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Patient's Perceptions of a Centralized Virtual Ward for Remote Patient Monitoring in Primary Care: Qualitative Study. 患者对初级保健中用于远程患者监测的集中虚拟病房的看法:定性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-01 DOI: 10.2196/78780
Alex Jaranka, Gunnar H Nilsson, Terese Stenfors, Maria Hägglund, Panagiotis Papachristou, Marina Taloyan

Background: Remote patient monitoring (RPM) has the potential to reduce in-clinic visits and promote proactive and preventive care for patients with chronic diseases in primary care. However, a decentralized approach to RPM in a primary health care (PHC) setting has not met stakeholders' expectations regarding scalability. This study introduces a centralized virtual ward (CVW)-led RPM, utilizing a multidisciplinary team approach to monitor patients with chronic diseases by clinicians who do not belong to the patients' PHC center.

Objective: This study aimed to gain a better understanding of patients' perceptions of CVW-led RPM for managing chronic diseases in a PHC setting.

Methods: In-depth interviews were conducted with 22 patients with chronic diseases enrolled at a PHC center in Stockholm, Sweden. The RPM project ran between October 2018 and April 2019 and included a total of 395 patients. Interviews followed a semistructured interview guide and were analyzed using qualitative content analysis.

Results: Primary care patients with chronic diseases expressed that their contact with the CVW felt impersonal but at the same time secure and accessible. They noted a lack of coordination and communication between the clinicians of the CVW and their PHC providers. Captured data resulted in 1 overarching theme "Sense of security and accessibility, but impersonal and uncoordinated" based on 5 categories: sense of security, care and self-care, accessibility, quality of care, and communication.

Conclusions: Our findings suggest that by addressing patients' needs for new organizational routines for patient-caregiver communication, RPM via centralized virtual wards can better realize the potential of this technology.

背景:远程患者监测(RPM)有可能减少门诊就诊,促进慢性病患者在初级保健中的主动和预防性护理。然而,在初级卫生保健(PHC)环境中,分散的RPM方法未能满足利益相关者对可扩展性的期望。本研究引入了一种集中的虚拟病房(CVW)主导的RPM,利用多学科团队方法由不属于患者PHC中心的临床医生监测慢性病患者。目的:本研究旨在更好地了解患者对cvw主导的RPM在PHC环境中管理慢性病的看法。方法:对瑞典斯德哥尔摩PHC中心登记的22例慢性疾病患者进行深度访谈。RPM项目于2018年10月至2019年4月期间进行,共包括395名患者。访谈遵循半结构化访谈指南,并使用定性内容分析进行分析。结果:慢性疾病初级保健患者表示,他们与CVW接触时感到没有人情感,但同时又感到安全、亲切。他们注意到CVW的临床医生与其初级保健提供者之间缺乏协调和沟通。捕获的数据产生了一个总体主题“安全感和可及性,但非个人和不协调”,基于5个类别:安全感、护理和自我护理、可及性、护理质量和沟通。结论:我们的研究结果表明,通过集中的虚拟病房实现患者对患者与护理人员沟通的新组织惯例的需求,可以更好地发挥这项技术的潜力。
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引用次数: 0
Usability Evaluation of Digital Health Applications for Older People With Depressive Disorders: Prospective Observational Study in a Mixed Methods Design. 老年抑郁症患者数字健康应用程序的可用性评估:混合方法设计的前瞻性观察研究
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-28 DOI: 10.2196/66271
Magdalini Chatsatrian, Katharina Kunde, Jennifer Bosompem, Jan Dieris-Hirche, Nina Timmesfeld, Rainer Wirth, Georg Juckel, Magdalena Pape, Anna Mai, Chantal Giehl, Bianca Ueberberg, Horst Christian Vollmar, Ina Carola Otte, Theresa Sophie Busse

Background: Digital health applications (DiGA) have been integrated into Germany's health care system since 2019, offering certified medical devices for various health conditions. This study focuses on deprexis and Selfapy, the first 2 permanently approved DiGA for depressive disorders in Germany, to evaluate their usability for people ≥60 years. The study's significance is underscored by the underrepresentation of older people in previous DiGA studies, accompanied by an emergent risk of inequalities in distribution for this vulnerable population.

Objective: This study assessed the usability of DiGA deprexis and Selfapy for adults aged ≥60 years with mild to moderate depression. The more user-friendly option will be chosen for the DiGA4Aged project's upcoming randomized controlled trial.

Methods: The prospective observational study uses the People at the Centre of Mobile Application Development (PACMAD) usability model in a mixed methods design. The study's multistage data collection encompasses sociodemographic data and quantitative questionnaires about health literacy (European Health Literacy Survey Questionnaire [HLS-EU-Q16]), electronic health literacy (revised German eHealth Literacy Scale [GR-eHEALS]), media affinity, depressive symptoms (9-item Patient Health Questionnaire [PHQ-9]), and perceived usability (System Usability Scale [SUS]), as well as a qualitative think-aloud and semistructured interview. Participants were equally allocated to use either deprexis or Selfapy. Recruitment of 18 participants was conducted at 3 hospital departments (ie, psychiatry, psychosomatics, and geriatrics) in spring 2024. Participants were eligible if they were aged ≥60 years, were diagnosed with mild or moderate depressive disorder, owned a digital device, and gave written consent to participate.

Results: Quantitative analysis revealed age, gender, depressive severity, and health literacy parity between both groups. Selfapy users displayed marginally lower technical proficiency and lower usability scores. Qualitative data showed lower usability among participants in the Selfapy group due to design-related errors and higher cognitive load. Despite visual, psychomotor, and cognitive challenges, participants endorsed both DiGA for older users, stressing the importance of assistance and practicing the usage.

