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Public Attitudes and Predictors of Public Awareness of Personal Digital Health Data Sharing for Research: Cross-Sectional Study in Japan. 个人数字健康数据共享的公众态度和公众意识的预测因素:日本的横断面研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-09 DOI: 10.2196/64192
Yasue Fukuda, Koji Fukuda
<p><strong>Background: </strong>As digital technology advances, health-related data can be scientifically analyzed to predict illnesses. The analysis of international data collected during health examinations and health status monitoring, along with data collected during medical care delivery, can contribute to precision medicine and the public good. Understanding citizens' attitudes and predictors of digital health data sharing is critical in promoting data-driven research.</p><p><strong>Objective: </strong>This study aims to determine the public acceptability of data sharing and the attitudes and influencing factors toward data sharing.</p><p><strong>Methods: </strong>A cross-sectional web-based survey was conducted in Japan from November 11-18, 2023. We analyzed 1000 valid responses. Five factors were investigated as predictors of participants' attitudes toward sharing digital health data for social benefit: (1) individual sociodemographic characteristics, (2) types of health data shared, (3) motivation for sharing data, (4) data sharing concerns, and (5) reasonable access and control over the data. The association of these factors with the respondents' willingness to share was analyzed. We summarized demographic characteristics based on gender, age group, affiliated educational institution, and education history and degree. Continuous variables are expressed as mean (SE). Logistic regression was used to analyze the association between attitudes and acceptability of sharing digital health data and the predicting factors, such as participants' preferences regarding data access and control, underlying concerns, motivations for data sharing, demographic characteristics, and eHealth literacy.</p><p><strong>Results: </strong>The mean age of the participants and the SD was 52.8 (19.8) years. We identified the factors influencing respondents' willingness to share a wide range of personal digital health data in Japan, including data in medical records, biobank samples, and digitized social communication. Approximately 70% of the participants were willing to share their digital health data. The motives associated with positive willingness to share digital health data were helping future patients (odds ratio [OR] 2.5860, 95% CI 1.8849-3.5481; P<.001), receiving their own results (OR 2.2261, 95% CI 1.6243-3.0509; P<.001), and receiving financial benefits (OR 1.8059, 95% CI 1.2630-2.5822; P=.001). Concerns associated with negative willingness to share data were data being used for unethical projects (OR 0.5104, 95% CI 0.5104-0.722; P<.001) and agreeing to contract terms that they did not fully understand (OR 0.7114, 95% CI 0.5228-0.9681; P=.04). Compared with men, women were less willing to share data (OR 0.722, 95% CI 0.539-0.967; P=.03). Furthermore, the higher one's eHealth literacy, the more positive their willingness to share digital health data (OR 1.0680, 95% CI 1.0450-1.0920; P<.001).</p><p><strong>Conclusions: </strong>This study found difference
背景:随着数字技术的进步,健康相关数据可以被科学地分析以预测疾病。对健康检查和健康状况监测期间收集的国际数据以及在提供医疗服务期间收集的数据进行分析,可以促进精准医疗和公益事业。了解公民对数字卫生数据共享的态度和预测因素对于促进数据驱动的研究至关重要。目的:本研究旨在确定公众对数据共享的接受程度以及对数据共享的态度和影响因素。方法:于2023年11月11-18日在日本进行基于网络的横断面调查。我们分析了1000个有效回复。研究调查了五个因素作为参与者为社会利益共享数字健康数据态度的预测因子:(1)个人社会人口学特征;(2)共享健康数据的类型;(3)共享数据的动机;(4)数据共享的关注点;(5)对数据的合理访问和控制。分析了这些因素与被调查者分享意愿的关系。我们根据性别、年龄、附属教育机构、教育历史和学位总结了人口统计学特征。连续变量表示为平均值(SE)。使用逻辑回归分析共享数字健康数据的态度和可接受性与预测因素之间的关系,如参与者对数据访问和控制的偏好、潜在问题、数据共享的动机、人口统计学特征和电子健康素养。结果:参与者的平均年龄和SD分别为52.8(19.8)岁。我们确定了影响日本受访者愿意分享广泛的个人数字健康数据的因素,包括医疗记录、生物银行样本和数字化社会通信中的数据。大约70%的参与者愿意分享他们的数字健康数据。与积极分享数字健康数据意愿相关的动机是帮助未来的患者(优势比[OR] 2.5860, 95% CI 1.8849-3.5481;结论:本研究发现人们愿意分享的数据类型存在差异。因此,应该充分向人们传达共享数据的重要性,以激励他们共享数据,为他们的整体健康做出贡献。
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引用次数: 0
Clinician Perceptions of a Novel Multicomponent Digital Care Assistant and Support Program for People After Stroke or Transient Ischemic Attack (CAPS) for the Secondary Prevention of Stroke: Qualitative Study. 临床医生对卒中或短暂性脑缺血发作(CAPS)后患者用于卒中二级预防的新型多组分数字护理助理和支持计划的看法:定性研究
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-09 DOI: 10.2196/72873
Liam Pearce Allan, Jane Li, Tara Purvis, David Silvera-Tawil, Jan Cameron, Marlien Varnfield, Vanessa Smallbon, Julia Bomke, Natasha A Lannin, Dominique A Cadilhac

Background: We co-designed the novel multicomponent CAPS (Care Assistant and support Program for people after Stroke or transient ischemic attack) to augment the secondary prevention of stroke.

