but this relationship was reversed for White participants.
Conclusions: Our secondary analysis showed relatively stable engagement with EMA surveys in a childbearing cohort across 15 months. Increased completion rates among privileged groups (eg, White, higher income) may demonstrate the impact of socioeconomic advantages on individual health behaviors. Investigators should consider how intersections between race and other factors (eg, employment) may impact participation and data collection.
{"title":"Completion Rates for Ecological Momentary Assessments of Food Intake During Pregnancy and Post Partum: Descriptive Study.","authors":"Sarah Annalise Sanders, Serwaa Omowale, Andrea Casas, Alexis Kiyanda, Abigail Smith Kosbie, Yu-Hsuan Lai, Meredith Wallace, Stephen Rathbun, Tiffany Gary-Webb, Esa Davis, Lora Burke, Dara Méndez","doi":"10.2196/67081","DOIUrl":"10.2196/67081","url":null,"abstract":"<p><strong>Background: </strong>The collection of dietary behavior data is crucial in childbearing populations. In addition to observed inequities in perinatal dietary intake and quality, burdensome assessment methods (eg, 24-h dietary recall) may limit research participation for some groups. Ecological momentary assessment (EMA) is associated with reduced recall bias and participant convenience, but there is a dearth of studies with diverse cohorts.</p><p><strong>Objective: </strong>Our aim is to describe participant completion of food intake items in EMA surveys, overall and across individual characteristics (eg, prepregnancy BMI).</p><p><strong>Methods: </strong>Using secondary EMA data from participants in a longitudinal study, we report average completion rates of survey items regarding dietary behavior (eg, number of meals eaten in a day) across individual demographic variables (eg, age) and combined strata (eg, race+age) during late pregnancy and throughout 12 months post partum.</p><p><strong>Results: </strong>In our analytic sample (N=310), the average completion rate was 52.4% (SD 27.8%) during pregnancy, rising to 59.1% (SD 22.0%) after giving birth. Participants who were older (>30 y), overweight before pregnancy, self-identified as White, working, or earning higher annual income (>US $50,000) had higher average completion rates than their counterparts. Examining combined strata, we found some variation in survey completion within racial groups. Black participants using a study phone had higher average completion rates during pregnancy and post partum, but this relationship was reversed for White participants.</p><p><strong>Conclusions: </strong>Our secondary analysis showed relatively stable engagement with EMA surveys in a childbearing cohort across 15 months. Increased completion rates among privileged groups (eg, White, higher income) may demonstrate the impact of socioeconomic advantages on individual health behaviors. Investigators should consider how intersections between race and other factors (eg, employment) may impact participation and data collection.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e67081"},"PeriodicalIF":3.0,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12507379/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145253072","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}