Conclusions: Reported difficulties in usability may help to improve future DiGA development for older people, especially as the willingness to use DiGA exists.

背景:自2019年以来,数字健康应用(DiGA)已整合到德国的医疗保健系统中,为各种健康状况提供经过认证的医疗设备。本研究的重点是抑郁症和Selfapy,这是德国首批永久批准的用于抑郁症的DiGA,以评估它们对≥60岁人群的可用性。在以往的DiGA研究中,老年人的代表性不足,伴随着这一弱势群体分布不平等的新风险,突显了这项研究的重要性。目的:本研究评估DiGA抑郁和selftherapy对≥60岁轻中度抑郁症成人的可用性。DiGA4Aged项目即将进行的随机对照试验将选择更加用户友好的选项。方法:前瞻性观察研究在混合方法设计中使用移动应用开发中心(PACMAD)可用性模型。该研究的多阶段数据收集包括社会人口统计数据和关于健康素养的定量问卷(欧洲健康素养调查问卷[HLS-EU-Q16])、电子健康素养(修订的德国电子健康素养量表[sr - eheals])、媒体亲和力、抑郁症状(9项患者健康问卷[PHQ-9])和感知可用性(系统可用性量表[SUS]),以及定性的有声思考和半结构化访谈。参与者被平均分配使用抑郁疗法或自我疗法。2024年春季在3个医院科室(即精神科、心身科和老年科)招募了18名参与者。如果参与者年龄≥60岁,被诊断为轻度或中度抑郁症,拥有数字设备,并书面同意参与,则符合条件。结果:定量分析揭示了两组之间的年龄、性别、抑郁严重程度和健康素养平等。自拍用户的技术熟练程度和可用性得分略低。定性数据显示,由于设计相关的错误和更高的认知负荷,Selfapy组参与者的可用性较低。尽管在视觉、精神运动和认知方面存在挑战,但参与者支持老年用户使用DiGA,强调帮助和练习使用的重要性。结论:报告的可用性困难可能有助于改善未来针对老年人的DiGA开发,特别是当他们愿意使用DiGA时。
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引用次数: 0
A Messaging App Empowering Lifestyle Modification in Chronic Kidney Disease (LINE Official Account "Kidney Lifestyle"): Platform Development and Usability Study. 一款帮助慢性肾病患者改变生活方式的即时通讯应用(LINE公众号“肾脏生活方式”):平台开发和可用性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-26 DOI: 10.2196/73935
Chun-Yi Ho, Deborah Siregar, Miaofen Yen, Junne-Ming Sung, Ming-Cheng Wang, Wei-Hung Lin
<p><strong>Background: </strong>Regular lifestyle modification is crucial for chronic kidney disease (CKD) management; yet, older patients often struggle to sustain behavior change and rely on support from their significant others such as family caregivers or partners. In such cases, both members of the dyad require accessible, jointly usable tools to maintain healthier behaviors over time. Given the ubiquity of instant messaging platforms, a digital intervention delivered via such a platform offers strong potential to empower CKD dyads in active lifestyle modification.</p><p><strong>Objective: </strong>Guided by the Digital Dyadic Empowerment Framework, this study aimed to develop, optimize, and test the usability of a digital platform named "Kidney Lifestyle," using the LINE Official Account (OA) and an integrated extended app to facilitate collaborative lifestyle modification among CKD dyads.</p><p><strong>Methods: </strong>We adopted a three-phase Agile-based development cycle: (1) iterative development and trial use, (2) heuristic evaluation, and (3) usability testing. In phase 1, the platform prototype was codeveloped with health care professionals and trialed by CKD dyads who provided feedback on interface clarity, ease of use, acceptance, intention to continue usage, and overall satisfaction. In phase 2, multidisciplinary experts conducted heuristic evaluations, rating compliance with Nielsen's 10 usability principles and suggesting improvements. In phase 3, experienced CKD dyads from phase 1 performed 6 representative tasks using the platform. Task success rates, completion times, and operational errors were recorded, and usability perceptions were assessed using the After-Scenario Questionnaire (1-7) and the System Usability Scale (0-100).</p><p><strong>Results: </strong>In phase 1, 10 CKD dyads (19 individuals) reported high acceptance (mean overall satisfaction 4.1/5), valuing real-time interaction, convenient health data monitoring, and educational resources. In phase 2, 5 experts found high usability compliance (89%-93%) but noted navigation complexity and the need for more interactive feedback. In phase 3, usability testing with 5 dyads showed high task success (60%-100%) and short completion times (1-5 minutes). Extended app tasks used for structured self-monitoring achieved higher satisfaction, reflecting simpler navigation than tasks within the LINE OA (mean After-Scenario Questionnaire 5.64 vs 3.87). Navigation difficulties within LINE OA were likely due to multilayered menus and limited customization. The average System Usability Scale was 67.5, indicating marginally acceptable usability.</p><p><strong>Conclusions: </strong>The LINE-based digital dyadic empowerment platform "Kidney Lifestyle" demonstrated promising usability and engagement. It has clinical potential to improve CKD control by extending health education, enabling continuous self-monitoring, and allowing clinicians to track patients' daily living conditions. To e
背景:定期改变生活方式对慢性肾脏疾病(CKD)的治疗至关重要;然而,老年患者往往难以维持行为改变,并依赖于他们重要的其他人(如家庭照顾者或伴侣)的支持。在这种情况下,两分体中的两个成员都需要可访问的,共同可用的工具来保持更健康的行为。鉴于即时通讯平台无处不在,通过这种平台提供的数字干预为CKD患者积极改变生活方式提供了强大的潜力。目的:在数字双元赋权框架的指导下,本研究旨在开发、优化和测试一个名为“肾脏生活方式”的数字平台的可用性,该平台使用LINE官方账号(OA)和一个集成的扩展应用程序,以促进CKD双元之间的协作生活方式改变。方法:采用基于敏捷的三阶段开发周期:(1)迭代开发和试用,(2)启发式评估,(3)可用性测试。在第一阶段,平台原型是与医疗保健专业人员共同开发的,并由CKD患者进行试验,他们提供了关于界面清晰度、易用性、接受度、继续使用的意愿和总体满意度的反馈。在第二阶段,多学科专家进行了启发式评估,对尼尔森的10条可用性原则进行了评级,并提出了改进建议。在第三阶段,来自第一阶段的经验丰富的CKD患者使用该平台执行了6项具有代表性的任务。记录任务成功率、完成时间和操作错误,并使用场景后问卷(1-7)和系统可用性量表(0-100)评估可用性感知。结果:在第一阶段,10名CKD患者(19人)报告了高接受度(平均总体满意度4.1/5),重视实时互动,方便的健康数据监测和教育资源。在第二阶段,5位专家发现了高可用性遵从性(89%-93%),但注意到导航的复杂性和对更多交互式反馈的需求。在阶段3,5对的可用性测试显示任务成功率高(60%-100%),完成时间短(1-5分钟)。用于结构化自我监控的扩展应用任务获得了更高的满意度,反映了比LINE OA中的任务更简单的导航(平均场景后问卷调查5.64 vs 3.87)。LINE OA中的导航困难可能是由于多层菜单和有限的自定义。平均系统可用性量表为67.5,表明可用性勉强可以接受。结论:基于line的数字双向授权平台“肾脏生活方式”展示了良好的可用性和参与性。它具有临床潜力,可以通过扩展健康教育,实现持续的自我监测,并允许临床医生跟踪患者的日常生活状况来改善CKD的控制。为了提高效率,未来的工作应该包括更大规模的可行性试验,同时追求正在进行的平台优化,特别是通过简化导航路径、增加返回选项和改进交互式反馈。该平台现在可以通过LINE ID搜索公开访问,正如第一阶段结果所提供的那样。
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引用次数: 0
Turning Patients' Open-Ended Narratives of Chronic Pain Into Quantitative Measures: Natural Language Processing Study. 将患者对慢性疼痛的开放式叙述转化为定量测量:自然语言处理研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-25 DOI: 10.2196/80269
Raquel Norel, Jennifer Gewandter, Zhengwu Zhang, Anika Tahsin, Chadi G Abdallah, John Markman, Zhiyao Duan, Guillermo Cecchi, Paul Geha