Objective: Following completion of a feasibility study, we sought feedback from Australian clinicians and service provider representatives (the potential deliverers of CAPS) regarding their perceptions of CAPS for secondary prevention and the pathways to real-world adoption.

Methods: This was a qualitative descriptive study of clinicians and service provider representatives involved in the delivery of stroke care around Australia. A pragmatic convenience sample was obtained by contacting previous CAPS co-design study participants; leveraging professional networks (eg, LinkedIn); and distributing study flyers and newsletters via primary health care networks, general practitioner (GP) networks, and social media posts (Commonwealth Scientific and Industrial Research Organization's LinkedIn pages). Semistructured interviews and focus groups were conducted virtually with clinicians and representatives of the Stroke Foundation (Australia). Qualitative content analysis was undertaken.

Results: Overall, 18 clinicians and 3 Stroke Foundation representatives participated from 5 Australian states, including medical specialists, GPs, nurses, and allied health professionals. We collected their perceptions of CAPS, categorized as potential benefits of the program for secondary prevention, and the considerations for facilitators and challenges to real-world program implementation. The perceived benefits of supporting self-management for patients and facilitating informed decision-making for clinicians were identified. Discussions regarding program implementation included program initiation and duration, patient support considerations, and workflow alignment, which involved consideration of the barriers and enablers to uptake within primary care practice and Stroke Foundation outreach support programs.

Conclusions: There was support from participants for the potential of CAPS to improve the secondary prevention of stroke. However, approaches for addressing the challenges raised by participants, including further implementation and integration considerations, such as sustainability of the model of care, are likely required for CAPS to be successfully embedded within clinical settings.

背景:我们共同设计了一种新型的多组分CAPS(卒中或短暂性脑缺血发作后护理助理和支持计划),以增强卒中的二级预防。目的:在完成可行性研究后,我们从澳大利亚临床医生和服务提供者代表(cap的潜在提供者)那里寻求反馈,了解他们对cap用于二级预防的看法以及实际应用的途径。方法:这是一项定性描述性研究,涉及澳大利亚各地卒中护理的临床医生和服务提供者代表。通过联系以前的CAPS共同设计研究参与者获得实用方便样本;利用专业网络(如LinkedIn);并通过初级卫生保健网络、全科医生(GP)网络和社交媒体帖子(英联邦科学与工业研究组织的LinkedIn页面)分发研究传单和通讯。与临床医生和中风基金会(澳大利亚)的代表进行了半结构化访谈和焦点小组。进行定性内容分析。结果:总体而言,来自澳大利亚5个州的18名临床医生和3名中风基金会代表参与了研究,包括医学专家、全科医生、护士和专职卫生专业人员。我们收集了他们对cap的看法,将其归类为二级预防计划的潜在好处,以及对现实世界计划实施的促进者和挑战的考虑。支持患者自我管理和促进临床医生知情决策的感知利益被确定。关于项目实施的讨论包括项目启动和持续时间、患者支持考虑和工作流程对齐,其中涉及到初级保健实践和卒中基金会外展支持项目中采用的障碍和推动因素。结论:参与者支持CAPS改善卒中二级预防的潜力。然而,解决参与者提出的挑战的方法,包括进一步的实施和整合考虑,如护理模式的可持续性,可能需要CAPS成功地嵌入临床环境。
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引用次数: 0
Completion Rates for Ecological Momentary Assessments of Food Intake During Pregnancy and Post Partum: Descriptive Study. 孕期和产后食物摄入生态瞬时评估的完成率:描述性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-08 DOI: 10.2196/67081
Sarah Annalise Sanders, Serwaa Omowale, Andrea Casas, Alexis Kiyanda, Abigail Smith Kosbie, Yu-Hsuan Lai, Meredith Wallace, Stephen Rathbun, Tiffany Gary-Webb, Esa Davis, Lora Burke, Dara Méndez

Background: The collection of dietary behavior data is crucial in childbearing populations. In addition to observed inequities in perinatal dietary intake and quality, burdensome assessment methods (eg, 24-h dietary recall) may limit research participation for some groups. Ecological momentary assessment (EMA) is associated with reduced recall bias and participant convenience, but there is a dearth of studies with diverse cohorts.

Objective: Our aim is to describe participant completion of food intake items in EMA surveys, overall and across individual characteristics (eg, prepregnancy BMI).

Methods: Using secondary EMA data from participants in a longitudinal study, we report average completion rates of survey items regarding dietary behavior (eg, number of meals eaten in a day) across individual demographic variables (eg, age) and combined strata (eg, race+age) during late pregnancy and throughout 12 months post partum.

Results: In our analytic sample (N=310), the average completion rate was 52.4% (SD 27.8%) during pregnancy, rising to 59.1% (SD 22.0%) after giving birth. Participants who were older (>30 y), overweight before pregnancy, self-identified as White, working, or earning higher annual income (>US $50,000) had higher average completion rates than their counterparts. Examining combined strata, we found some variation in survey completion within racial groups. Black participants using a study phone had higher average completion rates during pregnancy and post partum, but this relationship was reversed for White participants.

Conclusions: Our secondary analysis showed relatively stable engagement with EMA surveys in a childbearing cohort across 15 months. Increased completion rates among privileged groups (eg, White, higher income) may demonstrate the impact of socioeconomic advantages on individual health behaviors. Investigators should consider how intersections between race and other factors (eg, employment) may impact participation and data collection.

