Narrative inquiry in bioethics最新文献

Pregnant people experience moral judgment in healthcare settings that may be coded into clinical documentation. Stigmatizing language in medical records transmits bias between clinicians, potentially exacerbating disparities in maternal morbidity and mortality. We examined obstetrical records from 100 randomly selected patients who received prenatal and delivery care in an academic hospital system. Qualitative analysis sought to identify linguistic features conveying negative attitudes or moral judgment, revealing themes of epistemic injustice: (1) discrediting patient testimony as incompetent, unreliable, and hysterical; (2) unnecessary details that are objectifying, stigmatizing, or unprofessional; and (3) judgments of maternal fitness, where women are labeled "bad mothers" by emphasizing neglectful, selfish, and debauched characteristics. We conclude by advocating for further validation of our findings, revisiting medical education paradigms, and supporting the development of natural language processing (NLP) technologies to detect and intercept stigma.

This commentary discusses the relationship between neurodiversity and mental health across twelve narratives shared by people with lived experiences of neurodivergence, mainly autism and attention deficit hyperactivity disorder (ADHD). Many authors in this symposium describe the psychological distress they endure as the product of ableism against neurodivergent people, calling us to reflect upon the entangled nature of neurodevelopmental conditions and mental health conditions. Absent in this issue are stories of people whose sole or primary experience of neurodivergence is a mental health condition like bipolar or schizophrenia, and I reflect here on what such missing narratives could teach us about neurodiversity, mental health, and disability.

This symposium includes twelve personal narratives from contributors who identified their lived experiences as falling within the umbrella of neurodivergence, as well as four other stories that appear in the online supplement. Four commentaries on these narratives are also included, authored by scholars in anthropology, bioethics, psychiatric disability, and who have lived experience of neurodivergence or of parenting neurodivergent children. The goal of this symposium issue is to call attention to our neurodiverse world, i.e., the range of different ways that human minds and brains work.The stories and commentaries introduce vocabulary and themes relevant to neurodivergent experiences, highlighting experiences of difference, diagnostic journeys in childhood and adulthood, experiences of (in)visibility and masking neurodivergence, the role of labels, as well as the experiences of learning and growth. The commentaries highlight how some stories are absent, cautioning us that the world is far more neurodiverse than this (or likely any) collection of essays can represent.

This symposium includes twelve personal narratives from parents of children with Down syndrome. These narratives foster better understanding of these parents' experiences of learning that their child has Down syndrome, navigating sometimes labrynthine medical, educational, and social services bureaucracy, and contending with an implicitly-and sometimes explicitly-ableist culture. Four commentaries on these narratives are also included, authored by experts and scholars in bioethics, disability studies, health and science communication, and public advocacy. The goal of this symposium is to call attention to the ways in which the lived experiences of parents raising children with Down syndrome often differ from broader public perception, media portrayals, or even how Down syndrome is viewed and discussed among healthcare professionals and bioethicists.