Background: Subjective report of pain remains the gold standard for assessing symptoms in patients with chronic pain and their response to analgesics. This subjectivity underscores the importance of understanding patients' personal narratives, as they offer an accurate representation of the illness experience.

Objective: In this pilot study involving 20 patients with chronic low back pain (CLBP), we applied emerging tools from natural language processing (NLP) to derive quantitative measures that captured patients' pain narratives.

Methods: Patients' narratives were collected during recorded semistructured interviews in which they spoke about their lives in general and their experiences with CLBP. Given that NLP is a novel approach in this field, our goal was to demonstrate its ability to extract measures that relate to commonly used tools, such as validated pain questionnaires and rating scales, including the numerical rating scale and visual analog scale.

Results: First, we showed that patients' utterances were significantly closer in semantic space to anchor sentences derived from validated pain questionnaires than to their antithetical counterparts. Furthermore, we found that the semantic distances between patients' utterances and anchor sentences related to quality of life were strongly correlated with reported CLBP intensity on the numerical rating and visual analog scales. Consistently, we observed significant differences between individuals with low and high pain levels.

Conclusions: Although our small sample size limits the generalizability of these findings, the results provide preliminary evidence that NLP can be used to quantify the subjective experience of chronic pain and may hold promise for clinical applications.

背景:主观疼痛报告仍然是评估慢性疼痛患者症状及其对镇痛药反应的金标准。这种主观性强调了理解患者个人叙述的重要性,因为他们提供了对疾病经历的准确描述。目的:在这项涉及20名慢性腰痛(CLBP)患者的初步研究中,我们应用自然语言处理(NLP)的新兴工具来获得捕获患者疼痛叙述的定量测量。方法:通过记录半结构化访谈收集患者的叙述,其中他们讲述了他们的一般生活和他们的CLBP经历。鉴于NLP是该领域的一种新方法,我们的目标是展示其提取与常用工具相关的测量的能力,例如经过验证的疼痛问卷和评分量表,包括数字评分量表和视觉模拟量表。结果:首先,我们发现患者的话语在语义空间上明显更接近于来自验证疼痛问卷的锚定句子,而不是相对的锚定句子。此外,我们发现患者的话语和与生活质量相关的锚定句之间的语义距离与报告的CLBP强度在数值评分和视觉模拟量表上密切相关。一致地,我们观察到低疼痛程度和高疼痛程度的个体之间存在显著差异。结论:虽然我们的小样本量限制了这些发现的普遍性,但结果提供了初步证据,证明NLP可以用于量化慢性疼痛的主观体验,并可能在临床应用中有希望。
{"title":"Turning Patients' Open-Ended Narratives of Chronic Pain Into Quantitative Measures: Natural Language Processing Study.","authors":"Raquel Norel, Jennifer Gewandter, Zhengwu Zhang, Anika Tahsin, Chadi G Abdallah, John Markman, Zhiyao Duan, Guillermo Cecchi, Paul Geha","doi":"10.2196/80269","DOIUrl":"10.2196/80269","url":null,"abstract":"<p><strong>Background: </strong>Subjective report of pain remains the gold standard for assessing symptoms in patients with chronic pain and their response to analgesics. This subjectivity underscores the importance of understanding patients' personal narratives, as they offer an accurate representation of the illness experience.</p><p><strong>Objective: </strong>In this pilot study involving 20 patients with chronic low back pain (CLBP), we applied emerging tools from natural language processing (NLP) to derive quantitative measures that captured patients' pain narratives.</p><p><strong>Methods: </strong>Patients' narratives were collected during recorded semistructured interviews in which they spoke about their lives in general and their experiences with CLBP. Given that NLP is a novel approach in this field, our goal was to demonstrate its ability to extract measures that relate to commonly used tools, such as validated pain questionnaires and rating scales, including the numerical rating scale and visual analog scale.</p><p><strong>Results: </strong>First, we showed that patients' utterances were significantly closer in semantic space to anchor sentences derived from validated pain questionnaires than to their antithetical counterparts. Furthermore, we found that the semantic distances between patients' utterances and anchor sentences related to quality of life were strongly correlated with reported CLBP intensity on the numerical rating and visual analog scales. Consistently, we observed significant differences between individuals with low and high pain levels.</p><p><strong>Conclusions: </strong>Although our small sample size limits the generalizability of these findings, the results provide preliminary evidence that NLP can be used to quantify the subjective experience of chronic pain and may hold promise for clinical applications.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e80269"},"PeriodicalIF":3.0,"publicationDate":"2025-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12690277/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145606557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Shaping Public Perceptions of a Range of Robotic Technologies in Surgery: Cross-Sectional Web-Based Survey. 影响公众对外科手术中机器人技术认知的因素:基于网络的横断面调查。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-20 DOI: 10.2196/64224
Sarek Shen, Deborah Xie, Andy Ding, Lisa Zhang, Francis Creighton

Background: Within the surgical field, there has been an evolution in the application of robotic technology. Fully automatic robotic systems and augmented visualization tools are being introduced and may eventually replace existing surgical extenders such as the da Vinci surgical system. The literature on public perception of robotic surgery is growing, though specific drivers of these attitudes remain under investigation.

Objective: The aim of this study is to investigate the underlying motivators of public perceptions toward robotic surgeries with varying levels of autonomy through a formal technology acceptance model.

Methods: An online survey was distributed via the Amazon Mechanical Turk platform. Survey participants were provided definitions of a continuum of robotic technologies: robotic surgical extenders (technology without independent actions), semiautonomous robotic surgery (technology that provides guidance to the surgeon and requires surgeon input), and fully autonomous robotic surgery (technology that performs tasks autonomously without direct human interaction). The survey assessed overall attitudes toward each application of robotic technology in surgery and included questions delineating specific receptivity based on (1) perceived usefulness, (2) social risk, (3) time risk, (4) personal risk, and (5) reliability. A technology acceptance model was built to identify associations between these factors and overall attitudes toward robotic and semiautonomous surgeries.

Results: A total of 1221 survey responses were recorded (mean age 38, SD 12 y; females: n=635, 52%). Individuals were more willing to accept robotic surgical extenders and semiautonomous robotic surgery compared to autonomous robotic surgery. Higher levels of education and better self-reported health were correlated with more positive attitudes toward autonomous robotic surgery. Perceptions of these technologies were not associated with age, gender, or income. Overall, attitudes toward robotic technologies in surgery were driven by views on the reliability, safety, and efficiency of the procedures. There was less concern regarding time risk and social risk associated with robotic and semirobotic surgeries.

Conclusions: The public is more accepting of semiautonomous surgery and surgical extenders than fully autonomous surgery. General perceptions of the reliability, safety, and efficiency of these technologies drive variations in attitude. Time and social risk do not appear to have a significant impact on receptivity. Understanding these perspectives can help guide education within an advancing surgical field.