背景:在育龄人群中收集饮食行为数据是至关重要的。除了观察到的围产期饮食摄入和质量方面的不公平之外,繁琐的评估方法(例如,24小时饮食回忆)可能会限制某些群体的研究参与。生态瞬时评估(EMA)与减少回忆偏差和参与者便利性有关,但缺乏不同队列的研究。目的:我们的目的是描述参与者在EMA调查中食物摄入项目的完成情况,包括总体和跨个体特征(如孕前BMI)。方法:利用纵向研究参与者的二次EMA数据,我们报告了在怀孕后期和产后12个月期间,跨个体人口统计学变量(如年龄)和综合阶层(如种族+年龄)的饮食行为(如每天吃多少顿饭)调查项目的平均完成率。结果:在我们的分析样本(N=310)中,怀孕期间平均完成率为52.4% (SD 27.8%),分娩后平均完成率为59.1% (SD 22.0%)。年龄较大(50 - 30岁)、怀孕前体重超标、自我认定为白人、有工作或年收入较高(50 - 5万美元)的参与者的平均完成率高于同龄参与者。在考察联合地层时,我们发现在种族群体内的调查完成情况有所不同。使用研究手机的黑人参与者在怀孕和产后的平均完成率更高,但这种关系在白人参与者中正好相反。结论:我们的二次分析显示,在15个月的育龄队列中,EMA调查的参与相对稳定。特权群体(如白人、高收入群体)完成率的提高可能表明社会经济优势对个人健康行为的影响。调查人员应考虑种族和其他因素(如就业)之间的交集如何影响参与和数据收集。
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引用次数: 0
Text Messaging Between Patients With Inflammatory Rheumatic Diseases and Pharmacists to Solve Drug-Related Problems: Prospective Feasibility Study. 风湿病患者与药师短信解决药物相关问题的前瞻性可行性研究
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-08 DOI: 10.2196/66514
Lex L Haegens, Charlotte L Bekker, Marcel Flendrie, Bart J F van den Bemt, Victor J B Huiskes
<p><strong>Background: </strong>Patients with inflammatory rheumatic diseases often experience drug-related problems (DRPs). As these can result in negative health consequences, DRPs should be identified and addressed in a timely manner. Text messaging between patients and pharmacists at the initiative of the patient has the potential to deliver support with DRPs more continuously, increase accessibility and efficiency, and enhance patient involvement in the process of identifying and solving DRPs.</p><p><strong>Objective: </strong>This study aimed to assess the feasibility of text messaging from both the patients' and health care practitioners' perspectives before a large-scale implementation.</p><p><strong>Methods: </strong>Adult patients using a disease-modifying antirheumatic drug were given access to text messaging with pharmacists to discuss DRPs for a period of 8 weeks. Patients received a response from a pharmacist within 4 working hours. Feasibility was evaluated based on five domains of Bowen's framework for designing feasibility studies: (1) demand: actual use, expressed interest (user version of the Mobile Application Rating Scale - section E), and factors impacting future use; (2) limited efficacy: number of DRPs solved, DRPs resulting in follow-up, and DRPs warranting involvement of health care provider; (3) implementation: degree of execution (number of conversations answered within service level) and resources needed (pharmacists' time investment per conversation); (4) acceptability: satisfaction and appropriateness (theoretical framework of acceptability); and (5) practicality: ability to carry out intervention activities (System Usability Scale). Data were collected by means of usage data and a questionnaire.</p><p><strong>Results: </strong>In total, 45 patients (median age 57, IQR 52-65 y; n=31, 69% female) and 5 pharmacists (median age 41, IQR 26-47 y; n=1, 20% female) actively participated in this study. In the demand domain, 158 unique DRPs were raised in 133 conversations, with a median of 3 (IQR 2-4) unique DRPs per patient. Expressed interest was rated high by patients (median 4, IQR 4-5), and 90% (37/41) of patients would recommend text messaging to others. In the limited-efficacy domain, all DRPs were solved, and 77% (122/158) of DRPs warranted involvement of a health care provider. In the implementation domain, 87% (116/133) of conversations were answered within the promised timeframe with a median time investment of 4:15 (IQR 2:21-7:27) minutes per conversation. Acceptability was rated high by patients (median 4, IQR 4-5) and pharmacists (median 5, IQR 4-5). Finally, in the practicality domain, System Usability Scale was scored above average for patients (mean 72, SD 18) and pharmacists (mean 81, SD 16).</p><p><strong>Conclusions: </strong>Text messaging with pharmacists at the initiative of patients with rheumatic diseases seems feasible for discussing DRPs in terms of limited efficacy, implementation, acceptability,
背景:炎症性风湿病患者经常经历药物相关问题(DRPs)。由于这些可能导致负面的健康后果,因此应及时查明和处理不良反应。由患者主动发起的患者和药剂师之间的短信有可能更持续地提供drp支持,提高可及性和效率,并增强患者在识别和解决drp过程中的参与度。目的:本研究旨在从患者和医护人员的角度评估短信在大规模实施前的可行性。方法:给予使用一种改善疾病的抗风湿药物的成年患者与药师通过短信讨论drp的机会,为期8周。患者在4个工作小时内收到药剂师的答复。可行性评估基于Bowen设计可行性研究框架的五个领域:(1)需求:实际使用,表达的兴趣(移动应用程序评级量表的用户版本-部分E),以及影响未来使用的因素;(2)有限的疗效:解决的drp数量,导致的drp随访,以及需要卫生保健提供者参与的drp;(3)执行度:执行度(服务等级内应答的会话数)和所需资源(药师每次会话的时间投入);(4)可接受性:满意和适当性(可接受性的理论框架);(5)实用性:开展干预活动的能力(系统可用性量表)。通过使用数据和问卷调查的方式收集数据。结果:共有45名患者(中位年龄57岁,IQR 52-65岁,女性31人,占69%)和5名药师(中位年龄41岁,IQR 26-47岁,女性1人,占20%)积极参与本研究。在需求领域,133次对话中提出了158个独特的drp,每位患者的中位数为3 (IQR 2-4)个独特drp。患者对表达兴趣的评价很高(中位数4,IQR 4-5), 90%(37/41)的患者会向他人推荐短信。在有限疗效领域,所有drp都得到了解决,77%(122/158)的drp需要医疗保健提供者的介入。在实现领域,87%(116/133)的会话在承诺的时间范围内得到回答,每个会话的平均时间投入为4:15分钟(IQR 2:21-7:27)。患者(中位数4,IQR 4-5)和药师(中位数5,IQR 4-5)对可接受性评价较高。最后,在实用性方面,患者(平均72分,SD 18)和药剂师(平均81分,SD 16)的系统可用性量表得分高于平均水平。结论:风湿病患者主动与药师发短信讨论DRPs在患者和药师的有限疗效、实施、可接受性、需求和实用性方面似乎是可行的。
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引用次数: 0
Correction: Identifying Contextual Factors and Strategies for Practice Facilitation in Primary Care Quality Improvement Using an Informatics-Driven Model: Framework Development and Mixed Methods Case Study. 修正:使用信息学驱动模型识别初级保健质量改进实践促进的背景因素和策略:框架开发和混合方法案例研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-08 DOI: 10.2196/84390