背景:在外科领域,机器人技术的应用有了很大的发展。全自动机器人系统和增强可视化工具正在引入,并可能最终取代现有的手术扩展器,如达芬奇手术系统。关于公众对机器人手术的看法的文献越来越多,尽管这些态度的具体驱动因素仍在调查中。目的:本研究的目的是通过正式的技术接受模型来调查公众对不同自主程度的机器人手术的潜在动机。方法:通过Amazon Mechanical Turk平台进行在线调查。向调查参与者提供了一系列机器人技术的定义:机器人手术扩展器(没有独立行动的技术),半自主机器人手术(为外科医生提供指导并需要外科医生输入的技术),以及完全自主机器人手术(在没有直接人类互动的情况下自主执行任务的技术)。该调查评估了人们对机器人技术在外科手术中的每种应用的总体态度,并包括基于(1)感知有用性、(2)社会风险、(3)时间风险、(4)个人风险和(5)可靠性来描述具体接受度的问题。建立了一个技术接受模型,以确定这些因素与对机器人和半自主手术的总体态度之间的联系。结果:共记录1221份调查问卷(平均年龄38岁,SD 12岁;女性:n=635, 52%)。与自主机器人手术相比,个人更愿意接受机器人手术扩展器和半自主机器人手术。更高的教育水平和更好的自我报告健康状况与对自主机器人手术的更积极态度相关。对这些技术的看法与年龄、性别或收入无关。总的来说,对手术中机器人技术的态度是由对手术的可靠性、安全性和效率的看法驱动的。对机器人和半机器人手术相关的时间风险和社会风险的担忧较少。结论:与全自主手术相比,公众对半自主手术和手术扩展器的接受度更高。对这些技术的可靠性、安全性和效率的普遍认知导致了态度的变化。时间和社会风险似乎对接受度没有显著影响。了解这些观点可以帮助指导在一个先进的外科领域的教育。
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引用次数: 0
Family Caregivers' Perspectives on the Potential of Drone-Based Medication Delivery in Palliative Home Care: Qualitative Focus Group Study. 家庭照护者对缓和家庭照护中无人机给药潜力的看法:定性焦点小组研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-13 DOI: 10.2196/80320
Franziska Fink, Sabrina Claudia Otto, Martin Grünthal, Anne Lehmann, Patrick Jahn
<p><strong>Background: </strong>Palliative care supports individuals with incurable, life-threatening illnesses, focusing on symptom management and quality of life. Access to timely care, including essential medications, is often limited, particularly in rural areas, leading to gaps in home-based care. Digital health technologies, including drone-based delivery systems, have the potential to address such logistical challenges. For these technologies to be effective, they must be adapted to the specific needs of patients and caregivers, which often differ from general health care contexts, especially in remote areas.</p><p><strong>Objective: </strong>This study aimed to identify user needs and requirements for a drone-based medication delivery system designed to supplement traditional courier services in palliative care. The study also sought to explore practical considerations for integrating drones into home-based care workflows, with the goal of informing both technical design and clinical applicability.</p><p><strong>Methods: </strong>We conducted 1 focus group (FG) and 4 semistructured individual interviews with family caregivers involved in home-based palliative care. Participants were recruited via local palliative care services in rural regions. The discussions focused on experiences with palliative care, medication logistics, needs, expectations, and concerns regarding drone-assisted delivery. Interviews and the FG were audio-recorded, transcribed, and analyzed using structured qualitative content analysis.</p><p><strong>Results: </strong>A total of 10 caregivers participated (mean age 68.6, SD 12.3 years) in this study. Six participants took part in the FG and 4 participants were part of individually conducted interviews. Caregivers frequently reported long travel distances to obtain medications, sometimes leaving patients unattended and noting medication shortages, especially in the afternoons and on weekends. Participants highlighted the potential of drones to supplement existing courier services during periods of high demand. At the same time, caregivers expressed concerns about limited technical skills, particularly regarding mobile apps for ordering deliveries, and emphasized the need for simple, user-friendly systems. .</p><p><strong>Conclusions: </strong>These findings reveal logistical gaps in palliative care medication supply and design requirements for drone-based delivery systems. There is a clear demand for faster, more reliable access to essential medication, especially during evenings and weekends. Whether drone-assisted delivery can reduce hospitalizations and support patients' wishes to remain at home warrants further research. Specialized outpatient palliative care teams are central to eHealth adoption, providing technical guidance, emotional support, and confidence in using new technologies. Their involvement in communication and training is critical. Strengthening digital health literacy requires individual training an