[This corrects the article DOI: 10.2196/32174.].

[更正文章DOI: 10.2196/32174]。
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引用次数: 0
Impact of Digital Phenotypes and Question-Asking on Emotional Disorders in Adolescents: 4-Week Field Study. 数字表现型和提问对青少年情绪障碍的影响:为期4周的实地研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-07 DOI: 10.2196/66536
Minseo Cho, Doeun Park, Myounglee Choo, Doug Hyun Han, Jinwoo Kim
<p><strong>Background: </strong>Adolescence is the period with the highest incidence of mental disorders, with approximately one-third, half, and two-thirds of cases emerging by ages 14, 18, and 25 years, respectively. Proactive interventions are essential, and digital phenotyping has emerged as a promising approach for timely detection and management. However, passive digital phenotyping is limited to sensor-detectable behaviors, while active phenotyping is often confined to clinical scales, missing the opportunity to capture users' subjective perspectives and emotional nuances. Furthermore, the potential therapeutic effect of the data collection process itself on emotional disorder management remains underexplored.</p><p><strong>Objective: </strong>This study developed and tested a mobile app that collects passive and active digital phenotypes related to adolescents' emotions and daily behaviors. The study aimed to assess the app's impact on managing emotional disorders through self-monitoring and to identify daily lifestyle indicators that can predict and track the development of such disorders.</p><p><strong>Methods: </strong>A 4-week parallel, nonequivalent control group design was employed. The intervention group installed a digital phenotype collection tool on their mobile devices for 28 days. Passive data (location, sleep, and screen time) were continuously recorded. Active data were collected through ecological momentary assessments delivered randomly up to 8 times daily, prompting participants to report their current mood and levels of depression, anxiety, and stress. The control group received no intervention. Both groups were assessed at time points on emotional disorders, self-efficacy, and time management. Postintervention interviews were conducted with the intervention group.</p><p><strong>Results: </strong>Thirty-six Korean adolescents participated (19 control, 17 intervention). The intervention group showed significant reductions in depression (P=.04, d=0.42) and stress (P=.03, d=0.46) and improvements in self-efficacy (P=.002, d=0.50) and time management abilities (P<.001, d=0.39), with small to large effect sizes. No significant change was observed in anxiety levels (P=.11). Correlational analysis revealed weak but significant links between passive digital phenotypes and daily emotional states.</p><p><strong>Conclusions: </strong>Integrating active and passive digital phenotypes through a mobile collection tool can help manage emotional disorders in adolescents. Use of the tool was associated with moderate reductions in depression and stress, as well as improvements in self-efficacy and time management, while anxiety levels remained unchanged, possibly due to adolescents' differing perceptions of anxiety. Passive digital phenotypes such as location variability and phone usage showed modest correlations with daily emotional states, supporting their potential as ecological markers. These findings suggest that digital phenotype co
背景:青春期是精神障碍发病率最高的时期,大约三分之一、一半和三分之二的病例分别出现在14岁、18岁和25岁。主动干预至关重要,数字表型分析已成为一种有希望及时发现和管理的方法。然而,被动数字表型仅限于传感器可检测的行为,而主动表型往往局限于临床尺度,错过了捕捉用户主观观点和情感细微差别的机会。此外,数据收集过程本身对情绪障碍管理的潜在治疗效果仍未得到充分探讨。目的:本研究开发并测试了一款收集与青少年情绪和日常行为相关的被动和主动数字表型的移动应用程序。该研究旨在评估该应用程序对通过自我监控管理情绪障碍的影响,并确定可以预测和跟踪此类疾病发展的日常生活方式指标。方法:采用4周平行非等效对照组设计。干预组在他们的移动设备上安装了一个数字表型收集工具28天。被动数据(位置、睡眠和屏幕时间)被连续记录下来。通过每天随机提供多达8次的生态瞬时评估收集活动数据,促使参与者报告他们当前的情绪和抑郁、焦虑和压力水平。对照组不进行干预。在时间点对两组进行情绪障碍、自我效能和时间管理的评估。对干预组进行干预后访谈。结果:36名韩国青少年参与其中(对照组19名,干预组17名)。干预组抑郁(P= 0.04, d=0.42)和压力(P= 0.03, d=0.46)显著降低,自我效能感(P= 0.002, d=0.50)和时间管理能力(P= 0.50)显著提高。结论:通过移动收集工具整合主动和被动数字表型有助于管理青少年情绪障碍。使用该工具可以适度减少抑郁和压力,改善自我效能和时间管理,而焦虑水平保持不变,这可能是由于青少年对焦虑的不同看法。被动数字表现型,如位置可变性和手机使用情况,与日常情绪状态显示出适度的相关性,这支持了它们作为生态标记的潜力。这些发现表明,数字表型收集不仅有助于监测,而且还可能通过促进对情绪和行为的自我反思而具有治疗益处。高依从率进一步支持了这种方法在青少年长期情绪障碍管理中的实用性和可接受性。
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引用次数: 0
Patients' Perceptions of Using a Digital Previsit Tool in Outpatient Settings (Part 2): Qualitative Study. 患者在门诊设置中使用数字预诊工具的看法(第2部分):定性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-06 DOI: 10.2196/73477
Petra Pohl, Emma K Kjörk

Background: Patients with long-term conditions, such as stroke, require regular follow-up visits to health care professionals to identify changes in symptoms. The digital previsit tool Strokehälsa (Strokehealth) has been designed to encourage individuals with stroke to reflect on stroke-related health concerns before a follow-up visit, thereby potentially enhancing their engagement during the visit. Strokehealth has previously been evaluated using a patient satisfaction survey (part 1), but there remains a need to further explore patients' perceptions and needs to optimize its functionality before broader implementation.

Objective: The overall aim was to attain deeper insights into patients' views and experiences of using the digital previsit tool Strokehealth before a follow-up visit. A secondary aim was to identify potential improvements to the tool based on these insights.

Methods: For this qualitative study, patients who had used Strokehealth version 1.0 before a follow-up visit were recruited through the previous survey between November 2020 and June 2021. Individual semistructured interviews were conducted, and data were analyzed using reflexive thematic analysis. Subsequent workshops were held with people with firsthand experiences of stroke, other stakeholders (including health professionals and researchers), and a web consultant to finalize decisions regarding adjustments to be implemented in Strokehealth version 2.0.

Results: Interviews were conducted with 33 participants (23 men and 10 women), with a median age of 67 (IQR 55-76) years. Analysis of the data regarding participants' experiences of using Strokehealth revealed three overarching themes: (1) a supporting tool for preparing dialogue and identifying needs, (2) how Strokehealth is introduced and communicated affects perceived usability, and (3) the wording and structure of Strokehealth influences the response process. The findings captured various aspects of receiving and using the digital previsit tool, highlighting its simplicity and purpose. Overall, Strokehealth was well received and contributed to a sense of being well cared for. Participants generally not only found Strokehealth easy to use but also shared suggestions on how to better address stroke-related issues, such as mental fatigue or pain. Examples of changes that have been implemented in Strokehealth version 2.0, based on participant feedback, include improved explanatory texts and expanded opportunities for free text.

Conclusions: The findings indicate that the freely available digital previsit tool Strokehealth was generally well received by patients with stroke who were scheduled for follow-up visits in outpatient settings.

Trial registration: Researchweb 275135; https://www.researchweb.org/is/vgr/project/275135.