背景:姑息治疗支持患有无法治愈的、危及生命的疾病的个人,重点是症状管理和生活质量。获得及时护理,包括基本药物的机会往往有限,特别是在农村地区,导致家庭护理方面存在差距。数字卫生技术,包括基于无人机的交付系统,具有解决此类后勤挑战的潜力。为了使这些技术有效,必须对其进行调整,以适应患者和护理人员的具体需求,这些需求往往不同于一般的卫生保健环境,特别是在偏远地区。目的:本研究旨在确定用户对基于无人机的药物递送系统的需求和要求,该系统旨在补充传统的姑息治疗快递服务。该研究还试图探索将无人机整合到家庭护理工作流程中的实际考虑因素,目的是为技术设计和临床适用性提供信息。方法:对参与居家姑息治疗的家庭照护者进行1次焦点小组访谈和4次半结构化个人访谈。参与者是通过农村地区当地的姑息治疗服务招募的。讨论的重点是姑息治疗的经验、药物物流、需求、期望以及对无人机辅助分娩的关注。访谈和FG录音,转录,并使用结构化定性内容分析进行分析。结果:共有10名护理人员参与了本研究,平均年龄68.6岁,SD 12.3岁。6名参与者参加了FG, 4名参与者参加了单独进行的访谈。护理人员经常报告说,他们长途跋涉去取药,有时让病人无人照顾,并注意到药物短缺,特别是在下午和周末。与会者强调了无人机在高需求时期补充现有快递服务的潜力。与此同时,护理人员对有限的技术技能表示担忧,特别是在订购送货的移动应用程序方面,并强调需要简单,用户友好的系统。结论:这些发现揭示了姑息治疗药物供应的后勤差距和基于无人机的交付系统的设计要求。人们显然需要更快、更可靠地获得基本药物,特别是在晚上和周末。无人机辅助分娩是否能减少住院治疗并支持患者留在家中的愿望,还有待进一步研究。专门的门诊姑息治疗团队是采用电子卫生保健的核心,提供技术指导、情感支持和使用新技术的信心。他们参与沟通和培训是至关重要的。加强数字卫生素养需要进行个人培训和结构调整,以满足老年护理人员和数字亲和力有限的人的需求。对失去个人互动的担忧仍然很严重;数字工具应该补充,而不是取代面对面的护理。及时获得药物治疗可以减轻护理人员的压力,并通过支持在家控制症状来改善生活质量。为了促进接受,护理人员需要实践经验。未来的研究应该在现实环境中测试无人机送货,解决技术、心理和社会因素。
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引用次数: 0
mHealth Use, Preferences, Barriers, and eHealth Literacy Among Patients With Inflammatory Bowel Disease: Survey Study. 炎症性肠病患者的移动健康使用、偏好、障碍和电子健康素养:调查研究
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-13 DOI: 10.2196/64471
Christopher Kretzschmar, Johannes Knitza, Robert Pietschner, Raja Atreya, Markus Friedrich Neurath, Till Orlemann
<p><strong>Background: </strong>Mobile health (mHealth), defined as health care facilitated by mobile devices, offers a promising strategy for enhancing disease management and treatment for patients with chronic conditions. However, there is limited information about how patients with inflammatory bowel disease (IBD) use mHealth and their digital preferences.</p><p><strong>Objective: </strong>The aim of the study was to investigate the use of mHealth as well as the preferences, obstacles, and eHealth literacy reported by patients with IBD in Germany.</p><p><strong>Methods: </strong>In April and May 2023, we sequentially enrolled patients diagnosed with IBD, including Crohn disease and ulcerative colitis, to participate in a paper-based survey. The survey included questions on sociodemographic details, health characteristics, mHealth use, internet use, eHealth literacy (measured with the eHealth Literacy Scale), and preferences regarding communication and information.</p><p><strong>Results: </strong>Of the 200 surveyed participants, almost all (197/200, 98.5%) reported regular smartphone use, and more than two-thirds (139/200, 69.5%) indicated regular engagement with social media. Most of the respondents (168/200, 84%) expressed the belief that incorporating medical apps into their routine could positively impact their health. However, only 25 (12.5%) of the 200 patients acknowledged using medical apps, of which just 2 apps were IBD specific, used by only a few (n=3, 12%). Furthermore, awareness of useful websites or mobile apps tailored for IBD was limited (45/200, 22.5%). Nearly all participants (196/200, 98%) expressed willingness to share app data for research purposes, and most (171/200, 85.5%) consented to transmit app data to their treating physicians. A large majority (175/200, 87.5%) indicated readiness to regularly input data into an app, with a preferred duration of up to 5 minutes (109/200, 54.5%) and weekly input frequency (76/200, 38%). For an IBD-specific app, the most frequently requested functions were electronic prescriptions (110/200, 55%) and a newsletter about new scientific work and clinical studies (94/200, 47%). Usability and security were identified as key app attributes. The internet was the predominant source of health-related information (180/200, 90%). The average eHealth literacy score, measured with the eHealth Literacy Scale, was high (mean 28.9, SD 5.4; range 8-40), with a positive correlation observed between higher eHealth literacy and factors such as younger age and more frequent internet use for health information.</p><p><strong>Conclusions: </strong>Patients with IBD are well prepared and motivated to use mHealth technologies to better understand their chronic condition and optimize treatment. However, their enthusiasm is tempered by the currently low adoption of mHealth. To fully harness the potential of mHealth in IBD treatment, effective and tailored mHealth solutions, guidance for their implementation, and
背景:移动医疗(mHealth)被定义为通过移动设备促进的医疗保健,为加强慢性病患者的疾病管理和治疗提供了一种有希望的策略。然而,关于炎症性肠病(IBD)患者如何使用移动健康以及他们的数字偏好的信息有限。目的:本研究的目的是调查德国IBD患者对移动医疗的使用、偏好、障碍和电子健康素养的报告。方法:在2023年4月和5月,我们先后招募了诊断为IBD的患者,包括克罗恩病和溃疡性结肠炎,参与一项基于纸张的调查。调查的问题包括社会人口学细节、健康特征、移动健康使用、互联网使用、电子健康素养(用电子健康素养量表衡量)以及对沟通和信息的偏好。结果:在接受调查的200名参与者中,几乎所有人(197/200,98.5%)都表示经常使用智能手机,超过三分之二(139/200,69.5%)表示经常使用社交媒体。大多数受访者(168/200,84%)表示,将医疗应用程序纳入日常生活可以对他们的健康产生积极影响。然而,200名患者中只有25名(12.5%)承认使用医疗应用程序,其中只有2个应用程序是IBD专用的,只有少数人使用(n= 3.12%)。此外,针对IBD定制的有用网站或移动应用程序的认知度有限(45/ 200,22.5%)。几乎所有参与者(196/ 200,98%)表示愿意为研究目的分享应用数据,大多数参与者(171/ 200,85.5%)同意将应用数据传输给他们的主治医生。绝大多数人(175/200,87.5%)表示愿意定期将数据输入到应用程序中,首选持续时间为5分钟(109/200,54.5%),每周输入频率(76/200,38%)。对于ibd特定应用程序,最常要求的功能是电子处方(110/ 2000%,55%)和关于新科学工作和临床研究的新闻通讯(94/ 2000%,47%)。可用性和安全性被认为是应用程序的关键属性。互联网是健康相关信息的主要来源(180/ 2000%,90%)。用电子健康素养量表测量的平均电子健康素养得分很高(平均值28.9,标准差5.4;范围8-40),观察到较高的电子健康素养与年龄较小和更频繁地使用互联网获取健康信息等因素之间存在正相关关系。结论:IBD患者有充分的准备和动力使用移动健康技术来更好地了解他们的慢性疾病和优化治疗。然而,他们的热情因目前移动医疗的低采用率而有所减弱。为了充分利用移动医疗在IBD治疗中的潜力,需要有效和量身定制的移动医疗解决方案、实施指导和患者教育。
{"title":"mHealth Use, Preferences, Barriers, and eHealth Literacy Among Patients With Inflammatory Bowel Disease: Survey Study.","authors":"Christopher Kretzschmar, Johannes Knitza, Robert Pietschner, Raja Atreya, Markus Friedrich Neurath, Till Orlemann","doi":"10.2196/64471","DOIUrl":"10.2196/64471","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Mobile health (mHealth), defined as health care facilitated by mobile devices, offers a promising strategy for enhancing disease management and treatment for patients with chronic conditions. However, there is limited information about how patients with inflammatory bowel disease (IBD) use mHealth and their digital preferences.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;The aim of the study was to investigate the use of mHealth as well as the preferences, obstacles, and eHealth literacy reported by patients with IBD in Germany.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;In April and May 2023, we sequentially enrolled patients diagnosed with IBD, including Crohn disease and ulcerative colitis, to participate in a paper-based survey. The survey included questions on sociodemographic details, health characteristics, mHealth use, internet use, eHealth literacy (measured with the eHealth Literacy Scale), and preferences regarding communication and information.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Of the 200 surveyed participants, almost all (197/200, 98.5%) reported regular smartphone use, and more than two-thirds (139/200, 69.5%) indicated regular engagement with social media. Most of the respondents (168/200, 84%) expressed the belief that incorporating medical apps into their routine could positively impact their health. However, only 25 (12.5%) of the 200 patients acknowledged using medical apps, of which just 2 apps were IBD specific, used by only a few (n=3, 12%). Furthermore, awareness of useful websites or mobile apps tailored for IBD was limited (45/200, 22.5%). Nearly all participants (196/200, 98%) expressed willingness to share app data for research purposes, and most (171/200, 85.5%) consented to transmit app data to their treating physicians. A large majority (175/200, 87.5%) indicated readiness to regularly input data into an app, with a preferred duration of up to 5 minutes (109/200, 54.5%) and weekly input frequency (76/200, 38%). For an IBD-specific app, the most frequently requested functions were electronic prescriptions (110/200, 55%) and a newsletter about new scientific work and clinical studies (94/200, 47%). Usability and security were identified as key app attributes. The internet was the predominant source of health-related information (180/200, 90%). The average eHealth literacy score, measured with the eHealth Literacy Scale, was high (mean 28.9, SD 5.4; range 8-40), with a positive correlation observed between higher eHealth literacy and factors such as younger age and more frequent internet use for health information.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;Patients with IBD are well prepared and motivated to use mHealth technologies to better understand their chronic condition and optimize treatment. However, their enthusiasm is tempered by the currently low adoption of mHealth. To fully harness the potential of mHealth in IBD treatment, effective and tailored mHealth solutions, guidance for their implementation, and","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"12 ","pages":"e64471"},"PeriodicalIF":3.0,"publicationDate":"2025-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12661228/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145514575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perspectives of Older Adults on Assistive Technology: Qualitative Study. 老年人对辅助技术的看法:定性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-12 DOI: 10.2196/74214
Mirou Jaana, Maude Lévesque Ryan, Haitham Tamim, Edward Riachy, Guy Paré