背景:患有长期疾病的患者,如中风,需要定期随访卫生保健专业人员,以确定症状的变化。数字预诊工具Strokehälsa (Strokehealth)旨在鼓励中风患者在随访前反思与中风相关的健康问题,从而潜在地提高他们在随访期间的参与度。Strokehealth之前已经通过患者满意度调查(第一部分)进行了评估,但在更广泛的实施之前,仍需要进一步探索患者的看法和优化其功能的需求。目的:总体目的是深入了解患者在随访前使用数字预诊工具卒中健康的观点和经验。第二个目标是根据这些见解确定对工具的潜在改进。方法:在这项定性研究中,通过之前的调查(2020年11月至2021年6月)招募了在随访前使用Strokehealth 1.0版本的患者。进行了个人半结构化访谈,并使用反身性主题分析对数据进行了分析。随后,与中风患者、其他利益相关方(包括卫生专业人员和研究人员)以及一名网络顾问举行了研讨会,以最终确定将在中风健康2.0版中实施的调整。结果:对33名参与者(23名男性,10名女性)进行了访谈,中位年龄为67岁(IQR 55-76)。对参与者使用Strokehealth体验的数据分析揭示了三个主要主题:(1)准备对话和识别需求的支持工具;(2)如何引入和传达Strokehealth影响感知可用性;(3)Strokehealth的措辞和结构影响响应过程。调查结果捕获了接收和使用数字预诊工具的各个方面,突出了其简单性和目的。总的来说,Strokehealth很受欢迎,给人一种被照顾得很好的感觉。参与者普遍认为卒中健康不仅易于使用,而且还分享了如何更好地解决卒中相关问题(如精神疲劳或疼痛)的建议。基于参与者的反馈,在Strokehealth 2.0版本中实现的更改示例包括改进的解释性文本和增加免费文本的机会。结论:研究结果表明,在门诊安排随访的中风患者普遍接受免费的数字预诊工具Strokehealth。试验注册:Researchweb 275135;https://www.researchweb.org/is/vgr/project/275135。
{"title":"Patients' Perceptions of Using a Digital Previsit Tool in Outpatient Settings (Part 2): Qualitative Study.","authors":"Petra Pohl, Emma K Kjörk","doi":"10.2196/73477","DOIUrl":"10.2196/73477","url":null,"abstract":"<p><strong>Background: </strong>Patients with long-term conditions, such as stroke, require regular follow-up visits to health care professionals to identify changes in symptoms. The digital previsit tool Strokehälsa (Strokehealth) has been designed to encourage individuals with stroke to reflect on stroke-related health concerns before a follow-up visit, thereby potentially enhancing their engagement during the visit. Strokehealth has previously been evaluated using a patient satisfaction survey (part 1), but there remains a need to further explore patients' perceptions and needs to optimize its functionality before broader implementation.</p><p><strong>Objective: </strong>The overall aim was to attain deeper insights into patients' views and experiences of using the digital previsit tool Strokehealth before a follow-up visit. A secondary aim was to identify potential improvements to the tool based on these insights.</p><p><strong>Methods: </strong>For this qualitative study, patients who had used Strokehealth version 1.0 before a follow-up visit were recruited through the previous survey between November 2020 and June 2021. Individual semistructured interviews were conducted, and data were analyzed using reflexive thematic analysis. Subsequent workshops were held with people with firsthand experiences of stroke, other stakeholders (including health professionals and researchers), and a web consultant to finalize decisions regarding adjustments to be implemented in Strokehealth version 2.0.</p><p><strong>Results: </strong>Interviews were conducted with 33 participants (23 men and 10 women), with a median age of 67 (IQR 55-76) years. Analysis of the data regarding participants' experiences of using Strokehealth revealed three overarching themes: (1) a supporting tool for preparing dialogue and identifying needs, (2) how Strokehealth is introduced and communicated affects perceived usability, and (3) the wording and structure of Strokehealth influences the response process. The findings captured various aspects of receiving and using the digital previsit tool, highlighting its simplicity and purpose. Overall, Strokehealth was well received and contributed to a sense of being well cared for. Participants generally not only found Strokehealth easy to use but also shared suggestions on how to better address stroke-related issues, such as mental fatigue or pain. Examples of changes that have been implemented in Strokehealth version 2.0, based on participant feedback, include improved explanatory texts and expanded opportunities for free text.</p><p><strong>Conclusions: </strong>The findings indicate that the freely available digital previsit tool Strokehealth was generally well received by patients with stroke who were scheduled for follow-up visits in outpatient settings.</p><p><strong>Trial registration: </strong>Researchweb 275135; https://www.researchweb.org/is/vgr/project/275135.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e73477"},"PeriodicalIF":3.0,"publicationDate":"2025-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12538183/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145239889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Expanding the Design Space for Fall Prevention in Acute Orthopedic Hospital Care: Human-Centered Design Study. 以人为本的设计研究:扩大骨科医院急诊预防跌倒的设计空间。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-02 DOI: 10.2196/73110
Maria Ehn, Åsa Revenäs, Helena Tobiasson
<p><strong>Background: </strong>In-hospital fall prevention is a complex phenomenon most efficiently addressed via a wide range of multifactorial interventions. Technology may contribute, but research in this field has so far mainly focused on detecting falls. As a result, new knowledge from a system perspective is needed regarding when and how new technologies may support fall prevention among patients who have been hospitalized.</p><p><strong>Objective: </strong>This study aimed to explore and describe clinical practices in an acute orthopedic hospital ward for fall prevention from a system perspective; determine the needs and possibilities related to support for clinical practices for fall prevention; and test whether a framework for studying interactions between people, activities, contexts, and technologies can be used to support observations of complex phenomena such as clinical fall prevention.</p><p><strong>Methods: </strong>This qualitative study followed the principles of human-centered design while combining focused ethnography with a workshop. Eight health care professionals representing different staff categories in an acute hospital ward of an orthopedic clinic participated in on-site interviews or were observed in their clinical practice. Data from these events were subjected to qualitative content analysis to describe the clinical practices for fall prevention observed in terms of people, activities, context, and tools. In a workshop, a larger group of clinic personnel provided their views on fall prevention, described the activities and tools they observed to prevent falls, and discussed needs for further support.</p><p><strong>Results: </strong>This study determined that health personnel considered fall prevention in all their interactions with patients, which included a wide range of activities for fall prevention wherein staff categories played complementary roles. These staff-patient meetings were goal oriented, responsive, and patient centered. The staff often served as key "tools" in assessment, communication, and coaching, while digital tools (mainly computer-based software programs) were used for information retrieval, documentation, and communication. The personnel worked to prevent patient falls both during hospitalization and after discharge. They believed that the long-term perspective was much more difficult to address in their clinical practice, and they expressed a need for more homelike environments in the hospital.</p><p><strong>Conclusions: </strong>The view on technology-based in-hospital fall prevention can be broadened not only to mainly include monitoring and alarm systems, information systems in general, or computer-based information in particular systems but also to support activities performed by health personnel that engage patients in fall prevention. For example, tools such as these can be implemented in training involving daily activities and mobility within safe yet more homelike clinical contexts.</
背景:院内跌倒预防是一个复杂的现象,通过广泛的多因素干预最有效地解决。技术可能有所贡献,但到目前为止,这一领域的研究主要集中在检测跌倒。因此,需要从系统角度了解新技术何时以及如何支持住院患者预防跌倒。目的:本研究旨在从系统角度探讨骨科医院急性病房预防跌倒的临床实践;确定与支持预防跌倒的临床实践相关的需求和可能性;并测试研究人员、活动、环境和技术之间相互作用的框架是否可用于支持对临床跌倒预防等复杂现象的观察。方法:本定性研究遵循以人为本的设计原则,将重点人种学与工作坊相结合。对某骨科门诊急症病房不同工作类别的8名医护专业人员进行了现场访谈或临床实践观察。对这些事件的数据进行定性内容分析,以描述从人员、活动、环境和工具方面观察到的预防跌倒的临床实践。在一个研讨会上,更多的诊所工作人员提供了他们对预防跌倒的看法,描述了他们观察到的预防跌倒的活动和工具,并讨论了进一步支持的需要。结果:本研究确定,卫生人员在与患者的所有互动中都考虑了预防跌倒,其中包括广泛的预防跌倒活动,其中工作人员类别发挥了补充作用。这些员工-患者会议以目标为导向,反应迅速,以患者为中心。员工通常在评估、沟通和指导中充当关键的“工具”,而数字工具(主要是基于计算机的软件程序)则用于信息检索、文档编制和沟通。工作人员努力防止病人在住院期间和出院后摔倒。他们认为,在临床实践中,从长远的角度来看,要解决这个问题要困难得多,他们表示,医院需要更像家一样的环境。结论:基于技术的院内跌倒预防的观点不仅可以扩大到主要包括监测和报警系统、一般信息系统或特定的计算机信息系统,而且还可以扩大到支持卫生人员开展的活动,使患者参与到跌倒预防中来。例如,诸如此类的工具可以在涉及日常活动和流动性的培训中实施,在安全但更像家庭的临床环境中。
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引用次数: 0
Weighing Costs and Benefits of Delay and the Acceptance of Two Decision Support Tools in Mental Health Care: Scoping Study Using Quantitative and Qualitative Data. 权衡延迟的成本和收益以及接受精神卫生保健中的两种决策支持工具:使用定量和定性数据的范围研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-30 DOI: 10.2196/71678
Sarah McKenna, Min K Chong, Adam Poulsen, Ashlee Turner, Carla Gorban, Jacob J Crouse, William Capon, Mathew Varidel, Melissa Aji, Elizabeth M Scott, Ian B Hickie, Frank Iorfino