Background: The aging population presents challenges for health care systems. Assistive technologies (ATs), such as telemonitoring, fall detection, and self-monitoring devices, offer potential solutions to support older adults and their care. However, successful implementation relies on their acceptance, which remains poorly understood, particularly among nonusers.

Objective: This study aimed to explore older adults' perceptions of ATs, including perceived benefits, adoption barriers, and factors influencing willingness to use these technologies.

Methods: A qualitative study was conducted with 31 participants (aged ≥65 years) with varying levels of health and care needs. Data were collected through 6 focus groups and 6 in-depth interviews and then analyzed thematically using NVivo software.

Results: A total of 7 themes emerged: (1) limited familiarity, with greater recognition of fall detection and self-monitoring devices compared to telemonitoring; (2) perceived benefits, including safety, independence, and chronic disease management; (3) key concerns, including usability, cost, reliability, privacy, and psychological impacts; (4) suggested improvements, including user-friendly designs and training programs; (5) contextual influences identified with independent older adults perceiving greater utility; (6) strategies for ATs' promotion proposed, such as media campaigns, government subsidies, and health care endorsements; and (7) overall willingness to adopt ATs, driven by perceived need, social and health care influence, and ease of use.

Conclusions: Although ATs offer clear benefits, adoption remains limited due to usability, cost, and psychological concerns. Improving accessibility, training, and integration into traditional health care service delivery may facilitate acceptance and use. Future research should focus on inclusive designs and policy interventions to maximize ATs' potential in aging populations.

背景:人口老龄化对卫生保健系统提出了挑战。辅助技术(at),如远程监测、跌倒检测和自我监测设备,为支持老年人及其护理提供了潜在的解决方案。然而,成功的实现依赖于它们的接受度,这一点仍然知之甚少,特别是在非用户中。目的:本研究旨在探讨老年人对人工智能的认知,包括感知到的好处、采用障碍以及影响使用这些技术意愿的因素。方法:对31名具有不同健康和护理需求水平的参与者(年龄≥65岁)进行定性研究。通过6个焦点小组和6次深度访谈收集数据,然后使用NVivo软件进行主题分析。结果:共出现了7个主题:(1)熟悉程度有限,与远程监护相比,跌倒检测和自我监测设备的认知度更高;(2)可感知的益处,包括安全性、独立性和慢性疾病管理;(3)关键问题,包括可用性、成本、可靠性、隐私和心理影响;(4)改进建议,包括人性化设计和培训计划;(5)环境影响与独立老年人感知更大的效用;(6)提出的推广人工智能的策略,如媒体宣传、政府补贴和卫生保健认可;(7)在感知需求、社会和卫生保健影响以及易用性的驱动下,采用辅助用药的总体意愿。结论:尽管人工智能提供了明显的好处,但由于可用性、成本和心理问题,采用人工智能仍然受到限制。改善可及性、培训和整合传统卫生保健服务可能促进接受和使用。未来的研究应侧重于包容性设计和政策干预,以最大限度地发挥人工智能在老龄化人口中的潜力。
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引用次数: 0
Collaborative Design and Development of a Patient-Centered Digital Health App for Supportive Cancer Care: Participatory Study. 协作设计和开发以患者为中心的数字健康应用程序,支持癌症治疗:参与性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-11 DOI: 10.2196/73829
Sonia Difrancesco, Matthia Martina Bauert, Claude Lehmann, Steven Häsler, Yi Zhang, Sven Hirsch, Philipp Ackermann, Kurt Stockinger, Monika Reif, Sunjoy Mathieu, Anna Götz, Andreas Wicki, Michael Krauthammer, Claudia M Witt

Background: Digital health tools such as smartphone apps have the potential to improve supportive cancer care. Although numerous smartphone apps for supportive care are available, few are designed using a user-centered approach. Such an approach is crucial for successful implementation, as it may improve user engagement, usability, and adoption in clinical settings.

Objective: This study aimed to co-design and develop a digital health app for supportive cancer care in collaboration with patients with cancer and health care professionals and to explore factors influencing its future acceptance.

Methods: We conducted a participatory study with the major stakeholders at the University Hospital Zurich. Workshops, individual qualitative interviews, and focus groups were held with health care professionals, survivors of cancer, and patients with cancer. The co-design process was divided into 3 phases: predesign, generative phase, and prototyping. User-centered design methods included scoring cards and think-aloud protocols to co-create design ideas, identify important functionalities, and test usability. Qualitative data were analyzed using thematic analysis.

Results: Patients and health care professionals emphasized the need for a digital health app to improve patient-healthcare professional communication, digitalize supportive care screening and processes, and enhance self-efficacy. The resulting app, OncoSupport+, was co-designed and integrated into the clinical workflow for supportive cancer care. It consists of (1) a patient dashboard to record patient-reported outcome measures and to provide access to personalized supportive care information and contact details, and (2) a nurse dashboard to visualize patient data, which can be used during nursing consultations. Potential facilitators for adoption included ease of use, workflow integration, introduction by health care professionals, and technical support, whereas internet anxiety may be a potential barrier.

Conclusions: Collaborative development with patients and health care professionals is crucial for creating digital health tools that can be implemented successfully. Future research should evaluate the feasibility of long-term implementation and the real-world usability and effectiveness of OncoSupport+ for improving communication, self-efficacy, and quality of life.

背景:智能手机应用程序等数字健康工具有可能改善支持性癌症治疗。虽然有许多支持护理的智能手机应用程序,但很少有采用以用户为中心的方法设计的。这种方法对于成功实施至关重要,因为它可以提高用户参与度、可用性和临床环境的采用。目的:本研究旨在与癌症患者和医疗保健专业人员合作,共同设计和开发一款支持癌症治疗的数字健康应用程序,并探讨影响其未来接受度的因素。方法:我们与苏黎世大学医院的主要利益相关者进行了一项参与性研究。与保健专业人员、癌症幸存者和癌症患者举行了讲习班、个人定性访谈和焦点小组讨论。协同设计过程分为3个阶段:预设计阶段、生成阶段和原型阶段。以用户为中心的设计方法包括计分卡和大声思考协议,以共同创建设计思想、识别重要功能和测试可用性。定性数据采用专题分析进行分析。结果:患者和卫生保健专业人员强调需要数字健康应用程序来改善患者与卫生保健专业人员的沟通,数字化支持护理筛查和流程,提高自我效能感。由此产生的应用程序OncoSupport+是共同设计并集成到支持性癌症治疗的临床工作流程中的。它包括(1)患者仪表板,用于记录患者报告的结果测量,并提供个性化支持护理信息和联系方式的访问;(2)护士仪表板用于可视化患者数据,可在护理咨询期间使用。促进采用的潜在因素包括易用性、工作流集成、卫生保健专业人员的介绍和技术支持,而互联网焦虑可能是一个潜在的障碍。结论:与患者和卫生保健专业人员合作开发对于创建可成功实施的数字卫生工具至关重要。未来的研究应评估长期实施的可行性,以及OncoSupport+在改善沟通、自我效能和生活质量方面的现实可用性和有效性。
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引用次数: 0
Correction: Requirement Analysis for Data-Driven Electroencephalography Seizure Monitoring Software to Enhance Quality and Decision Making in Digital Care Pathways for Epilepsy: A Feasibility Study from the Perspectives of Health Care Professionals. 更正:数据驱动脑电图癫痫监测软件的需求分析,以提高癫痫数字护理途径的质量和决策:一项从卫生保健专业人员角度的可行性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-11 DOI: 10.2196/79484
Pantea Keikhosrokiani, Johanna Annunen, Jonna Komulainen-Ebrahim, Jukka Kortelainen, Mika Kallio, Päivi Vieira, Minna Isomursu, Johanna Uusimaa

[This corrects the article DOI: 10.2196/59558.].

[这更正了文章DOI: 10.2196/59558。]
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引用次数: 0
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JMIR Human Factors
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