Background: Mental disorders are the leading cause of disability in young people (aged 12-30 years), and their incidence constitutes a major health crisis. Primary youth mental health services are struggling to keep up due to overwhelming demand, the complexity and severity of young people presenting for care, and a shortage of qualified mental health professionals (MHPs). Artificial intelligence (AI) tools have the potential to facilitate necessary improvements to diagnosis, triage, and care planning for young people with emerging mental disorders.

Objective: The objective of the present scoping research was to examine beliefs and attitudes underlying MHP acceptance of AI tools in youth mental health services.

Methods: In total, 57 MHPs (mean age 35.35, SD = 9.50 years, 72% female (n = 39)) with experience working with youth populations (age 12-30) took part in study 1 that involved completing a web-based survey about the acceptability of using AI in early intervention services. During study 2, 15 MHPs also participated in 1-hour semistructured Zoom interviews. Attitudes toward the use of 2 novel AI prototypes (both of which provide recommendations for care coordination based on previously published data analyses) in youth mental health were explored. Quantitative data were interpreted using descriptive statistics, and qualitative analysis followed the thematic analysis approach.

Results: MHPs were more likely to agree than disagree that AI will improve youth mental health care overall (eg, n=37, 64% participants somewhat or strongly agree that the field of mental health will improve with AI). Despite voicing concerns regarding data security and privacy, MHPs also acknowledged a need for AI to improve the "signal-to-noise ratio" in services and address delays to care for those with severe and complex problems. Such problems were seen as pervasive across the youth mental health system and emphasize the serious costs of delaying the development and implementation of novel tools. All participating MHPs discussed the potential negative impacts of not adopting novel tools.

Conclusions: MHP acceptance and uptake of novel AI tools in youth mental health services will be driven by a more complex cost-benefit analysis of both adopting and not adopting, rather than solely on their design. The costs of delay are clear, and so researchers and MHPs have a shared imperative to develop useful and meaningful clinical tools and to work jointly on integrating them into practice. Limitations of our sample (including low sample size limiting generalizability) notwithstanding, these findings should inform the future design and implementation of such tools.

背景:精神障碍是青少年(12-30岁)致残的主要原因,其发病率构成了重大的健康危机。由于巨大的需求、年轻人求医的复杂性和严重性以及合格的精神卫生专业人员(MHPs)的短缺,初级青年精神卫生服务正在努力跟上。人工智能(AI)工具有可能促进对患有新出现精神障碍的年轻人的诊断、分诊和护理计划进行必要的改进。目的:本范围研究的目的是检查青少年心理健康服务中MHP接受人工智能工具的信念和态度。方法:共有57名具有青年人群(12-30岁)工作经验的MHPs(平均年龄35.35岁,SD = 9.50岁,72%为女性(n = 39))参与了研究1,该研究涉及完成一项关于在早期干预服务中使用人工智能的可接受性的网络调查。在研究2中,15名MHPs也参加了1小时的半结构化Zoom访谈。探讨了在青少年心理健康中使用两种新型人工智能原型的态度(两者都根据先前发表的数据分析为护理协调提供建议)。定量数据采用描述性统计解释,定性分析采用专题分析方法。结果:MHPs更有可能同意人工智能将改善青少年心理健康保健(例如,n=37, 64%的参与者多少或强烈同意人工智能将改善心理健康领域)。尽管表达了对数据安全和隐私的担忧,但MHPs也承认需要人工智能来改善服务中的“信噪比”,并解决延误问题,以照顾那些有严重和复杂问题的人。这些问题被认为在青少年心理健康系统中普遍存在,并强调了延迟开发和实施新工具的严重代价。所有参与的MHPs都讨论了不采用新工具的潜在负面影响。结论:MHP在青少年心理健康服务中接受和采用新型人工智能工具将受到采用和不采用更复杂的成本效益分析的推动,而不仅仅是它们的设计。延迟的代价是显而易见的,因此研究人员和MHPs有共同的责任开发有用和有意义的临床工具,并共同努力将它们整合到实践中。尽管我们的样本存在局限性(包括低样本量限制了普遍性),但这些发现应该为此类工具的未来设计和实施提供信息。
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引用次数: 0
Design Guidelines for a Game-Based Physical Rehabilitation System: Focus Group Study. 基于游戏的物理康复系统设计指南:焦点小组研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-26 DOI: 10.2196/67336
Ahmad M S Elaklouk, Ratna Zuarni Ramli, Samah M M Alakklouk, Norsafinar Rahim

Background: Incorporating serious games and advancements in information and communication technologies into physical rehabilitation can substantially enhance the process, provide unique benefits, and improve its effectiveness and efficiency. While recent literature highlights various game-based interventions for physical rehabilitation, there is a lack of comprehensive guidance on how to design and develop systems that effectively address the actual needs of therapists, practitioners, and individuals with physical disabilities.

Objective: The objective of this study was to explore the intentions, needs, and desires of therapists and other practitioners, as well as to examine the factors and determinants influencing the effectiveness and efficacy of game-based physical rehabilitation, since therapists and other health care practitioners play crucial roles in both patient recovery and the establishment of an effective game-based therapy.

Methods: A design science approach was adopted to achieve this research objective. A focus group of 27 participants was conducted to gather feedback, identify user needs, and understand the requirements for game-based physical rehabilitation. The participants first tested commercially available games and then evaluated mock-ups of the proposed game prototypes.

Results: This study provides essential design insights and guidelines for designers and researchers, focusing on the practical needs and requirements of game-based physical rehabilitation systems.

Conclusions: As proof of concept, these guidelines will be used in the next phase of our research, which involves designing and developing a game-based physical rehabilitation system.

背景:将严肃游戏和先进的信息和通信技术结合到假肢康复中,可以大大促进康复过程,提供独特的效益,并提高康复的效果和效率。虽然最近的文献强调了各种基于游戏的身体康复干预措施,但缺乏关于如何设计和开发有效满足治疗师、从业者和身体残疾个体实际需求的系统的综合指导。目的:本研究的目的是探讨治疗师和其他从业人员的意图、需求和愿望,并检查影响基于游戏的物理康复效果和疗效的因素和决定因素,因为治疗师和其他卫生保健从业人员在患者康复和建立有效的基于游戏的治疗中起着至关重要的作用。方法:采用设计科学的方法进行研究。27名参与者的焦点小组进行了收集反馈,确定用户需求,并了解基于游戏的身体康复的要求。参与者首先测试了商业游戏,然后评估了提议的游戏原型的模型。结果:本研究为设计师和研究人员提供了必要的设计见解和指导方针,重点关注基于游戏的肢体康复系统的实际需求和要求。结论:作为概念的证明,这些指导方针将用于我们下一阶段的研究,其中包括设计和开发基于游戏的身体康复系统。
{"title":"Design Guidelines for a Game-Based Physical Rehabilitation System: Focus Group Study.","authors":"Ahmad M S Elaklouk, Ratna Zuarni Ramli, Samah M M Alakklouk, Norsafinar Rahim","doi":"10.2196/67336","DOIUrl":"10.2196/67336","url":null,"abstract":"<p><strong>Background: </strong>Incorporating serious games and advancements in information and communication technologies into physical rehabilitation can substantially enhance the process, provide unique benefits, and improve its effectiveness and efficiency. While recent literature highlights various game-based interventions for physical rehabilitation, there is a lack of comprehensive guidance on how to design and develop systems that effectively address the actual needs of therapists, practitioners, and individuals with physical disabilities.</p><p><strong>Objective: </strong>The objective of this study was to explore the intentions, needs, and desires of therapists and other practitioners, as well as to examine the factors and determinants influencing the effectiveness and efficacy of game-based physical rehabilitation, since therapists and other health care practitioners play crucial roles in both patient recovery and the establishment of an effective game-based therapy.</p><p><strong>Methods: </strong>A design science approach was adopted to achieve this research objective. A focus group of 27 participants was conducted to gather feedback, identify user needs, and understand the requirements for game-based physical rehabilitation. The participants first tested commercially available games and then evaluated mock-ups of the proposed game prototypes.</p><p><strong>Results: </strong>This study provides essential design insights and guidelines for designers and researchers, focusing on the practical needs and requirements of game-based physical rehabilitation systems.</p><p><strong>Conclusions: </strong>As proof of concept, these guidelines will be used in the next phase of our research, which involves designing and developing a game-based physical rehabilitation system.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e67336"},"PeriodicalIF":3.0,"publicationDate":"2025-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12468163/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145178968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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